Hear from a patient with a vestibular disorder

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  • Опубліковано 23 гру 2024

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  • @2BnGodsHands
    @2BnGodsHands 7 місяців тому

    I’m now going through this had about with regular vertigo, which I often have usually if I get water in my ears would cause me to have vertigo really bad, but can usually get through it by doing the maneuvers exercise just recently though had double ear infection had a bad bout of vertigo that went away, but then have vertigo that makes me feel like I’m on a constant drunk spell if that makes sense very unbalanced I throw up at least twice a day. I don’t sleep well concentration is hard sometimes starting to affect my mental status makes me depressed. Starts making myself think I’m a hypochondriac thinking. Maybe it’s just in my head, but I know it’s not, I have an appointment to see an ENT which is going to be in six months which is ridiculous. I go for physical therapy to see if that’s gonna help my right ear constantly feels like it is full and I just took FMLA leave from work because of it all I know is that it really stinks to it and I feel sorry for anybody else that’s having to suffer from it. I’m 57 and I can’t drive.

  • @christopherlauter9403
    @christopherlauter9403 Рік тому

    Very dear friend of mine has this disorder, and it’s changed her in ways. I can’t even begin to tell you. She’s a fighter and yet sometimes this disorder wins what can friends and family do to help her with her journey? Because as you said, there really isn’t much help for people out there. I would love to know how to get in touch with groups that meet thank you for doing this video and hopefully you’ll get back to me. My friend means a lot to me and I really hate that. She struggles with it.

    • @kanna8165
      @kanna8165 8 місяців тому

      Did she recover ? , I had this illness in 2021 after I took corona vaccine, .. the dizziness gone , but brain foggy , forgetting , unfocused is still with me until now .. do your friend recover 100% from this disease or not ?

  • @infamous6097
    @infamous6097 5 років тому

    This wat exactly I’m facing since 2014 till date it’s very painful no one to help n no one to understand

    • @kathleenstrossptmsdptchc4623
      @kathleenstrossptmsdptchc4623  3 роки тому

      I'm so sorry this is happening to you, also. There are so many suffering from vestibular disorders, having trouble finding the help they need. There are now online trainings for international therapists to receive certification. If you know a therapist in your country, have them look at American Institute for Balance. www.dizzy.com/international-vestibular-rehabilitation-certificate/

  • @infamous6097
    @infamous6097 5 років тому

    Hello mam , I am soniya from India I hv been facing vestibular vertigo problem since 2014 till date there’s no change I consulted so many doctors but the answer from them was u hv to live ur life with vestibular n vertigo this is non treatable disease 😔 , I feel like I’m living in a different world I’m not able move out bcz of this problem no one understands my problem wch hurts more . Aft watching ur video I feel little better and confident plz help me to come out of it I’m not working due to this problem no support from anyone I hope u read my msg thank u mam god bless u .

    • @kathleenstrossptmsdptchc4623
      @kathleenstrossptmsdptchc4623  3 роки тому

      Hello Soniya. I'm glad you are finding that you are not alone. The Vestibular Disorder's Association has a lot of information to help you. www.vestibular.org. If you'd like to schedule a video call (skype), please let me know, and I can try to direct your journey.

    • @Lucky_Kumar__
      @Lucky_Kumar__ 2 місяці тому

      Kia hua hai apko....ab aap theek ho ya same dikkat hai