What is Antiphospholipid Syndrome (APS)?

It is said that up to a third of all strokes in people aged under 50 could be due to antiphospholipid syndrome (APS). We invited Professor Anisur Rahman on behalf of APS Support UK to tell us more about this rare syndrome and ask what connection it has to stroke.
Professor Anisur Rahman became interested in autoimmune rheumatic diseases after completing a Ph.D. on systemic lupus erythematosus and antiphospholipid syndrome and now has a research group looking at those diseases. He is vice-chair of the charity APS UK.
APS Support UK are the only UK charity dedicated to supporting anyone affected by APS and aims to achieve earlier diagnosis and better treatment by raising awareness of the condition and helping fund research.
APS Support UK Website: aps-support.org.uk
Different Strokes are a UK charity for younger stroke survivors run by younger stroke survivors. The charity specialises in peer support and has a range of services and information to help younger stroke survivors and their families to reclaim their lives.
Different Strokes website: www.differentstrokes.co.uk
#APSmatters #APSAwarenessMonth #Stroke #StrokeSurvivors #YoungerStroke

[@anniefitt8623]

I have APS, as do my 3 siblings. I take warfarin. They each take Eliquiss instead of warfarin.

[@IrvinTimeBW]

I was diagnosed with APS when I was 22, after having 2 strokes. I'm 33 now, this is my first time actually learning what this is. Great video!

[@DifferentStrokesUK]

Wow, I am so sorry this was never explained to you. So glad the video has helped!

[@IrvinTimeBW]

@@DifferentStrokesUK well, they vaguely told me it was a blood courting disorder, but nothing more. I could of asked more questions but, given that I became blind brevete of the stones, I don't think I ever thought about it.... I guess I just never felt the need. But I'm glad I decided to search UA-cam for a video. It helped answer some quotations I've had for a few years.

[@Wildewhitley]

I've have APS and have had DVT starting at 9 years old and pulmonary embolisms and so for 34 years! 5 months ago the doctor tells me its time for chemotherapy. To which I said no way, been there, done that.
Finally figured out it's diet!!! I went 100% organic, no red meat, gluten, dairy, nightshade vegetables, caffeine, and highly processed foods. I've seen more progress in 5 months than in my entire life of various treatments!!!!!
If you have APS, it's diet × genetics!!!!!

[@jefferygambill1783]

Do you have the lupus anticoagulant APS,, I have APSLA and I don't understand the difference in any of them but with c-19 around I looked at a lot of medical studies and apparently the APSLA is the same antibody as the vax.. Just wondering if you had the lupus one

[@Wildewhitley]

@@jefferygambill1783 I don't have the lupus anticoagulant.

[@jefferygambill1783]

@@Wildewhitley oh, okay thanks 👍

[@debstayblessed9549]

Straight to the point. Clearly explained. Thank you! I take warfarin. Test regularly blood test INR 2.0-3.0. Also, diet is so important. Excellent information especially treatment prevention.

[@gervaissuaka]

Quite helpful video! Thanks.

[@petertownley7296]

Thank you

[@risausa4796]

Thanks for this video.

[@michaelmcintyre6414]

I’ve had two strokes while on xarelto 20 mg, am now on warfarin but my drs cringe with the inr goal of 3.5

[@petertownley7296]

on apixaban 5mg for double positive with lupus coag

[@sarahjackson8212]

My mum was mis diagnosed . She was treated for Polycythemia Vera ….but in fact she had APS , sadly it was diagnosed in the late stages and she died of a PE . I had the test and it came back mildly positive ( I then had a further test a few weeks later , again mildly positive ) my GP said don’t worry about it unless you suffer a clotting incident . I do suffer from a number of symptoms , such as tiredness , memory fog and dizziness . Should I be concerned ?

[@DifferentStrokesUK]

So sorry to hear about the loss of your Mum - it sounds really tough. I would advise seeking a second opinion or recommend contacting APS Support UK for more advice at [e-mail] just to put your mind at ease that the advice given is right for you - I hope this helps. Lauren

[@tammyfitzgerald5336]

Tyty

[@shivam844]

I had seizures last year and was diagnosed with cvst. B2gp1 was +ve for 1st time i tested but after that the test was negative after 12 weeks. So do i have aps?

[@DifferentStrokesUK]

Hi Shivam, I am afraid we are not medically trained. It may be worth contacting your healthcare provider or APS UK.

[@myklelove2607]

Beta2 Glycoprotein I IgM
Value 51
Not understanding
Why
Im 36 with having 2 stroke already and
6 blood clot
In my lung
With 6 miscarriage
And i dont have lupus
Plus on blood thinner
.
Whats really going on

[@DifferentStrokesUK]

So sorry to hear all you have been through. It may be worth contacting APS UK to talk to someone [e-mail] - Lauren

[@alanwhite3154]

1 in 2,000 people get APS, not very common.

[@lizzymartins6188]

Can a vaccine trigger this?

[@NattieD911]

That’s what I think. Vaccine injury