WE HAD TO TAKE HIM TO THE EMERGENCY ROOM
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- Опубліковано 18 бер 2021
- We had to take Griffin to the emergency room because he was refusing to eat or drink. Please subscribe to watch our family grow!
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We are a big family of eight with Mom(Emily), Dad(Will), and our six kids, Harrison, Wyn, Griffin, Sawyer, Posey, and Lindy.
#BigFamily #Choking #YouAreWonderful
You are such a strong brave woman...When Griffin started "talking" to you my son started "talking" back to him hes 3 and currently nonverbal I just thought it was incredibly cute. It brought a smile to my face so hopefully it will bring a smile to yours too.♡
He is very lucky to have you two advocating for him! Hang in there.
Sending much love and prayers for Griffin and all of you. It's not easy. Griffin and ALL of your children are So very lucky to have LOVING & CONSCIENTIOUS Parents.
Not all children are so lucky to be loved the way you and Will love your children.
💕🙏💕🙏💕🙏💕🙏💕😘
Poor baby boy! He deserves so much more💜🙏🕊✝️!
Protein milk shakes! Instant breakfast, banana or some other fruit, egg in the shake. Blend well, smooth.
too much iron in it would make my child so constipated :(
Jasmine dority run
Have you tried just giving him the high calorie milkshakes? My dad lived on them when he was sick. That should give him plenty of nutrition until the tonsils can be removed.
I know how you feel. We've had many of those long, emotionally draining emergency room days with our daughter. Praying for you all!
I’m praying they’ll do something soon!! My Son had the same situation. They admitted him immediately and operated. If his had swollen even more he wouldn’t be able to breathe. Hang in there Mom❤️
How sad.. I feel so sorry for that poor little boy and you guys of course. Its so stinken hard to see your baby suffer without being able to help him. Were all praying for all of you. Lets pray that they will do something for him monday. If they refuse to do anything monday. I would call his pediatrician and your insurance company. I live in Buffalo, Ny I wished i lived near you to help you out.
I feel for you both ! My ENT dr had to do emergency surgery on all 3 of my boys when they were 8-9 1/2 months old. It was awful ! And all 3 had somewhat of the same surgery: tonsils & adenoids removal with flask tube insertion in both ears ! When my oldest went overseas to fight the war, he called me & told me he’s in the medical tent. I got scared ! He said, “mom I thought you said I got tonsil surgery !” I said, “ya did ! All 3 of you boys did ! Why you ask !” He said, “they’re back” !
I’m like WTF ?!! So I called his ENT dr to let him know what happened ! He was shocked as well that they grew back, but he did mention that some do ! My 2nd & 3rd child’s tonsils haven’t grown back ! I cross my fingers in hoping they don’t ! The dr was just floored that they grew back & that he was stuck overseas with an IV in his arm !! They normally don’t grow back ! I’m like, well my kid is far beyond NORMAL !! 🤣🤣🤣🤣
My thoughts and prayers are with all of you! I love his smile!
I understand what this is like even if in a slightly different way? A few years ago I was taken to an emergency room for loss of speech, movement, and all symptoms of a stroke. I ended up being released even though I couldn't speak, one of my eyes wouldn't open and I still had half of my face drooping. Later that night I started having seizures and it's because they wouldn't listen and go through the steps to make sure I wasnt having a stroke. The more it happens the more you wonder "why, why won't they just listen" and the only answer is the exact thing that you said the nurse told you. Advocating for him is the best thing to do and eventually someone will listen.
They do care! I’m sorry you’re feeling this way but it’s hard on both sides.
They do not want to put him under and perform surgery unless absolutely necessary. Medical protocol requires them to wait at least a week on meds to get his tonsils down unless he can’t breath. As a swallow specialist I can tell you that I have seen patients on liquid diets for months. I know it’s but be grateful they are trying to help!
It might not be the doctors more then likely it is ins. I went through something like this and I had to call the ins. co and they had a children's doctor on my case for a female problem of a 28 year old I told them to get me a GYN and that I would call every 5 mins till I talked to one two mins later I was told to go to hospital everything was good to go. Call the ins. if you have to call the nurse line for them and explain what is going on. You are Griffins voice try everyone you can think of to call. This is a big problem if it is effecting his breathing and my guess is it is ins. and not the doctors.
Emily it sucks sooooooo much that you have to fight so damn hard to get what very obviously needs to be done for Griffin. I am sending all my thoughts and prayers to you, Griffin and your family. Don't forget Wallace Family " You guys are WONDERFUL"
My son Kamryn is 14, we live in Oregon. Kam has Spastic C.P., he is in a wheelchair and pretty dependent on others for his care. I just wanted to tell you he watches you every single day. He has very limited speech so he can not articulate why he enjoys you so so much. 🥰🤷♀️💜 But , he really does. Regardless, I appreciate you, mother to mother.
I think he enjoys seeing your struggles and knowing there are others that struggle a little too. (And that's ok).
Love and hugs to you.
Jessica
Breaks my heart seeing Griffin suffer. Praying for you and your family buddy
Keep fighting for Griffin!! You’re doing amazing. I’ll be praying for you. You are strong.
Oh Emily, my heart goes out to you and your family.
I am sending many love and prayers to your beautiful sweet Griffin ♥️💜♥️🙏🙏
Poor Griffin.. It shame on them not doing anything and expect a small child wait for 6 months for them to do something about it. It shouldn't be that way at all. I would find a different Children Hospital if possible. When my son was 3 year old and his tonsils where large. And they didn't wait they schedule surgery and get him soonest they could. Why is this ENT doctor doing that. They must want money. It not worth do a swallow study on him when he not going to eat and wouldn't help with large tonsil either and could give them wrong results. Keep up the work and speak for your son. Don't let them do this.. Praying for Griffin and your family.
I agree with you... it is clear this is not a swallowing disorder if the tonsil are blocking the way
I'm so sorry:( Be a mama bear. Call insurance. Pressure doctors. You should be angry. Take that righteous anger for good to get things moving. We will pray. Our system is a mess. Stay strong. You guys can do this.
Sending Light and love
Moms know best.
I’m so sorry, I love Children’s Denver, they definitely give great care. I’ve found the Springs location and Denver location don’t communicate the best but the Special Care Clinic in Denver is incredible!!
My grandson had his tonsils out and he said my throat isn't full of cotton any more. Things will go down now.
Keep fighting for him Emily. Your doing a great job. Your frustration must be overwhelming. Sorry.
Try giving him some meal replacements such as Ensure, he should love them! Give him some Gatorade so he can stay hydrated at least until he’s better...praying for Griffin & the rest of you during these trying times🙏🏻🙏🏻🙏🏻
I really dont understand WHY THEY WONT HELP THIS POOR CHILD HE NEEDS HIS TONSILS OUT PERIOD EMILY MY ITALIAN TEMPER WOULD COME OUT NOW BECAUSE THIS IS RIDICULOUS HES SUFFERING!!! GIRL YOU'VE GOT MORE PATIENTS THAN ME! IM SO SORRY OUR HEALTH CARE SYSTEM SUCKS!!!!! I LOVE YOU SWEETHEART 💞 🙏🙏🙏😘
No matter what you never give up! Your kids are so blessed to have you! Prayers and hugs from West Texas!
I'm so so so sorry this is happening to your family. We understand your anger and frustration. Please do not feel alone, we are here for you. You are a great mom!
POOR GRIFFIN MY HEART GOES OUT TO HIM HE IS IN MY PRAYS IT IS HARD TO SEE OTHERS EAT AND YOU CAN'T
Griffin is so strong. And so are you momma. Hang in there. You are amazing for advocating for your kid. ❤️❤️❤️
Continued prayers!!!!
I'm so sorry that this is happening. Praying that you get help for him 🙏💗
I had my tonsils out before and I freaked out sometimes. I am a healthy person and I taught myself not to choke anything like sharp things like taco chips and sometimes I take it really seriously.
Have you called your insurance company yet? There's got to be someone here who watches you who is a doctor who knows how to help you or what to do or who to ask what! God, I'm so pissed for you!!! I think about y'all and Griffin every day, thank you for keeping us posted. Prayers up the The Man for ya' X's and O's for all. Your mom is also up there fighting for you and she has a whole bunch of angels on her team to watch over your family. P.S. smoosh the bananas totally - no more little pcs of anything for now, all liquid, make totally pureed smoothies, maybe the ENT or Griffin's regular doctor can recommend a protein powder to throw in a smoothie.
Poor griffin ! Praying for you guys. I’m so sorry.
You and Griffen sure are going through the wringer at the moment,your stronger and braver than you realise and you will get your Beautiful boy sorted sending hugs all round and don't you forget that your wonderful too 💝
You are a rock star mom, I’m praying so sorry you’re going through this , but your strong! Keep it up momma
Gosh Emily, I’m so sorry you’re having to go through all of this, it’s nothing short of horrendous. I made a comment on your last video that I didn’t understand others comments on the situation as I was basing mine off of the video. I don’t have social media for personal reasons so I wasn’t aware of any of your recent struggles.. this is horrific that you’re having to go through this.
I know here in the U.K. I’ve had friends fight tooth & nail to have their little ones tonsils removed after never ending tonsillitis (strep throat to you guys I believe), apparently regardless of age they have to have had strep a ‘certain amount of times’ to even be considered for tonsillectomy, despite the constant discomfort of their little ones. How insane!!! The fact they’re letting Griffin suffer knowing full well he has no infection & this is the size of his tonsils, which are restricting his quality of life, it’s so distressing.. I can’t even imagine being a doctor & being ok in letting a child suffer like that. Horrific.
You don’t know what strength is until it’s all you have left.. right? You’re amazing hun. Sending you all so much love, blessings & prayers 💗 xx
I’m with you, Emily. Why would the doctors think that waiting for a swallow study (whether for days or weeks) is advisable when there is a visible obstruction to his throat that could be solved with an operation? How is that acceptable? I’m so sorry that you all are going through this.
Prayers for Griffin.
Trust me hun, Birmingham AL Children's of Alabama hospital is the same way..
I'm retired and an Aussie. I worked in Surgical, GP & Hospital Practices. Health Insurers are so difficult to deal with and will do anything to get out of paying for any type of procedure.
I would have to advocate for Patients frequently. The words I would use were, "why is this patient being denied a procedure, when I am paying for your services?" "If this child has a negative response, by your refusal, expect to be sued, and I will personally publicise this all over social media". I was always polite, but firm. I would ask to speak to their Manager, if they insisted on not listening to me. I would mention the word Fraud. I am so angry for you. And understand Australia's Health system is considered to be one of the in the world. This just stinks!!!! Be firm. Don't lose your temper. You've got this Mum & Dad.
Omg I hate it when they send u hm to follow up with doctors. They have him just do the swallow study! I don't get it either. If tonsils are so big call the ENT doc to see him there. Plus a hospital is open 24/7 it's so frustrating. Sorry you guys are going through all this! 🙏
Prayers and more prayers!🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏♥️♥️♥️♥️♥️♥️♥️♥️♥️
I would buy Pedicure in the different flavors. My special needs nice was on that for 2 yrs for nutrition bc she wouldn't eat anything. Her doctor told me to give her that to sustain her.
I'm guessing here but maybe bc of the salivary injections he may not be producing enough saliva to wet some of the dryer foods he is choking on.
Also maybe the dryer foods have irritated his throat causing his tonsils to swell up. Or maybe a combination of that and he needs them out. I can't believe those idiots keep making you bring him back time and time again. Each of those visits cost the insurance company money. I don't get their reasoning of having to go through darn Protocols when clearly his tonsils are huge. I'm praying someone has the smarts to figure this out for poor Griffin and you and Will too. What a nightmare!
I had to refrigerate the Pedicure for my niece. Just an FYI. Best wishes and lots of prayers for you guys.
That is PediaSure not Pedicure. Darn auto correct.
I am sorry you are going through this ... My brother had very badly swollen tonsils for 3 years and it ended up being cancer ... that was years ago when he was 14 he is now 51 ... I don't think you son has cancer... I just wanted to say people get the run around all over the country ... my mom took my brother all the time to the DR etc and they kept saying when the swelling goes down they will take out his tonsils... what sense did that make ? my other brother had an issue with the tube that goes from your kidney's to your bladder and drs called my mom crazy and he almost died... 2 1/2 years of this ... :( ... I understand what you are talking about
Hope he feels better praying for him
Prayers for your sweet boy!
Hang in there ........ we can ALL get through this together. Don't give up and know that we are praying and right behind you.
You should move to the UK our healthcare is free and parents of children with struggles can go away for a holiday at a centre for respite where everythings taken care of for you. I worked in one and it was the most rewarding experience seeing these poor exhausted parents leaving after their holiday well rested and revived. Theres also the option of having your child there like a holiday camp with all services provided on site. It's so unfair to Griffin to not get the healthcare he deserves but hes very lucky to have a mama bear in his corner.
Prayers for you and your family.
You are a great mama
I pray they figure it out
soon
Praying for you.
Emily, you are an amazing mom!
This is the state of our health care system now days . it horrible
Prayers for Griffin and you .
Prayers
Poor little guy, I'm so sick of our health care system, they need to help him. Prayers for all of you.
Poor kid hope he get better
You are strong women keep going strong. I am praying for u and your family. God bless u
Praying for you and your family
i really really hope that griffin gets the help he desperately needs i love your videos emily
Raise holy hell if you have to!!! He must eat to live. He must not choke. He must not ve dehydrated!!!! Tell them to take out his tonsils!!!! Poor baby😭😢
I’m so sorry for what your going through, we went through some pretty crazy things our self with our son, the DR’S wouldn’t do anything , so we took him to Mexico within a week he had surgery the DR’S were great
You may have to get a feeding tube for him 😭😭😭😭😭😭😭😭🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
I love this little family that I dont even know...keep strong Emily YOU are doing all the right things. Its incredibly exhausting that it requires this amount of energy every time...keep sayingnit but my elderlynparents situations were exactly thebsame - every issue an effort, every doctor visit I had to keep on top of everything & everyone - it was NEVER plain sailing. And with dementias they couldnt advocate for themselves. Your doing great & perseverance wins. I was once told that because I stayed 'high profile' in my parents care I was listened to - you will be too. If Will can do a hospital appt try & let him - sometimes they listen more to Dads....but you my love are doing EVERYTHING right. Love from Scotland x
What makes me angry is if these Drs.kids jad this issue they would be in the OR the next day.
if they had a friend
If they don’t do anything call their risk management. Take it all the way up to the CEO. I work in a hospital you will get results.
In my prayers 🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽
Why are you not giving him Pedisure? I mean if you kept it cold it could take some of the swelling down while giving him some much needed nutrients. I may have missed the reason or maybe you are giving it to him and I missed it. Praying for Griffin and the rest of you. Also for the Drs and nurses that come in contact with Griffin.
My children will not drink pedisure at all. He might not like it, it taste terrible!!!
The last doctor told her to not worry about getting anything but water in. I don't agree with that but that is what the dr said.
Praying
Keep being strong and keep advocating for him. If you have to be firm and get more opinions and go elsewhere. Unfortunately it’s back and forth and you have to watch your baby go through the gambit. Definitely understand my Lil man went though it for years. Try carnation complete or ensure. I know this is a few weeks ago. I have Crohn’s and when I can’t digest and get dehydrated and won’t eat. I get fluids steroids and ensure for nutrition and clear liquids or soft liquids like cream of wheat jello broth etc
I’m so sorry your going through this, how can they not help him? Xx
Sending hugs and prayers I just can’t believe this is still going on I know 20 years ago they would say this but now with better drs they should’ve done more for Griffin.
Hi sweet family!!!
My prayers for you and your family
this is appaling! I feel so sorry for Griffin and all of you!
if you have a blender, you could add tofu for protein and spinach can be hidden well too! Maybe some carrot juice or mashed vegetables (potato? Pumpkin?) could work as well....fingers crossed he gets better with the amoxi and doctors listen to you tomorrow!!
I would be super pissed.
I am so sorry that Griffey has to go through all of this. It is hard to get doctors to understand when you have a special needs kid. Been through lots of hospital stays with my son who is autistic and none of it was easy. Hang in there.
You got this.
I'm praying for you Emily. Keep up the good work. I know it's exhausting. It sounds very much to me that behind the scenes it's the insurance that's not doing what it's supposed to. They request this test and that test first and to lay after delay. If you can, contact the nurse available on call with the insurance and explain things to her. Perhaps that can get things going. Doctors hands are frequently tied and they can't do anything. So please don't bad mouth the doctors. They do care. They are afraid of suits and all the rest of it. Our medical system is broken. You're a wonderful mom. 💕🙏🍀🙋
in our cases it is always a Dr or a clerk not doing what they are supposed to do... so many times care has been blocked because of a know nothing clerk... if a dr applied for something and was denied the Dr needs to share that with you so you can appeal... I even knew one Dr. who was giving chemo in his office because he could not get it approved through insurance... a lot do not try and will not share with you the hold ups
I had my tonsils out recently and skip the dairy. It makes me gag. Ice was my best friend and cold
I had many tonsil infections as a child but never caused me to choke. Could it be something else?
I feel what you are going through. When my son was younger he had huge tonsils. It was so scary when he’d sleep because he would pause when he was breathing and I’d have to shake him to get him to breathe. The specialist said he’s have to grow out of it. They wanted to keep his tonsils because it would be better when he got older They aren’t so quick to take them out now as they use to be for certain health benefits.
He is now 16 and has finally grown into not them , but it was a bit of a challenge.
Good luck and hope you will find the help your little guy deserves.
Try putting the protein shakes in a large syringe and give it to him that way .. no spills :) hope things get better fast
Have u ever used the app called abridge.. when you have important appointments for your children you push record on the app and it will record what the doctor says and then putit into a page you can read.
Keep fighting for him.
Poor lil guy...❤️🙏
Emily. Start writing down names of the people that you are talking to. You have a significant law suit building. I wish I had done that! One PICU MD SPECIALIST DISAGREED WITH ME THAT MY SON WAS HAVING SEIZURES UNTIL THE 11th SEIZURE & MY SON CODED!!!
We have been fighting with doc it’s horrible what they put our kids through.
to anyone who is worried It's Our Wonderful Life did a Live stream this is series is a bit dated but yes griffen is ok
Unfortunately Insurance companies make it hard for Drs. To do direct testing and much needed surgeries. That makes it so unfair for the people who are suffering! So sorry y'all are going through this!
this really isn't true .. they just have to code things correctly... especially with Medicaid... things are so much easier most of the time ... it is hard to get them to do that though ..
@@lorettatheibert1663 Good point!
I’m a little confused on how your health care works.
If you have to pay, and it’s not going to cause any harm, why won’t they do the surgery and have his tonsils out?
I will pray for him and u
If you have the money to pay without insurance they will do more for you a lot of times.
Did u say theres 6 month wait to get his tonsils out?!
Sounds like its getting serious there has to be situations that would go ahead and take the tonsils out right now!! It s not right hugs
it is really weird what they will delay ... even in kids... I was running a high fever etc... had not eaten in weeks .. basically had a ruptured gall bladder (I know totally unheard of right???) .. this was after 7 years of gallbladder attacks they would also do nothing about... 3 days later I was back in the ER and got admitted ... I was in liver failure by then ... 2 days later surgery .. 3 hours open gallbladder surgery... another 3 days in hospital sent home.. still in liver failure (blocked bile ducts) readmitted ... another 6 days in ... My brother back in 1985 similar to what Emily is describing he had massively swollen tonsil for 3 years they said they could not take them out until the swelling went down ... started at age 11 (they never went down) age 14 he stops breathing at school. rushed to the hospital ... intubated .. after a week in the hospital they finally remove the tonsils... and in my brother's case it ended up being cancer all along... I don't trust dr at all ... you have to walk a thin line with them .. assertive but not crazy .. it is so hard ...
😢🙏
Don't they have a children's hospital in Denver. I have a friend who's daughter goes there.
Everything is slow with insurance. I wanted to get a test done several years ago and my insurance wouldn't pay for it. There was no way to appeal it at all. So never had the test done. It would have given my doctors more info on my condition, but these insurance companies are so strict with paying out. I follow you on IG, so I know Griffin is doing a bit better now. I pray that you guys get answers.
there are all kinds of ways to appeal ... several levels in fact... this was actually one of the good things about Obamacare... of course it depends on what insurance you have ... there is usually 2 agency level appeals; and then a state and federal appeal for anything off a market place or business insurance... Medicaid you have 2 levels then court.. but if the dr have done their documentation you usually win ... yes it is a massive pain in the butt ... I actually avoid going to Doctors now over the hassle unless it is way important
@@lorettatheibert1663 Maybe in some circumstances, but with this test specifically I was told there was no way to appeal. When I spoke to the insurance then, this test was considered "experimental". I asked about appealing and he said with this test specifically there is no appeal process available. /shrug It's a very specialized test that at the time was only being done at the teaching hospital in the city. Edit: I posted a link, but it looks like UA-cam hid the comment. Any way it was a known issue with autonomic testing. Insurance companies don't cover it anymore.