Body Rebalanced
Вставка
- Опубліковано 16 сер 2021
- Check out the first episode of the Life Rebalanced Chronicles docu-series - Body Rebalanced. In this episode we explore how having a vestibular disorder changes our relationship to our body. When your vestibular system is compromised, your body is literally out of balance. This may be the first time in your life that you are no longer in control of your body. You may experience vertigo, dizziness, rocking, swaying, ear fullness, tinnitus, or other typical (and sometimes otherworldly) symptoms of vestibular dysfunction. Some people become sensitive to triggers in their external environment, such as busy visual patterns. Others report feelings of “derealization” or being disconnected from their body. For many vestibular patients, the first step toward recovery is vestibular rehabilitation therapy. Physical exercise in the form of walking, yoga, tai chi, and other activities, as well as dietary changes, can also be part of your rehab process. Use of adaptive or supportive devices, such as tinted glasses or walking poles, can be part of one’s “life rebalanced” toolkit. Some people fully recover their physical capabilities, while others live with some level of chronic disability.
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Life Rebalanced Chronicles documents the stories of nine vestibular warriors. None of them expected to be knocked down by a vestibular disorder. All of them looked fear, anxiety, and loneliness in the face and said, “You will not define me.” Their message is one of hope for everyone who struggles with invisible chronic illness and others who are navigating life’s challenges. The new six-episode docuseries will air weekly starting August 10, in conjunction with Balance Awareness Week (Sept. 19-25, 2021). The series is a collaboration between the Vestibular Disorder Association (VeDA) and Kimberly Warner, filmmaker and founder of Unfixed Media and the Unfixed Community youtube channel. In 2015, Kimberly was diagnosed with cervicogenic vertigo and Mal de Débarquement Syndrome (MdDS) that manifests as a constant perception of rocking, bobbing and swaying.
The Life Rebalanced Chronicles documents nine vestibular patients who are learning to live with disorders such as vestibular migraines, MdDS, Meniere’s Disease and vestibular neuritis. Through intimate conversations, they explore parts of the human experience impacted by their vestibular dysfunction - mind, body, spirit, relationships, self and life. They also share their personal toolkits for living and thriving with their disorders and provide strategies from meditation, yoga and journaling to advocacy and finding meaning and purpose within their “new normal.”
“This honest and inspiring docuseries shines a light on invisible balance disorders and brings more awareness and empathy to the vestibular experience,” says Cynthia Ryan, Executive Director of VeDA. “We are honored to work with filmmaker and vestibular patient Kimberly Warner, who brings lived experience to each episode as she compassionately helps each individual share their unique journey toward healing and hope.”
About VeDA
For almost 30 years, VeDA has been a highly respected source of scientifically credible information on vestibular disorders. Through publications and an online community, VeDA has reached millions of vestibular patients with critical information and support. The organization provides education and emotional support to patients with dizziness and imbalance. They connect patients with medical specialists through a provider directory of clinics that specialize in diagnosing and treating vestibular disorders. VeDA advocates on behalf of all who are impacted by vestibular disorders. For more information, visit vestibular.org/
About Unfixed Media
Unfixed Media Productions was created by award-winning producer and filmmaker Kimberly Warner and focuses on stories of humans living with chronic, incurable conditions. People love fixer-upper stories, miracle cures and answers but many wake up each day without any of these. The world needs more models for how to live a meaningful, unfixed life - a life liberated from fixed notions of how we must feel in order to live fully. The Unfixed portfolio of projects demonstrates that living well is not about eradicating our wounds and weaknesses but understanding how they complete our identities and equip us to help others. Programming includes Life Rebalanced Chronicles docuseries, the MS Confidential webcast series, the Unfixed Podcast, and the ongoing Unfixed monthly docuseries (and future feature film) available on The Disorder Channel and the Unfixed Community UA-cam Channel. For more information, visit www.unfixedmedia.com/
Director - Producer - Editor: Kimberly Warner
Segment Director/Producer: Mia Allen
Graphics: David McLaughlin
Episode Two: Mind Rebalanced: • Mind Rebalanced - Розваги
I'm a firefighter with this problem. Keep your hope up. Don't quit.
So excited to participate in this amazing moment. Thank you VeDA for giving us a voice and a platform to share our journeys with the world . Find your CHAPPINESS!
Thank you for watching!
I LOVE the "sigh" in collective......says everything, without saying anything! I think the world joins the cast in this collective SIGH......Because we must breath out.....in order to BREATHE IN..........And with the new breath, comes an opportunity for a new moment, a new memory, a new experience. Very powerful!
First episode was amazing, what a bunch of great warriors. Look forward to the next episode.
Thank you for watching! The following episode comes out next Tuesday.
Oh my God. This first video is EXACTLY it! You guys are so strong and inspiring. So transparent and brave. Living life to the fullest! Go VeDA Ambassadors! You’re all amazing!
Lynn, you are a true warrior and I love you.
With much love ❤ and admiration. From cousin Sandy McCartney
Vestibular Migraine patient here: I understand and relate to all of this. So great to find my tribe xoxo
Amazing. You got it spot on.
Lynn Johnson, I have watched you battle this disease with an indomitable spirit.
I have watched you challenge your symptoms with ferocity and never gave up.
I remember when you couldn't even ride in a car but you were determined to never give up. You purposed to conquer this disease and I can see your progress.
So I am so proud 👏🏽 of you Lynn ❤ and I love you 💕 so much. Much love from your cousin Sandy McCartney ❤
Thank you VEDA and all the participants that shared their stories. When I received diagnosis for Vestibular Migraines with Aura after extensive testing, the journey towards health was a long scary experience. It has taken years to "rebalance" what is unbalanced. The symptoms that are invisible to others have been disheartening. The vertigo, the speech, the vision, headaches that wax and wane, all of it combined simply drains the mind, body and spirit. WE ARE NOT ALONE and Together We Heal. Warriors do not give up, and conditions do not define us.
Rocking, swaying, motion. I actually rock now. Its really jacked up when you drive and stopped and other cars are you are moving around you and you feel like you are in motions. too. WOW
Thank you for your courage to tell your stories. You are all amazing!!
Hi, what an amazing video, and well done to all of those involved in producing this. For such a short film I felt a whole range of emotions, I just wish our fight and struggles were heard and understood by the bigger audience. It’s time for change, why should we continue to suffer alone? ❤️
Adam Kemp Ménière’s Worldwide ❤️
So glad it resonated with you Adam. We are working hard to get this series into media al school curriculums, at care practitioner events and into much wider audiences. We agree with you! We need these stories to be heard and understood so no one suffers alone anymore.
@@UnfixedCommunity if ever myself or any of the Ménière’s Worldwide admin team can ever be of any assistance then please drop me a message 👍
This video so on point. I just found this video while doing some research on vestibular disorder. I have had these symptoms that come and go for several years now. I have always been made to feel like what I was feeling wasn't real. So thank you so much for this video and shining a light on this disease. More people need to talk about this. I was suffering alone in silence but now I feel like I can talk about it and inspire others to do the same....amazing video thank you!!!❤
@@BPerez-fp6ix Wow. I am so delighted to hear that you found this video and feel solidarity in the message. So many of us thought we were alone and it turns out there's an entire community of vestibular patients supporting and working together to make our journeys a little less hard. We really appreciate your feedback - hope you found the rest of the series just as helpful!
This episode was wonderful to watch after a very challenging day. Thank you!
Thank you for sharing 🥰
These stories ring so true for me and it’s so nice to hear such positivity. It makes me feel hopeful. Looking forward to the rest of the episodes. x
Amazing examples of how to find yourself when you feel like you’re losing it! #Inspiring
Thank you for sharing our stories, VEDA!
Tune in next week for the next episode, Mind Rebalanced, next week. ua-cam.com/video/hbEJN8o_1qY/v-deo.html
Needed this today 😭♥️
This was so great glad you are doing these short stories that is now our lives. So hopeful to hear of other people on the same journey and the ability to talk about the everyday struggles!!! As when I’m writing this response I have to struggle to just find the words 😢
Omg this was needed!!!!!!!
Thank you for this informative video that will help those with vestibular disorders communicate what living with them is like. I was diagnosed 5 years ago with Menieres. To anyone suffering with a vestibular disorder keep researching and looking for answers and therapies that work for you. For me, it really helps to know I'm not alone in this journey.
Awesome video !! Great way to explain vestibular issues !!
Great!
Thank u for sharing. I can totally relate. Fellow Vesti patient 😊
i loved watching this , it gives me hope for brighter days ahead :)
Thanks 🙏
I cry everyday because a lot of the times, I feel like I’m walking down and up when walking. When sitting down, I feel like I move occasionally. In bed, I feel like I’m swaying. I have this a lot of the times and thankfully, the intensity has decreased but sadly, I still feel it. I can’t imagine how people have it worse than me like in this video. I can still manage to to do anything I can, except exercising cause I’m scared. This wrecks you physically and emotionally. I hope we all get better!!
Hi Kev San, We are so sorry to hear about your experience. If we can help with support, referrals or information please contact us at info@vestibular.org or 800-837-8428
Is there any vestibular online groups? Not message boards but online meetings
HI Luna, We have support groups online on our website at vestibular.org under support and coping. Contact me at info@vestibular.org for more information or resources.
I'm convinced that my balance issues started by coming off of the SSRI Lexapro too quickly. From what I've read, the most typical symptom of a long-term withdrawal is dizziness, light-headedness, and vertigo. Is anyone out there familiar with this syndrome?
Bonjour , je ne savais pas ou poser ma question, je dois porter des lunettes de vue et elles me déclenchent à chaque fois mes crises dès que je les porte mais j en ai besoin , j ai changer plusieurs fois de montures et de mesures tjs pareil est ce que vous avez une solution et si j étais toute seule à avoir ses symptômes avec mes lunettes de vue ? Je souffres de migraines vestibulaires
Je suis désolé d'entendre parler de vos symptômes. Veuillez nous écrire à info@vestibular.org pour des ressources et des informations.
When i m walking,, i feel lose off balanced,, is it vertigo??? What r Solution???
Cual es el
Grupo de WhatsApp que tienen ?
Does it get better completely or it’s for whole life I’m suffering from 11 months
Hi, I welcome you to explore our support groups! Sometimes just connecting with others who have, or our experiencing some of the same things helps with some of the feelings that are arising. Here is a link to access the various support groups (vestibular.org/article/coping-support/support-groups/). You will find that there are in-person, online, and facebook groups.
It does get better! Keep moving…. Sending prayers to you. Remain joyful in hope 💕
noce to know I AM NOT.....ALONE! DOCS HAVE NOOOOOOOOOOOOOOOOOO CLUE TO PPPD!