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One symptom I get I know I have to pause not push- is when I start looking at the floor to lay down- 😂 like seriously-no matter where I am- I need to find a bed/somewhere suitable fast to rest/sleep! I’ve had this happen at an airport. The fatigue becomes -stop everything now-rest is non negotiable! ❤ Thank you Jill

I don’t think that American doctors pay attention to Addison’s disease. I think i have low cortisol

What are the meds you take? The infusion and the "other"?

Thank you. This was very helpful information!

I'm a cancer survivor...dx in 1992...I'm 74 now and I have discovered there are so many things far worse than cancer..at least with cancer some people, like me, are cured...but diseases like Addisons, and the disease I've had all my life (undiaganosed) vestibular migraine, are dreadful, and debilitating, they go on forever, iow they don't exactly kill you but make you wish, some days, you were dead, there is no cure .....they can only be managed.......... If I'd have had any idea how many such diseases exist in my 20's I'd have probably freaked out. I have to wonder how many people are suffering and have no clue they are ill. My dil was dx with Addisons a couple of years ago..her illness caused probs in her marriage to my son...he thought she was lazy, etc...the poor girl was sick...I suspected something was wrong but had no idea what, nor was I able to help. After the divorce (they were tog almost 30 years) the stress of that caused an adrenal crisis and she finally got diagnosed (TB had destroyed her adrenal glands..she'd been tested over the years from TB, was told the results were a false positive..it seems to me the docs who ordered the test should have suspected she had Addisons.) Thank God she was finally diagnosed...now she is learning to live with it, not easy I know based on what I've learned about it...living with vestibular migraine is hard...I'm in my 5th year now and I do have good days, but boy oh boy, the bad days are hard, so very hard. My heart goes out to all of you who suffer with Addisons...I think more attention should be brought to this disease and other similar chronic debilitating, no cure, diseases.

I think this is a wonderful interview. I really appreciate this so much he seems like a wonderful doctor. I am so happy that I watched this video. It helped me. I need that DHEA and I’m trying to eat right trying to prevent from having to take that medication but anyway, thanks so much for the video. I think you got a great teacher there. Great doctor, seems like he really cares you can tell he’s out to really help people. Great guy.🥰❤️

Mine is it affect my brain horrible

Bless you Jill may God bless you and help you through this horrible time I can relate but all things in prayer he’s the one who will help you Jehovah God🥰❤️

Thank you so much I’m going through a lot you’re going through. I have Addison’s disease too and I’m learning a lot from you and I appreciate your videos. Thank you.

Yeah, I hate loud noises or a lot of talking I just get too stressed

Thank you for sharing your story. I don't take any chances with my Addison's and give myself an injection when I know I'm failing. Don't wait-use your emergency injection!! I did have a crisis when two injections in 1 hour didn't help. Spent 4 days in the hospital and it took me 4 weeks to feel better.

I was in the hospital and they gave me cortisol. They told me I had Addison’s disease I’m not taking nothing for it but it does affect my brain and I try to stay calm I drink salty water and I really don’t know how to function with it. I’m not on medication.

Harley is beautiful🥰

dear I can help you promote your UA-cam business if you want

THANK YOU, JILL! I was officially diagnosed yesterday, so this is so helpful!

🙏🙏🙏🙏🙏

A very important affirmation for me.Thanks Jill.❤❤

Ok, we need to talk. I'm so frustrated. I eat nutrient dense foods, I do IF- stop eating at 7 and don't eat till noon or 1 the next day. Very active and do exercise when i feel up to it which ahs been more lately. I love fitness but haven't felt well for years. I'm 56 and in meno and finally got some HRT for that that is helping BUT still cannot get rid of any belly fat! Do you do zoom or phone consults? I have SO many questions. I would pay to set up an conversation with you!

Thank you for this video. Your idea that many are chronically underdosed is interesting and perhaps I need to explore for myself. I’m am so much better than before my diagnosis but still cannot function at the level I would like to be at and still suffer chronic “fatigue.”

Do you have trouble sleeping?

Your content is really interesting but still your channel growth is very poor. I have already visited your channel and noticed that there are some deficiencies due to which there are not enough views despite enough subscribers. No SEO( search engine optimization) is done on any of the videos. SEO Score 0 out of 100 over all score 13.6 out of 100

"Learn how to manage, learn how to cope...": Being at the beginning of diagnosis after a crisis, this is something I've been noticing with "symptoms". Going undiagnosed for so long, I learned how to cope and manage symptoms as, "just the way my body works" leaving me with so many that I would not have thought as "disease" if not for the great videos I've found. Now I have to relearn them as my body sending signals and not to "push through" them. Those of us who are just learning are grateful to those of you who are already walking this road... God bless you...

Some of everything is what I need!! Bless you and thank you so much

I had never been previded with injection by my endocrine Dr I'm 65 years old and only dinoses 2years coming August my GP doesn't have a clue about Addison disease

I love begginning the yoga session with an affirmmation.❤❤❤ I am going to do this session. Thank you Jill. Big hug.xx

Yay! Love weights and kettlebells, but has been hard to learn how to get back to them with energy and not using it up. On just the weights part, have wondered if I should do, say, 10 minutes every day, but different body parts each day, hitting everything twice in a week, plus mobility or yoga, etc, before or after. I've had to teach myself that my 2 a day dog walks counts as my cardio ( step counting seems silly, but working on that total count has helped me too - at least with being proactive. Ill never be a runner, my body was never ever made that way, lol). Bless you so much for sharing these!! (Ps: Dr finally raised meds, and I've been doing yard work like a fiend!! have needed some rest days in between, but I struggle to remember that or to not do all the things. Mentally, I actually do know, but when actually awake and doing the things and seeing the things, its so hard to stop!! I try to manage, but after not having energy to get out of bed, its like a drug. Bless you for all your help and insights. I don't know other pickles ( at least not like me), but I share you with everyone!! You are such a light and mean more than you can possiblyvknow. God bless you and your family!

If your PCP thinks patients can ban issue you need to run. The longterm outcome studies show that patients on higher doses have a higher risk of early death and morbidity (cardiovascular disease, diabetes, osteoporosis, glaucoma). Even Dr. Wass’ self help group recommends a replacement dose of 15 mg to 25 mg HC per day. When I was on a high dose I had more highs and lows and had a higher degree of fatigue and experienced a high level of chronic stress. In addition, while on the high levels I was sick 6 to 7 times a month and it took me a long time to recover despite up dosing.Also the high level of cortisol made it much harder for me to regulate my emotional stress. Once I tapered my replacement my energy rebounded, I went from struggling to exercise at low intensity for short periods to being able to exercise at an high intensity. I even now even participate in cycling races and have plenty of energy to spare. I am not saying you do not require a high replacement dose. In fact the clinical literature has confirmed that some patient, for example fast metabolizers, do require high replacement dose. The clinical data suggests that when fast metabolizers are on high replacement doses experience symptoms of both under and over replacement and experience more negative symptoms, including fatigue compared to typical patients. Is it possible you are a fast metabolizers of cortisol?

I use Injectible hydrocortisone aka Solu-Cortef. I inject .30 ml intramuscular at ONE INCH and two doses at 1/8-1/4 inch SubQ. The deep injection is near large veins the subQ is shallow near the capillaries......and I feel ALOT better, and can go 12 hours without a dose. But with just one dose I can only go 6 hours! Or if I am busy I can burn the cortisol real quick especially since I also take thyroid hormones which metabolites cortisol much more quickly. Many people with both thyroid and adrenal failure are diagnosed with thyroid failure first and put on thyroid hormones only to be sent into an adrenal crisis!

Is there anything that helps

I ordered both

Hope this saves lives or makes them much better! Get the pump folks!

Jill I’m in Fort Erie, do you have an endo you find helpful? I have a fellow out of McMaster and find they just want to keep reducing my hydrocortisone, I’m taking 20mg a day, they want me to reduce further and I never have any energy. If I do get up and do some work around the house, I’m zonked the next day. 🥲

Being in the beginning stages of diagnosis, this is both a relief and a worry. I am relieved to finally have a diagnosis but concerned about the future...

Thank you for doing this video, God be with you... I'm in the diagnosis phase right now. Turns out, imaging showed an enlarged left adrenal gland back in 2016. I had an episode a couple weeks ago, blood pressure shot up, landed in the ER, it was a nightmare, 4 days later I'm back in a different ER, tests and imaging, no real answers but blood pressure comes back down, I'm released but have follow-ups. (This is actually the third episode I've had since 2012 but undiagnosed till now) So I go to the doctor, he listens to what led up to my ER visit, does a review of previous image reports and right off the bat he says "you have an enlarged adrenal gland, (although he didn't really go into detail on what it meant. I think he wants all the new results before he goes there). So now I'm driving myself crazy trying to research and learn while going through these preliminary testing of kidneys, pulmonary, heart, bone and so forth ... It's all very overwhelming... May the Lord be with you

Thanks, i needed a pep talk. I’m 58 and was dx a year ago. But i don’t have cortisol belly, I’m just generally overweight but have been my whole life. I’m making a plan to eat better and will probably retire soon to ease stress and have time and energy for me. I love your channel 💙

I don’t keep my injection in the fridge? Is that a UK thing?

Hi Jill. Great video Thank you.❤ I have had a really really tough month. Admitted to hospital with severe pneumonia.( horrendouus) thought i was going to die this time.🙈 I am asthmatic. Addisons, hashimoto's.hypothyroid. i was blue lighted straight i to resus. Then started to go into my first Adrenal crisis.( after only being diagnosed fir 5 months) 🙈injected my hydrocortisone. Pneumonia felt like i was drowning in my own lungs. Full of fluid. Could not get any air i or out. Very scary. Never felt so ill...( evan sepsis!! Not as bad) !! Its a long recovery after pneumonia. I had to double dose hydrocortisone. And also take prednisolone for my lungs. Plus IV antibiotics. And breathing drugs. Nebulizers...!! 4 weeks later. I am still struggling. Suppossed to be gradually reducing hydrocortisone down to 20mg. But i just dont feel well enough. So i am taking charge of dosing as to how my body is feeling..!! I now have an asthma exhacerbation. Due to spring tree pollen allergy. So back 9n prednisolone for 5 days 20mg.!! As i cant breathe. Lungs inflammed and sore.😂🙈. I am just exhausted. And fed up. Feeling so exhausted. I have continious riglht abdominal pain...i feel like my body is?shutting down most of the time.? Ok in the morning. But afternoon evening...just in a zombie coma state....I still cant seem to get my Hydrocortisone dosage right. Its not easy is it.Jill. especially when you are ill with other chronic illness...? I thankfull🙏🙏 have second opinion in July with a differrent Endo. A better hospital. Than can do a day curve test. !!! I know for a fact i have Addisons. But my previous Endo despite not doing any antibody tests.? Decided iAI was caused by my asthma drugs.? But i get the dark areas of skin pigmentation. Skin changing darker as Cortisol is low. Especially on my face and knees....! I really need to get my diet sorted out Jill. Cutrrently on a keto meditrerraian style diet.( as hubby reversing type 2 diabetes. Diet and excercise) I put on a lot of wieght round my middle the first 3 months i was first on hydrocortisol. Fluid. Fluid in legs. Bloated out. It settled down eventually... I eat a clean non processed diet. No caffine. Sugar. Alchohol. Gluten. Lots of fruit veg. Meat fish. Nuts seeds. Organic dairy. No junk food. My appetite is very poor. Half the time i just dont want to eat. Due to abdo pain and nausea? Just no appetite at all. Just drin k water!! Eay fruit. Salad. My gut microbiome is a bit out of wack i believe. Due to 7 days IV antibiotics...I usualluy make eat/ drink.my own fermented veg and kombusha... But ferling so exhausted. Its slipped. What can i eat to help my energy. I have a little oats chia fruit in morming. A light lunch. Protien salad veg dinner. Fruit. Drink loads of water. Decaf tea. Nuts. Seeds. But i dont feel i am getting enough nutrition to keep my body functioning!! As keeps goung into total shut down. And i have to go to bed alot.!!🙈. Not sleeping very well. ? Can you help me please Jill. What can i change in my diet to help my body feel better....and recover. I do take vit D3. Vit c. Zinc. Magnesium calcium..... Drink organic milk. Eat a fair amount of natural yoghurt too. Any nutrition ideas very welcome Jill. I am not living a goid quality of life at the moment. Every day is a struggle....Thank you for your channel. Its so nice to have your expertise and support. Addisons is a lonely illness....at times. As only tjose that have it truly understand....xxxxxxx how hard life can be to manage the hydrocortisone...!! We all have our ups and downs. At the moment. I am down. But i know i will soon feel much better again But i must give my body all the help nutrition wise it needs. Any suggestions welcome Dear Jill. Or maybe you have already made a video on nutrition? I do jouurnal. Meditate. Follow mindfulness. EFT. Learnyt this through my ccs/ ME recovery journey. I get outside in nature everyday. And stay as active as i possibly can. Bit limited with poorly lungs at the moment. But i still do whst i can. Move about as much as i can. Listen to my body. And rest too. Hope you and your family are keeping well Jill. You are an inspiration to me. I dont know what i would do without your channel. Yoyr advice and support. And all the other contributers on your chsnnrl. With AI. Loved Prof John...such a character... Thank you dear Jill.❤❤❤❤ Xxxx Stay well..xxx

Oh thank you so helpful xxxx

I love it... I think you need to improve the title and description, and properly add ranking tags (according to the content) in the video tags section. You should also share the video on various social media sites. That way you can easily reach a nice audience with your videos... Your dedication to your channel and the concept of your videos is really impressive. you're doing pretty well.But your content isn't getting the viewership you want...I believe this will meet all your needs... and I wish you the best on your journey on UA-cam.

Thank you so much for this video. You're both fantastic. Jill I only function on high dose hydrocortisone as well. It's that or I wouldn't be here. We all need to really listen to our bodies,and trust ourselves. We all react differently to daily chores or stressors.

Thanks again!!!! I feel exactly the same. Love your information… helps so much!!! Still new at this disease. Bad morning for me today,still wake up in bad body aches and pain and then the emotional crying starts, I take my steroids but for some reason in the morning the steroids take about hour to hour and a half to kick in ; I am doing stress dose at night to help but have not found it yet 😮

You are so lucky you have someone who will stick around after having to call an ambulance for you. I knew he’d leave me if I went to the hospital and he did. I’ve been abandoned. No friends or family. I have had lab tests for this and EDS as well

Have you noticed any tremors or leg cramps with this condition? Unable to sleep because your system is presenting fight or flight response?

Great information thank you so much. I’ve had adrenal insufficiency since February 2020.

Is there a support group? My dad’s dad had secondary pituitary induced addisons. 100 mg cortizone per day for ten years. He died Memorial Day when I was 3, 1967. I have struggled with adrenal shock since I was 28.

Amazing episode! Thank you so much!

Thank you so much for sharing your experiences. This is so helpful as I navigate this diagnosis.

Fatigue is still part of my daily life. Also brain fog… So challenging but one day at a time. tks for these videos!

What an inspiration !you are amazing ❤Thank you for your honesty and for sharing your story.

Wonderful episode Jill. Active management with up dosing is the key for me. It’s so great to have advice from experienced physicians that gives us confidence to self manage. Thank you 🙏