Відео

Happy New Year from us both! To kick start 2025 our 1st episode touches on our two experiences of the festive end of year season…Not always easy, sometimes adding to our baseline anxiety (we’re still human!), but nevertheless can also remain or start being more enjoyable! ✨ #awareness #podcast #hearttoheart #stiffpersonsyndrome #sps #livinglife

This is SPS! The good, the bad and the ugly! 2025 here we come with so much more episodes and topics to discuss! #sps #podcast #stiffpersonsyndrome #awareness #youtubeshorts #duet #hearttoheart #invisibleillnessawareness

“The Art of Saying No” The closer we get to a new normal, the farther out of reach it can seem…being able to say no when it’s right for you is one of the hardest things to do, but one of the most important. A person with a limiting illness needs to be an artist with their boundaries in order to continue to push forward, without harming themselves.

This feels like a powerful and truthful comeback. Thank you Ilea for articulating something many of us struggle to describe or even talk about because of fear. What is pain when you suffer from SPS…

Welcome back, not quite the episode you all expected but we are back after a couple of months being away. Our next episodes as requested by the community will be posted very soon and will be a short discussion between Ilea and I, our diagnosis and saying hi 👋🏻 We missed you! Expect our ❤️ to ❤️ episodes to delve into more difficult, raw and even more real subjects!

Stiff Person Syndrome What Is Pain? What does it mean? What is it? #pain #awareness #stiffpersonsyndrome #invisible #symptom

We are back for season 2, just taking a little longer than planned. The usual SPS stuff that gets in the way! #stiffpersonsyndrome #awareness #invisibleillnessawareness #podcast

“The Pain Series” Video 2 Pain is complicated, there are no tools to measure it, no definition of how much it can encapsulate and most importantly it can be physical or emotional. And it can be both as i delve more into sharing, I am setting myself up for failure. Pain is subjective, everyone feels pain - so I ask what is pain? It took me some years to try and understand how to communicate the ...

A topic requested by many of you, here is the first video of “The Pain Series”. My recovery post septic shock was/is extremely difficult and pain has been at the epicenter of it. I start with a recent mental breakthrough realizing that no one will ever or needs to understand my pain. I FEEL IT, I FEEL AND SEE WHAT IT IS DOING TO MY BODY AND MIND… However, raising awareness on this invisible sym...

Stiff Person Syndrome Individual Check Ins « Ilea »

Stiff Person Syndrome Individual Check Ins « Lea »

Stiff Person Syndrome Heart to Heart ♥️ Season 2 Teaser

INTERNATIONAL SPS PANEL - PART 2

INTERNATIONAL SPS PATIENT PANEL, PART ONE

Stiff Person Syndrome Inspiration & Dreams

Stiff Person Syndrome Music Therapy

Stiff Person Syndrome Life Before and After Diagnosis, Friendships. Part 2

Stiff Person Syndrome Life Before and After Diagnosis, Friendships. Part 1

Stiff Person Syndrome Looking Good While Being Sick

Stiff Person Syndrome Septic Shock

Stiff Person Syndrome Happy International Women’s Day! #stiffpersonsyndrome #SPS #awareness

Stiff Person Syndrome Ignorance

Stiff Person Syndrome Career

Stiff Person Syndrome Invisible Symptoms

Stiff Person Syndrome Travelling

Stiff Person Syndrome Triggers

Stiff Person Syndrome Social life

Stiff Person Syndrome It’s OK not to be OK

Stiff Person Syndrome Bent Not Broken