I just found you two. Thank you for doing this podcast. I got diagnosed recently. It took a year. You don’t get an MS diagnosis quickly. My first symptom was (is) a leg tremor where my legs will start shaking so hard- it stops me in my tracks. It feels like a seizure. It last for about a minute. If I don’t have something to grab, I will fall. And I do fall. I fell on a lamp. I said ok, that’s it. I went to a GP who heard me out, and he referred me to a neurologist. I finally got in and took several physical tests, and was sent for an MRI. The result was a brain lesion. The next symptom I had was optical neuritis. I woke up and my eye felt like someone was stabbing it. It was so painful that I was screaming. My husband ran in and he took me to ER. They gave me a steroid shot, and after several minutes the pain started to subside. I had blurry vision until the next day. I had to go to an eye specialist. He said that I had no vision loss. Thank God. Scared of that-it was a terrible symptom. The other symptom is I’m off balance and it feels like someone is pushing me over. But one of the worst (they are all bad) ones is that it is very hard to move my bowels. No matter what I do to help it, nothing works well. Right now, I’m in horrible stomach pain that I can’t function. I can’t eat. I feel bloated and full a lot. The pain doubles me over. This happens at least once a week. I’m embarrassed-I didn’t want to tell my husband, but I had to. The bladder issue is not painful, I just have an extremely urgent need to go. I’m 67. Apparently, that’s not the typical age range to get diagnosed. Stress does aggravate my symptoms. But, my mom just died from bone cancer, and I was taking care of her. I have a 27 year old son with bipolar 2, and still having to be his caretaker. So yeah, lots of stress that I can’t do much about. Sorry so long! I don’t know anyone with MS to talk to. It feels lonely. So, I’m hoping to have this with your podcast. I look forward to listening to it! Peace. ✌️❤
Christina and Jamie-Lynn deserve so much credit for being honest and open about their struggles with this horrible disease. Especially having careers in an industry that is so image conscious. This was a great conversation and I will be definitely looking forward to more. Wishing both of them all the best.
Diagnosed with MS in 2021 😢 These episodes are so cathartic. You both are so strong! If you don’t have MS you don’t understand the fatigue,the pain, the anxiety of committing to anything, and the people doubting that you’re really sick. Thank you guys so much!
Both of you are amazing - thank you both for making this posldcast! How did I know? It had been a long series of bizarre symptoms as an 8-10 year old. Numb arms/legs/feet/face/tongue, frequent bladder and stomach issues, vision symptoms, wild fatigue, disorientation (the list went on) It all hit pretty hard, pretty young As I got into my teen years, I got onto searching The Holy Google. After looking at a few conditions, I felt pretty sure when I found MS. 10 years after I brought it up to my doctor, I finally got the diagnosis. Maybe I am psychic, or maybe I'm not a hypochondriac and just had a pretty good grasp of my body from an early age
Ladies I can not thank you enough for sharing your experiences so openly & honestly. Chronic debelitating illnesses are very isolating and dehumanizing and only a fellow sufferer would understand. Its been very therapeutic to have found your podcast...!! Much Love ladies & Many Blessings!! ( ◜‿◝ )♡
In 2005, I was a 29 year old single Mom, working full time, and going to school when my symptoms started. Had back problems and woke up my daughters first day of school that year with my mid section numb. Went to work thinking it was my back until it started traveling up and down. Months of testing later, was diagnosed with MS and fibromyalgia. I am a stay at home dog Mom now. I do not drive anymore because of my depth perception and peripheral vision. When I get out people would never know to look at me everything that's going on inside. I'm thankful to be doing well overall physically. It is very much mentally draining. Even now taking a full shower, shaving, and washing my hair is probably the most exhausting thing that I do.
After a decade of me making assumptions about the tingles in my feet (and at times up to my waist), a chiropractor said "I really think you need to ask your doctor about MS." I always assume I'm bothering doctors about nothing
Christina, I'm 5 yrs in. The first 2-3 were pretty rough but there nothing we can do other than live 1 day at a time. I know it sucks cause we lost the ability to do what we used to but we can't let this illness hold us back. We gotta take one step at a time when we can. I try to work on my truck to jeep me busy but it does get difficult due to ms but in still moving forward. Jeep your head up sis 🫶🏽love you all ✌🏽❤️
In airport- see if they recognize the "Sunflower Lanyard". There may be some available for free at the airport but I bought mine on ebay for a few bucks- put information on a card I inserted saying I had MS and took a medication that could cause seizures (Ampyra). I also had my contact information and health insurance. I was fast passed through security and check-in etc. Not just me but my entire party of 7. Made the whole trip possible. Depending on where you go there may also be reviews on the Eauns guide website- disabled access reviews. So incredibly helpful
Sorry to hear you're both feeling like s... at the moment. Christina you have a right to feel so down and angry with what is going on with you. You have been through so much in your life. Thanks again for this podcast you are both helping so many people.
I was diagnosed at the end of 2018. But I do feel like I was having symptoms a few years back on and off. My husband and I started a channel on UA-cam TeamMSRV it was so hard to do these videos, but we wanted to help people with MS or autoimmune symptoms. I wish I could've continued but it was to stressful for me. My anxiety was high and we were worried about people not understanding what we go through. Thank you for this podcast and I'm glad I'm not alone and you understand.
I hope Christina has since spoken with a psychologist or psychiatrist to vent about how the MS is effecting her well being. I think the more she can talk privately about what it's doing to her physically & mentally, the less emotional it will be to speak about it on the podcast. I can understand how she will get upset when she starts to get emotional speaking about how Fucking MAD it makes her feel when she wants to cry just thinking about certain things that MS has made her not be able to do anymore. This is my first time tuning in to the podcast, I do LOVE that u two women have formed such an Incredible Friendship with each other and decided to share on this podcast with everyone, to give a clearer idea of the hardships caused from MS. Awesome work ladies! MUCH LOVE for BOTH of U Wonderful Women.
This podcast brings to mind actress Teri Garr. She was officially diagnosed with MS in 1999. Is there any way you ladies might have her on your podcast? I'll always see Teri as sensational!❤
Thank you so much for this podcast. I was having a tough week, even cancelled some get togethers with some friends. It is a great feeling to hear that other people get this and to not feel so alone. Thank you again and hope you are having a good day.
First thing I did was Google brain lesions and it said death and it was the worst thing I could do, I never needed glasses before I Still struggle with those I can't drive myself anymore because of Black Outs I still can't get used to it all I feel helpless!
Psychologist said its good I know I'm not alone! Just seen Christina on tic tok about not enjoying life other day I am sorry but your not alone. I fell last December at a store and hit my hip,elbow and back of my head and couldn't get up while people rushed in and helped me, They called 911 on me while I Lay on the floor my son was outside waiting for me! I was just going in for a minute and vertigo hit me then boom, It was so embarrassing and felt so shitty for scaring my son! I then got Covid for Christmas, Last Summer I got shaky trying to spend a good time with my son going for a boat ride Then I got off and fell off boat dock into the water and broke my hand in 2 places going into the water almost drowned! Then ended up my son taking to hospital! So sick of hospital and therapies it is such a job I just don't want to be bothered with it all but I have to it sucks so Bad?
I just found you two. Thank you for doing this podcast. I got diagnosed recently. It took a year. You don’t get an MS diagnosis quickly. My first symptom was (is) a leg tremor where my legs will start shaking so hard- it stops me in my tracks. It feels like a seizure. It last for about a minute. If I don’t have something to grab, I will fall. And I do fall. I fell on a lamp. I said ok, that’s it. I went to a GP who heard me out, and he referred me to a neurologist. I finally got in and took several physical tests, and was sent for an MRI. The result was a brain lesion. The next symptom I had was optical neuritis. I woke up and my eye felt like someone was stabbing it. It was so painful that I was screaming. My husband ran in and he took me to ER. They gave me a steroid shot, and after several minutes the pain started to subside. I had blurry vision until the next day. I had to go to an eye specialist. He said that I had no vision loss. Thank God. Scared of that-it was a terrible symptom. The other symptom is I’m off balance and it feels like someone is pushing me over. But one of the worst (they are all bad) ones is that it is very hard to move my bowels. No matter what I do to help it, nothing works well. Right now, I’m in horrible stomach pain that I can’t function. I can’t eat. I feel bloated and full a lot. The pain doubles me over. This happens at least once a week. I’m embarrassed-I didn’t want to tell my husband, but I had to. The bladder issue is not painful, I just have an extremely urgent need to go. I’m 67. Apparently, that’s not the typical age range to get diagnosed. Stress does aggravate my symptoms. But, my mom just died from bone cancer, and I was taking care of her. I have a 27 year old son with bipolar 2, and still having to be his caretaker. So yeah, lots of stress that I can’t do much about. Sorry so long! I don’t know anyone with MS to talk to. It feels lonely. So, I’m hoping to have this with your podcast. I look forward to listening to it! Peace. ✌️❤
Wow! That is so much to take in! I pray for you to have some sort of peace with what you are going thru! ((Hugs))
Christina and Jamie-Lynn deserve so much credit for being honest and open about their struggles with this horrible disease. Especially having careers in an industry that is so image conscious. This was a great conversation and I will be definitely looking forward to more. Wishing both of them all the best.
Diagnosed with MS in 2021 😢 These episodes are so cathartic. You both are so strong! If you don’t have MS you don’t understand the fatigue,the pain, the anxiety of committing to anything, and the people doubting that you’re really sick. Thank you guys so much!
People don't understand. I'm headed to being homeless. I'm not able to work. Hence I can't afford life.
@@elizabethferrari1346😢I’m so sorry
@@elizabethferrari1346I'm so sorry this has happened to you. ((Hugs))
Both of you are amazing - thank you both for making this posldcast!
How did I know?
It had been a long series of bizarre symptoms as an 8-10 year old. Numb arms/legs/feet/face/tongue, frequent bladder and stomach issues, vision symptoms, wild fatigue, disorientation (the list went on) It all hit pretty hard, pretty young
As I got into my teen years, I got onto searching The Holy Google. After looking at a few conditions, I felt pretty sure when I found MS. 10 years after I brought it up to my doctor, I finally got the diagnosis.
Maybe I am psychic, or maybe I'm not a hypochondriac and just had a pretty good grasp of my body from an early age
Ladies I can not thank you enough for sharing your experiences so openly & honestly. Chronic debelitating illnesses are very isolating and dehumanizing and only a fellow sufferer would understand.
Its been very therapeutic to have found your podcast...!!
Much Love ladies & Many Blessings!!
( ◜‿◝ )♡
In 2005, I was a 29 year old single Mom, working full time, and going to school when my symptoms started. Had back problems and woke up my daughters first day of school that year with my mid section numb. Went to work thinking it was my back until it started traveling up and down. Months of testing later, was diagnosed with MS and fibromyalgia. I am a stay at home dog Mom now. I do not drive anymore because of my depth perception and peripheral vision. When I get out people would never know to look at me everything that's going on inside. I'm thankful to be doing well overall physically. It is very much mentally draining. Even now taking a full shower, shaving, and washing my hair is probably the most exhausting thing that I do.
My depth perception is off! I didn’t know that was a symptom. 🤷♀️
@@lab4389 it isn't always. I noticed a difference. The MRI showed a buildup on my optic nerves.
It is good, to be honest about the reality of not being perfect. You have more control than you think. Spot on girls. Purgatory will lesson.
After a decade of me making assumptions about the tingles in my feet (and at times up to my waist), a chiropractor said "I really think you need to ask your doctor about MS." I always assume I'm bothering doctors about nothing
Sending my love to both of you! ❤ I wish I could give you both a huge hug! 🤗 🌹
Sending soooooooooo much 😍. Feeling the same way but we HAVE to keep pushing. 💪
Christina, I'm 5 yrs in. The first 2-3 were pretty rough but there nothing we can do other than live 1 day at a time. I know it sucks cause we lost the ability to do what we used to but we can't let this illness hold us back. We gotta take one step at a time when we can.
I try to work on my truck to jeep me busy but it does get difficult due to ms but in still moving forward. Jeep your head up sis 🫶🏽love you all ✌🏽❤️
Every person with MS should listen to this podcast
I love you so much Christina!
Hang in there Christina
In airport- see if they recognize the "Sunflower Lanyard". There may be some available for free at the airport but I bought mine on ebay for a few bucks- put information on a card I inserted saying I had MS and took a medication that could cause seizures (Ampyra). I also had my contact information and health insurance. I was fast passed through security and check-in etc. Not just me but my entire party of 7. Made the whole trip possible.
Depending on where you go there may also be reviews on the Eauns guide website- disabled access reviews. So incredibly helpful
Sorry to hear you're both feeling like s... at the moment. Christina you have a right to feel so down and angry with what is going on with you. You have been through so much in your life. Thanks again for this podcast you are both helping so many people.
I was diagnosed at the end of 2018. But I do feel like I was having symptoms a few years back on and off. My husband and I started a channel on UA-cam TeamMSRV it was so hard to do these videos, but we wanted to help people with MS or autoimmune symptoms. I wish I could've continued but it was to stressful for me. My anxiety was high and we were worried about people not understanding what we go through.
Thank you for this podcast and I'm glad I'm not alone and you understand.
I am enjoying your podcasts. Subscribed.
Can you talk about the early symptoms? Or list them somewhere on this page? I can Google it, but like to hear the early symptoms you felt?
Hi Christina and Jaime, Christina I think these podcasts are therapy for you, you dont seem as pissed as you use to be ❤😊
I hope Christina has since spoken with a psychologist or psychiatrist to vent about how the MS is effecting her well being. I think the more she can talk privately about what it's doing to her physically & mentally, the less emotional it will be to speak about it on the podcast. I can understand how she will get upset when she starts to get emotional speaking about how Fucking MAD it makes her feel when she wants to cry just thinking about certain things that MS has made her not be able to do anymore. This is my first time tuning in to the podcast, I do LOVE that u two women have formed such an Incredible Friendship with each other and decided to share on this podcast with everyone, to give a clearer idea of the hardships caused from MS. Awesome work ladies! MUCH LOVE for BOTH of U Wonderful Women.
I ❤ this podcast! I just subscribed! Love you both!
This podcast brings to mind actress Teri Garr.
She was officially diagnosed with MS in 1999.
Is there any way you ladies might have her on your podcast?
I'll always see Teri as sensational!❤
Love After Lockup and Love During Lockup on WE, are so juicy😉
Thank you for creating this podcast🧡
Thank you so much for this podcast. I was having a tough week, even cancelled some get togethers with some friends. It is a great feeling to hear that other people get this and to not feel so alone. Thank you again and hope you are having a good day.
Thanks for this I feel alone and hearing your conversation.. Make me feel less alone and validated bless you both
❤❤❤ Thank you again for your openness about this struggle. I appreciate this podcast very much. 🎉 Have a great week!
Anyway Thanks to you both for doing this podcast help you do
Well!
I Can't sleep but always laying down!
I have optic neuritis and migraines alot especially when it rains?
I too choked over just saying MS
AARP Membership is open to all those over 50.
Wish you knew how it feels when you can’t do any of that. I’m sadly glad I won’t have any kids to pass this on to.
First thing I did was Google brain lesions and it said death and it was the worst thing I could do,
I never needed glasses before I
Still struggle with those I can't drive myself anymore because of
Black Outs I still can't get used to it all I feel helpless!
Psychologist said its good I know I'm not alone!
Just seen Christina on tic tok about not enjoying life other day
I am sorry but your not alone.
I fell last December at a store and hit my hip,elbow and back of my head and couldn't get up while people rushed in and helped me,
They called 911 on me while I
Lay on the floor my son was outside waiting for me! I was just going in for a minute and vertigo hit me then boom, It was so embarrassing and felt so shitty for scaring my son!
I then got Covid for Christmas, Last Summer I got shaky trying to spend a good time with my son going for a boat ride Then I got off and fell off boat dock into the water and broke my hand in 2 places going into the water almost drowned! Then ended up my son taking to hospital! So sick of hospital and therapies it is such a job I just don't want to be bothered with it all but I have to it sucks so
Bad?
Yup. Feels like Purgatory.
❤
Please read all of what I just said on the last comment please give this a chance please take it seriously