I found out last week that I have white matter disease and possibly Binswanger Disease. When I tell my medical friends, they look so negative. I have read so much this week and have determined that I could slow it down with good diet, exercise, and treating my cardiac issues which started with diagnosis of A-fib, then high BP, and high Cholesterol. I take Eliquis, clopidogril, and metoprolol and atorvastatin. I’ve had a lot of stress in my life. Elementary teacher (25 yrs) death of son (17) death of boyfriend (Vietnam)daughter with anorexia (15 yrs) I taken Effexor for many yrs. I am 77 and still work at the local hospital b/c I like it. Haven’t heart from a neurologist yet about appt but I refuse to be worried. You said to write you in the comments so I hope you will reply.
If the white matter lesions are confluent and symmetrical in the presence/history of migraine with aura (especially hemiplegic migraine), being investigated for a possible CADASIL diagnosis (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy) is recommended - it’s a genetic cause of migraine (and often misdiagnosed as MS).
Hi . I’m a 45 years old lady . I have got 3 migraine spots ( hypertensives ) on my brain . I’ve got these terrible headaches for about 20 years. The doctor have given me Topiramate tablet but I’m too scared to take them. Could you please help me to know if I can trust this tablet to take? And what do you recommend me to do other than those you explained in your video ? Thank you
Hi i have being suffering from migrane since i was 15teen years old and i also had an MRI Scan in febuary and i found out that i have got a white matter but i have never ever drank alcohol but i have got medication but i found out its on a frontal lobe i have got another hospital appointment next month so i am just waiting for my next hospital appointment
Stress, hormone and blood sugar dysregulation, toxic environments and so much more affect our brains and can cause build up or break down. Lifestyle is everything
Hi--in an MRI done in 2015, the radiologist diagnosed a "mild volume of white matter hyperintensities" that were consistent with chronic ischemic small vessel disease. Another MRI done two weeks ago showed a mild increase in those WMHs in the frontal lobes. I'm scared to death of dementia (specifically vascular dementia) and have been a migraine sufferer since menstrual onset at age 12. I'm 50 now.
2021 - Just received results and I’m terrified. I’m sure no one will see this but, I’m in my early 40s, hypotension and don’t do drugs or alcohol. How could this be?
@@MigraineProfessionalcan you say what those things are please? I’m trying to find anything possible to help my aunt, she’s already losing memories & she also has bad case of Bell’s palsy so both of these has caused her problems with her speech
Shemiriah Rice Hi my name is Shemiriah Rice and I'm 29 years old and I have white matter lesions in my brain I got an MRI with contrast on in August of this year 2022 and I don't have migraine headaches but I have white matter neuro degenration lesions. But I have vertigo/dizziness and nerve pain that comes and goes I have been suffering with vertigo for the last 4 years now and nerve pain that comes and goes for the past 13 years now since I was 16 years old and still no diagnosis yet for any of my conditions yet. Which I'm really getting fed up with because I need answers. Another thing my vertigo use to come sometimes once a year sometimes twice a year and three times a year now it comes once every several weeks. It can sometimes last a few seconds to a few minutes now if I don't sit down I can pass out while it's happening. The nerve pain comes and goes once every several months when I get the pain it can last sometimes a day, sometimes several days and then go away on it's own or last for weeks/months and never go away with out medical intervention. I was hospitalized for it 3 times once in the summer 2009, once in January 20th 2013 and once in the summer of 2014. In January 19th 2013 I woke up with the pain throughout my in tire body I was so sick it felt like all my muscles, my ligaments and my in tire body was torn inside out along with someone beating me with a baseball bat to death. That is how the pain felt like no joke I am not exaggerating either. I was shocked that I felt that shitty and I was waking up for school the first day of the new semester and I was so exhausted because I was so sick and wanted to stay home. But I felt like that is not good to stay home on the first day back to school from Christmas vacation. When I was in school for my three classes I would sit down at the deck and fall asleep throughout the whole class period because I was so exhausted and sick with my illness I was waking up every time the bell rang to go to the next class. After my school day was over I was walking home I was getting worse and worse when I got home I was so glad I got home I changed my clothes, tried to study what I have learned in my previous semester but couldn't was was so ill and tired. I fell a sleep asap. My mom came home from work my sister woke me up to go help my mom cook chili for dinner and I got the chair to get the ingredients out the cabinet and I told her I'm not felling well and went back to sleep. Then my mother woke me up when dinner was ready I ate but really didn't have much of an appetite due to me being sick and fatigued. The next day I got twenty times worse I woke up being barley able to walk I was not much mobile I was walking to the bathroom and my legs were spreading out out of my control and I was hunching back where I couldn't stand up straight. My mom Adrienne saw me and said I oh my god and took me to the hospital. Got to the hospital sat in the waiting area until I was seen then once I got seen waited for a doctor to come in and once the doctor came in they gave me IV medications and asked me these questions Hi how are you today, what brings you here today, what is your symptoms and are you sexually active and I answered all these questions. I said not good because I was sick, I told them I have a condition where the pain comes and goes from time to time and it moves to other parts of the body and at that time I thought it was joint pain when it really was nerve pain so I told them I have joint pain and the pain spread to my in tire body. The doctor said ok from scale from 1-10 how bad is the pain I said a 10 he said ok we will give you morphine as well I said ok? he came back in the room and injected me with the morphine medicine as well I continued to tell him more of my symptoms such as being barley able to walk and my legs spreading out out of my control and me being hunched back without my control and feeling extremely exhausted where it was so hard to keep my eyes open and staying awake a sever muscle weakness as well and hardly an appetite to eat. I also answered his question about being sexually active and I said no I'm a virgin never had sex a day in my life he said ok. Now I gotta be honest I felt kinda weird when he asked me are you sexually active because that had nothing to do with my condition or why I was there. He also told me we will do some tests such as blood work, ex ray of my joints, test me for arthritis and Lupus. I said ok as hours has past I started to get a new symptoms I started to get tremors to my entire body shaking uncontrollably along with feeling light headed/dizziness, vertigo and disoriented. The doctor came in and was shocked that I was shaking uncontrollably and said I'll get a wheel chair he brought a wheel chair in my mom helped get seated in the chair to get my ex ray done.I got the test done and waited for the results the nurse came in checked my blood pressure and heart rate my blood pressure was good but my heart rate was really high and she too was shocked that I was shaking trembling as well. Then another nurse came in and did the blood work. I was trembling non stop the whole time for hours on end. I waited for all my test results and my blood work did show high muscle enzymes in my blood, muscle damage and my vitamin D was a little low, but the lupus test was negative, arthritis test was negative and so was the ex ray of the joints test was negative. When they told me about my blood work that there was muscle damage, high muscle enzymes and my vitamin D was a little low I very was concerned about my muscle enzymes and muscle damage I was not that concerned about my vitamin D though. I asked him what was causing my muscle damage and my enzymes being high he said I don't know he had no clue. He said good news you don't have arthritis or lupus then me and my mom asked him so what's causing the joint pain because at that time I thought it was joint pain when in reality it was nerve pain he said I don't know there was no diagnosis or prescription. Me and my mother asked him more questions such as what causing Shemiriah to feel these pains to her entire body, extreme fatigue can't stay awake, muscle weakness, no energy, can barley walked leg spreading out, back hunched all the way down, dizziness, light headed, vertigo, tremors and being a little disoriented he said I don't know he asked me and my mom Shemiriah would you like to be discharged today or admitted here in the hospital my mother said no my daughter is staying here in the hospital he said ok will get you a room upstairs. After he left to put the information in the computer so I can get admitted my mother was annoyed that he was going to discharge me knowing that I was getting sicker and still not walking very well. Then about a hour later I felt like I needed to use the restroom Adrienne my mother asked nurse where's the bathroom the nurse showed us where the bathroom was. my mom helped me get to the bathroom as soon as we got there I fainted. After I woke up mom and nurses and doctors put me in my wheel chair and back in my bed. The nurse said will get a bucket and some toilet paper so she can use the bathroom here and my mom said okay that's fine. I used the bucket to pee and wiped myself with the tissue they gave me. That night I was finally admitted to my room upstairs and they continued to give me IV medications, morphine medications and they gave me a blood thinner medication when I got admitted to prevent a blood clot, to prevent a heart attack, to prevent a clot blood from going to my heart or lungs and a stroke and for me being barley unable to walk. A year later in the summer of 2014 I was sick with the nerve pain most of that summer everyday all day long the pain was in my lower back, my butt/buttucks and legs/thighs.
@@namyiamoore9251 No unfortunately there's no diagnosis yet or improvement in my health I'm plaining on saving money to get the diagnosis in another town or city outside of Middletown NY where I live because they can't diagnosis shit a lot of people complain about the Crystal run health care clinics in Middletown NY where I live because those patients too go weeks, months, years and even decades before they get the right diagnosis and to me that's criminal.
@@meandcadasil7093 I will do just that I'm thinking about going to see a neurologist else where ,but I would definitely ask them to test me for cerebral small vessel disease.
Hey I am 16 years old and I did my MRI recently and it shows “There is a solitary 3 mm focus of T2-FLAIR hyperintensity in the right frontal deep white matter (series 10, image 27), nonspecific. No abnormal lesions are present within the corpus callosum, brainstem or cerebellum.” Can you please tell me if this means I have white matter disease because I am freaking out so much.
I just got diagnosed with significant preventricular and deep white matter disease. Im scared to death. i have a daughter with special needs and she depends on me . Is there anything I can do to stop the progress and anything? Does this mean I may pass away soon? 😢
My mother has developed over the last 18 months: Short term memory loss Balance /falling Loss of appetite Fatigue ,sleeping a lot more. Is this a possibility White matter disease ? She is 82
My wife was diagnosed via MRI with white matter abnormality yesterday. She has an appointment to a neurology in 20 days. But we are so confused and scared.
All of the tools to heal your brain are in your hands and the actions that you take in your lifestyle and environment are the most important. Reach out if you need help
@@MigraineProfessional Hello, thank you for such informative video. My mum has also been diagnosed via MRI with white matter abnormality recently. She eats a very healthy spectrum of the above-mentioned foods. However, she smokes 🙄 and has for most her life. She was in a motorcycle accident two days ago because she’s been having MS like symptoms/episodes but they have not diagnosed her with MS. They gave her very harsh drugs after her initial MRI but they made her ill. She cannot take them, nor do I want her to if that’s what they do to her. She will be in the hospital as they performed a 12.5 hour surgery in her extremities yesterday. If you have any tips as to how to get her leaky gut healed to help aid in the promotion of better and faster brain immunity - I would really appreciate any specifics or special remedies that can aid the promotion of faster healing. I don’t think she will be smoking after what happened Wednesday and will have no choice than to quit. But with all of the drugs from the hospital, anesthesias etc.. I would love to know if you have any remedies. 🙏🏼
Cultivating bro🙏🏾💪🏾✊🏾
I found out last week that I have white matter disease and possibly Binswanger Disease. When I tell my medical friends, they look so negative. I have read so much this week and have determined that I could slow it down with good diet, exercise, and treating my cardiac issues which started with diagnosis of A-fib, then high BP, and high Cholesterol. I take Eliquis, clopidogril, and metoprolol and atorvastatin.
I’ve had a lot of stress in my life. Elementary teacher (25 yrs) death of son (17) death of boyfriend (Vietnam)daughter with anorexia (15 yrs)
I taken Effexor for many yrs.
I am 77 and still work at the local hospital b/c I like it. Haven’t heart from a neurologist yet about appt but I refuse to be worried.
You said to write you in the comments so I hope you will reply.
@MarieLumpkin-q2s hey Marie, hope you are doing well!
@@MigraineProfessional Feeling well, thanks.
If the white matter lesions are confluent and symmetrical in the presence/history of migraine with aura (especially hemiplegic migraine), being investigated for a possible CADASIL diagnosis (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy) is recommended - it’s a genetic cause of migraine (and often misdiagnosed as MS).
Hi . I’m a 45 years old lady . I have got 3 migraine spots ( hypertensives ) on my brain . I’ve got these terrible headaches for about 20 years. The doctor have given me Topiramate tablet but I’m too scared to take them. Could you please help me to know if I can trust this tablet to take? And what do you recommend me to do other than those you explained in your video ? Thank you
Did this help you? My aunt had the same & she’s losing her memory fast 😢
Yes, mine are unspecified... I need to go back in 6-9 months for another mri.
Hi i have being suffering from migrane since i was 15teen years old and i also had an MRI Scan in febuary and i found out that i have got a white matter but i have never ever drank alcohol but i have got medication but i found out its on a frontal lobe i have got another hospital appointment next month so i am just waiting for my next hospital appointment
Stress, hormone and blood sugar dysregulation, toxic environments and so much more affect our brains and can cause build up or break down. Lifestyle is everything
I have white matters hyperintensities
VERY INFORMATIVE..!!!
How did they get there?
Are olfactory hallucinations, loss of balance, a feeling of getting off a boat, and Dystonia,
a migraine? What is gliosis?
White matter decrease & cerbral astropy because neurofibromatosis Gentic disorders weather is linked ??
Please respond to my question
Hi--in an MRI done in 2015, the radiologist diagnosed a "mild volume of white matter hyperintensities" that were consistent with chronic ischemic small vessel disease. Another MRI done two weeks ago showed a mild increase in those WMHs in the frontal lobes. I'm scared to death of dementia (specifically vascular dementia) and have been a migraine sufferer since menstrual onset at age 12. I'm 50 now.
There are so many things that you can do to improve brain function blood flow mitochondrial capacity etc, do not give up hope!
Menopause changes due to lower oestrogen is shown to cause greater risk of migraines. Google it. X
2021 - Just received results and I’m terrified. I’m sure no one will see this but, I’m in my early 40s, hypotension and don’t do drugs or alcohol. How could this be?
@@MigraineProfessionalcan you say what those things are please? I’m trying to find anything possible to help my aunt, she’s already losing memories & she also has bad case of Bell’s palsy so both of these has caused her problems with her speech
Elle, did you have any small strokes?
Shemiriah Rice Hi my name is Shemiriah Rice and I'm 29 years old and I have white matter lesions in my brain I got an MRI with contrast on in August of this year 2022 and I don't have migraine headaches but I have white matter neuro degenration lesions. But I have vertigo/dizziness and nerve pain that comes and goes I have been suffering with vertigo for the last 4 years now and nerve pain that comes and goes for the past 13 years now since I was 16 years old and still no diagnosis yet for any of my conditions yet. Which I'm really getting fed up with because I need answers. Another thing my vertigo use to come sometimes once a year sometimes twice a year and three times a year now it comes once every several weeks. It can sometimes last a few seconds to a few minutes now if I don't sit down I can pass out while it's happening. The nerve pain comes and goes once every several months when I get the pain it can last sometimes a day, sometimes several days and then go away on it's own or last for weeks/months and never go away with out medical intervention. I was hospitalized for it 3 times once in the summer 2009, once in January 20th 2013 and once in the summer of 2014. In January 19th 2013 I woke up with the pain throughout my in tire body I was so sick it felt like all my muscles, my ligaments and my in tire body was torn inside out along with someone beating me with a baseball bat to death. That is how the pain felt like no joke I am not exaggerating either. I was shocked that I felt that shitty and I was waking up for school the first day of the new semester and I was so exhausted because I was so sick and wanted to stay home. But I felt like that is not good to stay home on the first day back to school from Christmas vacation. When I was in school for my three classes I would sit down at the deck and fall asleep throughout the whole class period because I was so exhausted and sick with my illness I was waking up every time the bell rang to go to the next class. After my school day was over I was walking home I was getting worse and worse when I got home I was so glad I got home I changed my clothes, tried to study what I have learned in my previous semester but couldn't was was so ill and tired. I fell a sleep asap. My mom came home from work my sister woke me up to go help my mom cook chili for dinner and I got the chair to get the ingredients out the cabinet and I told her I'm not felling well and went back to sleep. Then my mother woke me up when dinner was ready I ate but really didn't have much of an appetite due to me being sick and fatigued. The next day I got twenty times worse I woke up being barley able to walk I was not much mobile I was walking to the bathroom and my legs were spreading out out of my control and I was hunching back where I couldn't stand up straight. My mom Adrienne saw me and said I oh my god and took me to the hospital. Got to the hospital sat in the waiting area until I was seen then once I got seen waited for a doctor to come in and once the doctor came in they gave me IV medications and asked me these questions Hi how are you today, what brings you here today, what is your symptoms and are you sexually active and I answered all these questions. I said not good because I was sick, I told them I have a condition where the pain comes and goes from time to time and it moves to other parts of the body and at that time I thought it was joint pain when it really was nerve pain so I told them I have joint pain and the pain spread to my in tire body. The doctor said ok from scale from 1-10 how bad is the pain I said a 10 he said ok we will give you morphine as well I said ok? he came back in the room and injected me with the morphine medicine as well I continued to tell him more of my symptoms such as being barley able to walk and my legs spreading out out of my control and me being hunched back without my control and feeling extremely exhausted where it was so hard to keep my eyes open and staying awake a sever muscle weakness as well and hardly an appetite to eat. I also answered his question about being sexually active and I said no I'm a virgin never had sex a day in my life he said ok. Now I gotta be honest I felt kinda weird when he asked me are you sexually active because that had nothing to do with my condition or why I was there. He also told me we will do some tests such as blood work, ex ray of my joints, test me for arthritis and Lupus. I said ok as hours has past I started to get a new symptoms I started to get tremors to my entire body shaking uncontrollably along with feeling light headed/dizziness, vertigo and disoriented. The doctor came in and was shocked that I was shaking uncontrollably and said I'll get a wheel chair he brought a wheel chair in my mom helped get seated in the chair to get my ex ray done.I got the test done and waited for the results the nurse came in checked my blood pressure and heart rate my blood pressure was good but my heart rate was really high and she too was shocked that I was shaking trembling as well. Then another nurse came in and did the blood work. I was trembling non stop the whole time for hours on end. I waited for all my test results and my blood work did show high muscle enzymes in my blood, muscle damage and my vitamin D was a little low, but the lupus test was negative, arthritis test was negative and so was the ex ray of the joints test was negative. When they told me about my blood work that there was muscle damage, high muscle enzymes and my vitamin D was a little low I very was concerned about my muscle enzymes and muscle damage I was not that concerned about my vitamin D though. I asked him what was causing my muscle damage and my enzymes being high he said I don't know he had no clue. He said good news you don't have arthritis or lupus then me and my mom asked him so what's causing the joint pain because at that time I thought it was joint pain when in reality it was nerve pain he said I don't know there was no diagnosis or prescription. Me and my mother asked him more questions such as what causing Shemiriah to feel these pains to her entire body, extreme fatigue can't stay awake, muscle weakness, no energy, can barley walked leg spreading out, back hunched all the way down, dizziness, light headed, vertigo, tremors and being a little disoriented he said I don't know he asked me and my mom Shemiriah would you like to be discharged today or admitted here in the hospital my mother said no my daughter is staying here in the hospital he said ok will get you a room upstairs. After he left to put the information in the computer so I can get admitted my mother was annoyed that he was going to discharge me knowing that I was getting sicker and still not walking very well. Then about a hour later I felt like I needed to use the restroom Adrienne my mother asked nurse where's the bathroom the nurse showed us where the bathroom was. my mom helped me get to the bathroom as soon as we got there I fainted. After I woke up mom and nurses and doctors put me in my wheel chair and back in my bed. The nurse said will get a bucket and some toilet paper so she can use the bathroom here and my mom said okay that's fine. I used the bucket to pee and wiped myself with the tissue they gave me. That night I was finally admitted to my room upstairs and they continued to give me IV medications, morphine medications and they gave me a blood thinner medication when I got admitted to prevent a blood clot, to prevent a heart attack, to prevent a clot blood from going to my heart or lungs and a stroke and for me being barley unable to walk. A year later in the summer of 2014 I was sick with the nerve pain most of that summer everyday all day long the pain was in my lower back, my butt/buttucks and legs/thighs.
Any luck with a diagnosis or improvement in your health??
@@namyiamoore9251 No unfortunately there's no diagnosis yet or improvement in my health I'm plaining on saving money to get the diagnosis in another town or city outside of Middletown NY where I live because they can't diagnosis shit a lot of people complain about the Crystal run health care clinics in Middletown NY where I live because those patients too go weeks, months, years and even decades before they get the right diagnosis and to me that's criminal.
See a neurologist for investigation of possible CSVD (cerebral small vessel disease).
@@meandcadasil7093 I will do just that I'm thinking about going to see a neurologist else where ,but I would definitely ask them to test me for cerebral small vessel disease.
Hey I am 16 years old and I did my MRI recently and it shows “There is a solitary 3 mm focus of
T2-FLAIR hyperintensity in the right frontal deep white matter (series
10, image 27), nonspecific. No abnormal lesions are present within the
corpus callosum, brainstem or cerebellum.” Can you please tell me if this means I have white matter disease because I am freaking out so much.
I have these. I think it's from tbi but I'm not sure. I used to drink a lot of alcohol though too. Not really good.
Told I have white matter disease. See neurologist on Monday. Am scared. Had a demyelinating disease 30 years ago. Can this be from that?
I just got diagnosed with significant preventricular and deep white matter disease. Im scared to death. i have a daughter with special needs and she depends on me . Is there anything I can do to stop the progress and anything? Does this mean I may pass away soon? 😢
My mother has developed over the last 18 months:
Short term memory loss
Balance /falling
Loss of appetite
Fatigue ,sleeping a lot more.
Is this a possibility White matter disease ?
She is 82
What is life expectancy?
sorry I don't think I understand the question?
My wife was diagnosed via MRI with white matter abnormality yesterday. She has an appointment to a neurology in 20 days. But we are so confused and scared.
All of the tools to heal your brain are in your hands and the actions that you take in your lifestyle and environment are the most important. Reach out if you need help
@@MigraineProfessional Hello, thank you for such informative video. My mum has also been diagnosed via MRI with white matter abnormality recently. She eats a very healthy spectrum of the above-mentioned foods. However, she smokes 🙄 and has for most her life. She was in a motorcycle accident two days ago because she’s been having MS like symptoms/episodes but they have not diagnosed her with MS. They gave her very harsh drugs after her initial MRI but they made her ill. She cannot take them, nor do I want her to if that’s what they do to her. She will be in the hospital as they performed a 12.5 hour surgery in her extremities yesterday. If you have any tips as to how to get her leaky gut healed to help aid in the promotion of better and faster brain immunity - I would really appreciate any specifics or special remedies that can aid the promotion of faster healing. I don’t think she will be smoking after what happened Wednesday and will have no choice than to quit. But with all of the drugs from the hospital, anesthesias etc.. I would love to know if you have any remedies. 🙏🏼
few patchy nonspecific t2/flair hyperintensities foci in the left frontal lobe subcortical white matter
what does means