LATE STAGE LYME DISEASE (UPDATE 2019: TURNED OUT TO BE THE RESULT OF VERY SEVERE M.E.) // VLOG #51
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- Опубліковано 27 вер 2024
- Thanks for all the messages over the past months about if everything was alright and why there were nog vlogs anymore. I've not been able to reply but here's the reason why...
Thanks every single one of you for your comments and support, you guys are amazing. As I'm extremely overstimulated by electronics and cognitive tasks, I haven't replied but please know that I've read everything and it means the world to me.
Much love,
Praying for u black seed oil works for me
Have you looked into hyperthermia treatment? i've been in contact with a former patient of a clinic in germany called "st. georg klinic". She is lyme bacteria free now. it is very expensive. but it is the only thing so far..that is known to completely kill the bacteria. i am working on going there. hope you get healed..take care
I thought Lyme was curable with antibiotics.
@@BeingErikaWhite only if you're treated when you're first bitten and then for 1 month with high doses of doxycycline twice a day. However if you're genetically tested and your immune system does not recognize Lyme it may not work then either.
I was diagnosed in January 2020. Started juicing straight celery juice as recommend by Medical Medium in this video ua-cam.com/video/tHYGSlPxq8E/v-deo.html and feeling much better. Noticed the change in about 3 days.
I just found out I have Lyme and I’m in late stages as well.... I’ve felt like shit for so long and finally found out a few weeks ago myself. To all of us who have this crap, were all in this journey together, let’s hang in there, we can do this!
My tick bite was in the early 80’s.
My diagnosis was in June 2013.
@@MustangsTrainsMowers what cure are you taking?does it help?
@@MustangsTrainsMowers Found any remedies to help along the way? I've heard turmeric can help with inflammation - sometimes when my fingers or toes start getting cold I will make a cup! seems to help for a few
@@vividvisions693
I’ve been taking turmeric and Curcumin almost 6 years now.
@@MustangsTrainsMowers guessing it helps then !
Your video may have saved my mothers life.... because of you i had mom tested after she was written off as dementia. She tested positive! With treatment we are watching her become her again! I and my children also have the same disease❤️ thank you for THIS POST!
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
I have lyme disease as well. I was treated with the Cowden protocol and beat it once. I had my strength back and everything. I was doing yardwork at my dad and mom's house. The next morning I woke to see a tick on my shoulder. So I am on this journey again. If I can beat it the first time with God's help I hope to do it again.
YAY!!!
I’ve suffered for years, been through treatments. I was doing so good until I was under extra stress. Anyone that finds a way to get through this, a cure praying someday will be here. It’s so much.
You are NOT alone. I live with late stage Lyme's also. Thank you for your vlog. Very uplifting. Peace and light to you.
It Lyme, not Lyme’s.
I feel you. I've just been diagnosed with late stage chronic Lyme too. We have to keep fighting 💚💚💚💚
How are you doing so far? Is the treatment working?
I’ve just started sharing my journey with chronic Lyme on here too. I hope you are feeling better and able to manage it! X
how are you feeling?
are you trying the rife machine?
How did you get diagnosed? My husband has chronic, severe pain and multiple systemic issues.
I have had Lyme since 2008. Please don't be embarrassed, but I am so happy to see someone else has those same speech issues that I have because of Lyme! It's not just me. I call it a stutter, but it's not really a stutter, something just doesn't connect when I try to talk sometimes. I've always been shy, and it makes that much more difficult. I am so relieved to see someone else have this symptom too. It got worse when I was on doxycycline. Building up the immune system for us is very important. I have a pre-blood cancer condition which those of us with Lyme also need to watch for because our immune systems are so exhausted. My hematologist-oncologist is the only doctor who takes my diagnosis seriously, but he can't treat me. Thank you, take care.
Jessica how are you now?
Same I have exact same symptoms
I have same issues but don’t know how to prove it’s Chronic or Late Stage Lyme. Conventional Lyme testing comes back negative.
May God Bless You with the miracle of healing. As a person who has had Lyme Disease for 18 years, I understand the journey that you face. I pray that you will be successful in your journey.🙏❤🙏
Me 14 years untreated my sister 18 months older 24 yrs untreated
No Dr's nearby that treat or accept medical medicare
Never give up brother! I’m with you even if you think you’re alone
I was wondering all these months why you guys stopped vlogging. To watch this video brought me to tears. I am so hopeful for the journey you are going to be taking alone. You are strong, and I know it. As someone who loves traveling, I believe that anyone who loves the most satisfying things in life deserves to live them, which is why I have hope for your recovery. And I know that your parents would be proud knowing what you've already done in your life. Hope you get well soon :) :)
❤️
I am dealing with chronic Lyme as well. Like you, doing it alone. It's hard, but please stay strong. You have thousands in your corner...cheering you on.
How are you now?
I have chronic Lyme and made it through. It’s a fight everyday but I have learned to love the fight and be thankful for every moment I have. Now I make videos to try and help others who suffer from Lyme. I have never felt so much love from strangers as I have from this community and I just want to spread love and positivity however I can. Fight Forever, Lyme Warriors. We stand united.
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
What did you use for treatment?
Am being tested right now for LD and also have CFS, Leaky Gutt and Fibromyalgia to name a few. 2 of my 5 sons have something very similar. Thanks for sharing that a parent / mother can pass it on at birth. I will talk to my dr about that. I had no idea I had these diseases or the beginnings of them back before they were born, but now that makes a whole lot of sense. Now I really feel like a heel! I appreciate it tho and God bless you with a FULL recovery!!
I completely understand all of this, i am so sorry. And since your going through it alone like me, its horrible. I think its so much worse being so alone. Love and light to you and thank you for this video.
Hello, I live near Lyme, CT where the virus was named after. I’ve been in the woods around there frequently. It’s a beautiful area and the forest in my state is a great place to hike and relax. Never remembered a tick bite. So my doctor never tested me!! Even though my location and lifestyle was risky, finally got tested and also have “old” Lyme. (which is ironic because Old Lyme is also a town). I was only prescribed 3 weeks antibiotic. If my tiredness and joint pain gets better that would be great. But I was at a point in my life where I just accepted that’s how I was. And I thought it was because I was getting old! (I’m 28). And I also thought my memory was getting bad because I had Covid and just figured it was an effect from that. I was overlooking a lot of other symptoms. I sort of wish I didn’t find out I had Lyme because now I think about it too much and I’m hypersensitive to the symptoms I have and it makes me angry a doctor from my area should’ve tested me years ago but never did. I want to just forget about all this. I was in pain a lot but I was happy before I found out. Maybe I can feel happy again once I accept this. I don’t want a disease to define me.
Look into the Steve Buhner protocol
Stay strong brother. We are all fighting our own wars, you're not alone.
❤️
It's been a year in April I've been fighting Lyme. Diet is a big thing. And Monnolaurin will dissolve the bio film that these critters live and hide in. Thanks for your courage.
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
May I ask which diet you are using?
Powerful speaking from your heart, may you overcome Lyme Disease and inspire others.
Thanks for sharing!!! It’s a hard but beautiful journey with late stage Lyme. I’ve been treating for 4 years after years of searching for answers. Praying for you & praying for healing! I love the Lyme community on here & on instagram!! We got this 💪🏻
Sorry but there's nothing beautiful about this illness.
That the same with my mother, we never knew. I'm in late stage and without advocacy scared. No personal support or understanding it's hard... you've helped make it another day to be human and sharing, you have helped me tonight. I will have to heal with only air lol... faith and God only knows. I'm just going with it I'm in a scary place. You have inspired me on more day, I'm so tired....you understand.
Elise Spears just checking up on u and I hope u are much better
Wow, thank you. It not a lot of changes for me as of now, no. Few check in on me, so appreciated. Just hanging on....
much love ♡♡♡
Wow. Your eventual diagnosis was exactly like mine. For me it took over year to get diagnosed and when I eventually found out, we went out for a slap-up meal to celebrate no longer being in the dark. Nearly four years, life is much better but also very different and I ended up medically retired at 53. I do bits of manual part time work now but resulting brain damage prevents me from doing any work requiring cognition.
I have chronic Lyme too, so you’re not alone. I’ll be keeping you in my prayers and thoughts Hugo🙏😊
I’ve had Lyme for over 25 years, tested positive twice years after being covered in deer ticks on hunting/scouting trips back in the 90s, early 2000. Mainstream doctors don’t believe in late stage Lyme. We have no local LLMDs that accept medical coverage and I cannot afford their fees. I went from super outdoorsy and active working 60 hours a week, my own landscaping business and photography to where I am today with no job and most of my many hobbies down the drain. I deal with joint pain, muscle twitches, horrible fatigue, palpitations, unrestful sleep, depression, anxiety, headaches, chronic sinus infections ect...I live day by day and make no plans as each day is different. It’s a real struggle
I cannot say that it's absolutely working for everyone, but if you want to check out buhnerhealinglyme.com/ and woodland essence, I knew people got much better. Good luck!
Have you tried
Stevia leaf
Japanese knotweed
MMS (sodium chloriTE)
Cistus tea
Water fasting
?
How are you doing today?
@@rdallas81 about the same really, not much change. I appreciate you asking
I Appreciate you and your courage and honesty about what you’re going through good luck to you
Hang in there Hugo. I too remember being told
10/2/2015 that I too have Lyme after suffering with horrible migraines, crippling fatigue, heart arrhythmias, osteoarthritis in my knees hips shortness of breath a spot on my brain and many other symptoms. My diagnosis wasn’t positive until by random chance when I too began to not be able to speak full sentences and had problems waking it happened be at the same time of testing the bacteria came out to reproduce long enough to be discovered. It took years to be semi Normal. I thought I was doing pretty good until about eight months ago when I’ve been under tremendous stress I have noticed here lately I’m back to swelling again with chronic Adema again heart palpitations shortness of breath brain fog and joint pain and of course excessive weight gain that nothing cost to go away no matter how hard I try so I guess that means it goes into remission and I’m just trying to do each day one day at a time
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
Ohhh this video had me in tears Hugo! I know you’ll get through this and you’d still be making epic travel videos and great photos on the road soon! Can’t wait for that!
❤️
Will be subscribing to follow how you heal. I was just diagnosed with late stage lyme too.
Our prayers are with you Hugo! Stay strong!
❤️
Wow bro I came across your vlogs this afternoon and have really enjoyed the content but most of all your genuine persona and love for traveling, different cultures and appreciation in the smallest things in life. Then I watched this vlog wow Hugo I wish you all the strength in this solo journey. There are more and more cases these days were people have fought off diseases I nearly lost my best friend 5 years ago and he is still standing wish all the best Hugo!
Wow, this really hits me hard! This must have been so difficult for you guys because you were doing AMAZING! Just know that you guys have been such an inspiring and beautiful couple for me and many of my friends and we're all there!
❤️
Me too. I've lost hope though. I've been sick for 30 years. 3 years ago I hit the wall and have been confined to the house since. I hope you find your healing. Myself, I'm just ready for the end.
I have you in my prayers!! I wish you all the best and I hope you can still travel and do all the stuff you love to do! Thanks for sharing! Love from Switzerland - Jas
Please hang in there! I believe in your full recovery!
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
There needs to be a lawsuit against plum island for releasing this on the world
This is so hard to watch. I'm so sorry you have to go through this but always remember you're not ALONE. We are with you. Be strong and keep the faith, Hugo :")
❤️
God bless you. I was diagnosed with lyme disease just over a year ago. Woke up last week totally crippled up. Knee pain, leg pain, shoulder pain... Can barely walk around.
18 years lymes still fighting, keep fighting buddy
I get whst you felt and feel I have had to deal with severe lyme since I was 6 and through my childhood I qas in and out of shriners children's hospital in the 80s and 90s and I never seemed to bad as a kid but I would wake up my parents crying holding my knees they hurt so badly they would carry me to the tub and soak me in warm water until I fell back asleep or felt better. But now I'm almost 40 and I can hold a standing position on my own my knees don't work most steps I take so I have a cane I have to use and braces big steel bar braces on my knees and my hands hurt so bad when I wake up I can't hold my coffee cup or open the milk jug, and now it's starting to affect my speech in the same way yours is. I was never the type of person who stumbled over their words or forgot what they were saying or anything. Not bragging but I qas very well versed when it came to English as well as other languages especially German my favorite. But now I get so frustrated at myself because I try to talk and when I begin to stumble it makes me so mad that I can't speak because I know I shouldn't be stumbling over my words but because when I qas 6 I got bit on the back of my left knee and it qas not found until a week or so later when the ring made it all the way around to the front of my knee and touched itself and that's when we knew something was wrong. At first we thought it qas just a bug bite but nope. So never think it's just a bite that itches. Always look at it and watch it carefully. Because I'm almost 40 and will be unable to walk soon enough and I even worked on the pipeline and oil rigs so its not like I am out of shape but it doesn't matter this disease will take you out whether good health or bad. Its truly one of the most overlooked diseases that really causes life threatening/ changing issues. ❤🧡💛
Thanks for such an honest and genuine video. You are such an inspiration. Both you and Noemie have inspired me to travel more. Will be going to Sri Lanka soon and your videos have been amazing in helping me choose places to visit while I’m there. You will get through this and recover! Stay positive and happy as you have always been. Sending much love and prayers your way.
❤️
I have missed your videos. hope you get well soon. I will be praying for you. take care and stay positive.
❤️
I hope your battle is going in your favour dude. I got bit back in September then had the em rash and 3weeks antibiotics....but I still have symptoms. I am waiting on a referral for further testing and maybe treatment. Here's hoping for us both and all long haulers. X
You can beat it if you get proper testing and treatment igenex for testing you have to go to private doctor that treats Lyme disease llmd
I feel your pain brother. I have the same struggle since I remember, as a little child. It invalidated me around 10 years ago. Never give up fighting.
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
@@hugorijpstra.netherlandsyou are his caregiver. He is fortunate to have one. I'd like to treat Lyme I have, but feel part of the healing process is being with people who understand. I'm looking for a group to live near or communal who understand.
Hi Hugo.. I was shocked bout the condition, i hope that you will improve and improve more about your health. Be stronger than before
❤️
We are so sad to hear this 😔 But you will win against the disease! Pretty sure. We wish you all the best and a lot of power for your journey ☘️ Thanks for sharing!
❤️
Hello Hugo, I wish you all the best. A lot of power for the future. It is certainly not easy to talk about such a disease. Greetings from Frankfurt / Germany
Hi Hugo. I've been following your channel for a while now, and I have thoroughly enjoyed watching your videos and following your journey. I'm so sad to hear that you are going through this, and I wish you all the best in every way. I am glad that you've decided to document this journey as well. Your positive outlook on life is inspiring, and I truly believe that you will get better and be able to have the extraordinary life you deserve. All the best, Anne-Li.
❤️
I pray you get through it and completely healed In Jesus name. Thanks for sharing
Stay strong and positiv Hugo! You got this!
Take care of yourself🤗
The journey continues!
❤️
Bless you sir I was diagnosed at age 22 late stage lyme drs have guessed by the progress and co infections that I contracted Lyme when I was 6 after 3rd grade I could no longer focus I had terrible anxiety issues and being 7 years old I didn’t even know what anxiety was until age 18 a friend gave me some alprazolam and all my symptoms went away for 5 hours and I knew then dang I have anxiety over what Im a kid I shouldn’t be anxious and then age 22 came and I woke up with all my muscle on fire and im now 32 and im writing this comment almost in tears my back is hurting so bad just burning like fire to all with Lyme hang in there I can’t say it gets better but hang in there enjoy all your time with family and your loved ones
Stay always like this: strong and positive!! You can make it out of this darkness!! I will support you and follow you through this new journey! I'm with you Hugo!!!!
❤️
Sending you love, light and healing vibes Hugo. Much love xx
❤️
Thank you a lot for sharing all the vlogs. I've been watching many of them and just now saw this one, it really isn't an easy thing to go through, the good thing is that as you said, you know what are you dealing with. It's just another challenge to go through, you are a great person and spirit, and I send you my prayers and wishes to get well soon and get back on the adventure track really soon !
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
Thanks for sharing your story Hugo, we've loved watching your videos and will be following and supporting you on your journey!
❤️
Thank you for sharing your journey with us. We pray 🙏 for those affected and hope there are ways you can find comfort and strength along the way. 😎 💘
inspirational words ... such a touching story of life told from your personal very difficult POV beautifully. I'm going to test for lyme myself as it was a test I neglected to follow up on years ago when I got that 'ring' rash around a tick bite which was negative at that time. I was diagnosed with fibromyalgia years ago but some of the symptoms seem more akin to late lyme. Your words are inspiring and shows true courage to the deeper core of what connects us all spiritually and that is very uplifting to hear. Thank you once again for sharing this wonderful video.
Thanks for sharing, so important to share our stories. Think I have had this my entire life too. Healing now is the goal.
I have Lyme also. Had it for eight years before getting a diagnosis. I am doing better now but am still ill. one treatment to look into is the Cowden protocol. May God bless you on this journey.
I’m getting tested in the next few days after 6 years of many chronic illnesses with lymes as a possible diagnosis. Thank you for sharing
Hey Hugo. My name is Hugo too. I also have lyme disease (and other coinfections). I also feel like sometimes I am alone in this too. I was also in Asia living and working when I got super sick and had to go home prematurely. I also lost my father to an early heart attack, and think it was lyme carditis. (He was a hunter and got bitten to hell by ticks over the decades.) Sadly, here in the UK, if you go to the National Health Service and even mention lyme, they ignore you and call you crazy. The UK follows the IDSA (corrupted) guidelines, instead of the scientifically accurate ILADS guidelines. So, we have no help in the UK if you have lyme, so its private or nothing. However, this means research for ourselves is vital. I am sure you understand this point.
Also, finding out I had lyme was such a great moment, after about 5 years of terrible downhill health problems with no health professional able to work it out. The truth is always out there, you can never give up.
I see this video is now about 3 years old. It's 2021, how has your treatment come along? I hope you have made progress. I have found out I had lyme and co in 2019, but was bitten in 2008. I think bartonella was in there much before that. Either way, hit me up if you want to talk privately about treatment and all things lyme and co. Maybe we can each other! : )
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
I got Lyme in the early 80’s, diagnosed June 2013. Now chronic Lyme I’m 51 now.
Depends on how long you have had it. 1 month,, then yes if your doctor prescribes antibiotics long enough. 5 years or more is quite the challenge to cure it. I was 30 years from tick bite to diagnosis. Some people are trying disulfiram and among them some people are having success. Start with a low dose of around 50mg. Also look into the Buhner protocol and also Doctor Horowitz in New York as he has patients in remission. Your best bet is to join Lyme forums on Facebook and other places. Some people have had success with Cats Claw. If you haven’t already eliminate wheat, dairy and sugar from your diet.
hello, how did they diagnosed it after so long...normal tests generally come negatif as it has been too long, no more antibodies?
Blood culture test, or a T-cell provocation test.
@@MustangsTrainsMowers after so long they can still find it in the blood?
@@MustangsTrainsMowers thank you so much!have you done western blot or Elisa
Wishing you all the best, love, healing and faith xx
❤️
stay strong .. i hope that you are better now. and you are not alone in this world
hope you will get well soon, Hugo! Stay strong!
❤️
So courageous man thanks for sharing! Can you give an update on how you feel today?
Like many I was wandering why you stopped vloging! Your words are inspiring, i wish you health and happiness.
❤️
You are amazing and definitely not alone in this. I have it too with many long term symptoms as well. We can, all of us who have it, get better
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
I had Lyme for 20 years. Disulfiram put my Lyme in remission. I fight co infections every day. I have Disulfiram videos on my channel. I documented my progress. Every day is a struggle. I wish the best for you!
Thanks for this video-just subscribed.
You're never alone
If you’re interested in knowing anything about rehabilitation? Because I’m guessing you’re in Canada? Here in the US when I was diagnosed finally. Which I actually had to figure out myself, and then was tested. I had a huge population of the bacteria in my body, like the specialist had never seen before. And they don’t do the recommended intervenous antibiotics where I live. So after the oral antibiotics, I was basically just left to my own devices to suffer. I figured out my own rehabilitation program for that chronic pain/arthritis. And completely healed and rebuild my cognitive damage. Feel free to reach out to me if you want details on how I did it.
I would like more info on how you treated it please
Well!
How did you fix your Lyme?
I hope your doing better! Would love to hear a good news and anything that has worked for you. I am from America and have late stage chronic neuro Lyme disease and I have had remissions so their is hope. Currently undergoing another horrible flare but I am hopeful and pray we all figure out a cure 💕
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
I just got this diagnosis thank you because you helped me to know that it can be passed on. I have 6 children and a grandson and 2 more on the way
Thank you for sharing your story. I can feel your kind heart and humility thru the screen.
God Bless.
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
Stay strong Hugo! Blijf positief👍
❤️
Stay strong Hugo💪💪💪 Greetings from Poland👍👍👍
❤️
Thank you for sharing! I’ve started sharing my journey with Chronic Lyme too. Hope you’re feeling well these days and managing it. Xx
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
Thanks for this great vid wishing you well Hugo
Hugo..... First of all respect u bro.... U got this!!!!
Second of all; where did u got tested? Because it's rare that a doctor says 'you've got LATE STAGE LYME DISEASE.' I never heard any doctor said this before and I had like 100+....
God bless you...I understand...I have morgellons...pray the best🙏🤗💙🕯
Veel sterkte Hugo👍🏽
Missed you guys . Hope you recover soon
I’m dealing with mold exposure illness since I was a kid. You’re not bc alone
Research Bee venom therapy🐝 Sounds crazy.
Husband,myself,and our daughter all did it
☮️🤟🤗
Get well friend . In the same boat
18 yrs later, 5 mental hospital stays and i just found out it’s lyme thats been causing it. Now that im in a deep stage of late stage chronic symptoms i find myself scrambling to seek help. However, ive lost everything and i have no money for treatmemt.
I am having a Lyme but my family don’t believe it that is why I am so sick I can’t walk ..:. Scared and frighten to the death mentally collapse too!! I need help!!!
Hey chloe how are you doing nowadays
stay strong...
I’ve had Lyme since 1976. I didn’t know what for 20 years until I saw the documentary. By then it was too late for effective treatment. It destroyed my knees and the wrist of my left hand, caused diabetes, gangrene on the toes, panic attacks ...
I tried MMS but not persistently enough because I had nausea. I will try again.
If anyone knows more about how to treat old Lyme please let me know.
We took a lot of inspiration from your videos and really influenced our videos. Thanks for such an honest video. Much apprecaited.
❤️
New subscriber here! I’ve been struggling and suffering with multiple chronic illnesses for several years now. I used to make videos and plan on talking more about my morgellons and chronic limes, low thyroid (most likely accute meaning a response from my immune system) POTS and possible EBV..at one point I exhibited symptoms of MS. Thankfully, I was able to cure those, but it’s always a possibility it could come back. Which is one of many reasons why I want to conquer my health problems. I have never gotten confirmation from a doctor for anything, except the thyroid which I was telling doctors for almost two years that I had hypothyroidism, and they didn’t listen. It took two years for a doctor to finally confirm it, and all they offered was a synthetic medicine that didn’t do anything. You would think they would try to dig deeper and find out more, but they didn’t help so I stopped the drugs and since then (plus other traumatizing experiences with a doctor that patronized and harassed me..that was two very awful, traumatizing experiences) I stopped seeing all doctors altogether. My insurance is shit, so even if I saw the doctors I could see..well I wouldn’t get any doctor that would listen or help. American healthcare is just horrific, if I could afford it, I would see a different kind of doctor that would actually work with me and care about getting to the route problem of things. Anyways, I would love to know how you are doing and if you have healed yourself.
Hi there,
Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving.
However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment.
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to send some love and support, you are so welcome to follow Hugo through:
facebook.com/hugo.alexander.page
instagram.com/hugo.alexander.page
Thank you! 🙏🏻
I was just diagnosed two days ago and they say I’ve had it for 35-40 years... so you can guess how miserable my life has been. Is there anything that can cure this? I believe it’s killing me.
I’ve had it for 7+ and started treating it about 3-4 months ago. There are treatments. You start slow and build
Msgotta whats ur face?
how did they find it after so long?which tests have you done?thanks
Hey there..
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. I know Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to share some love and support, you are so welcome to follow Hugo through facebook or instagram: @hugo.alexander.page 🙏🏻
Thank you!
@@whatsnewshetalks5784 first you do test with home doctr for lyme Western blot test Western blot test checks for antibodies, it may give false negatives for both conditions it's there is false and u have symptoms then u need specialist lyme doctor because the insurance company not cover and u need to pay yourself for accurate diagnose in private laboratory.
Check Joe Dispenza
I was misdiagnosed with Lyne disease for 27 years. I am in late stage and have had Lyme for 38 years.
have you looked into the rife machine ?
Hey there..
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. I know Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to share some love and support, you are so welcome to follow Hugo through facebook or instagram: @hugo.alexander.page 🙏🏻
Thank you!
Im being tested today. Recently i have developed burning in my feet, numbness and tingling hangs, and i am forgetting words when i speak.
Wish you the best !! Take care..
❤️
How are you doing now. I was diagnosed with CFS, Fibromyalgia and tachycardia. Really bad migraines. Other people in my family have similar symptoms too. My mom has Rheumatoid arthritis and my brother Mixed Connective Tissue disorder.
Hey there..
This is a reply sent to everyone on UA-cam who has been asking about Hugo, showing your support or anything like that. For that reason this reply isn’t personal, as much as I would like, there no time, due to all the caregiving. However, as Hugo’s caregiver, I have just written two extensive posts (out of a series of three - next week is post 3/3 on the entire care situation) on the 10 WINS we gained, and on how Hugo’s health situation is at this moment. I know Hugo would have replied to every single one of the comments if he could, but unfortunately his health does not allow that. :(
Below you can find the two recent updates:
2 YEARS POST CROWDFUNDING - PART 1 of 3
WHAT HAS CHANGED?
facebook.com/hugo.alexander.page/videos/854949998537329/
2 YEARS POST CROWDFUNDING - part 2 of 3
HOW IS HUGO’S HEALTH?
facebook.com/hugo.alexander.page/posts/1835575429969803
For future updates of his journey, or if you want to share some love and support, you are so welcome to follow Hugo through facebook or instagram: @hugo.alexander.page 🙏🏻
Thank you!
I found this recently bcz I was positive for another chronic disease (bacterial) misdiagnosed by a simply alergic reaction, I really understand you, you have to be positive every day specially if the disease is catalogue as a progressive
Best of luck to you Hugo, keep it up!
Good luck mate, thinking of you
❤️
Prayers❤