What is Antiphospholipid syndrome (APS)? How can I explain it to my family and friends?

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  • Опубліковано 17 лип 2023
  • Short description of the content of the webinar.
    Antiphospholipid syndrome (APS) is an autoimmune, hypercoagulable state caused by antiphospholipid antibodies. APS provokes blood clots (thrombosis) in both arteries and veins as well as pregnancy-related complications such as miscarriage, stillbirth, preterm delivery, and severe preeclampsia. During this webinar, we will explain the most important issues regarding diagnosis, treatment and prevention of complications to help patients to understand and better explain what APS is.
    All resources and more info about APS can be found here: reconnet.ern-net.eu/disease-aps/
    Speakers are:
    - Prof. Ricard Cervera is the Head of the Department of Autoimmune Diseases, Hospital Clínic, Barcelona, Director of the Research Group on Systemic Autoimmune Diseases at the Institut d’Investigacions Biomèdiques August Pi i Sunyer (IDIBAPS) of Barcelona, and Director of the UB-GSK Chair of Autoimmune Diseases and Coordinator of the Masters’ on Autoimmune Diseases at the University of Barcelona, Barcelona, Catalonia, Spain, where he also currently serves as Vice-Dean of the Faculty of Medicine and Health Sciences. He is former coordinator of the European Forum on Antiphospholipid Antibodies and of the European Working Party on Systemic Lupus Erythematosus (Euro-Lupus Group) and Chairman of the Lupus Academy. Dr. Cervera has presented over 800 invited lectures and has published more than 1,000 scientific papers (h index: 99), is co-editor of 50 books, and Associate Editor of the journals “Lupus Science & Medicine” and “European Journal of Internal Medicine”. His current major research interest includes clinical and epidemiological aspects of systemic lupus erythematosus and the antiphospholipid syndrome, with special focus on its “catastrophic” variant.
    - ePAG. Dr Silvia Aguilera is an ERN ReCONNET APS patient advocate. She is currently the Vicepresident of the Spanish APS Association as well as a member of several patient and medical work and study groups, like the EULAR Study Group on Reproductive Health and Family Planning and the Patient Advisory Network in Lupus Europe. Silvia is also a EURORDIS volunteer and is currently working on topics like communication with European patients or the changes in Assessment, Monitoring, Evaluation and Quality Improvement System (AMEQUIS).
    Moderator: Prof. Savino Sciascia

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