Liver cirrhosis and chronic disease dealing with depression
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- Опубліковано 21 жов 2024
- This video is about trying to stay positive when dealing with a chronic disease like liver cirrhosis. Also dealing with depression and the down times. It’s so important to find hope and purpose. I also am a affiliate with Amazon no so check out my page
Check out this page from liver-aware www.amazon.com...
Also thank you for the help and donations on go fund me. Here’s the link to that
gofund.me/28fe...
I know my liver is effed up. I have a lot of the signs.
I won’t go to the dr though. I’m just gonna ride it out & pass away when it happens.
Not scared - I drank too much & this is my just reward.
Your videos are comforting, & I do pray nightly for all those impacted with disease 😊
Bless you all
Please keep making the videos. It is very comforting for me. I feel like I’m having a panic attack sometimes and these videos help. Thank you
I’m so glad I can help
Thanks for posting this update, Neil. I’ve been praying for you. I pray the Lord reveal a love to you that you have never known. My faith in Christ has wrought a great deliverance in my life. He is knocking at your hearts door, Neil. Open your heart and let Jesus in.
I am saved and a believer
@@Redneckkenobi I hope I didn’t offend. I’m glad you’re a believer. Christ means everything to me. I always want to share my faith in Him.
Absolute warrior! You’re in my prayers, brother!! 💪🙏
Thank you
Hey, I don’t know if you’ll see this, Neil, but you’re the man, dude. You inspire me. Let’s keep fighting 💪
Wow thank you. I’ve never thought of myself as an inspiration. I just want people to know they are not alone.
I’m going through it as well. Not liver disease but a chronic illness non the less. I often dwell on the past or if I can change course, but each visit to the doctor is the same. I’ve realized whatever happens will happen and that’s okay. You are justified to feel whatever way you want because it’s happening to you. Try your best man, not my best or anyone else but your best. I’ll keep you in my thoughts man.
Hi Neil, you’re such a lovely guy. I’m so sad this is happening to you. I just want to say thank you for doing these videos and for offering to talk if I needed. It’s obvious you care about others.
I haven’t been a drinker but I was diagnosed with an auto immune liver disease when I was young. I moved to London but unfortunately my partner died so I’m kind of here alone. I’m in limbo at the minute.
Strangely after been diagnosed with early stage cirrhosis back in Yorkshire where I used to live, my recent tests here came back normal. I had an ultrasound and fibroscan, I can’t quite believe it.
I’m struggling also with lupus nephritis but I try to be positive.
Sending love and healing. Blessings ❤
Thanks again for sharing. Hang in there
I am beyond proud of you for speaking up about mental health. It takes a lot of strength to do so. Needed to hear those words tonight ❤️
I’m glad I could help. It’s real and you don’t have to have some disease to suffer from it
Glad to hear you have that neurologist appointment you were waiting for. I hope they can do something to make eating easier for you! Looking forward to hearing... 🙂
I had the older of my two dogs euthanized yesterday, so it is a sad time, and my younger dog is confused. Lots of walking to do, but I wish the weather would pick up, rain today and yesterday. Carlo's last day, his last walk and it had to rain! Best wishes Neil, take care.
I’m sorry to hear about your dog.
@@Redneckkenobi Thanks 🙂I had him for nearly 17 years. He was an awkward boy but still unique. I'm a bit lost too.
My s-I-l. & I both watched our husbands pass, now she has been DX with cirrhosis (no drinking, no Hep. C, no meds. Not overweight, (Vegan) no copper. So it’s idiopathic. You provide a lot of info, & it’s not my business but I’m terrified of snakes! Best wishes on your journey! You’re in my thoughts & prayers 🙏🏼
I’m sorry 😞 and the snakes name is gambit he’s a sweet heart. And cuddles with me
Me too ! Hemorololgist said this morning 99 % sure it’s auto immune . In hospital now since we’d. 🙏god blesss and hel all of us
Good doing my man!
Ive been dealing with hepatitis c for 44 years everyone I know who had it is dead now. I can tell it's starting to effect my brain a little but I don't drink enough water for some reason. Life is really short people my Lord has been my only hope He's never let me down... I take organic ginger, a little turmeric, black seed oil and neem oil does wonders for the joint's I actually feel pretty good but I can tell it's taking a toll on my body...God bless
I’m sorry to hear that! Glad you found supplements that help! Keep fighting, don’t give up
🙏🙏🙏
Mentally, it is tough my friend, but don't let your thoughts deceive you. In the time it took to record this video, hundreds of otherwise 'healthy' people have left us - without premptive warning, they're gone. Whilst cronic illness can often make us feel separate or different, we are ALL running the same race; we are, in fact, one. Brother, I see no difference between you or I. ❤
I love your videos. I don't know why some people don't believe you. Maybe the idea that a year or two of crazy drinking can cause cirrhosis is probably quite scary to them.
It also runs in my family. Plus my doctor said my liver was failing years before I started drinking. Many things can cause liver cirrhosis
Hi, I am from Cape Town South Africa, I just stumbled upon your page. How did I not know about your channel??
I have Cirrhosis because of contracting the Hep.B virus from my x husband who slept around. Anyhow, for years I knew I had liver disease because of hep.b, I was treated for years for fatty liver disease.
Last year I had to have my gallbladder removed. When my surgeon was in there doing the op she saw my liver and saw that it was rotten with cirrhosis. Long story short, once I recovered from the worst news any person could ever get, I also went for a biopsy. In one of your videos you described the procedure........how do I know the pain afterwards. I can only describe it as a herd of elephants stampeding on my lungs and insides.
So we got the results, and my doctor gave me the news that I have at most, got 7 years left. OK, that was a year ago. So the clock is ticking, and I am looking at 6 years.
Depression.......ABSOLUTELY!!!! I am on several anti depressants, and since the diagnosis I was also diagnosed With fibromyalgia which is completely debilitating at times. My dr gave me some serious painkillers for those flare ups.
Like you, I am fighting this battle alone, my family does not understand the emotional trauma that goes hand in hand with this nasty disease.
Forgetfulness......I don't know about you, but I forget the simplest of words, I struggle on bad days just to string a sentence together. So utterly frustrating, as I used to work in the financial industry, and now I feel like a first grader.
Exhaustion......how is it that some days I cannot put one foot on front of the other? Or manage to crawl out if bed?? I have absolutely NO motivation to do so, some days I just want to cover my head under the blankets and stay there. WHY DO PEOPLE NOT UNDERSTAND???
This is a terminal illness, and unfortunately will not just go away. When I tell people about my cirrhosis I ALWAYS get the question......why don't you "just" go for a transplant???? Let me count the ways😂😂....no, nope not ever, because it will not improve my quality of life, life expectancy with a transplant....(if i could have the option) is 5 years at most, I would have to travel abroad to have it done, as our country just do not have qualified surgeons to do the procedure, and with what I have gone through the past year (pain, pain and more pain) ER not knowing or finding anything wrong when I cannot sleep from the pain, or feel terribly ill just in general, why on earth would I want to put myself through such a huge procedure just to leave in 5 years??
Today is one of "those" days, a just don't move a muscle day, curled up in bed, trying my utmost to find the sparkle at the end of a very dull rainbow!!!
So this is just the very tip of the iceberg of my life, there us a trillion more stories to tell about my road so far, I promised myself the last years are going to be the most amazing, adventurous of my life, but unless you live with this disease, you realize it is a tall order to fill.
I hope you get my message, I just want to tell you how awesome I find your vlogs, and to know there are more people out there feeling the same way as I do!! Thank you so so much!!!
Yes it definitely is lousy situation. My blessings and feelings to you and your s loved ones.❤
Wow thank you for sharing. It all sounds familiar. I was an electrical automotive diagnostic tech and ran shops for years. Now it’s like what’s that part called? lol so i understand. And the ER thing I get sent away here too. They don’t know anything about the liver. It’s an invisible disease but we feel it. My suggestion is find one goal or hope and stick to it. Mine is to find love. I’ve never known it and I use that as my hope. Now in reality I don’t do much to find it, the worry of putting someone through my disease is a whole different story 🤣 but I hope for it. And my purpose is taking care of my reptiles. I look at my hope and my purpose as two different things. The purpose doesn’t have to be big. And neither does the hope. And I know my hope may not come true but that’s why it’s called hope. It’s in the meaning. And I’ll give you my email and would love to chat with someone from another country 😊 it’s neil12020@yahoo.com put liver friend in the subject like in caps and I’ll see it. Take care and keep fighting. Never give up. And you say 6 years? Maybe you have 10.
Wow thank you for sharing. It all sounds familiar. I was an electrical automotive diagnostic tech and ran shops for years. Now it’s like what’s that part called? lol so i understand. And the ER thing I get sent away here too. They don’t know anything about the liver. It’s an invisible disease but we feel it. My suggestion is find one goal or hope and stick to it. Mine is to find love. I’ve never known it and I use that as my hope. Now in reality I don’t do much to find it, the worry of putting someone through my disease is a whole different story 🤣 but I hope for it. And my purpose is taking care of my reptiles. I look at my hope and my purpose as two different things. The purpose doesn’t have to be big. And neither does the hope. And I know my hope may not come true but that’s why it’s called hope. It’s in the meaning. And I’ll give you my email and would love to chat with someone from another country 😊 it’s neil12020@yahoo.com put liver friend in the subject like in caps and I’ll see it. Take care and keep fighting. Never give up. And you say 6 years? Maybe you have 10.
Just so you know....there is a snake crawling on your head!
🤣 that’s gambit. He’s a sweet heart
The reptiles are really cool bro! I used to have turtles when I was a kid! Your videos are making me consider getting a couple of aquariums going again to stay busy to stay away from the brews! Good luck bro another great video! 👍❤
Cool Neil! Gambit is so cute! Great topic! So many are really depressed. Times are tough and everybody is suffering! Stay strong and prayers for your next doctors visit. Hopefully, you will come away with more solutions & answers.
I thought the snake was a filter at first 😀. I had a drinking phase but realised it's stupid now. Even tho your situation is not just because of drinking, these videos are good on multiple levels 👌👍
Hey Neil, quick question. I know you said you have children. Since a lot of this illness is something genetic have you talked to your kids about possible issues that might arise as they get older?
I have told there mother and will when they get older
Be careful around any animals. Was in hospital n antibiotics for 3 weeks..cat scratch fever low immune systems with liver. In now drug resistant infection ..low white and red cells . Low blood pressure , worse from infection . Don’t know where it is or came from. ❤we can’t be around any bacteria all animals carry.
Are you sure. I’ve had reptiles since I’ve been sick and I’ve only gotten better 🤷🏻. Not to mention the positive feeling you can get from a pet. And the purpose they can provide. So unfortunately I disagree with you. I mean you got a better chance of picking up bacteria from a door handle at a store than from an animal. And there diseases and infections are not compatible with humans
I wanted to ask you if do you have issue's with shaking? Tyler almost shakes like he's cold but he's not and this is not a every now and again thing he's literally shaking 24/7. Some days worse than others for sure, at first we thought maybe it was he was hungry but it's not because even after he eats he still shakes. I'm mostly talking about his hands and arms, it just worries me. I hope your well and find out the answers your looking for. The doctors Ty sees won't give us any straight answers and just makes things a lot more confusing. For example when we found out about the HCC they said word for word, " we have found a tumor on your liver and it is cancer so this means a transplant is off the table and now we focus on the cancer". Though his appointments are so far out like his next one isn't until December, it's just so irritating. The depression is real and I hate it for him because even before this he was already dealing with depression and than his diagnosis came and it just made it worse. Sorry I'm all over the place these days. Anyways again I'm hoping you find out everything you need.
My hands shake almost every day. It’s so often I don’t notice it. Just today I was in the store looking at something and I had something in my right hand and it’s shaking. So he’s not the only one. I can’t hold a camera still to save my life. And zooming in on something forget it.
@Redneckkenobi Okay, thank you 😊 I hate that you're going through it as well, but it kind of says it's apart of the disease, maybe. I really do appreciate you and your channel because it does help not only myself in understanding this disease but others as well and that makes a huge difference. Please don't ever give up as you really are something to a lot of people including me and even Tyler. 🙂
Shaking goes with liver disease my dad had it bad . Messes with all nerves.
@@Coffeechat1979this is one of the kindest things anyone has said to me. Thank you 😢. I really wish the best for you and Tyler.
Hi 🙋🏻♀️N&G
Nurse jut told me her mom got a transplant , lasted one year pills killed other organs . Friend mine lasted maybe year n half
How did you get a job and still be on disability or ssi?
They have a works program. They send you a letter
Do you or anyone in this group that has Liver problems,how well can you tolerate Coffee or more accurately CAFFEINE??.
Has anyone else become intolerant of it,like do you get very bad symptoms nor withdrawals??.
Thanks for your replies.
I don’t have any problems with caffeine. I never drank coffee though.
Yes liver a lot of liver people have tummy issues acid reflux and on and on . Pancreas,gallbladder . Ect. Caffeine is the worse . Pepsi coke. Coffee . Lemon tomatoes bland diet for liver !
Could prolong fasting help?
Fasting is bad with liver cirrhosis, your liver is protein deficient and if you don’t give it protein it will start eating the body to keep functioning
@@Redneckkenobi That's wild.
I just found out I have cirrohiss
I’m so sorry. The first 3 month are hard because it’s so much info and it’s confusing. Just take your time figuring it out. Just don’t drink and eat a lot of protein. Avoid fast food for now
How were you diagnosed?
@@joseantoniosole3999I had lost my muscle mass, my stomach got bigger, and I couldn’t breathe if I walked 10 feet. I went in they took blood seen I was yellow and did a CT scan and could see the liver was all scar tissue on the scan. I had so much fluid build up that it was pushing my heart and other organs too the left.