Would I have healed if I DIDN'T get prolotherapy treatments for cervical instability?
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- Опубліковано 19 січ 2023
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Thanks for sharing! I am currently going to Dr. Hauser for prolo for cervical instability and it has helped so much but the curve correction and eating more animal protein is MY JOB and something that will get me to 100% recovery. Also, FAITH, I go to Church and I pray and I BELIEVE through my innate which is connected to higher powers that I AM healing. Thanks Rachael. I admire you for blogging your progress and having so many people share their own sad stories with you, I hope this doesn't cause burnout and that you stay focused on yourself and your happiness. God Bless.
Thank you so much for your kind message, that really means a lot!! So grateful and happy to hear that you are healing!! What an incredible blessing!
How did your injections go? I've done a bunch of pt and neuro plasticity and it only takes me so far when my neck structures slip right back to where they were and I'm back to sqhare one. My hand strength has improved intermittently, , but lots of the neurological symptoms are steadily the same.
Can you curve correct without neck weights?
I am seeing a doctor next week for what I believe I’m experiencing is CCI. I have EDS. I had a reverse curve. My chiropractor fixed it, but it took me a couple chiropractors to find her. She does only cracking for those who need it, but mainly does touching adjustments. She listens to your body by light one finger touching and then she touches other points to tell your body what it needs to fix. She never does cracking on hyper mobility people as it’s too damaging to the joints. It can be for people without hyper mobility as well. She told me to roll up a small towel and place it under my neck while laying on my back for 10 to 15 minutes everyday. After a couple months my neck went from reverse curve to straight to the proper curve. It has stayed that way ever since. Don’t know if it would work that well for everyone, but thought I’d share.
What is the reasoning behind the animal protein?
I can feel a lot of love from you and I’m gonna take everything you said to heart.
I'm so thankful for finding your channel. Looking at your history, we are so so similar. Avid mountain biker and hiker, always active, then diagnosed with eds as well as many of the other fun things that come along with eds. I'm very quickly losing so much of my life to pain and exhaustion. Trying hard to eat more carnivore as much as my budget allows. Can't wait to watch all your videos
You have me so much hope through this video . I was feeling so low and needed some hope. Thank you for continuing to do videos and caring for others who would otherwise not be able to get much data on Eds, CCI.
You do so much for us! We appreciate it so much.
That’s so kind of you to say!
Your content is so relatable and helpful. Thank you! ❤️
So happy to hear that. Glad you're here ❤
Hi! Rachael. I've seen many videos you made. It's great to see you back with a fresh complexion. Thank you so much for sharing your experiences. Since my neck hurt from whiplash, i started to feel sick. I have been having balance problems for a year and half , and other neurological symptoms almost killed me! I found the similarities of your symptoms, which i assumed that i probably had CCI as well. After few times of prp injection, i did see a big improvement. However these symptoms are not completely gone yet, that makes me so sad. And the saddest thing is that i could not be cured because it requires highly skilled doctor to do the procedure in terms of upper cervical injection. I have no idea if i can find specialists in my country. i m losing confidence right now.☹ Anyway , i really wish you the best!
Great to see someone with an open and cautious mind. So many folk get so entrenched in one belief or another, ie veganism or carnivore. Healing is a winding path which means you have to keep your eyes open and adapt where you place your feet!
Hey Rachel! I’ve started my own UA-cam channel as I recover from CCI because so little is out there. Thank you for sharing your story! I am focusing on brai. Retraining alongside other holistic pieces of healing to help repair my tissue, I learned I have hyper mobile CCI and trauma induced! Best of luck ❤️🙏🌻
Do you have heds
I think the quality of the prolotherapist is so important when treating an affected part of the body. The comprehensive approach is by the far most superior treatment.
Im so happy to hear your take on this. Im doing my best to recover from my undiagnosed issues after a car accident... considering the level of disability with no answers i figure its gotta be instability.
Its all made more complicated by dystonia but my brain taught me how to heal it. Working to restore my cervical curve with my brain and its working!
I am convinced that I will make a full recovery without prolotherapy. There doesnt seem to be any problem my brain cant solve.
With your brain? Explain.
Thank you! I now have HOPE!
So happy to hear that ❤️️❤️️
Thank you for sharing your journey! As a long covid survivor, I 100% agree and relate to you. I've been battling chronic neck pain for years and I now am really certain that for me, the neck instability is a factor that was underlying for contributing to long covid. Please continue sharing your story. Blessings 🙌
I am struggling right now with something similar and I can't seem to find help for it. Are you looking into prolotherapy? What else are you looking into?
@@myrtle9471 I am looking into prolotherapy. However, it is not something I want to do just to do it. I'm working on other ways to help as long covid is multifactoral. Are you suffering from long covid?
@@mamamia9884 I don't know if it's long covid. I have been trying to work with a doctor but I haven't gotten anywhere. But my symptoms seem very similar to the ones for cervical instability with blood pressure changes. But I have been seeing where they do think the vagus nerve is involved in long covid. So my friend who is a doctor said maybe that is causing all my symptoms. All I know is that I want to go back to being healthy. I was trying to look into the prolotherapy but I agree with you, I want to explore all my options. Kinda scares me to be honest. Plus the expense is pretty massive. But I also don't know yet if it would be the right solution. I'm kinda lost right now. I was healthy at the end of November. I don't know how people are able to survive so much for so long! I hope you have answers and health soon! You might look into benedryl and long covid.
Happy for you Rachel! Do you have MCAS by any chance? If so, does PRP trigger it?
Hey Rachael! I found your videos a few weeks ago and so I've caught up on your journey in a pretty compressed timespan. You have come so far. It is wonderful to see you looking like you feel energized and comfortable. :D
My background is pretty similar - tick-borne illness, connective tissue destruction, severe CCI/AAI, POTS, IJV compression, Chiari hitting my brainstem. Unfortunately, there's not only laxity but damage (tears) in the upper neck ligaments. (Btw, I tried the Gupta program and can say it didn't help at all - although it was lovely and empowering, and I look forward to enjoying it for vagus nerve retraining once the mechanical damage is corrected. But my issue appears to be really mechanical in origin. E.g., putting on a hard collar immediately drops my heart rate 20-30 BPM ... closer to normal levels.)
So, I am about to try regenerative treatments w Dr. Schultz in CO and if that doesn't work I feel I'm facing a fusion. Having gone through your journey, what is your perspective on my options? Are there any other options besides prolo/PRP/stem cells you see for repairing the tears and tightening the upper neck ligaments?
Again, you are an inspiration and thank you for sharing your recovery journey. Out of a formidable challenge, you have created meaning, provided information, and encouraged others. You go girl!
Brittany
Good luck in CO Brittany! I just saw Dr. Centeno for injections! We got This!!
It would have been more useful to do one thing at a time in terms of telling I guess but totally understand the desire to do it all! Thank you for sharing I’ve noticed massive changes from neck manipulation so am feeling more bolstered by the prolotherapy as an option as I’ve tried the other two methods. I think we do need to do it all!
Hi Rachael, thanks so much for being so open with your journey and experiences ☺️ Do you know anybody who has healed CCI just using brain retraining without other medical intervention?
Also really interesting to see in another comment that you are doing myofunctional therapy - I think the jaw/tongue/breathing/neck are all linked and such a key part in healing. I have tried myofunctional therapy but due to my low energy levels I was unable to do enough of the exercises to build my strength up. Have you come across anything that could give a way round this? 💕
Great Video
Hey Rachael- can you add the podcasts and books you mentioned to the description please?
I'm 33 and use to be a college athlete.
I was diagnosed with upper cervical instability and I have been workout intolerant for 2 years. After covid it got way worse. it's hindered my whole life. Im often off balance, dizziness, air hunger when working out or trying too. Sometimes I have swallowing problems when drinking or eating. Constant Brain fog, occasional nausea, don't handle stress well at all. Tinnitus that hasn't gone away in 7 years. Visual snow hasn't gone away in 7 years. I've had my atlas adjusted many times. Do cold showers everyday (definitely helps). I went to see a prolotherapy doctor and didn't do it cause I didn't feel I trusted him. He just kept talking over me.
I definitely have a vagus nerve issue as well and I need this fixed!
I've tried many diets and ate clean...It's miserable at times, but im living with it. I really miss running and lifting weights and feel and smell like I use too. It's like my whole nervous system is SHOT! 😩
Dude, I found out that my symptoms were MOSTLY coming from my lower neck, despite my upper neck popping and generally feeling unstable.
A few things I tried helped me get back to like 80%. I still feel faint at times, but it's better than not being able to stand up at all without a collar.
A) I was told by a family friend chiro that my pelvis was being pulled by a tight spot under my stomach. I started pulling up that area with my hands (imagine if you had a pot belly and you just pulled it up). This sort of corrected my pelvis problem and my neck started getting better. I find I started breathing a bit better after this.
B) Tongue posture. We tend to keep our mouths open due to the neck and jaw problems. Make sure your mouth is closed and tongue rested on the roof of your mouth. This was and is extremely hard, but helped with stabilization and symptoms.
C) I started taking small doses of Zoloft, a Beta Blocker and Magnesium and Vitamin C supplements. These seemed to have helped a bit
D) Isometric and strengthening exercises to build up neck muscles.
E) Working on trapezius muscle/any winged or weakened scapula.
@AnythingGoes wow that's wild. So what are all your symptoms?
@@johnnyblockchain4238 Mostly my neck and jaw feeling like it was sinking, choking, upright intolerance and feeling like blood wasn't flowing through my neck properly, difficulty breathing, feeling like I'm going to collapse, and so much more.
@@johnnyblockchain4238 Same. I noticed I sort of clench almost constantly though to stabilize my jaw. I also had the exercise intolerance, brainfog etc. It felt like I was drunk or literally mentally retarded at times. Not being able to handle stress was bad for me. For example, if I was in a car and someone break-checked too fast, it would literally feel like I'd have a heart attack. I was also constantly in fight or flight.
Do you find you clench your jaw often? I also have a dowager's hump in my neck. Again though, I've significantly improved over the last few months, but still not where I wanna be ideally.
@AnythingGoes Yup! I got all that. The hump I have and sometimes it's better. It's gotten much better due to correcting my posture and all my symptoms have improved as well. I still haven't worked out much and I still get symptoms on a daily or weekly basis.
I do not handle stress well AT ALL either. It's really disruptive, and it's clearly neurological.
Hi, your story is so inspiring thank you for sharing. I healed from most of my symptoms with DNRS, somatics and trauma therapy. But I still have visual snow and static tinnitus. Today I went to a chiropractor who said my neck is a mess. I saw the rx. Did you have visual symptoms? Did they improve with the injections?
I'm wondering what all helped your neck - the physical therapy, time in the collar, or primarily the DNRS-type work? I saw you mentioned posture in another reply and would love to know if you recommend any specific exercises? I'm seeing more and more people mention that these 'EDS' symptoms improve as they do healing work.
I recently went gluten-free and am eating a mostly Paleo diet. I have bone broth in the crockpot rn :) I noticed minor improvements around three weeks and am hoping to see circulation improvements soon so I'm not in compression stockings all summer!
I've been high-strung and panicky since I was a child, and I believe that caused my problems and then a few things over the years (a shoulder injury, an inner ear infection, trying an SNRI) gave me new/worsened symptoms.
I want you to know that your videos provide me a lot of hope, and I'm sure many others are also grateful for you.
Rachel,
Wow, this video was so timely for me.
I've been having problems with dysautonomia for about 3 months and it all started after a neck injury. But I also was exposed to some black mold and I got really sick in Central America and can remember ripping ticks out of my skin about a year ago.... you know the drill, perfect storm...
Don't have EDS but I do have signs of cervical instability and I'm getting my first prolo on my neck in a few days.
The hardest part of this was me going back and forth between diligently doing my DNRS rounds and then binging Caring Medical videos. One day I'm convinced all my issues are from my neck and the next day I'm thinking "definitely just a limbic system injury." I'm still stuck in that fight or flight mode, but do wonder if I would have been better off just sticking with DNRS instead of trying to desperately get prolotherapy because it "MIGHT be the thing that finally cures me".
Either way, I still need to put in the work with DNRS and lifestyle and let my nervous system heal. I definitely can't do that if I am anxiously waiting for my next Dr.'s appointment saying, "this will finally be it I will be cured!" Prolotherapy takes months anyway.
Just thought I'd share. You're a huge inspiration to me. I'm a fellow work in progress. Glad to see how well you are doing. Keep climbing!
Hey Hayden! I am healing from CCI too and am doing brain retraining. I also like to think of it that the calmer our bodies are the healthier our tissue. We got this! Best of luck!!
@@ItsStabilityTime may I ask how you are healing from cci xxx
Hey Jodie, I am doing multiple interventions to create holistic approach for my healing 1.Prolo below c2 (dextrose), upper injections with prp( above c2 with very special doctor, who also does pICl procedure with stem cells), whole foods and meat based low carb diet, and brain retraining :)
How ya doin now? I also had a neck injury. It’s been 5 months for me
I'm doing much better. Almost "healed" at this point. There is always hope for healing.
You seem lovely Rachael, love your work. You're the first person I've come across with the same condition that mentioned diet and connective tissue. I've started taking type 1,2 and 3 collagen supplements along with others like glycine and proline combining that with only eating nutrient dense foods and exercise i believe i can fix my clunking and cranial sensations. Unfortunately, when i wear headphones with no sound i always hear clunking in my upper cervical and get teeth sensation and muscles spasms, sometimes headaches but i seem to have very early stages and dont have faith in the health system at the moment so im trying to help myself. Would love to chat more!
Same bro. Let me know if you want to talk
H-EDSer here… highly recommending the books “The ALF approach” by Tasha Turzo Moore as well as “Jaws: A Hidden Epidemic” by Sandra Kahn and Paul Ehrlich. For me this type of info as well as learning about Dr. Mew and craniodontists, osteopaths, and myofunctional therapists has been the game changer in my healing.
Thank you for the recommendations!! I have heard of that book and it’s on my list. I’m actually doing myofunctional therapy for my tongue tie & low tongue posture. I may do some sort of palate expansion as well. It’s really interesting to learn about how under developed jaws can affect our overall health (and the nervous system)! Glad to hear you’re making progress.
Traditional orthodontics without addressing the craniocervical junction as well as adult teeth extractions is really contributing to a lot of crippling illnessses in young poeple! 😢
Hi Joelle, really interesting to see your comment, I think healing my jaw/breathing/etc could be really important for my healing too. Plus I got sick around the time I had conventional orthodontics. I have tried myofunctional therapy but my low energy levels meant I wasn’t able to do enough of the exercises to build my strength up. What was it that helped you heal this area if you don’t mind sharing?
Thank you for this
Of course!
I do upper cervical adjustment and do Prolotherapy also PRP injection.
I got prp and prolo and it helped me a lot. Like I couldn't do the dishes or my laundry or cook for myself. Then a few weeks after I could again because my neck was so much stronger. That being said, I also got this hissing tinnitus that has persisted for a year because of it. So there's that. I've seen a lot of people do it and get well but if I had to do it again I probably wouldn't. I met other people that have had the same issue and it's not talked about.
Do you mind sharing where they did the injections?
Tinnitus after prolo? Who did It?
You are inspiring. Do you do any PT?
My nervous system regulation work has helped me with my muscle tension, emotional reactions, etc but I haven't been able to improve my neck / CCI symptoms at all :( I have tried an animal-based diet but I end up extremely bloated because I have difficulty chewing those foods and only do well on foods like smoothies and soups that don't require much chewing. I was so hopeful for prolotherapy and spent so many thousands and it made me significantly worse which is so frustrating when I truly believe I can heal but am doing worse than I was since starting the nervous system regulation in terms of my pain tolerance. I've tried SGB blocks and psychedelic-assisted therapy as well but didn't see any changes. I meditate and do breathwork every day, do check-ins throughout the day to be present in my body. I am not going to give up but it's hard when I believe so strongly in everything you're saying and have dedicated years to these things as best I can but still suffer so much :(
Do you have tmj
@@umars7425 I have TMJ, you? What are your symptoms?
excellent top video
Thank you wow you are amazing and inspiring and could help many others with your journey! 💚
I had these crazy symptoms for 6 months, started of with Brainfog, and Pulsatile Tinnitus in right ear, then developed into pressure headaches and severe pain in right side of neck, side and dull aches in my shoulders. I’ve been off meat for about 10 years , so considering reincorporating meat with connective tissues etc. was your Pulsatile Tinnitus in one ear only
and has you PT gone away now? I still have all these symptoms and they have been debilitating to say the least but seeing your story and healing journey is very inspiring so thank you from my heart and wish you well!
thats a good question if her pulsatile tinnitus go down?
I’m really happy that you’ve found recovery! I am a bit confused, though, as to how positive thinking and diet could have contributed to healing cervical instability. It makes sense where inflammation is concerned and to lower your stress response which cause inflammation. But, how does it help with a structural issue? I know you’ve answered some similar questions, but I’m really curious. I was under the impression that an unstable spine, doesn’t correct itself without intervention. Meaning, spinal stability via rehabilitation, osteo or chiropractic manipulation etc. Any thoughts? Thank you 💕
Thank you for your message! ❤️️ Nervous system regulation is so much more than "positive thinking", it helps guide the body into a state where it can heal itself (creating physiological changes). The body is very intelligent and incredible at healing itself, which is something modern medicine doesn't teach. When you're in a chronic "fight or flight" mode, healing can't take place.
It's easy to get hung up on something being a "structural issue" but its often something the body can repair on its own given the right conditions.
As for diet, often people find that their connective tissue is strengthened greatly when doing an animal-based approach (a diet rich in connective tissue and collagen). I've heard of several people having great improvements and even complete resolution of cervical instability through dietary changes. For me, I noticed significant changes in my connective tissue around 8-12 months into an animal-based diet and am still continuing to improve 1.5 years in.
Another thing I believe is often really important with cervical instability is correcting forward neck posture with cervical instability. An improper neck curve can cut off blood flow from the brain and compress the vagus nerve, which is a huge driver for nervous system dysregulation. It's all connected!
Those are just some of my thoughts on this, take it with a grain of salt! Wishing you all the best. 😊
Hi Rachael :) so happy for you on your recovery journey. RE brain retraining, do you use DNRS and Gupta, or just one? xx
Thank you so much! I started with DNRS and have gone through Gupta as well. I’ve taken things I’ve learned from both and adapted them in ways that work best for me. 😊 I’d definitely recommend only starting with one or the other, as it would likely be overwhelming to do both at once!
I completely believe in nervous system regulation and the brain training but in regards to structural issues I get stuck on believing I can heal that via brain training/nervous system stuff.
For example with your CCI, can I ask what your clivo-axial angle was? Or is? Mine is very acute which we know can be putting pressure on or stretching the brainstem somewhat at that angle. I'd love to believe I could heal this somehow but it doesn't seem possible in my mind to literally shift my spine and stabilise my head via brain training.
What's your take on this?
Thanks for your comment! Personally I believe structural and postural issues do have a huge role in the nervous systems function. That being said, the body has an incredible ability to adapt given less than ideal structural situations. I’ve seen many people find very significant healing with brain retraining and CCI.
Personally, I believe there are many factors to what causes instability-standard american diet, forward neck posture, underdevelopment of the jaw / narrow palate, low tongue posture, etc. For me, eating an animal-based diet has massively improved the strength of my connective tissue over the last few years. Also, correcting my forward neck posture & neck curve has been very helpful (likely even more so than prolotherapy). Doing myofunctional functional therapy and strengthening my tongue tone and correcting tongue posture has made a difference too.
All that being said, my jaw is still very recessed and airway very very narrow (CCI surgery actually made this worse). Those are things that I think will continue to improve in time but there’s only so much change that can happen with the palate/jaw structure when you’re an adult. With all those “structural issues” being there, I’ve still been able to heal and gain my life back. Don’t underestimate the body’s incredible ability to heal and adapt, even in less than optimal circumstances. ❤️
It’s always, always worth giving your all to nervous system regulation and believing healing is possible. Believing healing is possible doesn’t happen over night, it’s a gradual process. Try starting with curiosity, saying “what if i could heal”? Then let that turn into “i think i’m going to heal”, “i believe i’m going to heal”, “i know i’m going to heal”, etc.
I’m truly hoping all the best for you!
@@HealingWithRachael Thank you for such a detailed response. You are an inspiration to so many going through horrendous health issues.
Is there anyone you would recommend online in regards to the best way to appropriately fix forward head posture and neck curve etc. I know there's Dr Houser (I forget the spelling) who seems to do great work but I don't find there's many instructional videos to follow on the channel on what we can do ourselves. We appear to be quite limited here in the UK for help with this sort of thing!
Thanks so much for addressing this. I was curious about prolotherapy but for me it's honestly too expensive. I agree a doctor/drug isn't coming to save us hedsers 🤷♀️
Glad it was helpful!
@Roxana Ianchis: Where are you in Europe? I found a clinic in France, that focuses on upper cervical instability-while searching for treatment for my father in law. I don’t know if they offer prolotherapy, but during my consultation with a chiropractor who specializes in upper cervical stability (gentle manipulation of the atlas, no cracking or popping), he told me prolotherapy isn’t always necessary. Perhaps France is a realistic option 🫤?
My guess is that when you saw your progress from the curve correction and the prolotherapy, that gave you hope and you began to see potential in what your body could do, spurring you on to believe in your healing even further. IMO, it takes something like that to spar that true belief in healing, especially if you have experienced years of being beaten down by symptoms that would tell you otherwise.
I actually had made a lot of progress through 6 months of carnivore/animal-based eating before starting curve correction and prolotherapy. I also had become interested in neuroplasticity and had read several books about it, so was really starting to believe that recovery was possible beforehand! Had I known what I know now about the nervous system, I’m not 100% whether I would have decided to go with prolotherapy before trying other things like brain retraining. But regardless, I’m still glad I did it and it did help me significantly!!
@@HealingWithRachael But what about the structural aspect of it? While I understand how nutrition could help to some degree with your instability, but what could have replaced stabilizing ligaments and correcting alignment? Doesn't all of it work together?
I ask because I (and my 3 sons) have hereditary kyphosis. Nothing so far, has worked, and I am dead set on the fact that there must be a vagus nerve/jugular vein issue.
@@AngelaGWillis Structural aspects can definitely contribute to the nervous system dysregulation and vagus nerve damage. Forward neck posture can compress the vagus nerve and jugular vein (like you said). So it is important to address! What I'm suggesting is that I believe its possible to heal without having expensive prolotherapy treatments in *most cases*. But it certainly can really accelerate healing and be very helpful in the recovery process!
Personally I believe diet is crucial for connective tissue health and can absolutely help to stabilize ligaments. I've seen quite a few people recover through changing diet and brain retraining alone.
Wishing you the best for you and your sons! ❤
@@AngelaGWillis From what I'm learning, diet and positive thinking and prolotherapy go hand in hand. Lax ligaments do need the prolotherapy stimulation but your body responds to it better the healthier you and your immune system are and your ability to heal. I just saw Dr Hauser and asked him and his assistant if the prolo is gonna work for me because I struggle to eat healthy and they told me it is very important in the healing process (also low stress and positive thinking) so they suggested making a goal of cooking at least 1 healthy meal per day to start and then when that becomes routine, cook twice a day, etc. I'm definitely a carnivore but I eat all the bad processed meats 😭
@@JacksonStar4757 Thank you for this reply. I and my three sons all have dysautonomia, hEDS, mcas and comorbidities. My eldest son and I have gut issues from our CCI - we are down to like 5 safe foods. He struggles to just keep it down. It is no longer an issue of eating healthy for us, it is an issue of eating food at all.
Hi Rachel. Is DNS the same as Primal Trust? What is the difference? Which is better? Thanks so much!
Maybe this isn’t your style but have quantitatively tracked your recovery? Like by heart rate variability for vagus nerve regeneration. Do you plateau or is it one constant improvement? Dealing with plateaus is always tricky in all aspects of life; sport, work etc but especially healing
Is it possible to have CCI without having EDS? I have all the major symptoms of CCI but I’m not particularly stretchy or flexible, I’m sort of extra stiff. Still, I spent years laying down with my head bent over forward almost every day watching tv and playing video games, until one day something that felt like an electric shock coursed through my body. From then on it’s been symptom after symptom.
So is it possible to have CCI without EDS?
Your videos are amazing do you think brain retraining can almost allow you to be in state where sometimes cci/aai can naturally heal.I wonder how many people possibly may have had it but did not go down the rabbit hole of testing and looking for answers and it just got better.Just a thought x
I'm wondering the same thing. Adding: how much people suffering from this, have an OCD/problem solver type of personality. Which just increases stress, sympathetic tone, anxiety, etc. But we can not know for sure.
Sorry I have one more comment! Yes nutrition or lack of it will absolutely contribute to wrecking your body. During my sickest I was eating a high carb diet (I'm very thin), messing up my ANS etc and getting all kinds of bizarre symptoms. It's not a coincidence!
I completely agree with you! Processed foods also contains high amounts of toxic seed oils which damage the brain and nervous system!
Did your craniocervical instability show on a lying down MRI? I have been diagnosed with Chronic fatigue syndrome and have had a whiplash before my symptoms started, so I visited a neurologist, but the check he had on me showed nothing wrong. He ordered an MRI of the head with contrast and an MRI of the neck. I am not sure if they will show anything since I read it is very difficult to show unless on an upright MRI which I don't know if we have in my country.
So I actually started to watch the doctor you mention and how she talks about the atlas is so interesting because I have terrible forward head posture and deal with headaches for 4 years daily … I just started seeing a chiro and my atlas is out of place … hope this helps in my journey
Yes, honestly I think forward head posture is a driving cause for instability! It adds so much extra weight onto the head and cuts off blood flow to the brain
@@HealingWithRachael .. another interesting thing is I just got diagnosed with sleep apnea and some chiros say sleep apnea can be caused from forward head posture , being treated with c pap machine and started slight adjustments and physical therapy
You should look into tongue posture and jaw development! It’s related to forward neck posture and sleep apnea as well. Hope you find what works best for you!
Hi I have seen some of your video's and am curious about your fusions. I have C5 - C7 all fused and I believe that has contributed to my instability. What fusions have you had and why did you have them?
I recently was diagnosed with CCI by my physical therapist which I believe is causing my TMJ and my severe migraines and my pots. A lot of symptoms you had. I also have had since I was a teenager and I also have EDS. I'm currently doing physical therapy for TMJ which is where I found out I had CCI. I'm currently having neck pain all the time and it is starting to trigger some of my pots symptoms. I have been carnivore for over a year now and did see improvement in my pots where it went complete remission for a year but now with physical therapy I'm starting to become symptomatic again. I have actually been borderline thinking about getting a cervical brace to wear while I'm at home to help with the neck pain that I'm experiencing. I would like to get your opinion on if this would be beneficial. I am seeking a orthopedic surgeon at this point to discuss about getting a 100% diagnosis of my CCI and to find out what would be beneficial for me
How was carnivore for you? I am thinking of trying this now for my CCI and hEDS. I have severe tmj issues and am getting injections which is helping
@@ItsStabilityTimeTMJ is probably being caused by your CCI. Something that has helped me is dry needling and my jaw and in my neck and then I'm in PT for both of those things and found out that it all stems from not having a strong neck or a strong back. So I am doing functional strength training to help promote a more stable spine and neck
Is the carnivore diet specifically for those who have HEDS? I don't have that but I have AAI.
So, you had an earlier video about all your symptoms. Could you make a video about if those have gone, improved, still being worked on? Thanks Also, you mentioned the fusion. Did that help? Would you do that again?
I may make a video like that eventually but right now I’m trying to avoid talking about any current symptoms I have. I’ve shared about symptoms that have improved in many of my recent videos! As for the fusion, I definitely would not do it again and don’t believe it addresses the root cause of why instability happens. I actually feel it’s made my recovery more complicated. I’ve talked about this in some recent videos as well. ❤️
@@HealingWithRachael thanks! I just recently have been struggling with my health and so, I'm a newbie to your channel. I'll have to keep watching some of the other videos
@@HealingWithRachael I really appreciate you and your channel! I think your bravery is amazing. I keep trying to think " I can recover" but boy it's been so hard at times. That song "our god is an awesome god" keeps going through my head. But also anxiety and doubt. My neck seems to go in and out of place and a host of symptoms seem to come with it. However the doctors here seem to have no idea what I am talking about. If you hadn't done spinal fusion and prolotherapy, would you have tried to strengthen your neck in some other way? Thanks again! You are a really special person!
Please guide best animal based diet in cci. Also tell which supplements & coocking oil you are using to cure upper cervical instability. Please Reply.
Hi Rachael. How is your tinnitus after neck curve correction?
Improving
Concerned that my provider only wants to do c2-c5 when my DMX showed I have instability at c1/c2. When I questioned he said that c1 facet joint is too dangerous with the vertebral artery. Which I thought was the whole purpose of using imaging guidance. Sent him a message asking if he could inject ligaments outside of facet joint to get c1. I’m just concerned if we don’t target c1…nothing will change. $2k is a lot of money to miss a crucial area.
Who are you seeing? Dr hauser does C1 injections
Prolotherapy did nothing for me, 3 treatments.. And I just stopped going.. I just live with constant back pain.
So happy for you! I gotta ask, given that you only started healing and improving once you received prolo treatments, why are you convinced it wasn't the major factor in your recovery, or that you could have healed without it?
I actually had made a lot of progress before I started prolo treatments mostly through an animal based diet, I’m very clear about that. 😊 I don’t see it as “the” major factor in my recovery, but something that helped to accelerate my healing.
@@HealingWithRachael I see I see. What led you to adopt animal based? Considering giving it a whirl. I'll try anything at this point.
Honestly I just read so many stories of it helping people that I decided to give it a try! I researched it for like a month beforehand then went for it. The book Deep Nutrition by Dr. Cate Shannahan has a lot of cool information about how diet affects our genetic expression and overall health, even worth connective tissue disorders!
@@HealingWithRachael Thanks for the recommend. *dashes off to Amazon
I'm considering giving animal based a whirl. After I saw your video last night, I spent basically the rest of the night binging videos, articles, and studies on the carnivore diet.
I tried an elimination diet at one point for a month or so, but I was also doing a lot of other things wrong at that point (mostly bad posture.)
How are things these days by the way? Do you feel like it's behind you? I saw that you went to Caring like 5 or 6 times. yeesh! Hope it's paying off :)
what are cervical instability symptoms? How could we get this checked out?
As I understand you have had a fusion and did dnrs, prp, diet etc on top of that, right? Do you know of people who have healed severe CCI/AAI without fusion? Just looking for hopeful stories to help me through a tough time. Thank you so much for your channel, it's very encouraging!
Yes! Megan Klee is one of them (she has a youtube channel). Several other people have messaged me about healing through animal based diets, brain rewiring, and prolo. Personally I believe if anything, the fusion has hindered my recovery. Everyday I wish I could go back and not have it. Truthfully, I have seen people have much better outcomes without it. But I’m all for anything that helps people heal. ❤️
@@HealingWithRachael wow, thank you so much! ♡ much love to you!
@@HealingWithRachael I am just dreaming up an interview series you'd do with those people who are messaging you about their recovery.. there's too much need for hope and inspiration out here for these stories to not be told publicly! ♡
@@cloedster Yes, I wish more would share! I think the reality is most people move on with their lives when they get better (which I understand). Sharing isn't for everyone and for some it can be triggering! But I really do hope that more will share and I'd love to interview people in the future. :)
@@HealingWithRachael I know!! I already promised myself I WILL share if I do get better, and only then allow myself to move on ;) It's SO needed. Thanks to you and see you soon!
I think your journey is interesting. It's one I have been watching from afar- as I see you post a lot of "fear" related content (fear of modern medicine, "the big man is out to get you" type of shit- which is a rabbit hole in and of itself that a lot of people usually crawl out of after also seeing "natural" medicine is also a for-profit system too) on your IG, and that in and of itself is dysregulating to the body. It is also okay and safe to express negativity, and I hope one day you can be truly transparent about how your journey has evolved instead of presenting it from one, narrowed perspective (I know DNRS requires it now) and that it feels safe in your body to do that eventually. I think you gaining weight from diet changes can help hyper-mobility and laxity a lot too. Lots of factors at play. You also received surgical and injection interventions that naturally take time to recover and improve from. I continue wishing you healing from afar, but also gently expressing that many truths can exist.
Thanks for your comment! I am aware that naturopathic medicine is also for profit, and it is by no means perfect. I saw several naturopaths that lead me astray. The message I’m trying to share is that the body has innate ability to heal through nervous system regulation. And there are so many ways to do that that don’t cost anything at all.
All that being said, I do feel strongly about Big Food and Big Pharma. I recognize what you’re saying about how sharing/reading information related to that could potentially be dysregulating. If anyone feels that way about my content I hope they would unfollow me. I try my best to present information in a way that’s informative but also hopeful. Or funny/light-hearted.
As for sharing the negative aspects of my journey, I know I will get to a place when I’m ready to share more about that. For now it still can be triggering for me, so I’m avoiding it. But I know I won’t need to forever!
I agree there are lots of factors at play. I do not believe the surgery/fusion I had played a significant role in my healing. In fact, I feel it made my recovery more complicated. But, I certainly could be wrong.
Wishing you all the best & thanks for your input!
Do you ever need the neck brace . Or are you free from it for good .
Not anymore during the day! I still have to sleep with it most nights. But I know I’ll get to a place where it’ll be gone for good :)
What exactly is brain retraining
Who did you go to for prolotherapy?
hey Rachel! Glad you're doing well, would you say that you could of possibly healed without the fusion surgery also?
Thank you! I do. If anything I believe my fusion made my recovery more complicated. 😔
…Also regret my fusion,should haveknown about the prolotherapy back then…I think a huuuge problem comes with instability - nothing in the body works right and you body is bombarded with wrong signals…. The message system is fucked up. On every level,from hormonbalanse balacing tomuscle signals. Also the capability to fetch vitamins and minerals from food, and therefor the overuse of minerals and vitamins. And you Get weaker and weaker.
Hey Rachel, could you maybe talk a little more about how instability can affect the nervous system? I think I’m going through that right now and I just need help understanding. I really love you and your UA-cam channel, you make thinking about my declining health a much less doomy feeling 😅❤
(Edit) ALSO the blood flow to the brain and fight or flight response is something I would really wanna know more about :)
It's screwed me up for years I wad always told It was anxiety, mine was mostly caused by gaming
Thank you! My daughter has been suffering for 4.5 years. She is 17 and missed most of middle school and high school.
That breaks my heart to hear. There is so much hope for recovery ❤️
I'm so happy for you!! (baby time)
Thank you!! ❤️❤️
What DNRS program are you in?
Their online course! retrainingthebrain.com/?wpam_id=104 😊
Didn't you also have fusion surgery though?
Yes, if anything that has hindered my recovery. I do no attribute any of my healing to any of my surgeries. I was at my sickest a year after all of them. I’ve talked a lot about this. ❤️
@@HealingWithRachael ok thanks for letting me know because I have cci and I was about to start my healing journey but I didn't know if I would be hindered by not having had surgery first. If that makes sense :)
Does this show on an MRI scan?
Does what show?
Do you mean you did become spiritual, and it helped a lot on your healing?
I’ve always had faith and been spiritual, even when I was very sick-which has always been helpful for me. But nervous system and brain retraining regulation is something very different!
Where are you hearing from people that have recovered from CCI with a meat based diet?
Hey bro do you have this problem? I'm 24 and just realised I probably do and is what is causing my problems.
okay, I see 3 years earlier you were looking at the cervical instability and you had the Raus Hauser on your list who despite as sick as I was when when I re-started on different methods and I was able to latch onto that if I was before so I kan again be healthy and looked for everything alternative that I kan do myself relative to diet especially to be able to re-kall what had I previously done.
The entities around us working with or unknowingly through others around us to block us from being closed and defying listening to being conditioned to being programmed and getting back that gut instinct to defy everything that you kan't do yourself; females TomGirl. How were you personally so extraverted and externalized and where are your spirit pieces stolen to by different extorinist krooks that they still butchered you with a fusion surgery when you were smarter to know not to do that when I listen to what you said back three years earlier?
This is a sign of having been programed to be a submissive to the social order where by like tooooo many others you are stuck inside social konformity inkluding the respect the officials taktik is dangerously embedded in you and through this you are being tortured as you have been.
Plus the embedded subliminals in most advertizing seemly forcing us out of the dynamic and defiant brainwave state... are you with me yet... aka mesmerized or also aka hypnotized. The alpha brainwave state and\or the brainwave state that allows you to be permeated and absorb.
I hear you are still UNDER bekause you are still parroting listen to the alphabet soup you use and you are buying their labels(the labeling game- "My this condition or that condition" and you accept the systems bullshit therapies which if you had your spirit back and your health was healthy you wouldn't listen to their shit at all bekause it is an insult to tour own ability; hypochondria and psychesomatic self-afflickted dis-eases bekause the krooked greedy docs((indoctrinators got into your head)) and there is still some resident evil and\or residual submissive brainwave state kausing you to be in blond acceptance of dangerous rhetoric that most of those scheise docs probably don't follow or believe)
Snap out of the goody goody social konfoormity krap and learn how to get back your spirit and ghost and spirit guides that will kause you to get back or if never having had it the gut instinct.
I am looking at your experience\ situations relative to myself bekause before koming to lincoln for Celerion gig beksuse Goddamned Baltimore, daytona, and new yuck were cheating me for the socialist types and were poisoning me I was very astute at the raw meat but over here I am kompletely over-ridden\ possessed and been blocked from raw meat eating all this koocked garbage and koffee making me Godawful sick and killing me since November 2022.
Jan 1 I added in some fish oil and everything in my lungs started changing. Jan2 I added in some eggs but terrified to mix my staple the meat with it but definite good changes with each. I got the shits again for two weeks in the second week after getting a bad meatball sandwich at kwik shop at 44th and O with those scheiser entities getting in me to eat all that sandwich koocked garbage. The good part was I was able to break the koffee.
I started looking for women either last week or two weeks earlier bekause voice wise the front entity presence is female blocking me from my kvowledge eating all that garbage and I need to get beyond the shitty ones and dumb ones and when I typed in some querry about raw meat you were on the list in youtube but koming from the unhealthy side so to get support against whatever is blocking me