I have lived with AS for over 40 yrs. Had a lot of pain but I'm still going...ATTITUDE really plays a big part of AS.and prayer.Liked this video..thank you.
Maggie Bennett Thank u mam.. am 20 yrs old... AS was diagnosed abt 1 yr ago... I'm having the symptoms such as uveitis.. back pain since 2 yrs.. I was always afraid that it may stop me from reaching my dream!!! Am a nursing student !!!
I appreciate you discussing this. Unfortunately it is typically not diagnosed until years and years of pain and going from doctor to doctor. Please note IMPORTANT that those who have Ankylosing Spondylitis will have it for years and years before seeing actual proof on an X-ray and even a MRI. It’s best to be treated at this time so to prevent your spine from forming bone growth. This is where the problem lies. Doctors don’t see any proof on the MRI and certainly not on an X-ray, therefore do not give the diagnosis of Ankylosing Spondylitis. But meanwhile your spine is stiff and in pain. If you don’t have proper treatments, you will get the degeneration and bone growth. It’s too late once you have the actual proof on the X-ray. Treat it so that you prevent getting the proof on the X-ray, that’s the whole point. Your primary care doctor will not run proper tests to determine this. In fact the tests they will run will say nothing is wrong with you. Don’t accept this answer. If you have constant back pain and morning stiffness in your spine for more than 10 minutes when you get up and it persists for more than 3 months, you very likely have Ankylosing Spondylitis. Educate yourself and then seek out a doctor with knowledge and experience in this disease. I recommend a rheumatologist. With knowledge of the disease and the name for what they have, they can then maybe find a doctor to treat them. For example a rheumatologist, functional, or homeopathic doctor. I personally suggest staying away from the orthopedic surgeons and neurosurgeons. Having surgery will not decrease your pain. Unfortunately though people with this condition are desperate to find something to lessen the pain and so when surgeons boast that it can decrease your pain, those who are suffering, are willing to gamble with having surgery. It just makes things worse. So thank you for explaining and showing this information and exposing the name of a quite common disease.
Doctors are clueless I kept away from them I went alternative way My advice is 1 Changed your lifestyle keeping the weight down is crucial 2 for pain take Turmeric powder every day put it in soups porridge casserole 3Get a Dreamland Heat pad 4 Go on to FEI FAH and get Electric Balm it is Excellent it will resolve pain immediately
I appreciate your comment. I am the person you discussed to a T! I have had it for about 15 years and was just diagnosed 4 months ago. Started in my 20’s and now I’m in my 40’s. I live everyday in constant pain. I have the stiffness in my whole body. This whole situation is so frustrating!
@@LG-gw6xw Thank you. It has been hell to say the least. I am noticing some improvement being on Remicade Infusion Therapy. Then they wonder why people turn to drugs or suicide. We need more docs like Dr. Mandel.
All doctors need to be on the lookout for this disease more . And earlier diagnosis would be so much better than finding out at 50 and going all these years being told it's in your head or looked at as if I'm talking crap about the amount of pain I'm in . More training for doctors please . It's not just a male disease . My mother has it , I have it , now my son's suffer with it and most likely my daughter and my grandchildren will have this disease to . Let's get it diagnosed early to stop damage .
Great information, I have all these symptoms, I have not been diagnosed, however I do have Scoliosis and arthritis in my back, Dr just prescribed meds for chronic back pain, I also have IBS, I will definitely be making anther Drs Appointment.
I have been through a lot and it's made me lose faith and trust in humanity. I really love your videos, you really seem to care. I've learned soooo much and you've also helped me not lose all hope. My future looks a little brighter thanks to you and your videos
My AS started in my neck. It's common in females hence why they are diagnosed later/less. They are looking in the lower back (and until recently wouldn't even do that if you were female - it was said to be a male only disease). My AS started showing up in my x-rays at 40. It really shows now that I'm almost 50. When I was diagnosed at 30, it wasn't even showing in an MRI but they found it in a bone scan.
Did it show up as arthritis in the neck first? Because my rheumatologist said I have a lot of arthritis in my neck. I am positive for the AS gene and psoriasis. My rheumatologist thinks it's osteoarthritis, not psoriatic arthritis or AS. She says that I can be positive for the gene, but not have it. My psoriasis is out of control and have been on otezla for 3 months and things are not getting better. I actually feel worse.
@@jacklynnburleigh1981 yes though I have had two rheumatologists that didn't really treat my neck as part of it and they wanted to focus on my Sacroiliitis. That was easier to manage than my neck issues. I wouldn't wish that pain on anyone. My rheumatologist retired so I had to go to a new one and redo the diagnostic process. When she sent me for my x-ray, I was shocked to see that she didn't request one for my neck. That's always been my worst area. Not much AS was found of course. I was later sent and they saw my neck had quite a bit affected by AS. I do not know why they immediately look at SI joints and the lower back. I guess it's more commonly found there but they need to look at the whole spine. Biologics can take a while to work. I have been on Taltz and Humira for about 5 months now and I feel the same as you. One of them are causing little bumps on my skin but they wanted me to continue to see if there's improvement. I may have had a little this month but the weather always affects it and it changed. I also have increased spinal pain with hormonal changes during my cycle. I would say as long as the treatment is the same, I wouldn't worry too much about it, but if it denies you certain medication that insurance won't cover due to diagnosis, then that would make a difference. I wish there wasn't such a shortage of rheumatologists. I waited over a year to get into my new one after mine retired. It would be nice to get a second opinion. Sadly when you see one in a practice, the rest won't see you if you don't like one so they don't steal patients when they cover for each other during vacations. Seems counter productive since it forces you to another practice. I'm starting to rant so I'll stop there. I hope you find relief soon!
@@smokeyangelav I had it 20 years ago, when there was an inflammatory process and blockage at the site of inflammation. Now the process has slowed down and I have less problems in the SI area....
I was dignosed with cervical spondylosis and bones spur. I dont know whether i got tmj from my neck problems. I was suffering from muscle spams, vertigo(imbalance)and sometimes light dizzy. Im so stressed because of the symptoms. Humans body was so special. Thanks doc for ur info.
You have the same symptoms that my daughter has.. she now is on a keto/mostly carnivore diet and she feels much better! She can now walk without pain at the grocery store 😊
I have bamboo spine in the middle of my back and bone spurs in my neck and lower back. Blood tests for AS and rheumatoid arthritis came back negative....what is causing this? I hurt in hands wrists and pelvis knees and ankles as well as my back and neck.
Thank you again for your information. Oh my goodness I had a hard night again, it's like I can literally feel my bones moving to shift, it's very painful, unnatural. Especially around my clavicle, neck and throat area. I can feel them shift, I know it sounds weird. I have the narrowing and spurs, and spondyolisis, titanium rods, screws and mesh in my lower back, but it's my neck, shoulders, head, chest really bad, arms, fingers, harnds, hips, hamstrings, feet. Yeah, this is one of a few things I'm trying to get a hold on. Thank you for your inspiration and information on the sugar! :-)
Thankyou! Seems I’ve been doing the right things, I have figured out myself. Also, I have found Curcumin, has helped me more than the anti inflammatory prescribed from the specialist. I keep exercised, do Crossfit, very very slow steps for ward with that,getting strong helps. As well, I do well when I remember to do yoga. If i don’t keep up with fitness, I get very stiff and sore. I didn’t know I has A.S, till after chemo treatment for breast cancer and I reacted badly with chemo, it enhanced inflammation I already had in my body, when I told my oncologist, he treated me like I was over reacting, because a person without A.S would not have had that bad pain reaction I did with chemo.So, maybe oncologists could be a bit more sympathetic to looking into why one would suffer so badly. Thanks for the educational video.
It bothers me that everyone talks about the sugar and "processed foods"... Why is it that such a small percent of the people that eat McDonalds and DingDongs have AS? Sure they are over weight and might have other issues, but so few are affected by this specifically. I can't believe diet has much to do at all with this. I guess I'd like to see proof, rather than promises. I eat mostly salads because my wife makes me, organic dairy and meats, and occasional pasta... Maybe McDonalds breakfast every couple months. To think that is whats causing such intense pain and for so many years, is sort of ridiculous. Also, that same intense pain doesn't exactly allow for "getting up and exercising". Everyone that doesn't have one of these conditions is always an expert. Always promises "just be more healthy" will somehow make it all better. Like we can just wish it away through hard work and determination. I can tell you after more than a decade of being misdiagnosed by people like this guy, that know everything and promise the world, NO amount of diet or hard work will ever stop these diseases. You can't just motivate away degenerative diseases. Its almost shameful that these people are more concerned about "thumbs up" and subscribing than producing anything helpful. Not trying to be jerk here, just saying think about it. Don't eat crap, don't smoke, don't drink too much, and keep your weight down. Sounds like 8th grade health class doesn't it? Not sure we need more guys in their bedrooms that must have their mugs in the frame the whole time... Count me as one of the thumbs down.
i agree most people eat the same foods yet only 1 in 200 gets A.S or related conditions in diet fads can make the condition worse vitamin d can increase well being in this illness but does not cure the condition also it can go into remmission at anytime I know ive had this condition for over 50 years this disease definately runs in familys brothers sisters even auntys and uncles and a genes are being researched also the condition has close connections with psyriasis SORRY ABOUT SPELLING crohns disease colitis and possibLY MS and RA new hope is found in bialogicals if they dont kill you first from massive infection and i agree most people who talk about diet fads never suffer from this or any related condition
Mike S, IKR.... I'm No Pollyanna and I don't see a positive damn thing about having ankylosing spondylitis! I have posted several times on A,S UA-cam comment sites so read no further if you have previously stumbled across my RANTS + bad attitude comments. I have suffered from ankylosing spondylitis for years but due to being a female that is HLA B27 negative, I was misdiagnosed many years with Dish disease. I did not receive an ankylosing spondylitis diagnosis until I was already severely handicapped . I was severely fused in some areas of the spine before I found a rheumatologist that treated me with tnf meds. I don't believe doctor approved diets and exercises will always help but probably won't hurt. Before my diagnosis, I was trying to exercise and lose weight .I continued to work trying to stop my loss of Mobility but I still became handicapped due to the Bone Spurs& Fusion, & spinal stenosis. The pain ,stiffness , the loss of range of motion was hell,. I just kept on getting sicker! A.S. effects some worse & faster than others. Diet & exercise aren't enough for some of us. GETTING treatment with tnf meds early on before bone spurring & spinal fusion begin might be the only help cuz the damage from bone spurring & fusion cannot be reversed. My son inherited my HLA B27 Negative ankylosing spondylitis but fortunately for him, my rheumatologist saw him & began early treatment with Enbrel. His stiffness and inflammation improved and he doesn't have significant bone spurring. He still has bad days. Even with good range of motion, he still has some soreness & IBS symptoms from the A.S. Good luck ,Mike. I'm hoping you find a treatment plan that works for you. I might be happier with a good attitude but I'll still be sick LOL...... A,S, has seriously kicked my ass. Learning to accept my situation has helped. I have learned ways to become more comfortable and medical equipment that helps with my adl's. My life as I knew it 20 years ago has completely disintegrated so I've made a lot of changes to accommodate my disease. I pretty much know what will work and what won't. Unfortunately for the chronically ill often their friends, family, and sometimes complete strangers will say stand up straighter and eat your veggies so you will get well. BTW, it's okay for you to tell those people to f*** off. 😄
I changed my diet cut out sugar, dairy, and wheat and it helped my general health and gut problems but did not do much for pain....I've been in agony for many years...it has destroyed my life...I just lay in bed 24-7. The pain is unbearable much of the time. Pain meds only work for about an hour or two every six hours.... but at least it's something.
Chloe Gilbert,. I read your comment last night so I left a message for you but it went under the main comment section. If you get time please read it , it's about a medical procedure that I had done for my A.S. pain. Hopefully you might find it helpful. I'm hoping you're having a better day today.
@@robinbradley2229 Thank you, Robin for responding. I am very sorry you have had to go through so much suffering. I too have a child...a daughter...who has symptoms of the disease....we are both HLAB27 positive...and her daughter, my grand daughter, has symptoms as well and she is only 12. She was is HLAB27 negative and was diagnosed with juvenile arthritis. I do not have fusing, only inflammation. I've had symptoms since I was in high school but it has only gotten severe in the last ten years. Chronic fatigue and GI problems too. I will definitely keep the ablation idea in mind ... sounds very interesting and I will definitely discuss it with a doctor. I am currently battling cancer ... medication for that is working so far... so once this is in total remission I will tackle my pain issues. It is all so overwhelming that I could just scream. I do take narcotics for pain but my doctor has a limit on how much he prescribes. It just isn't enough but to be honest....I would rather have my pain treated in another way because of the side effects like constipation and drowsiness. I am so happy you found pain relief with the ablation. God bless you and your son, I will keep you both in my prayers.
My life changed when I quit eating inflammatory foods and began exercising. It's hard at first, but absolutely essential. I'm 35 now and feel better than in my 20s. In my 20s I thought I was dying I hurt so bad and head severe gi issues with it. I was sure I had cancer and had every test done known to man. I was preparing for my death, I could barely do anything with my kids and of course they kept trying to diagnose me with depression anxiety etc, but my pain is what made me depressed. I was a very active athletic person throughout my teens and 20s.
Yep, the secret is to eliminate all starch food, sugar, red meat... I am 33, I get emense buttock pain while walking that i cant walk.. MRI shows inflammation of sacroiliitis bilateral. Ccp, hla b27, RA, esr all negative. Only ana was at 1.80, doc says mild arthritis, do u think I could have AS ???
@@Beamlight7 I'm not a doctor of course and this is just opinion, but I would avoid humira at all costs. That is the only medication that helps it aside form diet and exercise. If you have excess weight you'll want to lose it. High levels of stress flare it up too. Another serious thing is if you are active make sure you stretch good too. You have to be careful with excessive strenuous activity too. For example, I used to love weight training heavy. Cant do that at all. Also loved basketball too tough on my joints now. I do a lot of body weight exercises, lighter weights, and I run which seems to loosen the joints up.
@@jocelyne8ferraro hey don't excersice when the joints are inflamed. Avoid starch foods, processed, diary, red meats... have lots of vegetables and fruits... check on anti inflammatory foods on net. Also take in omega 3, calcium, Vitamin D3....
Thank you for this. I was diagnosed in 2004 through a blood test. I can't use oral anti inflammatories because I have reactions. I've been on 5-6 biologic drugs that started to work then would stop. I decided to do the elimination diet for anti inflammatory foods. I cut out gluten, dairy, eggs, and sugar. I'm in my 4th month now and I have less pain, more energy, and sleep better. I'm still eliminating foods that bother me. I'm feeling so much better. My body isn't swollen either. Mine is hereditary. Ou of 5 kids, I got it from my dad's mother. Diet plays a big part!!! Can't emphasis this enough.
I have cervical and lumbar spondylosis. DJD of neck and lower lumbar region. I also have ankylosing Spondylitis. I have hip pain, neck pain, lumbar pain, chest pain, overall joint pain. My left knee needs replaced. I have autoimmune disease, Severe Allergies (Chronic Rhinitis), psoriatic Arthritis, Inflamitory Bowel Syndrome with diarrhea, headaches, numbness and tingling in hands/Neck/fingers/arms. I have sleep apnea, hypothyroidism, chronic bronchitis & Pneumonia, Vitamin D Deficiency, Major Depressive Disorder, Anxiety, and Chronic fatigue. I also have Otosclerosis and nerve damage to my ears. I have had surgery in both ears. I have had 3 knee surgeries. Right inguinal hernia surgery. I receive allergy shots weekly. I take Zoloft, Klonopin, Gabatril, Sulfasalazine, Allergy pill, 81 mg aspirin, 1500mg Omega 3 fish oil, 3000 mg Vitamin D, multivitamin, 1500mg Coconut oil, extra Vitamin C 1500mg daily, Vitamin B Complex 50mg 4 times per day, 1050mg Turmeric(Curcumin) with black pepper extract, Boswellia 450mg, CoQ 10 100mg daily, I don't drink soda pop, smoke or drink alcohol. I attend talk Thearpy every 3 weeks. I just HURT all over and I am exhausted all the time. I lift weights 4 nights per week, walk my dog 3 miles every day, I do extra cardio on my treadmill 2 or 3 times a week. I train in Tai Chi and Tae Kwon Do.
Hi doctor I am from India, have 28 year old Doctor please tell the naturel medicine for spinelcord disc inflamation, nerves pain problem and aslo for join inflamation problem
@@SriNandiDevar avoid inflammatory foods, you will get the list on Google... also dont turn twist harshly, and carry heavy objects. Take calcium, vitamin D3 , omega 3, B12 and magnesium ....
Which surgery laminectomy or ACDF would be better for Cervical spondylosis which has resulted in multiple vertebral subluxations in the C7-T4 areas, as well as compression of the spinal cord?
Hello Dr Mandell I am a teenager and have rounded shoulders, very bad neck pain, and my shoulders feel very loose. I have seen doctors and sent to physical therapy but it did not help due to my shoulder pain. My neck has become the problem and I have tried to fix my posture but it seems to become more painful. What do you suggest? as I am in very bad pain and wish that doctors could think like you please anything helps thanks!
watch at his other videos, he has done some on how to correct a bad posture, you will find a solution by doing a daily routine to put back your posture in a right way :) as he say do small step every day cause your muscle need to learn new position , and it will work ! I wsih you the good succes you deserve in your life :D
Am 7 yrs with As.. now on tnf inhibitor...tried dmards sulphasalazine.....Now liver function test abnormal.... Severe uveitis...ibs... ecg varaiantion......Dont knw next wt to doo...... Feeling depressed not spending time with my kids always in hospital & follow up.....
I had undiagnosed AS for 40+ yrs; mother had it, sister had it. I diagnosed myself w/leaky gut syndrome. Went to church one night & guest speaker said “God wants to heal spines tonite”,stood up, 9 yrs ago & no pain since. Too bad people don’t realize that Jesus still heals.
I apparently have this going on but my posture is fine. I'm always conscious of my posture, but i'm experiencing so much pain and weakness and muscles loss. something has triggered a sudden onset of symptoms from joint to muscle and nerve pain throughout my entire body. it seems like my body is suddenly shutting down and i'm getting smaller and weaker every month. in just 6-7 months i'm down 30lbs of muscle and barely able to function. going from active and fit to having trouble lifting a glass of water. this is crazy and scary how sudden and fast this is moving and affecting me. it's messing with my digestive issues and i'm not absorbing nutrients and exercise seems to make me worse flaring up my muscles and joints!
@Tina Carmony Yeah I started that since early 2021 4-5 months after everything started. did a few 3 day fasts and then for months did OMAD. didn't seem to help much. doing traction on my neck seemed to help the most. something's causing pressure in my neck and cervical discs and messing with my nerve function which has messed with EVERYTHING in my body especially digestion. which i think led to leaky gut issues. I may have had it for years but very mildly and I just aggravated it and it set off all this craziness
Have AS for 30 years now. Everything the DR. says is correct. I would add I realize it's about all natural but you do need medication at times to help get through NSAID like Naproxen is good, CBD cream rub and/or CBD oil
Don't be thinking if you have the HLA-B27 test and come back negative that you can't have AS. Im negative for the gene but have a fused pelvis and lower spine from veing ignored. Only AS can do this yet they'd tell you because I don't have the gene that I dont have AS. I had AS from puberty as I had psoriasis but was diagnosed until I was 41 and now i crippled by it
What a great educational video, thank you doctor Mandell. (If you could ask me before I was born would I like to be born I think I would opt out, if I knew what I was gonna have during my life.)
I lived with A.S for. 20 years. Had the onset. 5 years. Before. Docs. Did. Not know much about it im in my 50s i had 3 hip surgeries my bones. Are deteriorating. Neck is fused. Had heart issues. I even had a doc tell me. I wouldnt make my 65th bd. Took meds. They pulled them after 15 left to do it cold turkey no told i would loose. My ssdi. Fhis is what our gov does
Thank you for sharing! But question 🙋🏼 if I was carrying a lot lately and I had no clue I had it till my back cracked and I was left without breathing and the Dr after X-ray told me I have 2 vertebrae cracked 😢… what is the time I need to rest for working again and obviously I will not be able to perform heavy lifting again? Thank you
What are the measures to take care for A.s. at home I am suffering from A.s from 10 years. My posture had been changed I do exercise everyday, is it enough for A.s What precautions to be take for my children Against A.s any medicines are there for A.s
I had Ankyloosing Spondylitis I play tennis 3 times a week after loosing 5.5 stone in 2019 I changed my lifestyle I taking Turmeric Ginger cinnamon Flex pumpkin Chio seeds pine and wall nuts Honey in my porridge every day I put turmeric Ginger Cinnamon other herbs in my casseroled and soups with Kale Spinach Broccoli Asparagus cabbage etc I walk every day After 35 years my inflammatory is gone no pain what's so ever I never did take Inflammatory capsules I bought a Dream land Heat pad it's excellent and on a company called FEI FAH YOU CAN GET ELECTRIC Balm it's excellent Now all I do for Ankyloosing Spondylitis is do my Ankyloosing Spondylitis Exercises for it but theirs no pain what's so ever All down to changing my lifestyle Sugars are a no no I never took junk food I never had a sweet tooth Another bit of advice Don't take soft drinks or sauces full of Sugar Nobody needs to take on sugar as theirs enough in the chemicals of CV the food anyway like salt
Hey doc. I was recently diagnosed with Ankylosing Spondylitis. My lower and upper back interior spinal ligaments have begun to calcify and fuse together unfortunately. I was watching your other video on how to reduce calcification. Would taking Chanca Piedra help me out along with Apple Cider Vinegar for my condition? Thanks.
I wish the doctor had somebody to answer his questions I love when they actually respond to people's questions because it's usually a question I have LOL.... I'm very curious of this as well
I'm 71, and was diagnosed by my orthopedist with ankylosing spondylitis a month ago after several weeks of persistent, severe back and hip pain. I'm very active, play golf nearly every day (3 handicap), and until recently, have had only short, sporadic periods of pain lasting less than two weeks. I'm now told my neck and lower back are essentially fused now, he said, and the only course forward is seeing a rheumatologist. Online research has proven helpful, but I still have a ton of questions. For example, can AS impact your heart? I've read it can cause arterial blocks. At 67, I had a widow maker heart attack, with a completely blocked and calcified LAD. Yet, my cholesterol has never been above 140, and my family has no history of heart disease. I've also had severe pain and extensive swelling for a period of several weeks in each knee, yet MRI's showed a generally healthy joint. Thanks to anyone who has suggestions, and thanks to Dr. Mandell for his very clear description of the disease.
Hey Doc, thanks for these videos! I have question for you if you dont mind, please. My back from top to bottom is a horror show, simply put. For the past 12 years ive been on a steady diet of the maximum ammount of opioids that NY STATE WORKERS COMP. will allow, which provides only the minimum relief. Since my daily dose of three pills a day is woefully inadequate, i find candy helps stave off dope sickness to s certain degree, but of course it adds weight and fuels inflamation as you say here! Can you think of something natural to help relieve the dope sick feelings i deal with multiple times everyday that wont add weight or inflammation? I dont care if it tastes like crap if it works. Just it cant be a mushroom because I'm very allergic to mushrooms, and aloe products. Thanks for your attention and also for all these great videos! May God always bless you!
This may be a silly question but can you have both? I have DDD, bone spurs, straightening of the cervical lordosis, chronic back pain, chronic pelvic pain, and have been searching for years to figure out why I walked in a forward leaning position that required me to use a walker for posture and balance to now not being able to walk due to loss of balance, falling, and extreme radiating pain. I now have to use a wheelchair. I suspect I may have ankylosing spondylitis since I have many of the symptoms including sensitivity to light, hip pain, back pain, hunched back, degenerative spine, and pain that has not been treatable. What do you suggest as far as these symptoms? Could I likely have AS?
Hey the secret is to eliminate all starch food, sugar, red meat, processed foods... I am 33, I recently started getting emense buttock pain while walking that i cant walk.. MRI shows inflammation of sacroiliitis bilateral. Ccp, hla b27, RA, esr all negative. Only ana was at 1.80, doc says mild arthritis.... Yes I used to have lots of sweets, and processed foods
@Beamlight7 I agree, except for the red meat, I went on a carnivore diet eating lots of red meat and my inflammation came way down, hence, pain is way down too..
Yes, I have bone spurs, in my neck, and spine, also AS in my lower back. But my blood test shows no HB signs. I'm a female, at the time of diagnosis, I was about 54yrs old. I'm now 60 and on a carnivore diet, feeling better than I did at age 40...
I have AS and I have the Gene and started have arm numbness and next think I woke up in horrible neck pain. Stood up and my hands didn’t work and tried to turn to get back to bed and wasn’t able to . Fell over and got a c6c7 spinal cord injury and now I’m quadriplegic 😢. Since I couldn’t feel before a fell I, I knew it wasn’t from the fall but I feel my AS had to do with it because the hospital couldn’t explain why it happened.. it’s been 10 months
Most of this is being caused by Glyphosate. There’s a vid on YT by someone who cured his AS by not eating GMOs or grains. Soy also may contain Glyphosate. This can also be caused by ext1 gene defects - which cause TNF and Herapin Sulfate deficiency - which triggers Bone Remodeling Disease.
I have years of chronic back pain, and not just my back because of the nerve pain, it goes throughout my body. Five operations and they can’t do anything. I don’t know if I have this or not because no one knows what’s going on. I tried to understand all this but I’m afraid you lost me several times
I appreciate the video, but am still a little unclear. If I'm reading this website (spondylitis.org/about-spondylitis/types-of-spondylitis/ankylosing-spondylitis/), then ankylosing spondilitis is a specific type ( a subset) of spondylosis. It's possible I'm misreading the information from that website, however....My inference from your video is that the two conditions are separate diseases. Again, I'm grateful for your time.
Gosh, so much info, I’ve been confused as to what I have. Have had scoliosis for years, but , also have 2 fused discs, Spurs, bulging discs, and after mri , told I have a incompletely formed disc, not sure what that is , other than arthritis everywhere. 30 Years ago told I didn’t have rheumatoid arthritis, but my joint pain is getting worse. Had one hip replaced and one knee replaced, waiting for the others to be done, should I get better tests to see what I have got. I take anti inflammatory meds and Panadol , that’s it. But suffer and won’t give in ! Thanks for great video, made me think, I’m not alone! I live in Perth Australia.
I have ankylosing spondylitis and spondyllis and my right arm is already paralyzed, and furthermore am getting obese because I don’t know how to exercise without pain
Compare to other Teachers, this is nearer the bottom of the list. Check out Dr. Najeed and Dr. Campbell, both of them I think are on the TOP. Good Teachers tell very easy and interesting stories. They just make seemingly complicated material like so easy. Be not discouraged. Good attempt. Try again.
Thanks doctor Mendel I have this I was hit by a car 5th sacrum fractured no plastering possible on the pony tale coccyx and the pain goes something like between hip 5th sacrum lower back lulbemzr only in the right is my pain now I have pain on my right upper thumb area iam 55 are we talking about arthritis how do I regenerate my bones joints my sciolosic is mild yet mixed with extra weight iam on keto diet and I stretched exercice low impact i have made a lower back butt support for best support I am in pain since 30 years but if I use my technic roll a big tower and place it under your glutd buttd underneath the pelvic it might help to relieve the pain also sleep on the other side of your pain adding volume pillow between your upper legs 🙏💋🌹😍
I can hardly get up out of bed in the mornings but after I manage to stand and take a couple of steps it gets better and continues to get better all morning then I drink a 10 calorie energy drink and run like a new Honda engine for the remainder of the day!
I have been receiving infusion treatments called Symphony Aria for quite a while now but when the covid epidemic happened I quite getting the infusions for some months. When I started up again it seemed like it wasn't working as before. Are there any new treatments coming on the seen that will be better or any new breakthroughs coming this year?
Thank you so much for this. Not related to spine but are you able to find anything on helping with Dercums disease symptoms? Its a rare disease and nobody seems to know anything. For me its not the painful lumps but the extreme tiredness and fatigue, stiffness after resting, gastric issues, hot flushes, joint aches... that I dont know what to do about. I wish I could stop the lumps coming, getting more and more but this tiredness is just awful...
My chiropractor said I have a disc that is twisted slightly to the left in my neck. I thick it's bone C3. I sometimes get pain, especially if I turn my head to the left for an extended period of time. I also feel a little numbness in my right hand and face periodically, and some hearing issues in my right ear. The other bone issue is a recurring subluxation in my spine at or near the top rib. I have been doing the spine and neck exercises you prescribe, and they've been helping me a lot, also to correct pelvic tilt. I'm wearing better shoes now too, and it's alleviating the foot pronation. What can I do about my twisted bone in my neck? It seems to be stuck that way. Can this cause bigger problems down the road? My chiropractor didn't know what to say. Any tips or advice you can offer are greatly appreciated.
Can't give him a like because of the lack of compassion or seriousness towards the most unfortunate of us. HAve searched help 37 years, got diagnosis only after 24 years, along with Aspergers, which may be a reason why nobody helped me. PSychic problems often give worse treatment or even like in me, neglect. As insult to injury, I got sleepless by neighbour's barking dogs for 12 years, which was the final breakdown after abuse trauma in psychiatry earlier, that turned my Bekhterew's aggressive, degenerative, and I got eating addiction from stress, as well a s allergy, fear of doctórs , lost hair, etc. Fighting for personal assistence, still waiting for success, and having to get back my home that they took, as well as regaining my savings, small sick pension and rights, reputation etc. They have mad my tragedy into hell, and I have been burnt out for 20 years, worsened to stage 3. i have lost motivation and courage to go on excercising, never getting support, therapy, stress relief. No energy or nutrition balance either, like he says but worse. Have been freezing fr 20 years too, while skin often feels hot as a stove: I am losing warmth and can't produce it well. HAve to dress warmly always. Am so afraid, although praying and working at my thought-feelings.This video made me doubt that I can be helped or even live much longer, if all the horrible prejudiced, false assumptions-mal"treatment" is not turning. I have lost so much time going for the wrong things/people and having to fight for my rights to help and writing, waiting, recovering from abuse from many, many people/institutions/authorities.I don't get how they can torture an innocent handicapped who has done more than all to help herself, help others and get help to get well or better functioning. I'd be happy and grateful for good support , friendship, healing comrades. I want to heal or stop the progress.
What can I do? 2 different doctors said 2 different things. 1 said I don't know if U have AS. Another Rheumatologist said I do have AS. I do have Si joint erosion. I am well over 65 now, so could the erosion B degenerative or AS?? I am dealing with maybe needing left hip surgery due to almost having bone on bone, but have heard if U do have AS having a hip replacement will cause the AS to attack the implant as an invader. So what can I do??? I fear having hip surgery since I am not sure I don't have AS. But it looks like I will b needing a hip surgery if I can't get the p[ain to go away by losing weight & eating like a carnivore. Any suggestions or ideas??
Samantha Hicks it’s probably anti TNF like Cimzia that’s what I take it stops the pain and stiffness I couldn’t put my shoes on to go to work it was that painful
I have Degenerative Disc Disease or also called DDD and I had Lumbar Fusion surgery to help with my back pain it did help a little but I will always have pain and in future I would have to have another Lumbar Fusion. What's the difference???
AS is a chronic autoimmune disease that results in fusion of the spine. Eventually the fusion will involve the whole spine, from the neck to the tail bone, stooped forward , making it impossible to even look a person in the eyes. It also fuses the joints between the ribs and the sternum with makes the rib cage rigid so that the lungs can not move properly making it hard to breathe. All of this is caused by inflammation, meaning severe pain throughout the body. AS also affect other organs and joints in the body. Often the heart and lungs are affected. Your fusion was made to make your life better. That's the difference
Are there any actual scientific studies showing that sugars have an impact on the disease? I know I've never seen one. Yeah, it's a good idea not to eat like an idiot but cutting out refined sugars isn't going to impact a genetic problem.
Noooo obviously but it’s going to help with inflammation symptoms as studies have shown time and time again that refined carbs and sugars can increase or make inflammation worse
Dr Please Upload A Separate Video On Ankylosing Spondylitis Please Because I Have It It's Unbearable Dr Please Do Something My Life is Spoil I Commit Suiside Because of Ankylosing Spondylitis
I have known to have b,27 and pain in butt for 45 years. Did it all, medicine scans 38 surgery, 5 car wreaks. You said Truth no one helps, move you to another doctor. Whatever. Doctors have put cement, cages,fushions ect for 32 years when I was hurting and they found out I have a b27 Gene. Now at 58 what do I do. I still don't sit long, just try not to break something. Blessings thank you for caring.
@@jennydavidson7670 your absolutely right . the secret is to eliminate all starch food, sugar, red meat, processed foods... I am 33, I recently started getting emense buttock pain while walking that i cant walk.. MRI shows inflammation of sacroiliitis bilateral. Ccp, hla b27, RA, esr all negative. Only ana was at 1.80, doc says mild arthritis, do u think I could have AS ??? Yes I used to have lots of sweets, and processed foods
You can not cure AS. AS is a chronic disease. You need to exercise and take care of yourself but you also need to see a rheumatologist and have a medical treatment. The treatment won't cure it but it might slow it down. I'm sorry, I wish there was an easy way to get rid of it.
I have lived with AS for over 40 yrs. Had a lot of pain but I'm still going...ATTITUDE really plays a big part of AS.and prayer.Liked this video..thank you.
Yes you are correct . Positive attitude does make lot of difference. Am suffering from AS. Pls tell my a anti inflammatory diet
40yrs? What did you do to manage this kind of disease?
Fuck prayer...
Maggie Bennett Thank u mam.. am 20 yrs old... AS was diagnosed abt 1 yr ago... I'm having the symptoms such as uveitis.. back pain since 2 yrs.. I was always afraid that it may stop me from reaching my dream!!! Am a nursing student !!!
Go for DMARD MEDICINE it will help u a lot.. check from internet.. consultant doctor
We need a detailed video about treatment for anklosing spondilitis plz
Need to see a Rheumatologist
I appreciate you discussing this. Unfortunately it is typically not diagnosed until years and years of pain and going from doctor to doctor. Please note IMPORTANT that those who have Ankylosing Spondylitis will have it for years and years before seeing actual proof on an X-ray and even a MRI. It’s best to be treated at this time so to prevent your spine from forming bone growth. This is where the problem lies. Doctors don’t see any proof on the MRI and certainly not on an X-ray, therefore do not give the diagnosis of Ankylosing Spondylitis. But meanwhile your spine is stiff and in pain. If you don’t have proper treatments, you will get the degeneration and bone growth. It’s too late once you have the actual proof on the X-ray. Treat it so that you prevent getting the proof on the X-ray, that’s the whole point. Your primary care doctor will not run proper tests to determine this. In fact the tests they will run will say nothing is wrong with you. Don’t accept this answer. If you have constant back pain and morning stiffness in your spine for more than 10 minutes when you get up and it persists for more than 3 months, you very likely have Ankylosing Spondylitis. Educate yourself and then seek out a doctor with knowledge and experience in this disease. I recommend a rheumatologist. With knowledge of the disease and the name for what they have, they can then maybe find a doctor to treat them. For example a rheumatologist, functional, or homeopathic doctor. I personally suggest staying away from the orthopedic surgeons and neurosurgeons. Having surgery will not decrease your pain. Unfortunately though people with this condition are desperate to find something to lessen the pain and so when surgeons boast that it can decrease your pain, those who are suffering, are willing to gamble with having surgery. It just makes things worse. So thank you for explaining and showing this information and exposing the name of a quite common disease.
Doctors are clueless I kept away from them I went alternative way
My advice is
1 Changed your lifestyle keeping the weight down is crucial
2 for pain take Turmeric powder every day put it in soups porridge casserole
3Get a Dreamland Heat pad
4 Go on to FEI FAH and get Electric Balm it is Excellent it will resolve pain immediately
Yes alternative is the way to go in my opinion. I also suggest dietary changes such as quitting sugar and gluten. Can make such a difference.
I appreciate your comment. I am the person you discussed to a T! I have had it for about 15 years and was just diagnosed 4 months ago. Started in my 20’s and now I’m in my 40’s. I live everyday in constant pain. I have the stiffness in my whole body. This whole situation is so frustrating!
@@ItsJustMe-nq1dg Dang, I’m sorry. 15 years...that’s just awful.
@@LG-gw6xw Thank you. It has been hell to say the least. I am noticing some improvement being on Remicade Infusion Therapy. Then they wonder why people turn to drugs or suicide. We need more docs like Dr. Mandel.
All doctors need to be on the lookout for this disease more . And earlier diagnosis would be so much better than finding out at 50 and going all these years being told it's in your head or looked at as if I'm talking crap about the amount of pain I'm in .
More training for doctors please . It's not just a male disease . My mother has it , I have it , now my son's suffer with it and most likely my daughter and my grandchildren will have this disease to .
Let's get it diagnosed early to stop damage .
i have had AS from 1990 and the VA just Diagnosed it.
Thank you So Much Doctor! The answers I’ve been looking for. This explains so much.
Great information, I have all these symptoms, I have not been diagnosed, however I do have Scoliosis and arthritis in my back, Dr just prescribed meds for chronic back pain, I also have IBS, I will definitely be making anther Drs Appointment.
I have been through a lot and it's made me lose faith and trust in humanity. I really love your videos, you really seem to care. I've learned soooo much and you've also helped me not lose all hope. My future looks a little brighter thanks to you and your videos
Very clear and concise explanation❤
Thank you doktor my diagnosis degenerated spondylotic chronic pain back
You are an Amazing God send. Thank you for sharing your knowledge. This will help me on my test. Thanks again:)
My AS started in my neck. It's common in females hence why they are diagnosed later/less. They are looking in the lower back (and until recently wouldn't even do that if you were female - it was said to be a male only disease). My AS started showing up in my x-rays at 40. It really shows now that I'm almost 50. When I was diagnosed at 30, it wasn't even showing in an MRI but they found it in a bone scan.
Did it show up as arthritis in the neck first? Because my rheumatologist said I have a lot of arthritis in my neck. I am positive for the AS gene and psoriasis. My rheumatologist thinks it's osteoarthritis, not psoriatic arthritis or AS. She says that I can be positive for the gene, but not have it. My psoriasis is out of control and have been on otezla for 3 months and things are not getting better. I actually feel worse.
@@jacklynnburleigh1981 yes though I have had two rheumatologists that didn't really treat my neck as part of it and they wanted to focus on my Sacroiliitis. That was easier to manage than my neck issues. I wouldn't wish that pain on anyone. My rheumatologist retired so I had to go to a new one and redo the diagnostic process. When she sent me for my x-ray, I was shocked to see that she didn't request one for my neck. That's always been my worst area. Not much AS was found of course. I was later sent and they saw my neck had quite a bit affected by AS. I do not know why they immediately look at SI joints and the lower back. I guess it's more commonly found there but they need to look at the whole spine. Biologics can take a while to work. I have been on Taltz and Humira for about 5 months now and I feel the same as you. One of them are causing little bumps on my skin but they wanted me to continue to see if there's improvement. I may have had a little this month but the weather always affects it and it changed. I also have increased spinal pain with hormonal changes during my cycle. I would say as long as the treatment is the same, I wouldn't worry too much about it, but if it denies you certain medication that insurance won't cover due to diagnosis, then that would make a difference. I wish there wasn't such a shortage of rheumatologists. I waited over a year to get into my new one after mine retired. It would be nice to get a second opinion. Sadly when you see one in a practice, the rest won't see you if you don't like one so they don't steal patients when they cover for each other during vacations. Seems counter productive since it forces you to another practice. I'm starting to rant so I'll stop there. I hope you find relief soon!
@@smokeyangelav
The inflammatory process is stopped by 'Reiki', and the pain by CBD....at least in my case, already 38 years under diagnosis.
@@malimate2660 do you have it in your neck?
@@smokeyangelav
I had it 20 years ago, when there was an inflammatory process and blockage at the site of inflammation. Now the process has slowed down and I have less problems in the SI area....
I think I have Ankylosing spondylitis...😞 Thanks for this video. Very informative
I was dignosed with cervical spondylosis and bones spur. I dont know whether i got tmj from my neck problems. I was suffering from muscle spams, vertigo(imbalance)and sometimes light dizzy. Im so stressed because of the symptoms. Humans body was so special. Thanks doc for ur info.
janet law be strong
Hi Janet A lot of your symptoms sound kind of similar to mine. If you like you can text me to discuss these 480-238-1259
You have the same symptoms that my daughter has.. she now is on a keto/mostly carnivore diet and she feels much better! She can now walk without pain at the grocery store 😊
I have bamboo spine in the middle of my back and bone spurs in my neck and lower back. Blood tests for AS and rheumatoid arthritis came back negative....what is causing this? I hurt in hands wrists and pelvis knees and ankles as well as my back and neck.
Please make a stretching exercises video for Ankylosing spondylosis patients.Regards
Thank you again for your information. Oh my goodness I had a hard night again, it's like I can literally feel my bones moving to shift, it's very painful, unnatural. Especially around my clavicle, neck and throat area. I can feel them shift, I know it sounds weird. I have the narrowing and spurs, and spondyolisis, titanium rods, screws and mesh in my lower back, but it's my neck, shoulders, head, chest really bad, arms, fingers, harnds, hips, hamstrings, feet. Yeah, this is one of a few things I'm trying to get a hold on. Thank you for your inspiration and information on the sugar! :-)
Yaz Popular ....I was reading about Boron and bones. An interesting read. ?
Yaz Popular how many buldging disk do u have I have two and it's painful 😖
Thanks a lot Dr. Long live
Thankyou! Seems I’ve been doing the right things, I have figured out myself. Also, I have found Curcumin, has helped me more than the anti inflammatory prescribed from the specialist. I keep exercised, do Crossfit, very very slow steps for ward with that,getting strong helps. As well, I do well when I remember to do yoga. If i don’t keep up with fitness, I get very stiff and sore. I didn’t know I has A.S, till after chemo treatment for breast cancer and I reacted badly with chemo, it enhanced inflammation I already had in my body, when I told my oncologist, he treated me like I was over reacting, because a person without A.S would not have had that bad pain reaction I did with chemo.So, maybe oncologists could be a bit more sympathetic to looking into why one would suffer so badly. Thanks for the educational video.
It bothers me that everyone talks about the sugar and "processed foods"... Why is it that such a small percent of the people that eat McDonalds and DingDongs have AS? Sure they are over weight and might have other issues, but so few are affected by this specifically. I can't believe diet has much to do at all with this. I guess I'd like to see proof, rather than promises. I eat mostly salads because my wife makes me, organic dairy and meats, and occasional pasta... Maybe McDonalds breakfast every couple months. To think that is whats causing such intense pain and for so many years, is sort of ridiculous. Also, that same intense pain doesn't exactly allow for "getting up and exercising". Everyone that doesn't have one of these conditions is always an expert. Always promises "just be more healthy" will somehow make it all better. Like we can just wish it away through hard work and determination. I can tell you after more than a decade of being misdiagnosed by people like this guy, that know everything and promise the world, NO amount of diet or hard work will ever stop these diseases. You can't just motivate away degenerative diseases. Its almost shameful that these people are more concerned about "thumbs up" and subscribing than producing anything helpful. Not trying to be jerk here, just saying think about it. Don't eat crap, don't smoke, don't drink too much, and keep your weight down. Sounds like 8th grade health class doesn't it? Not sure we need more guys in their bedrooms that must have their mugs in the frame the whole time... Count me as one of the thumbs down.
i agree most people eat the same foods yet only 1 in 200 gets A.S or related conditions in diet fads can make the condition worse vitamin d can increase well being in this illness but does not cure the condition also it can go into remmission at anytime I know ive had this condition for over 50 years this disease definately runs in familys brothers sisters even auntys and uncles and a genes are being researched also the condition has close connections with psyriasis SORRY ABOUT SPELLING crohns disease colitis and possibLY MS and RA new hope is found in bialogicals if they dont kill you first from massive infection and i agree most people who talk about diet fads never suffer from this or any related condition
Mike S, IKR.... I'm No Pollyanna and I don't see a positive damn thing about having ankylosing spondylitis! I have posted several times on A,S UA-cam comment sites so read no further if you have previously stumbled across my RANTS + bad attitude comments.
I have suffered from ankylosing spondylitis for years but due to being a female that is HLA B27 negative, I was misdiagnosed many years with Dish disease. I did not receive an ankylosing spondylitis diagnosis until I was already severely handicapped . I was severely fused in some areas of the spine before I found a rheumatologist that treated me with tnf meds. I don't believe doctor approved diets and exercises will always help but probably won't hurt. Before my diagnosis, I was trying to exercise and lose weight .I continued to work trying to stop my loss of Mobility but I still became handicapped due to the Bone Spurs& Fusion, & spinal stenosis. The pain ,stiffness , the loss of range of motion was hell,. I just kept on getting sicker! A.S. effects some worse & faster than others. Diet & exercise aren't enough for some of us. GETTING treatment with tnf meds early on before bone spurring & spinal fusion begin might be the only help cuz the damage from bone spurring & fusion cannot be reversed. My son inherited my HLA B27 Negative ankylosing spondylitis but fortunately for him, my rheumatologist saw him & began early treatment with Enbrel. His stiffness and inflammation improved and he doesn't have significant bone spurring. He still has bad days. Even with good range of motion, he still has some soreness & IBS symptoms from the A.S.
Good luck ,Mike. I'm hoping you find a treatment plan that works for you. I might be happier with a good attitude but I'll still be sick LOL...... A,S, has seriously kicked my ass. Learning to accept my situation has helped. I have learned ways to become more comfortable and medical equipment that helps with my adl's. My life as I knew it 20 years ago has completely disintegrated so I've made a lot of changes to accommodate my disease. I pretty much know what will work and what won't. Unfortunately for the chronically ill often their friends, family, and sometimes complete strangers will say stand up straighter and eat your veggies so you will get well. BTW, it's okay for you to tell those people to f*** off. 😄
I changed my diet cut out sugar, dairy, and wheat and it helped my general health and gut problems but did not do much for pain....I've been in agony for many years...it has destroyed my life...I just lay in bed 24-7.
The pain is unbearable much of the time. Pain meds only work for about an hour or two every six hours....
but at least it's something.
Chloe Gilbert,. I read your comment last night so I left a message for you but it went under the main comment section. If you get time please read it , it's about a medical procedure that I had done for my A.S. pain. Hopefully you might find it helpful. I'm hoping you're having a better day today.
@@robinbradley2229 Thank you, Robin for responding. I am very sorry you have had to go through so
much suffering. I too have a child...a daughter...who has symptoms of the disease....we are both
HLAB27 positive...and her daughter, my grand daughter, has symptoms as well and she is only 12.
She was is HLAB27 negative and was diagnosed with juvenile arthritis.
I do not have fusing, only inflammation. I've had symptoms since I was in
high school but it has only gotten severe in the last ten years. Chronic fatigue and GI problems too.
I will definitely keep the ablation idea in mind ... sounds very interesting and I will definitely discuss it with a doctor.
I am currently battling cancer ... medication for that is working so far... so once this is in total
remission I will tackle my pain issues. It is all so overwhelming that I could just scream.
I do take narcotics for pain but my doctor has a limit on how much he prescribes. It just isn't enough but to be honest....I would rather have my pain treated in another way because of the side effects like constipation and drowsiness.
I am so happy you found pain relief with the ablation. God bless you and your son, I will keep you both in my prayers.
My life changed when I quit eating inflammatory foods and began exercising. It's hard at first, but absolutely essential. I'm 35 now and feel better than in my 20s. In my 20s I thought I was dying I hurt so bad and head severe gi issues with it. I was sure I had cancer and had every test done known to man. I was preparing for my death, I could barely do anything with my kids and of course they kept trying to diagnose me with depression anxiety etc, but my pain is what made me depressed. I was a very active athletic person throughout my teens and 20s.
Yep, the secret is to eliminate all starch food, sugar, red meat... I am 33, I get emense buttock pain while walking that i cant walk.. MRI shows inflammation of sacroiliitis bilateral. Ccp, hla b27, RA, esr all negative. Only ana was at 1.80, doc says mild arthritis, do u think I could have AS ???
@@Beamlight7 I'm not a doctor of course and this is just opinion, but I would avoid humira at all costs. That is the only medication that helps it aside form diet and exercise. If you have excess weight you'll want to lose it. High levels of stress flare it up too. Another serious thing is if you are active make sure you stretch good too. You have to be careful with excessive strenuous activity too. For example, I used to love weight training heavy. Cant do that at all. Also loved basketball too tough on my joints now. I do a lot of body weight exercises, lighter weights, and I run which seems to loosen the joints up.
@@jms4406 nah, I'm 5"3 and jus weight 62. I do excersice, jus do lots of cooking turning twisting kitchen .... thanks for the advise .... 😊
Please can you tell me what should I avoid and how can you exercise with the pain? I can’t even stay on my feet
@@jocelyne8ferraro hey don't excersice when the joints are inflamed. Avoid starch foods, processed, diary, red meats... have lots of vegetables and fruits... check on anti inflammatory foods on net. Also take in omega 3, calcium, Vitamin D3....
Thank you for this. I was diagnosed in 2004 through a blood test. I can't use oral anti inflammatories because I have reactions. I've been on 5-6 biologic drugs that started to work then would stop. I decided to do the elimination diet for anti inflammatory foods. I cut out gluten, dairy, eggs, and sugar. I'm in my 4th month now and I have less pain, more energy, and sleep better. I'm still eliminating foods that bother me. I'm feeling so much better. My body isn't swollen either. Mine is hereditary. Ou of 5 kids, I got it from my dad's mother. Diet plays a big part!!! Can't emphasis this enough.
Is eggs causes inflammation?
@@Islamicnurserykids Allergies
Thanks for replying! What types of exercise you do?
@@Islamicnurserykids Mostly walking, and low impact exercise.
thanks DOC
I have cervical and lumbar spondylosis. DJD of neck and lower lumbar region. I also have ankylosing Spondylitis. I have hip pain, neck pain, lumbar pain, chest pain, overall joint pain. My left knee needs replaced. I have autoimmune disease, Severe Allergies (Chronic Rhinitis), psoriatic Arthritis, Inflamitory Bowel Syndrome with diarrhea, headaches, numbness and tingling in hands/Neck/fingers/arms.
I have sleep apnea, hypothyroidism, chronic bronchitis & Pneumonia, Vitamin D Deficiency, Major Depressive Disorder, Anxiety, and Chronic fatigue. I also have Otosclerosis and nerve damage to my ears.
I have had surgery in both ears.
I have had 3 knee surgeries.
Right inguinal hernia surgery.
I receive allergy shots weekly.
I take Zoloft, Klonopin, Gabatril, Sulfasalazine, Allergy pill, 81 mg aspirin, 1500mg Omega 3 fish oil, 3000 mg Vitamin D, multivitamin, 1500mg Coconut oil, extra Vitamin C 1500mg daily, Vitamin B Complex 50mg 4 times per day, 1050mg Turmeric(Curcumin) with black pepper extract, Boswellia 450mg, CoQ 10 100mg daily,
I don't drink soda pop, smoke or drink alcohol.
I attend talk Thearpy every 3 weeks.
I just HURT all over and I am exhausted all the time. I lift weights 4 nights per week, walk my dog 3 miles every day, I do extra cardio on my treadmill 2 or 3 times a week.
I train in Tai Chi and Tae Kwon Do.
U should try prolotherapy and LDN
Very helpful video. Thank you Doc. Keep sharing ;)
Hi doctor
I am from India, have 28 year old
Doctor please tell the naturel medicine for spinelcord disc inflamation, nerves pain problem and aslo for join inflamation problem
Please tell me the best natural medicine 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
@@SriNandiDevar avoid inflammatory foods, you will get the list on Google... also dont turn twist harshly, and carry heavy objects. Take calcium, vitamin D3 , omega 3, B12 and magnesium ....
@@Beamlight7 thank you
Look up Dr Brooke Goldner on UA-cam
Thank you.
Which surgery laminectomy or ACDF would be better for Cervical spondylosis which has resulted in multiple vertebral subluxations in the C7-T4 areas, as well as compression of the spinal cord?
Been on Humeria for AS for 10 years now
How is it then?
please tell about sinusitis and how ear is affected n clogged from sinusitis
Hello Dr Mandell I am a teenager and have rounded shoulders, very bad neck pain, and my shoulders feel very loose. I have seen doctors and sent to physical therapy but it did not help due to my shoulder pain. My neck has become the problem and I have tried to fix my posture but it seems to become more painful. What do you suggest? as I am in very bad pain and wish that doctors could think like you please anything helps thanks!
watch at his other videos, he has done some on how to correct a bad posture, you will find a solution by doing a daily routine to put back your posture in a right way :) as he say do small step every day cause your muscle need to learn new position , and it will work ! I wsih you the good succes you deserve in your life :D
This was the most informative info about the Spondylitis that I have ever herd!! Thank You so much!!
Am 7 yrs with As.. now on tnf inhibitor...tried dmards sulphasalazine.....Now liver function test abnormal.... Severe uveitis...ibs... ecg varaiantion......Dont knw next wt to doo...... Feeling depressed not spending time with my kids always in hospital & follow up.....
How are you bro
@@divakarluffy3773 Not yet fine bro ...now on tofatas tab
I had undiagnosed AS for 40+ yrs; mother had it, sister had it. I diagnosed myself w/leaky gut syndrome. Went to church one night & guest speaker said “God wants to heal spines tonite”,stood up, 9 yrs ago & no pain since. Too bad people don’t realize that Jesus still heals.
I apparently have this going on but my posture is fine. I'm always conscious of my posture, but i'm experiencing so much pain and weakness and muscles loss. something has triggered a sudden onset of symptoms from joint to muscle and nerve pain throughout my entire body. it seems like my body is suddenly shutting down and i'm getting smaller and weaker every month. in just 6-7 months i'm down 30lbs of muscle and barely able to function. going from active and fit to having trouble lifting a glass of water. this is crazy and scary how sudden and fast this is moving and affecting me. it's messing with my digestive issues and i'm not absorbing nutrients and exercise seems to make me worse flaring up my muscles and joints!
@Tina Carmony Yeah I started that since early 2021 4-5 months after everything started. did a few 3 day fasts and then for months did OMAD. didn't seem to help much. doing traction on my neck seemed to help the most. something's causing pressure in my neck and cervical discs and messing with my nerve function which has messed with EVERYTHING in my body especially digestion. which i think led to leaky gut issues. I may have had it for years but very mildly and I just aggravated it and it set off all this craziness
Look up Dr Brooke Goldner on UA-cam
So where does non radial axial spondyloartharitis fall , spondylosis or AS?
Wow !!! Your video was extremely informative, and very helpful. Thank You so much, motivationaldoc.
Have AS for 30 years now. Everything the DR. says is correct. I would add I realize it's about all natural but you do need medication at times to help get through NSAID like Naproxen is good, CBD cream rub and/or CBD oil
Don't be thinking if you have the HLA-B27 test and come back negative that you can't have AS. Im negative for the gene but have a fused pelvis and lower spine from veing ignored. Only AS can do this yet they'd tell you because I don't have the gene that I dont have AS. I had AS from puberty as I had psoriasis but was diagnosed until I was 41 and now i crippled by it
What a great educational video, thank you doctor Mandell. (If you could ask me before I was born would I like to be born I think I would opt out, if I knew what I was gonna have during my life.)
Great info, as always. Thank you doc.
🙏
I lived with A.S for. 20 years. Had the onset. 5 years. Before. Docs. Did. Not know much about it im in my 50s i had 3 hip surgeries my bones. Are deteriorating. Neck is fused. Had heart issues. I even had a doc tell me. I wouldnt make my 65th bd. Took meds. They pulled them after 15 left to do it cold turkey no told i would loose. My ssdi. Fhis is what our gov does
Thank you for sharing! But question 🙋🏼 if I was carrying a lot lately and I had no clue I had it till my back cracked and I was left without breathing and the Dr after X-ray told me I have 2 vertebrae cracked 😢… what is the time I need to rest for working again and obviously I will not be able to perform heavy lifting again? Thank you
What are the measures to take care for A.s. at home I am suffering from A.s from 10 years. My posture had been changed I do exercise everyday, is it enough for A.s
What precautions to be take for my children
Against A.s any medicines are there for A.s
Need to mention if you have AS it may not be affecting bones it can go after organs tendons circulatory system it’s more than just fusion in the spine
Thank you James Harris that's me. Many other issues than just spinal.
Hey Dr. Mandell is this why my body structure feels heavy? It keeps feeling like my muscles and structure comes out of its normal position
Can this go away by doing all the things u said? Can my bulging disk go back in and go back to original size?
Can one of them be improved with surgery
Ths so much...,🤗
Dr Mandell, I was told by x Ray I have reverse cervical lordosis, but I have no forward head posture that I'm aware of. Does this sound right?
I had Ankyloosing Spondylitis I play tennis 3 times a week after loosing 5.5 stone in 2019 I changed my lifestyle
I taking Turmeric Ginger cinnamon
Flex pumpkin Chio seeds pine and wall nuts Honey in my porridge every day
I put turmeric Ginger Cinnamon other herbs in my casseroled and soups with Kale Spinach Broccoli Asparagus cabbage etc
I walk every day
After 35 years my inflammatory is gone no pain what's so ever I never did take Inflammatory capsules
I bought a Dream land Heat pad it's excellent and on a company called FEI FAH YOU CAN GET ELECTRIC Balm it's excellent
Now all I do for Ankyloosing Spondylitis is do my Ankyloosing Spondylitis Exercises for it but theirs no pain what's so ever
All down to changing my lifestyle
Sugars are a no no
I never took junk food
I never had a sweet tooth
Another bit of advice
Don't take soft drinks or sauces full of Sugar
Nobody needs to take on sugar as theirs enough in the chemicals of CV the food anyway like salt
my symptoms get worse the longer the day gets.
Hey doc. I was recently diagnosed with Ankylosing Spondylitis. My lower and upper back interior spinal ligaments have begun to calcify and fuse together unfortunately. I was watching your other video on how to reduce calcification. Would taking Chanca Piedra help me out along with Apple Cider Vinegar for my condition? Thanks.
I wish the doctor had somebody to answer his questions I love when they actually respond to people's questions because it's usually a question I have LOL.... I'm very curious of this as well
We need to pay to have a meeting with the dr
I'm 71, and was diagnosed by my orthopedist with ankylosing spondylitis a month ago after several weeks of persistent, severe back and hip pain. I'm very active, play golf nearly every day (3 handicap), and until recently, have had only short, sporadic periods of pain lasting less than two weeks. I'm now told my neck and lower back are essentially fused now, he said, and the only course forward is seeing a rheumatologist.
Online research has proven helpful, but I still have a ton of questions. For example, can AS impact your heart? I've read it can cause arterial blocks. At 67, I had a widow maker heart attack, with a completely blocked and calcified LAD. Yet, my cholesterol has never been above 140, and my family has no history of heart disease. I've also had severe pain and extensive swelling for a period of several weeks in each knee, yet MRI's showed a generally healthy joint.
Thanks to anyone who has suggestions, and thanks to Dr. Mandell for his very clear description of the disease.
Hey Doc, thanks for these videos!
I have question for you if you dont mind, please.
My back from top to bottom is a horror show, simply put.
For the past 12 years ive been on a steady diet of the maximum ammount of opioids that NY STATE WORKERS COMP. will allow, which provides only the minimum relief. Since my daily dose of three pills a day is woefully inadequate, i find candy helps stave off dope sickness to s certain degree, but of course it adds weight and fuels inflamation as you say here!
Can you think of something natural to help relieve the dope sick feelings i deal with multiple times everyday that wont add weight or inflammation?
I dont care if it tastes like crap if it works. Just it cant be a mushroom because I'm very allergic to mushrooms, and aloe products.
Thanks for your attention and also for all these great videos!
May God always bless you!
This may be a silly question but can you have both? I have DDD, bone spurs, straightening of the cervical lordosis, chronic back pain, chronic pelvic pain, and have been searching for years to figure out why I walked in a forward leaning position that required me to use a walker for posture and balance to now not being able to walk due to loss of balance, falling, and extreme radiating pain. I now have to use a wheelchair. I suspect I may have ankylosing spondylitis since I have many of the symptoms including sensitivity to light, hip pain, back pain, hunched back, degenerative spine, and pain that has not been treatable. What do you suggest as far as these symptoms? Could I likely have AS?
Hey the secret is to eliminate all starch food, sugar, red meat, processed foods... I am 33, I recently started getting emense buttock pain while walking that i cant walk.. MRI shows inflammation of sacroiliitis bilateral. Ccp, hla b27, RA, esr all negative. Only ana was at 1.80, doc says mild arthritis.... Yes I used to have lots of sweets, and processed foods
@Beamlight7 I agree, except for the red meat, I went on a carnivore diet eating lots of red meat and my inflammation came way down, hence, pain is way down too..
Yes, I have bone spurs, in my neck, and spine, also AS in my lower back. But my blood test shows no HB signs. I'm a female, at the time of diagnosis, I was about 54yrs old. I'm now 60 and on a carnivore diet, feeling better than I did at age 40...
I have AS and I have the Gene and started have arm numbness and next think I woke up in horrible neck pain. Stood up and my hands didn’t work and tried to turn to get back to bed and wasn’t able to . Fell over and got a c6c7 spinal cord injury and now I’m quadriplegic 😢. Since I couldn’t feel before a fell I, I knew it wasn’t from the fall but I feel my AS had to do with it because the hospital couldn’t explain why it happened.. it’s been 10 months
Just saw this video of yours. This is SO useful/insightful. Thank you doc. Greetings from Cape Town, South Africa 👏👏
Most of this is being caused by Glyphosate. There’s a vid on YT by someone who cured his AS by not eating GMOs or grains. Soy also may contain Glyphosate. This can also be caused by ext1 gene defects - which cause TNF and Herapin Sulfate deficiency - which triggers Bone Remodeling Disease.
I have years of chronic back pain, and not just my back because of the nerve pain, it goes throughout my body. Five operations and they can’t do anything. I don’t know if I have this or not because no one knows what’s going on. I tried to understand all this but I’m afraid you lost me several times
I appreciate the video, but am still a little unclear. If I'm reading this website (spondylitis.org/about-spondylitis/types-of-spondylitis/ankylosing-spondylitis/), then ankylosing spondilitis is a specific type ( a subset) of spondylosis. It's possible I'm misreading the information from that website, however....My inference from your video is that the two conditions are separate diseases. Again, I'm grateful for your time.
Gosh, so much info, I’ve been confused as to what I have. Have had scoliosis for years, but , also have 2 fused discs, Spurs, bulging discs, and after mri , told I have a incompletely formed disc, not sure what that is , other than arthritis everywhere. 30 Years ago told I didn’t have rheumatoid arthritis, but my joint pain is getting worse. Had one hip replaced and one knee replaced, waiting for the others to be done, should I get better tests to see what I have got. I take anti inflammatory meds and Panadol , that’s it. But suffer and won’t give in ! Thanks for great video, made me think, I’m not alone! I live in Perth Australia.
I have ankylosing spondylitis and spondyllis and my right arm is already paralyzed, and furthermore am getting obese because I don’t know how to exercise without pain
Compare to other Teachers, this is nearer the bottom of the list. Check out Dr. Najeed and Dr. Campbell, both of them I think are on the TOP. Good Teachers tell very easy and interesting stories. They just make seemingly complicated material like so easy. Be not discouraged. Good attempt. Try again.
Thanks doctor Mendel I have this I was hit by a car 5th sacrum fractured no plastering possible on the pony tale coccyx and the pain goes something like between hip 5th sacrum lower back lulbemzr only in the right is my pain now I have pain on my right upper thumb area iam 55 are we talking about arthritis how do I regenerate my bones joints my sciolosic is mild yet mixed with extra weight iam on keto diet and I stretched exercice low impact i have made a lower back butt support for best support I am in pain since 30 years but if I use my technic roll a big tower and place it under your glutd buttd underneath the pelvic it might help to relieve the pain also sleep on the other side of your pain adding volume pillow between your upper legs 🙏💋🌹😍
I can hardly get up out of bed in the mornings but after I manage to stand and take a couple of steps it gets better and continues to get better all morning then I drink a 10 calorie energy drink and run like a new Honda engine for the remainder of the day!
Good for you. Making fun of people with disabilities. Your mama must be proud.
Lwt me guess drug us cuz thats all they do in the mainstream medical communtiy
I have been receiving infusion treatments called Symphony Aria for quite a while now but when the covid epidemic happened I quite getting the infusions for some months. When I started up again it seemed like it wasn't working as before. Are there any new treatments coming on the seen that will be better or any new breakthroughs coming this year?
Can you have both? I have Klippel Feil Syndrome(all cervical naturally fused and a huge osteophyte and tested positive for the AS gene.
Thank you so much for this. Not related to spine but are you able to find anything on helping with Dercums disease symptoms? Its a rare disease and nobody seems to know anything. For me its not the painful lumps but the extreme tiredness and fatigue, stiffness after resting, gastric issues, hot flushes, joint aches... that I dont know what to do about. I wish I could stop the lumps coming, getting more and more but this tiredness is just awful...
Good information, doc.
Thank you
For any of you AS sufferers on here , please get your doctor to try Enbrel or Humeria on you right away for the pain , you can thank me later .
I seem to be experiencing all those things listed associated with ankylosing spondylitis! and seem to be having osteophytes an desmophytes also!
My chiropractor said I have a disc that is twisted slightly to the left in my neck. I thick it's bone C3. I sometimes get pain, especially if I turn my head to the left for an extended period of time. I also feel a little numbness in my right hand and face periodically, and some hearing issues in my right ear. The other bone issue is a recurring subluxation in my spine at or near the top rib. I have been doing the spine and neck exercises you prescribe, and they've been helping me a lot, also to correct pelvic tilt. I'm wearing better shoes now too, and it's alleviating the foot pronation. What can I do about my twisted bone in my neck? It seems to be stuck that way. Can this cause bigger problems down the road? My chiropractor didn't know what to say. Any tips or advice you can offer are greatly appreciated.
🙏
A comparison with DISH would be helpful.
Hello Dr Mandell
Can't give him a like because of the lack of compassion or seriousness towards the most unfortunate of us. HAve searched help 37 years, got diagnosis only after 24 years, along with Aspergers, which may be a reason why nobody helped me. PSychic problems often give worse treatment or even like in me, neglect. As insult to injury, I got sleepless by neighbour's barking dogs for 12 years, which was the final breakdown after abuse trauma in psychiatry earlier, that turned my Bekhterew's aggressive, degenerative, and I got eating addiction from stress, as well a s allergy, fear of doctórs , lost hair, etc. Fighting for personal assistence, still waiting for success, and having to get back my home that they took, as well as regaining my savings, small sick pension and rights, reputation etc. They have mad my tragedy into hell, and I have been burnt out for 20 years, worsened to stage 3. i have lost motivation and courage to go on excercising, never getting support, therapy, stress relief. No energy or nutrition balance either, like he says but worse. Have been freezing fr 20 years too, while skin often feels hot as a stove: I am losing warmth and can't produce it well. HAve to dress warmly always. Am so afraid, although praying and working at my thought-feelings.This video made me doubt that I can be helped or even live much longer, if all the horrible prejudiced, false assumptions-mal"treatment" is not turning. I have lost so much time going for the wrong things/people and having to fight for my rights to help and writing, waiting, recovering from abuse from many, many people/institutions/authorities.I don't get how they can torture an innocent handicapped who has done more than all to help herself, help others and get help to get well or better functioning. I'd be happy and grateful for good support , friendship, healing comrades. I want to heal or stop the progress.
What is the difference between spondyloaraopaphy an SA?
Is it not a type of arthritis?
You are so brilliant and amazing. Thank you for this information! ❤
What can I do? 2 different doctors said 2 different things. 1 said I don't know if U have AS. Another Rheumatologist said I do have AS.
I do have Si joint erosion. I am well over 65 now, so could the erosion B degenerative or AS??
I am dealing with maybe needing left hip surgery due to almost having bone on bone, but have heard if U do have AS having a hip replacement will cause the AS to attack the implant as an invader.
So what can I do???
I fear having hip surgery since I am not sure I don't have AS.
But it looks like I will b needing a hip surgery if I can't get the p[ain to go away by losing weight & eating like a carnivore.
Any suggestions or ideas??
Are you hla b27 positive ? the secret is to eliminate all starch food, sugar, red meat..eats lots of vegetables and fruits...
its so nice not to suffer from this shit anymore
And how did u get better???
Samantha Hicks it’s probably anti TNF like Cimzia that’s what I take it stops the pain and stiffness I couldn’t put my shoes on to go to work it was that painful
It's a chronic disease, which means it will always be there.
I have Degenerative Disc Disease or also called DDD and I had Lumbar Fusion surgery to help with my back pain it did help a little but I will always have pain and in future I would have to have another Lumbar Fusion. What's the difference???
AS is a chronic autoimmune disease that results in fusion of the spine. Eventually the fusion will involve the whole spine, from the neck to the tail bone, stooped forward , making it impossible to even look a person in the eyes. It also fuses the joints between the ribs and the sternum with makes the rib cage rigid so that the lungs can not move properly making it hard to breathe. All of this is caused by inflammation, meaning severe pain throughout the body. AS also affect other organs and joints in the body. Often the heart and lungs are affected.
Your fusion was made to make your life better.
That's the difference
Thank you Dr
You're very knowledgeable.
I'll fallow your wise advice.
Thanks for the info, Doc.🙂🌻🐬🦋🌷
Hi Dr
My HLA-B27 is positive.....
Need help
Enbrel saved me from being worse off. Without it nobody cared. Especially not the Federal Government or MD Healthcare. Then I started to go blind.
Was on Embrel then switched to Humeria for over 10 years now , it was a life saver for me
Are there any actual scientific studies showing that sugars have an impact on the disease? I know I've never seen one. Yeah, it's a good idea not to eat like an idiot but cutting out refined sugars isn't going to impact a genetic problem.
Noooo obviously but it’s going to help with inflammation symptoms as studies have shown time and time again that refined carbs and sugars can increase or make inflammation worse
nice vedio sir yours vedio..our educational purposes
Dr Please Upload A Separate Video On Ankylosing Spondylitis Please Because I Have It It's Unbearable Dr Please Do Something My Life is Spoil I Commit Suiside Because of Ankylosing Spondylitis
How r u romu, you should start the AIP DIET IT WILL HELP U.....
Look up Dr Brooke Goldner on UA-cam
I have both and it's terrible.
Me too It is very painful
Look up Dr Brooke Goldner on UA-cam
Medicine athanu parayamo
Vatham anu
Awesome explanation thanks doc ❤
Can osteophytes treatment manually by exercise???
I have known to have b,27 and pain in butt for 45 years. Did it all, medicine scans 38 surgery, 5 car wreaks. You said Truth no one helps, move you to another doctor. Whatever. Doctors have put cement, cages,fushions ect for 32 years when I was hurting and they found out I have a b27 Gene. Now at 58 what do I do. I still don't sit long, just try not to break something. Blessings thank you for caring.
Check out no/low starch diet. I feel almost 100%cured.
@@jennydavidson7670 your absolutely right . the secret is to eliminate all starch food, sugar, red meat, processed foods... I am 33, I recently started getting emense buttock pain while walking that i cant walk.. MRI shows inflammation of sacroiliitis bilateral. Ccp, hla b27, RA, esr all negative. Only ana was at 1.80, doc says mild arthritis, do u think I could have AS ??? Yes I used to have lots of sweets, and processed foods
Great explanation 👌
please provide excercise for AS.
Hello Sir I have the problem with AS but no one is able to cure it I am in medication can you suggest me how to take care and cure it
You can not cure AS. AS is a chronic disease. You need to exercise and take care of yourself but you also need to see a rheumatologist and have a medical treatment. The treatment won't cure it but it might slow it down. I'm sorry, I wish there was an easy way to get rid of it.
@@Evakjon which meds are used for AS?
@@Србомбоница86 Depends on how far gone it is
the secret is to eliminate all starch food, sugar, red meat, processed foods... see videos by eesha
Thanks doc dig help
nice and clear, thank you
great information
I adore you!!’ So helpful!!!
Sir please make a detailed video on management of Ankylosing spondylitis.
Take D3 and K2