I am coming up on my 18 year anniversary of my Crohns Disease. There isn’t one day of my life not negatively. No one understands how much this impacts patients. It’s good to see awareness brought to this ❤️
I’ve just watched this laying in my hospital bed having been just diagnosed with Crohn’s. I’m just looking forward to starting the treatment and going home and getting my life back. Big lifestyle changes. Thank you for you video.
I was diagnosed at 50. At the time I was very scared I had cancer. I was pretty surprised at the diagnosis but also relieved. I’m 55 now and continuing to move through my journey. I have been on a biologic and now moving to a JAk inhibitor. I’m very lucky my illness hasn’t preventing me from working or other life enjoyments, but it has slowed me down quite a lot (as age also does). My biggest complaint out of this is actually the arthritis!
@PBottomPoochies Same here @ diagnosis at 51. On biological meds and yes arthritis an issue also, also hand issues carpal tunnel in both hands and had surgeries. Can I ask what is JAk inhibitor .. ? Will this be instead of biologics meds ? Would appreciate any insights
@@mae9064 JAK inhibitor is just a different kind of med than biologics. The one I was on was Remicade but then my body started to not respond to it. Can’t say exactly how but JAK inhibitors work differently. The one I am on now is Rinvoq which is a pretty new medicine.
Not a fun illness. Five other family members and I have Crohn’s. I’ve had 3 surgeries plus 7 balloon dilatations to widen a structure as well. I pray for health and recovery for all people with any kind of illness. 💜🙏🙏🙏💜
Great video as always. My father was diagnosed with bowel cancer 6 years ago at the age of 62 and during treatment, it was found that he had had Crohns all his life. Stomach issues (believed to be ulcers) had effectively ruled his and, by extension, our whole family's social life for decades. Only after his diagnosis and treatment has he had a bit more freedom due to advice on how to manage flare ups. It's wonderful to think a greater awareness helps so many people now.
This is a great example of the sort of people we want to hear from. IF you are reading this and have issues with your bowel, please dont suffer in silence, talk to your doctor and we'll try to help
It'll be my five year anniversary of my Crohn’s diagnosis and ileostomy this June. I suffered greatly at the time, but so much better these days. This video was very informative and interesting to hear the in between details.
My mom has Crohn's and I'm quite scared of having it as well. Thank you for your work as a doctor and your work here on UA-cam! I learned so much already from your videos!
👍 I know these things can be scary. Hopefully it won’t affect you, BUT if you are worried and think you have symptoms, talk to your doctor sooner rather than later 😊
My dad has UC, his dad had some form of IBD (he wouldn't go to doctors), and I have all of the subjective symptoms of Crohn's, as well as many of the objective symptoms. I am tired constantly (it's nothing for me to sleep 16 hours a day), 80%+ of what I deposit in the restroom is some sort of diarrhea, and I'm in the restroom at least 10 times a day (on a really good day). And yet the gastroenterologists I've seen (here in the US) seem reluctant to diagnose anything at all. It's very frustrating; I dare-say it's literally maddening. I've been sick for 20 years and for the last 4 years it's been bad non-stop. I feel like I might be losing my mind. Most of the time It's like I'm trying to force my thoughts though a thick fog in my head.
Hiya. I've just turned 26 and have had bowel issues all my life. As a baby they said it was slow bowel and then at 13 all the way till I was 21 I was told it was IBS ass I went from constipation to mixed. Now 26 I've had 5 years of 90% diarrhea or loose stools. Other symptoms I have is yellow ish looking poop that often smells sulphuric or acidic, fatigue, body aches like shoulders, legs, neck etc. Migraines are hit & miss: some months I get the odd few but other months I have one nearly every day. Vertigo and severe daily nausea (on prochlorperazine) diagnosed last year with vit D deficiemcy. My norm is between 3-10+ times a day : more if I'm ill with a bug like colds, stomach bugs etc. I've tried every diet & lifestyle change for years and yet I gain weight, not lose itn(frustrates me as all medical records and my doctors only look for drastic weight loss which I don't have). Back pain. Excruciating abdominal pain which I also had when on menstruation (on testosterone so I don't bleed any more. Thought it might of been endometriosis but my specialist thinks it's bowel related). I used to get small boils which I haven't had iin a while etc. All the generic tests come back normal like bloods stool, urine: same with the Fit test (advanced version of the stool sample). It's caused a lot of issues mentally, more anxiety than anything. I'm constantly taking anti - diarrhea tablets (not imodium as too expensive and not as effective. I use acute diarrhea relief) which I buy myself as it's not on prescription. I do have a radar key but a lot of places don't use them or are staff only, I have thought about getting a card aswell. I'm currently waiting for a consult with gastrology (never been to one). Hoping they will do further testing. 🇬🇧. Xx
Chrony here 😊 5 years ago after a nightmare with many trips to hospital , abscess, sepsis , strictures , blood clots, stoma and a fistula, I had my terminal illium removed. The change to my quality of life was very dramatic. I have had problems recently with "hot feet" painfully joints, memory issues and tiredness. Just watched your video on B12 and the penny dropped. Just waiting for my blood tests from my GP 😊.
I was diagnosed in 2005 and constantly kept getting flare ups. In 2009 i was in hospital with what doctors thought was a flare but turned out it was an Abscess on my bowel that burst while i was in hospital causing my bowel to perforate. Doctors operated and saved my life. I ended up with an ileostomy. I've been pain free ever since
@@DrJamesGill since i had my ileostomy I've been pain free and I've had 2 children so i live a "normal" life. The only negative is when my ileostomy bag leaks. It doesn't happen often but when it does it affects me emotionally and as an affect on my confidence. Thank you for asking and i hope your sister is coping well with her Chrons 👍
Can you do a video on signs of colon cancer? Would be great to have an expert conversation about things to look out for and an overall discussion on it
Thirty years of diarrhea, stomach pain, gas, low energy went away when I stopped using vegetable oils and preservatives and a few other items from the grocery.
I have had Crohn’s disease since 2018 (well I’ve always had it but it flared up when I was taking ibuprofen because of a bad tooth) after 5 years I’ve now got swollen part of my intestines Ileitis immunosuppressants have failed me and my doctor is offering biologics instead. I’ve gone on a strict vegetarian diet and it has helped me and I have decided not to take any Crohn’s medication yet. I’ve been given Mebeverine hydrochloride which helps digest my food but I still have Ileitis and not sure if it’ll ever go away without Crohn’s medication to treat it. Trying to find away without meds to treat Crohn’s disease
@@ImadAlnumat-f6l No not really still have problems with it but doing my best to treat it with peace stress free life and a vegan diet. exercise is something I’m going to start doing to treat it I think that’ll help me as well. thank you for your concern sir
I didn't take meds when I was first diagnosed, and then a few months later, I had a flare-up, and it caused two abcesses in my intestines. Both tunneled all the way through my intestinal wall and one partially through my abdominal wall as well. They didn't happen at the same time, I had one, and they put a drain in. It came back worse after the drain was pulled, and they had to put another in. I was hospitalized 4 times (longest being a whole week, in an isolated room) in a span of 2 months and had a total of about 15 CT scans. In my first hospitalization, they put a PICC line in my arm so IV antibiotics could be pumped directly into my heart, and for four months, I was attached to a pump in a bag that i had to carry everywhere, and that would turn on every 6-12 hours depending on the drug (they tried 4 different antibiotics). I developed an MRSA and CRE infections at the same time (why I was always isolated in the hospital). The final antibiotic that worked was so rare and new that the doctor told me I was his first patient to need it. Towards the end of the four months, I couldn't eat without vomiting immediately after, and would puke at least once a day whether I ate or not, and despite any IV nausa meds I was given. Any pills I took, I would see fully intact in the toliet later that day. In total, I lost over 25 pounds in those 4 months (I had already lost a ton of weight before the flare, which is part of why I was diagnosed) and ended up at 93 lbs and I'm 5' 8". They finally stopped the antibiotics and put me on remicade, so every 8 weeks, I have to go to the hospital and get an infusion for an hour (it started way longer, and they slowly pump it faster each appointment). I could have probably avoided all of it by just taking a pill twice a day. Although, the remicade works amazingly! It's actually a bit more convenient for me since I'm no longer bothered by needles due to all this. I wish you the best of luck with managing your crohn's! (But, I do urge you to listen to your doctor's advice on medicine!)
@@MichaelCS146 yeah definitely sounds like a good idea to take medication listening to doctor is never a bad thing and it might be that I’ll go down that route, they’ve offered me biologics and that sounds fine but I’ll wait, as I’ve gone for a long time without any serious problems without strong medication just taking mebeverine hydrochloride as mentioned before and things are ok. Thanks for sharing this with me i appreciate it! My problem was that I’d get flare ups which are bad but I’d have blockages which are worse.
My brother has Crohns and has suffered a great deal with it over the years, including have sections of his gut lopped out , due to his gut actually closing.
Hugely helpful! Thanks for such an informative video on what can be a dehabilitating disease. I’d love to see a video on endometriosis which is often misdiagnosed as IBS, IBD and Crohn’s. Like Crohn’s it is an inflammatory condition and causes pelvic and abdominal pain and can be found in the bowel. Would love to see more awareness of it. Surgery is the gold standard treatment of endometriosis - even to diagnose it - and that can become a slippery slope like you mention for Crohn’s.
Oh wow, I've been watching your videos for a while now just for relaxation basically and didn't think I'd ever stumble upon a video that actually kind of relates to me. My mom got diagnosed with Crohn's when I was a kid and over the years I've seen how badly it affects her sometimes. Even though I was already familiar with the topic I found this video very informative and definitely learned some useful stuff. However, I'm not really a medical kind of guy so I doubt it will ever be of much use to me. Perhaps you have any tips on how to recognise symptoms or how 'approach it' if that makes any sense?
@@DrJamesGill Believe it or not, first i was diagnosed with Crohn's when the 1st symptoms started back in May 2018. They diagnosed it very poorly (obviously), without taking biopsy. Then i was on steroids for about 9-10 months. Nothing seemed to work. So we decided to change the doctor. Then i was diagnosed with UC. Now i'm on Humira and life is going quite well, everything seems to be about normal again. Although, i'll never forget the psychological damage and pain that me and FAMILY felt. Currently im happy and very glad for it. :)
10:22 To me that sounds like something an image recognition algorithm could do! Saves that poor consultant from RSI, clicking through all those pictures
@@DrJamesGill replying on a video months old? You're the GOAT! Since 10, I was in remission for nearly 20 years. Generally because I'm careful with foods I know are going to give me issues. In December 2020 I had a mild flare up, mouth ulcers, intense stomach pains and lost somewhere between 20-30 pounds. I'm doing much better now though and mostly stable. :)
I strongly believe there is a huge interplay between diet and a lot of medical conditions. We really should use our dietician colleagues with more patients. I’m glad that things are better 😊
Amazing video!! Thanks for all the informative information. My Ferritin levels are high (670), my platelets are low (129,000), my neutrophils are low, however my white blood cell count is just in the minimum range. My inflammation marker was - 7. Everything else is in range. Could I be deficient in B12 or Zinc or have Crohn's Disease as I seem to go to the toilet for a number 2 more than I think I should? There is a genetic correlation of Crohn's in our family.
Tbanks do much i have si much about crohn's disease . I have go university asseay to write on crohnis assiociated with biome /biota Thanks i have picked alots of points from you ❤❤❤
I am 17 years with symptoms, Fecal Calprotectin and CRP both raised (CRP has been raised, normal and is raised), H Pylori negative but have had it before and only now am I on a waiting list for Gastroenterology. Coeliac bloods negative. Episodes getting worse, had deficiencies on and off in Calcium, Iron, Vitamin D and B12, Borderline Folate. Tons of gas, worse than ever, discomfort and pain, diarrhoea and sometimes nausea and vomiting. Anaemic on and off for years, lower back pain when I wake that's worse if I stay in bed, (new mattress didn't fix), had lots of rectal bleeding, told it was Haemorrhoids so had a Haemorrhoidectomy, better but not totally, still some dark thick clotted blood (even when no episode). No weight loss but episodes were just a day or two until recently. NO idea what it is but I'm sick of it, it's brutal when it happens
There is a biopsy that can be done on inflamed tissue. At least that is what was done for my diagnosis. I had an endoscopy done but up until that time, when I began throwing up, there had been a year and a half of 'what do you think is going on?' that I was being asked which really galled me to no end. I wish medical staff would stop asking their patients 'what do you think is going on?' because I worked for an internal medicine doctor and that's basically what medical doctors do when they think the patient is imagining things etc. My Crohn's happens in the section of the intestine directly after exiting the stomach but not involving where the enzymes enter. I had my first surgery at diagnosis in '97 and my 2nd surgery just last year Nov '23. I feel lucky and fortunate not to have experienced very much between the two. I hope your sister is doing well and I wish her the best.
Plz help me in diagnosis good man, i have done all colonoscopy and sigmoidscopy with biopsy and ulcers are not uc or cd but still im bleesing with mucus, my ulcers are found in sigmoidscopy in sigmoid colon and in rectum just 3 to 4 tinny ulcers very distanced from each other, my main symptoms are blood wrapped in musuc on the surface of stool in multiple spots, can we connect, im depressed as no dr can take me seriously, im 33 with no family history
I have IBS and diarrhoea can come on any time and take over your life, are you going to do a video on IBS, I have IBS type 2 diabetes stable angina. Are they all related? My biggest issue at the moment is I get like an internal vibrating in my chest head arms legs,
Covid don’t help, I had a coronary angiogram at Essex coronary centre in March and that is the only time I have seen a doctor face to face apart from when I went into Colchester A&E I have had IBS for about 30 years and since my heart issue started at the end of last year my IBS has been terrible. Sorry your sister is unwell I hope she has a happy life
From an IBS stand point, I highly recommend talking to a dietician about the FODMAP diet You CAN look at the broad brush strokes on line, but it should really do done in concert with the dietician. I see good results from patients
I have diverticulitis and was told to go on a high fibre diet which makes worse, so I am thinking it is crohns cause Google say you can't have high fibre
i actually have Ulcerative Colitus basically all you told makes sense to me since i have had all the exams, meds etc. it took about 2-3 years for my doctor to find the right way to take the burning down, i now have an very effectice med: Infliximab 400ml every 6 weeks. have not had troubles for almost 2 years. :) thank you for the info about this, even tho i have it and know about it this makes alot of questions i have had clearer.
Hello! 2 years ago I strange stools with mucus and even red mucus. So I ran at the hospital and have a colonoscopy ( THEY DIDNT take any biopsy?!!!) crazy. They told me I have IBS. Everything was gone. No more issues. Now, about 2 years later, I have a stomach and belly pain , I had 1 episode of diarrea a day with some red mucus, it seemed resolved for a 4 days. I even had strong like balls stools, and then diarrhea came back, 3 episodes a day, with belly pain. I had blood test and showed no inflammation, waiting for my stool test. I also had a few mouth ulcers so I am sure it’s chron…. I’m terrified, I’m even considering suicide… 😭
I think you should speak to your doctor as soon as possible. If you are in the UK you can call 116 123 to speak to the Samaritans, or attend your nearest hospital if you are having suicidal thoughts
@@DrJamesGill yes I’ll speak to the doctor GI after I’ll get my stool test back. I’m in thailnd so no, I can’t have access to the mentioned places in the Uk. But I’ll search some mental help as well. THANK YOU for replying. So with blood test that doesn’t show inflammation but due my symptoms, do you think it could still be chron? Thanks in advance
If you have been newly diagnosed with Crohns can I offer the following advice . Carry a bag in your car, work locker etc with a " disaster recovery kit" in it. A change of underwear , baby wipes and a bin bag to put your dirty clothes in. It's embarrising when the S**t hits the fan but being able to change back into clean kit makes the whole thing less of a drama.
are you born with this or does this develop later?🤔 sounds like a terrible disease! a lot of strength for your sister will be quite tough to live with.
Not to come off as “immature” or something.. but I’d think I’d rather die before having another man put something up my rear end. The concept just sounds demoralizing. Obviously it could be an important procedure but geez. Hopefully they start adapting those pill sized cameras a company has been working on cuz it seems 99% less invasive or a hassle to get looked at.
Dr Gill is a genius. He turned ASMR addicts around and gave them a medical education.
If people benefit, then it’s all with it
I am coming up on my 18 year anniversary of my Crohns Disease. There isn’t one day of my life not negatively. No one understands how much this impacts patients. It’s good to see awareness brought to this ❤️
please share all your experience 😣
Checkout high carb health
My mum has Crohn’s disease so this video is extremely valuable to me and important in spreading awareness - thank you!
i hope she is doing ok?
I’ve just watched this laying in my hospital bed having been just diagnosed with Crohn’s. I’m just looking forward to starting the treatment and going home and getting my life back. Big lifestyle changes. Thank you for you video.
I hope things improve with time 😊
I was diagnosed at 50. At the time I was very scared I had cancer. I was pretty surprised at the diagnosis but also relieved. I’m 55 now and continuing to move through my journey. I have been on a biologic and now moving to a JAk inhibitor. I’m very lucky my illness hasn’t preventing me from working or other life enjoyments, but it has slowed me down quite a lot (as age also does). My biggest complaint out of this is actually the arthritis!
@PBottomPoochies Same here @ diagnosis at 51. On biological meds and yes arthritis an issue also, also hand issues carpal tunnel in both hands and had surgeries. Can I ask what is JAk inhibitor .. ? Will this be instead of biologics meds ? Would appreciate any insights
@@mae9064 JAK inhibitor is just a different kind of med than biologics. The one I was on was Remicade but then my body started to not respond to it. Can’t say exactly how but JAK inhibitors work differently. The one I am on now is Rinvoq which is a pretty new medicine.
Ok great topic,I’ve often wondered about Crohns,never been to sure what all it entails,thank you doc
You’ll hopefully understand the basics after tonight 😊
Not a fun illness. Five other family members and I have Crohn’s. I’ve had 3 surgeries plus 7 balloon dilatations to widen a structure as well. I pray for health and recovery for all people with any kind of illness. 💜🙏🙏🙏💜
I was diagnosed at Christmas 2014 with Crohn's Disease! I'm so excited for this video!
It’s a difficult thing, but hopefully you’ll find the right treatment for you
I have Crohn’s Disease. My family and friends found this a really useful tool to learn about my illness
I’m so pleased to hear this, I hope your Crohn’s is stable atm?
Abigail. Thanks. Hope it's helped you. Suggestions for future videos welcome. Andy
Great video as always. My father was diagnosed with bowel cancer 6 years ago at the age of 62 and during treatment, it was found that he had had Crohns all his life. Stomach issues (believed to be ulcers) had effectively ruled his and, by extension, our whole family's social life for decades. Only after his diagnosis and treatment has he had a bit more freedom due to advice on how to manage flare ups. It's wonderful to think a greater awareness helps so many people now.
This is a great example of the sort of people we want to hear from. IF you are reading this and have issues with your bowel, please dont suffer in silence, talk to your doctor and we'll try to help
It'll be my five year anniversary of my Crohn’s diagnosis and ileostomy this June. I suffered greatly at the time, but so much better these days. This video was very informative and interesting to hear the in between details.
so pleased to hear things are going well. The ileostomy - conceptually is so frightening for many, but often there are great benefits 😊
Have you now ileostomy now ?
@@ImadAlnumat-f6l Yes, I still have it. I’m 95% certain I’m not in a position to have it reversed
Dr Gill explains things so clearly. Engaging!
My mom has Crohn's and I'm quite scared of having it as well.
Thank you for your work as a doctor and your work here on UA-cam! I learned so much already from your videos!
👍 I know these things can be scary. Hopefully it won’t affect you, BUT if you are worried and think you have symptoms, talk to your doctor sooner rather than later 😊
Thanks Matheus. Andy
My dad has UC, his dad had some form of IBD (he wouldn't go to doctors), and I have all of the subjective symptoms of Crohn's, as well as many of the objective symptoms. I am tired constantly (it's nothing for me to sleep 16 hours a day), 80%+ of what I deposit in the restroom is some sort of diarrhea, and I'm in the restroom at least 10 times a day (on a really good day). And yet the gastroenterologists I've seen (here in the US) seem reluctant to diagnose anything at all. It's very frustrating; I dare-say it's literally maddening. I've been sick for 20 years and for the last 4 years it's been bad non-stop. I feel like I might be losing my mind. Most of the time It's like I'm trying to force my thoughts though a thick fog in my head.
Great video. Diagnosed with crohns 13 years ago now and touch wood have kept it under control. Never stop learning about it. 👍
That is awesome!
I am being tested for this soon. I am very excited to watch, Dr. Gill. Thank you!
👍 hopefully the results are negative
Hiya. I've just turned 26 and have had bowel issues all my life. As a baby they said it was slow bowel and then at 13 all the way till I was 21 I was told it was IBS ass I went from constipation to mixed. Now 26 I've had 5 years of 90% diarrhea or loose stools. Other symptoms I have is yellow ish looking poop that often smells sulphuric or acidic, fatigue, body aches like shoulders, legs, neck etc. Migraines are hit & miss: some months I get the odd few but other months I have one nearly every day. Vertigo and severe daily nausea (on prochlorperazine) diagnosed last year with vit D deficiemcy. My norm is between 3-10+ times a day : more if I'm ill with a bug like colds, stomach bugs etc. I've tried every diet & lifestyle change for years and yet I gain weight, not lose itn(frustrates me as all medical records and my doctors only look for drastic weight loss which I don't have). Back pain. Excruciating abdominal pain which I also had when on menstruation (on testosterone so I don't bleed any more. Thought it might of been endometriosis but my specialist thinks it's bowel related). I used to get small boils which I haven't had iin a while etc. All the generic tests come back normal like bloods stool, urine: same with the Fit test (advanced version of the stool sample). It's caused a lot of issues mentally, more anxiety than anything. I'm constantly taking anti - diarrhea tablets (not imodium as too expensive and not as effective. I use acute diarrhea relief) which I buy myself as it's not on prescription. I do have a radar key but a lot of places don't use them or are staff only, I have thought about getting a card aswell. I'm currently waiting for a consult with gastrology (never been to one). Hoping they will do further testing. 🇬🇧. Xx
How have you been since sending this message? as it has been 10 months
Good to see you well doc, i love the A to Z series, you do a great job with it
Thanks. It’s still early days, so any feedback is always appreciated 😊
Oh my goodness, thank you for this. I want to understand it better. I know several people impacted by this.
My sister has it, so it’s an important topic for me
@@DrJamesGill it came into our family through my sister in law and a close family friend. This is excellent Information.
Chrony here 😊 5 years ago after a nightmare with many trips to hospital , abscess, sepsis , strictures , blood clots, stoma and a fistula, I had my terminal illium removed. The change to my quality of life was very dramatic. I have had problems recently with "hot feet" painfully joints, memory issues and tiredness. Just watched your video on B12 and the penny dropped. Just waiting for my blood tests from my GP 😊.
Hopefully it is something that simple for you 😊
How things improved post op 😊
When my exam times approaches:
Dr.Gill: Relaxing asmr sounds
lol
this makes me very happy to see as someone with Crohns though currently in remission
it does come and go, but we have to take each small improvement as a win 😊
I was diagnosed in 2005 and constantly kept getting flare ups. In 2009 i was in hospital with what doctors thought was a flare but turned out it was an Abscess on my bowel that burst while i was in hospital causing my bowel to perforate. Doctors operated and saved my life. I ended up with an ileostomy. I've been pain free ever since
I'm sorry you had that experience, but glad things are improved now. How are you getting on with the ileostomy?
@@DrJamesGill since i had my ileostomy I've been pain free and I've had 2 children so i live a "normal" life.
The only negative is when my ileostomy bag leaks. It doesn't happen often but when it does it affects me emotionally and as an affect on my confidence. Thank you for asking and i hope your sister is coping well with her Chrons 👍
That is understandable. Thank you for sharing. It must be difficult at times.
She’s passable thanks 😊
Absolutely amazing and informative videos. Thank you so much!
Thanks for watching!
Reminder set, ready ready ready
👍
Can you do a video on signs of colon cancer? Would be great to have an expert conversation about things to look out for and an overall discussion on it
I’m sure we’ll find a way to integrate them. If not it will be in the abdo history video (when I get around to it)
Will do. Andy
Excellent video, great Q&A format
We’re finding our feet still 😊
The camera pill is SO BIG BUT ITS WORTHED. Got all those tests and thanks for explaining people what is crohns.
I've got Crohn's and god... as you can imagine, it's the bane of my life. I love to see it getting some coverage
My sister has really suffered, but then seem to have found a medication that works for her now 😊 hopefully you’ll find yours too
Medically correct PLUS first hand experience. The anecdotes are a great help/hope. Thanks!
Wow literally right after I commented, he mentioned the pill camera. I didn’t know it was actually being used now!
How appropriate is it that I got an ad for Stellara before this vid started
lol
Thirty years of diarrhea, stomach pain, gas, low energy went away when I stopped using vegetable oils and preservatives and a few other items from the grocery.
Hmmm interesting isn’t it? Happy for you! The problem is our food and “vaccines.” They give us the cure with the sickness….by design.
It's too bad I have to wait for the one on UC being at the end of the alphabet, but this was very informative to learn about my fellow IBD sufferers.
Thanks 😊
I was diagnosed with CD 45 years ago.. Everyday battle, flares one day and not the next ugh 😑 planning to go anywhere is a challenge… ❤
Are you saying you get bleeding one day and next day no blood? Plz explain
Hi Dr Gill - love the series! As a suggestion, I think a quick summary at the end of the video would be greatly helpful.
Good one, thanks. Will DW James re that
Good idea. Thanks. Andy
great interview, thanks so much
Glad you enjoyed it!
Please tell me, what is proper medicine of ilitis crohn's disease?
I have had Crohn’s disease since 2018 (well I’ve always had it but it flared up when I was taking ibuprofen because of a bad tooth) after 5 years I’ve now got swollen part of my intestines Ileitis immunosuppressants have failed me and my doctor is offering biologics instead. I’ve gone on a strict vegetarian diet and it has helped me and I have decided not to take any Crohn’s medication yet. I’ve been given Mebeverine hydrochloride which helps digest my food but I still have Ileitis and not sure if it’ll ever go away without Crohn’s medication to treat it. Trying to find away without meds to treat Crohn’s disease
Are you ok now?
@@ImadAlnumat-f6l No not really still have problems with it but doing my best to treat it with peace stress free life and a vegan diet. exercise is something I’m going to start doing to treat it I think that’ll help me as well. thank you for your concern sir
I didn't take meds when I was first diagnosed, and then a few months later, I had a flare-up, and it caused two abcesses in my intestines. Both tunneled all the way through my intestinal wall and one partially through my abdominal wall as well.
They didn't happen at the same time, I had one, and they put a drain in. It came back worse after the drain was pulled, and they had to put another in. I was hospitalized 4 times (longest being a whole week, in an isolated room) in a span of 2 months and had a total of about 15 CT scans.
In my first hospitalization, they put a PICC line in my arm so IV antibiotics could be pumped directly into my heart, and for four months, I was attached to a pump in a bag that i had to carry everywhere, and that would turn on every 6-12 hours depending on the drug (they tried 4 different antibiotics). I developed an MRSA and CRE infections at the same time (why I was always isolated in the hospital). The final antibiotic that worked was so rare and new that the doctor told me I was his first patient to need it.
Towards the end of the four months, I couldn't eat without vomiting immediately after, and would puke at least once a day whether I ate or not, and despite any IV nausa meds I was given. Any pills I took, I would see fully intact in the toliet later that day. In total, I lost over 25 pounds in those 4 months (I had already lost a ton of weight before the flare, which is part of why I was diagnosed) and ended up at 93 lbs and I'm 5' 8".
They finally stopped the antibiotics and put me on remicade, so every 8 weeks, I have to go to the hospital and get an infusion for an hour (it started way longer, and they slowly pump it faster each appointment). I could have probably avoided all of it by just taking a pill twice a day. Although, the remicade works amazingly! It's actually a bit more convenient for me since I'm no longer bothered by needles due to all this.
I wish you the best of luck with managing your crohn's! (But, I do urge you to listen to your doctor's advice on medicine!)
@@MichaelCS146 yeah definitely sounds like a good idea to take medication listening to doctor is never a bad thing and it might be that I’ll go down that route, they’ve offered me biologics and that sounds fine but I’ll wait, as I’ve gone for a long time without any serious problems without strong medication just taking mebeverine hydrochloride as mentioned before and things are ok. Thanks for sharing this with me i appreciate it! My problem was that I’d get flare ups which are bad but I’d have blockages which are worse.
This was really useful, ive just been told ive definitely got some sort of IBD just need to find out which one.
My brother has Crohns and has suffered a great deal with it over the years, including have sections of his gut lopped out , due to his gut actually closing.
Hugely helpful! Thanks for such an informative video on what can be a dehabilitating disease.
I’d love to see a video on endometriosis which is often misdiagnosed as IBS, IBD and Crohn’s. Like Crohn’s it is an inflammatory condition and causes pelvic and abdominal pain and can be found in the bowel. Would love to see more awareness of it.
Surgery is the gold standard treatment of endometriosis - even to diagnose it - and that can become a slippery slope like you mention for Crohn’s.
I’ve been diagnosed with UC for 21 years (im only 26). I’d love for cures or new treatments for UC and other IBD
there are more things coming down the pipeline. I honestly believe we'll get there 😊
Really interesting video!
Glad you think so!
Oh wow, I've been watching your videos for a while now just for relaxation basically and didn't think I'd ever stumble upon a video that actually kind of relates to me. My mom got diagnosed with Crohn's when I was a kid and over the years I've seen how badly it affects her sometimes.
Even though I was already familiar with the topic I found this video very informative and definitely learned some useful stuff. However, I'm not really a medical kind of guy so I doubt it will ever be of much use to me. Perhaps you have any tips on how to recognise symptoms or how 'approach it' if that makes any sense?
the simplest thing is an altered bowel habbit
I have Ulcerative Colitis which is very familiar to Crohn's
Two diseases on the same spectrum
@@DrJamesGill Believe it or not, first i was diagnosed with Crohn's when the 1st symptoms started back in May 2018. They diagnosed it very poorly (obviously), without taking biopsy. Then i was on steroids for about 9-10 months. Nothing seemed to work. So we decided to change the doctor. Then i was diagnosed with UC. Now i'm on Humira and life is going quite well, everything seems to be about normal again. Although, i'll never forget the psychological damage and pain that me and FAMILY felt. Currently im happy and very glad for it. :)
That is EXACTLY the issue my sister had, she’s not quite stable yet
10:22 To me that sounds like something an image recognition algorithm could do! Saves that poor consultant from RSI, clicking through all those pictures
I’m sure someone is looking at it
I was diagnosed at 10 years old. Still the single most painful experience of my life during a flare up.
I hope things have improved for you since then?
@@DrJamesGill replying on a video months old? You're the GOAT!
Since 10, I was in remission for nearly 20 years. Generally because I'm careful with foods I know are going to give me issues. In December 2020 I had a mild flare up, mouth ulcers, intense stomach pains and lost somewhere between 20-30 pounds. I'm doing much better now though and mostly stable. :)
I strongly believe there is a huge interplay between diet and a lot of medical conditions. We really should use our dietician colleagues with more patients.
I’m glad that things are better 😊
Excellent presentation thank you
Amazing video!! Thanks for all the informative information. My Ferritin levels are high (670), my platelets are low (129,000), my neutrophils are low, however my white blood cell count is just in the minimum range. My inflammation marker was - 7. Everything else is in range. Could I be deficient in B12 or Zinc or have Crohn's Disease as I seem to go to the toilet for a number 2 more than I think I should? There is a genetic correlation of Crohn's in our family.
Tbanks do much i have si much about crohn's disease . I have go university asseay to write on crohnis assiociated with biome /biota
Thanks i have picked alots of points from you ❤❤❤
I am 17 years with symptoms, Fecal Calprotectin and CRP both raised (CRP has been raised, normal and is raised), H Pylori negative but have had it before and only now am I on a waiting list for Gastroenterology. Coeliac bloods negative. Episodes getting worse, had deficiencies on and off in Calcium, Iron, Vitamin D and B12, Borderline Folate. Tons of gas, worse than ever, discomfort and pain, diarrhoea and sometimes nausea and vomiting. Anaemic on and off for years, lower back pain when I wake that's worse if I stay in bed, (new mattress didn't fix), had lots of rectal bleeding, told it was Haemorrhoids so had a Haemorrhoidectomy, better but not totally, still some dark thick clotted blood (even when no episode). No weight loss but episodes were just a day or two until recently. NO idea what it is but I'm sick of it, it's brutal when it happens
There is a biopsy that can be done on inflamed tissue. At least that is what was done for my diagnosis. I had an endoscopy done but up until that time, when I began throwing up, there had been a year and a half of 'what do you think is going on?' that I was being asked which really galled me to no end. I wish medical staff would stop asking their patients 'what do you think is going on?' because I worked for an internal medicine doctor and that's basically what medical doctors do when they think the patient is imagining things etc. My Crohn's happens in the section of the intestine directly after exiting the stomach but not involving where the enzymes enter. I had my first surgery at diagnosis in '97 and my 2nd surgery just last year Nov '23. I feel lucky and fortunate not to have experienced very much between the two. I hope your sister is doing well and I wish her the best.
15 February 2024
The eye doctor diagnosed me. Eyes get seriously inflamed.
But you can also have a genetic test to be diagnosed
Plz help me in diagnosis good man, i have done all colonoscopy and sigmoidscopy with biopsy and ulcers are not uc or cd but still im bleesing with mucus, my ulcers are found in sigmoidscopy in sigmoid colon and in rectum just 3 to 4 tinny ulcers very distanced from each other, my main symptoms are blood wrapped in musuc on the surface of stool in multiple spots, can we connect, im depressed as no dr can take me seriously, im 33 with no family history
My sister got part of her bowel removed and years later everything got worse. Now we think she has Crohn's. I feel horrible for her
I have IBS and diarrhoea can come on any time and take over your life, are you going to do a video on IBS, I have IBS type 2 diabetes stable angina. Are they all related? My biggest issue at the moment is I get like an internal vibrating in my chest head arms legs,
I’m sorry you’ve so many things going on. Yes we will be covering IBS
Covid don’t help, I had a coronary angiogram at Essex coronary centre in March and that is the only time I have seen a doctor face to face apart from when I went into Colchester A&E I have had IBS for about 30 years and since my heart issue started at the end of last year my IBS has been terrible. Sorry your sister is unwell I hope she has a happy life
From an IBS stand point, I highly recommend talking to a dietician about the FODMAP diet
You CAN look at the broad brush strokes on line, but it should really do done in concert with the dietician. I see good results from patients
I have diverticulitis and was told to go on a high fibre diet which makes worse, so I am thinking it is crohns cause Google say you can't have high fibre
Still awaiting Lucy Brown Part II. We miss you, Lucy!
i actually have Ulcerative Colitus basically all you told makes sense to me since i have had all the exams, meds etc. it took about 2-3 years for my doctor to find the right way to take the burning down, i now have an very effectice med: Infliximab 400ml every 6 weeks. have not had troubles for almost 2 years. :) thank you for the info about this, even tho i have it and know about it this makes alot of questions i have had clearer.
Are you ok now after 2 years
@@ImadAlnumat-f6l yeah the stuff helped massive was without medicine for over a year only recently ive been put back on meds but these are light ones
It took the nhs 5 years to find my crohns then I was to late.
Deberian de poner subtitulos en español, para que pueda entender que dices.
Will eczema and infected eczema be covered
DEFINITELY
With chrones is it only diarrhoea you have? Can it also be on the other end of the scale?
Hello! 2 years ago I strange stools with mucus and even red mucus. So I ran at the hospital and have a colonoscopy ( THEY DIDNT take any biopsy?!!!) crazy. They told me I have IBS.
Everything was gone. No more issues. Now, about 2 years later, I have a stomach and belly pain , I had 1 episode of diarrea a day with some red mucus, it seemed resolved for a 4 days. I even had strong like balls stools, and then diarrhea came back, 3 episodes a day, with belly pain.
I had blood test and showed no inflammation, waiting for my stool test. I also had a few mouth ulcers so I am sure it’s chron…. I’m terrified, I’m even considering suicide… 😭
I think you should speak to your doctor as soon as possible.
If you are in the UK you can call 116 123 to speak to the Samaritans, or attend your nearest hospital if you are having suicidal thoughts
@@DrJamesGill yes I’ll speak to the doctor GI after I’ll get my stool test back.
I’m in thailnd so no, I can’t have access to the mentioned places in the Uk. But I’ll search some mental help as well. THANK YOU for replying. So with blood test that doesn’t show inflammation but due my symptoms, do you think it could still be chron? Thanks in advance
If you have been newly diagnosed with Crohns can I offer the following advice . Carry a bag in your car, work locker etc with a " disaster recovery kit" in it. A change of underwear , baby wipes and a bin bag to put your dirty clothes in. It's embarrising when the S**t hits the fan but being able to change back into clean kit makes the whole thing less of a drama.
Difficult to mental accept, but very sensible 😊
8:22 ah yes I was worried it was the back passage first and the mouth after 😂😂😂
i have crohns and i yearn for the bag. give me the bag!
I'm goin for the camera's soon, both ends, fun stuff.
Good luck!
Sure you will be fine. Andy
Bowels, glorious bowels! All gooey and pooey!’
I was quite shocked that you weren’t inflammatory about me (see what I did there 🤣)!!
🙄
Har. Har
are you born with this or does this develop later?🤔
sounds like a terrible disease! a lot of strength for your sister will be quite tough to live with.
It is something people develop
RED MEAT AND WATER GUYS. İT WİLL HEAL İN 90 DAYS BELİEVE ME.
The asmr sounds are making me agitated 😢
HIPPA has left the chat
?
Crohn's seriously sucks, y'all.
Not to come off as “immature” or something.. but I’d think I’d rather die before having another man put something up my rear end. The concept just sounds demoralizing.
Obviously it could be an important procedure but geez. Hopefully they start adapting those pill sized cameras a company has been working on cuz it seems 99% less invasive or a hassle to get looked at.
Are you here to learn about autoimmune diseases, or are you here to fall gently asleep?
"We can't core a patient out" never mind, I'm not sleeping.
true, if some what "on the nose"
Crohn's is another name for crohnic pain making life miserable