I love how the children's hospital is called "Starship"... admission to Starship when you're sick, sounds like you're getting beamed up to space! It's rather creative!
I am from Nepal. My son has hydrochephalus. He has gone through 14 plus surgery/procedures within a year. He is finally stable after a year of struggle. He is 22 months old now but he is unable to hold his head and to crawl or walk. I carry him everywhere I go. But he is a very happy kid. He has good appetite. In addition to these conditions , he has cerebral palsy. Nepal does not have enough and good health centres but we are trying our best to make him alright with whatever we have in our country. We love our son. After seeing this video, I have hope that one day my boy will be speaking, walking and holding his head high in the best way possible. I want him to do good. I respect the mother in this video who has inspired me so much. Lots of love to family :)
Ella with that statement reminds me of an old soul... She's breathing life into two beautiful people to take her on... and to ultimately give them the strength to live... something that comes natural to her to teach those around her to grow and love and that everyday is a blessing... no matter your plight
That's wonderful. I myself am quite disabled because of multiple illnesses and feel so blessed to have a partner that is also my caretaker. People like yourself are truly wonderful. I wish the best for you and your family.
Kat -- my heart goes out to you and your husband. To loose a baby at 37 wks is so tragic. Then to have Ella come into the world with all her health challenges. You have the perfect name as you are a Mountain Kat of strength.
I felt every bit of what you said mom, I too have a child with very similar struggles. The checking them constantly, the seizures, the fear of more brain damage. It is very real. You have to live it to know the pain. God Bless
What a freakin phenomenal mother. she deserves all the praise in the world & so much respect. I can’t imagine at ALL how difficult & just exhausting & heartbreaking & every other emotion really, it must be raising your child when she has those tough obstacles in her way. Poor little girl. Bless them all :/
❤ Ella is Gorgeous!! So darling, my goodness. My love to the family. What an excellent, and strong mama that you are. I do hope that you make time for yourself, when you are able. Sendin love...
Wow!! You’re an incredible mum!! We have just learned that our healthy 11yr old daughter now has epilepsy and our world has been turned upside down.. Watching this has made me realise how strong I can/need to be for my daughter. Thank you so much for sharing your story! You’re so strong māmā ❤️ I can relate to you on so many levels but not as much as what you have been through. Kia Kaha Whanau xxxxx
Love that you made such a big move for the family, it looks a lovely house and environment. Ella is a little star 🧚🏻♀️⭐️ and you are an Amazing Mummy. You have a great insight into the challenges you are facing together.
Wow Kat, I’m so inspired by your outlook, especially the way you approached Ella when she was hurting herself! I imagine she felt very seen and well guided in that moment- how wonderful to have mom be so in charge at a time like that! I wish we could be friends ☺️
I am 26 years old and I was a 29 week premature baby and I have Epilepsy a history of seizures but take medicine to control them and haven't had 1 in 10 years and have Hydrocephulus and a shunt stent I had 27 revisions before the age of 5 and my very last 1 before my Highschool graduation and I also have Scoliosis and had surgery for that
Can i ask where you from and what type of medicine you take. My sister also has been diagnosed with epilepsy, unfortunately her medicines dont seem to be helping her that well.
The kids I was a counselor for at summercamp the last 2 weeks took Orifil to control his Epillepsy and he hadn't had a seizure in a long time. He had 3 different kinds of orifil though. Little balls like you'd find in a capsule, a tablet/pill and a liquid.
I have epilepsy too and it wasn’t fully controlled until I was around 14 before that it was just finding the right dose of the medication I take. So a lot of EEG’s I had to get to that point😅
that's so amazing to hear! hydrocephalus always seems to be portrayed as a hopeless disease. people are told their children will never "thrive", or even survive the next few hours after they're born. I wish there were more stories like yours and Ella's out there to show it's not always a death sentence.
Ella is a beautiful child. I also have cerebral palsy and hydrocephalus. I was officially diagnosed with epilepsy when I was 10. I was 3 months early when I was born. I am a triplet. We were each 2lbs.
I just love this chanel. I still cant believe ive just found it 🥰 so much love to all the epic kiwis out there telling their amazing stories and also to the creators of these docos ❤❤❤
I am completely addicted to this channel! Im from the eastern part of the U.S. and wish we had a channel like this here, and as much support that they have (New Zealand) over there! They seem to have a fairly large disabled population there, with amazing programs and support! We have some here, but mainly for adults, and that too is limited..anyways, im having myself a "attitude marathon"! 😊✨
She’s an absolute sweetheart and also lucky to have a mom like her. Also my Nana (grandmother) helped me with mine when they were little so this story touches my heart ❤️
Good for you Cassandra! I hope your shunt lasts for the rest of your life. My daughter is 49 years old and had 5 revisions but one shunt lasted 18 years and the one she has now has lasted 23 years!!! Isn’t that great? Shunts are so much better now than when she was born in 1971. She was lucky not to have spina bifida.
@@smc130 23 years is great. My son had a shunt inserted two years ago aged 8. I’m really hoping it lasts for life 🤞. He had his put in because a tumour had compressed his ventricles. The tumour has been removed, so it’s possible that if he had problems with the shunt they would take it out and not replace it.
Hugs for mum! This is so hard, I also have a girl with disabilities 5yrs now and a little boy 3. The bit where she said that everything the boy does is a surprise i can completely relate to! He up and walked at 10months and I was happy and sad, sad because my daughter was not walking yet and her little brother just overtook her. It can be very confronting to see the difference every day
Just awesome! Your an inspiration and I know you have given strength and courage for your Angel to face her future.May God’s blessings be with you always. X
This is good I like how parents know how too deal or try to deal with their kids disabilities and I like how some parents have disabilities or couples and they put up with eachother love it and I have a learning disability so I know how these videos are like it is nice too watch people go throught different or same disability that we all go through love this video love it
I work in the schools with children who have disabilities. The preschools are inclusion so you have typical children along with children with disabilities. We accommodate the classes room for each child's special needs. I had a child in my classroom who had Osteogenesis Inperfecta which is known as brittle bones. It was a challenge while educating the other childern about brittle bones. I love my job and would have nothing else. These children mean the world to me seeing there little faces light up everyday brings joy to my heart.
Kat...you're an AMAZING mom!! And Ella is absolutely beautiful! Don't let anyone tell you otherwise :-) I myself have hydrocephalus. (You might consider me a hydro-dinosaur. I'm in my 50s if you want to believe that!! ) And I have seizures to top it . Here's hoping that Ella lives to be 50+. Love from the USA!!
I will be 21 in April and have had epilipsey since I was 8 but just absence seizures they have amazing doctors here in the UK might be worth coming to check them out
I pray that you do get the help you need. As for me there something wrong with my brain. I fell at 2 year old from a moving car. I have sezuire tremors. And till this day no doctor can find out. Now i am 40 years nothing. I pray that god help you in so many ways. God bless everyone
Just want to send a big hug to the young mom! She is doing amazingly well. I have cerebral palsy too. I am 56 years old . My CP is very slight in comparison to Ella’s but I understand her mom’s fears.
GOD BLESS YOU what beautiful gifts from GOD my son was born 28 weeks he has all the same things he's now 46 yrs old it's not always easy but it has been all worth it.....
Ella is adorable! Prayers for her ! You are an amazing mom! Great granny you are a rock star and daddy you show that laughter love like she is your one and only princess! I pray for everyone who are challenged and I pray your those who care for them 🙏 Someone go give this mom a massage and a spa day at home, as she would never leave for a full day to go take a break! Allah is with you Always
I have something very similar to hydrocephalus! It's high pressure but in a different way. Its called idiopathic intracranial hypertension and it's caused me to have a shunt just like sweet Ella!
I think the hardest part about the parenting in this situation would be to determine what's just bad behavior and needs discipline. You seem to be doing well.
I think discipline is different to maybe even her 2 year old brother. Shes mad she cant say what she wants at 5. She is 5 and her brain wants to talk as a 5 year old and when people keep tryong to guess im sure thats hard. Add in thats daily and maybe a few times a day. I bet we all would get mad. She doez knoe nog to hurt others so now they have to find ways to help. I hope shes good enough at some point that a computer etc can hdlp her say what she wants, why shes sad etc.
What a beautiful little girl, full offight and zest for life. There are OT's around that can help with a therapy for calming those sensory issues. Also Autism experts may provide an insight into the self harming. There is also a possibility that what looks like SHB could be seizure activity instead.
I used to live with a shunt until 2017 then I had my 4th hydrocephalus and they couldn’t replace my shunt so they performed another surgery to drain my spinal fluid and I’ve been shunt-free since then. But a couples month ago I’ve had like a tiny tiny little stroke and since then what happens is I can’t use my right hand properly and I cannot write anymore.
I also have epilepsy and I take ZOINSIAMIDE 100 mg but you could ask your neurologist about it and if it could help or something like it. God Bless all of You. And she can do anything anyone else can do
I also have MS and DDD which I had to have back surgery for and I also have high blood pressure and high cholesterol, glaucoma and carpal tunnel. And I'm a mother to 2 beautiful children. I can't work and I have severe pain but I keep Fighting everyday because I would do everything for my children and yes I have my bad days but I just take my pain meds and try to be the best mom I can be. And I know with a strong family you guys can get through anything.
Such a sweetheart n what an awesome mum . Sending you lots of hugs . Champion mum, you are an inspiration to many. Kia kaha.
Thanks for your support!
What a beautiful post. 💖
Omg sorry still didn’t watch the all video but my name is Ella and I have cp too
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I love how the children's hospital is called "Starship"... admission to Starship when you're sick, sounds like you're getting beamed up to space! It's rather creative!
I am from Nepal. My son has hydrochephalus. He has gone through 14 plus surgery/procedures within a year. He is finally stable after a year of struggle. He is 22 months old now but he is unable to hold his head and to crawl or walk. I carry him everywhere I go. But he is a very happy kid. He has good appetite. In addition to these conditions , he has cerebral palsy. Nepal does not have enough and good health centres but we are trying our best to make him alright with whatever we have in our country. We love our son. After seeing this video, I have hope that one day my boy will be speaking, walking and holding his head high in the best way possible. I want him to do good. I respect the mother in this video who has inspired me so much. Lots of love to family :)
I hope the best for your son and your family, you have such a beautiful love for him.
Ella took my breath away when she told her father, "You're a beautiful boy." Lucky, dad!
Ella with that statement reminds me of an old soul... She's breathing life into two beautiful people to take her on... and to ultimately give them the strength to live... something that comes natural to her to teach those around her to grow and love and that everyday is a blessing... no matter your plight
Same Dad who made a guest appearance in this vid & who moved out leaving the mother to cope 24/7 with the help of a grand mom.
Ty......Doesn't matter at this stage in life,,every child should feel their their are their hero's
My wife has cerebral palsy she does really well we have been married almost 15 year. We have 3 boys that we raise.
That's wonderful. I myself am quite disabled because of multiple illnesses and feel so blessed to have a partner that is also my caretaker. People like yourself are truly wonderful. I wish the best for you and your family.
Bless you and your family!
Jesse, I have CP, too.
Sweet Ella having a color doll just melt my heart. Goes to show what an amazing mother this woman is. Best of luck to your beautiful family.
Kat -- my heart goes out to you and your husband. To loose a baby at 37 wks is so tragic. Then to have Ella come into the world with all her health challenges. You have the perfect name as you are a Mountain Kat of strength.
I felt every bit of what you said mom, I too have a child with very similar struggles. The checking them constantly, the seizures, the fear of more brain damage. It is very real. You have to live it to know the pain. God Bless
You both are warriors and I think you’re amazing! 💖
What a freakin phenomenal mother. she deserves all the praise in the world & so much respect. I can’t imagine at ALL how difficult & just exhausting & heartbreaking & every other emotion really, it must be raising your child when she has those tough obstacles in her way. Poor little girl. Bless them all :/
Love the black baby doll. Wonderful mom and beautiful family. Hopes for a wonderful life for Ella
❤
Ella is Gorgeous!!
So darling, my goodness.
My love to the family. What an excellent, and strong mama that you are.
I do hope that you make time for yourself, when you are able.
Sendin love...
Dear Ella,
I don't know you.. But i wanted to tell you.. You are so gorgeous! A beautiful strong fairy! Never give up.. Follow your heart and dream!
Wow!! You’re an incredible mum!! We have just learned that our healthy 11yr old daughter now has epilepsy and our world has been turned upside down.. Watching this has made me realise how strong I can/need to be for my daughter. Thank you so much for sharing your story! You’re so strong māmā ❤️ I can relate to you on so many levels but not as much as what you have been through. Kia Kaha Whanau xxxxx
What a wonderful family. A great mum and the nan is a treasure.
Love that you made such a big move for the family, it looks a lovely house and environment. Ella is a little star 🧚🏻♀️⭐️ and you are an Amazing Mummy. You have a great insight into the challenges you are facing together.
What a beautiful child! I hope she can work through some of her problems and have it a bit easier.
What an absolutely astounding mother and nana. They're so strong and I wish them all the best. I hope Ella beats everyone's expectations
Its great that their father is with the kids, and you all are a lovely family!!
he left them, he showed up for the cameras.
@@marilynwillett804 I think ill have to watch this video.
Wow Kat, I’m so inspired by your outlook, especially the way you approached Ella when she was hurting herself! I imagine she felt very seen and well guided in that moment- how wonderful to have mom be so in charge at a time like that! I wish we could be friends ☺️
What a beautiful and precious family. I'm sending all of you prayers for hesling, peace, joy, prosperity in the mighty name of Jesus.
Ella is so adorable! my heart is gonna melt
You have a beautiful grandma and she's such a sweetheart 💗
I am 26 years old and I was a 29 week premature baby and I have Epilepsy a history of seizures but take medicine to control them and haven't had 1 in 10 years and have Hydrocephulus and a shunt stent I had 27 revisions before the age of 5 and my very last 1 before my Highschool graduation and I also have Scoliosis and had surgery for that
Alexus TURNER sounds like you can relate to Ella. Both warriors.
Can i ask where you from and what type of medicine you take. My sister also has been diagnosed with epilepsy, unfortunately her medicines dont seem to be helping her that well.
The kids I was a counselor for at summercamp the last 2 weeks took Orifil to control his Epillepsy and he hadn't had a seizure in a long time. He had 3 different kinds of orifil though. Little balls like you'd find in a capsule, a tablet/pill and a liquid.
Alexus TURNER my goodness wow
I have epilepsy too and it wasn’t fully controlled until I was around 14 before that it was just finding the right dose of the medication I take. So a lot of EEG’s I had to get to that point😅
Little Ella -- against all odds she will succeed. Beautiful family, Strong Mum. Sending you lots of hugs from Baltimore, MD. in the United States.
What a beautiful family - Ella is awesome - as are you all...great gran included. Love from Scotland.
She’s so cute and that mom is amazing
This mother is amazing and such an inspiration! My heart goes out to your whole family and the love is so real!
What a lovely family mom and great grandma
Kat you are a wonderful mother. Ella you are a precious girl. Prayers to your family for healthy lives and a beautiful future.
Ella is so beautiful; the whole family is so good looking. I'm sorry for the loss of your first baby Emily.
What a beautiful little girl!!!
What a very precious children you have
You go mom! You are such an inspiration!
Kat, you are so amazing! Everything you and your ex have been through! What a strong woman. Standing ovation.
My sister also has cerebral palsy so this was perfect for me to watch xxx
I will b 31 in September and also have hydrocephalus. It's not easy but its made me stronger.
that's so amazing to hear! hydrocephalus always seems to be portrayed as a hopeless disease. people are told their children will never "thrive", or even survive the next few hours after they're born. I wish there were more stories like yours and Ella's out there to show it's not always a death sentence.
Amanda Allen I also have hydrocephalus I’m 13....
You're an amazing Mama ❤️ and you have a beautiful little family. Ella is so adorable
Ella is a beautiful child.
I also have cerebral palsy and hydrocephalus. I was officially diagnosed with epilepsy when I was 10. I was 3 months early when I was born. I am a triplet. We were each 2lbs.
what a lovely little girl & her beautiful family. All the best ♥
What an incredible family. I love this mother’s love and her kids determination!
Attitude is truly a good channel the ppl on here are showing humanity at its finest and i love it 😍
Everyone is so brave, I loved this story.
I was born with hydrocephalus 32 years ago in September of 1988..it's not been easy but it has made my life stronger
I love the great grandmother! What a gift she is for the family!
you are a strong lady. our prayer of peace and constant strength to your family.
I just love this chanel. I still cant believe ive just found it 🥰 so much love to all the epic kiwis out there telling their amazing stories and also to the creators of these docos ❤❤❤
“You are a beautiful boy”
I am completely addicted to this channel! Im from the eastern part of the U.S. and wish we had a channel like this here, and as much support that they have (New Zealand) over there! They seem to have a fairly large disabled population there, with amazing programs and support! We have some here, but mainly for adults, and that too is limited..anyways, im having myself a "attitude marathon"! 😊✨
Ella is absolutely gorgeous. I wish her and her family the very best.💜
She’s an absolute sweetheart and also lucky to have a mom like her. Also my Nana (grandmother) helped me with mine when they were little so this story touches my heart ❤️
What a lovely grandmar for this lady to have!
Thank you for sharing...i pray for the best for you all!
Im an adult with epilepsy and mild cerebal palsy good luck to you r daughter growing up she has endless possibilities
I have hydrocephalus secondary due to spina bifida and I have never had anymore surgeries since birth and I'm almost 25
Good for you Cassandra! I hope your shunt lasts for the rest of your life. My daughter is 49 years old and had 5 revisions but one shunt lasted 18 years and the one she has now has lasted 23 years!!! Isn’t that great? Shunts are so much better now than when she was born in 1971. She was lucky not to have spina bifida.
@@smc130 agreed
@@smc130 23 years is great. My son had a shunt inserted two years ago aged 8. I’m really hoping it lasts for life 🤞. He had his put in because a tumour had compressed his ventricles. The tumour has been removed, so it’s possible that if he had problems with the shunt they would take it out and not replace it.
Aww this family has been through so much.
I do take my hat off for you as mom. I am 36 years old and have got exactly the same 3 things. Just be strong.
Hugs for mum! This is so hard, I also have a girl with disabilities 5yrs now and a little boy 3. The bit where she said that everything the boy does is a surprise i can completely relate to! He up and walked at 10months and I was happy and sad, sad because my daughter was not walking yet and her little brother just overtook her. It can be very confronting to see the difference every day
What a beautiful family. I pray Ella keeps getting stronger
Carrie Bizz drug addiction results
She is adorable. I hope things go better dor her
Just awesome! Your an inspiration and I know you have given strength and courage for your Angel to face her future.May God’s blessings be with you always. X
Bless this beautiful family ❤️
This is good I like how parents know how too deal or try to deal with their kids disabilities and I like how some parents have disabilities or couples and they put up with eachother love it and I have a learning disability so I know how these videos are like it is nice too watch people go throught different or same disability that we all go through love this video love it
I work in the schools with children who have disabilities. The preschools are inclusion so you have typical children along with children with disabilities. We accommodate the classes room for each child's special needs. I had a child in my classroom who had Osteogenesis Inperfecta which is known as brittle bones. It was a challenge while educating the other childern about brittle bones. I love my job and would have nothing else. These children mean the world to me seeing there little faces light up everyday brings joy to my heart.
Kat, you are an amazing mum. Be sure of that. Ella is a wonderful super little girl ! Huge kiss from France
Incredible Mama Kat God bless you and your family. Amazing story
What a courageous and beautiful little girl!!!
So nice to have mom with you
Kat...you're an AMAZING mom!! And Ella is absolutely beautiful! Don't let anyone tell you otherwise :-) I myself have hydrocephalus. (You might consider me a hydro-dinosaur. I'm in my 50s if you want to believe that!! ) And I have seizures to top it . Here's hoping that Ella lives to be 50+. Love from the USA!!
Hydro-dinosaur lol I love that 😂🥰🥰🥰
You are an amazing mum! Absolutely amazing!
What a wonderful little family ❤️❤️❤️❤️
I wish her a lot of health.
Great family ! Beautiful children.
Awwwww lovely family and lovely nana.
Such a great mum!
Watt amazing mum and love the kids they are so cute and love the family and sending my love to the family and hugs ♥️
I will be 21 in April and have had epilipsey since I was 8 but just absence seizures they have amazing doctors here in the UK might be worth coming to check them out
I’m so overwhelmed with emotions, because my little boy has the problems.
I’m glad they have a great mom
Thank you for sharing your story!
I pray that you do get the help you need. As for me there something wrong with my brain. I fell at 2 year old from a moving car. I have sezuire tremors. And till this day no doctor can find out. Now i am 40 years nothing. I pray that god help you in so many ways. God bless everyone
Just want to send a big hug to the young mom! She is doing amazingly well. I have cerebral palsy too. I am 56 years old . My CP is very slight in comparison to Ella’s but I understand her mom’s fears.
GOD BLESS YOU what beautiful gifts from GOD my son was born 28 weeks he has all the same things he's now 46 yrs old it's not always easy but it has been all worth it.....
How is he doing? My son was just diagnosed with this
My daughter was full term with hydrocephalus and has CP. she’s now 49 years old and has a few gray hairs I tease her about!
You are all amazing .what a lovely family *
What a wonderful team you are x
Ella is adorable! Prayers for her ! You are an amazing mom! Great granny you are a rock star and daddy you show that laughter love like she is your one and only princess! I pray for everyone who are challenged and I pray your those who care for them 🙏 Someone go give this mom a massage and a spa day at home, as she would never leave for a full day to go take a break! Allah is with you Always
I have something very similar to hydrocephalus! It's high pressure but in a different way. Its called idiopathic intracranial hypertension and it's caused me to have a shunt just like sweet Ella!
That is one STRONG lady. All of God's blessings.
You are an incredible parent😍
Ella's a little sweetheart
I think the hardest part about the parenting in this situation would be to determine what's just bad behavior and needs discipline. You seem to be doing well.
I think discipline is different to maybe even her 2 year old brother. Shes mad she cant say what she wants at 5. She is 5 and her brain wants to talk as a 5 year old and when people keep tryong to guess im sure thats hard. Add in thats daily and maybe a few times a day. I bet we all would get mad. She doez knoe nog to hurt others so now they have to find ways to help. I hope shes good enough at some point that a computer etc can hdlp her say what she wants, why shes sad etc.
Poor poor woman she is a amazing mum too
Amazing woman and family. Not many dad help out.
he doesn't he left, according to a commentor.
Wow Ella's so pretty ❤
Supermom raising the personification of strength and resilience
What a beautiful little girl, full offight and zest for life. There are OT's around that can help with a therapy for calming those sensory issues. Also Autism experts may provide an insight into the self harming. There is also a possibility that what looks like SHB could be seizure activity instead.
I used to live with a shunt until 2017 then I had my 4th hydrocephalus and they couldn’t replace my shunt so they performed another surgery to drain my spinal fluid and I’ve been shunt-free since then.
But a couples month ago I’ve had like a tiny tiny little stroke and since then what happens is I can’t use my right hand properly and I cannot write anymore.
Always amazing parenting!
I also have epilepsy and I take ZOINSIAMIDE 100 mg but you could ask your neurologist about it and if it could help or something like it. God Bless all of You. And she can do anything anyone else can do
I also have MS and DDD which I had to have back surgery for and I also have high blood pressure and high cholesterol, glaucoma and carpal tunnel. And I'm a mother to 2 beautiful children. I can't work and I have severe pain but I keep Fighting everyday because I would do everything for my children and yes I have my bad days but I just take my pain meds and try to be the best mom I can be. And I know with a strong family you guys can get through anything.
Ur a great mom. Nice family! Put God First.
Helena is a blessing