Stiff Person Syndrome Looking Good While Being Sick

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  • Опубліковано 5 лис 2024

КОМЕНТАРІ • 5

  • @Leslie-h1b
    @Leslie-h1b 7 місяців тому +2

    What an eye opener and way to show what serious stuff you go through! Love your way of thinking, humor, honesty, loyalty and style!

    • @stiffpersonsyndromeHeart2heart
      @stiffpersonsyndromeHeart2heart  7 місяців тому +2

      The credit goes to Ilea for her creativity and genius idea. When i came out of the ICU I told her I wanted to do a H2H about being me and with everything that encompasses - we are who we are and our diseases should never take over. I hope everyone enjoys this episode and remembers to never loose themselves. I know I did at some point. Thank you my partner in crime Ilea for putting my words into this episode. Big hug Leslie from both of us!

    • @Leslie-h1b
      @Leslie-h1b 7 місяців тому +2

      I learn so much from you. How on earth do you continually brilliantly blend so many issues in a short video? I love them and appreciate your unique and shared points. You're cool & funky. Love you @@stiffpersonsyndromeHeart2heart

  • @Marilinaa
    @Marilinaa 7 місяців тому +2

    I love this vlog so much! I have in the past few months been putting on makeup and wearing nice outifts in bed (when I have the strength to do it) most days. It helps me feel like me. I can't wear heels anymore either, only flat shoes. I have lost half my hair from my IVIG treatments. Every day chunks come out in the shower. Now I wear a very carefully engineered updo and use colour spray to fill the empty areas. Hey, what can we do otherwise?! This really is a fantastic UA-cam channel, you are a great combo. Thanks. Hope today is a good day for you both - Linda Theron

    • @stiffpersonsyndromeHeart2heart
      @stiffpersonsyndromeHeart2heart  7 місяців тому +2

      Thank you so much! Reading messages like yours is the fire behind our motivation to film these episodes! Together by sharing the good, the bad and the ugly we create an amazing support system! 💕💕💕 big hugs