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Migraine treatment options: Real experiences of Ajovy
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- Опубліковано 5 чер 2021
- RK chats to Jan and Belinda who have had success with the new CGRP antagonist medication Ajovy.
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I'm starting Ajovy tomorrow so fingers crossed. I was on botox and after intitial success it stopped working which was heartbreaking so I am hoping this will give me back some quality of life.
Has it helped you? I live with migraines 24/7 I can't walk anymore.
@@Ashsplashofcolor it occurs you daily?
@@Yugeshmgr Yes. I have no migraine breaks anymore.
Switched to Ajovy after 4 years on my miracle drug emgality. Not happy that my insurance company wouldn’t pay for emgality. So reluctantly I tried Ajovy, it was difficult for me to inject since I was use to emgality. The emgality you do not have to jab yourself it has a button that you push and it injects itself. So the first two months when I started Ajovy I had to actually push the needle in then wait for a click hold for another 10 seconds. I messed up and pulled it out too soon and didn’t get enough of the meds in. The third month I was successful. So far only a couple of migraines a month. I am hoping it’s as good as emgality. It’s just not right that insurance companies can do this. I am grateful though that the pharmaceutical companies give me a coupon so I can get it for free. It would be between 500 and 1000 dollars without the coupon and with insurance. 😮
@@me-ug5vk this is unbelievable … 1000❓‼️❓Ajovy in Europe costs 360 eur (however most of patients get it for free, this price is just informative)
Ive been hesitant due thinking what if so.thing went wrong then id have to suffer till it wares off. But i just got done with a bout of cluster headaches so i pucked up shot fro. Dictor. Wish me luck. I hope things work out. Thanks for you info.
After mixed results with Botox, I'm giving Ajovy a crack next week. At least it's on the PBS now. Wish me luck!
How'd it go??
The low dose almost killed my sister. Tachycardia, weight gain, hair loss, not to mention the migraines were the same. Oh fatigue and inability to sleep. Plus the long term effects of suppressing calcitonin is a dangerous path
They claim these side effects arent proven? Did they happen right away or over time?
You know what it does not even matter if my migraines dont improve id rather not live anyway. This is not a life worth living.
@@soulair3038 I’ve spent a lot of time researching patient reviews & many patients are reporting similar side effects, all of which were absent pre Ajovy treatment.
I have been on Ajovy for 9 months and I still have to take meds for my Migraines. The Adovy helps very little with my problem.
@maxxonetwo3 We are sorry to hear you're struggling. Unfortunately, not everyone responds to medications in the same way. It sounds like it might be time to speak with your Neuro for a medication review.
I cannot wrap my head around the fact that you need to pay for your medications in US 👀👀👀 In Europe, we get them free of charge 😅 And I think it’s also cheaper in Europe - the current price for AJOVY is 383 EUR.
Agreed. Am in the U.K and on my second year (Free) of Ajove but we in the U.K have to jump through “Hoops” to meet the strict criteria to be prescribed and continue the prescription. Most have to have an enforced 3 month break after the year before we start the questioning of the criteria again!😡 (Probably down to funding) - luckily I only had to have a 3 week break.
Some insurance companies cover it but it’s a small inconvenience compared to everything else we have access to in the U.S.
It usnt covered in canada either.
I have been on emgality for 4 years, in the US, my miracle drug. The pharmaceutical gives it to me for free. Insurance only pays a portion. Now my insurance won’t pay at all and suggest I use a different medicine. So now I am on ajovy. Three months and almost as good. First two injections I didn’t do right so most of the medicine dribbled out. It’s just not right that the insurance companies won’t pay!
@@me-ug5vk Horrible, the medicine should be free always 😞 I used Ajovy 4 times in a row and now I’m free of injections for 4 months now, I guess this medicine is really powerful 🥳 Hope the same for you 🍀🍀
This may be my last hope. I've tried so many things and medicines. I cant walk anymore or see straight and doctors dont care. Its 24/7 i cant live like this.
My advise. Be patient. Some are Slow Responders and need more than the 3 month trial here in the U.K we are given. I was one of them but once Ajove started to build into my system I started to see improving results. I was in an awful state for many years before the correct diagnoses. I can not begin to tell you the amount of Vomiting / Pain Days I had and missed dinners and outings before Ajove. I had tried 4 oral preventatives before 2 rounds of Botox and then Ajove. Am now on my 2nd year on Ajove. Is NOT a miracle drug as there is no complete cure but I am living my Best Life now with a reassurance I can carry out my daily plans. ❤Good Luck❤️
@@susanterry4698 That is amazing to hear! I'll take more better days. Any if given. My insurance sadly denied Ajovy. I have to try Emgality or one other before I can appeal. I hope they help. Thank you for your reply. I hope you are still doing well.
5:09
The wear off period is killing me
What is the wear off period? My Dr. Prescribed this.
Wear off?
Would you be willing to share a little more ? 💕
You need to visit a psychiatrist, Ajovy isn't a problem.