I'm learning so much from this professional and his videos ; much more than from my own rheumatologist. I wish all our rheumatologists know so much and care so much about their patients.It's clear he feels passion for his job.
Interesting.Would have greatly benefited from use of some kind pointing device when comparing scans-"if we compare the inflammation here to the inflammation here"??????!!!!
I'm a 42 year old Brazilian woman, feeling pain for 3 years now. I was successively diagnosed with fibromyalgia by several rheumatologists. After almost three years looking for improvement and treating fibromyalgia, a new rheumatologist asked me for an MRI of the sacroiliac joints and discovered, along with other tests, that I have spondyloarthritis. It's desperate to be in pain, do multiple treatments and not get better. I questioned my sanity several times. Many people said that I have something psychological. The diagnosis came as an answer and a certain relief. But the road is difficult and painful.
I was Dx with Psoriatic arthritis, Ankylosing Spondylitis, Bulging discs with core compression, degenerative discs w/facets in neck....but now a NEW Rhuemy says "I just think you have some osteoarthritis and sends me for feet xrays (cuz they hurt sooo bad), and the xrays dontnday too much at all but " Negative for bone growth, masses, etc but some changes," So Rhuemy says"I dont think u have anything but AGING OSTEO like I do and every body else" 😱😭😩💔 I'm feel like someone just threw me out in the dump truck! It's awful cuz I feel like 7yrs of medical MRI's, etc and now this guys wants to ignore all of that and say I'm just aging when i had this since i was 30 and now 46!!!
I learned so much through this very detailed teaching. Thank you! I have complained about severe back and pelvic pain. What specialist should I be referred to?
yes it can it can also flip from one side to the other also effect other joints apart from the si joints and spine I have had this condition for over 50 years
Same here. My left hip hurts when resting or sitting and my left side back gets stiff after resting. I wake up everyday in pain around 3-4 am. After I move around it loosens up. I plan on getting this checked out. Been going on 3 1/2 years. For the longest time I thought it was injury from running but I think if it were. It would’ve healed by now.
When he starts off right away with an untruth I have a hard time putting credence to the rest of his talk. At 0.50 he says "narcotics don't work", so obviously he has never been in a position to need them, but they help me get out of the bed in the morning.
I think he means narcotics do not change nor stop disease progression and damage . But yes they do help you get through you day . Damage will be done and it’s not reversible.
I have everything IBD uveitis psoriasis and back stiffness and pain plus positive HLA B27 and still waiting to see a rheumatologist and gastroenterologist it’s diabolical in uk
As a Seronegative Spodyloarthropathy patient what is the hazard in having a T-Score of 10 in the spinal column? Areas score a range from 5 to 7 and up to 9.5. I never received TNF treatment because of liver disease history.
I'm on adalimumab, coming up for one year now, Only symptoms I get is a headache and insomnia for 3 days after injection, But its given me the ability to get out of bed in around 30 to 45 minutes compared to 2 and a half hours prior, Took me 4 years to get diagnosed
@@andyl9900 Tbh it's the stiffness and pain. My back just doesn't move when I wake up, Once the pain meds kick in I do some slow stretches and get my back moving and once I do that then the rest of the day can be okay but I get good days and bad days
IM hla b27 negative with normal esr crp and x-rays but I have all the symptoms of AS ...I have pain and stiffness in lower back ,neck( can't move my in chin tuck pose without serious pain) ,shoulder,knee,ankles...I'm 20 And a hell lot of dipression...what should I do...
Hi Ujjwal same condition with me B27 negative normal ESR and CRP MRI shows one side bone marrow edema back, hips, feet pain still no diagnosed. But symptoms are same
@@jitenderpal2043 my dear I've gone through all that. I'm also negative. Stop eating processed foods, sugar in any forms, diary products, fried foods and outside foods, white rice, gluten and also stop non veg for 45 days, after that eat white meat. All this edema will go, I had it so severe I couldn't walk. My diet was a healing medicine to me. Have vegetables, probiotics. This is all due epigentic changes read the relation between gut and autoimmune diseases
Rebecca Swanson Can we talk? I have had symptoms of AS and am HLA-B27 positive for just over 10 years but have not received a diagnosis. My functional medicine dr. has told me I need to change my diet (sometimes I do really well for a period of time and then I fall off the wagon and go back to bad eating habits). I would like to hear what you use and what really works for you. I really don’t want to use pharmaceuticals.
@@Libertygal74 i am really victimized by AS, ur advice can b really beneficial if u are improving from as please guide me as well , Every day i am taking Pain killers to perform my daily works , i am very choosy in my diet did not eat red meat , Some veg also but still waiting for the good days
I'm learning so much from this professional and his videos ; much more than from my own rheumatologist. I wish all our rheumatologists know so much and care so much about their patients.It's clear he feels passion for his job.
Hi
great video, easy to understand and lots of info. not the usual boring tone that I come across in other videos. great speaker
I have chronic lower back pain and just figured out I'm hla-b27 positive. I'm going to see a rheumatologist soon
Excellent very informative lecture , the best I've come across yet .. Thank you very much indeed for posting
Interesting.Would have greatly benefited from use of some kind pointing device when comparing scans-"if we compare the inflammation here to the inflammation here"??????!!!!
What an excellent speaker!
i was diagnosed with this but pains usally grow on inner hip area
How are u doing with that
thank you sir for excellent lecture
Thank you. Very educational and informative.
seen better days been going thru this for bout 10 years
10 for me too!
@@Grinningpicker00me too but it’s getting worse these past 6 months
10 years. Been 2 years for me, having waist pain now too.
Thank you from Latin America! Great info.
Thank you so much. I have spondyloarthropathy.
I think I have the same too do you get mid back pain when you drink coffee or to much coke and certain foods? Feels like I get inflammation
@@antoniop5889no
I'm a 42 year old Brazilian woman, feeling pain for 3 years now.
I was successively diagnosed with fibromyalgia by several rheumatologists. After almost three years looking for improvement and treating fibromyalgia, a new rheumatologist asked me for an MRI of the sacroiliac joints and discovered, along with other tests, that I have spondyloarthritis.
It's desperate to be in pain, do multiple treatments and not get better. I questioned my sanity several times. Many people said that I have something psychological. The diagnosis came as an answer and a certain relief. But the road is difficult and painful.
I am having the same issue. Hot water bottle, yoga, adequate rest and medicine helps me a lot.
Going through same
Had this for two years, along with back pain I also deal with swollen painful tendons in feet and hands which was told is result of this disease
Cure Ankylosing Spondylitis by J King ebook on amazon. There are psychological reasons flaring the disease and there are solutions finally
Ohh piss off, psychological my arse@@ankylosingspondylitiskille4480
Thanks
Thank you
9:30 I laughed so hard at this X-RAY
xD
I was Dx with Psoriatic arthritis, Ankylosing Spondylitis, Bulging discs with core compression, degenerative discs w/facets in neck....but now a NEW Rhuemy says "I just think you have some osteoarthritis and sends me for feet xrays (cuz they hurt sooo bad), and the xrays dontnday too much at all but " Negative for bone growth, masses, etc but some changes,"
So Rhuemy says"I dont think u have anything but AGING OSTEO like I do and every body else" 😱😭😩💔 I'm feel like someone just threw me out in the dump truck! It's awful cuz I feel like 7yrs of medical MRI's, etc and now this guys wants to ignore all of that and say I'm just aging when i had this since i was 30 and now 46!!!
Get a second opinion, sounds like u got bad advice.
all the doctors who are miserable criminals who are interested in the huge salaries and paychecks and medicine you have and / or blame for agingat
I learned so much through this very detailed teaching. Thank you! I have complained about severe back and pelvic pain. What specialist should I be referred to?
Hope u went to a rheumatologist
Can ankylosis spondylitis one sided? One of my hips are stiff and I also have neck and back pain on that side
yes it can it can also flip from one side to the other also effect other joints apart from the si joints and spine I have had this condition for over 50 years
@@12presspart i think u have an experience
May you please guide which and what helped you the most ?
Yes. My left side is more effected than my left
Sometimes you feel pain on one side only, but MRI shows both are affected and visa versa
Same here. My left hip hurts when resting or sitting and my left side back gets stiff after resting. I wake up everyday in pain around 3-4 am. After I move around it loosens up. I plan on getting this checked out. Been going on 3 1/2 years. For the longest time I thought it was injury from running but I think if it were. It would’ve healed by now.
When he starts off right away with an untruth I have a hard time putting credence to the rest of his talk. At 0.50 he says "narcotics don't work", so obviously he has never been in a position to need them, but they help me get out of the bed in the morning.
I think he means narcotics do not change nor stop disease progression and damage . But yes they do help you get through you day . Damage will be done and it’s not reversible.
then why the hell do we still take them? to destroy our stomachs and intestines with them
I have a.s. narcotics never worked in my case. But sulfasalazine eased my gut back tendons and eye problems
I agree. Most people have no idea the kind of pain ASers endure. 😢
AS suffers definitively need ready access to opioids! 35 year sufferer here and YES they work.
I’m having inflammation in my middle back feels like it’s getting worst I done had a mri, X-ray and they say everything looks normal f my life
same
Do you ever feel like some doctors just don't take this seriously? Like they don't understand how this changes your life.
HLA-B 27 positive blood test is key.
Not all the time
@@Soneelicious True! I have been told by 2 doctors I have AS. I DO NOT HAVE B27.
No one in my family has had it either.
Not everyone is positive . Most yes but not all.
What if all blood tests were negative, with very obvious symptoms (and spondyloarthropathy on MRI?)
I have everything IBD uveitis psoriasis and back stiffness and pain plus positive HLA B27 and still waiting to see a rheumatologist and gastroenterologist it’s diabolical in uk
As a Seronegative Spodyloarthropathy patient what is the hazard in having a T-Score of 10 in the spinal column? Areas score a range from 5 to 7 and up to 9.5. I never received TNF treatment because of liver disease history.
I'm on adalimumab, coming up for one year now, Only symptoms I get is a headache and insomnia for 3 days after injection, But its given me the ability to get out of bed in around 30 to 45 minutes compared to 2 and a half hours prior, Took me 4 years to get diagnosed
@@Ay0ub24 I might have as, what makes it difficult to get out of bed for you?
@@andyl9900 Tbh it's the stiffness and pain. My back just doesn't move when I wake up, Once the pain meds kick in I do some slow stretches and get my back moving and once I do that then the rest of the day can be okay but I get good days and bad days
IM hla b27 negative with normal esr crp and x-rays but I have all the symptoms of AS ...I have pain and stiffness in lower back ,neck( can't move my in chin tuck pose without serious pain) ,shoulder,knee,ankles...I'm 20
And a hell lot of dipression...what should I do...
so have you diagnosed ?
How r u now
get an MRI
Hi Ujjwal same condition with me B27 negative normal ESR and CRP MRI shows one side bone marrow edema back, hips, feet pain still no diagnosed. But symptoms are same
@@jitenderpal2043 my dear I've gone through all that. I'm also negative. Stop eating processed foods, sugar in any forms, diary products, fried foods and outside foods, white rice, gluten and also stop non veg for 45 days, after that eat white meat. All this edema will go, I had it so severe I couldn't walk. My diet was a healing medicine to me. Have vegetables, probiotics. This is all due epigentic changes read the relation between gut and autoimmune diseases
Maybe the technicians reading the X-rays and MRI's need more training.
Radiologists read the X-rays, they're MDs. Radiology techs do the procedure.
@@madeleinegerlach4854 you are beautiful.
@@trigger3319simppppp
hit like if you too are here because you don't trust anymore your doctors
i feel myself the unluckiest man on this earth
Pussy doctors
Cure Ankylosing Spondylitis by J King ebook on amazon. There are psychological reasons flaring the disease
Rebecca Swanson Can we talk? I have had symptoms of AS and am HLA-B27 positive for just over 10 years but have not received a diagnosis. My functional medicine dr. has told me I need to change my diet (sometimes I do really well for a period of time and then I fall off the wagon and go back to bad eating habits). I would like to hear what you use and what really works for you. I really don’t want to use pharmaceuticals.
@@Libertygal74 i am really victimized by AS, ur advice can b really beneficial if u are improving from as please guide me as well ,
Every day i am taking Pain killers to perform my daily works , i am very choosy in my diet did not eat red meat , Some veg also but still waiting for the good days
@Rebecca SwansonThis pain is how I know God has always hated me. From the moment I was conceived.
They won't get me functionng to get shit done