I was diagnosed with adenomyosis last month. The initial moment was emotional and very sensitive, but now I’m fine. The doctor told me that I should remove my entire uterus, but I won’t do it yet. Thanks for the video. Let’s share our journey.
I really needed too see this video there’s not enough research on adenomyosis I kept seeing that hysterectomy is the only treatment I refused to believe that.
thank you em!!! this is so important, when i got diagnosed with adenomyosis i was really just looking for & expecting a diagnosis for my endometriosis! when my report came back i was surprised to find adeno along with my endo diagnosis. i had done so much endo research that i never even really researched thoroughly or considered adenomyosis as something i could have as well! this video is very informative & correct which i very much appreciate! thank you 💗
I'm so happy that you found this video helpful! It's such a hidden disease that needs more spotlight! Thank you for sharing your experience with it and for advocating for your health and wellbeing - it's not always an easy journey, but you're doing amazing.
Great video. I didn't know I had adenomyosis until my hysterectomy for endometrial cancer. All the symptoms were there but somehow this seems to get missed sometimes.
I had a hysterectomy back in May this year. I didn't know I had adenomyosis until after the hysterectomy. At the very start of my symptoms developing over 3 years ago, no Dr was interested in investigating, even my consultant gynaecologist. It was the surgeon that was meant to my diagnostic laparoscopy, actually read my notes properly and had an idea what it might be. He offered a hysterectomy less than a week before my original op. This surgeon Is an endometriosis specialist too. Wished I'd had him from the start. This was all done via the NHS England. I'm much better than I was before the op. I have no regrets.
I have Adno and a large fibrod outside uterus it’s so painful but only came on after I got Covid ( not jabbed ) . And my period stopped age 50 . I thought it was supposed to stop when you go into menopause but it’s not
Good evening dr. Tru my Transvi I’m considered as adenomyosis no bleeding in god thanks🙏but severe pain since 1 day to 2nd day of my menstruation after that back to normal, I fell this for almost 4 months na po😢😢😢
Thanks for making this video! I‘ve got diagnosed today (though the doctor didn’t mention endometriosis) and have just started the research engine. 😄 I have one question: Does it make sense to research endometriosis as well? (Like: is it the sister or a distant cousin of endo.)
Hey! Thanks so much for your comment. First off - I hope you're feeling well after receiving your diagnosis. I know that day can bring a mix of emotions, so I'm thinking of you! Typically with Adenomyosis and the presentation of Endometriosis alongside it - 40-50% of individuals experience / live with both.
I was diagnosed in 2018 after having a myomectomy. My periods were OK for maybe 2 years after that, but now are horrible. Ive decided i cant take it anymore im just going to have a partial hystorectomy
At first I was told I had 3 fibroids just by the sonogram. After an MRI and a biopsy , I was told it’s not fibroids, but adenomyosis . I feel sad and confused. I stayed in bed just soothing myself and doing my research.
So incredibly normal to feel this way - thinking of you during this time. I am so proud of you for advocating for your health and receiving answers for your pain ❤️
They don’t care about women specific diseases at all! They don’t even try to make connections with autoimmune or genetic conditions. My mother I think had it (she has a hysterectomy and that’s all I remember as a child), then passed away after a heart surgery and her veins are arteries were absolutely calcified. I always felt fatigued after I gave birth to my two kids and doctors said it was psychological and prescribed antidepressants which made things way worse for me. And finally at 48 when the had severe bleeding for 2 months did I get diagnosed with adenomyosis (I always had a protruding tiny belly before even when my weight was perfect)
I was diagnosed with adenomyosis, fibroids, and hernias at the beginning of this month. I’ve had all of these symptoms except the heavy bleeding. Is that something someone else has experienced? I also have had a loss of appetite. I’m waiting yet another ultrasound for whatever reason, I’ve been to so many ER visits, and I’m on strong pain medications until I’m scheduled for surgery.
I also have adenomyosis and most periods are not so heavy. I did have a strong loss of appetite, but now its less since I use the Pill for a bit of regulation of the illness.
You can. I did. The pain was unbearable during a period. Almost as bad as being in labor. Mine were not heavy, maybe prolonged but manageable. The pain however was awful. A tens machine was my only saviour.
I have 2 wonderful children. I suffer with both endo and adenomyosis. However I wasn’t diagnosed until after my children. You can preserve your fertility by using birth control, so when you do try to get pregnant you have already slowed the progression of the disease. This happened to me without realising it.
I was diagnosed with adenomyosis last month. The initial moment was emotional and very sensitive, but now I’m fine. The doctor told me that I should remove my entire uterus, but I won’t do it yet. Thanks for the video. Let’s share our journey.
I really needed too see this video there’s not enough research on adenomyosis I kept seeing that hysterectomy is the only treatment I refused to believe that.
thank you em!!! this is so important, when i got diagnosed with adenomyosis i was really just looking for & expecting a diagnosis for my endometriosis! when my report came back i was surprised to find adeno along with my endo diagnosis. i had done so much endo research that i never even really researched thoroughly or considered adenomyosis as something i could have as well! this video is very informative & correct which i very much appreciate! thank you 💗
I'm so happy that you found this video helpful! It's such a hidden disease that needs more spotlight! Thank you for sharing your experience with it and for advocating for your health and wellbeing - it's not always an easy journey, but you're doing amazing.
@@endoemmm Thank you so much! you are doing amazing as well.
For the last 16 years adenomosis still away my live. Thank you for this brilliant explanation. ❤❤❤
This is the best explanation I've seen. Thanks so much.
Glad it was helpful!
Great video. I didn't know I had adenomyosis until my hysterectomy for endometrial cancer. All the symptoms were there but somehow this seems to get missed sometimes.
I had a hysterectomy back in May this year. I didn't know I had adenomyosis until after the hysterectomy. At the very start of my symptoms developing over 3 years ago, no Dr was interested in investigating, even my consultant gynaecologist. It was the surgeon that was meant to my diagnostic laparoscopy, actually read my notes properly and had an idea what it might be. He offered a hysterectomy less than a week before my original op. This surgeon Is an endometriosis specialist too. Wished I'd had him from the start. This was all done via the NHS England. I'm much better than I was before the op. I have no regrets.
What was recovery from your hysterectomy like? Have you experienced any body changes, weight gain?
I'm being checked for this in a few weeks
I have Adno and a large fibrod outside uterus it’s so painful but only came on after I got Covid ( not jabbed ) . And my period stopped age 50 . I thought it was supposed to stop when you go into menopause but it’s not
Good evening dr. Tru my Transvi I’m considered as adenomyosis no bleeding in god thanks🙏but severe pain since 1 day to 2nd day of my menstruation after that back to normal, I fell this for almost 4 months na po😢😢😢
Thank you for this video, you've explained this very well
Glad you enjoyed it!
Thanks for making this video! I‘ve got diagnosed today (though the doctor didn’t mention endometriosis) and have just started the research engine. 😄
I have one question: Does it make sense to research endometriosis as well? (Like: is it the sister or a distant cousin of endo.)
Hey! Thanks so much for your comment. First off - I hope you're feeling well after receiving your diagnosis. I know that day can bring a mix of emotions, so I'm thinking of you! Typically with Adenomyosis and the presentation of Endometriosis alongside it - 40-50% of individuals experience / live with both.
I was diagnosed in 2018 after having a myomectomy. My periods were OK for maybe 2 years after that, but now are horrible. Ive decided i cant take it anymore im just going to have a partial hystorectomy
I just found out I have adenomyosis after having 4 kids. I didn’t find out until my birth control was taken out
At first I was told I had 3 fibroids just by the sonogram. After an MRI and a biopsy , I was told it’s not fibroids, but adenomyosis . I feel sad and confused. I stayed in bed just soothing myself and doing my research.
So incredibly normal to feel this way - thinking of you during this time. I am so proud of you for advocating for your health and receiving answers for your pain ❤️
They don’t care about women specific diseases at all! They don’t even try to make connections with autoimmune or genetic conditions. My mother I think had it (she has a hysterectomy and that’s all I remember as a child), then passed away after a heart surgery and her veins are arteries were absolutely calcified. I always felt fatigued after I gave birth to my two kids and doctors said it was psychological and prescribed antidepressants which made things way worse for me. And finally at 48 when the had severe bleeding for 2 months did I get diagnosed with adenomyosis (I always had a protruding tiny belly before even when my weight was perfect)
I have my transvi result October 20
I was diagnosed with adenomyosis, fibroids, and hernias at the beginning of this month. I’ve had all of these symptoms except the heavy bleeding. Is that something someone else has experienced? I also have had a loss of appetite. I’m waiting yet another ultrasound for whatever reason, I’ve been to so many ER visits, and I’m on strong pain medications until I’m scheduled for surgery.
I also have adenomyosis and most periods are not so heavy. I did have a strong loss of appetite, but now its less since I use the Pill for a bit of regulation of the illness.
Can one have extremely painful cramps with Adenomyosis but not the heavy periods?
You can. I did. The pain was unbearable during a period. Almost as bad as being in labor. Mine were not heavy, maybe prolonged but manageable. The pain however was awful. A tens machine was my only saviour.
You can. Got diagnosed today and my period is not heavy but very painful.
Mine is opposite. Very heavy, long periods but little cramping. Everyone is so different.
Can someone with adenomyosis get pregnant???
I have 2 wonderful children. I suffer with both endo and adenomyosis. However I wasn’t diagnosed until after my children. You can preserve your fertility by using birth control, so when you do try to get pregnant you have already slowed the progression of the disease. This happened to me without realising it.