Stiff Person Syndrome Music Therapy
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- Опубліковано 13 вер 2024
- Meet our first SPS guest on our channel, Wendy as we discuss music and how in many ways it can positively impact our well being.
We discuss what music means to us and that with SPS, we appreciate even more that music can be used as self therapy.
We hope you enjoy watching our latest ♥️ Heart to Heart ♥️ !
#stiffpersonsyndrome #sps #music #selftherapy #love #musiclover #musictherapy
I love this bit on music! Seems those of us with SPS have ears that are arbiters of good taste. No harsh jarring abrupt noises for us! Nice that you have Wendy as a guest.
So did we, a big thank you to Wendy for picking this topic. Music is such a beautiful and importahtpart of life!
Music. It is everything to me. Has been my entire life. Began with a guitar as a 1st grader, was like 6 years old. I've a sister, one of 7, that made a career of bringing music in to the lives of school children, a Hartt School alumni.
Only found out after his passing, that my father.was a singing telegram in the late 20s early 30s......
So the apple doesn't fall far from the tree. (Although this particular apple did some long-distance rolling 😅)
Thank God for music.
Saved my life.
We thought, all 3 of us, of music and we decided to do this episode. Thank you for your message 🫶
Great conversation. 🎉
Thank you, we are so glad you enjoyed it! 😊
@@stiffpersonsyndromeHeart2heart My ancestors were musicians. I was also reading about history of music and all these unique frequencies which have shown benefits for our brain and body. In ancient India there were Mantra Chanting which has similar science. Thanks for providing support and bringing excellent information to help people.
@@shivamdubey4829 thank you so much for your comment. Actually one of us played the piano for more than 20 years. 🎶🎵🎹🫶
I have SPS and is/was a brass musician...amateur...I gave up playing because of SPS. What happened was due to the SPS my throat and surrounds got very tense and constricted and my tone was awful. I have had botox and it has helped a bit so back to playing but very privately. As a player I am a small faction of what I use to be. I was encouraged to keep playing by a neurologist , whose wife is a talented trombone player and her was sure it would be of benefit. I had a speech therapist who was a singer ad a graduate of the Sydney Conservatorium and we did singing sessions to assist my voice generally. Now to the botox...I attend one of Australia's leading clinics where I see a professor of neurology, another neurologist and a couple of what is called research fellows. The injection was confronting and painful, but it only lasts several seconds. The results I have had has been that I can swallow and have had no choking episodes...my voice is still just as weak and strained but the but the doctors and the speechie said there was a bit of an improvement. I go back to the Professor in a couple of weeks for more botox. A question for you.....if you have speech problems how is your singing...sometimes it is easier to sing that speak. sometimes I have to yell to be heard. Thanks for reading this.
Thank you for sharing your story with music. This is Lea writing, I played the piano for 20 years and stopped around 8 or 9 years before diagnosis and i have been told by neurologist and other doctors to start again but i am a bit scared that i wont even know how to play…
I also have spasmodic dysphonia and i have done botox twice but had to be put to sleep my muscles were spasming so much it was impossible to do other wise. It helps like you said with swallowing and also i always have a bit of raspy voice if I use it too much. But the first time i did it i had gotten to a point where i had no voice. I couldn’t do speech therapy as every time we did something my inter coastal muscles were spasming. But i got a lot of tips from her especially for swallowing small pills. I don’t sing but like I mentioned I have never lost my voice again but am cautious when it starts to get to raspy that i need to stop talking. I hope this helped a little. Lea 😊
Try some Bob Marley, Beres Hammond, and Sanchez. You will like them
Yes 😎👌