Let's talk

Welcome. Welcome to the UA-cam page of the year.
I was diagnosed with FND (Functional Neurological Disorder) in December of 2022. Since my diagnosis, I have been unable to refer to patients within my own country, Australia. While I can find information from both the UK and USA, very rarely from my own country.
When I established my UA-cam channel, it was intended to showcase my personal experiences. This includes domestic violence and chronic pain/illnesses. Recently, I've been diagnosed with Fibromyalgia Nerve Disorder (FND), a condition caused by traumatic lifetime events. The brain fails to send the necessary messages to my legs, leading to paralysis of lower limbs. This could potentially lead me to be wheelchair-bound. It's uncertain how long this will continue. To date, I have been unable to move my lower body entirely. This is where Jessica has emerged as a pleasant person. She will assist me in getting up from bed, help me with toileting, and I'm unable to shower due to the property I reside in, not being disability-friendly. Consequently, during these times, I require assistance with cleaning, which necessitates a bed bath. For those who may not be familiar with my term for a bed bath, it refers to the specialized cloth I utilize to wipe down every inch and every crevice of my body. This can be a challenging process due to its nature. Additionally, I have an SPC (supra pubic catheter), which means that under my belly must remain clean so as to reduce the risk of infection.Moving on from that, since acquiring this SPC, my infection rate has been quite high. That's a topic for another time. I've returned to my recent diagnosis and the FND. Despite having the strength in my legs to peel a carrot, I don't have the capacity. My wonderful carers come into play. Aside from assisting with my ADLs (activities of daily living), they cook for me.
Just take a moment to consider, "Before I was under coercive control, I distanced myself from family and friends." Now that I live with family, I'm able to socialize more frequently, which is benefiting my mental health. My carers are taking certain responsibilities away from what my family would have to do for me.This implies that I have quality time with the Famz. Otherwise, they would have to take a shower, wash their hands, cook, and so on. Ah, I'm not sure where I was heading with this. Oh dear, that's right. With FND added to the mix, my life is filled with physical pain, eating issues, memory issues, and much more. Looking back at my medical history, it turns out that the brain lost its ability to tell me when, how I needed to urinate. My bowels also become active. Sometimes, even when I'm not doing anything or eating, I can spontaneously defecate. I sometimes wake up with the worst smell because my brain forgets to signal me to go to the toilet. Despite having carers who are available 24/7, they're only available for 6 hours a day and 365 days of the year. I have 5 carers who aid me in surviving, sharing the responsibility.
I'm planning to conclude this discussion. I hope to incorporate my beautiful face into this video, possibly with additional or identical information that I've just spent two days crafting. My memory is rather faulty.
Thank you for your continuous support over the years. My channel has grown significantly each day, and it means a lot to me that I've increased my subscribers from 100 to now 117. Please share the word around.
I hope to see you all again soon. Despite the challenging times, I'm making every effort to capture snippets of life along the way. The environment with coercive control has affected my operations during the long 30-year period. A significant amount of time is spent controlling who you encounter, as well as your capabilities such as socialising. I'm returning to my social interactions, and now I am back with family who have been so understanding and patient with me. I appreciate and value your time and attention regarding my life.
Mwah, mwah. Please chat again soon.
Music compliments of: Turn Up The Watts
Musician: Jason Shaw
URL: audionautix.com
License: creativecommon...
#fnd #fndawareness #depression #anxiety #ptsd #trauma #complexspinaldisorder