A patient's experience with ulcerative colitis.
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- Опубліковано 21 вер 2024
- Lauren talks about her experience with ulcerative colitis and the treatment and support she received from the pediatric team at Swedish Medical Center. For more information, call 206-215-6005 or visit www.swedish.org....
Diagnosed with it on 1988 at the age of 15, I can still remember the last meal I had before I went to the bathroom and felt the first cramps and blood drip into the toilet(hate to be graphic). It was scary and painful, I thought I had cancer which continued the flare up. It was brought to a gastroenterologist who scoped me without anesthesia, yeah, even though it wasn’t deep, it hurt like hell. I was put on sulfur drugs and folic acid, the sulfur drugs ballooned me up and so I stopped taking them with a warning from my doctor “would you like a trip to the ER?” He was right, fall of 1989, my senior year of high school I had a major flare up, for the first time I was admitted to the hospital where I spent a few days. Whew I thought, I got out of that, but I still didn’t want to take the meds for what they were doing to me and I would pay dearly for it the following fall. That fall (1990) I was a freshman in college sitting in English literature class when I had a huge cramp out of nowhere, it felt like someone stabbed me, I ran to the bathroom and barely made it, what I went through in that bathroom stall I won’t ever forget, the intense pain and the amount of blood that came out dwarfed anything I had experienced up to that point. I immediately grabbed by things and drove home, I decided to take a few days off and take my meds in the hopes I wouldn’t miss too much time, but it was too late, the pain and bleeding got worse and I knew something had drastically changed for the worst. It became so bad that at 18 I drove myself to the hospital and checked myself in, I would spend the next 2-3 months in the hospital going through what I can only describe as hell. Back then they did not treat pain like they do now, for pain all I got was Tylenol, Motrin or Maylox, so I tossed and turned as my body deteriorated from the disease, everything from going from 5’7” and 155 to 126lbs, to being jabbed so many times I had no more veins left abs required them to insert a device into my jugular vein to give me meds, to two blood transfusions and finally and thankfully surgery. But even surgery couldn’t go well for me, I was sent home only to have scar tissue block the intestine making it impossible for me to go and distending my stomach like a balloon. So back to the OR I went to fix the issue only to have an infection happen because an arrogant SOB of a resident doctor forced an NG tube down my nose which forced me to gag and pulled on my staples causing the infection from the trauma.
I had 5 surgeries in 10 months, the last one was to reverse the bag I had to wear. Because of this I went on to throw myself into health and fitness competing and eventually running and owning my own personal training business which I operate to this day. I don’t wish this horrible disease on anyone, it’s very painful, debilitating and for an 18 kid embarrassing. The only thing I am thankful for is the fact the technology existed, had it not I’d be dead.
If you know anyone suffering with this disease, reach out to them and thank the powers that be that you are healthy.
God Bless.
Thank you
I was just diagnosed. I'm 49 yr old female, and homeless. It is by far the most pain I've ever experienced!!
Homeless because with my medical history, I have other issues as well. Sma syndrome. I haven't been able to even work a real job in years!
I am 22 years old and I just got diagnosed with Ulcerative colitis, this video really helps thank you !
Those drugs will end up hurting you worse. Learn what your supposed to be eating and drinking your body doesn't need toxic drugs
ua-cam.com/video/MYKdLeL3SGo/v-deo.html
I'm 23 and just was diagnosed
Are you ok now
I was 15 when i was diagnosed with ulcerative colitis and now i have turned 18 and the years which passed have different stories good and bad with change in time and even after treatment from a well-known gastroenterologist the result is just that symptoms stop or become less but it is chronic at the end. Just i learnt from my life till now that keep going and see yourself among those luckiest who has something better than nothing and there are more bigger problems than your disease in the society which are to be cured..
So I'm on my way to become general surgeon so that i can study the disease and try to do my best to cure uc completely and other diseases !!
Health is wealth at last 😇♥️
Did you have black blood bro?
@@dapinderkumar4601 black stool means blood in ur stool...its not common ..if u have it..get urself checked.
Bilkul Sahi bola bhai mujhe bhi iss disease ka cure karna hain
@@AkShAyVlOgS0727brother plz give me your instagram id
I’m only 11 and just started suffering I can’t do anything right now my friends are at school and I’m in bed unable to move . She is truly blessed and I hope! My recovery will surprise me soon
Ate radish
I got diagnosed when I was 11 to I'm turning 12 I can relate everything you said
Trindy_vlogs I hope your healed I’m an unlucky one all the medicines don’t work for me😭
@@SaraRodriguez-lw1th I'm actually in the hospital right now :( but the medicine does work for me but they want to remove my colon
I’m 11 and I have colitis also I’m in the bathroom. I do this almost every night.
I am now suffering from this. Took the doctors 5 days to find out what's wrong with me. And now I feel like I have my life on hold, trying to look in the positive.
Currently Im suffering from Colitis. Been in the hospital for a entire before the doctors diagnose me with Colitis. I've never been so sick in my life. I'm changing my eating habits for life and bring proactive myself. Im going to push my primary physician to stay on top of things. Not sure if Im going to be on medication however food will play a big part in our healing process. I hope you feel better.
@@robintrammell4165 thank you! My sister has been a big support for me. She keeps pushing me to workout and eating the food my body is okay with. Makes me feel like I'm not alone. I am currently on medications (5). 😔
Took my doctor 1 year to figure out when I kept telling her my stomach is upset and I’m constantly tired. She had the nerve to blame it on stress as my mom was going through breast cancer treatments. Not until i started getting blood in my stool and I demanded for her to take it seriously did my doctor send me to get a colonoscopy. Just yesterday I found out I had colitis.
Stay strong! Just knowing you are still alive should be a blessing:) good luck!
Same but it took the doctor 2 years to kind it out
I live in England I was diagnosed within 3 days of my symptoms.
I was diagnosed quickly when I was 5 years old. Over the years I have been to 5 doctors and 10 colonoscopy’s. I have been on several medications and suffered greatly and missed out on a lot of things in life. When I was 16 I went to a doctor in Lexington and was put on a new medication called Entocort. I took that until I was 19 when my UC progressed into severe UC. I was then put in Remicade and immediately my symptoms stopped and have been in remission for 8 years now with only a few minor flares since. I’m now enjoying living life.
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
My daughter got diagnosed when she was 16 with a severe case of ulcerative colitis...its 2yrs now and she does intravenous treatment every 6 to 8 weeks and the medication is called Renflexis and she's doing awesome. Its sad that it happened at a very young age but she's doing great ❤
My husband was diagnosed with ulcerative colitis last year at 36. Its definitely changed alot of things for the both of us. He is starting entyvio next month and I pray that it helps him.
Reach out to Dr folonsho, he can help your cousin, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease,I can only imagine what he/she is going through
drflonsho@gmail.com that's his email, hope this helps you
Hello! First of all, i understand what your husband has to put up with. I am within a year in age of your husband and was diagnosed at 33. I am curious if the medicine helped him? I currently take Sulfasalazine.
Entyvio has helped me tremendously!!! Now living a normal life taking entyvio every 8 weeks. Good luck
I have this disease and a lot of people are effected in a different way but I started to gain weight after they put me on steroids to contain the disease and I some times have really bad pains but I have learned to cope and live with this and to stay positive
Oh steroids never help they just worsen your condition... Steroids are the enemy of all intestinal problems.. the only thing that helps in the end it's cutting out foods that aggravate inflammation. I had to go on a carnivore diet and eat minced meat and bone broth only. .. helped a lotttt
The store was okay but they did not give us the other drug that she had used to help with this disease I have this disease to only thing she said was a maintenance truck that's not very helpful
@@avajames103yes sir
I take smoothies a lot then a couple of easy meals
I'm finally in remission! :)
BRO how much time take to go in to remission.... And which medicines you use???
Heyyy a fellow army with ibd!
@jessica powers Jessica please contact me on Facebook my name is Yousef alzwain
It’s shocking how many people get diagnosed with this condition I was 2 years old when I was diagnosed I’m now 18
I have it too ! So I know how you feel ! On my third med.Uceris
I lost my Mom to uc. I miss her so much.
Our deepest condolences, Grace, on the loss of your mother.
I almost died my doctor saved my life no meds worked I had my colon removed I was lucky I had it reversed. You're very lucky
Chesapeake Area Paranormal how did u reversed it bro pls tell me bro
Same here. shits wild yo
Reversed? Plz explain
I went 2 weeks straight in a hospital. They gave me Asacol intravenous 800mg for almost 2 weeks.
How though? Theres no way
UC is horrible and takes a lot of the youth out of people lives. I have been diagnosed with UC for 16 years now. I was able to be drug free for 7 years after getting it under control and changing my diet. Then I had a flare up and can't get rid of it with diet and medication. Hoping my 6th drug will be the charm lol. So far only Prednisone tapers have been able to stifle my symptoms enough for me to go hiking and travel. To everyone out there struggling with UC, keep up the fight, there are others like you. It is hard to go on with daily life (if you even can), but there are solutions that work.
R u ok now?
@@tolemchang7403 even after a few rounds of different biologics, had to have a full colectomy, but better now. Very few need surgery with the biologics now a days, so hoping everyone else is doing well.
@@vaderwashere365 can medicine cure uc?
@@tolemchang7403 not cure yet, but can treat it. UC can go into remission as well.
@@vaderwashere365 in my biopsy report it say chronic colitis so what it means because I didn't have diarrhea?
I am so tired of being sick but I dont want to take medication I'm so confused but I feel like I'm dying slow.
Stay strong.... Your not alone.
Lots of us out there suffering..
Best of luck to you.
e09231986 don’t give up! I have colitis and pushing forward.
Same here.
It may not last, my friend had it at the age of 17, she was really sick and her mum kept taking her to the GP who said there is nothing wrong with her she is taking drugs. She wasn’t taking drugs. I know she wasn’t. Nothing happened to treat her, she thought she had cancer due to the unpleasant symptoms she had, i the end the GP said have you seen the symptoms? Her mum had to look in the toilet and nearly threw up. She took my friend back to the GP and she was referred to the hospital more or less straight away. The consultant took one look at her and she was admitted straight away and was put on in a very high dose of steroidsshe spent 3 months in the hospital before being released but continued to have tests and being readmitted. Now about 30 years later she has IBS but thankfully no signs of the colitis. Unfortunately the damage has been done and she may die early because of this. Moral of the story is, we should be able to trust our GPs but we can’t due to their financial restraints so if you are convinced something is wrong especially with your kids who you should know better than anyone do not give up on pursuing their best interests. Ending does anyone know of the statistics of children that the local GP has said, he she had just a virus and it turns out they have meningitis.
I pray you get healthy soon. And have the option of getting life saving surgery if all medications fail.
Just got out of a week in the hospital with this. Worst pain in the world! I was near death. Waiting on results from biopsy. edg and colonoscopy and I am so worried
I'm also a UC patient. Im in remession now. Allhamdulillah.. i lost Alot of weight. The only thing is people can't understand UC patients, some make fun of my weight..but its ok...
May Allah s.w.t. make it easy for you brother! if Allah loves a person, he tests them. The bigger the tests, the bigger the rewards & blessings. 🌷
@@helenibrahim3924 Indeed🌺
I feel for you all. I have acute colitis since friday, 102 fever, stomach cramps when i eat, crazy diarrea, body pains, ugh horrible. Been on antibiotics since saturday and starting to feel alittle better. What a plague though
Reach out to Dr folonsho, he can help your cousin, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease,I can only imagine what he/she is going through
drflonsho@gmail.com that's his email, hope this helps you
A person who take last food before sunset and take only water after sunset, will help to relief from UC.
Really??
Shut up
Intermittent fasting really does help. It gives your GI track a break.not a cure by any means, but it is helpful!
@@kamalbhandari5059 do you have any issue?
@@toddm6999 what do you mean dear friend
I got diagnosed when I was nine
I’m 11 and I was told at first I had noro virus. I had bloody diarrhea also. I had vomiting and fever. I stayed in the hospital on Christmas and over 😭 they can’t figure out if I had colitis chrones or just a virus?? From hearing what she had and I had the same thing. I’m pretty sure I have colitis. Stomach pains hurt so much 😰
sAd vibes I have and they didn’t see anything
sAd vibes yep they did everything they even tested my pee. They put me on a medicine that helps ibs but they found nothing. I’ve done x rays, scopes, catscans, stool testing, they looked at my puke, they did everything they can. Some test they want me to do that’s very expensive, but nothing at all. They gave me a counselor because stress makes it worse, I talked to gi doctors. And I talked to specialist. Nothing at all. I’m only 11 and I don’t deserve this.
Has anybody been able to manage ulcerative colitis and keep it under control without surgery or doctors treatment? My insurance won't cover most of the expensive treatments.
I have suffered from UC for 15 years 😂😂😂 but thanks God I am very good now because I know how I can deal with it 👍 ...
You from where which country?
How? Can you explain?
Share it pls
How??
@@bowandarrow3794
Eating healthy food, smoking, no drink soft drink and alcohol, walking every day 2 hours,
@@adelkhalaf8000 wat is healthy food
I had it at 13 diagnosed at 17 and now coming up on my 10 year anniversary for having the disease
Reach out to Dr folonsho, he can help your cousin, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease,I can only imagine what he/she is going through
drflonsho@gmail.com that's his email, hope this helps you
I was diagnosed in March 2017 and had my colon removed in 2019. This disease is horrible. Please if you know someone who has this help them with their daily routine. People with UC are soo malnourished and in constant fear of abdominal stabbing pain.
Hi, because you’ve had your colon removed do you have to have a bag now? What your poop gos in? I’m worried as I’ve got UC. Thanks 😊
@@blessed4894 Hi.. I had a bag for like 10 months or so.. and had 3 step surgery to get a jpouch created. The jpouch isn't perfect but it gave me my life back... the poop bag isn't that bad.. is just a bit inconvenient with certain activities (sex, working out, bending over.. etc etc) if you get a bag buy a stealth belt. Super helpful to hold up bag:)
During UC what helped me was the following
- boiled white rice
- ripped bananas in smoothies
- Raw Milk (some people report success)
- Kratom (red vein) helps with retaining stool and for pain
- Marijuana.. edible or smoking
- Also I prayed a ton... unfortunately I still lost my colon but my younger brother literally prayed his UC away... crazy.. I know. So UC may also be an underlying disease due to some emotional stress. Coped up anger may aggravate it... take up things that help you release stress. Working out, deep breathing, and various affirmations. Hot tubes help or hot pads.
- for awhile I ate fresh lettuce.. the pieces with the most water, olives and some cucumbers.
- I wish I knew that chewing is crucial for healing.. chew your food up to 60 times to let your colon not be stressed and it helps your body absorb the nutrients better.
- dont eat 3 hours before bed
- Avoid cheese, meat and ANY fast food (I was destroyed by it), nothing fried
- POP chips are lovely:)
- Mash potatoes
- Breast chicken
- Vegan protein powders you can make smoothies with cacao, bananas and prebiotics
- powder or pill form prebiotics and probiotics (avoid yogurt)
-rice milk is good alternative
I hope this helps. And may God bless you and heal you 🙃🙏.. don't let this make you sad and stay positive. :) if you want anymore information PLEASE feel free to reach out again. 🙃
I got diagnosed with this last night. I thought it was endometriosis. It hurts so fucking bad.
How are u now
Ulcerative Colitis is a serious problem. One of my friends facing this from the last 3 years. He is tried lots of medicines but no effects and no relaxation but after Planet Ayurveda Ulcerative Colitis care pack. Now he is feeling well & also he can overcome
Is that pills?
This is beautiful for the rich. Now just imagine having this disease as a poor person in Brooklyn.
Can anyone please tell me what are the major symptoms of UC or crohns diesease...please..
Hello. We would recommend contacting your care provider to inquire further about specific symptoms and concerns.
@@providenceswedish i ve gone through multippe tests...im fed up of it...i feel like giving up...its has cost me alot money and time yet no diagnosis...endoscopy.. CT whole ABDOMEN, lipid profile, CBC, RFT, LFT, blood glucose, ultrasound what should i do now..i ve spent alot of money and time..im suffering from it feeling helpless....i ve literally been to top 2 doctors of my state..
Makes me scared all these comments. I just was diagnosed with this and Crohn's disease.
@sAd vibes it's called Balsalazide I take 750mg for the pain and take it 3 times a day. I'm only 21. They are upping my dosage in a few months.
@sAd vibes no I haven't tried that, and surprising they have you on Prednisone, I took that for chest congestion and bronchitis... And yeah I'm not sure what your pain levels were but took a few days for them to figure out what it was, but I had some pretty bad pain that kept me outta work for almost 2 weeks and these meds work, especially the dosage. Also I had to get a colonoscopy, cat scan, and blood drawn, how about you? I've been diagnosed about 2 months now. Just now getting side effects, dry skin, random nose bleeds. That's all so far. Still get diaherea and shit but that's it.
@sAd vibes I come and go with the bronchitis, usually get it in the winter, but yes diagnosed recently for just the Crohn's and ulcerative. And I know it, it sure does make an impact. Without the meds I have right now and how high the dosage is it has been helping for sure.
@sAd vibes same to you buddy, take her easy for sure. Really have to watch what you eat and drink now for sure. And definitely should talk to your doctor on getting off Prednisone. I know how it is. Take care buddy.
What causes this ?
It is not completely understood. Probably a mix of genetics and invironmental factors.
@@Tommy_007 OK , Thanks
I lost ALOT of weight
chlojoecorn gamez me too and NOT in a good way
@jessica powers My sister has U.Colitis. What type of herbs did u use?
I am with UC for 17 years . I know how I do control to UC .
Pls help me 8527529010
Please tell me how you handle
@@deeparajasekar8806
To handle, you must avoid eating red meat 🥩, and eating healthy food , drinking a lot of water regularly, walking 🚶♀️ 1 hour daily, no stress too much, and then take a medication for it is it Rameciad, see your doctor if it is possible to you . Good luck 🤞
I was diagnosed in March of 2017! I hated this!!
I have it
No big deal
Get on smoothies and probiotics
Easy street
Stay away from
Coffee
Popcorn
Red meat
Eating out
Fried food
Sodas
A very person is different.
My Nephew had ulcerative colitis since 2015 and he is taking ayurvedic medicine from planet ayurveda and now his symptoms are reducing and he is alright.
what ayurvedic medicine is he using?
When I was 3
I am 20 yrs and I am from india UC is enter in my life Dec. 2019 when this disease come in my life I don't know what to do I have many doctor sometime I feel better but nowadays I am in my worst situation i go Washroom like 9-10 time in a. Day my weight is loss much in india their is doctor to se me because their is covid cases is increasing so anyone help me to contact any doctor they removed my Ulcerative coloities disease in my life....
God bless you Doctor Salami On UA-cam for curing me from my chronic illness I never believe there was a cure I am indeed very grateful. Hit him up if you suffer from Incurable Disease.
Foreign people always expert in lecturing
My niece had ulcerative colitis since 2017. She refused to take allopathic medications then she heard about planet ayurveda and taking ayurvedic medicine and now her symptoms are reducing and she is alright.
lol sounds like bullshit.... she sounds like an idiot. Good luck to her next time she gets admitted to ER with perforated colon, or toxic megacolon.
@@JCPLA1 is not bullshit. UC can actually be suppressed by many treatments but unfortunately most will eventually be rejected after awhile. Just like the infusions
Not bs I've also take uc pack from plant ayurveda it works wonders currently drug free 11 months.. diet is controlled.
J SINGH UK
@@jsingh5146 herbs work better than meds sometimes because drugs are harsh on the body. Good for you. I ate fresh garlic once for a bacterial infection on my finger worked great.
That's when i first suffered a severe UC flare-up and was diagnosed. I hope your niece is doing ok!
I can't get my dr. To put me on any meds to treat my uc. And diverticulitis flare ups. It's scary when you're not taken seriously. I no longer trust drs. And I only go to them when I have no choice. And as soon as they read my medical files and they see I'm autistic I may as well be dumb.
What a pimply forehead! I mean, yes, ulcerative colitis sucks!!!
Reach out to Dr folonsho, he can help your cousin, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease,I can only imagine what he/she is going through
drflonsho@gmail.com that's his email, hope this helps you
Jerk
I got diagnosed when I was 11
Trindy_vlogs same
I think I was 12