Pregnancy and Antiphospholipid syndrome (APS)

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  • Опубліковано 6 вер 2024
  • - Short description
    The webinar covers current recommendations and state of the art for managing patients with Antiphospholipid syndrome (APS) during pregnancy, directed at the patient community, in a simple lay language.
    Silvia starts by stating some of the main worries, concerns and questions from the patient community followed by Prof. Tincani explaining and replying to these questions.
    All resources and more info about APS can be found here: reconnet.ern-net.eu/disease-aps/
    Speakers:
    - Prof. Angela Tincani is senior consultant at the Rheumatology and Clinical Immunology Unit of Brescia General Hospital in Italy and professor at the
    Rheumatology Specialization School of the University of Brescia. Pathogenesis, diagnosis, and treatment of systemic autoimmune diseases, issues related to pregnancies in patients with rheumatic diseases, the evolution of autoantibody determinations are her main research interests. She gained experience in the clinical management of patients with autoimmune rheumatic diseases. In 1990 she founded and still is working in the multidisciplinary Pregnancy Clinic in Rheumatic Diseases of the ASST - Spedali Civili di Brescia.
    - ePAG Dr. Silvia Aguilera is ERN ReCONNET APS patient advocate. She is currently the Vicepresident of the Spanish APS Association as well as a member of several patient and medical work and study groups, like the EULAR Study Group on Reproductive Health and Family Planning and the Patient Advisory Network in Lupus Europe. Silvia is also a EURORDIS volunteer and is currently working on topics like communication with European patients or the changes in Assessment, Monitoring, Evaluation and Quality Improvement System (AMEQUIS).

КОМЕНТАРІ • 6

  • @katiemarie3265
    @katiemarie3265 16 днів тому

    My doctor said that adding an additional medication to aspirin/levonox can cause the baby to half clif lip 😢

  • @diytacoma5758
    @diytacoma5758 8 місяців тому

    This has shared more than our doctor has explained after numerous questions we have asked her

    • @ERNReCONNET
      @ERNReCONNET  8 місяців тому +1

      Happy to know that the webinar has been helpful!

  • @jacintasekhon3119
    @jacintasekhon3119 5 місяців тому

    This was really helpful, thank you

  • @renumakker8728
    @renumakker8728 10 місяців тому

    excellent webinar