#29 Russ' kidney stone + septic shock story
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- Опубліковано 31 бер 2019
- On November 5th, 2018 our lives changed forever when Russ went into septic shock (following a small kidney stone stuck in a ureter). Last month we decided to sit down together and talk about this life altering experience. It wasn't easy, but I'm glad we did it. The outcome for Russ could have been very different and we feel so blessed to be here together today. (Also, I mixed up the days in the video. He was initially intubated on the Tuesday and they had the failed extubation attempt on Thursday. He was successfully extubated on Saturday, not Friday as I say in the video).
In the video we didn't give mention to all of the people who were there for us be it in person, with supportive texts and calls, or thoughts and prayers. Please know that the support of each and everyone of you meant so much to us. Thank you from the bottom of our hearts.
Before this experience we didn't know much about sepsis or septic shock. Every year 1.7 million Americans get sepsis and it is estimated to affect 30 million people worldwide. Sadly, 6 million of those people die. In the US, more people die from sepsis than from breast cancer, lung cancer and prostate cancer combined. A recent study from January 2019 found that more people die from sepsis than heart attacks. Clearly, this is something we need to talk more about.
Infections such as pneumonia, kidney infection, abdominal infection, or even an infected hang nail are the types of things that can lead to sepsis.
Early sepsis symptoms include:
Fever and chills
Very low body temperature
Peeing less than normal
Rapid pulse
Rapid breathing
Nausea and vomiting
Diarrhea
Click here to learn more about the causes and symptoms of sepsis: www.healthline.com/health/sep...
Instagram: briana_leonard
I just went through this: kidney stone, ER, sepsis, then septic shock developed in the hospital, in the ICU for 14 days, still have a golf ball-sized stone. Too weak for surgery. I also caught C-diff in the hospital. But I didn't have the breathing issues. It is as you said life-shattering. Thank you for sharing your story. It touched me more than any other.
I'm so sorry that happened to you! You'll be in my thoughts!
Be careful! I have had sepsis from kidney infections/stones 4 times now. Now that you've survived it once, it could happen again especially with that size stone because you will have scaring from the stone itself, the infection and the surgery you'll inevitably need. That scaring is where bacteria like to hide and breed. Assert your concerns and demand to be checked for sepsis whenever you feel similarly again. It is like a mind game for the rest of your life because, yes I've been hospitalized with it 4 times, but I've been sure I had the symptoms so many more times....like he said, you start to feel like you can't trust your own body anymore. So glad you made it out of the ICU!
Thank you, thank you, thank you! In OCT 2023 a kidney stone caused my sepsis solo adventure at age 75. I drove myself to the ER as thought I had Covid... Was in ICU within 2 hrs after triage. Don't remember much except that the staff was more than awesome. Praying for all of us!
Wow. You guys posted this four years ago. I'm a four year sepsis survivor as well. Gob bless you both.
Absolutely file a lawsuit. As a healthcare professional for 20 years this is negligence and he’s VERY lucky to still be alive. I was just discharged from the hospital with an infected kidney stone and sepsis myself over the weekend. There is NO excuse for this at all. None. Call an attorney.
NEVER EVER EVER go back to this hospital again. File a complaint with the state as well. This is absolutely horrific. Good for you for documenting this. This is your evidence.
And their insurance won't cover the ER visits because they had "too many"😡
My mom passed away last November 2023 from septic shock. Mom had an outpatiet procedure to have stents removed from having kindey stones. The hospital claims they lasered a large kindey to stone to break it up and her the stone had bacteria the hospital claimed they werent aware of the kidney stone having bacteria in it. Mom was in ICU and passed away 8 days later
My niece Çhristina, at 33, was the sole supporter of her Mon's battle with Sepsis. Her Dad was dead. I lived 2 far aŵay to help. Mary her Mom died. This video has been helpful in allowìng me to see what she went thru. Thank you.
God bless you & your family. I am on disability and can’t do half of what i used to. It’s so frustrating, but i have to be grateful because there are people a lot worse off. You guys hang in there. This will make your love stronger. God bless you Russ. My dad has had it 3 times from huge kidney stones which they can’t remove because everytime they have messed w his stones (which are in his kidneys the size of golf balls) but everytime they have messed w them at all, he has gone septic in the hospital for weeks. So keep my dad in your prayers and i will keep y’all in my prayers. My parents celebrated their 53rd anniversary last June. it’s gonna be 54th this June, God willing. I wish you both all the best life has to offer & try not to be scared. I know my mom stays scared, but she’s been w this man 53-54 years. She also told me she has to give her worries to God like the Bible tells us. I know it’s easier said then done, but God bless you guys & I hope you will make it to you 65th anniversary or more!!! 🙏 🙏❤️
I hope you can sue the hospital for their negligence! This is so sad..I’m glad to see him alive and well now.
I’ve been waiting for this. Love you guys!
I didn't mention it in the video, but I'll never forget our phone call when Russ was being intubated. Hearing your voice was just what I needed
This video was awesome you guys, I myself have had sepsis while I was pregnant two years ago and thank God we made it. It's very painful and scary I was lucky though and I didn't have to he intubated. Glad y'all are ok
I am so glad that you are okay, too!
My 85 year old mother, who was on Macrobid from her GPfor a UTI, died from a blood pressure drop from a complicated UTI/pylonephritis after the hospital Dr said her bloods were clear and she was just dehydrated, this was after being sick and collapsing at home,he put her on a drip and sent us home.
She collapsed in exactly the same way the next evening, this time her poor heart couldnt keep going and she died holding my hand.
They didn't take a urine sample off of her at the hospital or take her blood pressure standing up before discharge
This is in London UK.
Heartbroken
Sepsis is a terrifying life experiance. I've contracted it 7 month ago still suffering.
Post sepsis syndrome can be very difficult. Russ is still dealing with :(
Thank you both so much for sharing this very personal experience. I am so sorry that you had to go through something so traumatic. Briana, you mentioned that you find yourself at times asking yourself the “What if’s”... I know this is difficult to do at first, yet becomes easier in time, but when you find your mind wandering to one of those questions or scenarios remind yourself that thankfully you and Russ never had to face the answers to any of those terrifying questions and that you did absolutely everything you knew to do throughout that time... then, bring your thoughts back to the beauty of your love for each other (which was very clear to see in this video - true soulmates) and for your children, and for the blessing of each and every day. Much love to you both and to your family 💗 🌈 ☀️ 🌹
oh my Word...so sorry you had to go through this!
God Bless you both, thank you for telling your story. That whole experience is so scary and horrible.
You both should get some therapy for the aftermath of this terrible experience. It might help some of this fear you both have. Your doctors should have already suggested this.
On another note you are right, with his blood pressure sinking like it did, you could have lost him. It's wonderful you are putting this out so everyone can learn from it.
This was 5 years ago... We have both had a lot of therapy since this happened.
This story is horrifying...considering he did not receive treatment of literally hours and hours, its amazing he is still alive! God Bless you, two!
Your love for eachother is inspiring. Briana you are a rare treasure. In sickness and in health.... ❤❤
Thank you so much Patricia
I had a kidney stone that blocked off my kidney and my ER sent me to a bigger hospital because I was septic, but my hospital 15:29 ER knew that could happen, your ER really failed him. So darn scary. I have never been so sick, I am glad you did survive.
I've been reading about post sepsis syndrome, which I am suffering from, it's estimated 22-70% of sepsis survivors die within 2years
Yes, he does have PSS. He'll be 5 years out in November. We feel incredibly lucky he made it through and is doing as well as he is.
Glad he’s ok now
You should sue this hospital.
Never ever put up with dismissive treatment. Go to another hospital or urgent care. Be a pain and ask to speak to the hospital management.
Father of two from Suffolk Uk-Ive just been turned away from a vital Blood cultures test here in the Uk despite having all the symptoms of Sepsis after testing negative for C 19. Discharged from hospital 4 times without having the test and now home suffering with painful stomach kidneys and joints and having had fever and chills for days. Hard to beleive but as I type this I fear my kidneys have already started to fail having not passed urine since this morning. ...apparently the reason given is they think its all anxiety. Told by my GP that the test was 'expensive'..................... Helpless!
I am so sorry to read this! I hope that you are feeling better now
hope you pulled through
Oh WoW.. So sorry. Myself (mailman), back in 2021 got in from work, at my kitchen sink and had a horrible stabbing pain in my stomach. I could barely walk 8 feet to grab my ph & call the neighbor. ER said my gallbladder was full of stones. Surgery that evening and would go home the next morning - - - They kept me 3 DAYS constantly on antibiotic drip & saline, would not say why.. only "We want to make sure you PERFECT to go home".. finally sent me home telling me to take 2x500mg walmart tylenol 3 to 4x a day for a few days, THEN the doc gave me a script for Norco- I asked why, he only said "JUST in case you need it"... 3 weeks later my stomach SWOLE UP like I was pregnant, HURT SO BAD (Bless You Women). Every cup of water I drank, I THREW IT UP. I bought some of that liquid stuff that makes you go to the bathroom.. I'd Throw it up 60 seconds after I drank it.. I live 20 min from town, I stopped at EVERY doctors office I passed on the way to the ER.. No one would take me, told me I was Green, Go to the ER. After 10+ different Xrays, MIRS, Scans.. one that was over an hour under this HUGE metal disc.. they said I had Sepsis + Septic Shock. Small/Large intestines & floor muscles shut down, my stomach had no where to let out. Intestines muscles & pancrease was inflamed, they was scared my liver & pancrease would shut down. 9 doctors, 2 to 3 of them coming in every 4 hours, PLUS blood work every 4 hours. For 4 days they could not get my heart rate below 144. The plan was NO liquids nor food to give the gut a rest. At that 4 day mark since nothing got better they was going to move me to a higher ICU floor with the nurse right there watching me as they gave me a heart med drip & they was going to put a tube straight to my intestines to give it something hoping to start it up... THANKFULLY.. that night B4 I was moved the nurse heard my stomach gurgling, by morning heart rate went down, liver & pancrease count SLOWLY went down. After 7 days they let me out. One nurse finally told me my galbladder fell apart inside me as they was removing it and the surgeon didn't clean up good. -- 2+ yrs later I got on BP& heart meds, both increased OVER and OVER. Now on 2 a day heart pill Cored & the dark dark red BP med. I go to the bathroom like twice a week. several other issues like you stated. Everyone I talked to that had septic shock says problems keep coming up forever.
Get a damn good lawyer and sue that hospital!!!! Please don’t wait until it’s too late and have the balls to sue them for negligence and personal injury or whatever it is cuz they really fucked up !!!
Iis it because if your free healthcare in the uk?
I am studying to become an EN. Regardless if missed sleep/dehydration from the pain/discomfort caused by the Kidney stone alongside the recurrent symptoms of nausea/vomiting was contributing to your BP drop? Rule of thumb is--- If pain/symptoms of such nature are still present and your BP on the next set of obs were only slightly higher?? I would have advised and requested more imagining tests/lab blood work etc alongside pain relief. Temperature checks are also included in the 15 min/half hourly/hourly obs. Such is a big indicator of the chances of an infection being present or escalating. I would not have stated discharging Russ if he was reporting dizziness and such.. Not at all! -_-, Blood cultures should have been done straight away. >.<
I am very very very shocked that the staff at the hospital did not advise you both on should symptoms progress for the worse? You come back stat. >.<
The presence of a kidney stone in itself is obviously not at all a pleasant nor good thing. Kidney stones lead to Kidney infections. The longer said stones stay embedded? The higher the risk for infection, blockage, rupture of the ureters etc. Some stones can pass on their own sure.. but it is a very painful experience (worse than childbirth.. or so I am told.. Which I believe!) Bigger stones need to be removed via various procedures.
The hospital systems are so under pressure everywhere (I am in Australia.) and when systems go down? Absolute chaos! >.<
It makes me very very very angry that Nurses and Doctors do not proceed to check vitals! They are called "Vitals" for a damn reason. (Vital information that can be indicative of someone's condition. -_-,)
I am so so so sorry Briana that you and Russ were subjected to such reactions from the nurses.
Bless you both and your family. Sending you love and strength moving forward. 💖
Your very lucky you didn’t lose any limbs, nose, lips. Hope you feel better soon.
I got sepsis 10 yrs ago after a 7 day ruotured appendix as did nt get it duagnised.right ! Living with afib now but at keast im living.Then 2 yrs ago my hisband git sepsis x and. died dealing with bad k i!dney stones ! Worried.😮Im having surgery soon..I too get cdiff from alotf antibiotics .
The 1st time I went to hospital the same thing happened to me I came in a ambo throwing up was right next to the nurses but noone saw me for over 4 hours after the ambo droped me off
Then one time I was in super bad pain that I was screaming I didn't want to be the dr were like there other people here you need to shhhhs
What did his pcp say about the situation and care or lack there of that he received?
Not much besides it was terrible and he was glad my husband survived.
Regarding kidney stone, they can use a laser just to break up the stone into smaller pieces so it can pass on itself own. I wonder if that would have still posed too much risk for his bleeding disorder. Just a thought.
Thanks for sharing! Any updates? Looking for a Los Angeles or OC Doctor who specialize in Sepsis.
He still has aches and pains that he didn't have prior to Sepsis, but he's doing well. He went back to work full time a couple weeks ago. We never found a doctor that specializes in sepsis. In fact, we saw quite a few GP's until we found one that seemed to have a grasp on that it was.
UCLA has a great team as does Fred Coe from U of Chicago. Look him up. He does online opinions as well. I’m a long time kidney stone sufferer in OC
I was in exactly the same position In January
I'm so sorry you had to go through that. Grateful you are still with us.
@@briana_leonard so am I I’m still waiting for my kidney stones operation though because of the complexity of my stone the NHS is the only option for me because private hospitals in the uk don’t have ICU units and to top it all I had covid too
Wow..I just got out of the Hospital with sepsis Renal Failure Septic shock.
I am ok because of the Lord.
The story is to long to tell.
I ask what caused this and I was
Told Cancer.
I have been fighting with my doctor to help me because I can't walk because there is something wrong with my stomach and Ba k n Hip.
Tje pain is through the roof.
Because of listening to this video
I am going back to the Emergency room to find out what is wrong!
told
I hope you are able to get answers.
Can you have sepsis for 5 weeks? I think I have it for 5 weeks now.
Thanks for this I am here looking to listen to people who have been through what I've just been through myself.
Ambulance did not arrive for 8 hours and when they arrived I was treated with both neglect and even contempt while one of the paramedics sat there denying my experience it was horrible. I was in agony. The hospital were quick testing my blood and urine and got me on IV antibiotocs in minutes but too much time had already passed. A ct scan showed I had a huge kidney stone between kidney and blader (they have to operate on soon) they operated to fit a stent so I could urinate, relieving the pain I slept but the next day my stats dropped my BP went very low then I had a heart attack. I was wired up to the hilt and my BP took quite some time to recover. I could myself lucky a heart attack has so far been the worst it has hit me with but my days am I scared right now about the upcoming op. I have the most dreadful feeling that the operation I will be having in around 10 weeks from now will land in another bout of septic shock.
With the statistics the way they are with this terrible illness it's reassuring to hear survivors talk about this so thank you once again. I wish you both a long healthy life.
My trust in doctors has virtually gone
I would definitely, find a new hospital! This one should be sued, seriously...
We will never go back to that hospital. We actually contacted many lawyers, but they said due to caps on medical malpractice cases in California (which haven't changed since the 70's to account for inflation), it would not be worth our while.
I was to late using for my miss diagnosis. My husband on the other hand who died in a nursing home is being sued.! 😢
I'm into my 7th month
I was tod I was about 10 hours away from dying
He was going into cardiac arrest in the waiting room!
It was terrifying :(
Does he have post sepsis syndrome
Yes he did... we are planning to make a 5 year update video soon.
This is a horror story.
terrible hospital...they should have done blood tests immediately.. you could have easily died...I came close to dying of sepsis, because the hospital put me in a room, and it took several hours, like 6..to be transferred..When they did a minor surgery..my blood pressure dropped so low..I nearly died..I think i stopped breathing..during surgery. Iowa City Hospitals, saved my life, Mercy One nearly killed me!
Hospitals definitely need more sepsis protocols in place!
Interesting story. Please make shorter videos!! Too much detail not necessary for telling the story.
Not true. All of this is very relevant as a healthcare professional. This is all extremely important.
Though I generally prefer shorter videos, I found this account one of the best on UA-cam exactly because it described the experience in detail, both medical and emotional. I did not find any of it unnecessary.