ALL OF MY ORGANS WANT ATTENTION! (12.5.17)
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- Опубліковано 7 вер 2024
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I had a revelation today- our bodies are really impatient things... I was nebulizing an antibiotic, mixing an IV antibiotic, and my feeding tube started beeping! They all wanted attention at the same time! haha. If only they could learn patience! How are you guys doing today? Tell me something random... what did you eat for lunch?
The Frey Life I just had KFC for lunch at the laundromat as we're trying to get hubby ready for his 24hr sleep study!
I def understand abt every part of the body wanting attention at once! The hardest thing for me this year is juggling my endo pain with fibro pain with cfs fatigue and migranes and hyperthyroidism and trying to get stable enough for a total thyroidectomy and ahhh!! It really can be a juggling act!! I really appreciate your videos! Your attitude towards it all encourages me so much!! Always praying for you Mary! And Peter and Ollie too! 💜🐕❤
Well, I had a delicious turkey club sandwich for lunch. So good! Then I saw a poodle the same size and color as Ollie, but it was a girl. I shall dub thee Olivia! She'd be a good date for Ollie.
The Frey Life I had a toasted cheese sandwich because I left sixth form early for a hospital appointment. Love these videos guys.
We had left over spaghetti and salad for lunch. I had two good days in a row and today I am just in so much pain and am so tired! I had a nap after lunch so I am going to keep plugging along!!!
The Frey Life I had Indian Enchiladas for lunch, so good!
I’m watching you from the comfort of my infusion chair. Thanks for keeping me company while I am getting my two hour infusion.
I agree with one viewer. You need a pillow and blanket in the car the both of you in case you need it and snacks and bottles of water in case you get stuck in traffic or weather. Oh yeah Kitty Litter too. For those that do not know you use that for the tires in case it snows for traction. The Christmas lights were gorgeous. I live close to Dollywood. They have over one million lights there. It is gorgeous at Christmas.
Vera Shular I bet Dollywood is marvelous..you be a lucky.....Happy Christmas
Those are all good ideas! I've been meaning to put together an emergency car kit.
Tennessee is GORGEOUS!!! You live in a lovely place.
Can you further explain the cat litter hack? How do you use it? Sorry, this just caught my attention and I need to know! :D
путь и истина и жизнь swann you throw it on the ground where your tires are spinning, same way you’d use sand or salt.
So sorry it was a rough drive home but I admire your celebration of being together and enjoying dinner and the lights. Thumbs up to Peter for taking a break at the rest stop, for Mary for facing terrible body feelings with such a sweet smile - almost always - and for Ollie holding it all day until he got a break. LOL Love you guys.
I don't know why but when I found your channel a couple months back I fell in love with wanting to learn about CF and this channel helps a lot. Mary you seem so sweet and anyone who gets to be friends with you is lucky! Peter you're an amazing guy and Mary is extremely lucky to have you.
Sincerely Maddie I found their channel over a year ago. I was interested in learning about CF as well after finding the vlog.
Sincerely Maddie i 4get how i came across the frey life lol but miraculous
I've learned so much about CF after a year of being subscribed. It really helps me feel like a more understanding and compassionate person to more fully understand the life circumstances of someone with different challenges from my own!
Sincerely Maddie me too!
Peter...you are one of the most pleasant, patient, selfless people I have ever seen!
Beautiful lights...with the accompanying beautiful classic music....bravo!
It feels like you guys have become part of my family even though we've never actually met. I love how I see in your eyes when you look at each other how in love you are.
Oliver makes me smile every time. Haven't been watching that long but as a poodle person I'm addicted. Take care of yourself, the 2 of you are a magical couple.
Randomly stumbled across your channel a few weeks back- now I look forward to your videos every day! You guys are the best! 😊
That's exactly what happened to me! I don't have any CF connections other than a long ago former girlfriend of my husband who I never met. I find this VLOG strangely compelling, and I certainly wish Peter and Mary (and Ollie) the best.
Ginny Bear yes!! Same here! They are just the sweetest and I’m curious everyday what they are up to!
Got a card from the post office that I had a parcel. So excited, raced over to pick up my Ollie Bundle. They couldn’t find my parcel, so she asked me to describe it. I explained all about the bubble wrap mailer with a big Ollie face on it. Imagine my disappointment when it turned out it was only my Roomba, in a cardboard box. ☹️ can’t wait for Ollie-boy to arrive.
I don't understand why people watch videos and then give them a thumbs-down why watch them if you were going to give them a thumbs down
Also I am in Canada and I got my Ollie bundle a few days ago
People are so silly! I'm not sure everyone realizes the creators of the video see every like, dislike, comment, etc. A lot of young viewers seem not to think about it.
I feel many ppl give thumbs down as in they don't like what Mary is having to go through...like they are empathetic and not realizing it's about video ratings and whatnot. After all it's weird to thumbs up when things arent going so well...except Facebook with years of limited reactions taught us a thumbs up just shows support for whatever the situation is even if it's not so good.
Got my Ollie Birthday Bundle today and it made a hard day a lot better!
if you ever want to see someone going through hell with a graceful smile, this is the channel!! true true inspiration!!
You've got that right.
I don't work for any of the main parcel carriers like USPS, UPS, or FedEx but my company does handle a lot of the larger things shipped like Tv's, playhouses, trampolines, etc that are ordered online and I can't say I've ever had anyone root for us before. 😂 After a very rough "peak season" day, that just made my day! You two are just so sweet. Thank you!
Rooting for you! You guys do a great job :)
Thanks for showing all the Christmas lights! We don’t live in a city so we don’t see a lot of them! Very pretty!🎄
You are unstoppable, Mary!!! I luv u girl! 💕
Hey y'all. I'm getting a black standard poodle in 12 days and his name is Ollie too. I'm so excited. Always praying for y'all.
allisoneuph1 we have a 7 month old black standard too. She is amazing and has been a pure blessing to our family. Good luck with your new furry friend!
Sandra V Thanks
I have a black standard poodle too with Oliver as his name!!!! He’s in training to be a PTSD service dog. I got him last year November 17th. And he was born September 16th 2015. I’m excited for you! Poodles are fuzzy, curly and cute miracles
Megan Proffitt he's going to be trained to be my psychiatric and mobility service dog.
allisoneuph1 that’s amazing! I know your excitement right now! They are brilliant, brilliant dogs! Annnnnnnnd THEY DON’T SHED! So no need to worry about that clean up and no need worrying about being in a close space with anyone who has allergies to dog fur. Although make sure you keep up with the ears most important. Poodles are notorious for ear problems... just make sure the hair is plucked or kept short and clean inside his ears. And clean the inside anyway every once in awhile to make sure there isn’t “Goop” .
You are such a ray of sunshine Mary girl! And so glad you have Peter by your side, and Ollie too!❤️❤️❤️
I so much enjoy watching you guys enjoy the lights, I remember last year you were stuck in the hospital most of the Christmas season.
The Christmas lights look so magic!! I loved seeing Boston and its buildings 😍
#DoWhatYouThinkYouCantDo
You guys have impacted my life tremendously. I really hope to meet you amazing people one day!!!!
My husband works for the USPS and is so greatfull for someone to just say thank you. Also if you put just a bag of chips or a bottle of water in your mail box I promise is will make your mail person's day.
Boston looks amazing I’d love to see it all in person
Watching your vlog today vs the traffic pretty much summed up my day today. After making calls all week long following an ER visit last Saturday and the issues from that visit were getting worse not better and trying to get a doctor to tell us something we finally get a call on a Friday asking us to come to the clinic at 3 PM and just expect to wait while they fit us in. Of course that meant that we got into see the doctor and got done with the appointment right at the start of rush hour. Sadly we are no longer at the Children's Hospital with no parking fees so staying in the garage or sitting around the hospital waiting out rush hour is not too cost effective. Its just ends up being frustrating. At least you guys had options :)
Praying for you. Thanks for the Boston pictures, my son lives there. Have a good rest, tomorrow is a new day.
I did pfts yesterday at my cf clinic and i am on ivs for another week..😷😭praying for u mary
I work for Fedex world hub in Memphis Tennessee so every are we package that is going from UPS or US postal through Fedex goes right by my face and I drive you and load you on the plane I have seen several Ali bundles and I’m like oh my goodness look at the cute puppy package I know this package and people look at me like I’m weird. I’m actually driving home from Fedex right now listening to your blog from yesterday that I missed because I was sleeping because I work at night and I’ve been listening to you on the way home. And you’re keeping me company. Mary I pray that you’re feeling better today have you ever tried ginger for nausea nausea they come in pills to or you can take some fresh ginger at the onset of feeling nauseated and it supposed to stop it
I love you so much Mary(Peter & Ollie too!!) I didn't get to watch this yesterday because I was super busy and had a dental procedure totally mess up the levels of oxygen to my brain.. I was paralyzed for 20 minutes! When that got under control, I headed home to prep for my choir concert. It's been a rough couple of days. I have CRPS and my left arm hasn't quite recovered from that episode at the dentist. Thank you guys for being so great!!
Got my Ollie bundle finally after a long wait(international post) I love it , we have Frey life all over the house
Hope your feeling better. I had asthma today and lists of pain in my foot ruptured tendon
I grew up in Boston and back in my youth the Christmas lights were few and very simple. That is not to say that they weren't magical. I still remember the feeling inside me when the first lights appeared. Not at T-day as now, but about the 15th of Dec. The anticipation was delicious! 😊 When I see Boston's lights now, all I can think is "I didn't know the city could be so beautiful, at night, in the rain, in December". Thanks for taking us on tour in spite of your long, difficult day😍🤗 😇
Watched this while doing the Denneroll prescribed by my chiropractor for my neck injury following a TBI. it’s all about consistency. I feel one ounce of what you do! Do what you think you can’t do!
Isn’t Christmastime in Boston magical?! I love going up there this time of the year!
Those trees covered in lights are so beautiful!! Thankyou for showing us ❤️ I’ve never seen such pretty Christmas lights.
I should've eaten more food, but because of stress & anxiety, I was only able to manage a cup of rice & a piece of cinnamon toast.
Thank you for always being so encouraging & for helping put life into perspective. You're an amazing person!
Mary's impression of her overly-dramatic organs killed me. 🤣
I just love Boston...except for the traffic! I think a lot of the streets are historic and too narrow to handle all that traffic.
I read somewhere that Boston is the oldest city in the US is it true? If so, It must be beautiful! lots of stories behind
Noelia iglesias gomez no, St Augustine, Florida wins that....at least in the Southeastern US...Boston..was not listed as a oldest city, but it is old...the Tea party of 1776...a true original. Have a happy Christmas.
St. Augustine, Fla. is much older than Boston. It's the oldest city in the United States. I live in L.A., which goes waaay back, 1781 to be exact. But most people back east don't know that fact. Boston is a very beautiful city, but way too cold for me. I don't know how people live having to wear coats and mittens all the time. I love t-shirts and jeans all year long.
Yes, in school we were always taught that the oldest U.S. City was St. Augustine.
oh :D thanks everyone ^^ maybe one day I'll go! I live in Spain, but have some family in New York so why not visit Boston too :D the streets just look amazing on Christmas!
Happy Christmas!!
Boston city lights are so beautiful in the winter! In fact in my city about 30 minutes from Boston there are still a few pretty lights up.
Your guys videos make my days better I’ve been sick with a horrible fever recently I am being tested for lupus right now so I’m scared
Mary, you are a champ! I was majorly impressed by all the medical juggling you were doing when you were in the car. And then one of those devices had the nerve to COMPLAIN! How dare it! Beep....Beep....Beep.
And you just kept calm and carried on.
thanks for showing us Boston at Christmas, the trees were beautiful . I have been to Boston twice , its a beautiful city , but this was lovely..... Poor Mary but you are a great warrior with Peter and Ollie as backup xx
I hope your blood counts stay where they are. You've been in the hospital so often lately. Ugh, the PFT test sucks! I hope to do it for my job. The lady kept yelling at me because I kept failing. I told her I'm not trying to, it's just hard! I can't even imagine how it's for you 😫 I don't have CF or asthma or anything so it's gotta be hard for you
I work the USPS. I have for 31 years I got mine but I haven't been lucky enough too see one in the mail stream. I love you guys ❣ Mary please feel better I love your Christmas cheer. I'm alone you guys make my day❣🐾
I️ love watching you guys! You are so cute and just make my day! When ever I️ can’t sleep or have anxiety I️ watch you guys and it really helps!!! keep being AMAZING!!
The lights while driving in the city were so pretty. I love seeing Christmas stuff.
Those lights are so pretty! Sorry today was rough on your Mary, but so glad that the blood counts are stable enough for now x
Vancomycin always makes me nauseated, so your not alone! Hang in there! You 2 are amazing!
My body reacts violently to any form of antibiotic, so I can't take them. The least thing that happens is a get very nauseated and throw up to the point of hospitalization. The worst is that I go into convulsions and black out. All antibiotics give me a severe migraine, too. I feel so sorry for poor Mary having to be on a drip with those awful things. I get ill just watching her. I hope she does well after this series of antibiotics is finished.
Vancomycin always makes everything taste horrible and just makes you feel generally yuck.
debra donley I too can not handle antibiotics...they make sicker then sick...cipro actually made my kidneys shut down...i also have MS so when I get sick I am kinda out of luck
Hi Mary and Peter you all seen so happy your continuous love shows though.please take care love and hugs to you all
I work for Ontrac and your recognition for the hard work we do made me smile! Work has definitely been pretty insane lately haha
I used to live in Boston and I LOVE that you guys got the Comm Ave tree lights
I look so forward to your vlogs. Many nights when I sit down to watch I don't want it to end. Tonight is one of those nights. I know a lot of time and effort go into your vlogs and you've had a long day but could watch you three for hours. So as always, I will see you tomorrow. Good night.
the city looks so pretty at night, thanks for sharing
The kid walking in made me curious about the functioning of the clinic- I'm assuming that because cf patients can be dangerous for eachother due to the different infections etc, then there's some rules around hygiene/contamination etc. Are they only allowed to take a set number of patients a day to allow time for cleaning etc? Are there set protocols for cf clinic to minimise transmission of certain infections? Sorry, long winded but I love all things medical :) lots of love from new zealand x
rebecca w hey Rebecca. In the older vlogs Marry said, that there are many many rules for CF-patients in see hospital. The child who wanted to walk in the room and pet Olli hasn't to be a CF-patient, because in Boston is the CF-clinik in Boston Children Hospital. I hope you could understand, what I want to tell you .... my english isn't the best 😊 have a nice day
Amina El Ha thank you :) I might have to rewatch a bunch of older vlogs
The cf clinic Mary goes to is in a children's hospital. She does mention why in previous vlogs.
Mary said in another comment that because they were in the CF section of the hospital they assume he was another CF patient. I too am curious about how they sanitize the clinic space between patients!
Hi, I'm a CF patient as well & at the adult clinic that I go to, the patients call from their cars to check in and the nurse calls you on your cell phone when they are ready. They will meet you at the front door where they have a mask & hand sanitizer waiting for you & take you straight back to your room. They also run large medical air purifiers in each room, sanitize all surfaces between patients, and require the room to be vacant for 30 minutes between patients to reduce infection risk.
While I was still in the pediatric clinic, we had to wear a mask, but patients would wait in the same general area, and there was no 30 minute room vacancy between patients.
Also my pulmonary doctors have always seen CF patients one day per week (Wednesday's at my clinic) so all of the other people there are CF patients as well, but that may now be the case at every clinic.
Thanks for showing us the lights in Boston! So pretty!
When Peter said all the holiday shipments I thought he was going to say all the holiday shit 😂😂😂
The lights in the city are beautiful!!
You are an inspiration for everyone ❤❤❤❤❤
Mary you are such a strong person! God Bless you sweet heart!
I don't know how Mary can cough like she does I have been sick since last week coughing ever since Monday and my side is so sore
I know! She is so incredibly strong! Coughing is hard work. And with the mucous it must be more like a heavy pneumonia than a regular cold, right? I have astma and am prone to airway infections. Whenever I get pneumonia I turn into the most pathetic whiny mess. But next time I will not complain, but be thankful that my lungs can clear up again! Let's be honest, I'll probably complain...a lot. But I will also be thankful and not take for granted my healthy (relatively) lungs!
Me too! I've had a few rough weeks of coughing earlier this year, accompanied by heavy nosebleeds, caused by bursting blood vessels due to the hard coughing fits. I can't imagine what it must be like for her...having to deal with this every single day...
Anne, I had a cold last week, albeit and VERY BAD COLD, and coughed my brains out, oh my abs, I could not move, my abs were KILLING ME!!! All I could think of is no wonder Mary has such a strong core!
That’s why she’s so thin and needs at least 6,000 calories a day to survive (the thing about the calories is something she said in a video long time ago).
Anne Parent coughing like that is also really bad for your heart too.
What a way to make a car ride more fun!!!!! More people need to remember to stop and enjoy the little things more :).
Merry Christmas and an excellent New year
HI MARY I HAD PB&J MY FATIGUE WAS LIKE NO COOKING TODAY LOVEDB THE LIGHTS
@thefreylife Speaking of packages! I ordered the giraffe iPhone X striped case from your store last night and it shipped this morning! So excited!
Mary, I don't know about your body because everyone reacts differently. However, sometimes when you do a fast intake of sugar to counteract hypoglycemia the pancreas reads it as a need for extra insulin. It's an odd balance. My father has low blood sugar and always had Juicy Fruit gum with him. It's great you have the new gauge (sorry, I can't remember what it's called). BTW, I used to be a nurse and took care of a lot of diabetic patients. They can drop low sometimes and that can be an emergency. TMI. God Bless.
I saw your home Christmas tree lights reflected your glasses, Mary! ‘Twas magical 😁
I love you guys,Mary you're a strong person 😊❤️💪🏻
I found your channel through chronically jaquie, and the raw life. I would love to be able to buy an Ollie bundle but am on a limited income. on ssi os barely get enough to live on. but your vlogs and jaquie's and Janice's really cheer me up.
Our family loves your vlog 💖☃️ we keep you in our prayers always !!
I am a contractor for FedEx Ground and Amazon Prime...We are SOOOO busy!!!!
I was just typing that I always have a little blow up small pillow and small blanket (but, your always hot, Mary) in the car. Because when I start to crash? My car is the next alternative to actually laying down in my bed. I'm sure you do but, I try to think through oat usual possible situation , and then, try to determine how my body might like to butt in! 😷😅
Mary I'm so proud of u
You guys are just so amazing!! Mary feel better.
Both of you are such an inspiration xxxx
me and my sdit watch every day and she is always so happy when she gets to see ollie, we call him her boyfriend, we love your videos and are always happy to see your faces :)
My medication is delivered to my home, and they make sure I'm there. It's weird to me, that I'm that "special". The other things I get at the pharmacy but since this is in a trial (and I'm a volunteer!) They courier it to me. I once asked how much it costs and it is $200 + for a delivery. But the company pays it as they want to see if they can get approval for this drug to be used in the US. Still, I can't miss a dose, so... the company said they had to go to couriers as holiday time played havoc with deliveries. It's like you can't get it until you NEED IT, but when you NEED IT, you NEED IT NOW! :) It seems to be helping. And if nothing else, it will help others in the future. But it is very "fancy" to have the home delivery.
Hi my name is laney and I'm making a power point about y'all because y'all inspire me a lot and I have a tube too
I know you guys love Christmas/Christmas lights, I don't know if you've ever heard or gone to it, but there's a place in Attleboro Mass called La Salette Shrine and they have a huge beautiful set up of Christmas/Holiday lights. It's really beautiful I've gone there almost every single year of my life except the last 2 and I'll probably go after Christmas but it's beautiful. but very busy on Fridays/Saturdays mainly!
Oh boy. That was such a fright with the little boy. Speedy reflexes! I'm sure you'll both be okays, but sending you lots of love anyways!
Hi mary its good to see your blood work is doing good. Love your family and oliver is so cute.
Our local hospital has such a pretty row of trees with the white lights and anytime I go out at night I get to see them since we live right near there. 😊
I'm so sorry you're not feeling good.
loves all the Christmas lights they are my fave!! 💗🎄
At 7:38 that inhaler thing, looks like you are smoking a pipe. I know you’re not. Just looks like it. 🤣 -Don’t forget to laugh everyday!
I was thinking the same thing, especially since she had to do it in her car. Haha
Kat Giles lol Yup! 😆
Frey time !! Much love and prayers from France :*
My mom works as a clerk at the usps and from thanksgiving to Christmas a clerk and the delivery people have to work on Sunday’s because there are too many packages so they have to go in at 5am to meet the amazon truck, sort packages, and then the delivery people deliver because if they wait until Monday the number of packages is more than the offices can handle/distribute. My mom works at a small town office and they have as many as 250 packages on an average day to deliver so the delivery carriers have to make multiple trips back to their office because they. Can’t fit all the packages and mail into their vehicles at once.
you so strong hun much love xx
My Province send the Boston Christmas tree every year, as a thank you for helping with the Halifax explosion :)
Right as you were saying your organs all want attention I was telling my cat he had to wait for his milk because I wasn’t done with my cereal yet. We have this battle every morning. He hovers till the last fruit loop is gone so he can get a drink of my milk. 🙄the things I do for my fur child.
I used to live in Boston and the tree downtown was beautiful.
Beautiful drive through the city! How many Oli birthday bundles have you sold? I love mine.
Could sure use some of that rain up in Boston down here in Dallas. We've got severe drought conditions, and well you've probably seen the near biblical like fires in LA/Orange County. It's madness!
Not really. It's pretty normal for this time of year here. Every year we have fires. Every.Year. It goes with having wonderful weather most of the year. These fires are so bad because we got some rain this summer and there's more brush to burn now. The Santa Anas aren't helping, either.
My hubby works UPS in 🇨🇦
I work security at FedEx and its been insane especially this time of year. Extreme hours for everyone.
On my gosh this makes me miss Boston so badly
Beautiful lights in the trees xoxox sorry your not feeling fantastic but you did just get out of the hospital be at peace xoxo with your body xoxo
Just received my "Chronic overcomer" t-shirt today that's a Christmas present for my best friend who has Chrohns.
About UPS - to clarify - my daughter works for UPS and she works long, hard hours BUT UPS has just ordered all of its workers to work 70 HOURS A WEEK through the holiday season, which is inhumane, unsafe and just NOT FAIR. She works in Denver, but told me that the workers in BOSTON are fighting against it (which they SHOULD). So, that is probably why your shipment is late.
Joan Milano my dad has worked for ups for 30 years and this time of year he works crazy hours too some days he will work 14+ hours a day it's ridiculous the way they treat their employees
Please thank your daughter, and the rest of your family, for the work she does. I agree with Peter and Mary, I don't think delivery services, any of them, get enough credit or appreciation for what they do...year round but especially at the holiday time. They work so darn hard to get our mail and packages out while giving up their own time with friends and family. Just know there are people out there who are grateful for all of their hard work. There are so many other services that don't get enough gratitude for what they do. I've heard SO many people say, specifically about the medical field, that they knew this was the job when they decided to go into it. While that is definitely true, I think saying an extra "thank you" to people like your daughter or nurses, home health care workers etc would mean the world to them. My daughter just graduated from nursing school in May and while she was able to be home for Thanksgiving, she will be working both Christmas Eve and Christmas Day. We knew going into it that she would be working holidays but it is still hard. She is more than happy to put in the hours for those nurses who have children so they can be home Christmas morning with them and she knows that she won't have to work every holiday. But I think so many of the people who work in service positions just do so much during this time of year especially that a little extra patience and gratitude would be appreciated. Thank you again to your daughter :)
Oh my! That kid just walked in! Omg! 😂😂😂
I can see a difference when my blood cells drop. When my white blood cells get low, my tongue turns white because I get thrush. But that's not until a certain point. When my platelets drop, I break out in petechial rashes and I start getting bruises from nothing. When my red blood cells drop I get pale and around my eyes turns pink and I start getting dizzy and my heart starts beating funny. Oh, and I get even more tired than usual.
I just love you guys. You make me happy.