Thoracic Endometriosis | 9 Common Myths Debunked and the Truth Revealed
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- Опубліковано 25 лис 2024
- Hey everyone! I hope you’re having a flare free day!
In this video, I talk about the symptoms of thoracic endometriosis - which can vary from person to person - but they often include chest pain, shortness of breath, and sometimes collapsed lungs (pneumothorax). Due to the overlap of symptoms with other conditions, thoracic endometriosis can be challenging to diagnose, leading to delayed identification and treatment.
Sometimes there can be lots of information out there when it comes to endometriosis - especially when it comes to thoracic endometriosis. In this video, I dive into nine common myths around thoracic endometriosis. Whether you're newly diagnosed, living with thoracic endo, or supporting someone who is, this video is for you!
Thoracic endometriosis is more common than we give credit - research around endometriosis is lagging (causing many to think that extra pelvic endometriosis is not common - when in reality it is!)
Extrapelvicnotrare.org is an amazing resource for more information around thoracic endometriosis! They do a wonderful job at describing the symptoms and details!
It's important to note that thoracic endometriosis requires a multidisciplinary approach involving endo specialists, pulmonologists, and other specialists to properly diagnose and manage the condition. If you or someone you know is experiencing unexplained chest pain or other symptoms during menstruation, it's crucial to seek medical attention and consult with healthcare professionals experienced in dealing with endometriosis and related conditions.
Other resources for thoracic endometriosis are included here:
extrapelvicnot...
www.ncbi.nlm.n...
www.theendomet...
endometriosisn...
I’d love to hear your experience if you’ve suffered with thoracic endometriosis and your journey to receive answers down below! It may be helpful to someone else seeking answers in their journey.
If you find this video helpful, don’t forget to like, comment, and subscribe for more content on chronic illness and endometriosis.
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This is so so informative. I had 2 pneumothoraces over the span of 5 months and agreed to a VATS pleurectomy which included a diaphragmatic plication when they found many endometrial holes/ lesions. Prior to this, in between the two pneumos, I did try to find endo through a CT scan but found none. I’m at the post-operative stage and the recovery is pretty brutal. Now I’m on Visanne as well.
@nishovski what were your symptoms and how did you get doctors to take you seriously that led to doing VATS?
@@tracywilliams7523The first hospital I went to for the first pneumo were pretty dismissive tbh. They didn’t know what a catamenial pneumo was and said it was spontaneous. When I went back for the second pneumo, the radiologist said I didn’t have one but the A&E doc who attended to me contested it and took another xray which showed my pneumo clearly. Both times were on the first day of my period and on my right lung (though it can happen on your left too and outside of your period). Here in Singapore, if you have 2 recurrent pneumos, you have to undergo VATS. I went to another hospital for that cos it was considered too major for the hospital nearer to me. Thankfully, the top surgeon happened to take my case. He took one look at my CT and said he saw something on my diaphragm. He was very encouraging and told me he was certain I had classic catamenial pneumo.
@@tracywilliams7523I was very adamant about my presenting symptoms, namely that it was happening around my period. Whenever I had a pneumothorax, it felt like sharp stabbing pains from my chest radiating to my back and it hurt to even breathe.
I didn’t know about thoracic endometriosis until after my surgery. I’m very thankful they even bothered to check my diaphragm and they found many deposits and lesions. It’s important for your thoracic surgeon to know this cos that’s the root of the problem. If it isn’t addressed, I reckon it’ll keep happening even with a VATS procedure done.
I had no idea! I have had many doctors suggest I have endo... But I thought the pain in my chest and liver area ( i just watched your liver endo video) could be at all related to endo!! I've had so many years of searching for answers with worsening pain and I have no idea what to do next. But this info is real helpful
Thank you so so SO much 💗 🪽 ✨️
No problem!
@@endoemmm 💖
My doctor said until you don't caugh up blood you are okay but i feel something strange in my lungs......what should i do?
Unfortunately I don’t provide medical advice but I highly recommend you talk with your doctor again about your concerns of something lingering! Would be good to have answers to additional discomfort that might be there. Second opinions are an option too in the medical system - thinking of you!
@@endoemmm Thank you for being an angel
@@pouranszekely-kiraly5076your doctor sounds insane to expect you to be coughing up blood to deserve appropriate care. Please find a different one … get an MRI as it can be seen on MRI. I have one for thoracic endo tomorrow, I can keep you posted on how it goes and if you need support getting medical attention please don’t give up.
@@totabo6aa Pls keep me posted please