Thank you for sharing! I need these reminders to keep on top of my daily symptoms and stress dosing. It’s a challenging disease so everyone’s story is important to hear.
Thank you Jill for the online resource you have created. Talking about the condition with someone else who knows was nice. What I got from reading the British online resource “Living with Addisons” was that shared experiences make a real difference for the small population with the chronic condition we have.
Im in a very similar situation to Kevin when he discusses the exercise/activity intolerance... If i try anything over a slow walk at the moment i feel really unwell afterwards, kind of on the edge. Also got headaches and brain fog, trouble standing but better lying down, slow stomach emptying, chest and back pains and more. Not diagnosed addisons at the moment but have had a low am cortisol result and hoping the drs will organise a synthacin test for me very soon 🙏. Feel like im on the verge of a possible crisis at times, feelings of something seriously not right. Thanks for this video and your channel Jill - so much useful information here and knowledge is power.
@@fauxpro4561 Oh friend please fight for an answer quickly...I hope you find the information here helpful...Kevin's story is very inspiring what he accomplished through being patient, consistent and listening to his body....thank you for your comment please take care ❤
I know it's an older video I just saw. Thank you again for sharing this🥰 For the cold, I have bought self heating vests from amazon. You put a battery charger in your pocket and has 3 different temps. It's so comforting to have and reduced my stress from the cold. And the woolen hat is a must have. I also have a heated pad in my bed just incase.
@chronicallyfit_withjill 🥰❤️ Get one for sure!! You'll be looking forward to walking even in freezing cold weather. Just make sure you have a good battery and have a 2nd one if it's a long walk out. The one for the car is a great idea. I'm going to go check what I can find. Thank uou. Have a beautiful day🥰
This was the motivation that I need, thank you so muchhh❤ Hope you can reach more sports person I really need to know their experince about exercising, I have tournouments this year on tennis and I need knowledge to handle with it❤
personally I am not sure...so many factors to consider but it is possible as a warning sign to rest that they body is struggling or if fluid balance is off ❤️
My story was almost identical to kevins. I had many symptoms of Adrenal insufficiency. But not the skin pigmentation. But hard to tell as i have dark skin anyway? Yet my Endo diagnosed Adrenal insufficiency caused by asthma drugs?which i did not agree with.? Same Endo diagnosed me with cfs/ ME and hypoadrenal for 7 years? So i recon i was in a slow decline heading toward Addisons? By Endo did no antibody tests at diagnosis. Just syncthen test. I have blurred vision. My symptoms got much worse after Covid. The straw that broke the camrls back.!! My Endo did not believe this? He also refused my request to scan my pituitary or Adrenals? Despite me kerp getting blurred vision? I also reacted really badyly to hydrocortisone.( i react badly to all steroids. And have had steroud phycosis many times) Endo refused to believe you can side effects from sterouds??? I got fed up arguing with him. He was just not listening to me. Not being very helpfull. Stuck in his ways. Hence i am seeking a second opinion. Withfull backing of my GP. Who has known me for 30 years. Seen me with steroud phycosis. ? And knows i always tell the truth. I cant stand Drs who dont listen.? I said to Endo" dont tell me how i am feeling? Have you ever taken steroids? Do you have Adrenal insufficiency? No. So you have no idea how i feel" " i suggest you listen to those that do know" 😂😂 I got cross. Hope my new Endo is a bit more up to date. Not so black and white. And actually listens.? Think they kniw it all. But actually we are the experts.😂😂
Thank you for sharing! I need these reminders to keep on top of my daily symptoms and stress dosing. It’s a challenging disease so everyone’s story is important to hear.
Thank you Jill for the online resource you have created. Talking about the condition with someone else who knows was nice. What I got from reading the British online resource “Living with Addisons” was that shared experiences make a real difference for the small population with the chronic condition we have.
AGREE!! They are amazing...everyone should check them out!
Im in a very similar situation to Kevin when he discusses the exercise/activity intolerance... If i try anything over a slow walk at the moment i feel really unwell afterwards, kind of on the edge. Also got headaches and brain fog, trouble standing but better lying down, slow stomach emptying, chest and back pains and more.
Not diagnosed addisons at the moment but have had a low am cortisol result and hoping the drs will organise a synthacin test for me very soon 🙏. Feel like im on the verge of a possible crisis at times, feelings of something seriously not right.
Thanks for this video and your channel Jill - so much useful information here and knowledge is power.
P.s. Kudos to Kevin for sharing his story and for his strength and success following diagnosis. 💪🔥
@@fauxpro4561 Oh friend please fight for an answer quickly...I hope you find the information here helpful...Kevin's story is very inspiring what he accomplished through being patient, consistent and listening to his body....thank you for your comment please take care ❤
@chronicallyfit_withjill Thanks Jill, I'm working on it 🙏. Will speak again now doubt but keep up the good work and thanks again ⭐
Of course we can live a full life. I don’t want to consider myself sick and disabled.
@@kathya1956 yes we can ❤️❤️❤️
I know it's an older video I just saw. Thank you again for sharing this🥰
For the cold, I have bought self heating vests from amazon. You put a battery charger in your pocket and has 3 different temps. It's so comforting to have and reduced my stress from the cold. And the woolen hat is a must have. I also have a heated pad in my bed just incase.
YES I NEED ONE...yes I have heating blankets, car seat, heating pad, ...all kinds...makes a big difference for me...take care friend ❤️
@chronicallyfit_withjill 🥰❤️ Get one for sure!! You'll be looking forward to walking even in freezing cold weather. Just make sure you have a good battery and have a 2nd one if it's a long walk out. The one for the car is a great idea. I'm going to go check what I can find. Thank uou. Have a beautiful day🥰
Thank you for telling your story.
@@eavision1 ❤️❤️❤️
This was the motivation that I need, thank you so muchhh❤ Hope you can reach more sports person I really need to know their experince about exercising, I have tournouments this year on tennis and I need knowledge to handle with it❤
So motivating...we can get to our goals if we are slow, steady and listen to our bodies...LOVE his story...it is amazing ❤
Does low cortisol cause extra elevated heart rate during exercise?
personally I am not sure...so many factors to consider but it is possible as a warning sign to rest that they body is struggling or if fluid balance is off ❤️
My story was almost identical to kevins. I had many symptoms of Adrenal insufficiency. But not the skin pigmentation. But hard to tell as i have dark skin anyway? Yet my Endo diagnosed Adrenal insufficiency caused by asthma drugs?which i did not agree with.? Same Endo diagnosed me with cfs/ ME and hypoadrenal for 7 years?
So i recon i was in a slow decline heading toward Addisons? By Endo did no antibody tests at diagnosis. Just syncthen test. I have blurred vision. My symptoms got much worse after Covid. The straw that broke the camrls back.!! My Endo did not believe this? He also refused my request to scan my pituitary or Adrenals? Despite me kerp getting blurred vision? I also reacted really badyly to hydrocortisone.( i react badly to all steroids. And have had steroud phycosis many times) Endo refused to believe you can side effects from sterouds??? I got fed up arguing with him. He was just not listening to me. Not being very helpfull. Stuck in his ways. Hence i am seeking a second opinion. Withfull backing of my GP. Who has known me for 30 years. Seen me with steroud phycosis. ? And knows i always tell the truth. I cant stand Drs who dont listen.? I said to Endo" dont tell me how i am feeling? Have you ever taken steroids? Do you have Adrenal insufficiency? No. So you have no idea how i feel" " i suggest you listen to those that do know" 😂😂 I got cross. Hope my new Endo is a bit more up to date. Not so black and white. And actually listens.? Think they kniw it all. But actually we are the experts.😂😂
Keep looking to find someone who works with you. Good luck ❤️
@@kevinmckay1955 I will thank you Kevin. And i wont stop searching until i find the right Endo.xxFrom the UK.