My Bartonella Break Down! Yikes!
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- Опубліковано 24 кві 2020
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Understanding Bartonella Webinar:
• Understanding Bartonel...
Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
tmgmd.com/907-ticks-fleas-mys...
Best diagnostic testing:
www.galaxydx.com/
Mast Cell Activation Resources:
tmsforacure.org/
www.mastattack.org/
Mast Cell activation Facebook Support Groups:
/ mastc. .
/ 20707. .
Research Links:
1. Cat-Scratch Disease-Associated Arthropathy: onlinelibrary.wiley.com/doi/p...
2. Musculoskeletal Manifestations of Cat Scratch Disease: academic.oup.com/cid/article/...
3. Bartonella spp. Bacteremia and Rheumatic Symptoms in Pateints from Lyme Disease-endemic Region: www.ncbi.nlm.nih.gov/pmc/arti...
4. PCR Amplification of Bartonella Koehlerae from Human Blood and Enrichments Cultures: parasitesandvectors.biomedcen...
5. Rheumatological Presentation of Bartonella Koehlerae and Bartonella Henselae Bacteremias: A Case Report: www.ncbi.nlm.nih.gov/pmc/arti...
6. Bartonella Species in Blood of Immunocompetent Persons with Animal and Arthropod Contact: www.ncbi.nlm.nih.gov/pmc/arti...
7. Bartonella ssp. Bacteremia in Patients with Neurological and Neurocognitive Dysfunction: jcm.asm.org/content/jcm/46/9/...
8. Neurological Manifestations of Bartonollosis in Immunocompetent Patients: A Compositeof Reports from 2005-2012: www.lymepa.org/Breitschwerdt_J...
9. Cat-scratch Disease: An Unusual Cause of Combative Behavior: www.sciencedirect.com/science...
10. Hallucinations, Sensory Neuropathy, and Peripheral Visual Deficits in a Young Woman Infected with Bartonella Koehlerae: jcm.asm.org/content/jcm/49/9/...
11. Bartonella and Intraocular Inflammation: A Series of Case and Review of Literature: www.ncbi.nlm.nih.gov/pmc/arti...
12. www.galaxydx.com/bartonella-a...
→ SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
You are so strong! Thank you for sharing your story and being so open about what you've been through. Your stories have made me feel less alone... I was diagnosed with Bartonellosis the begging of March, and I know I have a long road ahead, but you make me hopeful.
Mackenzie Clinich Thank you! I always say that diagnosis is the biggest part even if treatment takes longer. This is such a hard illness to deal with but we would never be able to deal with it without a diagnosis. And there is lots of research, diagnostics, and hopefully more treatment options coming down the pike. Keep swimming!
Jake, I know your pain. 😥 I always remember the Ranger in Under our Skin, he said “People keep asking me what I took to get better? And I tell them I took - EVERYTHING! Keep fighting... x.
Steve Watson Thank you Steve! I’m still cooking and my doctors are still kicking for me too so for that, I’m grateful
I can relate hardcore to your challenges with disease. I also had Bartonella and a lot of other health issues so I really understand what it feels like to hit rock bottom! Keep up the good work Bartonella Babe!
Thank you so much Sam! I will just keep swimming
You're very strong and you're not alone. Keep your head up ❤️
Johnny Volvox thank you ❤️
last year when I was misdiagnosed with lyme, I had a bad liver reaction to the die off and the meds themselves. the part where you talked about feeling like everything might be the symptoms coming back really hit me. because my liver expanded from being normal sized to being really inflamed and then back to normal, I still have the occassional upper right side pain and everytime it happens I think "this is the one"
interestingly bartonellosis patients are more likely to have certain liver complications. now that we know what it is, it's easier to keep on top of blood testing and all that good stuff but the somatic memory is a powerful thing.
A Rose With Thorns well I’m glad you got a proper diagnosis! I think a lot of people with bartonellosis have been misdiagnosed with Lyme. It’s so hard to go through health scares. I hope you’re on a good road to healing ❤️
@@BartonellaBabe thank you so much! your videos have definitely helped a lot so far. I really appreciate the hard work and also the vulnerability that go into making them. 🥰
My doctor told me I had fat in my liver. This came out of nowhere. I have been going through a lot
My heart goes out to you. Since I’m struggling I’m bedridden
My heart goes out to you! It's truly horrible but we will get through this!
Honestly, this video was so powerful.
Al Shapiro thank you ❤️
I’m so thankful for you! I cry all the time too! You cry all as much as you need to. You’re so on top of your symptoms, I’m so lost as to what co-infection is causing my pulsating head, burning spine, and a host of other issues. I’m crying as I watch you, cause I know what you’re going through and I love your language! I don’t trust anyone who doesn’t curse. 💕💕💕😁
Bear W. Your comment made me laugh out loud! I don’t trust anyone who doesn’t curse either 😉 except maybe my grandma who is now passed. It’s very hard to tell what is causing what. Luckily I have my mom with me 24/7 and the two of us make a good team on that. My only recommendation, which you may already be doing, is to keep a detailed journal. Doctors can help but they’re not with you all the time!
Bartonella Babe so true! I’m about at my wits end with this. The pain is so much and I can’t think at all. I have my hubby, thank goodness. I know I need to call my doctor Monday cause it’s getting worse. I’m so sorry about your grandma, I was extremely close to mine too, she passed in 2003. 😢
@@sashaw.8231 even when we are at our wit's end, we still have more in us
Thank you for sharing this. Feeling awful stinks and I am sorry you are going through that. I went through something similar years ago before I knew about any of this. About 10 years ago I started doing a lot of wholistic things to help myself and I read about probiotics and that seemed like a good thing to me. Instead of taking probiotics in pill form, I learned to make them myself with fermentation. I learned to make kombucha, kefir, saurkraut, kimchi and sourdough bread. As I did this, I saw that a lot of gas was produced by fermentation and sometimes in this process you want that extra gas (it is what makes soda fizzy). To keep fermentation going (which creates the gas) you add sugar. As I watched this happen... all of the bubbles of gas forming in the food, it reminded me of the times that I had that experience so bad that I felt like I was going to explode. The next time it happened I tried the opposite. I figured if sugar formed the gas... taking sugar away might help calm it down-and for me it really did. It made a huge dramatic difference. I cut out pasta and flour... rice and a lot of stuff.. along with sugar or things that contained it. Once things got calmed down I added a little rice and fruit back in. That was a long time ago and now-I can usually eat what I want. Doing this also dramatically cut down on muscle and joint pain and improved my thinking process in a way that I couldn't believe. Now, I mainly get in a mess on holidays when I endulge in things I know cause this. I know it seems ridiculous that something so painful and serious could be controlled so easily and maybe your experience would be different but I thought i would mention it in case you hadn't heard of it before. I hope you feel better soon. Sabra
I would like to add that if your first thought was... screw you... if it was as easy as just changing my diet-I would already have done that... then I totally get it. I just wanted to share what had helped me with that particular symptom. And PS, Im glad you are able to cry and not ashamed of it.
Haha oh no that’s not what I thought at all! It was definitely clear that you were just trying to help and give me an idea in case I hadn’t thought of it before. When I first got sick, the first thing I did was go low sugar and cut out gluten. Unfortunately, I did not see any symptom relief and I continued to get even sicker with the mast cell activation. I know that sugar can be really inflammatory for some people though. Right now I’m on a very strict low histamine diet because that’s all I can tolerate and I actually can’t tolerate any fruit or nuts. The only less nutritious things I eat are rice and potatoes and I tolerate those very well and if I were to cut those out I would be 2 pounds LOL
I get these attacks in the morning. Soo effin painful
Oh honey I just ran out of Rifapin & am freaking!!! I’ve been sick since the 2nd year of pandemic & NOT getting better!!! I’m 70 & pray 4 death every day!!!😱
Keep fighting I’m struggling right now because I haven’t gotten a clean blood work done to diagnose me because my insurance thinks it’s all in my head, truth is my vision is messed up, bones hurt, my memory is out of place and I got the twitches and body jerks night sweats and colors that are abnormal. Eye pain floaters and everything. My llmd right now wants to start me on a plan but waiting for a lumbar puncture result. I feel your pain baby girl and just know you are the reason I am pushing forward and not giving up. With out you I never would of known that my cat scratching me last year could end up like this. Even tho I never had the typical stretch marks or lymph nodes my doctor said it’s that and my fillings and root canals. You taught me so much and I thank you and hope you beat this up. It’s ashamed how doctors,friends,family look at us and expect that we are fine but we hurt and please once again thank you for the information i truly got 100 love and respect for you hearts
Skinny Tripz I’m glad to hear you have an LLMD. That’s important and so is proper testing. Did you find my videos from searching cat scratch disease? I’m asking because the whole purpose of my channel is to raise awareness that Bartonella can cause chronic illness, not just cat scratch disease so it would be great if my channel was how you found out about it
Bartonella Babe yes it was I taken every test out there and doctors prescribed me tons of medicine and eventually sent me to a psychiatrist. I was searching for answers and looked at my cat so I typed in can cats cause Lyme disease. I saw your little head and clicked. Once you named all the symptoms I was having a light bulb blinked and I went on searching and then I realized my cat was a baby from a wild cat. I realized Bartonella and co infections come from array of ticks and then it said that cat scratch disease carries it. I was shocked because I never knew what kind of damage these co infections have. My brain isn’t all there but for some reason I got a encyclopedia of information from your videos that I can now study and hopefully be on my way to a remission so I can play with my son again.
@@wakabarz5880 Well that makes me so happy you don't even know! The funny thing is that in real life, I actually have a big head! lol. These are terrible illnesses but with perseverance and the right treatment, we can get there. The good thing about bartonellosis is that it only rarely causes long-term damage
Hahah the truth is we can’t see your body so the ratio of your head is unexplainable. I also have a big dome so welcome to the club.
Im in the same boat with you. Have you looked into the new SOT for Bartonella treatment?
Hi Henry. I have been tracking the treatment. With regard to Bartonella only (because I don't have Lyme so I don't really speak on Lyme) the lab has not published any studies on how they are finding the pathogen in the blood, how they are determining the species, preliminary in vitro data, rat/mouse models, etc. With new therapies, it's always good to keep a balance of open mindedness and skepticism. At this point, I would like to see more transparency from the lab
Iv been sick eight years.I feel your pain and know we can't give up.I went to Biologix and was treated for 2 weeks.It seems i have a mold problem as well and have heard that i need to get rid of this first.Phage treatment, herbals, and a lot of detox modalities have enable me to go back to work.....this is working for me.I hope you get better soon,thanks for the videos and never give up.
Everyone has their own unique MCAS triggers, & mine are not the same as yours. However, the burping thing, after several years of having it (yes, for hours & hours, sounding like a goat, every few moments, & in some cases *literally* every other exhalation, resulting in near or actual vomiting) I figured out the culprit was dye & excipients in food & prescription meds. Virtually *all* white pills from the pharmacy have red dye in them & are bleached white. Once I stopped taking about 6 of those pills, which ironically were for swelling, inflammation, GERD & stomach problems, the majority of the symptoms went away. Press on you Smirking Saucy Snarky Sarcastic Bloviating Bitchin Bartonella Babalicious Babe. Kudos to "Mom" for the support &...the casual work attire. :)
I will keep pressing on! Glad to hear you found your trigger. Excipients can be a killer
Just a suggestion but have you ever had your vitamin b12 levels tested? It’s well known that b12 deficiency can cause similar symptoms to both Bartonella and Lyme. I only ask because I have Bartonella but was also found to have a severe b12 deficiency, causing some pretty horrendous symptoms. I had close to 12 months treatment with antibiotics such as Rifampin, Doxycycline, Cefuroxime to name a few with little or no effect. I’ve been on intramuscular hydroxocobalamin injections, every other day, for 18 months now and have noticed a massive reduction in symptoms. I noticed from your instagram page that you’ve had an infusion of methyl b12, did it help at all? Most b12 gets excreted within 24 hours and intravenously will almost all be excreted rapidly. Injections are for the express purpose of providing a delayed release. There’s a Facebook group with thousands of members and b12 has helped them massively. You could also look into mold as mold suppresses the immune system and prevented healing.
Hope you start feeling better soon!
My B12 is actually normal and always has been. The methyl B12 was an alternative therapy for MCAS and was an hour long drip and I had to stop it 45 min in due to burning nerve pain so it didn't do what we wanted it it to do. I have also thoroughly explored mold and it is not an issue for me or for my house. I am fairly low in vitamin D and that could be exacerbating my symptoms so I am working on that but I feel very confident that bartonellosis is the primary culprit for all symptoms including the MCAS. But I am glad B12 has been helpful for you
Bartonella on its own can cause all of those crying fits, although the misery doesn’t help. My background is Lyme, Babesia duncani, Bartonella henselae, Bartonella quintana, Ehrlichia, Micoplasma Pneumoniae and HHV6 (also got Hepatitis C through plasma transfusion before they could test for it, but later had it cured.) All of this since childhood. Right now it’s the Micoplasma pneumonia that is giving me fits, although it could be that the others are making use of the golden opportunity to clusterf***, as these diseases generally do in their persister state. But I have the dilemma of struggling to breathe, while simultaneously knowing that I can’t go to the hospital, as I could never survive Covid-19 exposure. *sigh* Take care of yourself, as it sounds like you wouldn’t do any better with a cytokine storm than I would.
Take care of yourself as well! It's definitely a scary time for everyone and having a chronic illness on top of that is even more stressful!
I just started LDN 3 mg. SO we Weill c????🫶🏿