Loved this interview! I can also attest to healing from EDS being possible. I think it's criminal they tell people it's a lifelong, incurable disease (when really, they don't know that). Many are recovering. And often a significant part of that recovery involves letting go of limiting beliefs and the labels of diagnosis themselves.
Wow, such a young girl getting ignored by her parents it’s just so sad all of us have sad stories a little bit different but very similar in many ways. I hope parents are waking up to what’s happening.The majority of people don’t fake illness they have better things to do with their time and going to doctors no one wants to sit in a doctors office. This just saddens me that she was accused of faking it.
Really happy that she recovered from all that, a very inspiring story. However, she mocks people who mask and take protective measures against viral infections. Disappointing since many of us in this community are disabled from infections and cant afford to get ill again.
So she healed her Ehlers-Danlos by treating her mast cell through neuroplasticity is that correct? Fascinating interview. Only thing I struggle with is she said isn't genetic. My daughter age 4 diagnosiled with eds symptoms include sublux, super soft stretchy skin, chronic fisures, bruises easily etc. How can 4 year old have nervous system dysfunction? Not challenging just interesting
@nicky9173 because every single child in this world would have symptoms. Every single child goes through emotional regulation as there nervous systems are all over the place learning to regulate
@Star5dg what if they show different symptoms? Like not going to the toilet as often as they should. Or behavioural issues. Everyone manifests things differently?
All of these diseases, and I have all of them, are clearly genetic BUT it isn’t what doctors say or believe it is. I think we have to stop saying that only EDS is the genetic one. They all have a genetic root cause, however they only get triggered and sustained by massive nervous system dysregulation. Most of us have the MTHFR gene and methylation issues. I was healthy until less than a year ago when I was prescribed antibiotics and then had encephalopthy from it. I, like her, had shown some symptoms since I was a child. Belly pain, insomnia from a young age, some IBS stuff, etc. but I was a very active and healthy child overall. And an extremely active adult. Until I was given those meds that messed up my nervous system and then was literally tortured in psychiatry cause no one would believe or listen that I didn’t have muscles anymore (my connective tissues literally gave up overnight), I developed POTS, MCAS issues, and over all I now have 25 diagnosis and possibly more. That didn’t happen just like this. I would not have gotten sick hadn’t been all of these traumas to my nervous system back to back. I now have SEVERE EDS, when I had barely any symptoms before. My mom has endometriosis (which falls under mast cells activation syndrome), my cousin has tons of party tricks,. Etc. the thing is: I have done so much research and bloodwork and tests and, guess what? I now have: high homocysteine levels (methylation issues will cause that), we for the majority have: low b6, b9, b12 (all symptoms of poor methylation), we develop anemia, have low glutathione. ETC. these diseases have a genetic root cause. But it ISNT A HEDS gene. There is NO hEDS gene cause hEDS is a metabolic problem, not a collagen problem. And yes, we can heal once our metabolism is back on track. But like me, it got so severe, it will take time for my connective tissues to work properly again and in the meantime, it is scary.
BUT healing is SO possible. Also, for the ones who would say: I don’t have the MTHFR gene. Methylation isn’t only the MTHFR gene. It is 183628 different chemical reactions. You most likely have one that doesn’t work properly. 57% of the population is hypermobile. And about 60% of the population has a methylation SNP. That’s a pretty close number. :) and by hypermobile, I don’t mean hEDS (which shouldn’t even be called hEDS and should have a total other name). I mean hypermobile. And yes, that is caused by metabolic issues. The nervous system regulates everything in our bodies. So once the nervous system isn’t out of whack anymore, we can metabolically heal. 🤍
What an incredible story! Thank you Angela for sharing 💜
Loved this interview! I can also attest to healing from EDS being possible. I think it's criminal they tell people it's a lifelong, incurable disease (when really, they don't know that). Many are recovering. And often a significant part of that recovery involves letting go of limiting beliefs and the labels of diagnosis themselves.
Anyone have the link to the program they were talking about?
Wow, such a young girl getting ignored by her parents it’s just so sad all of us have sad stories a little bit different but very similar in many ways. I hope parents are waking up to what’s happening.The majority of people don’t fake illness they have better things to do with their time and going to doctors no one wants to sit in a doctors office. This just saddens me that she was accused of faking it.
Really happy that she recovered from all that, a very inspiring story. However, she mocks people who mask and take protective measures against viral infections. Disappointing since many of us in this community are disabled from infections and cant afford to get ill again.
So she healed her Ehlers-Danlos by treating her mast cell through neuroplasticity is that correct?
Fascinating interview. Only thing I struggle with is she said isn't genetic. My daughter age 4 diagnosiled with eds symptoms include sublux, super soft stretchy skin, chronic fisures, bruises easily etc. How can 4 year old have nervous system dysfunction? Not challenging just interesting
i believe a child any age can have nervous system dysfunctiion!
@nicky9173 true but I don't believe at that young an age it would cause symptoms
@@Star5dg why not?
@nicky9173 because every single child in this world would have symptoms. Every single child goes through emotional regulation as there nervous systems are all over the place learning to regulate
@Star5dg what if they show different symptoms? Like not going to the toilet as often as they should. Or behavioural issues. Everyone manifests things differently?
All of these diseases, and I have all of them, are clearly genetic BUT it isn’t what doctors say or believe it is. I think we have to stop saying that only EDS is the genetic one. They all have a genetic root cause, however they only get triggered and sustained by massive nervous system dysregulation. Most of us have the MTHFR gene and methylation issues. I was healthy until less than a year ago when I was prescribed antibiotics and then had encephalopthy from it. I, like her, had shown some symptoms since I was a child. Belly pain, insomnia from a young age, some IBS stuff, etc. but I was a very active and healthy child overall. And an extremely active adult. Until I was given those meds that messed up my nervous system and then was literally tortured in psychiatry cause no one would believe or listen that I didn’t have muscles anymore (my connective tissues literally gave up overnight), I developed POTS, MCAS issues, and over all I now have 25 diagnosis and possibly more. That didn’t happen just like this. I would not have gotten sick hadn’t been all of these traumas to my nervous system back to back. I now have SEVERE EDS, when I had barely any symptoms before. My mom has endometriosis (which falls under mast cells activation syndrome), my cousin has tons of party tricks,. Etc. the thing is: I have done so much research and bloodwork and tests and, guess what? I now have: high homocysteine levels (methylation issues will cause that), we for the majority have: low b6, b9, b12 (all symptoms of poor methylation), we develop anemia, have low glutathione. ETC. these diseases have a genetic root cause. But it ISNT A HEDS gene. There is NO hEDS gene cause hEDS is a metabolic problem, not a collagen problem. And yes, we can heal once our metabolism is back on track. But like me, it got so severe, it will take time for my connective tissues to work properly again and in the meantime, it is scary.
BUT healing is SO possible. Also, for the ones who would say: I don’t have the MTHFR gene. Methylation isn’t only the MTHFR gene. It is 183628 different chemical reactions. You most likely have one that doesn’t work properly. 57% of the population is hypermobile. And about 60% of the population has a methylation SNP. That’s a pretty close number. :) and by hypermobile, I don’t mean hEDS (which shouldn’t even be called hEDS and should have a total other name). I mean hypermobile. And yes, that is caused by metabolic issues. The nervous system regulates everything in our bodies. So once the nervous system isn’t out of whack anymore, we can metabolically heal. 🤍