My Story with Ulcerative Colitis - Symptoms, Do's and Don'ts, Medication
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- Опубліковано 31 січ 2021
- This is my personal story with U.C. I hope you find this video helpful and educational
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Just been diagnosed last Wednesday. Such a mental and emotional month. Learning how to watch what I eat and to hopefully gain some weight back!
My heart goes out to you. I feel this 💯 it’s tough.
I have the same thing going on now. The doctor gave me two strong antibiotics and they made me feel worse. Just got off them so hopefully I will be feeling better soon but your story was helpful!
As I write this my son is in the hospital in NYC with colitis. He is 56 and is down to 114 lbs. I saw him at Christmas and I didn't think he looked good, and he was sleeping 12 at a time. I think its been coming on for awhile. He was just been diagnosed yesterday, so we don't know that much about it yet. Thank you for sharing your story. 💕
Damn you had it gnarly. Sorry to hear that you had such a bad doctor at first, that's so incredibly frustrating. Happy to hear you're in remission too. I've been on entyvio for almost a year now, and doing nightly enemas with mesalamine since mine is mostly limited for sigmoid colon.
I've crapped myself when out and about a few times, that's always fun. Hoping for remission soon. Shout-out to everyone else dealing with this and thanks for sharing your story.
Oh gosh bless you too.. yeah.. crapping yourself I can relate to too.. bathroom 20x a day.. its exhausting. Going to er today hopefully they'll help me 😔
I'm so sorry everyone brushed your pain off for so long.. I'm glad you are starting to learn what works for you. I have been "diagnosed" with colitis / gastritis which obviously isn't really an answer. I got a terrible colon infection called C Diff at the age of 18 & was given an antibiotic that almost killed me :( Nothing has been the same since then and several doctors cant figure out what is causing the continued inflammation. I hope one day I also get an official diagnosis. Keep your spirits high & I will try too!
Thank you for posting your story. Best wishes to you
Great video!
Seeing this really helps me on a emotional level as there are people who willl understand my situation. I have been going through a lot of the same symptoms for the last week but as soon as I saw blood it freaked me out that its something serious. Went to the doctor next day and voila I have UC. Have started some meds now and will see how it fares in the next few days and then decide my next step. Thanks a lot :)
Eat real food no processed foods whatsoever no sugar.
I have the same thing, now with this medication helping a lot . Thanks for sharing
My god, your story sounds like a freaking nightmare 😱 You seem good and positive now, but the amount of pain and misery musy be soul crushing back then. So glad you're ok now🤗💖
Thanks for sharing your story Ruby. Are you still receiving infusions of Inflectra? I started receiving Inflectra at the end of March 2023, and this medicine has helped me so much. I'm doing everything possible to give Inflectra the best chance to remain effective: No alcohol, and no caffeine. And I drink a smoothie from homemade kefir each day. And I drink a large glass of water first thing each morning. I wish you and the other people who have UC all the best!
Kefir from cow milk or goat milk
I am from Tamilnadu,india. age 33,same problem over thinking over depression because of my family problem and low backpain also now i taking food proper time with low spice. Thanks for your information.
Ugggggh, you have it way worse than me, i flared once 15 years ago pretty bad and was diagnosed really soon after, was on lialda for a minute until i couldn't get it through my insurance (700$/month)
Stopped altogether but i just had a minor flare. Some discomfort and lots of bathroom visits. Back on genetic lialda and feeling better already
Thanks for sharing.
God bless you
Hi I've just been diagnosed with colitis I feel for you thank you for sharing .
Thanks for sharing
God bless you. I was diagnosed with uc 2 years ago 😔 i took medicine for awhile then I guess I didn't need them anymore? Idk either.. I got food poisoning 3 weeks ago and I've been sick ever since. Laying I'm bed now and am planning to get to an er today😔. Ty so very much for your video.. it helped so much. God bless you please do an update video so we know you're ok!!
Check out listen to your gut she has a protocol that heals UC/chrohns
I plan to do an update video shortly!
Thank you !!! My son has it and it was the same story. But now we are more informed.
Thanks for posting! I was recently diagnosed with Crohn’s and it’s been tough, how does your body react to dairy?
I have colitis its really ruff somedays only had blood few times lots of green puke and diarrhea mine was around covid too pain killers didn't really help me much i went septic is how they found mine i know all about laying in the bathroom floor or in the bathtub with the water on mine flares up around every two weeks sorry you deal with it too you have helped me more than you know
I have this too. I consider myself lucky though. Mine is very mild and other than a few flare ups here and there, I can eat and drink whatever I want.
We have pretty much the exact same journey and same symptons with the blood loss and weight loss. Same medicines and being hospitalised with infusions from then on. Although I have done Entyvio during all this time.
Hi Ruby…are you still in remission? I know sometimes drugs stop working and they change you to another…thanks for your video!
I got diagnosed with crohnes in 2018. I've had to have my gallbladder removed and had 2 kidney stones from this disease. I've been on humira it lessons the disease but doesn't stop. Last week my lips swelled up like a duck and turned bright red.
I feel for you, I was diagnosed when I was 12 and it took me 2 years to get diagnosed. I'm now 26 and Doctors still don't know much about this shitty illness....pardon the pun. You get used to taking the meds🥲 I flare up every 3 months 🤦♂️ and it's not fun. But keep on fighting and pushing on🙌❤️ Massive tip, flushable toilet wipes are a life saver!!!! Stops the sting of normal tp😅
You can heal from UC but it takes years with proper diet, supplements and medication. Meat, seafood, and eggs are super safe foods. Some steamed veggies. Small amounts of fruit. But that's it. No grains, no dairy, no refined sugars, no raw veggies, no nuts or seeds, so nothing hard to digest. UC sufferers need to reduce what's causing the inflammation (medication helps) but it's not addressing the root cause. So diet is essential. Test to see if you have SIBO and SIFO which would contribute to the inflammation and also makes it hard for your body to breakdown foods. Take probiotics, gut collagen and L-Glutamine to restore the gut lining and reducing inflammation.
Hope that helps!
Thanks for the suggestion, but although this route will not work for me like it may for others! My case is very severe unfortunately, and my UC flares aggressively even when I’m not technically sending anything through my GI tract! This past summer I was in my worst flare yet, and I was on a TPN for 45 days. This means I was not eating anything solid during this time (only drinking water and other fluids) and I was receiving all the nutrients I need through my PICC-Line. Even in this case my colon almost had to be removed, but luckily stelara saved it! I plan to make a video in the near future explaining my situation in detail:) thanks for watching my video!
Heal?!!! Wtf are you talking about. It's a chronic disease
Prednisone is so hard to be on long term. So rough.
Infusions are the key!
Diet is the key
Diet, lifestyle and toxins, infections or parasites many times are the cause.
Hello.thanks for sharing
Did u ever use Budesonide rectial foam .
Any side effects ?
I am sorry that you've had this horrible experience with uc. I had uc for 30 years and did everything the dictors told me and only got worse. They wanted to cut part of my intestines out and i said NO! I came across this special diet and eventually got off all meds .. it's called the Specific Carbohydrate Diet. The doctors are pill pushers. Take charge of your own health. By the way, I have been off medication for over 10 years.
yup sadly doctors do not know how to treat and diagnose well. Glad your feeling well now
U looks beautiful😍✨❤
Anyone have a good resource of meal plans I can follow? Overwhelmed trying to put together a week or more list together. So much info.
Some doctors are so freaking useless I was diagnosed in 2002 Age 36 it took almost 10 months and changing health insurance so that I could get a darn colonoscopy 😢😢😢 fast forward 20 years later it’s under control but my hair has fallen out😢. I’m getting ready to get a nutritionist that specializes in gastroenterologist. Blessings
Thanks for sharing
My hair is now falling out too! :( it really sucks but I try to tell myself that it could always be worse. Praying for you❤
Are you on steroids ?
How did you get it under control and managing it since then?
I've been diagnosed with colitis what kind of infusion are you on is it still working? Thank you
Honey, my daughter had the same problem the body still needs to heal it takes about a year if you eat right and supplement. Do you know what is your cal- protectin levels?
I’ve learned over this past year that my case is so severe diet cannot control it. I have to use maintenance meds or get my colon removed unfortunately. Trying to avoid surgery as long as possible
Check out Steven Root videos on peoples testimonials healing UC. Maybe you can reach out to him. Blessings.
Hi, are you still taking medicine. Can we cure it or we need medicines for life time.
@@Vinita1212 we safely ween of all her Meds. She is currently under two alternative doctors. One is a functional Medicine Doctor and the other is an acupuncturist herbal doctor who specializes in autoimmune disorders. So we basically under natural medicine and it has worked amazingly. No symptoms. She has to maintain a healthy diet. It is possible to heal your body and gut.
@@lbabyk can i contact you please. it will be a great help
Very helpful. I am 31 year old and was diagnosed with Ulcerative colitis last year. I was always scare to travel out of town because of my stomach issue. Pain was getting horrible. From last 5 months, I undergone Planet Ayurveda treatment along with diet tips which I follow precisely. Now I am feeling better
Happy to hear that! You really just have to do a lot of research yourself and find a doctor that really wants to help you.
@@rubytuesday2024again thanks dear for sharing such an inspirational video.
Nice, we’re you able to get into remission ?
Same condition I have for almost 2 year now but I still don't know what it is.. From beginning of the first year (2020) my symptoms was constipation with bloating and burning sensation and I fart more than 20X times a day n wherever I have my bowel movement in the toilet nothing comes out and I goes around for more than 2 week. Then I start to go see a doctor but still nothing change even with the medications only the stool came out when I take laxatives.. It goes like this for 5 month and I start to do colonscopy which show nothing except mild rectum inflammation...it goes like this for 1 year and half and in 2022 the right side bowel sound like a drum 🥁on slapping or percussion everyday even after meal which is very scary..Till Now I'm depressed with this stupid thing and even I lost 22 pounds of weight
So sorry you’re going through this. I suggest finding a new doctor! I have 2 horrible GIs that I almost lost my colon because of. You’ll know when you find a doctor that cares about you! Best of luck
People try the carnivore diet it has helped me greatly.
Want to know about pouchities...if anyone here has any Idea..plz share with me
Thank you so much for your testimony, I have recently discovered, I'm shit🤦
Do you still take medicine? Do one who have colitis have to eat medicine life long?
Planet ayurveda in India treat your ulcerative colits from there roots cause.
I don’t think ibuprofen is okay with UC. Tylenol is okay
Oof I can’t have celery no matter how cooked it is
You can eat whatever you want
Yes! As long as my maintenance meds are working correctly. There are still some trigger foods such as raw nuts that I avoid though
@@rubytuesday2024 how are you feeling now?
@@alanjoseph5957 WITH UC Gotta be careful because it can make the symptoms worse so we do gotta watch what we eat. A person that don't have the condition don't understand.
@@aleesharenea1477 righttt. Taking proper medication and diet is important for faster healing..
Helle means hell and buyck means belly in Dutch. Quit appropriate...
So what’s the remedy I don’t get it just talk about symptoms ? Medication is poison
I agree medication is poison, but unfortunately my case is so severe that I have to use maintenance meds or have surgery to remove my colon. Luckily meds have been working for me and I am grateful for them
@@rubytuesday2024 that point big pharmaceutical hook you on meds rest life ..I’m going to try cbd
@@manndesign2003 You have to take medicine Ulcerative colitis doesn't go away on its own. And it's not safe to not take any medicine because the disease can get worse.
Horrible
I m suffering from Ibs so give me your contact number
I appreciate this video sm I was just diagnosed with UC this year🥹 you actually got diagnosed right around the time my symptoms started in late 2020 lol that year really was the worst for everyone! I hope that you’re still doing well and are flare-free!