My Crohn's disease Story | Part 1: My Diagnosis

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  • Опубліковано 26 січ 2025

КОМЕНТАРІ • 53

  • @DavidKeyser-b9m
    @DavidKeyser-b9m 6 днів тому

    As a fellow IBD survivor (22 years with UC), I can definitely relate to this. I was 33 years old when diagnosed and was just starting a family. Thanks for the video!

  • @KeithVann-cx7il
    @KeithVann-cx7il 4 місяці тому +3

    You tummy may have hurt but may your automatically and naturally more and more brave about it in a ever increasing way have a blessed day my strong and resourceful friends

  • @ElijahTWinch
    @ElijahTWinch 9 місяців тому +3

    I got diagnosed at 12. Had 24 inches of my small intestine removed before my freshmen year of high school in 2016. As of right now they found an abscess and a perforated bowel. Currently Trying to get rid of the abscess with antibiotics to avoid surgery but I’ve noticed that juicing has helped so much with my digestion compared to meats. I’m glad I found your channel

  • @MargieNaidoo-s3f
    @MargieNaidoo-s3f 9 місяців тому +1

    Thank you for this. I have ulcerative colitis and have been going through a tough time. I'm so thankful to hear that there are people out there who are going through a similar situation. 🙏

  • @JN-kc2zd
    @JN-kc2zd 11 місяців тому +1

    I’m sorry you have experienced so much pain. You r an inspiration to all women!

  • @fatemeazizi8768
    @fatemeazizi8768 28 днів тому

    Wow, you were exactly experienced what I experience right now😭😭😭 i can’t believe even details are the same. Very tough days

  • @tannyam3013
    @tannyam3013 Рік тому +3

    Waiting for my results and I know in my gut the outcome . You are giving me hope.

    • @coachninab
      @coachninab  Рік тому

      Best of luck

    • @tahzeebmehdi3139
      @tahzeebmehdi3139 10 місяців тому

      Check out planetayurveda they have cure for crohns colitis my daughter got cure.

  • @Heatherrenee424
    @Heatherrenee424 8 місяців тому +1

    Thank you Nina, i would love to hear more about your journey with this. Going to check out part 2.
    Sending you lots of love and warm hugs!

  • @carloscavalcanti3942
    @carloscavalcanti3942 Рік тому +2

    Thanks! I look forward to watching the follow up video.

  • @nicholasmccarthy8771
    @nicholasmccarthy8771 11 місяців тому +3

    What a delightful young woman. Inspirational.

  • @gemmallewellyn7264
    @gemmallewellyn7264 3 місяці тому

    Thank you for this video, I really needed to sort of have a conversation (or listen!) to someone who understands me. I have very recently been diagnosed with Crohn's Disease after many years of awful gut symptoms which I talked myself into thinking were stress and anxiety related! It was only when I started developing unusual and debilitating pains all over my body and in my joints a few months ago that led me to my diagnosis. So much of what you said, I can relate to. I have over the years suffered with skin issues, eye issues, mouth ulcers and even costochondritis! I am starting my treatment next month (Infliximab infusions and Azathoprine) and I am keeping everything crossed that they will work for me and I will feel more like my normal self again.

  • @lornatw
    @lornatw Рік тому +1

    Thank you for sharing. I lost a female friend a year ago when she went in for treatment for this (the disease itself wasn't the cause), but I only learnt after how much her conditions affected her and her life. It seems as I get older I learn about so many new physical things in a way I've not really understood before such as gall stones (affected a friend recently) ❤ I took a moment before allowing myself to sit and listen as was a little sensitive but glad I have.

    • @coachninab
      @coachninab  Рік тому +1

      I'm so sorry for the loss of your friend and sending you lots of love in the grieving process

  • @ceruleanshadow
    @ceruleanshadow Рік тому

    Wow I'm so sorry to hear about this! I've really enjoyed your astrology videos for quite some time. I've been going through my own strange health journey for a while now (looking at you Neptune in the 6th... 🙄). Sending you lots of love and healing 💗

  • @catmando4448
    @catmando4448 11 місяців тому

    I’m not sure if you mentioned it in this video, but I wanted to thank you for the information regarding all the extra intestinal and Sjögren’s syndrome symptoms that can accompany Crohn’s disease. This makes sense in my experience.

    • @coachninab
      @coachninab  11 місяців тому +1

      Thank you! That was in my first skyrizi infusion experience video!

  • @idaUnchained
    @idaUnchained 9 місяців тому

    I don’t think that’s true that it’s more difficult for humans to process meat, but we are allowed to believe and follow whatever diet we want to! I also have crohns and have had those other symptoms (eczema, chostochondritis, joint pain, dry eyes, skin issues, etc) this disease is a bear!! Found your channel because I’m starting Skyrizi and you posted a video about it. Your experience gives me hope about getting my energy back!!

  • @alixhiebert6575
    @alixhiebert6575 2 місяці тому

    Aw man. I’ve been diagnosed with Crohn’s about 2 years ago. I unfortunately can’t eat any insoluble fiber from fruits and veggies. But I also have a hard time with meat and lactose .
    It pretty much just leaves me with grains “carbs” very frustrating.

  • @anayarey
    @anayarey Рік тому +3

    Can't believe that people actually told you that you need to eat meat again 😑 like humans really don't need it. Thank you for being so open btw! I think that the new channel is a great idea :)
    Edit: I'm sorry you went through much pain and pushed yourself so hard too, that must have been awful. At the beginning of the video I had no idea how much suffering was involved in the whole story. You're so strong for keeping it together and also sharing your experiences.

    • @coachninab
      @coachninab  Рік тому

      That’s so kind of you 😭🥰 thank you so much!
      And I know! Seems totally counter intuitive to me so I was surprised how many people jumped to saying that

    • @Everythingtotteham
      @Everythingtotteham 18 днів тому

      @@coachninabI fine eating meat helps

  • @jkevin009
    @jkevin009 9 місяців тому

    Great video - very, very human. Love the issue with the name of the disease - I feel you. Has a terrible visual associated with it right? Would love to hear more about the diet as the channel moves along and whether you maintain veganism. I stay away from red meat - same reasoning actually. Saw a beautiful cow at the 4H COUNTY FAIR back in 2018 and something snapped when I saw it being led off after the auction. I don't miss red meat - still do wild caught fish though!
    Anyway - shine on you crazy diamond - keep it coming!

    • @coachninab
      @coachninab  9 місяців тому

      Thank you! I have a couple other videos on my channel on my relationship with food and veganism ☺️

  • @yvonnesarmand1574
    @yvonnesarmand1574 Рік тому +3

    ❤lot’s of love. I’m transiting my own journey with digestive issues, still haven’t had a diagnosis.
    I’m curious, how do you relate this with astrology?

    • @coachninab
      @coachninab  Рік тому +3

      Thank you!

    • @yvonnesarmand1574
      @yvonnesarmand1574 Рік тому +1

      @@coachninab my moon is in my 6th house too! Alongside my Saturn and Neptune. Thank you for your video and for your response to my comment, a bunch of love and strength to us on our healing journey 💕

  • @codiannsmith
    @codiannsmith 10 місяців тому

    I also had chronic constipation...and anal fissures. Dry red eyes...I actually got accused of being high in middle school because of it. That's scary about all that blood in your stool. Luckily I don't have high inflammatory markers in my stool tests. If I have crohns, it must not affect my large colon.

  • @MrIDoItBetterrr
    @MrIDoItBetterrr Рік тому

    I appreciate you ❤ I feel more not alone

  • @ElijahTWinch
    @ElijahTWinch 9 місяців тому

    Also my name is Eli which is kindve cool because your a certified Eli. Lol. I was on humira but got off of it and didn’t take enough care of my diet. Got sent to an ER where they prescribed me prednisone. I think that is what caused the abscess, but hopefully they will let me get on skyrizi

    • @coachninab
      @coachninab  9 місяців тому

      Oof, I hope you feel better!

  • @3lectr1c.ang3ll
    @3lectr1c.ang3ll 11 місяців тому

    I got diagnosed with IBD recently and they can’t decide if i have ulcerative colitis or crohn’s because under the microscope the inflammation is only superficial like ulcerative colitis and the inflammation is only in my colon but the ulcers are scattered like crohns and I also get cratered mouth ulcers and I have chronic duodenitis

    • @tahzeebmehdi3139
      @tahzeebmehdi3139 10 місяців тому

      Checkout planetayurveda with simple dietary change and herbal medicines can cure this condition for ever.

    • @coyotepup101
      @coyotepup101 Місяць тому

      Did you ever get diagnosed with either? This sounds like my son's symptoms and they are having trouble diagnosing it.

    • @3lectr1c.ang3ll
      @3lectr1c.ang3ll Місяць тому +1

      @coyotepup101 My doctor says the clinical picture is more in line with Crohn's disease because of duodenitis and oral ulcers, I really have a mix of both though honestly it isn't really clear cut. My colon looks like UC with outside inflammation like Crohn's. She also basically said the specific diagnosis didn't really matter because the treatment will be the same.

    • @coyotepup101
      @coyotepup101 Місяць тому

      @3lectr1c.ang3ll thank you for letting me know! I have a feeling he's somewhere in between too. MRI is next up. I wish you the very best!

  • @Mshet-v4d
    @Mshet-v4d 5 місяців тому

    Dear pls reply me ...iam also diagnosed small terminal ileum ulcer ...it's means crohn's tell me plz

    • @coachninab
      @coachninab  5 місяців тому +1

      I can’t tell you that, listen to your doctor! 🫶🏼

  • @salehnikooroo5290
    @salehnikooroo5290 11 місяців тому

    Hi Nina, knowing your keenness with astrology. I wonder whether you've happened to find any correlation between the planetary transits and the times your symptoms showed up more than usual.

  • @salehnikooroo5290
    @salehnikooroo5290 11 місяців тому

    Hi Nina, knowing your keenness with astrology, I wonder whether you've happened to find any correlation between the planetary transits and the times your symptoms showed up more than usual.

  • @laceyk2489
    @laceyk2489 Рік тому +2

    I am currently going through something veey similar, and have my colonoscopy scheduled for this month. My first calprotecten was 698 and my GI got my colonoscopy scheduled for 3 weeks later.

    • @coachninab
      @coachninab  Рік тому +3

      Sending you good vibes and big hugs! ✨❤️‍🩹✨

    • @Tannerindahouse
      @Tannerindahouse Рік тому

      How did it it go. I'm scheduled for colonoscopy too. got a calprotectin test that was >800.

    • @stephenwright1831
      @stephenwright1831 Рік тому +3

      I recently had my results back, my calprotectin was over 1300 😂 By the time I had my tests, I had been experiencing symptoms for 4 years and was kind of brushed off by everyone. I'd say my symptoms were bad in comparison to someone without IBD, but I was used to it so it didn't seem as bad.

  • @varunkhajuria9448
    @varunkhajuria9448 11 місяців тому

    I also think, i have crohn's

  • @codiannsmith
    @codiannsmith 10 місяців тому +1

    Vegan made me so bloated and caused my stools to be way too soft.

    • @drseanpatrick696
      @drseanpatrick696 10 місяців тому +1

      Plants are full of naturally occurring pesticides called lectins which put weights on one’s health and healing trajectory. Abrasive fiber feeding bacteria causing gas, bloating and in some cases SIBO. Carnivore was the only dietary way that reversed 12 years of suffering with Crohn’s disease.

  • @drseanpatrick696
    @drseanpatrick696 10 місяців тому

    Nice you basically parroted what doctors say and want you to believe. I went carnivore and reversed 12 years of suffering with Crohn’s disease. But i won’t tell you to do this because you don’t want any advice. Good luck.

    • @coachninab
      @coachninab  10 місяців тому +3

      I can share my experience and you can share yours. What exactly did I say that upset you?

    • @readysetgo8706
      @readysetgo8706 7 місяців тому

      My guess is that, as I listen to your story, you speak glowingly of a diet that is clearly not helping you heal. I heard you describe the worsening of the disease that has occurred since choosing a vegan diet. So I can see how someone who experienced long term remission following exactly the opposite diet from yours might feel frustrated that you aren’t interested. Just my thoughts. I hope you find healing, lovely lady.

    • @drseanpatrick696
      @drseanpatrick696 7 місяців тому

      @@readysetgo8706 pretty poor comprehension of my journey. Nowhere I said I was worsening from carnivore. Put down the alcohol.

    • @readysetgo8706
      @readysetgo8706 11 днів тому

      I was speaking to Coach Nina, not you. Perhaps I should have replied separately from your comment. Sorry to confuse you. My own and my family’s journey was a jagged path, from vegan to carnivore, healing with meat. No alcohol here 😉 just well wishes for healing for this sweet girl and happiness that you, Dr. Sean Patrick, have found the answer to good health!