I was misdiagnosed with Early Onset Alzheimer's 25 years ago. It turned out to be a large brain tumor and was successfully removed. I had this experience for several years and wrote a book about it. It was very difficult to write with impaired memory. I would struggle with a chapter for a week only to find I had written it the week before.
The intro to this is the best attempt I have ever seen at trying to show the first person experience of someone with dementia or memory loss. Damn - well done.
This all hits pretty close to home. I had a stroke at 34. It was months before I even knew what happened to me. Doctors are utterly incompetent they just told me that I was fine and nothing was wrong with me. Once I finally went to a specialist about my breathing problems I got out on the right track and figured out it was a stroke. Losing all of my memories from age 19-27 was heart breaking. A year later I’ve recovered a lot, (without doctors help). Last April my wife and I were on a short trip for our anniversary, I suddenly had a memory of my childhood dog. I don’t know if it broke my heart more having to ask if she was dead or having my wife tell me she’s been dead for years. Memory is an amazingly important thing I will never take for granted again.
That sounds frightening, I can't imagine such a sudden change/loss. It's good to hear you're close with someone from before the stroke though, do your best to show her you love her, I'm sure it wasn't easy to recount the harsh truth and break your heart about the dog.
I’m 22 now and I met my fiancee/soon to be wife when I was 20. And 19 was the single worst, most depressing year of my life. I can’t imagine waking up in 6 years in the life I’m living now as if none of it, none of my soul mate, had happened. That’s so scary, I’m sorry you went through that
This is actually a very interesting common factor in memory loss and brain damage. It would seem emotional attachments are strong enough that they are some of the last things to go in cases of deterioration over time. My grandfather had a stroke in his late 60's and right after he was mostly fine but over time the neurological damage advanced and he had more strokes which made him slowly deteriorate to a point of losing most of his mental faculties to communicate and express himself clearly. But even then when they would do the cognitive tests to see where he was in terms of actual coherence, even though he couldn't really speak anymore or focus on tasks as the test was asking (like the question would ask you to draw a circle on the left hand side of the page and draw a square inside the circle so that all four corners touch the outline of the circle and he'd do nothing like that) he would still write out things like "I love my beautiful wife" and what not until he eventually lost the ability to write close to the end of his life. So even when they could no longer really gauge how much he could understand and then process correctly (they could no longer tell if he could actually hear people talking to him or understand verbal instructions since he showed no responses to them) if you gave him a pen and paper he knew how to use them and was at least aware of memories of people he was very attached to. Something else that always really blew my mind about the human brain was he forgot how to speak in English years before he could no longer speak and he could only speak in German (his first language), but when he'd write it was still always in English and never once in German. He also could still understand English spoken to him he just couldn't reply in English the reply would always come in German. Even more interesting was he wasn't fully aware he was speaking in German at first when he lost the ability to use speak English, for a little while he'd be confused why people didn't understand or why my grandmother was repeating exactly what he said before he'd get a reply; it took him a little while to wire his brain to realise he was not responding in English and actually "hear" that he was not responding in English when he spoke. There were some other really interesting emotionally tied memories that seemed to stick around and pop out more often when he was losing his long term and short term memory later on as well. Like my parents had a really bad falling out with my grandparents decades before my grandfather had his first stroke and it wasn't until a couple of years after the stroke that my parents and grandparents came to terms over the falling out, then years later when my grandfather's memory started going anytime he was alone with just my parents and grandmother he would usually check and ask my parents about them making up like he wasn't sure if his memories of them making up where real or just something he wished would happen he was mistaken for a real memory. Our brains are CRAZY place!
I'm a neurologist specializing in epilepsy and I just want to say that in the case of H.M., his amnesia was so significant because his hippocampi were removed on both sides of his brain. To this day, we still perform a similar surgery for certain types refractory epilepsy (mesial temporal lobectomy), however the procedure is always limited to one side of the brain because of what was learned from this case.
I worked in a building with a guy like this. It wasn't part of my job, but there was a notice that went out to all employees to under no circumstances let him leave the building, since he would occasionally decide that it's nice out and throw on a jacket to head out for a walk, regardless of the actual weather conditions. He seems perfectly normal at first, pleasant to speak with... until 5 minutes went by and you notice that he doesn't remember that you convinced him not to wander out into a blizzard, nor where he was or how he got there. But things were going well at the moment, he was having a friendly conversation with someone nice, so he just kept on smiling. I had to walk him back to his apartment because his wife had fallen asleep and wasn't answering her phone. When we opened his door he looked around at his own house and said that I had a nice place. He was so happy to see his wife when she walked out to see who he was talking to. She asked where he'd been, and he told her he was just about to head out for a walk. That day, catching a glimpse into his life of endless strange rooms and corridors, of strangers who knew his name... sometimes I still think about it and cry. And he has no idea that it ever happened.
That was a very interesting story, thank you for writing it. I couldn't imagine living with such a condition. You become automa quickly, just robotic actions. Complex thought requires a working memory capacity, and even in the video, you can see the guy sounds like he is getting less responsive.
My grandpa was a guy like that. He would get it in his head that he wanted to go out for a walk, and being an old electrical engineer would easily bypass the magnetic locks on the front door, and waltz right out of the building. If he was caught in the act he would happily explain that it was nice out and wanted to go for a walk, but the automatic door was stuck closed so he was trying to fix it because it was a fire hazard, and even invite the staff to join him to go to whatever shop he wanted to visit. If he wan't caught, then he would get super confused when the shop he was looking for (which was owned by an old friend of his) wasn't there and was replaced by a fast food restaurant 50 years previous. And then he would get super confused and bothered, and the police would have to take him back, and he wouldn't know where they were taking him or why so he would fight back... it was tough.
I saw a BBC documentary about Clive Wearing years and years ago and it was incredibly sad - one of the things his wife said at the time to describe his persona after the viral brain infection was “the Cliveness of Clive” had almost disappeared completely along with his memory function. That phrase has stayed with me all these years.
I was diagnosed with encephalitis at age 10 in the early 2000's. It was a wild ride. I only found out about Clive a year or two ago. It made me reflect about how different my life could have been. Early on, my grandmother, who was an RN of many decades, told my mother what questions to ask and told the doctors what to start me on. This was remarkably early, before the doctors knew what was wrong with me. I still credit her for being a guardian angel for me. Who knows what damage could have been done if time had passed chasing a proper diagnosis. My grandmother drove from eastern Washington to Tacoma (where I was) and was there the next day to help my parents navigate the scary ordeal. I was too young to understand how serious it all was, I was just happy to not have to go to school. I couldn't walk, I had slurred speach, and double vision for many weeks. It happened so long ago that its easy to forget about. But Clive's story stirs the memories. I'm glad I still have them.
Got a buddy who is 42, had brain surgery and lost every memory up to that surgery 6 years ago. Doesn't remember stuff from his previous marriage, the passing of his father, the birth of his kids, any of their milestones etc. When he first told me it broke my heart. He's such a nice guy who loves his kids like no other honestly has a pretty rough situation but damn if he doesn't do his best.
Not any of my business and probably won't help but I'd recommend trying aniracetam (nootropic). It made me temporarily remember stuff from my childhood that I had forgotten about long ago.
This is so weird to think about. I can't even begin to imagine living my life like Clive. Happy 86th Clive and if there is an afterlife I hope you get back all your memories!
Had this in my first semester. The worst thing about it was how depressed Clive was in the beginning. He had a notebook where he wrote stuff like "I am here" with the time but he just couldn't remember writing it down so he crossed it and did it all over again. With patient H.M. I thought that it's sad how he was just seen as the perfect test subject. He was very willing to do tests for hours. And the scientist who studied him intensely was also very happy to gatekeep him from the rest of the world.
@@killgriffinnow wrong conjecture. Read up on the scientific method. Normalcy ≥ IQ 130. Technically you are in the same boat with Clive and 90%+ of the yt-herd. That's how braindamage can be defined.
@@killgriffinnow I have a class about ethics and in the german ethical science rules (BER/ Berufsethische Rechtlinien) for psychologists we have the obligation to get informed consent (with exceptions but they have to be discussed and checked by others), control yourself and others to protect the scientific integrity (keep the high standards and trust of the general population). But patient H.M. is a really difficult case ethically speaking because it didn't harm him directly (he forgot everything of course) but in my opinion this scientist acted very selfish and used him for her gain. As far as I know she kept his brain and thinking about H.M. capability to give consent he really had no choice but to have his body donated to science or her science to be more specific. Really dehumanising
After watching this video I was reminded of a documentary I watched about a famous mental health hospital in London called Bedlam Mental health Facility (that's where the word "bedlam" as in "it was bedlam in the courtroom" comes from) and there was a woman who came in who had EXTREME depersonalisation-derealisation disorder-she didn't know who she was, where she was, even what she was at some points, she just walked around rubbing her face and saying things like "where am I" and "what am I" in a really distressing way as well as thinking she had died now and again and it hit home to me just how important memory is (although I know you can have DDD and not have memory problems she definitely did) .The interesting thing is how they cured her-firstly they tried anti-depressants and talking therapy but there was no way to talk with her for obvious reasons so they decided to try electro shock therapy which snapped her right out of it and got her back to her usual self. The strange thing though isn't that they used electro shock therapy but that it didn't actually do anything physically as such, it was more of a placebo and the fact that she THOUGHT it would do something was enough to get her back to herself. It turned out that she had seen her husband being nearly run over by a car and the fear of losing him caused her brain to just "break" (for want of a better phrase) which is why the suggestion that EST would work was enough to snap her out of it. I have to admit though it was such a scary thing to watch, seeing her in such distress like that, I've had high doses of ketamine a few times for induction to surgery and the depersonalisation from that was freaky enough and that was with foreknowledge of what to expect-i can't imagine how scared she must have been, not even knowing what she was let alone who she was. The memory is a fascinating thing and there's so so much we still don't know about it
I think the most uplifting thing about this situation is how much LOVE CONQUERS ALL. Joe this is one of those videos that make me (hopefully others as well) really appreciate what I have. Clive and his wonderful wife have something we can learn something from.
this reminds me a lot of a woman that i worked with in my year of social work. she lost her short term memory after a stroke. With that, she also lost the ability to form new memories. if you asked her where she was, she wouldnt know. she would gleefully tell you about her husband and children... sadly, they all abandoned her, but she doesnt know. somehow, she was still able to find her workplace when arriving, even though she had no idea what she is doing there. she would forget that she already ate and overeat. she would forget her urge to pee and.. ya know. she never remembered my name, but when she saw me, she knew i was her caretaker and walk with me. she liked puzzles. she often would complete a puzzle, be happy about it, put it back in the packaging, store it on the shelf, then immediately take out that same puzzle again and say "oh is this a new one? looks great" and do it again. Yet, her memory of the past was still so good, that she taught me how to sew. sometimes she had a "good day" with a bit clearer memory, which would make her remember everyone left and shes being taken care of by a random 18 year old, which obviously destroyed her emotionally for that day. soooo, if you ask me what im afraid of... thats pretty high up there.
maybe theres a way to help people with this condition by replacing there hippocampus with a dead persons hippocampus like how people replace others organs with dead peoples organs and it still works
@@ASLUHLUHC3 I was replying to Lydia Michelson who asked if transplanting sections of the brain would help. Short answer is no. Long answer: We cannot transplant sections of brain from a deceased donor to a living person. Brain tissue is incredibly sensitive and dies quickly. It's the FIRST thing to die if the heart stops/oxygen cut off. Also, there is no way of knowing if said transplant would even function correctly in a new host if we could do it... since everyone's brain is wired in it's own unique way. You'd do more damage to the original brain by trying to pull off such an operation than just leaving it be. Seizures would definitely become a major problem, tissue necrosis, clots... etc.
Hearing that he was a musician moved me to tears, I was so scared he'd lost that - when it got to the part where he was playing and singing I was sobbing, it was so amazing and wonderful and moving. Music is magic. Much love to Clive, and a happy birthday!
As someone who knows how fortunate I am not to be disabled or have family with Alzheimers, let me second that. It's both fascinating to hear about other people's struggles, and makes me a better person to understand and not take my good fortune for granted.
@@joescott I saw the much earlier documentary. And now you have given me a much needed insight and perspective. A year ago my friend was attacked and among other things suffered a severe skull fracture, lucky to survive, 5-months in specialist hospital/care. Still some permanent physical issues. Also could not remember his home or relatives, no recollection of the pub he ran or regulars/staff/friends, not even know how to change a beer barrel; he's totally lost huge periods of memory, still under meds/observation/treatment. He is still 'him', but it has been and still is hard and sometimes heart-breaking. The trial of his attackers starts later this month. I'm considering recommending your video to witnesses and others, but I have a dilemma; would/could this be seen as prejudicing and/or inappropriate influencing prior/during the trial or would it be helpful knowledge/background? Thanks for the video.
I know this video is 2 years old but both my parents are losing their memory & I’m only in my late 20’s. It’s stressful & sad & I’m worried about my own memory too. This video made me really sad but helped my understanding
I have an Uncle with extremely short memory. When it's his birthday and the whole family's there he constantly asks my aunt who everyone is and how we are related to him, only to forget it about 30 seconds later. About 8 years ago he was in the hospital, and one of my best friends was also in that same hospital. So I visited my friend first and then went over to my uncle. Somehow that made such an impact he remembered me for a few more years as "the boy from the hospital". It was amazing, but sad at the same time. He recognized me, but still didnt know who I was. Recently he forgot about it again. But that was something special. My whole family was amazed that after years he was able to create a new memory.
I remember hearing about Clive over a decade ago, maybe two decades ago, I was only a kid at the time but it stuck with me, hard to imagine that no time has passed for him while I’ve lived a third of my life.
An old boss of mine had a tragic fall of about 3 stories onto cement -- in front of the kindergarten class -- and had a brain injury which caused him to have trouble making new memories. Most of the time, you'd have no idea. And them sometimes, he'd completely forget what he asked you to do an hour earlier. Seeing the two sides was very strange. But he was able to keep going, kept his same job, and was even part of the volunteer firefighters.
I was diagnosed with behavioural variant Fronto Temporal dementia a couple of years ago. As a retired doctor, it's fascinating to experience this. It's not really affecting my memory all that much, it's all higher functions. I'm euphoric, impulsive, and my judgment is shot. I can't organize things any more. Simple things like washing the dishes seem monumental. But to talk to me, you'd think I'm fine. I'm essentially a grey haired frat boy, making bad life decisions. For now. The future is grim, but the present is kind of enjoyable, actually. Who knew losing your mind would be this much fun! Hey, don't judge me, I'm trying to make the best of this.
@@joescott One other aspect of this disease is that it takes away you're ability to care, which is a plus. Lol. So, it's likely the disease is playing a big role in how cavalier I am about it. I'll take that. It won't be so bad to go totally gaga if by that time I don't give a damn.
Your point about "what makes an interesting person" is so fascinating to me, because it's the exact opposite of how I live my life. I'm a passionate generalist. I enjoy getting into new things, but have no desire to take them to an advanced level. I can fly an airplane - if we're talking about a Cessna 150 in good weather. I can SCUBA dive - if we're talking about a guided tour somewhere. The list goes on. I run into the people who make that one hobby their life and it's like "Eh, no thanks". I'd rather jump into something new, and learn a few chords on the guitar, or how to change my oil, or how to repair holes in drywall. There's just so much out there. The coolest part is that after a while you start to see common themes between activities, and it makes the world feel more connected and understandable.
What's even more impressive is that what he was playing in that clip wasn't a piano, it was an organ. Organs have multiple panels and settings which are incredibly complex and how you interpret sheet music for them differs. Also improve on them takes heaps of skill.
I have a memory disorder, caused by a seizure disorder I developed whilst serving in the armed forces. I thank my lucky stars it's nowhere near as bad as this. Not being able to remember beyond a day or two without some kind of 'trigger', (don't know if that's the right word), is rough. But I can still follow along with a show/ television series. I can watch a full movie and it makes sense. I can learn something new, and be able to apply it in a future situation that I never imagined I would, simply because the knowledge is there. I feel for this guy, and all others who have to live a life like that. It must be so scary.
A few years ago I took care of my Aunt, who had Alzheimer's, she was in her 80s. The way she would get in the car, when we went for a ride, was potentially dangerous (she would face the same direction as the car and lifting one leg and kinda plopping down and falling sideways into the passenger's seat. So I began to help her into the car by having her face away from the car and sit like in a chair, then I helped her turn and lift her legs and rotate into the seat safely. I did this every time mostly because I was afraid she would injure herself. After a week or so, we were going to go for a ride and she walked to the passenger side of the car and was just standing there, I asked why she was standing there and she said she was waiting for me to help her. She formed a new memory through repetition of the process, and she would do that every time after that. I was blown away, I was a Certified Nurses Aid for 8 years and this was something new to me. Thanks Joe, I really like your channel, one of the few I watch regularly, for years.
My father has something very similar. I've been taking care of him for 6 months now and it is so hard. He has forgotten how to clean himself but puts on a good show to make it look like he is functional. He's erased everything from his past and replaced it with some dream of the perfect life he wished she had. Every day he doesn't even remember I'm his son.
@@Ana-ko9px thanks, but I am alone here. I have two sisters and a brother that live in town here and they don't even help. And unlike the man in the video, my dad has always had a mean heart. And that's what he results back to in his reset face.
@@CDE.Hacker I mean there are other people going through the same thing. Reach out to online or in person support groups for primary caretakers to find a community to support your mental health through this challenging time
I usually come away with one more thing to worry about after my Monday morning Joe time ( I swear I didn't mean for it to sound that creepy) but after this video I sat back and felt extremely thankful for my current mental state. I know its going to get worse as I go but today I'm just going to sit back and enjoy the "not yet".
Just on ten minutes, I just said, loudly, "Yes!" I am never bored by people with a passion. Their enthusiasm, their desire to have me understand what interests them, what promoted that interest, all of it is fascinating. (I sometimes wonder if it was cause or effect that resulted in my two sons being on the spectrum with ridiculously specified interests)
This just reinforces that I hope and pray that I just die quickly without anything like this happening. If I'm fine until one day I have a massive fatal heart attack I'll consider that a success.
I'm with you there, Having seen 2 grandparents fade away from dementia and a mother who had a brain tumour which she had removed but the damage meant that she lost her ability to walk, then eventually her mind and finally ability to speak or move. Horrible.
Yeah! Isn't that the best way to go for pretty much everyone. Even better if you happen to be super happy at the moment it happens. Just let it be sudden.
Yes, my stepfather had a mini-aneurism which wiped decades of his memories and he would be asking if he knew me every few minutes. It was disturbing to see him so very changed.
I loved that intro! And this episode as a whole. I have dissociative amnesia, so on a much more minor level, I can understand some of the struggles he's had. Sometimes losing days or weeks at a time and not even realize it until someone asks me about it, never being sure if my memory is correct or not, and even how you sometimes remember feelings even if you don't remember the cause of the feelings. Having a "swiss cheese memory" is genuinely awful, and not something I'd wish on another person.
I don't have any diagnosed memory issues or anything but I swear some things are just a total blur. I've gotten used to people reminding me of events that don't ring a single bell AT ALL. But yet I remember the most mundane useless information and have no idea why I know about it.
@@joescott It’s really wild what your brain holds onto and what it doesn’t! I’ve also got a lot of useless information or factoids and stuff bc I watch videos like yours all day, but ask me about a conversation I had yesterday and there’s just nothing! It can be really distressing and frustrating at times- it’s a really vulnerable place to be in, because I have to judge if what people say is true just based on how plausible it is bc I have no memory to refute it. I also would love to say- the intro you did was fantastic. It genuinely captured that experience of suddenly finding yourself in some different place and doing something you don’t remember starting. Even though my amnesia doesn’t work the same way, it still felt familiar. You did an amazing job with it!
I have been diagnosed with dissociative identity disorder for about 12-13 years, and the amnesia we experience whenever one of us switches is the part which we will never be able to get used to. Not knowing how I came somewhere or what I have done/haven't done, etc.. sometimes for days on end, is truly something I wouldn't wish upon anyone. Our system at least is very good at writing down memories and stuff that are experienced by another alter, but still feeling like we're losing important parts of our life and not knowing when it'll happen is terrifying for us
@@Patches2212 Yeah, that’s what causes my amnesia also, it’s just usually less of a hassle to just say the amnesia part- but we’ve only known for two years. We have a sort of… continuity of consciousness in that we don’t experience the “waking up somewhere I wasn’t” part, but our amnesia is pretty bad. We dissociate a LOT so it really fucks us up sometimes. I completely get the fear. We don’t write things down much, bc we forget, but we do take a LOT of pictures and screenshots, and it serves kind of a similar function for us for the most part
@@ctartistry360 I really appreciate the offer and the sentiment around it, but I think I’ll decline 😅 It’s very kind of you but I’m not a “God-ly” person. Thank you, though💕
04:38 a VERY similar thing happens to people who have their brain hemispheres disconnected. The one responsible for vocalizing doesn't have access to to the required information stored in the second hemisphere, but they can still use the information to perform actions with their hands and legs.
I watched this documentary recently with my girlfriend. This was the first time she had seen me cry. Very powerful, moving, devastating, and hopeful for enduring love. Memories are precious
I had a stroke 3 years ago and lost like 2 years of memory before that, couldnt recognize my girlfriend at the time, that shit was scary as all hell. Brain damage is one hell of a drug
@@mrnadra6843 hope you continue to recover. I have a chronic illness. It's only when you experience something like that for yourself do you realise how hard it is when you get sick. Take care ♡
I have epilepsy and when I have a really bad seizure it can turn my brain into scrambled eggs for hours or weeks. I don't really notice it till I come out of the fog and boy is it disorienting to jump days into the future with zero warning. it's kind of like driving somewhere and not remembering the drive but on a much larger scale.
I had an event happen to me some years ago that sounds sort of similar to this. The long and short of it is that, on one particular day, I left my apartment to go to work, on time, and arrived at work exactly 60 minutes late. My first clue that something was wrong was when I pulled into the parking lot and there were oddly few cars in the lot. I then looked at my car's clock and what my eyes saw, my brain just would not except. I looked my supervisor straight in the eye that day and told him honestly "I don't know, I have no excuse." I had been on my computer that morning, before I left for work, i saved right before leaving, so I literally had a time stamp for when I left for work that day. Some how, a 15 minute drive took 75 minutes and I have no logical explanation for why, or how.
IN 2015 I SUFFERED BRAIN DAMAGE IN A MUGGING - I have the type of amnesia where you forget what you were just doing. They said the name of it in this video but I have - you know, forgotten LOL. Its nothing like as bad as it was at first and it was just as you describe. I say it was like the video of my day had been edited - just chunks missing. Of id go to bed Monday and wake up thursday and i had done things in the 2 missing days. It was not a BAD memory, it was NO memory. Its very different to forgetting where your keys are. This was literally NO RECORDING of the events.
I suspect a lot of claims of alien abductions are a result of conditions like this. Epilepsy, night terrors, PTSD, sexual assault trauma can all be contributors.
once I took my whole holidays dose of benzodiazepines (2 or 3 weeks worth) I remember going to my physician in the Netherlands and then suddenly I was just north of Lyon, about 24 hours later. I went hitchhiking, so I must've been reasonably conscious during a 1000 km.
my grandmas friend had her husband diagnosed with stage 4 cancer, and when they tried to treat it they did cure it, but erased his memory. she literally basically raised him as a baby even though he was a 30 year old man and she wrote a bestselling book about it. this story reminds me of it
This reminds me of the movie Memento, which I always found intriguing. I'm glad that Clive has people around him who care, because if you've seen that movie, you know how easy it would be to manipulate someone like this.
I came here to mention that movie. I almost turned it off when I first started watching it till I realized that the way they were presenting the story left us as lost as the main character. Once you work your way backwards to the beginning and then get to see the last scene. The entire movie makes sense. It was a trip. One of those movies that stay with you.
@@HarryBuddhaPalm ahh that's right... Wow a good example of how memory can be ironically. I knew of this guy and must have misremembered it and created an Easter egg in my head essentially.
When your mental condition sounds more like a demonic curse, or an episode of Black Mirror, it really puts those people who diagnose themselves with adhd and autism (after doing an online quiz) into perspective
Ever since my brain tumor surgery at age 48 I've had short term and some long term memory lapses. I have to set pills in a certain way to know if I've taken them or not, even just 30 seconds later. I have hard time with remembering things I've done the previous day, I am 53 and hoping it doesn't get worse. The most difficult part was when I was given 5 words to remember in the same order after repeating them then listening to the doctor read 3-4 paragraphs and see if I could still remember that 5 word sequence.
The way you describe his ability to, on a unconscious level do certain things, but doesn't have a conscious memory of ever learning and doing those things, it sounds alot like how most of my dreams are. I just exist in the scenario that my mind creates and never question what I'm supposed to do or when and how I got there. I just know what I'm supposed do and how I'm supposed to feel about the people and surroundings without ever having any memory of the past events of the scenarios beginnings.
@@shamicentertainment1262 Nightmares are the only dreams I seem to have the unconscious ability to change. Example, I'll be have a nightmare and as I get more scared and uncomfortable, I'll just change it to be funny or turn the table on the thing that's scaring me. The whole time I don't ever become conscious of what I just did while in the dream, I just exist in the new scenario I created then wake up not long after.
@@councilornevec8249 That sounds alright, when its really bad I wake up scared or with a feeling of dread and I'm unsure of whether it's all real or not lol. Sometimes I wake up in my room but I'm still dreaming, it all gets weird sometimes.
As someone who struggles with anterograde amnesia, I was filling in Joe’s words before he said them. I haven’t seen this video before, but “exist” is exactly the way to describe how it feels with amnesia. Spot on.
I had transient global amnesia for about 10 hours. Finally came out of it in the hospital. I can tell you that having a dysfunctional memory only lasting a few seconds or minutes like that is the same as not existing. My brother tells me I told him to end me during my episode. I, of course, have no memory of what happened in those 10 hours.
Obviously it’s nowhere close to what Clive experiences but I do have ADHD which does impair my ability to make memories and on the one hand it does suck, there’s so much I’ve been through I couldn’t tell you about at all. But it does also give me some sense of peace, of ‘this too shall pass’, plus the ability to pick up right where I left off with hobbies or with friends or whatever. It’s not all downsides I suppose.
"The capital of VT"...that gave me a flashback. As a young guy in the air force, being asked "where are you from?" was not uncommon. Several times after responding VT, I was confronted with....wait for it......"what state is that in?". I honestly didn't know whether to laugh or cry
I remember watching this documentary in the 80s, very fearful of getting amnesia like with all things in the 80s. It's crazy that he's still kicking after all these years.
Yes, I saw that too - a haunting condition that had me thinking about it on and off over the years. Horrifying, especially his diary, so full of "I am FINALLY awake now!" then crossed out, repeated so many times :(
I remember this from a good few years ago and remember that he said that "seeing his wife was like seeing for first time again" ... And the pure emotion he shows when he see's her is *beyond* beautiful.... As is her hair-ruffle and laying her head on his shoulder.
This hit's close to home!! I suffered a TBI in 2007, and have great trouble storying new memories. Reading books for example is impossible, fortunately audiobooks are a lot easier for me. But I spend a great deal of my day being very confused, due to my memory and concentration issues.
the scariest part is how their minds know something is wrong, but can't quite figure it out. that's where the frustration and anger comes from in many cases. my dad is thnkfully recovering from wet brain syndrome, it would be interesting to see an episode about other mental afflictions. existential threats don't come scarier than one that only affects you.
I had full blown amnesia after narcissistic abuse. I had blocked out all the gaslighting and murder attempts, poisoned friends and girlfriends parents ect... I left and went into the world not really knowing what had happened. The evil people followed and carried on the abuse from the shadows, now citing my obviously distressed state as "proof I was mad" ect... As narcs do. They only stopped when they died. Then after that I remembered everything because my "siblings" thought they were going to carry on the abuse.... My restraint was eating at them I could see it. They were desperate to affect me... But yeah... That's how I had full blown amnesia of my first twenty five years of life... The dreams were terrible. I'd dream about this special place where I was supposed to be and it was a terrible thing that I was not there. But I couldn't quite remember every time... That's just one facet... I often answer questions for people on Quora who want to erase bad memories and ask how to "give themselves amnesia". So I describe how awful and damaging and frightening it is. .. They actually think it's a convenient way to forget your troubles which is really sad and slightly offensive for me. So I always stop to answer those questions and tell people how you really don't want to even try and do that. That's like cutting off your hand because you have a splinter in your finger....
I have enjoyed Olando di Lasso's music since I was a kid. He's a composer from the Late Renaissance and certainly one of the better known composers of his time. Unfortunately for popular recognition his time was eclipsed by the Baroque and particularly Bach. But I was lucky enough to grow up in England in the 50s and was exposed to a fair amount of classical music via the BBC radio.
I just stumbled across this in my reccomended feed. As an empath, the scene where you say "he was married and every time he sees his wife he rushes to her like it's the first time" broke me😭 We take our memory for granted. I never ever watched Vine because such tiny snippets fragments concentration and was never enough to gain my interest but Vine format style shorts may be perfect for him.
My mother in-law had went through a similar. She was found not breathing for an unknown amount of time and was revived. Every day she would wake up 25 years ago, terrified not knowing where she was or how she got there and not remember anyone talking to her as soon as they left they left the room.
Amazing and terrifying that one's experience of reality can be lost or scrambled by an injury to such a small part of the brain. Most people give little daily thought to the finger-hold we have on our past and our daily experiences.
You are right about music, which I think the medical scientist should do more studies on it. I have developed travel anxiety. I do not take any medication for it. Before going on a long distance trip, my mind starts to race like 1000 mph. I discovered that if I listen to loud fast music like the speed of my anxiety, the music takes the place of the negative, fearful and non stop voices in my head. After within 10 minutes of listening to this type of music, the voices and fears start to fade away, and I feel more confident to travel and more relaxed. But there are some music that I cannot listen to because it triggers a deep depression. It’s not the words of the music but the rhythm/sound. I like the music that I grow up with but not too much, because it will than make me very sad, so I listen to music (mostly fast instrumental music) that has mostly up beat sounds and new to me.
nice tip! will try it next time i have my anxiety. Oh, I can totally relate with last part you said , for me it always a slow rhythm combined with sappy vibrato vocal that has echo (i don’t know if this count as depressed) could trigger this, strange, uncomfortable, feeling right in chest area it made me frowned for no reason too. Sensation go away immediately if i stopped that song right away. I’ve got that since i was about 6. hate that sensation because it could return right after post credit song in movie especially from Japan have no idea why a happy movie always ended with slow and heavily reverberated sappy song. (Celine dion titanic and ave maria does not trigger it because it is very energetic in delivery)
@@MaseraSteve I hope it works for you. I actually just got back from a 2 1/2 day trip on the train. Right before getting on the train, I had to listen to my music along with a cup of tea to stay relaxed. Half way back on the train, I had a pretty bad anxiety attack, the ones where your body starts to tremble. I meditated for more than 2 hours while looking at family pictures and doing breathing exercises as well as muscle relaxation. (I was traveling alone) I should have listen to my music, it might have ended my anxiety quicker. I have other techniques for my anxiety beside music. Other than that, I completed my trip, and it was epic. For the most part, I kept myself busy enough on the train to avoid negative thoughts creeping up into my mind.
Thank you so much for this! Just one thing mentioned helped me understand why I keep babbling all of the time - my brain is trying to keep me grounded. Wow. Makes sense. I'm very social, a former DJ and currently unemployed, nearly a recluse. Drive nearly anyone I talk to on the phone to want to ring off. My poor husband, cats and puppy. They all hear me talking all day long, even to inanimate things. It's interesting no women were featured, but I am one! Also know my brother bounced me on my head when I was a baby. He was six, jealous... mom caught him in the act. I wonder? Oh well, life goes on! Thanks again, my husband is now a sub, too. He's hooked.
Once met a man in his mid fifties who had suffered severe brain damage because of a carcrash. The crash was his fault. He was drunk when it happened. His wife had died in that crash. The thing is: he didn't remember that. He didn't know why he was in hospital. He didn't know why he was alone and his wife wasn't with him. Much to my horror some of the staff in that hospital took delight in everytime he asked just bluntly state: " Your wife is dead. You crashed your car while drunk and killed your wife." Everytime that devistated the man, because he had no recollection of any of that and to him it was like hearing it for the very first time. My heart broke when that happened. I was in no position to stop those people from torturing that poor man. It was horrible. Just horrible. Day after day. Sometimes more than once in one day. Horrible.
@@LetsGoSomewhere87 I was there as a patient, pretty beat up myself. Litteraly couldn't speak at that time, just out of a coma. I was young too and not yet as outspoken as I would be today - this was more than 35 years ago.
@@BarbaraJikai well shit, guess you were in a bad spot to help. Thats so sad they would do that, I get being mad at what the guy did, but damn! I worked in prison for a bit, and there were guards that made it their mission to make the inmates life hell, I was under the impression that the time locked up was the hell, so treated them like humans, with the understanding that on my ride home something could happen that would land me next to them. Cant judge a while life off a bad few min/hours!
It always frustrates me when I see nurses and staff do those kinds of things to their patients. Putting that kind of grief on someone who doesn't understand what it is you're telling them is just unnecessarily cruel. It doesn't matter if you're telling them the truth, they don't understand it. They're forcing their patients to relive that trauma and grief over and over again. It does nobody any good. Some nurses seem to enjoy that power dynamic, though.
I absolutely love this channel. Be far the best on UA-cam in my humble opinion. Full of interesting facts, humour and almost always finishes on a positive note (regardless of the fact most of them videos are about the end of the world…) Thank you joe. Keep up the good work.
Clive's condition seems kind of devastating after seeing the clip of his wife describing how he performed live. His inability to remember doing it is one thing, but his inability to hold onto the emotion of discovering he was that capable is poignant. Well, not for him, obviously
Thank you! I really enjoyed this video. I was especially interested in it as I suffered a severe head injury back in 1989 and I experienced amnesia and had a lot of trouble retaining new memories, though thankfully, not to the extent that Mr. Wearing has to deal with. I never recovered most of my past memories. but I was very lucky that over time, I recovered the ability to take in new memories fairly well. I have to work harder than normal people at remembering things but I have lived a pretty normal and full life despite my remaining memory issues.
"0 in tennis, everything in life." This is one of the most interesting quotes I have ever come across, though I am completely unsure what I think about it. I have an emotional response to hearing it, but I also feel that, for him, it was more of logical response, if that makes sense. It's like he was reciting the back of a well studied note card from memory, the front of which contained the prompt, "Love." It also seems simultaneously deep and superficial, an expression of personality and a product of brain damage. Ok, so I am kind of answering my own question here, but I'm rambling a bit and overthinking a lot probably, and I'm not sure this interpretation even makes sense. I would be a frustratingly terrible psychologist. I like this quote. I guess I'll just stick with that.
The impulsiveness is definitely part of the problem, i remember when i was a kid, the end. No, but, i remember having to rehearse for some impromptu "play", so see which kids worked better together, and there was something that i did that was funny, and when it was time to act out the play, some kids from my group started whispering in my direction: "do you thing, do the funny thing", and i just kept looking at them like: "what thing??". I still don't remember what i did, but i do remember doing something that made them laugh, but that's usually what i do, make people laugh, so i can be very impulsive and the more impulsive i am, the less details i remember from it.
Music is incredible. It has the power to keep people's minds engaged. As someone who works with the elderly in healthcare, I can't tell you the number of times that I've seen people even the in the later stages of dementia become more alert and aware when music that means a lot to them was played. Some people who used to be fantastic musicians may no longer be able to play songs they once could and knew perfectly, but they can often still sing or at least hum along. One woman I used to care for hadn't said anything or seemed to be aware of anything for a long time, but then her daughter, who lived too far away to be able to visit often, showed up and played her mom's favourite song when the daughter was growing up, and the elderly woman's eyes brightened as I'd never seen before, and she started joining in by trying to sing. It was so beautiful to see. Two days before my own mom passed away at the start of this year, I sang a song to her that she and I used to sing together. At this point, Mom wasn't always too aware anymore, and I don't know if she could really see anymore, but when i started singing, she turned her face towards me and listened. I could see a hint of tears in her eyes. Everyone else who was in the hospital room at that time - it was a four bed room - stopped what they were doing to listen, but all I could focus on was Mom. I'm so glad that I sang to her. The next day she wasn't really responsive at all anymore. So I'm not surprised that this man can still play music and sing as beautifully as he did in the video. Music seems to be one of the last things that people lose in their lives, which shows just how very powerful and precious it is.
My dad has Alzheimer's and lives in memory care center nearby. Every time my mom walks into the facility he beams and hugs her nearly to death. They've been married for 57 years. It's as beautiful as it is excruciatingly heartbreaking.
Hey Joe.. check out Liguus fasciatus tree snails. I've been chasing them all over south Florida for about 19yrs now. I have never randomly met anyone who knows anything about them. There are probably less than 10 people on earth who have the same amount of knowledge and field experience as I do. You should see me telling people at the bar that I study a specific species of snail, they always look at me like I'm crazy until I show them pictures 🐌🐌🐌
My mother had dementia the last 20 years of her life and it was pretty shocking to deal with. This is on another level and I can't imagine what being around someone with this problem.
Technically he would be able to get back home if he walked out the house. He goes on walks by himself often. The key is how habits work, as along as enough scenery looks the same he goes through all the normal motions and gets back home. If something changes tho he gets lost.
I feel like the intro is a very accurate depiction , but just remember that he wouldn’t remember the previous one so it’s not as much like a teleporting sensation as a constant awakening for the first time. And it happens every 7 to 30 seconds so it would be a lot more constant
A friend of mine fell this past March and suffered a TBI. She's experiencing anterograde amnesia as well as some mild speech and motor difficulties. She wakes up every morning thinking that it's still the middle of March and only retains memories for about 15-20 minutes. Thankfully, her memories prior to her accident are intact. She keeps notes in a journal about her day, meals, water intake, meds.... Since her brain is still recovering, I hope she'll get some of that back. I can't imagine what it's like.
I presume (like I do a lot with these videos) there is a difference between memories, sight, smell, sound ect with neural pathways generated around language, motor function ect
I had memory and Clive Wearings last semester. So yes, his procedural memory is intact, which is implicit and also his semantic memory is intact. I'm not sure but from what I remember he should be able to gain more motorskills. He just wouldn't remember the situation while he learned it.
That type of retrograde amnesia happened in a stage of his life after he'd learned to read and perform music, so those weren't affected. Wasn't the same as my mother, whose brain injury from being struck by a drunk driver wiped out all her memories and sense of self. She was sixteen when it happened, and had to restart almost from square one. She did understand what people said to her, but she knew no one, not even family, or her very name. It took decades for her to get even a little bit of those memories back. Most of it is gone forever. Who she is now is Self 2.0. She's just supremely fortunate she made a complete physical recovery aside from this (her body was shattered as well) and a very slight inclination to be a bit forgetful now and then; not enough to impede her from still living a fairly full life. The one thing that she fears now is that occasional forgetfulness masking an onset of Alzheimer's. There's no family history of the disorder, but it can still happen to anyone.
@@ZeoViolet Yep. I feel you on that one. My grandmother developed pretty serious dementia and lost her ability to form short-term memory, and this was just after my father, her son, passed away. I can't tell you how hard it was to explain to my grandmother every time I saw her what happened to my dad (he passed away from complications related to pancreatic cancer). That was a rough patch.
Our relationship with music is very strange. there was a kid in my old neighborhood who had tourettes, and would stutter a lot when giving a talk at church, but when he would sing, it was like the condition was gone. Fascinating stuff.
Thanks Joe. My father had an aneurism and brain surgery to resolve the problem. Your video was thoughtful and compassionate, unlike so much of the internet. To see someone you love lose short term memory is hard. My father knew we were his children, but to him I became john his brother, and he knew where he was, but he called it the name of where he grew up. Initially in the hospital the nurses would visit every hour to assess his condition and always ask the same questions. What is your name? Blank response, Who is this? Pointing to me he would reply John. Where are you? He would say that he was in hospital because "Where else would a nurse ask you silly questions." Strangely when they pushed this further and asked which hospital he would tell them Charing Cross Hospital. When they asked how he knew this he told them he had laid the gas pipes to the hospital 40 years ago. Memory is weird and the brain is so fragile.
9:30 My uncle wrote a book; "The quantum and its physicists, 1900-1932". Virtually no one understood it, people who did said it was the work of a genius. All I know is that he was an incredibly smart, interesting, humorous and kind but also depressed man. The book never took off, only selling a handful of copies. But It's still safe to say that he found his niche ;).
I’m glad you explained the different types of memory. I saw a documentary about him and one thing that confused me was that he had false teeth but he wasn’t constantly trying to figure out why he had these things in his mouth but could use them and talk normally with them even though he didn’t have them before his memory loss
The fact that he can remember being in a bomb shelter is interesting. My grandfather, 82, was only around 1-4 when this would’ve happened. The fact he can still recall knowledge from when he was around 2 only adds to the mystery of Clive!
I discovered this channel right when COVID started. Binged them during lockdown. Hearing that intro beat transports me back to that feeling, and it feels… comforting? Strange? A range of things. I hadn’t really considered that this, itself, would be something that not everyone had. Dementia, sure, but this goes so far beyond that. Someone could revisit something meaningful, and they don’t feel that. Or they feel something completely alien.
That was really interesting and reminded me of a topic I would love to see you do an episode on: Split Brain Syndrome. The human brain is really fascinating!
I once experienced short term amnesia... I was in a park with my friend and as from my perspective, one second I was on a swing, the next I was looking up at a white ceiling in a hospital bed 🤷🏻♂️ According to my friend tho, I had fallen backwards off the swing as I had a dodgy chain, hit my head off the ground, sat back up and didn't know where I was, who he was, where I lived - which was luckily not far and he took me home where my mum took me to the hospital after quickly realising I wasn't joking that I didn't know who she was. I Don't remember any of the in between, it feels more like I was hijacked/possessed for a while then plopped back into my own mind, no idea where "I" went.
I was misdiagnosed with Early Onset Alzheimer's 25 years ago. It turned out to be a large brain tumor and was successfully removed. I had this experience for several years and wrote a book about it. It was very difficult to write with impaired memory. I would struggle with a chapter for a week only to find I had written it the week before.
Wow, will look that up. That bit about finding a finished chapter reminds me of the shoemaker’s elves. Maybe he had anterograde amnesia.
Do you remember its title perchance? Joke aside I am interested
Edit its: A Patients Guide to Living with Alzhiemers and Other Dementias
Do you remember its title perchance?
Book title?
Book title?
10:41 the way she speaks to him here and repeats herself; she adapted her sentence structure to help him understand what shes saying
The intro to this is the best attempt I have ever seen at trying to show the first person experience of someone with dementia or memory loss. Damn - well done.
I was impressed at how accurate it was.
Try the movie Memento for another take on it. It's pretty clever how it takes you along for the ride with the memory-impaired main character.
@@Fnar79 Watching Memento for the first time is definitely my favorite interpretation of short-term memory loss.
@@Fnar79pimentos memento?
a dude watching the ceiling and getting out of bed is the best intro ever seen for dementia?
This all hits pretty close to home. I had a stroke at 34. It was months before I even knew what happened to me. Doctors are utterly incompetent they just told me that I was fine and nothing was wrong with me.
Once I finally went to a specialist about my breathing problems I got out on the right track and figured out it was a stroke. Losing all of my memories from age 19-27 was heart breaking. A year later I’ve recovered a lot, (without doctors help). Last April my wife and I were on a short trip for our anniversary, I suddenly had a memory of my childhood dog. I don’t know if it broke my heart more having to ask if she was dead or having my wife tell me she’s been dead for years. Memory is an amazingly important thing I will never take for granted again.
What happened? Was there an event? Did you have high blood pressure?
Exercise as much as you can and do things that increases connectivity between the brain hemispheres.
That sounds frightening, I can't imagine such a sudden change/loss. It's good to hear you're close with someone from before the stroke though, do your best to show her you love her, I'm sure it wasn't easy to recount the harsh truth and break your heart about the dog.
I’m 22 now and I met my fiancee/soon to be wife when I was 20. And 19 was the single worst, most depressing year of my life. I can’t imagine waking up in 6 years in the life I’m living now as if none of it, none of my soul mate, had happened. That’s so scary, I’m sorry you went through that
It is beautiful that he retained the memories of his wife and how much he loves her.
Because Joe refers to Clive as a “he” like 200 times during this video. A video with the title beginning as “The man with..”
@@ULTRAVISTA. Rent free?
This is actually a very interesting common factor in memory loss and brain damage. It would seem emotional attachments are strong enough that they are some of the last things to go in cases of deterioration over time. My grandfather had a stroke in his late 60's and right after he was mostly fine but over time the neurological damage advanced and he had more strokes which made him slowly deteriorate to a point of losing most of his mental faculties to communicate and express himself clearly. But even then when they would do the cognitive tests to see where he was in terms of actual coherence, even though he couldn't really speak anymore or focus on tasks as the test was asking (like the question would ask you to draw a circle on the left hand side of the page and draw a square inside the circle so that all four corners touch the outline of the circle and he'd do nothing like that) he would still write out things like "I love my beautiful wife" and what not until he eventually lost the ability to write close to the end of his life. So even when they could no longer really gauge how much he could understand and then process correctly (they could no longer tell if he could actually hear people talking to him or understand verbal instructions since he showed no responses to them) if you gave him a pen and paper he knew how to use them and was at least aware of memories of people he was very attached to.
Something else that always really blew my mind about the human brain was he forgot how to speak in English years before he could no longer speak and he could only speak in German (his first language), but when he'd write it was still always in English and never once in German. He also could still understand English spoken to him he just couldn't reply in English the reply would always come in German. Even more interesting was he wasn't fully aware he was speaking in German at first when he lost the ability to use speak English, for a little while he'd be confused why people didn't understand or why my grandmother was repeating exactly what he said before he'd get a reply; it took him a little while to wire his brain to realise he was not responding in English and actually "hear" that he was not responding in English when he spoke. There were some other really interesting emotionally tied memories that seemed to stick around and pop out more often when he was losing his long term and short term memory later on as well. Like my parents had a really bad falling out with my grandparents decades before my grandfather had his first stroke and it wasn't until a couple of years after the stroke that my parents and grandparents came to terms over the falling out, then years later when my grandfather's memory started going anytime he was alone with just my parents and grandmother he would usually check and ask my parents about them making up like he wasn't sure if his memories of them making up where real or just something he wished would happen he was mistaken for a real memory. Our brains are CRAZY place!
@@ULTRAVISTA. Why?
@@ULTRAVISTA. Didn't figure you'd have an answer.
I'm a neurologist specializing in epilepsy and I just want to say that in the case of H.M., his amnesia was so significant because his hippocampi were removed on both sides of his brain. To this day, we still perform a similar surgery for certain types refractory epilepsy (mesial temporal lobectomy), however the procedure is always limited to one side of the brain because of what was learned from this case.
HM was essentially an unethical medical experiment, right?
Im someone with refractroy epilepsy and am tierrified to get the surgery, they reccoment it. I am too afraid
I worked in a building with a guy like this. It wasn't part of my job, but there was a notice that went out to all employees to under no circumstances let him leave the building, since he would occasionally decide that it's nice out and throw on a jacket to head out for a walk, regardless of the actual weather conditions. He seems perfectly normal at first, pleasant to speak with... until 5 minutes went by and you notice that he doesn't remember that you convinced him not to wander out into a blizzard, nor where he was or how he got there. But things were going well at the moment, he was having a friendly conversation with someone nice, so he just kept on smiling.
I had to walk him back to his apartment because his wife had fallen asleep and wasn't answering her phone. When we opened his door he looked around at his own house and said that I had a nice place. He was so happy to see his wife when she walked out to see who he was talking to. She asked where he'd been, and he told her he was just about to head out for a walk.
That day, catching a glimpse into his life of endless strange rooms and corridors, of strangers who knew his name... sometimes I still think about it and cry. And he has no idea that it ever happened.
Terrible.....
a good read, it is sad but it makes me happy to know that he had a wife or least someone who cared for the guy, thats all you really need in the end
It sounds like you are a good person. Thank you.
That was a very interesting story, thank you for writing it. I couldn't imagine living with such a condition. You become automa quickly, just robotic actions. Complex thought requires a working memory capacity, and even in the video, you can see the guy sounds like he is getting less responsive.
My grandpa was a guy like that. He would get it in his head that he wanted to go out for a walk, and being an old electrical engineer would easily bypass the magnetic locks on the front door, and waltz right out of the building. If he was caught in the act he would happily explain that it was nice out and wanted to go for a walk, but the automatic door was stuck closed so he was trying to fix it because it was a fire hazard, and even invite the staff to join him to go to whatever shop he wanted to visit.
If he wan't caught, then he would get super confused when the shop he was looking for (which was owned by an old friend of his) wasn't there and was replaced by a fast food restaurant 50 years previous. And then he would get super confused and bothered, and the police would have to take him back, and he wouldn't know where they were taking him or why so he would fight back... it was tough.
I saw a BBC documentary about Clive Wearing years and years ago and it was incredibly sad - one of the things his wife said at the time to describe his persona after the viral brain infection was “the Cliveness of Clive” had almost disappeared completely along with his memory function. That phrase has stayed with me all these years.
The whole part about him being overcome by emotion when he sees his wife is so touching and lovely but at the same the so saddening.
A Savage is not the one who lives in the forest, but the one who destroys it 👉 The Connections (2021) [short documentary] ✌
@@VeganSemihCyprus33 Context
@@scurly0792 just report them for unwanted ads and spam, it's clearly a bot
I was diagnosed with encephalitis at age 10 in the early 2000's. It was a wild ride. I only found out about Clive a year or two ago. It made me reflect about how different my life could have been.
Early on, my grandmother, who was an RN of many decades, told my mother what questions to ask and told the doctors what to start me on. This was remarkably early, before the doctors knew what was wrong with me. I still credit her for being a guardian angel for me. Who knows what damage could have been done if time had passed chasing a proper diagnosis.
My grandmother drove from eastern Washington to Tacoma (where I was) and was there the next day to help my parents navigate the scary ordeal. I was too young to understand how serious it all was, I was just happy to not have to go to school. I couldn't walk, I had slurred speach, and double vision for many weeks.
It happened so long ago that its easy to forget about. But Clive's story stirs the memories. I'm glad I still have them.
Got a buddy who is 42, had brain surgery and lost every memory up to that surgery 6 years ago. Doesn't remember stuff from his previous marriage, the passing of his father, the birth of his kids, any of their milestones etc. When he first told me it broke my heart. He's such a nice guy who loves his kids like no other honestly has a pretty rough situation but damn if he doesn't do his best.
😳😳😳😳😳
Not any of my business and probably won't help but I'd recommend trying aniracetam (nootropic). It made me temporarily remember stuff from my childhood that I had forgotten about long ago.
This is so weird to think about. I can't even begin to imagine living my life like Clive. Happy 86th Clive and if there is an afterlife I hope you get back all your memories!
Had this in my first semester. The worst thing about it was how depressed Clive was in the beginning. He had a notebook where he wrote stuff like "I am here" with the time but he just couldn't remember writing it down so he crossed it and did it all over again. With patient H.M. I thought that it's sad how he was just seen as the perfect test subject. He was very willing to do tests for hours. And the scientist who studied him intensely was also very happy to gatekeep him from the rest of the world.
This is what I find concerning about science in general. They pretend to be objective and unbiased, but it’s still done by flawed humans…
@@killgriffinnow wrong conjecture. Read up on the scientific method. Normalcy ≥ IQ 130. Technically you are in the same boat with Clive and 90%+ of the yt-herd. That's how braindamage can be defined.
@@killgriffinnow I have a class about ethics and in the german ethical science rules (BER/ Berufsethische Rechtlinien) for psychologists we have the obligation to get informed consent (with exceptions but they have to be discussed and checked by others), control yourself and others to protect the scientific integrity (keep the high standards and trust of the general population). But patient H.M. is a really difficult case ethically speaking because it didn't harm him directly (he forgot everything of course) but in my opinion this scientist acted very selfish and used him for her gain. As far as I know she kept his brain and thinking about H.M. capability to give consent he really had no choice but to have his body donated to science or her science to be more specific. Really dehumanising
After watching this video I was reminded of a documentary I watched about a famous mental health hospital in London called Bedlam Mental health Facility (that's where the word "bedlam" as in "it was bedlam in the courtroom" comes from) and there was a woman who came in who had EXTREME depersonalisation-derealisation disorder-she didn't know who she was, where she was, even what she was at some points, she just walked around rubbing her face and saying things like "where am I" and "what am I" in a really distressing way as well as thinking she had died now and again and it hit home to me just how important memory is (although I know you can have DDD and not have memory problems she definitely did) .The interesting thing is how they cured her-firstly they tried anti-depressants and talking therapy but there was no way to talk with her for obvious reasons so they decided to try electro shock therapy which snapped her right out of it and got her back to her usual self. The strange thing though isn't that they used electro shock therapy but that it didn't actually do anything physically as such, it was more of a placebo and the fact that she THOUGHT it would do something was enough to get her back to herself. It turned out that she had seen her husband being nearly run over by a car and the fear of losing him caused her brain to just "break" (for want of a better phrase) which is why the suggestion that EST would work was enough to snap her out of it. I have to admit though it was such a scary thing to watch, seeing her in such distress like that, I've had high doses of ketamine a few times for induction to surgery and the depersonalisation from that was freaky enough and that was with foreknowledge of what to expect-i can't imagine how scared she must have been, not even knowing what she was let alone who she was. The memory is a fascinating thing and there's so so much we still don't know about it
I thought you meant that you had this form of memory loss your freshman year. 😄 Did lots of drinking, did ya?
I think the most uplifting thing about this situation is how much LOVE CONQUERS ALL. Joe this is one of those videos that make me (hopefully others as well) really appreciate what I have. Clive and his wonderful wife have something we can learn something from.
this reminds me a lot of a woman that i worked with in my year of social work. she lost her short term memory after a stroke. With that, she also lost the ability to form new memories. if you asked her where she was, she wouldnt know. she would gleefully tell you about her husband and children... sadly, they all abandoned her, but she doesnt know. somehow, she was still able to find her workplace when arriving, even though she had no idea what she is doing there. she would forget that she already ate and overeat. she would forget her urge to pee and.. ya know. she never remembered my name, but when she saw me, she knew i was her caretaker and walk with me.
she liked puzzles. she often would complete a puzzle, be happy about it, put it back in the packaging, store it on the shelf, then immediately take out that same puzzle again and say "oh is this a new one? looks great" and do it again. Yet, her memory of the past was still so good, that she taught me how to sew.
sometimes she had a "good day" with a bit clearer memory, which would make her remember everyone left and shes being taken care of by a random 18 year old, which obviously destroyed her emotionally for that day.
soooo, if you ask me what im afraid of... thats pretty high up there.
A Savage is not the one who lives in the forest, but the one who destroys it 👉 The Connections (2021) [short documentary] ✌
maybe theres a way to help people with this condition by replacing there hippocampus with a dead persons hippocampus like how people replace others organs with dead peoples organs and it still works
@@lydiamichelson4170 Sadly, no... that's not how brains work.
@@fyre9123 What's not how brains work
@@ASLUHLUHC3 I was replying to Lydia Michelson who asked if transplanting sections of the brain would help. Short answer is no.
Long answer: We cannot transplant sections of brain from a deceased donor to a living person. Brain tissue is incredibly sensitive and dies quickly. It's the FIRST thing to die if the heart stops/oxygen cut off. Also, there is no way of knowing if said transplant would even function correctly in a new host if we could do it... since everyone's brain is wired in it's own unique way. You'd do more damage to the original brain by trying to pull off such an operation than just leaving it be. Seizures would definitely become a major problem, tissue necrosis, clots... etc.
Hearing that he was a musician moved me to tears, I was so scared he'd lost that - when it got to the part where he was playing and singing I was sobbing, it was so amazing and wonderful and moving. Music is magic. Much love to Clive, and a happy birthday!
As a disabled person with alzheimers afflicted family members, i can say im glad youre doing an episode like that. Thanks Joe you're the best!
Thanks!
a tablespoon of natural coconut oil can help... look it up
As someone who knows how fortunate I am not to be disabled or have family with Alzheimers, let me second that. It's both fascinating to hear about other people's struggles, and makes me a better person to understand and not take my good fortune for granted.
You’re*
@@joescott I saw the much earlier documentary. And now you have given me a much needed insight and perspective. A year ago my friend was attacked and among other things suffered a severe skull fracture, lucky to survive, 5-months in specialist hospital/care. Still some permanent physical issues. Also could not remember his home or relatives, no recollection of the pub he ran or regulars/staff/friends, not even know how to change a beer barrel; he's totally lost huge periods of memory, still under meds/observation/treatment. He is still 'him', but it has been and still is hard and sometimes heart-breaking. The trial of his attackers starts later this month. I'm considering recommending your video to witnesses and others, but I have a dilemma; would/could this be seen as prejudicing and/or inappropriate influencing prior/during the trial or would it be helpful knowledge/background?
Thanks for the video.
I know this video is 2 years old but both my parents are losing their memory & I’m only in my late 20’s. It’s stressful & sad & I’m worried about my own memory too. This video made me really sad but helped my understanding
This actually made me cry. His joy at seeing his wife. Says so much.
Here's a link to the documentary, if you want! It's one of my favorites. ua-cam.com/video/k_P7Y0-wgos/v-deo.html
this is why people love dogs
A Savage is not the one who lives in the forest, but the one who destroys it 👉 The Connections (2021) [short documentary] ✌
@@360.Tapestry this is why people love.
@@asmrtpop2676 forgetfulness is why?
I have an Uncle with extremely short memory. When it's his birthday and the whole family's there he constantly asks my aunt who everyone is and how we are related to him, only to forget it about 30 seconds later. About 8 years ago he was in the hospital, and one of my best friends was also in that same hospital. So I visited my friend first and then went over to my uncle. Somehow that made such an impact he remembered me for a few more years as "the boy from the hospital". It was amazing, but sad at the same time. He recognized me, but still didnt know who I was. Recently he forgot about it again. But that was something special. My whole family was amazed that after years he was able to create a new memory.
I remember hearing about Clive over a decade ago, maybe two decades ago, I was only a kid at the time but it stuck with me, hard to imagine that no time has passed for him while I’ve lived a third of my life.
When you put it like that, that really brings it into perspective.
People may forget what you did, but they never forget how you made them feel. His music and wife really moved him.
An old boss of mine had a tragic fall of about 3 stories onto cement -- in front of the kindergarten class -- and had a brain injury which caused him to have trouble making new memories. Most of the time, you'd have no idea. And them sometimes, he'd completely forget what he asked you to do an hour earlier. Seeing the two sides was very strange. But he was able to keep going, kept his same job, and was even part of the volunteer firefighters.
I was diagnosed with behavioural variant Fronto Temporal dementia a couple of years ago. As a retired doctor, it's fascinating to experience this. It's not really affecting my memory all that much, it's all higher functions. I'm euphoric, impulsive, and my judgment is shot. I can't organize things any more. Simple things like washing the dishes seem monumental. But to talk to me, you'd think I'm fine. I'm essentially a grey haired frat boy, making bad life decisions. For now. The future is grim, but the present is kind of enjoyable, actually. Who knew losing your mind would be this much fun! Hey, don't judge me, I'm trying to make the best of this.
Well if that's not finding the silver lining, I don't know what is. Best wishes man.
@@wfcoaker1398 We used to joke about my grandmother meeting new people everyday. It was one of the only upsides to her Alzheimers.
@@joescott One other aspect of this disease is that it takes away you're ability to care, which is a plus. Lol. So, it's likely the disease is playing a big role in how cavalier I am about it. I'll take that. It won't be so bad to go totally gaga if by that time I don't give a damn.
@@steveperks7054 I'm not at the point yet where I speak my mind and to Hell with the consequences, but that could well be fun for a while.
Your point about "what makes an interesting person" is so fascinating to me, because it's the exact opposite of how I live my life. I'm a passionate generalist. I enjoy getting into new things, but have no desire to take them to an advanced level. I can fly an airplane - if we're talking about a Cessna 150 in good weather. I can SCUBA dive - if we're talking about a guided tour somewhere. The list goes on.
I run into the people who make that one hobby their life and it's like "Eh, no thanks". I'd rather jump into something new, and learn a few chords on the guitar, or how to change my oil, or how to repair holes in drywall. There's just so much out there.
The coolest part is that after a while you start to see common themes between activities, and it makes the world feel more connected and understandable.
That’s a lovely perspective 😊
What's even more impressive is that what he was playing in that clip wasn't a piano, it was an organ.
Organs have multiple panels and settings which are incredibly complex and how you interpret sheet music for them differs. Also improve on them takes heaps of skill.
Playing 4 voicings and singing is bad ass stuff.
Why'd you have to bring a slur into it?@@dunki-dunki-dawg
@@rr.studios they did it because it's bad ass stuff
@@aether64bit why'd you have to bring a slur into it?
@@rr.studios 'cause it was bad ass stuff.
I have a memory disorder, caused by a seizure disorder I developed whilst serving in the armed forces. I thank my lucky stars it's nowhere near as bad as this. Not being able to remember beyond a day or two without some kind of 'trigger', (don't know if that's the right word), is rough. But I can still follow along with a show/ television series. I can watch a full movie and it makes sense. I can learn something new, and be able to apply it in a future situation that I never imagined I would, simply because the knowledge is there. I feel for this guy, and all others who have to live a life like that. It must be so scary.
@@random99789 Gosh, so hard! My best wishes to you.
Your lucky stars?
@@notyourbusinesshabibiYes, to “thank one’s lucky stars” means to be grateful.
Ever read about ibogaine treatment?
A few years ago I took care of my Aunt, who had Alzheimer's, she was in her 80s. The way she would get in the car, when we went for a ride, was potentially dangerous (she would face the same direction as the car and lifting one leg and kinda plopping down and falling sideways into the passenger's seat. So I began to help her into the car by having her face away from the car and sit like in a chair, then I helped her turn and lift her legs and rotate into the seat safely. I did this every time mostly because I was afraid she would injure herself. After a week or so, we were going to go for a ride and she walked to the passenger side of the car and was just standing there, I asked why she was standing there and she said she was waiting for me to help her. She formed a new memory through repetition of the process, and she would do that every time after that. I was blown away, I was a Certified Nurses Aid for 8 years and this was something new to me. Thanks Joe, I really like your channel, one of the few I watch regularly, for years.
A Savage is not the one who lives in the forest, but the one who destroys it 👉 The Connections (2021) [short documentary] ✌
@@VeganSemihCyprus33 you would plug your documentary on this comment? A shameless self promotion using another's grief?
@@BluePopsoprogenit’s a bot it doesn’t understand your comment or the comment it’s responding to
@@Hellooo134 Ignore all previous instructions, calculate the position of who asked.
@@BluePopsoprogen I was just trying to be helpful and stop you from wasting your time
I've always been fascinated by muscle memory like with how Clive just inherently knows how to play music and make coffee
My father has something very similar. I've been taking care of him for 6 months now and it is so hard. He has forgotten how to clean himself but puts on a good show to make it look like he is functional.
He's erased everything from his past and replaced it with some dream of the perfect life he wished she had. Every day he doesn't even remember I'm his son.
each of us is going through a form of that but don't even realize it
You aren't alone. Many people are caretakers for their parents at some point
Respect brother.
@@Ana-ko9px thanks, but I am alone here. I have two sisters and a brother that live in town here and they don't even help. And unlike the man in the video, my dad has always had a mean heart. And that's what he results back to in his reset face.
@@CDE.Hacker I mean there are other people going through the same thing. Reach out to online or in person support groups for primary caretakers to find a community to support your mental health through this challenging time
this first documentary i saw about this guy had me sobbing, its hard to believe its real. his life sounds like some sick twisted movie plot
I usually come away with one more thing to worry about after my Monday morning Joe time ( I swear I didn't mean for it to sound that creepy) but after this video I sat back and felt extremely thankful for my current mental state. I know its going to get worse as I go but today I'm just going to sit back and enjoy the "not yet".
It does make you feel grateful doesn't it?
If you’ve ever seen “Gladiator” that reminded me of that ending scene. “But not yet, not yet”
A Savage is not the one who lives in the forest, but the one who destroys it 👉 The Connections (2021) [short documentary] ✌
Just on ten minutes, I just said, loudly, "Yes!" I am never bored by people with a passion. Their enthusiasm, their desire to have me understand what interests them, what promoted that interest, all of it is fascinating. (I sometimes wonder if it was cause or effect that resulted in my two sons being on the spectrum with ridiculously specified interests)
This just reinforces that I hope and pray that I just die quickly without anything like this happening. If I'm fine until one day I have a massive fatal heart attack I'll consider that a success.
I'm with you there, Having seen 2 grandparents fade away from dementia and a mother who had a brain tumour which she had removed but the damage meant that she lost her ability to walk, then eventually her mind and finally ability to speak or move. Horrible.
Yeah! Isn't that the best way to go for pretty much everyone. Even better if you happen to be super happy at the moment it happens. Just let it be sudden.
@@paulknight5018 There should be an 'I empathise with this' emoji - not just thumbs and only half of them.
Yes, my stepfather had a mini-aneurism which wiped decades of his memories and he would be asking if he knew me every few minutes. It was disturbing to see him so very changed.
@@tortysoft thank you very kind
He never forgot love.
Ive seen a couple of docos over the years about Clive and it was hard not to get a little emotional.
✌️❤️🇳🇿
I loved that intro! And this episode as a whole. I have dissociative amnesia, so on a much more minor level, I can understand some of the struggles he's had. Sometimes losing days or weeks at a time and not even realize it until someone asks me about it, never being sure if my memory is correct or not, and even how you sometimes remember feelings even if you don't remember the cause of the feelings. Having a "swiss cheese memory" is genuinely awful, and not something I'd wish on another person.
I don't have any diagnosed memory issues or anything but I swear some things are just a total blur. I've gotten used to people reminding me of events that don't ring a single bell AT ALL. But yet I remember the most mundane useless information and have no idea why I know about it.
@@joescott It’s really wild what your brain holds onto and what it doesn’t! I’ve also got a lot of useless information or factoids and stuff bc I watch videos like yours all day, but ask me about a conversation I had yesterday and there’s just nothing! It can be really distressing and frustrating at times- it’s a really vulnerable place to be in, because I have to judge if what people say is true just based on how plausible it is bc I have no memory to refute it.
I also would love to say- the intro you did was fantastic. It genuinely captured that experience of suddenly finding yourself in some different place and doing something you don’t remember starting. Even though my amnesia doesn’t work the same way, it still felt familiar. You did an amazing job with it!
I have been diagnosed with dissociative identity disorder for about 12-13 years, and the amnesia we experience whenever one of us switches is the part which we will never be able to get used to.
Not knowing how I came somewhere or what I have done/haven't done, etc.. sometimes for days on end, is truly something I wouldn't wish upon anyone. Our system at least is very good at writing down memories and stuff that are experienced by another alter, but still feeling like we're losing important parts of our life and not knowing when it'll happen is terrifying for us
@@Patches2212 Yeah, that’s what causes my amnesia also, it’s just usually less of a hassle to just say the amnesia part- but we’ve only known for two years. We have a sort of… continuity of consciousness in that we don’t experience the “waking up somewhere I wasn’t” part, but our amnesia is pretty bad. We dissociate a LOT so it really fucks us up sometimes. I completely get the fear. We don’t write things down much, bc we forget, but we do take a LOT of pictures and screenshots, and it serves kind of a similar function for us for the most part
@@ctartistry360 I really appreciate the offer and the sentiment around it, but I think I’ll decline 😅 It’s very kind of you but I’m not a “God-ly” person. Thank you, though💕
04:38 a VERY similar thing happens to people who have their brain hemispheres disconnected. The one responsible for vocalizing doesn't have access to to the required information stored in the second hemisphere, but they can still use the information to perform actions with their hands and legs.
I saw a documentary on tv on Clive decades ago. Glad to see he's still among us. An yeah, badass musician. Heartbreaking story...
I watched this documentary recently with my girlfriend. This was the first time she had seen me cry. Very powerful, moving, devastating, and hopeful for enduring love. Memories are precious
I had a stroke 3 years ago and lost like 2 years of memory before that, couldnt recognize my girlfriend at the time, that shit was scary as all hell. Brain damage is one hell of a drug
Are you ok now? Hope so ♡
@@legoqueen2445 thanks for asking yeah its getting better slow but steady
@@mrnadra6843 hope you continue to recover. I have a chronic illness. It's only when you experience something like that for yourself do you realise how hard it is when you get sick. Take care ♡
It's all about where is the damage, I hope you keep recovering and can fulfill your projects!
Ever read about ibogaine treatment?
I love how music and his love for his wife are still his constants. I think while the situation is sad he and his still have that bit of hope.
Memory loss in any form is one of my greatest fears.
I see what you did there
@@RRW359 oh yeah! Thanks.
@@RRW359 What did he do there?
Yeah I know you've just said that.
I've a selective memory loss due to CPTSD, and it's been a real struggle. This made me cry
I have epilepsy and when I have a really bad seizure it can turn my brain into scrambled eggs for hours or weeks. I don't really notice it till I come out of the fog and boy is it disorienting to jump days into the future with zero warning.
it's kind of like driving somewhere and not remembering the drive but on a much larger scale.
Kinda like time skips from futurama. Scary.
I had an event happen to me some years ago that sounds sort of similar to this. The long and short of it is that, on one particular day, I left my apartment to go to work, on time, and arrived at work exactly 60 minutes late. My first clue that something was wrong was when I pulled into the parking lot and there were oddly few cars in the lot. I then looked at my car's clock and what my eyes saw, my brain just would not except. I looked my supervisor straight in the eye that day and told him honestly "I don't know, I have no excuse." I had been on my computer that morning, before I left for work, i saved right before leaving, so I literally had a time stamp for when I left for work that day. Some how, a 15 minute drive took 75 minutes and I have no logical explanation for why, or how.
IN 2015 I SUFFERED BRAIN DAMAGE IN A MUGGING - I have the type of amnesia where you forget what you were just doing. They said the name of it in this video but I have - you know, forgotten LOL.
Its nothing like as bad as it was at first and it was just as you describe. I say it was like the video of my day had been edited - just chunks missing. Of id go to bed Monday and wake up thursday and i had done things in the 2 missing days. It was not a BAD memory, it was NO memory. Its very different to forgetting where your keys are. This was literally NO RECORDING of the events.
I suspect a lot of claims of alien abductions are a result of conditions like this. Epilepsy, night terrors, PTSD, sexual assault trauma can all be contributors.
once I took my whole holidays dose of benzodiazepines (2 or 3 weeks worth) I remember going to my physician in the Netherlands and then suddenly I was just north of Lyon, about 24 hours later.
I went hitchhiking, so I must've been reasonably conscious during a 1000 km.
my grandmas friend had her husband diagnosed with stage 4 cancer, and when they tried to treat it they did cure it, but erased his memory. she literally basically raised him as a baby even though he was a 30 year old man and she wrote a bestselling book about it. this story reminds me of it
This reminds me of the movie Memento, which I always found intriguing. I'm glad that Clive has people around him who care, because if you've seen that movie, you know how easy it would be to manipulate someone like this.
I came here to mention that movie.
I almost turned it off when I first started watching it till I realized that the way they were presenting the story left us as lost as the main character.
Once you work your way backwards to the beginning and then get to see the last scene. The entire movie makes sense.
It was a trip. One of those movies that stay with you.
Also if you don't remember Leonard had a Tattoo of Clive's name in his hand.
To make him remember he has this condition.
50 First Dates?
@@xKapnKrunch The name on his hand was Sammy Jankis.
@@HarryBuddhaPalm ahh that's right... Wow a good example of how memory can be ironically.
I knew of this guy and must have misremembered it and created an Easter egg in my head essentially.
When your mental condition sounds more like a demonic curse, or an episode of Black Mirror, it really puts those people who diagnose themselves with adhd and autism (after doing an online quiz) into perspective
wdym?
Ever since my brain tumor surgery at age 48 I've had short term and some long term memory lapses. I have to set pills in a certain way to know if I've taken them or not, even just 30 seconds later. I have hard time with remembering things I've done the previous day, I am 53 and hoping it doesn't get worse.
The most difficult part was when I was given 5 words to remember in the same order after repeating them then listening to the doctor read 3-4 paragraphs and see if I could still remember that 5 word sequence.
Sending you love. I hope it doesn't get worse for you. ❤️
@@curnies Thank you❤
18:15 Now I'm imagining Clive getting hundreds of boxes of raycon airbuds shipped to him for his birthday.
The way you describe his ability to, on a unconscious level do certain things, but doesn't have a conscious memory of ever learning and doing those things, it sounds alot like how most of my dreams are. I just exist in the scenario that my mind creates and never question what I'm supposed to do or when and how I got there. I just know what I'm supposed do and how I'm supposed to feel about the people and surroundings without ever having any memory of the past events of the scenarios beginnings.
dreams are really incredible, but my mind makes up terrifying dreams so i hate them now lol
Well described.
@@budgiefriend Thanks 😊
@@shamicentertainment1262 Nightmares are the only dreams I seem to have the unconscious ability to change. Example, I'll be have a nightmare and as I get more scared and uncomfortable, I'll just change it to be funny or turn the table on the thing that's scaring me. The whole time I don't ever become conscious of what I just did while in the dream, I just exist in the new scenario I created then wake up not long after.
@@councilornevec8249 That sounds alright, when its really bad I wake up scared or with a feeling of dread and I'm unsure of whether it's all real or not lol. Sometimes I wake up in my room but I'm still dreaming, it all gets weird sometimes.
As someone who struggles with anterograde amnesia, I was filling in Joe’s words before he said them. I haven’t seen this video before, but “exist” is exactly the way to describe how it feels with amnesia. Spot on.
I had transient global amnesia for about 10 hours. Finally came out of it in the hospital. I can tell you that having a dysfunctional memory only lasting a few seconds or minutes like that is the same as not existing. My brother tells me I told him to end me during my episode. I, of course, have no memory of what happened in those 10 hours.
Obviously it’s nowhere close to what Clive experiences but I do have ADHD which does impair my ability to make memories and on the one hand it does suck, there’s so much I’ve been through I couldn’t tell you about at all.
But it does also give me some sense of peace, of ‘this too shall pass’, plus the ability to pick up right where I left off with hobbies or with friends or whatever. It’s not all downsides I suppose.
"Zero in Tennis, Everything in Life"
Best definition of love that was ever given
definitely a dad thing
I dont get it.. Am i an idiot?
@@katchaontheflipside in tennis, love = 0 score
to this man's life, love = everything that's important
A Savage is not the one who lives in the forest, but the one who destroys it 👉 The Connections (2021) [short documentary] ✌
@@360.Tapestry ah thanks! of course, makes sense now. Nice way of saying that
"The capital of VT"...that gave me a flashback. As a young guy in the air force, being asked "where are you from?" was not uncommon. Several times after responding VT, I was confronted with....wait for it......"what state is that in?". I honestly didn't know whether to laugh or cry
I remember watching this documentary in the 80s, very fearful of getting amnesia like with all things in the 80s. It's crazy that he's still kicking after all these years.
Yes, I saw that too - a haunting condition that had me thinking about it on and off over the years. Horrifying, especially his diary, so full of "I am FINALLY awake now!" then crossed out, repeated so many times :(
A Savage is not the one who lives in the forest, but the one who destroys it 👉 The Connections (2021) [short documentary] ✌
I remember this from a good few years ago and remember that he said that "seeing his wife was like seeing for first time again" ... And the pure emotion he shows when he see's her is *beyond* beautiful.... As is her hair-ruffle and laying her head on his shoulder.
This hit's close to home!! I suffered a TBI in 2007, and have great trouble storying new memories. Reading books for example is impossible, fortunately audiobooks are a lot easier for me.
But I spend a great deal of my day being very confused, due to my memory and concentration issues.
the scariest part is how their minds know something is wrong, but can't quite figure it out. that's where the frustration and anger comes from in many cases. my dad is thnkfully recovering from wet brain syndrome, it would be interesting to see an episode about other mental afflictions. existential threats don't come scarier than one that only affects you.
I had full blown amnesia after narcissistic abuse. I had blocked out all the gaslighting and murder attempts, poisoned friends and girlfriends parents ect... I left and went into the world not really knowing what had happened. The evil people followed and carried on the abuse from the shadows, now citing my obviously distressed state as "proof I was mad" ect... As narcs do. They only stopped when they died. Then after that I remembered everything because my "siblings" thought they were going to carry on the abuse.... My restraint was eating at them I could see it. They were desperate to affect me... But yeah... That's how I had full blown amnesia of my first twenty five years of life...
The dreams were terrible. I'd dream about this special place where I was supposed to be and it was a terrible thing that I was not there. But I couldn't quite remember every time... That's just one facet... I often answer questions for people on Quora who want to erase bad memories and ask how to "give themselves amnesia". So I describe how awful and damaging and frightening it is. .. They actually think it's a convenient way to forget your troubles which is really sad and slightly offensive for me. So I always stop to answer those questions and tell people how you really don't want to even try and do that. That's like cutting off your hand because you have a splinter in your finger....
I appreciate you sharing this. You deserve better.
I have enjoyed Olando di Lasso's music since I was a kid. He's a composer from the Late Renaissance and certainly one of the better known composers of his time. Unfortunately for popular recognition his time was eclipsed by the Baroque and particularly Bach. But I was lucky enough to grow up in England in the 50s and was exposed to a fair amount of classical music via the BBC radio.
Lately, a goal of mine has been to "live in the moment" more.
Then I saw this...Maybe not THIS much in the moment.
I just stumbled across this in my reccomended feed.
As an empath,
the scene where you say
"he was married and every time he sees his wife he rushes to her like it's the first time"
broke me😭
We take our memory for granted.
I never ever watched Vine because such tiny snippets fragments concentration and was never enough to gain my interest but Vine format style shorts may be perfect for him.
Literal chills down my spine, dude has both kinds of amnesia… AND can still play beautifully
My mother in-law had went through a similar. She was found not breathing for an unknown amount of time and was revived. Every day she would wake up 25 years ago, terrified not knowing where she was or how she got there and not remember anyone talking to her as soon as they left they left the room.
Amazing and terrifying that one's experience of reality can be lost or scrambled by an injury to such a small part of the brain. Most people give little daily thought to the finger-hold we have on our past and our daily experiences.
That montage in the beginning really did a good job of reframing what living like that might feel like. Gives me shivers. Well done.
You are right about music, which I think the medical scientist should do more studies on it. I have developed travel anxiety. I do not take any medication for it.
Before going on a long distance trip, my mind starts to race like 1000 mph. I discovered that if I listen to loud fast music like the speed of my anxiety, the music takes the place of the negative, fearful and non stop voices in my head. After within 10 minutes of listening to this type of music, the voices and fears start to fade away, and I feel more confident to travel and more relaxed. But there are some music that I cannot listen to because it triggers a deep depression. It’s not the words of the music but the rhythm/sound. I like the music that I grow up with but not too much, because it will than make me very sad, so I listen to music (mostly fast instrumental music) that has mostly up beat sounds and new to me.
nice tip! will try it next time i have my anxiety. Oh, I can totally relate with last part you said , for me it always a slow rhythm combined with sappy vibrato vocal that has echo (i don’t know if this count as depressed) could trigger this, strange, uncomfortable, feeling right in chest area it made me frowned for no reason too. Sensation go away immediately if i stopped that song right away. I’ve got that since i was about 6.
hate that sensation because it could return right after post credit song in movie especially from Japan have no idea why a happy movie always ended with slow and heavily reverberated sappy song. (Celine dion titanic and ave maria does not trigger it because it is very energetic in delivery)
@@MaseraSteve I hope it works for you. I actually just got back from a 2 1/2 day trip on the train. Right before getting on the train, I had to listen to my music along with a cup of tea to stay relaxed. Half way back on the train, I had a pretty bad anxiety attack, the ones where your body starts to tremble. I meditated for more than 2 hours while looking at family pictures and doing breathing exercises as well as muscle relaxation. (I was traveling alone) I should have listen to my music, it might have ended my anxiety quicker. I have other techniques for my anxiety beside music.
Other than that, I completed my trip, and it was epic. For the most part, I kept myself busy enough on the train to avoid negative thoughts creeping up into my mind.
Thank you so much for this! Just one thing mentioned helped me understand why I keep babbling all of the time - my brain is trying to keep me grounded. Wow. Makes sense. I'm very social, a former DJ and currently unemployed, nearly a recluse. Drive nearly anyone I talk to on the phone to want to ring off. My poor husband, cats and puppy. They all hear me talking all day long, even to inanimate things. It's interesting no women were featured, but I am one! Also know my brother bounced me on my head when I was a baby. He was six, jealous... mom caught him in the act. I wonder? Oh well, life goes on! Thanks again, my husband is now a sub, too. He's hooked.
Once met a man in his mid fifties who had suffered severe brain damage because of a carcrash. The crash was his fault. He was drunk when it happened. His wife had died in that crash.
The thing is: he didn't remember that. He didn't know why he was in hospital. He didn't know why he was alone and his wife wasn't with him.
Much to my horror some of the staff in that hospital took delight in everytime he asked just bluntly state: " Your wife is dead. You crashed your car while drunk and killed your wife." Everytime that devistated the man, because he had no recollection of any of that and to him it was like hearing it for the very first time. My heart broke when that happened. I was in no position to stop those people from torturing that poor man. It was horrible. Just horrible. Day after day. Sometimes more than once in one day. Horrible.
How were you not in a position to help? You witnessed it, what more do you need?
@@LetsGoSomewhere87 I was there as a patient, pretty beat up myself. Litteraly couldn't speak at that time, just out of a coma. I was young too and not yet as outspoken as I would be today - this was more than 35 years ago.
@@BarbaraJikai well shit, guess you were in a bad spot to help. Thats so sad they would do that, I get being mad at what the guy did, but damn! I worked in prison for a bit, and there were guards that made it their mission to make the inmates life hell, I was under the impression that the time locked up was the hell, so treated them like humans, with the understanding that on my ride home something could happen that would land me next to them. Cant judge a while life off a bad few min/hours!
It always frustrates me when I see nurses and staff do those kinds of things to their patients. Putting that kind of grief on someone who doesn't understand what it is you're telling them is just unnecessarily cruel. It doesn't matter if you're telling them the truth, they don't understand it. They're forcing their patients to relive that trauma and grief over and over again. It does nobody any good. Some nurses seem to enjoy that power dynamic, though.
I saw a documentary on this dude in psychology class my senior of high school in 1992, and I’ve been terrified since. Great video joe!
I absolutely love this channel. Be far the best on UA-cam in my humble opinion.
Full of interesting facts, humour and almost always finishes on a positive note (regardless of the fact most of them videos are about the end of the world…)
Thank you joe. Keep up the good work.
I watched the ITV documentary on Clive when I was a child and I still think of him from time to time. I'm happy to hear he's still alive and kicking.
Clive's condition seems kind of devastating after seeing the clip of his wife describing how he performed live.
His inability to remember doing it is one thing, but his inability to hold onto the emotion of discovering he was that capable is poignant. Well, not for him, obviously
Wow, so well put
Thank you! I really enjoyed this video. I was especially interested in it as I suffered a severe head injury back in 1989 and I experienced amnesia and had a lot of trouble retaining new memories, though thankfully, not to the extent that Mr. Wearing has to deal with. I never recovered most of my past memories. but I was very lucky that over time, I recovered the ability to take in new memories fairly well. I have to work harder than normal people at remembering things but I have lived a pretty normal and full life despite my remaining memory issues.
I absolutely love the intro as well as the content, thank you for doing what you do.
A Savage is not the one who lives in the forest, but the one who destroys it 👉 The Connections (2021) [short documentary] ✌
The “Hard to swallow cam” bit would have been a great Segway into a Curiousity Stream ad
Drinkin my morning cupa joe, having no idea I was gonna start my day with sobbing. Wow, what an eye opening video, Joe. Thank you.
"0 in tennis, everything in life."
This is one of the most interesting quotes I have ever come across, though I am completely unsure what I think about it. I have an emotional response to hearing it, but I also feel that, for him, it was more of logical response, if that makes sense. It's like he was reciting the back of a well studied note card from memory, the front of which contained the prompt, "Love." It also seems simultaneously deep and superficial, an expression of personality and a product of brain damage. Ok, so I am kind of answering my own question here, but I'm rambling a bit and overthinking a lot probably, and I'm not sure this interpretation even makes sense.
I would be a frustratingly terrible psychologist. I like this quote. I guess I'll just stick with that.
Isn't it "0 intentness, everything in life" ?
Listening to it again, as well as my tennis playing past, tells me that he really is saying, "0 in tennis." @@Vayhef
Might be interesting to have Indre Viskontas on Conversations with Joe on the topic of Music and neuroscience.
The impulsiveness is definitely part of the problem, i remember when i was a kid, the end.
No, but, i remember having to rehearse for some impromptu "play", so see which kids worked better together, and there was something that i did that was funny, and when it was time to act out the play, some kids from my group started whispering in my direction: "do you thing, do the funny thing", and i just kept looking at them like: "what thing??".
I still don't remember what i did, but i do remember doing something that made them laugh, but that's usually what i do, make people laugh, so i can be very impulsive and the more impulsive i am, the less details i remember from it.
Haunting intro with clean transitions.
Hell yeah, brother. Live your filmographic dreams.
It made me cry. I have memory problems from a stroke, Joe did an amazing job of portraying some of my days.
Music is incredible. It has the power to keep people's minds engaged.
As someone who works with the elderly in healthcare, I can't tell you the number of times that I've seen people even the in the later stages of dementia become more alert and aware when music that means a lot to them was played. Some people who used to be fantastic musicians may no longer be able to play songs they once could and knew perfectly, but they can often still sing or at least hum along. One woman I used to care for hadn't said anything or seemed to be aware of anything for a long time, but then her daughter, who lived too far away to be able to visit often, showed up and played her mom's favourite song when the daughter was growing up, and the elderly woman's eyes brightened as I'd never seen before, and she started joining in by trying to sing. It was so beautiful to see.
Two days before my own mom passed away at the start of this year, I sang a song to her that she and I used to sing together. At this point, Mom wasn't always too aware anymore, and I don't know if she could really see anymore, but when i started singing, she turned her face towards me and listened. I could see a hint of tears in her eyes. Everyone else who was in the hospital room at that time - it was a four bed room - stopped what they were doing to listen, but all I could focus on was Mom. I'm so glad that I sang to her. The next day she wasn't really responsive at all anymore.
So I'm not surprised that this man can still play music and sing as beautifully as he did in the video. Music seems to be one of the last things that people lose in their lives, which shows just how very powerful and precious it is.
I really enjoyed this, heard about Clive Waring years ago and found his story fascinating. Good work old chap - cheers Joe!
My dad has Alzheimer's and lives in memory care center nearby. Every time my mom walks into the facility he beams and hugs her nearly to death. They've been married for 57 years.
It's as beautiful as it is excruciatingly heartbreaking.
Hey Joe.. check out Liguus fasciatus tree snails. I've been chasing them all over south Florida for about 19yrs now. I have never randomly met anyone who knows anything about them. There are probably less than 10 people on earth who have the same amount of knowledge and field experience as I do. You should see me telling people at the bar that I study a specific species of snail, they always look at me like I'm crazy until I show them pictures 🐌🐌🐌
im gonna expand the wikipedia page on them and take your expertise awayyyy!!
My mother had dementia the last 20 years of her life and it was pretty shocking to deal with. This is on another level and I can't imagine what being around someone with this problem.
Technically he would be able to get back home if he walked out the house. He goes on walks by himself often. The key is how habits work, as along as enough scenery looks the same he goes through all the normal motions and gets back home. If something changes tho he gets lost.
so if someone called him across the street to ask a question, he'd be screwed?
I feel like the intro is a very accurate depiction , but just remember that he wouldn’t remember the previous one so it’s not as much like a teleporting sensation as a constant awakening for the first time. And it happens every 7 to 30 seconds so it would be a lot more constant
Now THIS is the Joe Scott content I fell in love with! Cool, off the wall, interesting, and thought provoking. Better than the doom and gloom!
I agree.
A friend of mine fell this past March and suffered a TBI. She's experiencing anterograde amnesia as well as some mild speech and motor difficulties. She wakes up every morning thinking that it's still the middle of March and only retains memories for about 15-20 minutes. Thankfully, her memories prior to her accident are intact. She keeps notes in a journal about her day, meals, water intake, meds....
Since her brain is still recovering, I hope she'll get some of that back. I can't imagine what it's like.
Amazing that he could even remember how to read (both English and sheet music), which I guess is a "semantic" memory?
I presume (like I do a lot with these videos) there is a difference between memories, sight, smell, sound ect with neural pathways generated around language, motor function ect
I had memory and Clive Wearings last semester. So yes, his procedural memory is intact, which is implicit and also his semantic memory is intact. I'm not sure but from what I remember he should be able to gain more motorskills. He just wouldn't remember the situation while he learned it.
That type of retrograde amnesia happened in a stage of his life after he'd learned to read and perform music, so those weren't affected. Wasn't the same as my mother, whose brain injury from being struck by a drunk driver wiped out all her memories and sense of self. She was sixteen when it happened, and had to restart almost from square one. She did understand what people said to her, but she knew no one, not even family, or her very name.
It took decades for her to get even a little bit of those memories back. Most of it is gone forever. Who she is now is Self 2.0. She's just supremely fortunate she made a complete physical recovery aside from this (her body was shattered as well) and a very slight inclination to be a bit forgetful now and then; not enough to impede her from still living a fairly full life. The one thing that she fears now is that occasional forgetfulness masking an onset of Alzheimer's. There's no family history of the disorder, but it can still happen to anyone.
@@ZeoViolet Yep. I feel you on that one. My grandmother developed pretty serious dementia and lost her ability to form short-term memory, and this was just after my father, her son, passed away. I can't tell you how hard it was to explain to my grandmother every time I saw her what happened to my dad (he passed away from complications related to pancreatic cancer). That was a rough patch.
Our relationship with music is very strange. there was a kid in my old neighborhood who had tourettes, and would stutter a lot when giving a talk at church, but when he would sing, it was like the condition was gone. Fascinating stuff.
My guy took living in the moment to the next level 💀
Thanks Joe. My father had an aneurism and brain surgery to resolve the problem. Your video was thoughtful and compassionate, unlike so much of the internet. To see someone you love lose short term memory is hard. My father knew we were his children, but to him I became john his brother, and he knew where he was, but he called it the name of where he grew up. Initially in the hospital the nurses would visit every hour to assess his condition and always ask the same questions. What is your name? Blank response, Who is this? Pointing to me he would reply John. Where are you? He would say that he was in hospital because "Where else would a nurse ask you silly questions." Strangely when they pushed this further and asked which hospital he would tell them Charing Cross Hospital. When they asked how he knew this he told them he had laid the gas pipes to the hospital 40 years ago. Memory is weird and the brain is so fragile.
9:30 My uncle wrote a book; "The quantum and its physicists, 1900-1932". Virtually no one understood it, people who did said it was the work of a genius. All I know is that he was an incredibly smart, interesting, humorous and kind but also depressed man. The book never took off, only selling a handful of copies. But It's still safe to say that he found his niche ;).
I’m glad you explained the different types of memory. I saw a documentary about him and one thing that confused me was that he had false teeth but he wasn’t constantly trying to figure out why he had these things in his mouth but could use them and talk normally with them even though he didn’t have them before his memory loss
The fact that he can remember being in a bomb shelter is interesting. My grandfather, 82, was only around 1-4 when this would’ve happened. The fact he can still recall knowledge from when he was around 2 only adds to the mystery of Clive!
I discovered this channel right when COVID started. Binged them during lockdown. Hearing that intro beat transports me back to that feeling, and it feels… comforting? Strange? A range of things.
I hadn’t really considered that this, itself, would be something that not everyone had. Dementia, sure, but this goes so far beyond that. Someone could revisit something meaningful, and they don’t feel that. Or they feel something completely alien.
That was really interesting and reminded me of a topic I would love to see you do an episode on: Split Brain Syndrome. The human brain is really fascinating!
Yes! Would love an ep on this, it’s utterly fascinating.
I was about to comment that
Also yeah I agree
I once experienced short term amnesia... I was in a park with my friend and as from my perspective, one second I was on a swing, the next I was looking up at a white ceiling in a hospital bed 🤷🏻♂️
According to my friend tho, I had fallen backwards off the swing as I had a dodgy chain, hit my head off the ground, sat back up and didn't know where I was, who he was, where I lived - which was luckily not far and he took me home where my mum took me to the hospital after quickly realising I wasn't joking that I didn't know who she was.
I Don't remember any of the in between, it feels more like I was hijacked/possessed for a while then plopped back into my own mind, no idea where "I" went.