Sepsis 911

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  • Опубліковано 4 вер 2017
  • Sepsis 911 tells the inspirational story of sepsis survivor and quadruple amputee Sue Stull and her husband Jay. Before she became ill in August 2014, Sue was a healthy, active woman. She developed sepsis and her life changed drastically due to amputations to both of her arms below the elbows and both legs below the knees. The Sepsis 911 video is part of a Community Education Kit built to empower advocates to spread the word about sepsis in their local community.
    This powerful video short, produced by Sepsis Alliance in association with Synapse Productions, has been recognized by MarCom, which honors excellence in marketing and communication, with a Gold Medal in its Medical video category.
    To access the full Community Education Kit, please visit www.sepsis.org/resources/seps...
    To learn more about sepsis, visit www.sepsis.org.
    To share your sepsis story, visit www.facesofsepsis.org

КОМЕНТАРІ • 178

  • @staviiikeuw136
    @staviiikeuw136 3 роки тому +20

    The ambulance crew suspected this Christmas and got me to the hospital quickly. I am very happy that the right call was made. It is vital that proper information is given out because it saves lives.

  • @loridoerr7224
    @loridoerr7224 Рік тому +15

    This is so horrifying, yet preventable. I just overcame sepsis pneumonia and hopefully, I can go home tomorrow.

    • @jaystull5515
      @jaystull5515 Рік тому +3

      I hope you've recovered from sepsis and your lfie is back to normal. Yes, sepsis is totally preventable if diagnosed early, but every hour it is undiagnosed and untreated your mortality rate increases 8%. The doctors said if we had delayed 2 hours Sue wouldn't have made it. Best wishes

    • @CHELSEABuckhannon
      @CHELSEABuckhannon 8 місяців тому +1

      Thank GOD lm late but l hope you ok❤❤❤❤

  • @patriciafeilberg34
    @patriciafeilberg34 6 років тому +59

    The places that need education on sepsis which nearly killed me are nursing homes. These places need to learn to listen to us and watch any infections we get make sure they don't ignore our symptoms. I nearly died of sepsis caused by a simple uti left untreated here in Toronto, Ontario

    • @Me-ru6cl
      @Me-ru6cl 3 роки тому +2

      Not surprised...Ontario”s health system
      Is antiquated.Especially nursing homes.

    • @McChrister
      @McChrister 3 роки тому +2

      Patricia Feilberg May I ask which hospital? My brother in law nearly died in a St. Joseph Hospital from Sepsis...Another friend contracted MRSA in Oshawa General Hospital! God Bless and praying you are okay now...🙏🏼🍀👋🏼🇨🇦

    • @JillianNoelle
      @JillianNoelle 3 роки тому +3

      It’s a lot like that in the US too. People in nursing homes get ignored.

    • @Jay-li2pr
      @Jay-li2pr 3 роки тому +2

      UTIs are the 2nd leading cause of sepsis at 25%...leading cause of sepsis is pneumonia at 35%.

    • @fuckyoutube4changingmyusername
      @fuckyoutube4changingmyusername Рік тому

      People should stop taking medicines. All the asortment of drugs that you're made to believe will keep you alive are actually what's damaging your organs.
      We are made up of cells and water. We just need to keep our cells healthy..we need to power our cells by feeding it with healthy food and health supplements. Our cells get damaged and die all the time. But if we can keep feeding them with what they need, they multiply and self repair our organs...we get rejuvenated..we live healthier and longer.

  • @hamisht7122
    @hamisht7122 5 років тому +16

    Sepsis survivor after motor bike crash in Jan 6 2019 nearly died twice then they cut a huge piece of flesh out of my back & my butt & I'm still recovering now.

    • @Jay-li2pr
      @Jay-li2pr 5 років тому +3

      Best wishes on your recovery

  • @divanelson5901
    @divanelson5901 3 роки тому +42

    My girlfriend of 9 years passed away 2 weeks ago from this. I believe it started with a foot infection. Then came a fever that went away after a day, then her stomach started hurting. She had liver disease as well, so I thought maybe that was creeping back up after a few years. We even discussed it possibly being a kidney infection or stones. She was extremely stubborn about going to the hospital, we share that quality.
    All hell broke loose after about a week of the initial symptoms, and I found her on the floor. She was rushed to the hospital where she had 2 strokes on each side of her brain as well as a heart attack. They had her on 3 different blood pressure medications as well as life support for 3 days. It started affecting her kidneys, but they could not perform dialysis because they couldn't take her off the blood pressure medication. She was unconscious the whole time and they could not wake her up. Her condition stayed the same for a couple more days, then she started to decline, and we pulled her off life support.
    I knew nothing of sepsis, and feel like I failed her. I would have done whatever it took to get her to the hospital if I knew how fast it would have happened.
    I will say she tried to get antibiotics from a local clinic, but they told her they felt like it was something else going on, which is why I suspected her liver disease making another round. I believe her existing liver disease compromised her immune system, and is why her body could not fight properly.
    Goodbye Deana, the love of my life until we meet again

    • @ponygirl6258
      @ponygirl6258 3 роки тому +5

      So sorry for your loss. Sepsis is a terrible thing.

    • @Jay-li2pr
      @Jay-li2pr 3 роки тому +1

      Sorry for your loss Diva. For a very long time, I blamed myself for not knowing about sepsis, doing more, etc. Unfortunately, we have to trust doctors and if you get a bad ER doctor than bad outcomes happen. Sue went through most of what you described, but for some unknown reason she never lost consciousness. If you want to talk, please feel free to email me at teamsue@yahoo.com.

    • @carolwadhwani1113
      @carolwadhwani1113 Рік тому +3

      Sincere Condolences

    • @reelmermaid8844
      @reelmermaid8844 Рік тому +4

      I'm so very sorry for your loss. I lost a sister the same way, happened so fast. Take care.

    • @Plaksa2004
      @Plaksa2004 Рік тому +1

      Very sorry, why would someone be stubborn about going to the hospital? They don`t torture you there, with something more serious than a running nose go to the doctor, and see 2-3 of them to have the confirmed diagnosis, if they tell you you are panicking - that`s OK. (though they might be wrong as well), otherwise you`ll catch something serious...Maybe it depends on the country, here in Russia we have free medical care or even if you pay for the doctor it`s not very expensive, at least in an emergency, so why not to see a doctor when you can..

  • @alittlebitofeverything2310
    @alittlebitofeverything2310 3 роки тому +11

    This illness is scary as hell, due to the illness resembling other illnesses!

    • @Jay-li2pr
      @Jay-li2pr 3 роки тому +1

      Yes and no. It does resemble other illnesses, particularly the flu, but if the doctors and nurses do their job and identify it early than treatment and a positive outcome are exponentially higher. This is also why sepsis protocols should be mandated at every ER, ICU, stand alone clinic, etc. Sepsis should be at the top of the differential diagnosis and not at the bottom...in other words, rule it out right away rather than rule it in at the end

  • @Dep5723
    @Dep5723 6 місяців тому +2

    I got sepsis when i had kidney cancer. I was on broard spectrum antibiotics and went for surgery to remove the infected kidney. I was in ICU for 3 days and went home in another 3 days.
    Its been 9 yrs now.

    • @sepsisalliance
      @sepsisalliance  5 місяців тому

      Thank you for sharing your experience! If you are looking for any resources on sepsis or ways to connect with others who have survived sepsis, please visit: www.sepsis.org/sepsis-alliance-resources/.

  • @lenaturner5842
    @lenaturner5842 7 місяців тому +3

    In 2000, I got Sepsis from tonsillitis. My G.P admitted me due to liw B/P and Tachycardia. Because I was a Paramedic, he thought I had exposure to something bad. First thing done was blood drawn for cultures and IV broad spectrum antibiotics. Labs came back and sepsis diagnosis made. I was on dopamine for 24 hrs at kidney dose. I survived due to a 70 yr old G.P. and his early suspicion.

    • @sepsisalliance
      @sepsisalliance  7 місяців тому

      Thank you for sharing your experience with sepsis. If you are interested, Sepsis Alliance has an online support network for sepsis survivors to share resources and encouragement. You can learn more and join for free at SepsisConnect.org.

  • @tinaalmeidam4479
    @tinaalmeidam4479 Рік тому +4

    My mom passed away in the hospital from sepsis but she got it there.

    • @jaystull5515
      @jaystull5515 Рік тому +2

      Hospital Acquired Infections (HAI) can be dangerous. True story, several years ago we were on a telecon with the CDC and a host of other people and organizations when a doctor from the CDC discussed HAIs. He was so damn proud they had reduced HAIs by some percent (forget the exact number) but skimmed over the fact that HAIs were still OVER the CDCs goal. I called him out on this on the telecon but received no support from anyone else, so we stopped participating in this "project" after one telecon.

  • @denisesalles7248
    @denisesalles7248 3 роки тому +12

    Wow, what a beautiful, strong woman and family! So happy you pulled through and are thriving.

  • @kathmanexotics3227
    @kathmanexotics3227 2 роки тому +4

    Sepsi almost killed me in 2014 I suffered a right sided stroke that affected my left side I didn't lose any limbs thankfully

  • @lucysmithers357
    @lucysmithers357 9 місяців тому +2

    Last August I was diagnosed with Sepsis . I had an appointment with my surgeon to discuss surgery for Breast cancer.. My Port a cath was bothering me. Just a short few minutes later I was in the emergency room with high fever (104). My heart was.pounding and I was in severe pain... I crashed the 1st night.. I was having trouble breathing O2 SATs were 70 and I had congested heart failure. failure..I was in the hospital for 2 weeks on IV antibiotics. I went home with another 2 weeks with IV antibiotics.. my blood count was 7 and as a result of sepsis I lost most of my kidney function for the rest of my life.. I had to under go a thoranstis. I'm lucky I'm alive

  • @debrakleid5752
    @debrakleid5752 3 роки тому +6

    I’ve had severe sepsis once and early sepsis twice. I was in the hospital with severe sepsis for a month plus renal failure. The other 2 was for 5 days each. I have CVID so my chances of sepsis is higher. All of my sepsis was from home. My husband found me just in time and I woke up in the ICU

  • @robynneRN
    @robynneRN 2 роки тому +9

    The husband is a keeper!

    • @jaystull5515
      @jaystull5515 Рік тому +2

      Thank you! Sue has been amazing and there is little she can't do. From your handle, I guess you're a nurse. We love nurses as I believe they helped save her life...doctors, while there are some good ones, too many bad ones and they stick up for each other no matter how bad they screw up. IMO, doctors should put their egos aside and listen to the nurses a little more. Cheers

    • @triestastone6766
      @triestastone6766 22 дні тому

      I agree I stayed he's a hero. Those like me w zero support or understanding its millions worse I currently feel very alone and am deeply sad the person I know I am is gone

    • @triestastone6766
      @triestastone6766 22 дні тому

      ​@@jaystull5515you're the definition of a man I am so thrilled she has you

  • @johnclifford-ub7hi
    @johnclifford-ub7hi 9 місяців тому +2

    Now that I’m more aware of Sepsis I’ll definitely talk about in my next CPR class. Jc

  • @martymiracle2254
    @martymiracle2254 3 роки тому +19

    This mimics my experience with sepsis. Thankfully I ended up in ER where I worked. The dr there was a friend and knew me and argued with my personal dr who didn’t want to admit me to hospital. 2 weeks later I went home on IV antibiotics for 3 months. 2 year recovery

    • @Winter11158
      @Winter11158 2 роки тому

      En ax CC CC a CC zero CCS s CC CC a CC a CC a CC zcz z CC

    • @claudjarodnez
      @claudjarodnez 2 роки тому

      How are you doing now, if I may ask?

    • @martymiracle2254
      @martymiracle2254 2 роки тому +3

      @@claudjarodnez I have some lingering unsteadiness when walking otherwise ok. I am a nurse and was working when COVID began. My dr contacted me and told me quit working and stay home as my immunity had been weaken due to sepsis.

    • @lorrainemarcketta489
      @lorrainemarcketta489 Рік тому

      Thank goodness you had an advocate speaking up for you!

  • @lj9524
    @lj9524 Рік тому +7

    Excellent public awareness video on sepsis! Thank you!!!💔👍🏻❤️‍🩹

    • @jaystull5515
      @jaystull5515 Рік тому +1

      Our goal was to educate others so they might not have to live our nightmare. Thank you

  • @MydirtyRat1
    @MydirtyRat1 6 років тому +12

    2017 sepsis survivor caused by Necrotizing fasciitis. So glad I found Sepsis Alliance. Had I known that I was as sick as I was, I might have been able to get the treatment I needed earlier and not had as much damage from the NF.

    • @muchlove9781
      @muchlove9781 5 років тому +1

      Do you have physical consecuences after your episode? My sister is currently in the battle 😔😔😔

    • @Willard50jv
      @Willard50jv Рік тому +1

      I had sepsis as result of N.F. as well......lost my leg because of it.....very scary stuff

  • @LoveMeAsBigAsTheUniverse
    @LoveMeAsBigAsTheUniverse 4 роки тому +9

    When I was in preschool, a kid kept biting me. My mom fussed at the teacher for letting it happen.. but it KEPT HAPPENING. I Came home one day sick as no other. I got a fever above 100! I almost died. I was sooooooooooooo close!!!!!!! Lord has a plan for me!♡ I do have memory issues and other issues. That affect sepsis survivors. My teeth are all messed up too from all of it and all of the meds I was put on.. I wanna sue soooooo bad but dont know if I can! It's not my fault my mother didnt sue. It MY BODY!

    • @Angel-tv5lq
      @Angel-tv5lq 4 роки тому +3

      Jessica Heck I wanted to sue because of the disgusting treatment when I had it severely but I couldn’t even spk about my experience and if you’re in the uk you only have 3 yrs. Also it’s so difficult to prove medical negligence but I do feel for you.🙏🥺

  • @bonniehuff3901
    @bonniehuff3901 8 місяців тому +2

    I am a sepsis servivor and I don’t remember anything about it except what family had told me I lost my ability. To walk I went though a lot like everyone hear did I now can only walk 100 feet at a time I also have diabetes and COPD with other issues I’m in a nursing home now in long term

  • @denisespurlock
    @denisespurlock 6 років тому +12

    2011 Sepsis survivor.

  • @lollypop2413
    @lollypop2413 9 місяців тому +3

    I felt sick severe vomiting diareah cold chills i couldnt get up off the bathroom floor...i was in icu for 3 days...never found out what caused it after all tests were clear. I nearly died. I was swollen and had a rash and very pale with very low bp.. rapid onset that got worse.

  • @TammyMartinBLUE
    @TammyMartinBLUE Місяць тому +1

    BEST OF THE 8 OR 10 IVE WATCHED

  • @johanndeale9365
    @johanndeale9365 3 роки тому +6

    I lost both my legs - left aka and right bka - and both started with a tiny pin-prick underneath my feet. Ten years apart. Both the legs were removed piece by piece - first the tones, then the feet, then the ankles, etc., etc. In the second instance I told the Emergency Room what I think the problem was -- they did NOT believe me. The 2nd time I nearly died. Be very, very careful ! The doctors treated me for infection and eventually for gangrene. I was in hospital 5.5 months the first time and three months the second time.The hospital, later when I was in ICU, called my family twice saying I am "non-responsive" but a young doctor grabbed the gurney and raced me from section to section for tests. He saved my live, but I am of course, wheelchair bound forever.

    • @Jay-li2pr
      @Jay-li2pr 3 роки тому +1

      Why do you say you are wheelchair bound forever? Do you have access to prosthetic care? Please feel free to email us at teamsue@yahoo.com

  • @JillianNoelle
    @JillianNoelle 5 років тому +12

    I had sepsis in oct 2017 from mrsa was on a ventilator, my toes turned blue, i had kidney failure and was on dialysis for 3 months. Im crying watching this, its bringing back everything that happened to me.

    • @Angel-tv5lq
      @Angel-tv5lq 4 роки тому +6

      Jill Amoroso wow....I’m still crying after watching this. When I finally awoke in hospital I already had tears running down my face. It’s like it broke down all my defences and all I could do was cry. I feel for anyone who went through this but I hope you realise that if you’ve had it once you’re more at risk of getting it again. I’m not saying that to scare you - I’m attempting to warn you as forewarned is forearmed so you’ll be aware of it.🙏🥺

    • @Hannahsangel
      @Hannahsangel 4 роки тому +4

      it’s Still Jill me too. 1994 I was in coma two weeks

    • @JillianNoelle
      @JillianNoelle 3 роки тому +2

      @@Angel-tv5lq thank you. I need to be reminded of that too. Your absolutely slight.

    • @lorrainemarcketta489
      @lorrainemarcketta489 Рік тому

      Sending you all good wishes for continuing recovery, both physically and emotionally.

  • @tulsabrit671
    @tulsabrit671 10 місяців тому +2

    I was so so lucky, I was given within an hour fluids, antibiotics, and a nausea med Phenergan. However, I had a rare reaction to the Phenergan. I woke up in Critical Care. My Sepsis was caused by a virus and I had the complications from the Phenergan low BP. The firemen who saved me said they no longer carry Phenergan or use it as they had experienced too many severe reactions.

  • @genashade329
    @genashade329 2 роки тому +4

    There but for the grace of God go I. Last year I had necrotizing fasciitis, forners gangrene and was in septic shock. They said one more day I would have lost my leg. I lost my entire left labia and that was all. It started in my left gland bet my anus and vagina as a bump. The day I noticed it I thought oh just an infected hair. That night it became so painful I couldn't sleep tho that was all I wanted to do. The next morning it was so much worse with incredible pain. I called 911 and an ambulance took me to Centerpoint medical center in independence mo. Luckily they recognized I was in septic shock and gangrenous. I went into emergency surgery and had two more before they got all the gangrene. I was left with an open 4 inch deep incision from the top left of my pubic bone to even with the gland I mentioned before. Then three week later I was moved to a nursing home for skilled nursing services where I remained for two and a half months. I never knew how sick I was until I was released. Crazy. Thank you for your bravery and courage and sharing your story

  • @lorrainemarcketta489
    @lorrainemarcketta489 3 роки тому +10

    Thank you for shedding light on this issue -- Your courage and determination are beyond heroic! Thank you.

    • @jaystull5515
      @jaystull5515 Рік тому +1

      Sue is absolutely amazing! Over the years, we've went skydiving, rode the rapids in OKC, rode the Terradactyl in Colorado, smaller roller coasters, and lived our life. She cooks, cleans, vacuums, makes dinner, and even learned to put in her contacts using her residual limb. Sometimes her independence drives me crazy lol

    • @lorrainemarcketta489
      @lorrainemarcketta489 Рік тому +1

      @@jaystull5515 Your story, and hers, are truly inspirational!

  • @ithacacomments4811
    @ithacacomments4811 Рік тому +2

    My 93 year old mother just died from sepsis. She was a resident of a nursing home which failed to investigate her urinary complaints in a timely manner.
    The nursing staff just kept taking her blood pressure and telling her she was fine.
    My mother called my sister and said that she felt like she was dying.
    My sister went to the nursing home and called 911.
    Mother died in the hospital two days later.

    • @jaystull5515
      @jaystull5515 Рік тому

      UTIs are the 2nd leading cause of sepsis at 25%...pneumonia is the leading cause at 35%. Sorry to hear about your mother

  • @michalrzmichalrz6656
    @michalrzmichalrz6656 3 роки тому +6

    I had sepsis due to walking pneumonia caused by streptococcus pneumoniae. I felt 100% okay at 6 AM, at 7 AM I was in some amazing back pain, then at 10 AM had a headache and whenever I coughed I could taste something weird in my mouth. 3 doctors listened to my chest with a stethoscope and heard nothing. Finally the x-ray at the infectious diseases ward (I was ferried 3 days after) showed half of the left lung completely blocked.

    • @LemonThyme1933
      @LemonThyme1933 Місяць тому

      The infectious disease doctors are the ones who saved me. Mine, however, was caused by antibiotic resistant staphylococcus aureus.

  • @ashleysnyder1167
    @ashleysnyder1167 3 роки тому +6

    God bless. Prayers! Amen! 🙏🏼❤️

  • @WanonaS
    @WanonaS 6 років тому +14

    I got sepsis last september 2017 and I never in my life ever heard of it and it damaged my heart valve and had to have heart operation to get that fixed and I had pnumonia as well and they didnt think I would live cause they had to give me the heart surgery while I had the pnumonia and while on the anti biotic for the sepsis. I lived though but still having a few health gliches but I am still alive.

    • @dischargesummary8794
      @dischargesummary8794 6 років тому +1

      WanonaS keep moving forward.

    • @monicasmith1675
      @monicasmith1675 5 років тому +3

      Wanona, they attributed heart valve damage to your sepsis? Wow. Truly hope you're doing o.k. From a fellow sepsis (organ failure) survivor.

    • @triestastone6766
      @triestastone6766 22 дні тому

      I have nonalcoholic cirrhosis atrophied kidney ptsd depression night terrors insomnia often can't eat 8 years and the worse part is I'm not me anymore. I'm a shell of the me I was

    • @triestastone6766
      @triestastone6766 22 дні тому

      ​@@monicasmith1675I have w scars on my heart they found last year I'm 8 yrs out already had nonalcoholic in and my kidneys atrophied. I just wish that I could be myself again

  • @kwakena
    @kwakena 6 місяців тому +1

    Informative! Thanks for sharing! ❤

  • @marimiceli
    @marimiceli 6 років тому +7

    Excellent video

  • @pammipayne3334
    @pammipayne3334 3 роки тому +8

    What an amazing lady, such a fighter. I think the huge wall that needs to be smashed is the patients first port of call the General Practitioner as they are the ones that say it's just a bug or a virus you will be fine in a few days.. in my 3 sepsis bouts the hospitals were amazing before I got to hospital the Dr had said it's just a virus.. Problem is sepsis is like other illnesses.

    • @jaystull5515
      @jaystull5515 Рік тому

      @katjapeeters8311 The first ER doctor FAILED to do his job and didn't pay attention to my wife's symptoms. If he had actually listened to her and evaluated her vitals, he would have ordered a blood test and administered fluids. The blood test most likely would have shown a high WBC, high creatinine and lactic acid, all of which scream sepsis.

  • @jeanniebeneanie3752
    @jeanniebeneanie3752 9 днів тому

    Great video ❤🎉

  • @baileymoran8585
    @baileymoran8585 3 роки тому +7

    I was in septic shock last year. My mom was told I’d die within the hour at the time they took me back for surgery. I had to have 3 surgeries to fix a bowel perforation and dead tissue in my abdomen, a 4th one within a month, and a 5th one two months ago last Friday. I finally had no more questions as to whether or not my GI issues were Crohn’s disease. Not only did I get diagnosed but found out I have a severe case. It attacked my nervous system. It attacked my vascular system, and my circulatory system. I was projected to never walk again without assistance, if at all. Somehow I was walking with a walker 4 days after I woke up from the coma. I was walking short distances without it two weeks after getting out of the hospital. I heal incredibly fast for having an autoimmune disorder. I was afraid my husband would leave me, too, as I had a temporary ileostomy (recently reversed) and I couldn’t even use a pen without him holding my hand. I still have issues to this day, though. It damaged my bones and teeth. I’m getting a bunch of preventative dental work next week. I have no ability to fight off bacterial infections without antibiotics. I’d often have symptoms of strep or a sinus infection for one or two days, and then be fine. Not now. A sinus infection sent me to the hospital and ate through my skin, to a nerve in my tooth, because I waited two days to see a doctor (it was the weekend). I’ll be getting surgery to repair that soon. I’m always in pain, but I was in pain before. It’s worse now sometimes, but different. I still have trouble with my hands deciding not to work sometimes. It sucks because I’m a hair stylist and make up artist used to doing extreme and glam looks for weddings, events, performance art, and photo shoots. My legs work but they hurt often. Just out of nowhere. I was extremely athletic before this. I also have a scar the length of my abdomen, and several smaller scars from drains and other procedures. I know it often takes about two years to fully heal from sepsis, but we don’t know what that will look like. I was the worst case the emergency surgery team had seen. I was septic for almost 3 days, and bowel related sepsis progresses fast. However I was one of the most rapidly recovering patients they have seen. I had more than exceeded expectations one month after my 4th surgery, so nobody really knows what to expect. Today I walked about half a mile. I’m in a lot of pain from it but I did it somehow. It’s sad to me that that’s an accomplishment but it’s a relief I am able to walk. My husband stayed with me. He never even considered leaving. He is a type 1 brittle diabetic and I’ve saved his like a few times as well. Not like this though. I’m so proud of this woman for her fight. I’m glad she is adjusting. Don’t think for a second she doesn’t have hard days where she hates that this happened. Tv never shows those days, but she is still fighting through those. I’m so glad she is raising awareness. I had heard the term but I thought it was what happened when you got bit by a brown recluse (though I guess it could happen with that? I thought it was the reaction though).

    • @triestastone6766
      @triestastone6766 22 дні тому

      I'm a master cosmetologist I tore my bicep 3 shoulder surgeries later, I thought I had stomach flu. When I was delivered to ER my liver and kidneys were shut down. I got antibiotics 8 days in, I will never be who I was. I was told nothing, just I lived it's a miracle. However, dealing with everything PSS left me with the depression is unbearable at times

  • @angieroebuck5159
    @angieroebuck5159 5 років тому +7

    The first time my temp was 104. Went to er they sent me to the side where I saw nurse practitioner..she wanted to admit me but they didnt listen to her...she did blood cultures and called me the next morning for me to get to er..

  • @delightsaddict3240
    @delightsaddict3240 Рік тому +3

    I recently get recover from a severe sepsis, and i ve never Heard of it before, it was a nightmare i though i was dying we should also talk about psychological effect of the sepsis for me it was a real trauma its been 25dzys that i get out from hospital but i still having nightmares and panic attack when i remember these days

    • @jaystull5515
      @jaystull5515 Рік тому +1

      Before this, my wife never wanted the TV on in bed, at all. It took over 7 years before she was comfortable not having the TV on at night, until all hours of the morning (I'm talking 3, 4, 5 AM). The psychological effects can be very traumatizing. There is so much they (doctors/medical community) don't tell you about sepsis, it's frustrating to say the least. When my wife was discharged from the hospital, the attending physician couldn't tell us what to expect because he never had someone as sick survive.

    • @triestastone6766
      @triestastone6766 22 дні тому

      I was a serve case as I thought I had stomach flu I'm 8 years out still have night terrors insomnia ptsd depression anxiety I'm in pain my organs are shot however the emotional toll continues to drag me down

    • @triestastone6766
      @triestastone6766 22 дні тому

      ​@@jaystull5515amazing that's what they still say to me. We don't know I was supposed to die.

  • @user-ek7uq4vu6f
    @user-ek7uq4vu6f 2 дні тому

    God bless you

  • @triestastone6766
    @triestastone6766 22 дні тому

    I feel the same w my limbs you're a hero ❤️ 😢 🫂 🤗 👐 🙏

  • @harrisgriffith1556
    @harrisgriffith1556 5 років тому +5

    Septic shock survivor 2018, such a scary disease.

    • @muchlove9781
      @muchlove9781 5 років тому +1

      What’s the aftermath? I’m worry for my sis. She in hospital right now. She’s been diagnosed with this decease

    • @ashleysnyder1167
      @ashleysnyder1167 3 роки тому

      Glad you are still here. Prayers!

    • @triestastone6766
      @triestastone6766 22 дні тому

      2016 life-changing horror

    • @triestastone6766
      @triestastone6766 22 дні тому

      ​@@muchlove9781my outcome is I will never be the same they said I would die tht was 8 years ago. However I was septic 8 days before intervention. Every case is different emotional support is needed more than anything

  • @jeffsanders9787
    @jeffsanders9787 5 років тому +5

    My 47 yr old brother passed on October 12 2018 from sepsis. He went to 2 doctors who said he had the flu

    • @Jay-li2pr
      @Jay-li2pr 5 років тому +4

      Has your family pursued legal action? Please feel free to contact me at www.suestull-sepsis.org. Two doctors should not have dismissed his symptoms as merely the flu. BTW, this is my wife and me in this video.

    • @deborahkyllo9626
      @deborahkyllo9626 3 роки тому +1

      My condolences. My sister also passed from sepsis March of 2019. She was also being treated for the flu.😢

    • @triestastone6766
      @triestastone6766 22 дні тому

      I was 47 so sorry for your loss

    • @triestastone6766
      @triestastone6766 22 дні тому

      ​@@Jay-li2prwow you are amazing
      I was failed because for 3 days in icu after 5 at home organs shut down before I arrived I hv all my limbs however I'm not here not all of me. So hard because noone understands you are the definition of a man your wife is blessed

  • @victorjohntupaz2147
    @victorjohntupaz2147 5 років тому +3

    I never heard of sepsis, even the doctors here didn't mentioned it. My grandma can't eat or drink.
    She rushed into hospital because of (abdominal pain) bowel obstruction. 1st Exploratory Laparotomy operation they just removed what's inside of the intestines. 13th day after operation her stomach grows again like a pregnant. They repeat the Exploratory Laparotomy for the 2nd time. This time they put 2 eggs-like drainage w/ a tube from below waist line (left & right) and anesthesia pad at her back. From April 9, I noticed the symptoms like low urine output, breathing problems, fast heart beats & high temperature. The doctors mentioned only UTI. They didn't educate us about sepsis and how dangerous it is. Until Sunday morning, April 14, 2019. There are some poop from the surgery wound and from the drainage. The doctors didn't act to prevent the situation from getting worse (like bringing her to ICU).
    Instead, they are more focused on our hospital bills that is already more than 1 Million pesos. They transferred her to a public hospital. The emergency case remains untreated for 8 hours!!! 2 AM the Exploratory Laparotomy repeated for the 3rd time. 10:09 AM April 15 she passed away that broke our hearts because I think she can survive sepsis if diagnosed & treated earlier. 💔💔💔💔

  • @Livinglife57
    @Livinglife57 8 днів тому

    Thèse really frightens me

  • @dianakate5808
    @dianakate5808 3 роки тому +1

    I was at home for two days with a broken phone. I took my dogs antibiotics and gave myself solumedrol with a blunt needle.

  • @kimbauman3733
    @kimbauman3733 Рік тому +2

    My dad had open heart surgery 16 yrs ago and got septic in the bowels and died

  • @sdyanne5415
    @sdyanne5415 Рік тому +1

    My mother died from this as well. They did not find this out in time She went into a coma just after 14 hours after becoming sick with a fever of 104 and while in the hospital for 6 days,. She ended up having around 8 strokes and 3 heart attacks befoe succumbing to death.

    • @jaystull5515
      @jaystull5515 Рік тому

      Virtually everyone who dies of sepsis is because of cardiac arrest (heart attack). The reason being is the body is so weak, blood pressure drops, so the heart has to work overtime to ty and pump blood. Inevitably, the heart gives out. Just curious, did your mother's death certificate anything about sepsis or was it cardiac arrest? Sorry to hear about your mother.

  • @Angel-tv5lq
    @Angel-tv5lq 4 роки тому +6

    I’ve now had it 7 times and twice were severe sepsis, renal failure double pneumonia went in to sceptic shock and had two separate life saving Ops in which I cudnt be put under general as I wouldn’t survive so I was awake with morphine as a pain relief which they knew didn’t work. I was in the most unbelievable pain as they cut in to my neck and cut away infected tissue while I was awake. I nearly lost my life and lost my job because of this.
    There are no two ppl who get the same symptoms - the only similarities are the sore throat - my advice is to put a heat pack on as that’s what drew out the poison or whatever it was.
    I have pre-existing health problems which cause me chronic yet sometimes acute pain...I have Ehlers - Danlos Syndrome (a combo of type 2 and type 3) SLE, Fibromyalgia, I already have low blood pressure etc so what the woman in this video is describing - I already suffer the excruciating pain and now, due to the sepsis, I have osteoarthritis and instead of my extremities (hands/feet) going gangrene it went in to my brain causing necrosis in some of my brain cells and due to that I now have a learning disability and despite having an Honors Degree in Law ive been unable to read a book since then. I wasn’t given a % of survival....I was just told that I could die any minute. I wasn’t fed or given fluids for 3 days as typically a sepsis patient passes on the 3rd day. I went in at 11stone 3oz and came out looking like a lollipop on legs at 9stone 8oz which I haven’t seen since I was about 16yrs.
    I now suffer from Sepsis Survivor Disorder, I cry over nothing, I’m down all the time, it feels like I’m locked in my own little world. I also have Severe PTSD but no one can help. My life is literally a misery with very little quality of life. I’m always checking my temp as too low or too high can both be indicative of sepsis and do not mistake Septicaemia for Sepsis - they’re not the same. Sepsis is definitely a killer.
    I can’t lie and say it’s made me want to go out and make a difference....we’ll it has made me want to make the most of each day but with all the health issues I’ve got it’s not possible for me and sepsis does mimic other illnesses/conditions so I wouldn’t know if it was creeping up on me again. All I know is that I’ve little to no quality of life but someone must be watching over me so I try to make the most of each day....
    Even if it’s just going live and trying to help others because there’s little more I can do 🤷‍♀️🥺

    • @myyoutubechannel3161
      @myyoutubechannel3161 2 роки тому

      Your a survivor 💪 your very strong women..
      What were your symptoms of sepsis.. ?

    • @susanschroeder3512
      @susanschroeder3512 Рік тому

      You are WONDERFUL. Best Wishes!!

    • @Ikr2025
      @Ikr2025 3 місяці тому

      Sorry to hear that. I suspect I have EDS as well, with low blood pressure. People with EDS seem more susceptible to many issues.

  • @jcaleca60
    @jcaleca60 3 роки тому +2

    One of the doctors on the fire department told me and medical school they say get the patient out of the hospital is a lot of diseases easy to get septice and then go into septic shock my dad got it from the hospital but they will never admit it

    • @myyoutubechannel3161
      @myyoutubechannel3161 2 роки тому

      How could one get it from hospital stay ?

    • @jaystull5515
      @jaystull5515 9 місяців тому

      @@myyoutubechannel3161 They actually have a term for it, HAIs...hospital acquired infections. Any infection can cause someone to go septic and the hospital is ripe with bacteria, etc.

  • @Ikr2025
    @Ikr2025 3 місяці тому +1

    ‘Some patients even suffer from post traumatic stress disorder’.
    *Ya think?!* I would be more surprised if they didn’t.

  • @angieroebuck5159
    @angieroebuck5159 5 років тому

    I have had sepsis 2 times

  • @doctauglyd9861
    @doctauglyd9861 Рік тому

    I had ahit chillin in my gut for like a qeek I was alright kinda

  • @janeheseltine5722
    @janeheseltine5722 Рік тому

    I had covid at Christmas I had a water infection and my lungs hurt so I was given antibiotics the lung infection cleared up early February I had a blood test done for my blood pressure meds. They sent me to pharmacy a couldn't give a water sample as I'm incontinant they told me to go back to doctor couldn't get an appointment so rang for advice. They gave me an appointment at hospital next day I felt bad my body hurt my kidney hurt and I'd been having intermittent low tummy pain.they gave me antibiotics last night I was hot then later I was shivering badly couldn't get warm. Today 3 pills in.i hurt all over and feel sticky should I get back in touch with gp?.I'm scared iv never felt so poorly

  • @candlesbyalexandria
    @candlesbyalexandria 3 роки тому +1

    2016 Septic shock survivor

  • @tammybushnell6920
    @tammybushnell6920 3 роки тому +2

    Should patients get hyperbaric treatment, too????

    • @Jay-li2pr
      @Jay-li2pr 3 роки тому +2

      Most hospitals don't have hyperbaric chambers so that probably won't be an option. I asked about that early on but Sue was too critical to transport to a hospital with a hyperbaric chamber. If the hospital has one, it may be beneficial but there aren't any studies to my knowledge that show a direct correlation with hyperbaric treatment and improved sepsis outcomes

  • @tomgenner221
    @tomgenner221 6 років тому +3

    My older just died of Sepsis in Washington State 2 weeks ago.

    • @monicasmith1675
      @monicasmith1675 5 років тому +1

      Tom, my sincere condolences.

    • @cheryleking3015
      @cheryleking3015 5 років тому

      how can you get rid of it???? A friend tells me I will never get rid it until i get a compound of vancomyiecine(?) spelling? However no one will make it for me! I have
      tried 2 prescriptions (pills) they didn't even phase it. HELP!
      Cheryle

    • @Jay-li2pr
      @Jay-li2pr 5 років тому +1

      @@cheryleking3015 I think you're being given some erroneous information. Please feel free to contact me at www.suestull-sepsis.org and I will try to answer your questions. BTW, this is my wife and me in this video. Best wishes

    • @deborahkyllo9626
      @deborahkyllo9626 3 роки тому

      My condolences. My sister also passed from sepsis about 2 years ago.

    • @ellebrenda7867
      @ellebrenda7867 3 роки тому

      ❤️

  • @tommymai3062
    @tommymai3062 6 років тому +1

    Having the flu over the week lead me here.

  • @allgirrrlrider5395
    @allgirrrlrider5395 5 років тому

    I know 2 people who had sepsis and 1 is dead. My uncle - they took his legs off but he died anyway.

  • @kathleenburns
    @kathleenburns 6 років тому +1

    But will people listen

  • @marilynjewell9337
    @marilynjewell9337 2 місяці тому +1

    I survived

    • @sepsisalliance
      @sepsisalliance  2 місяці тому +1

      If you are interested in connecting with other sepsis survivors and finding more information on sepsis, please visit: www.sepsis.org/sepsis-alliance-resources/.

    • @triestastone6766
      @triestastone6766 22 дні тому

      I survived its just not my life

    • @triestastone6766
      @triestastone6766 22 дні тому

      ​@@sepsisallianceawesome information here wo the organization in UK I honestly think I would have lost my mind the 1st few years

  • @theresageiger584
    @theresageiger584 3 роки тому +2

    Slurring words

  • @jcaleca60
    @jcaleca60 3 роки тому +2

    My father war hero two purple hearts Bronze Star Oak Leaf cluster he had cancer from the war Merkel cell he had heart trouble what killed him septic shock by the time the doctors figured it out it was too late okay he was in the seventies but they should take a more aggressive approach I work for New York City Fire I asked the paramedics and the doctors no urine output high heart rate blood pressure dropping they said septic shock the death certificate says natural causes needless to say you had a good military burial

    • @jaystull5515
      @jaystull5515 Рік тому

      Doctors refuse to us e the S word...I don't understand it, but the death certificate should have had sepsis on it. This happens all the time which is why no one knows about sepsis. The 3 symptoms you mentioned Sue presented at the first ER visit and the doctor did nothing! Sorry to hear about your father...a true Warrior

  • @vesseli123
    @vesseli123 9 місяців тому

    Antioxidants is a common missing link ref: Dr Thomas E. Levy.

  • @jcaleca60
    @jcaleca60 3 роки тому

    A friend of mine's mother had breast cancer they took her home she lived longer my doctor friend said and medical school they say get the patient out of the hospital before we killed them

    • @Jay-li2pr
      @Jay-li2pr 3 роки тому +1

      Approximately 8.5%-10%of cancer patients actually die from sepsis

  • @Plaksa2004
    @Plaksa2004 Рік тому

    so why not to treat anything serious as sepsis? If it is very common and hard to treat, why not to assume the worse?

    • @jaystull5515
      @jaystull5515 Рік тому

      The Million Dollar Question! Far too many ER doctors don't have sepsis anywhere on their diagnosis checklist and just skim over people's symptoms. We had a HORRIBLE ER doctor who tested for strep and when that was negative (which I told him it would be) he said Sue had a virus. He FAILED to consider her low blood pressure, high heart rate, excruciating pain (she said it felt like a Mack truck had run over her), low urine output, dehydration and fevers over the previous 24 hours. I had no clue about sepsis and no medical background, so we believed what he said. This is why we did the video to try and educate others because the government, medical community and media refuses to do so. Also, sepsis is a cash cow for the hospitals as sepsis accounts for $27 BILLION in the ICUs...considering 18.6% of US hospitals (as of a few years ago so it may have changed) are for-profit hospitals and they have no incentive to diagnose and treat sepsis in a timely manner. Money talks

  • @yvonaamariaa
    @yvonaamariaa 3 роки тому +1

    I’m confused. Why keep the limbs at all after they start to turn black??? Wouldn’t they make the infection worse or at the very least keep it around longer. I would think it best to get those infectious limbs out of the patients body!!

    • @Jay-li2pr
      @Jay-li2pr 3 роки тому +3

      The doctors wanted to wait to see if the limbs, or a portion of the limbs, could be saved. Also, we had to delay the amputations until Sue was strong enough to survive the surgeries. Her kidneys, lungs and liver had all failed and she had a heart attack, so her body was extremely weak. We kept a close eye on her white blood cell count as her limbs making the infection worse was a definite concern.

  • @johnkimball5872
    @johnkimball5872 2 роки тому

    The hospital sent me home to die from sepsis because doctors cant find the bacteria causing it.

  • @alkavidapr7143
    @alkavidapr7143 Рік тому

    Alkaline structure silver can make a big diference fighting the infection in any sepsis case. People just do not know about it

  • @theresageiger584
    @theresageiger584 3 роки тому +1

    Drs don't help me

    • @johnkimball5872
      @johnkimball5872 2 роки тому

      I am dying from sepsis because doctors cant find the bacteria that is causing my sepsis. Are you still alive?

    • @myyoutubechannel3161
      @myyoutubechannel3161 2 роки тому

      @@johnkimball5872 hope your doing somewhat better

  • @vanities9484
    @vanities9484 Рік тому +2

    Exodus 15:26
    And said, If thou wilt diligently hearken to the voice of the Lord thy God, and wilt do that which is right in his sight, and wilt give ear to his commandments, and keep all his statutes, I will put none of these diseases upon thee, which I have brought upon the Egyptians: for I am the Lord that healeth thee.

    • @Jay-li2pr
      @Jay-li2pr Рік тому

      You're really some kind of special, aren't you? You know absolutely nothing about us, but you have the audacity to make assumptions. How Christian of you

    • @patriciaroysdon9540
      @patriciaroysdon9540 День тому

      That is a really cruel blame game to put on any sick person. You really have some nerve quoting Bible blame here.

  • @dyno43k
    @dyno43k Рік тому

    So in this case the septicemia was caused by the inflamed throat. Many times, us Eastern Europeans get a sore throat if we drink a lot of cold water with ice or eat a lot of ice cream and the sore throat leads to infection and the untreated infection leads to other medical problems. And you Americans should give up the habit of drinking all kinds of drinks with ice given the fact that you have a lot of cases of septicemia.

    • @jaystull5515
      @jaystull5515 Рік тому

      This had absolutely nothing to do with drinking cold drinks, eating ice, or an inflamed throat. One of the symptoms was a sore throat, but other symptoms included chills, fever, and total body pain. On the first ER visit, my wife rated the pain a 9 out of 10, had a high heart rate, low blood pressure, plus the other symptoms previously identified (she was afebrile at the ER but had a temp of 102.1 within the previous 24 hrs). The 2nd ER visit they started antibiotics before drawing a blood culture, so they were NEVER able to determine the cause of the infection. Please don't speculate on something you know absolutely nothing about

  • @Soft7y
    @Soft7y 2 роки тому +3

    Be informative but stop with the fear mongering heart beat noise in the background for fucks sake

    • @Jay-li2pr
      @Jay-li2pr 2 роки тому

      Fear mongering? Get a clue for fuck's sake!