I Don't Know What is Going on - Clinical Trial Side Effects
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- Опубліковано 21 лис 2022
- P.O. Box
Jenny Appleford
7211 Haven Ave, Unit E-407
Rancho Cucamonga, CA 91701
INSTAGRAM: jenny_appleford
FACEBOOK: Our Brave Jenny
For business inquiries: veganapplefords@gmail.com
DIAGNOSIS:
March 19th, 2021 Stage IIIA Non Small Cell Lung Cancer (Non-Smoking)
February 2022 Stage IV Non Small Cell Lung Cancer (spreading to Brain, and other parts of lung and lymph nodes)
Gene Mutation EGFR with Exon 20 Insertion
TREATMENTS: Received or currently Receiving
2021: 8 Rounds of Chemotherapy (Carboplatin and Paclitaxel) with 30 concurrent radiation treatments to chest and lung
Failed Immunotherapy directly after Chemo and Radiation (Durvalumab, 1 round)
2022: Current Chemo Plan; ongoing
6 rounds of Chemotherapy (Carboplatin, Alimta, and Avastin)
Carboplatin is now COMPLETE and I continue Alimta and Avastin
Targeted Brain Radiation (Completed)
Our GoFundMe Link:
gofund.me/5edf81e5
The purpose of my channel is to document my cancer journey to look back on, and/or help anyone else going through anything similar. It is also to potentially help loved ones supporting those who are in this fight as well. My main goal is to have footage of this journey for my husband and children to look back on. I originally created this channel as a sort of video diary for my family.
Thank you so much for following along on this journey. Your love and support help me so much.
Jenny, I was a cancer research clinical trial manager, and if you were in our trial at the University, we would say that you need to call in and just tell the trial team what is going on and how you’re feeling. That is part of the clinical trial protocol, to be a resource for you, and also for us to help manage any symptoms you may be having. You look beautiful for the wedding, and Kyle’s love for you is in everything he does as yours is for him.
@ Sharon Maxwell Exactly!
✨💖✨
Yes this is true. I’m in a clinical trial and there is a 24/7 line to call in on. Please see if that is available to you. I’m so sorry to see you suffer. My heart goes out to you. Maybe the ER is the best place to be right now.
Aw jenny hope you feel better soon love Lizanne ❤️
Call the team. NOW. The unknown is worse than the known. If this is a reaction/adjustment to these new treatments let them know and don’t suffer needlessly .
Praying for you and hoping you get some relief very soon.x
I keep watching these old videos and tearing…. I just can’t believe she’s gone.
Me too 😢💔 Miss you Jenny Poo 🐞
Me too. Doesn't seem real
I'm watching too late . I remember I watched this video over a year ago. Now I see that she passed it's so sad.
Thank you for showing me what real love looks in a marriage ❤
This is the third time I have watched her journey from start to finish…anyone else here with me binge watching? Dear Jenny kept pushing through every trial, treatment, radiation, etc all for the love for her kids, husband and family. I have no idea how her body endured so many years of fighting cancer….but she finally BEAT CANCER! Cancer needs a body to thrive in and hers is not allowing that to happen anymore. Jesus please comfort her children, Kyle and her beautiful family as the try to move forward in this thing called life. 🙏🏼🙏🏼🙏🏼🌹🙏🏼🙏🏼🙏🏼
When you came back up in the black dress, I literally said aloud, "Oh my gosh. She is stunning." I'm sorry you are feeling bad. Sending prayers often. ❤
Same thoughts 💭! Jenny is gorgeous & filled with exuberant light. Kyle is a sweetheart, & I’m grateful they have each other & their children. This is a difficult time to say the least. Yet Jenny’s attitude is inspiring. You two go, with the joy! Sending love, always. Belle 💗
Me too. You are beautiful and you will get through this, darling xx❤
Ditto ❤
Please call in. They want you to. It’s very important that they know what is going on with you. Sometimes they can make adjustments by phone. Our son had liver sarcoma and chemo. Several times he had to call in and once had to go back into hospital. He is one year cancer free. Please call your manager. Please don’t wait! The sooner you call, the sooner they will be able to help you feel better.
I’m sitting just rewatching videos of Jenny and the fam😢❤❤❤❤
I know, makes me feel glad to see her...brave soul😢💔💔😢
We miss you Jenny 😢Always in our hearts ❤
:( your relationship with kyle was so unbelievably sweet and perfect. i miss you jenny. im so glad you got to experience so much love and so much happiness during your time on this earth because you truly deserved it so so much
That man … that man is worth a lot.
In retrospect, this is both happy and sad.
Life can be so unfair..😢
It’s so comforting that you lived a life of happy and joy and love. Aside of the cancer struggles, you lived the best life. You left your mark on millions of people. You were so blessed here on earth I can only imagine how amazing it is for you in heaven. I pray God holds Kyle tight and guides him through. I can see his focus being on your beautiful children. ❤ I won’t ever forget you.
Im so sorry for what you're going through - but you two are such a good example of what a true marriage is.
As a child of a mother who was a fierce cancer warrior, I would like to ask you, Jenny, to not feel sorry for your loved one. As families and friends of cancer fighters, all we want is you by our side. We know all the pain and suffering you are enduring for us. We are so sorry you have to endure so much for us, it’s so unfair. But at the same time, we are so grateful for you being there.
I could have written your comment word for word. I only would have added my younger brother as well. The strength, courage, and SELFELESSNESS is truly amazing. ❤💜🤍❤
You looked absolutely Beautiful in your black dress. You two are an adorable couple.💞
are you aware she left this earth 💔 and is in the sparkling sky
@@louern123 just saw the video Kyle made after I made that comment. Bless his heart. Prayers for him and the children. Jenny went from earth angel to heavenly angel.
@@louern123 just saw the video Kyle made after I made that comment. Bless his heart. Prayers for him and the children. Jenny went from earth angel to heavenly angel.
That little black dress is gorgeous and perfect on you. You look so pretty!
I don’t comment often but I always watch and 👍. I want you to know coming from someone who was in your children’s shoes for my entire childhood, You are an amazing mom and wife, I don’t have to know you to see that is so completely obvious. You are not burden to your husband or children and they would rather have you there, sick but fighting rather than not have you there at all. My dad fought so hard for 9 years to stay with us, he was diagnosed with a pheochromocytoma when I was 3 and diagnosed with MENS2 a few years later. He was 40 when he passed, a year younger than I am now. I wear every wrinkle and grey hair like a badge of honour that I have survived longer than the greatest man on earth, my hero, my dad ever got to. I am praying for you and your family every day.🤲💚 You are their hero! And you are an inspiration. All my love and support 💚💚💚🕊
@raebird1797 such a beautiful post.
that was so beautiful what you said about her not being a burden to her husband and children and they do want you there to keep fighting and she shows so much strength and resiliance in doing it. I am sorry for your families loss.
No one would ever know the battle you are bravely facing. Your hubby is the very best! Be blessed.
Ok Jenny!! I am only 57 seconds in and I had to stop and comment on how pretty you are.. So gorgeous! Now back to the video!! 😘💝💝
We all have to pray for Jenny. Please unite and pray in Gods name, amen
never forget how lucky you are to have each other and the love you share - it's special - not everyone gets that.
Please, Jenny, call the clinical trial resource manager assigned to your case. I know you are scared, but the sooner you call, the sooner they can help you. Sending hugs love, strength and comfort to you, and your family.❤️❤️
Jenny you are so beautiful. We will always remember you.
J helped alot of people I think
I have been where you are, I was diagnosed with breast cancer at 34 and also discovered I had the BRAC 1 gene. I had 2 children and my husband but I felt so alone. My mom’s whole family, all the girls either had breast or ovarian cancer. Chemo made me feel so bad and I did have thinning of my hair. My heart goes out to you so much and I am so glad you have a supportive family. I had that with my mom and dad, I had no siblings. The terrible thought having cancer brings a person but just stay positive. When I was at my lowest I had to say to myself “I’m going to do this, I’m going to be a survivor. Tomorrow is a new day.” Fast forward ahead and this year I was 23 years cancer free. I did every precaution I could do. I had both breasts off, a hysterectomy and I was a heavier person and I lost 90 lbs and reached my weight watchers goal.
You will get through this, we are all sending our prayers and love to you, I wish I wasn’t in Canada and closer to you at this time of need. You have such a wonderful husband and support system
Take care you are in my thoughts xoxo
That's so awesome! So glad your better and have such a positive outlook! ❤
If you had truly been where she was, you would be dead now
I don't normally comment, but you should call your medical team to make sure the rash is not some sort of allergic reaction that needs to be addressed. It is their job to monitor you. Take care and good luck!
Hi Jenny. Look up the symptoms of Dilaudid withdrawal. Sounds like that's what you had. I had to go off my pain meds slowly. You are so beautiful!
Yes, I'm suspecting that as well.
i am so grateful to be a part of your journey - i wish i could meet you one day ❤ i hope you feel better soon 🙏🏻
The chills aches and pains Jenny are a sign of opiate withdrawal that’s why when you take it you feel 100% better. It is a clear sign.
Jenny, you are a legend, keep up the fight. You both look so cute. GO TO THE HOSPITAL NOW.
xx
Please contact your clinical manager. Don't wait until morning. You are a wonderful wife and Mom.
One minute at a time girl. One second at a time if that is what you need. Uncertainty is scary and if you weren't scared something would be seriously wrong with you. You don't need to stay strong. That's what Kyle and the rest of us are here for.
I love you Jenny ❤
You didn't ask for this. It's what you have to go through, and you will come out stronger.
Please call your Dr ASAP! Or head to the ER! Today! Love You & your family!❤️
You looked gorgeous for the wedding!
I’m a RN. I think you should call your team and tell them what’s going on asap. Appears to definitely be side effects or an allergic reaction to your new clinical trial treatment regime Keep us informed.
Jenny is experiencing opiate withdrawal that’s why she feels 💯 better when she takes it.
@@denisepaulsenfulthat's what I was thinking
You and Kyle looks so nice together and your outfits 🤩.
Just finished watching the video.I am in tears seeing you in so much discomfort. Please, don't wait
until morning to go to Urgent or Er Care. Looks like you are having a reaction to the new trial meds..? Contact your Trial Care Team asap as well.
You looked gorgeous in the black dress, and you did good job on Kyles cool haircut Jenny!
Oh, Jenny! You are a wonderful wife and mom. It was an honor and joy to take care of my husband when he had cancer and the kids felt the same. God is with us. Your family loves you and you all are blessings to each other. Let them take good care of you and rest!
This is so sweet ❤
Jenny I’m praying rt now
Please don’t feel like ur a bad wife n mother it’s not ur fault You have a husband that is supporting n loving you’re his priority he wants to be there make it easier for u anyway he can. We are all praying for a complete recovery from this ugly Cancer plz hang in there Call the team that needs to know all ur symptoms after taking this new med. you’re a beautiful person inside n out stay strong you got this. ❤
As a mom and just a fellow human being my heart aches that you are experiencing this right now. I am praying for you tonight and will hold you in my thoughts. Your heart and the heart of your husband represents the good in our world. You are amazing and you are doing "it."
While in trials always call your team Jenny. Don’t wait, stay ahead of pain.
Oh, Jenny don't be afraid to take the Ativan, it will help with the anxiety as well as nausea. Maybe the chills mean the trial drug is helping your immune system to kick in and fight. Stay strong sweetie!!
Jenny, Ativan is our friend. Take it when you need it, it is a gift and it will help you.
Omg Jenny I'm so sorry you're going through this. Don't wait too long to get medical attention. You're a great mom and don't forget that! 🙏❤🥰
Thank you! I spoke with my team and I am going to see them tomorrow. 💗
I'm SO glad you are going in to get medical attention tomorrow! Don't ever say you're a bad wife or mom...that couldn't be further from the truth silly gal! We all love you and are sending prayers from Florida !😘
Praying 🙏📿 for you. I pray this may just be an initial reaction and it goes away quickly and never comes back while the treatment eradicates the cancer.
Dearest Jenny our hearts are with you in prayer ❤
Jenny...Please don't wait to go to ER. Why don't you go now? Get some relief. Please. You are a precious and unselfish woman. I pray for you several times a day. 💖🙏
Er s are horrible now in US ..lots of sick people leave after hours of waiting
I love your black dress, you look absolutely beautiful Jenny. It's so good seeing you and your husband enjoying yourselves. Your such a beautiful soul. Happy Thanksgiving to you and your beautiful family 🙏❤️🙏
Prayers and love for you…I hate seeing you this way…❤🙏🏼
Hi jenn...listen, I'm terminal so I know how it feels to not be able to hang like I use to. I fell in my bathroom the other night and laid there for an hour before I was found. But you are doing AMAZING! I have no hope for recovery now and I'm fighting this alone but you can do this! Remember, it's ok to not feel okay emotionally and I will pray for you! Don't risk it and get checked out! Keep us posted! 💙💙🙏🙏
Thinking of you with love and prayers.
It could have been side effects from stopping the pain medicine all of a sudden that made you feel that way. So when you took the medicine after 20 minutes you started feeling better you cannot stop by pain medicine like that all of a sudden
Oh hunney you are having a bad reaction the red face was the beginning praying you through this❤
Definitely please let your drs know what’s going on
🙏🙏🙏🙏🙏🙏🙏 prayers and happy thoughts too you all!
I have been watching your videos for a while now and I have to say that you are such an inspiration to me. I am chronically ill and don’t leave the house or my bed very often so it is inspiring that you are out there doing things despite not feeling well. I would be curled up in bed feeling sorry for myself. You show me that I can do so much more. I also love the relationship that you have with your husband. It’s clear that he adores you. i wish everyone to have love like you have.
I can relate to being emotional about falling. I recently have started falling and I cannot get up without help. The inability for me to get up is unerring. It feels weird to have a body that can’t do what is supposed to do. And now I am always afraid of my next fall.
You are clearly such a good wife and mother. Please don’t give those negative feelings any attention. They are lucky to have you.
Prayers
Jenny, I am so sorry that you’re not feeling well, it broke my momma heart to see you so sad, defeated and just feeling so bad. I’m praying that you get better soon.
I’m, no words….
Prayers to you and Kyle
Jenny, my heart breaks seeing you in such pain. You are loved by so many and we have you covered in Prayer. I'm praying for you, Kyle & the kids daily.
Hello how are you doing?
Hang in there sweet girl we’re praying for you
Hi Jenny. I'm praying for you every single day. Please go to hospital, or at least call them and ask if this is what is expected from the clinical trial. You maybe over did things at the wedding. You looked absolutely stunning btw. Just beautiful 😍
I definitely think I overdid it 🫢 oops. I spoke with my medical team and I will be going in to see them tomorrow. 💗
And thank you! ✨
Brilliant 💕
@@jennyapple4704 maybe to much protein ? i hope you get better soon and your a beautiful mother and wife. Dont ever feel that your not... Your kids and husband want you there with them and they love you so much. Remember the vows For better or worse in sickness and in health.. Your husband really demostrates a great and caring one who is there right by your side You have a beauful marriage and love that it will get you throught the rough times. You are enough just the way you are.. I know how frustrating it must be to want to do all the things you use to do and i hope soon someday you will be back to your old self again.. I hope you get answers tomorrow.. Make sure you tell them everything you ate at he wedding maybe an allergic reaction to something in the food. Document it and that can help you have that paper to share with your dr. FEEL BETTER SOON .((((HUGS))))
My daughter reacted exactly how you describe with the extreme cold and body pain, and she would go as white as a ghost; this was after a few doses of a pain medication. They had to start addiction treatment in the hospital when she was about 4 days post op. When she came home a few days later, I would have to take her to the pharmacy everyday for Methadone - no small feat for someone who had just had major hip surgery at age 20. Considering how many times she had taken narcotics for different operations this was a real shock to us.
Jenny, don’t let guilt over how much you cancer impacts your family eat at you - it is a psychological cancer of its own that will send you to some very dark energy-sapping places. You need that energy to go into being as well as you can be. You two have a beautiful relationship and Kyle absolutely deserved the award he got. Just keep going one day at a time, and treasure it, no matter how rough because if you get through today, it will turn into tomorrow….
Jenny, I was the care taker for my husband who had pancreatic cancer. I never once felt cheated,or upset that I was taking care of him. Trust me, Love endures a lot.I would do it again if I had to. You got a great hubby and support system, Don't feel that he has to take care of you,he wants to because that's what love is all about,being there in the good times and bad.
Praying for you.......
Jenny is looking, when into the car , like Snow White, the blue dress with the fluffy short sleeves, her hair style , her pretty white skin with these beautiful blue eyes . She looked like a Queen to the wedding . And Kyle ,wow , such a handsome young man . Love you,guys !
I think you should go to the emergency room now don't wait. I thank God for your husband he is a great husband and father im sure he don't mind being there for you. Praying 🙏
Prayers for you Jenny. ❤️
Body aches could have been withdrawal from taking ur pain meds and then not taking them....NOW I shall watch the rest of the video. I am at 17:25 in video time
Jenny, you look like a princess! Beautiful!
The aches and pain sound like withdrawal symptoms from your pain medication. I had the same thing when I tried to come off one of my medications. I would mention it to your pain management team. I hope you get some pain relief that suits you soon xxx
I agree!
Thats exactly what I thought as soon as she said she quit taking it. Maybe ease off of it.
I also said same
You get flashes too if you suddenly just stop taking an opiate based pain medication, very important to talk with your doctor how to do with it and specially now when she has started to take a new treatment, to be sure which is side effects from the treatment or withdrawal (which can be absolutely horrible too).
🙏🙏🙏❤❤❤ you got this Jen! God has your back!
You need to go tonight! Do not mess around with this. Trust me. Call your Dr.
Jenny,please don't go there where you're thinking that you're a bad wife and mother, because you're not, you're having horrible side effects to the trial medication and you're coping really well. I think you're one very strong person and I have nothing but the utmost admiration for you you are a shining example to
to everyone
I can really relate to feeling like a bad mom/wife. My twins were 13 when I got very sick and bedridden for 14 long years. Like Kyle told you, my daughters and hubby love me so and just want me to use my energy to get better and not to be too sad about the situation. It is clear your husband children love you more than you can imagine. Take their love and use it to fight this retched cancer. I believe in you!
Hello how are you doing?
Unfortunately, even though I never knew Jenny appleford, I cannot believe she is gone. I feel shook up.
Oh Jenny it’s so sad to see you struggling. You and Kyle looked so wonderful at the wedding! Just lovely. Take your pain meds so you can rest. Praying you feel better soon❤
Kyle is Handsome inside and out🥰
Jenny, please dont hesitate to contact your medical team. They are available 24 hours each and every day. You looked so pretty at the wedding. Kyle so handsome! Happy Thanksgiving to you, Kyle, Ellis and sweet Winnie😘
Oh sweet Jenny you were such a wonderful human being in all the sense of the word , Heaven must feel honored to have there .
Sweet Jenny, you had every right to complain. You were going thru what most people doesn't even come close to going through but you stayed so positive even until the very end. Such a selfless amazing human being. You are missed so much. Fly high beautiful girl❤
Sending big but gentle huggles to you all from Scotland. 🥰
I’m praying for you right now Jenny. Please call or go to ER . My heart is hurting because you are in so much pain. Please Do not be sorry because your wonderful husband understands as well as the kids know mommy does not feel well.. Hugs and Love to you.
Hang in there Jenny. Let your doctors know what’s going on. Don’t suffer in silence. Praying for you! ❤️
Oh, Jenny. I’m so sad to see you in so much pain, and as a mama myself, hearing you talk at the end just made me weepy. Praying for you, that you’d all feel peace and comfort that only a loving and powerful God can give.
Hi how are you doing?
You look fabulous.
You both looked lovely for the wedding. I am sorry that your weekend ended with so much pain. Prayers for you 🙏💗
I Love your nails Jenny! ❤❤
Oh sweetheart - so sorry that you're feeling so bad! You're not putting anyone through anything - cancer is putting you through ALL of this. Cancer sucks - you rock!💓
This is the first time watching you that I cried. I am so numb to life I never cry.. I hope they can give you a medication that will make you feel better. This is not your fault and there is no reason to feel bad.
Jenny, you looked absolutely stunning in the dress you wore to the wedding. I know Kyle was so proud to have you on his arm. I am praying for you! I’m praying for Kyle and the kids. I’m praying for a positive clinical trial. And I’m praying you know how much we all love you. Please use the pain meds, call your team for guidance and go to the City of Hope Emergency Room whenever you need. You deserve all of the respite from cancer that you can get. And know that you are an amazing mother and wife. Your fortitude and determination is palpable. Your family knows how much you love them. Please feel better💝
Praying that Jesus will wrap you in his loving arms and give you peace and comfort. Please call your team.
I am old enough to be your mother and I cannot even put into words how much I admire you both as a couple, and you, Jenny, as a warrior. You are so strong and positive and I can't believe how well you handle it all, especially with two very young children. I am praying for your healing and for a beautiful holiday season for your whole family.
I hope you’re feeling better since this video!
Praying praying praying for you here in Stockholm, Sweden 🇸🇪 Wednesday night 😢❤️❤️
This is heartbreaking for so many reasons. I hope you’re feeling better.
You have to"BE STILL" Stop wasting your precious energy doing trips and weddings etc. You must rest and let this clinical trial do its job! This stuff not only kills the bad cells but it kills the good cells too so this is why you are feeling bad , exerting yourself was not a good idea! It may get a little worse before you get better so just try to conserve your energy for this treatment ....I love you Jenny and God loves you too! Its gonna be ok! If you just BE STILL. Rest ,relax and watch a movie anything that does not require over exerting yourself! 🙏 I am praying for you
You looked so beautiful at the wedding. I loved your dress!
I hate seeing you so sick. I hope you get to the ER right away and find out what is going on. I was so hopeful that the new medication wouldn't bother you. I am praying for you honey and as horrible as this is, I know you will get better.
Please don't ever say you're a bad wife or mom. I totally understand you feel guilty for not being able to do everything for your family, but none of this is your fault. It just shows what a loving and selfless person that you are. But they love you unconditionally and would do anything for you. So please don't feel bad because this is temporary.
Sending you a huge hug and so many prayers. 🙏❤❤❤🤗
I'm 30 from Germany I got diagnosed with lymphoma last month. I wish you and your family the best ❤️❤️❤️❤️
Praying for you Jenny.❤
Oh I didn't know she passed. Heaven has a beautiful angel
You looked absolutely gorgeous!!!! You and your husband are a huge ray of light!!! God bless ya'll praying for your healing😘
Girl - hard talk now - stop the "what ifs". Your self talk is so important to the quality of your life and your healing. It takes so much mental discipline to deal with intrusive self talk but you are such a rock star. Please try it. No more anticipation of horrible things that probably won't happen anyway. Sending prayers your way.
Awe Jenny my heart and prayers going out for you. Cancer sucks and makes you feel horrible. That fall could have shocked your body. Prayers that God heal you and place a hedge of healing and protection around you! Clinical trials are at times harder than regular treatments our oncologist told us. So prayers for you and your beautiful family!!!
You always stay so positive.❤️💗💕🥳💐💐
I love you, Jenny, Kyle and kiddos! I am so sorry you have to go through this... my Grandma is going through Chemo treatments and advanced Breast Cancer, it is hard and awful, she raised me, because my mom passed away when I was 2 weeks old. I will continue to pray for you.
Jenny è morta il 5 novembre 😢 Guarda gli ultimi video 😢
You look beautiful Jenny!
❤️🤗❤️
I’m so sorry Jenny and Kyle. You are going through so much. We are all praying and sending up POSITIVE thoughts to you.. please feel better Jenny. We’re here for you!❤❤❤ And Jenny you looked amazing in the black dress, simply stunning ❤❤❤
Wow-when you ‘revealed’ yourself in that black dress I literally said “wow” out loud! You looked so beautiful! I’m sorry that you are feeling scared and in pain and I pray that the doctors will be able to help you with your symptoms and put your mind at ease (a little at least)!