Living with autism in London- BBC London
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- Опубліковано 29 чер 2022
- What's it like living with an invisible disability in London? In the UK one in 100 people are on the autism spectrum and there are around 700,000 autistic adults and children. (Source: National Autistic Society)
Barrington Campbell was diagnosed as autistic at 30 years old. Growing up he said he struggled making friends and felt isolated.
Five years later he's created Kagai Games, designed to provide tabletop games and events for people with social anxiety. He said: "I wanted to provide a space that was inclusive for everyone with social anxiety."
Video by Gem O'Reilly
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My boyfriend was diagnosed with Autism 2years ago and he just told me that recently, we are dating for half a year now..that explains why he doesn't talk much but he's starting to talk more. I'm watching this to learn and help him out so I can take care of him too.
Respect to you for trying to help
This is so sweet of you :)
❤
@ReblexianGuyhow do we know that we have autism?
Tk care? Who wil take care of u l
As an autistic 29 year old. It is incredible lonely being autistic no friends no relationships. Social interactions is nighgmare for us Lot of society don't understand this.
I am 29 and just been diagnosed, it explains alot
it is i know what you mean
So sad we can be friends😊
Some of y'all don't want to get diagnosed which is the problem
How do u see your life as old?
I'm an autistic young adult, but with a big imagination. The real world can be a bit scary for me and I just wanna succeed, and have full support from my family and friends. I wanna do whatever i can to help people out and have a safe, happy life. 😔
I’m the same way dude. Especially since I have Asperger’s
@@MercSamurai09 I heard it has different characteristics like autism for extremely intelligent people. Least i have some responsibilities and know how to take care of myself.
@@KyloZach I do too. I’m just not 100% socially aware of what’s going on and I do have some struggles making friends
I got this big imagination, i even created a autistic superhero.
@@joaodasilva4174 That's awesome!
I am autistic and I find it very difficult to love in London because it is complete chaos most of the time. Work can be difficult to find and very demanding for someone like me and life here requires a lot of flexibility and negotiating tough situations, which I am very bad at.
I feel you. Big cities are ruthlessly cold. Nobody really understands what its like to live with autism but just know you're not alone. I've lived in London my whole life and have always felt different to everyone else
@@sunnyjim2655 I feel you guys. I have some traits, and I could never stand big cities. It’s always been my dream to relocate to Cyprus or Greece.
@@UltimateMoralizer I've been to Cyprus on holiday but it was too hot for me and i got sunstroke
I struggle with public transport in london, navigation is chaos for me and confuses me alongside the sensory aspect of it all, i've missed out on a lot of social opportunities.
❤
Trying to get a diagnosis here in America feels daunting af.
I'm 32 and I think I may have mild autism. I was voted most shy in high school. Students use to talk about how shy and quiet I was right in front of me. I had some friends but it was so difficult for me and I have to try so hard to be normal in front of them. Social situations are terrible for me, and I can hardly ever make eye contact, even with people I know like my brothers it's difficult. I have a difficult time connecting to people and social cues and am very socially awkward. I also think I have a tic where I'm always blinking my eyes or opening them up wide. A lot of times I feel my facial expressions don't match my emotions. I get really bad social anxiety and tend to take things personal when I shouldn't. I hate when people give me their attention and when eyes are all on me. I find it's hard for me to establish long lasting relationships with people. I'm so weird and always feel like I can't relate to others. Like why am I like this?
It can be anxiety, nervousness, and other symptomes about the autism spectrum, but that doesnt mean ur artistic… the best way to know it, is to get a diagnosis brother !
As an adult Autistic. It sounds like you are I experienced the same. I am a late diagnosed autistic. There's not a thing of mild if you are on the spectrum you just are. My advice is to call and get scheduled with a psychologist or psychiatrist and tell them you think you are but want to find out if you are or not. They will evaluate and give you the results some places take insurance so see if it's in network to save some money. But know you don't develop autism your born with it so if the results are yes that means you have always been and things were missed growing up by those around you and now you can get educated on how to help yourself and inform and educate those around you that you trust so you have support.peace and blessings to you hope it helps.
Yeay! Finally I can find someone who literally like me!!
You're not alone. I'm exactly like this too and it sucks trying to make friends
Be the best you can be. Don’t stop. Grind 24/7 so you can be who you want to be fam
I struggle with public transport in london, navigation is chaos for me and confuses me alongside the sensory aspect of it all, i've missed out on a lot of social opportunities.
The elite know that such things are a struggle and they keep these navigation lessons beheld for extracurricular trips that NTs go on.
They want you to be helpless like this. It's a whole game plan to keep those historically classed as undesirables from catching game, wind of opportunities, momentum, career direction or anything that would fully qualify a person to be a 1st class citizen (oficially everyone is a 1st class citizen but that is not at all how the world is designed).
THANK YOU FOR SHARING.
As an adult with autism, body language is an incredibly technical science of obsession to compensate for why much of it doesn't "flow" so natural - so there is an overcompensating with masking because that's gotten positive feedback from people. I absolutely have to remind myself to make sure to not over-speak answers and to ask questions about the other person to technically execute friendly engagement that otherwise wouldn't come very natural throughout a conversation beyond the initial small talk and greetings. Eye contact is often merely forgotten with a lot of internal technical analysis of the situation so this also requires reminders based on familiar cues to trigger those reminders. I often get lost in the thinking more than the anxiety, too passionate on some subjects which can turn off those less interested. I think small talk just doesn't seem to provide the same "energy" and "ice-breaker" effect for many autistics compared to nuerotypicals. Sometimes I never make it past the ice even after 10+ mins of conversation with someone new, just not happening.
It may sound very easy and glib, but after masking for most of my life and constantly berating myself for not doing a good enough job of fitting in, the most freeing thing I could do for myself was just let me be me
I think we’re all masking to an extent. Masking also involves not calling someone an idiot when the impulse arrises or not making a disgusted face when someone speaks of an embarrassing fact about themselves. None of us are really “genuine” and in a lot of cases it is for the best
Seems to me like autistic people are rather high on consciousness, hence the obsession on things like body language (i aint autistic but i def read body language more than i’d like to) and overthinking.
It’s a blessing if you can raise your serotonin enough so that that overthinking can not stress you out more than it should. People will view you as extremely intelligent if you make an understandable case for your views, views you’ve reached through overthinking.
I just stopped caring, because it's pointless. No matter what it'll never go away. Living trying to be "socially normal" all the time is exhausting and rarely shows any results. If people aren't going out of their way to socialize with you, don't stress yourself out for them. It's a hard truth but more people need to understand this and let go.
I used to get drunk to help me mask in pubs.
Now I've been sober for 2 years, I've started to notice more and more how masking is a selfless act that is more trouble than its worth
You put people at ease by trying to act less like yourself, to make someone else more comfortable, but at the end of the day, they're not gonna know how much effort and energy you drained to act the way you did around them.
It's better to be your authentic self than be an imitation. If people you know prefer the imitation, then they never really cared about you in the first place and they're a waste of time
As a late diagnosed autistic. The main problems and stresses I encountered came from the neurotypical society.
It is really is interesting that you were able to take your passion for table top games and share it with others. I think that a huge positive to being autistic is taking the passion and in-depth knowledge you have for something and sharing it with others. Connecting with others is always difficult for someone on the spectrum but to create something and share it makes it so much worth while
He loves board games. He is an awesome dude.
Well sign me up for D&D!! I love Dungeons and Dragons!
I love his skeletor shirt.
Does anybody know of any autistic groups in the UK for adults? It would be nice to meet or talk online with other autistic people.
Really helpful thank you
Why doesn't kids get the life they want to be happy without having to wait all the time!?
Thanks for letting us know your story 🥰
I simply cannot stand wearing headphones in public, yet I need something to drown everything out.
Blue tooth speaker, and everyone looking at me is my only real option. 😂
make sure it plays the most cringy music out there to estabilish dominance 😅
My son 3 and got diagnosed with autism on the 31st off October
But people with asperger are often so kind and polite. I would always prefer to have a neighbour or maybe also a friend who is open, honest and friendly, rather than some back stabing popular neurotypical person. At the end it is important who is good person to you.
I have Asperger’s and even though I generally don’t like people, I try to be as polite as possible.
I have high functioning Asperger’s which is a mild learning disability. I find it very hard to get a job if I get a job I find it very hard to keep the job. But in the U.K. the support for people with mild learning disabilities is not really there. I got my income support taken away from me as I went to a benefits meeting and they said I do not qualify for any benefits due to the strict rules the government put in place. I see all these immigrants illegal or legal getting free accommodation and benefits but the U.K. are not willing to help me. I can’t work in a fast paced environment. I also have high anxiety and take medication. Now they took away my benefits I now have to pay for them. But can’t get a job. The support workers I have had just do not really understand as they not really qualified. So I packed my bags just 3 years ago and said goodbye to the U.K. I been back for 18 days in July. First time in U.K. for 3 years. I will never ever go back to live in the U.K. if the U.K. won’t help uk people who are struggling in the U.K. But will help immigrants then you should be very very ashamed as lots of people in the U.K. are struggling and do not get the right help. U.K. people can sometimes not be very tolerant of people that are quirky or a bit different to the norm. but unfortunately. It should be equal opportunities in the U.K. but it’s not. Uk is not a fair country to live in. It’s not right to give the uk tax payers money to immigrants instead of that money going to help U.K. citizens in need of help and support. There are some good things about the uk but there is not enough good things. Please uk be proud to be British and be proud to help out British people in need to help. Well done to all the Asperger’s people who have a great life in the uk and have a decent support worker and have a job or have the right beliefs.
It's not a learning disability though? It's a developmental disability.
@@autisticzuko2750 Well if you are right then it means I have learnt something new.
Should’ve gone into an engineering field, lad…
@@autisticzuko2750it’s neither, it’s just a different brain structure.
@@Deco1ze Your brain being structured differently can be a disability. I'm autistic and I'd prefer if people (autistic and allistic) understood that there is nothing wrong with having a disability. There's no reason to erase that fact. My brain is different. that's fine. That's a disability? that's fine.
I am autistic and I find it in the difficult way.
LMFAO
How do u see life as old?
I disagree with what you said sir. You said, "autism is not who you are, but an aspect of your personality that you incorporate into your everyday life.".
I feel this comment could be very damaging to many autistic people.
If it a part of my personality, I can change it, because personality can be changed, moulded, shaped.
HOWEVER, I am autistic which means my brain has developed differently to that of a non-autistic person's. I cannot change my brain.
Most people with autism have sensory, emotional and cognitive dysfunction, and this dysfunction makes life VERY difficult to life 'normally'. They can be severely affected, be isolated with little or no friends or support, housebound because of their dysregulation, experiencing great levels of illness and distress because of it.
How indeed would a person incorporate this into their lives?
I think the way that you express this isn't accurate and is very misleading.
I do not have a need to change my personality, I have a malfunctioning brain, body and emotional system. Autism overload affects the nervous system, causing the malfunctioning and illness, and meltdowns, shutdowns and burnout.
With autism the rate of suicide is higher than the general population, and the life expectancy I have read in one research paper says is ON AVERAGE 20 years less than an non-autistic person.
Autism is not anything to do with a personality trait - this is false information.
I feel he's saying that after hearing neurotypicals say it, and it's said in a well meaning way but misses the mark because it's a bigger chunk of who you are than a "trait", it's a whole different set of wiring that feeds into many different thought processes. The best analogy I've read so far is it's like the operating system we're built on autism = linux, neurotypical = windows lol
❤❤❤ my 4 year old son has autism. Thank you for sharing this
being autistic it's difficult to express your emotions, your thoughts with others, and that's the responsibility of a friend, family and of course the society to behave the autistic people normally.
I am autistic I liked London as usually I just never connect
Curiously I noticed that most of problems was that I did everything myself
instead of asking for help
As an autistic person, I found London horrifying. I hated almost every moment. I really liked the park near the London Eye though!! But I don't have good gross motor skills, and didn't want to get hurt.
I liked going on the London Eye and seeing far far far. It was very cool.
@christopherdominic6699 kindly and I mean this in the nicest way possible......shut up :)
I find Birmingham stressful I try not to go into the noisier parts, it seems to be getting harder to cope with too over the years with all the traffic
I'm glad that some people can live happy lives with autism I can't I wish I could turn back time get rid of my autism with a cure
diagnosed a few months ago age 31 and this video made me tear up 😢
I'm trying to figure out who I am and how I can get back to work as I've been off sick
I’ve just been diagnosed at 29 and I too have a hard time accepting it
🙄
Same can we be friends ?
Lining in London that must be nightmare for your sensory issues , for just going round crystal peaks or town centre for a duration wears me out , gets me close to have a meltdown when it's busy , I would not cope living in London I would be having meltdowns left ,bright and centre and being so snippy.
There is much less social interaction though. I like it cos I can isolate myself and live in my own bubble
I LOVE YOUR SKELETOR SHIRT!!! 💜
I am an autist myself and living in a society where its ine in a million is truly complicated. Its like Doctor Who to me: I'm like a timelord wanting to fit in with a community that I never knew existed
Has he tried not living in London as a starting point? His quality of life will improve ten fold.
I am a autistic and I struggle to be accepted or communicate with people
The fight must go on !
€2000 for a diagnosis..
Self diagnosis will have to do.
I am also autism. Living in indonesia is harder than there
Big up
High time food, tech and parenting skills are examined!
well done for highlighting your gifts! next wear the t-shirt find your folk and share your gifts with them, negativity will only come from those who do not have your gifts!
I am autistic too . I love that Skeletor tshirt
I like board games also!
Best wish our struggle is hard
Damn now i understand why people get surprised when people gets surprised when people finds out am autistic😩💀
I am 29 years old just got diagnosed with autism I don't know how to socialising
This guy is just like me fr
I wanna does people with asd get on well in life my daughter has it and worried about her future
65 and diagnosed with autism in 1966. Neurotypical people are a pain in the rear.
wow! You’re the best girlfriend ever! ❤😊
I don't understand autism. They all look normal to me.
Autism isn't physical it's neurological, part of your brain, think of it that you can't look inside of someone's brain so you don't fully know what they go through no matter what they tell you
My 3 years old son has autism.I dont know what to do.
You just need to pay more attention,
Idk if I have autism but I am very anti social :( gets lonely
damn i think i have autisim too smh
I knew 100% he was diagnosed in adult by the way he was talking and seeing the camera
My son RittyRaj Autistic adult.
London is dangerous and expensive it's so much cheaper to live up north.
Irrelevant
@@Football.0321 super irrelevant 😂
The question for me is, who HASN’T got autism??
Neurotypical people... The majority of the planet...
Guys Tehe like button currently says 666
Writing from Washington DC, I will forever be grateful to Dr Isibor for his care and treatment for autism using Herbal treatment, stop aggression, improve growth and speech 💬💬 I feel so happy 😊 coming across Dr Isibor on youtube
BLM
Is autism a minor form of retardation
Well that’s odd… That would mean Albert Einstein was minorly retarded… I dunno about you, but that just doesn’t sound right… I think you’re projecting a bit.
It's a braindevelopment issue, but whether it's noticable through behaviour and how someone interprets the world around them varies given autism is regarded as a fairly wide spectrum
Over sensitivity and social anxiety are quite common. It doesn't mean you are stupid in fact most with autism excel at things they enjoy. Just very difficult to negotiate and interact with the outside world.
Yes
There’s no such thing as retardation
Quit calling it a disability.
You should all be ashamed of yourselves hiding behind a condition that doesnt exist!
It is a personality disorder not a severe disability.
I got Autism, and you wouldn't know if it was an condition or disorder, even if you did you're opinion is invalid cause you don't have autism.
@@user-kw8nq1se9z it depends on how far you are on the spectrum, thankfully for me im not that far on the spectrum and I can learn, for people under it more so higher levels it's a severe disability because you're mind cant think for itself, same for a person that has down syndrome
@@ChocolateCake-kp3il for shame!!
shame on you for that comment karma will be bad on you
Writing from Washington DC, I will forever be grateful to Dr Isibor for his care and treatment for autism using Herbal treatment, stop aggression, improve growth and speech 💬💬 I feel so happy 😊 coming across Dr Isibor on youtube
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