Hang in there,,,,Its getting tuff in the medical field,,, I Medicare, and they don't want to do much anymore,,,, I sometime feel that they done all they can and you have limited time,,,,SO we have to hang in there,,,,
@@JUSLUKING You know it's really a bad situation all around but particularly for the patient and the family and loved ones. If doctors are somehow picking and choosing the way they treat patients based upon insurance than to me that's their choice but it's not exactly the hypocrites oath.
Hello, and thx for your videos. I was diagnosed with advanced liver cirrhosis in January 2022, had no clue that I had it prior to that! Really don’t have anyone to talk to about the struggles and challenges that come with the condition, and it’s been a rough way to go alone. Wishing the best possible outcomes in life for ya, bud…
Positivity is like I believe in the existence of heaven and it's down here as well as above.and we all are going their for whatever reason..and I feel like insomniac are more will8ng to sleep for rest of the life which They can't get down here...death is just like a sleep nothing serious
I’m a 1st time viewer, I have NAFLD and I need to know who do I need to go see a Gastroenterology or a liver specialist? Who do you recommend? I have been medically gaslit for sooo many years it’s very upsetting. Thank you for sharing your story. I liked, subscribe and hit the bell 🔔.
I haven’t done a live yet, not that I’m opposed to it. I would start with your regular doctor and get a referral to a GI then the GI to get a referral to a hepatologist (liver Doctor) there are not as many of them around, I have to travel 4 hours to see mine. Every one’s situation is different, the liver does different things to different people. It was very confusing when I first got the diagnosis they just called it Alcoholic cirrhosis. They didn’t do any test on the why I had it. Just I drank for 2 years and that’s it. Well I go to SLU in St. Louis now. They are great there. But I also am being evaluated for another disease that may be the cause of all of this, it’s a connective tissue disorder, I lost the ability to swallow liquids and solids and it’s neurological. So they were a big help in that. But you can go to liverfoundation.org/ they have lots of stuff to help there, including liver doctors.
@@Redneckkenobi I’m sorry you are going through this. Scary stuff. I’m wishing nothing but the best outcome for you. I appreciate you taking the time to respond to me. I was hoping you could do a live for maybe a Q&A with your followers. Thank you for all the info. I look forward to your next video. Take care.
@@Mamacita-6 thank you for your kind words, so I will do a live, but I’ll have to look at when. Right now I’m having troubles with my health. Let me figure out what’s going on and get then I can get you a date. I’ll also make a video about it.
So glad I found your channel. So many questions about this. Thanks for sharing about your experiences with HE , and the "insanity " that comes that comes with that. I know someone with liver disease and it seems their personality changed for the worse. We met for dinner after a 15 year separation. He just started verbally attacking me. Telling me how difficult I was; and all sort of abusive words. I left in tears. In my studies on liver desease, sounds like he was Sundowning? Is this something that you experience in a dim room?
HE can be tough, I can’t say that dim lights effect this, these changes are caused by ammonia spikes that essentially poison the brain. It’s an odd feeling and there’s different levels of. Like before I knew I had liver disease I was on auto pilot for 2 years. Like some took the keys to the car. I have a lot of memory black outs. Also there have been times I knew I wasn’t mad but my emotions said I was. That’s an odd feeling. As far as darkness, I could possibly see how if you already were in an altered state that dark could bring on depression or poor thinking. When you have this a lot goes through the mind and it’s very hard to sort it out. It’s very common for people with liver cirrhosis to need anti depressants. I mean you look it up it says 2 years you have. But like anything on the internet it’s not always true. But that hits hard. I’m sorry you were left to feel that way. And I’m sorry to hear about your friend. The biggest thing is finding purpose and staying positive. Oh and maybe tell them to leave a light on 😊 take care and stay strong
@@Redneckkenobi Thanks for the insight. I am not around this person, but after listening to you, I can imagine it's pretty hard on them. I am noticing that they are not staying on a job no more than one or two years. So I am thinking they are having problems getting along with other people now.
@@EvanStar-hc6wjit’s hard to know what anyone is really thinking. Especially when going through something that’s life changing. Some people get bitter. Just angry with life or God.
27 years old, I have been drinking every day for eight years. not large doses, rarely when I reach 2 per mille, but 3-5 beers every day. Is there a chance that there is no cirrhosis? my liver results are bad but not terrible alt 22 ast 27 bilirubin 0.51 prothrombin time 13.1 norm 12.3 inr 1.18 the only symptoms I have are on my skin scars do not heal and I have something similar to spider veins on one leg
I know it's usually later in life that EDS manifests but 'm surprised it's only now beginning to manifest.... I have met a few people witht the condition, so I saw how disparate the symtpoms could be. But I always thought that hyperflexible joints and daily joint dislocations is the common thread
No I’ve been in constant pain since I was a teen, I spent years going to doctors about it. Never got anywhere. The swallowing stuff and hernias started about 3 years ago. I’ve always been really double jointed
Hey buddy, how you doing today? Ok I hope…just wanna say, don’t apologize for the ignorance of haters. They ain’t there by your side on your bad days, nor are they worrying about you on your worst days. Just be yourself, cause no ones perfect brother …stay strong and keep going 👍🏻👍🏻👍🏻 invite Jesus into your life, he’s the only one there wanting to care for you, just let him …have an awesome day man ❤❤❤
I don’t worry about haters or bad comments. Unless is something that is correct. And I am a believer. His grace is sufficient. And I’m ok with that. Take care and thank you 😊
I was wondering if Medicaid would help pay for a lover transplant? Has anybody had any experiences and whatever state you are? I just want more opinions. Thanks for the videos ❤
@@Redneckkenobi I guess the main thing I'm asking is how does a person know where they are on the list or how many people are ahead before they get an opportunity? I've only heard that doctors or people who choose these things prefer patients who is insurance other than Medicaid. Not just dealing with transplants. I know a man who had stomach cancer and lost his job because he couldn't work. He was put on Medicaid and they would only give him a certain amount of treatments per cycle. I don't know if it's the truth or not. He was not getting what I call top notch treatment. I don't know if there's any truth to these things. These are just things I've heard from other people about Medicaid. I've heard some doctors and other people elude to doctors not getting as much money through Medicaid as they would through maybe Blue Cross Blue shield. I don't need a transplant . I watch these channels because I want to give information to people I care about. My boyfriend is going through steps to get on this transplant for a liver list. Sorry English is not the first language for me. Thank you for answering questions and if you know anything about what I just mentioned particularly about Medicaid, you could tell me if this is rumor about doctors preferring other insurances before Medicaid or is it true? Cancer for my friend was an example. Thanks a lot and bless you my friend
No, that would be bad for me. In my case I have a connective tissue disorder so heat and moisture combined makes everything worse. But thanks for the suggestion
4 years ago I was very muscular, those days are gone. And recently due to a new issue I lost the ability to swallow solids and liquids due to dysphasia. I dropped 25 lb in 5 days. I got sent away from 5 ERs. But I got to a good hospital eventually and doing better now. Thank you caring. 😊
I enjoy your videos brother. Keep up the good work.
Hey boss.. I. Very glad to hear from you..
Thanks Neil! Love your frind❤! Keep up the good fight!
Hang in there,,,,Its getting tuff in the medical field,,, I Medicare, and they don't want to do much anymore,,,, I sometime feel that they done all they can and you have limited time,,,,SO we have to hang in there,,,,
I agree but I have found that sometimes continually bugging them helps. It’s sad that we got to do that
@@JUSLUKING You know it's really a bad situation all around but particularly for the patient and the family and loved ones. If doctors are somehow picking and choosing the way they treat patients based upon insurance than to me that's their choice but it's not exactly the hypocrites oath.
Weak cell conectivity is a major factor of HHT, an inherited factor. Take a look at their information? Also its called "Osler Weber Rendue"
I go for the Cleveland clinic. They haven’t had a liver doctor in 6 months… healthcare is horrible and if you have this they really write you off
Hello, and thx for your videos. I was diagnosed with advanced liver cirrhosis in January 2022, had no clue that I had it prior to that! Really don’t have anyone to talk to about the struggles and challenges that come with the condition, and it’s been a rough way to go alone. Wishing the best possible outcomes in life for ya, bud…
You had no symptoms?
I completely understand. I can give you my email if you ever want to talk
@@timsolomon8352 just some swelling in my lower body…
@@Redneckkenobi thx bud
@@timsolomon8352 swelling in my lower extremities for about a couple months
Do you do any UA-cam live streaming for questions & answers? Thank you for sharing hope.
Positivity is like I believe in the existence of heaven and it's down here as well as above.and we all are going their for whatever reason..and I feel like insomniac are more will8ng to sleep for rest of the life which They can't get down here...death is just like a sleep nothing serious
I’m a 1st time viewer, I have NAFLD and I need to know who do I need to go see a Gastroenterology or a liver specialist? Who do you recommend? I have been medically gaslit for sooo many years it’s very upsetting. Thank you for sharing your story. I liked, subscribe and hit the bell 🔔.
I haven’t done a live yet, not that I’m opposed to it. I would start with your regular doctor and get a referral to a GI then the GI to get a referral to a hepatologist (liver Doctor) there are not as many of them around, I have to travel 4 hours to see mine. Every one’s situation is different, the liver does different things to different people. It was very confusing when I first got the diagnosis they just called it Alcoholic cirrhosis. They didn’t do any test on the why I had it. Just I drank for 2 years and that’s it. Well I go to SLU in St. Louis now. They are great there. But I also am being evaluated for another disease that may be the cause of all of this, it’s a connective tissue disorder, I lost the ability to swallow liquids and solids and it’s neurological. So they were a big help in that. But you can go to liverfoundation.org/ they have lots of stuff to help there, including liver doctors.
@@Redneckkenobi I’m sorry you are going through this. Scary stuff. I’m wishing nothing but the best outcome for you. I appreciate you taking the time to respond to me. I was hoping you could do a live for maybe a Q&A with your followers. Thank you for all the info. I look forward to your next video. Take care.
@@Mamacita-6 thank you for your kind words, so I will do a live, but I’ll have to look at when. Right now I’m having troubles with my health. Let me figure out what’s going on and get then I can get you a date. I’ll also make a video about it.
So glad I found your channel. So many questions about this. Thanks for sharing about your experiences with HE , and the "insanity " that comes that comes with that. I know someone with liver disease and it seems their personality changed for the worse. We met for dinner after a 15 year separation. He just started verbally attacking me. Telling me how difficult I was; and all sort of abusive words. I left in tears. In my studies on liver desease, sounds like he was Sundowning? Is this something that you experience in a dim room?
HE can be tough, I can’t say that dim lights effect this, these changes are caused by ammonia spikes that essentially poison the brain. It’s an odd feeling and there’s different levels of. Like before I knew I had liver disease I was on auto pilot for 2 years. Like some took the keys to the car. I have a lot of memory black outs. Also there have been times I knew I wasn’t mad but my emotions said I was. That’s an odd feeling. As far as darkness, I could possibly see how if you already were in an altered state that dark could bring on depression or poor thinking. When you have this a lot goes through the mind and it’s very hard to sort it out. It’s very common for people with liver cirrhosis to need anti depressants. I mean you look it up it says 2 years you have. But like anything on the internet it’s not always true. But that hits hard. I’m sorry you were left to feel that way. And I’m sorry to hear about your friend. The biggest thing is finding purpose and staying positive. Oh and maybe tell them to leave a light on 😊 take care and stay strong
@@Redneckkenobi Thanks for the insight. I am not around this person, but after listening to you, I can imagine it's pretty hard on them. I am noticing that they are not staying on a job no more than one or two years. So I am thinking they are having problems getting along with other people now.
@@EvanStar-hc6wjit’s hard to know what anyone is really thinking. Especially when going through something that’s life changing. Some people get bitter. Just angry with life or God.
27 years old, I have been drinking every day for eight years. not large doses, rarely when I reach 2 per mille, but 3-5 beers every day.
Is there a chance that there is no cirrhosis?
my liver results are bad but not terrible
alt 22
ast 27
bilirubin 0.51
prothrombin time 13.1 norm 12.3
inr 1.18
the only symptoms I have are on my skin
scars do not heal
and I have something similar to spider veins on one leg
I have it so
Tired all time 😮😢😢,asp
I understand that feeling. Hang in there.
I know it's usually later in life that EDS manifests but 'm surprised it's only now beginning to manifest....
I have met a few people witht the condition, so I saw how disparate the symtpoms could be.
But I always thought that hyperflexible joints and daily joint dislocations is the common thread
No I’ve been in constant pain since I was a teen, I spent years going to doctors about it. Never got anywhere. The swallowing stuff and hernias started about 3 years ago. I’ve always been really double jointed
Hey buddy, how you doing today? Ok I hope…just wanna say, don’t apologize for the ignorance of haters. They ain’t there by your side on your bad days, nor are they worrying about you on your worst days. Just be yourself, cause no ones perfect brother …stay strong and keep going 👍🏻👍🏻👍🏻 invite Jesus into your life, he’s the only one there wanting to care for you, just let him …have an awesome day man ❤❤❤
I don’t worry about haters or bad comments. Unless is something that is correct. And I am a believer. His grace is sufficient. And I’m ok with that. Take care and thank you 😊
I was wondering if Medicaid would help pay for a lover transplant? Has anybody had any experiences and whatever state you are? I just want more opinions. Thanks for the videos ❤
A liver transplant is a case by case situation. The hospital decides is you are a candidate then it goes to insurance for review
@@Redneckkenobi I guess the main thing I'm asking is how does a person know where they are on the list or how many people are ahead before they get an opportunity? I've only heard that doctors or people who choose these things prefer patients who is insurance other than Medicaid. Not just dealing with transplants. I know a man who had stomach cancer and lost his job because he couldn't work. He was put on Medicaid and they would only give him a certain amount of treatments per cycle. I don't know if it's the truth or not. He was not getting what I call top notch treatment. I don't know if there's any truth to these things. These are just things I've heard from other people about Medicaid. I've heard some doctors and other people elude to doctors not getting as much money through Medicaid as they would through maybe Blue Cross Blue shield. I don't need a transplant . I watch these channels because I want to give information to people I care about. My boyfriend is going through steps to get on this transplant for a liver list. Sorry English is not the first language for me. Thank you for answering questions and if you know anything about what I just mentioned particularly about Medicaid, you could tell me if this is rumor about doctors preferring other insurances before Medicaid or is it true? Cancer for my friend was an example. Thanks a lot and bless you my friend
What Dr please
Do you go in the sauna? I bet it would help 🫡🇺🇸
No, that would be bad for me. In my case I have a connective tissue disorder so heat and moisture combined makes everything worse. But thanks for the suggestion
Youre gofundme is no longer accepting donations?...been folllowing you for a while and wanted to give back
It’s working, there’s a link in the description section for the video. And I thank you for your support. I just hope the videos help
@@Redneckkenobi they do..😊
You’ve dropped a lot of weight bro hang in there
He is having trouble eating
4 years ago I was very muscular, those days are gone. And recently due to a new issue I lost the ability to swallow solids and liquids due to dysphasia. I dropped 25 lb in 5 days. I got sent away from 5 ERs. But I got to a good hospital eventually and doing better now. Thank you caring. 😊
@@Redneckkenobimy father had dysphasia after having a stroke. Did you have one?
@@DJ-bj8ku no, but that is one cause. There’s still more testing