Autism | Needed To Make An Appointment | Non Verbal Communication
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- Опубліковано 6 вер 2024
- Non verbal communication is not easy for our autistic daughter. Since she cannot use words to tell us what hurts, she uses different forms of communication to tell us. We have to figure out what she is trying to tell us with her actions and emotions. #autism #weefam
Our website: www.weefam.com
I cackled at Braylee's face with the muffin when you asked her if she was ready for the day. Me too girl me too!
😂 she makes some pretty great expressions!
B is totally talking!! But I swear she is going to be a rapper with her singing. It's super cool. Congrats on your 5 years of growing into such awesome, caring parents after recieving her diagnosis.
She really mimicked That Toy story scene where Buzz lost his helmet. I recognize that the minute she started singing it and then I saw her playing with helmet. She is super smart
Omg! Words! Her words!! She’s doing sooo well with her words! Good job Mom, Dad, and ABA! So happy for her! And you guys! The progress is amazing!!! ❌❤️❌❤️💕💜♥️
"do you wanna go down memory lane, too?"
"i want you to start the air conditioner."
HAHA! same. 😂
Memory lane is nice and all, but I don’t see why we couldn’t do it in the A/C 🤣
Sarah Anne haha I was gonna say that! That would’ve so been me! lol. I hateeee the heat!
Sarah Anne for me it’s May 3rd and we already have to put our AC back in already it’s so hot I almost died yesterday
I could probably watch a 2 hour video of Braylee putting "hats" on her toys doing her beatboxing lol She is too freakin cute! 💕
We could easily have hours of that 😂 those are her favorite things to do
Omg so could I!!
Right? They have those 8hr vids of fireplaces going. I would totally have 8 hrs of Braylee playing with her toys for adorable ambience😆
Anyone who has a heart would 😆it so cute
It was adorable!!!! And I loved how the sounds changed when she put different “hats” on her stuffed animal!!!! ♥️♥️
*Shows the heat at 78°* “doesn’t matter how cool the room is” I sleep with my room at 55 and I still wake up sweating. They think it’s my thyroid too but blood tests are inconclusive, I feel for her ❤️
It’s hard when your body won’t regulate temperature well. It’s very uncomfortable.
The Wee Family yeah;(
I have massive sweat issues but all blood work has always been okay with no reason to be concerned tho i wake up several times to change and my clothes are usually so wet they can be wrung out.. Been this way for a long time and sooo uncomfortable. I hope her cause is determined.
I will tell you, that even though my son is noe 24 and neurotypical, I still learn as a parent every day. You two are doing a great job.
There is always more to learn.
I love watching our children play in their own way!!! They have their little toys and their little babbles , it just makes me happy. Our little B just had to be sedated for an MRI and the IV was really hard, even with the “laughing liquid” he was just so over stimulated...he didn’t like the cover they used for the IV , he didn’t even like sitting on the table ... and then when he woke up from sedation it was 2 1/2 hours of him thrashing. As a parent we know these things are important but it’s hard to see them so upset and just confused. I am glad your B had a better experience this time around!
She definitely makes up her own types of play and we enjoy watching her mind work. That’s so hard 😞 we usually have to weigh if whatever needs to be done is worth the struggle.
Happy 5yr “Aupism” Diagnosaversary Braylee......you are amazingly ausome!
Hey guys! You guys are doing so awesome with miss B! I know you guys get told that often but its true! As for the needle fear I still fear them at 22.. I had to have some in my toe not long ago and needed 3 full size men to hold me down.. for average people they say it feels like a little pinch or they dont feel anything but for some of us it feels like an actual stab compaired to just a little pinch. It's ok B! You arent the only one who fears them sweetie 😘😘 it'll be ok for sure
She has been doing great! We will find out how bad it was when we try to go back to the doctor next time. The last time we had shots or anything she was so anxious and scared at the doctor’s office for 3-4 visits after
The bandage could be so so helpful for communication and soothing when pinpointing an ailment! As crazy as it may seem I remember very vividly the first time Stephanie was able to communicate to her mother and I that she had cramps! We celebrated the fact that she could tell us what was wrong! We practiced bandages and first aid for years with “props” and it really paid off. So much so that now conveniently when we are working on folding laundry and she’s over it , she can tell me she needs Motrin for her cramps and a break 😉💙
That’s so awesome! And I definitely laughed at the last part, that’s clever!
I love how she always sings!! 🥰
It’s our favorite thing!
Hey guys, fathering autism lead me to you. I am in Minnesota as well and I’m loving your channel, braylee is the cutest love bug!!
Hi! We love MN folks
Same
Ah she is really sweet your doing an amazing job with her.
What a cutie
God Bless guys xx
❤️❤️
The ace bandage could be a sensory pressure thing. I know for me, when I get migraines (often) that if I put pressure to that side of my head with my hand or pressing into a pillow while laying down, it relieves some of the pain. I've also done this with abdominal pain and nausea.
She is a sensory pressure seeker too so it would definitely make sense.
When I was a kid I used to cry when I had to get bandage taken off. I found it easier to take the bandage off when I was in the bath. So if you have a real bloody bandage situation try to put Braylee in the tub and the bandage will come off much easier. And no pain. You both are doing a great job.
She was being very protective and just didn’t want it off but I know from the past if we leave them longer they generally hurt more to take off. But the bath is a great idea!
The Wee Family my moms bandaid policy was distraction and a sudden rip 😂
@@TheWeeFamily Just saw this video. I've found REMOVE Universal Adhesive Remover wipes, made by smith&nephew (on Amazon), to help bandaids come off super easy. I use them on adults with special needs & they always request it when any bandaids need to come off. No pain!
We had a spray in the hospital that soaks though the band-aid and then it comes of super easily
Compression sleeves might help as well especially as they are lower profile and can be hidden under clothes
I think the bandage helps her calm down because of the stretchiness and pressure. I have a weighted blanket which helps me sleep at night
SOOOO glad you shared this! Our son has apraxia and needs a device to speak. It's such a powerful dilemma
We initially waited for a year before we got her speaking device. Thankfully, during that time we had a loner from the school.
@@TheWeeFamily That's so great! Our school waited a year to let us have a device so we used Voice Options to get it sooner and it was covered thank God
Love watching your videos. I have a 2 year old nephew who’s been diagnosed with autism. He’s nonverbal but understands what you say. I’m learning lots between you and the Maass family. He hasn’t started therapy as they just moved out of the area and had to start with the zoom sessions again. I’m sad that I’m an 8 hour drive to see him but, I have made the drive and got to take care of him for 3 days. It was like ole times which made me happy 😃 My goal is to see him monthly. Well thanks for sharing your beautiful videos. Sending hugs 🤗 and love 💗 to you all, Leslie
That is a long drive but I am sure all that time on the road is 100% worth it. Have a good day Leslie!
If I were u I would make sure she’s asleep then do the blood work that needs to get done. I don’t do good with needles either but I just don’t look (I look the opposite way)
Braylee is braver than me, that’s so great she did such a good job at the doctors!
You guys DO have the coolest kid ever! AND you are amazing parents!
We will see what the real verdict is next time we try to go back and see if it scarred her 🤷🏻♀️
🥰 you’re the best
The Wee Family true, but hopefully it didn’t!
💕
Hope not!
I’m autistic but I’m high functioning
Not really related but it makes me happy that Bradley eats her mini muffins in a circle. Not sure if she always does it but she was after the blood draw in the car. Such a cutie, she’s not even my kid but I’m so proud of her for doing so well with that stupid needle. Great job, B! 🎉
She doesn’t always, but frequently she does eat them that way 😄
I swear I typed Braylee lol, stupid autocorrect.
Pressure therapy maybe with the ace bandage? The feeling of the bandage giving the slight pressure might be giving her the comfort. If so, maybe try weighted blankets for times of stress if you havent already (im new here 😊)
We think that she may like the pressure of it too since she loves pressure/squeezes in general. She does have a weighted blanket, she just won’t use it. Takes it off every time, but it stays on her bed in case she wants to use it 😊
@@TheWeeFamily I'm really late here but maybe try compression wear (its technically for medical purposes but I'm autistic and I enjoy wearing it when my sensory level is messed but also use it for medical as well)
Im a phlebotomist and my biggest fear is scaring kids I usually get in trouble for how long i sit and talk to them and hold the little ones before I draw my sample from them. It sucks to hold them down but it's for their safety. Glad you guys are the parents that understand all that instead of yelling at us and making the experience worse for everyone.
We completely understand that it’s just something that needs to be done and the other person is just doing their job, and likely trying to make it as easy and painless as they can. You are so sweet and I’m sure everyone who sees you, especially littles, are very appreciative! ❤️❤️
@@TheWeeFamily aw thank you!
She is one fascinating child Brayle :)💖 Really like hearing about things from the past it is interesting, the bandage thing is very fascinating whatever works that is good, she is such a cute kid as always, I love learning about how her brain works is fascinating.. ☺❤💙💜💚
I am just in love with her vocal Stimming!! (Insert Heart Eye + Crying Emoji's LOL) And all her words!!! I heard her say Autism, Swimming, All done, Red Car, and Doctor!! She's so adorable, we've been binge watching your guys' videos and our little guy reminds us so much of Braylee!! His name is Noah (goes by Bubba) and we are awaiting ASD assessment. He just turned 2 in July, diagnosing is a very long process up here in Canada. Thank you so for all your amazing videos and tell Braylee we love her and think she has a Beeeaaautiful voice!!!
She said a lot of words really well for us! If he’s anything like our girl, he’s a super sweet little guy ❤️
Hope it doesn’t take too long for you, The hurry up and wait part is hard.
@@TheWeeFamily He really is! Sweetest little guy ever. And so funny, awesome personality! His Infant Development therapist kept commenting on how Sweet he was!! He does have 5-6 signs & gestures down pat now though which helps a lot! Thank you so much! I hope we don't need wait much longer either!! Have a wonderful weekend Wee Family!!
Her laugh is EVERYTHING
I must add I love watching her play too, it's so interesting and adorable 😊❤💚💙 xo
Braylee is beautiful Y'all. 😍You guys are doing an awesome job with that baby... And each other. Stay blessed
Thank you ☺️☺️
You two awesome parents. Little Bits is a Sweetheart. She is smart and knows you love her. ❤💙💜
We appreciate the kind words! She is a sweet kid and so smart ❤️😃
U DO have the COOLEST KID EVER!!! I Love Braylee, & u both!!! Onwards & upwards!! Y’all are doing THE BEST job!!! I can completely see she’s FLOURISHING-I can see the difference even since I’ve been subscribed (only about 6 months!!!) Ur AWESOME guys!!!
She really is thriving and it’s amazing to be a part of it.
Awwww. Braylee is still cute. I like how you take good care of your kid.
Thank you!
The Wee Family my pleasure
We are going to have our kiddo put under to get his blood work. Your Braylee did awesome!!!
Good luck!
The Wee Family thank you!
I was diagnosed with autism at 18 months old. Also, I was the same way as your daughter with communication as well. I used to be afraid of needles but now, I just think about someone pinching me whenever they put a needle inside of my body. I totally understand what you guys are going through.
That’s encouraging 🙂 that’s a really smart thing to think about instead of what it is.
The Wee Family
Thank you so much
I just started watching this video with my daughter, Laila, she's singing along with your daughter watching her put the hat on bugs bunny! My son loves bugs bunny too. Especially the commercial on boomerang where they sing "what are we gonna do with that goofy cat?" My son doesn't talk a lot but he will say that whole sentence without any problems. Also I kind of want to get my sons thyroid checked out too bc he sweats a lot in his sleep too and I had no idea it could be something more serious. I just thought it's because he likes to bundle up in blankets but he will sweat all night even when I go in there and unwrap him and turn a fan on
That’s so cute!! I haven’t seen that commercial I don’t think? It’s always hard to know but when we saw the doctor they said nothing was wrong but could just be that it happens because of her meds.
Love your family you are amazing parents .bless you and your beautiful family.
💕
When she was playing with Bugs Bunny- she was really making connections with what she was doing and saying. She’d put the clear thing on its head and say ‘nanananana’ and then ‘babababa’ and then something that half sounded like ‘Did that hurt?’ when she took it off- but maybe more like ‘Di da burt'
Yea i heard that to
15:30
I do that too with my blanket. If I have growing pain or my mouth hurts I’ll wrap that area with my blanket and it helps me feel better. It’s probably a mental thing but it relieves some of the pain so I can calm down
she's really brave I have a very big fear of needles like her too and I am very scared of needles because I feel like I'm going to hurt me and she's brave and I'm brave to I had to get teeth removed remove and she has to handle needle ♥️
Ask them to use the pressure wraps we usually have multiple colors too so they may be able to let her pick which color to use :)
Good to know!!
What a coincidence! I’m watching this on a Monday morning 7 months after your upload! It’s May 3rd 2020 for me now
You have a beautiful daughter
Great parents!
Dat face when she's going on the bus I love it . And poor bugs bunny ! Maybe she's and old french soul cause it sounds she's telling him "t'es bête" ! (Which means "you're silly" or "you're dumb" in french).
Kisses to your sweet family, you guys are inspirational I wish every parents in your position would be so open minded and "active" about it. Bye !
❤️
It's look like she is replaying something she saw on TV like in a cartoon - maybe it was in French ...
My kids do that and they like foreign languages so sometimes they repeat foreign words ... :)
Oh my goodness I sure have missed yall. I get way to excited when I see a new video lol. Great job on getting your blood work done sweet girl!! We love llamas here too.
She’s such a champ! And llamas are pretty cute!
My daughter has a high pain tolerance n is usually not afraid of anything but she hates the doctor's n needles since she was about 2.5/3 yrs old. It took three of us to hold her n two phlebotomists to do her blood work the last time. I've been meaning to ask about the bus thing. Did u buy a little school bus just to take Brayle to school in it because she likes busses? If so that's super awesome. I feel like I'm a better human being n better mom because my daughter has autism. Brayle reminds me alot of my daughter, especially when she plays. So cute.
I can’t blame her, even many adults don’t like the doctors office or needles.
Yeah we have a video about why we have the bus but you basically got it 🙂
Braylee has made us better people honestly
She's so adorable to the ace bandage question my guy would use a oven mitt I'm always for whatever works for them
That’s interesting too. I agree though, whatever works and makes them feel better! 👍🏻
Hope her bloodwork comes back okay! Everyone at my ABA center is sick right now, we had like 7 client cancelations today so I'm about to be in Stacy's boat soon 😷
Oh no!! It’s the seasons/weather change and back to school time. I’ve been sick for a week and a half now. 😞
The Wee Family all of the kids have nasty coughs and at this point my fate is probably sealed 😢
Sometimes there is no avoiding it 😞
New here found yall through the newest Fathering Autism Disney vlog so im watching all your old vids and I noticed On the bus you have 1 of their car decals
Yeah we do! 👍🏻 it’s about awesome decal
I don't have autism, and I'll just say that the "compression" factor of Ace bandages often helps me feel a little better when I use them. There's something about physical support from these wraps, at least for me.
Perhaps, the physical translates or somehow connects into the emotional for her. Just spit-balling here...
💟 *hugs* *B* hopeful blood work goes smoothly and gives *good*
*useful* info
I love how she eats her muffins
Way to go Braley week well done 💞💞💞🦋
You are great parents to yours daughter.
She deserves our best, she’s an amazing kid
I have autism aswell so I know what it is like. The only difference is I am verbal. I hate needles aswell
OMG.... Can totally relate to Dr nerves. Our daughter hates the Dr, dentist any time anyone needs to examine her person. She is now polite but firm (she is such a sweetheart) which quickly turns into a huge meltdown when we insist....full on fighting to the point where we simply can't hold her still enough to examine. We're on the waiting list for dental surgery under a general. Tooth and hair brushing are our biggest sensory challenges daily. We have tried everything and finally found products that she will tolerate but progress is still painfully slow and for brushing teeth especially no where near adequate. We have to let her find her own way though and wear the consequences because nothing else works
We do her dental appointments sedated now because it’s the only way they can do it that she will cooperate. We still brush her hair, which she isn’t too bad about. Brushing teeth is a struggle. She will do it herself but doesn’t clean them well at all and often refuses to let us help.
@@TheWeeFamily exactly the situation I'm in with teeth brushing. 3 of the dentists we have seen have told us that she is not a candidate for sedated dentistry, she will fight to her last breath. I've cut her hair into a cut pixie cut and she has started brushing it herself on occasion now there aren't so many knots and we have found a brush she can tolerate on her scalp.
Shorter hair even for kids that don’t mind the brushing is just easier (from our experience). That’s strange that they won’t consider sedation for her. It’s been such a game changer for us in getting her dental work done at all, even just cleaning or exams
@@TheWeeFamily could be the sedation they use here in Australia is different, but my dentist assures me that he needs her to be at least a little cooperative in the first place (which she is not) #1 to administer the gas and #2 because if she is already agitated the gas has the potential to make it worse by taking away what little self control she is using to moderate it. I also know from personal experience that twilight sedation (admittedly a different kettle of fish) makes me aggressive... As in I start swinging and I am the least aggressive person I know usually. Anaesthetics, alcohol, antidepressants and analgesics also don't work properly on me so it could be we just have weird metabolisms.
I love your cat and dog.
😄
Awwww. I hope Braylee is okay.🙏🏾
With Braylee using the ace bandage, maybe she uses it for growth spurt pains. Maybe? Llama down! I know you didn't see me at the live yesterday, I heard something mentioned about a cd? I came in late. Oh, and I am glad Braylee did so well with the blood draw. I guess the different position helped, even though she was still upset. And I still got to hear her singing! I just love you guys
She still tried to grab at it with her free hand but she did alright when I held her free hand. It was much less difficult than we thought it would be. Who doesn’t love a pleasant surprise. We have only seen her use the bandage when she gets scrapes/scratches/falls type injuries
God bless Braille.🙏🕊
Im on the autism spectrum i get nervous and upset when i have to get my blood taken and being forced to lay down didn't help i found the chairs very good especially when i get my mom to hold my hand and such and i do the candle trick and they dont count down it took me years till i was 14 to fully be able to be ok with needles
That’s good that you’ve found what works well for you! Things like that are hard.
I actually don't mind needles and sometimes, I joke with the person who's gonna put the needle in my skin, that they could put a thousand needles in me and I'd still be okay. I guess, it's because I have a high pain tolerance. It's been three years since I've officially been diagnosed and almost four years (December of this year) since I've unofficially been diagnosed. But 16-17 years since my mom suspected I had autism. I pick at scabs and dry skin.
Hoping they did a full thyroid panel not just TSH
you guys are lucky I have to have my son sedated in order to get blood drawn
So cute aupism 😍
It makes sense that a compression bandage would make her feel better if something is uncomfortable/hurts her.
It’s pretty clever!
My mum is 16 years parenting autism with my brother would never change him he is 19
If beautiful B’s skin has a hard time with bandaids/plasters, could u try an adhesive remover wipe or liquid?-I have to have a dressing on me everyday/sometimes multiple times a day-long term-my skin gets really angry, & I used to loose skin when I take the adhesive off-but using the adhesive remover, it completely dissolves the adhesive-no pain/skin loss-just a thought!!!
Oh that’s a great idea! Will have to look into that!
The Wee Family the liquid that I use here in Australia is called “Zoff” (it comes in a bottle & made by Smith&Nephew-about $16 AUD-lasts forever if u make sure the cap is on properly)-u just need only 1-2 drops on the adhesive bit of the plaster/bandaid-& it’s off-or zoff😂! U do need to be careful u don’t get it on broken skin, because it is alcohol based-but u wouldn’t usually have adhesive right over broken skin anyway! I use it to take plasters off when I’ve had blood tests too, & it’s perfect-zero sting! Works a charm!! I’m not sure if u can get Zoff where u are, but I did find Walmart has Uni-solve (I think it’s the same thing as Zoff, from the same company, Smith & Nephew) www.walmart.com/ip/Uni-Solve-Adhesive-Remover-Liquid-59402500-8-oz/46108010
I would love for my daughter to be able to experience riding a bus to school. Hopefully she will some day.
You guys are awesome, as always. 😍
I used to wear a acid bandage and it did help me to calm down but now I'm wearing a elbow tension thing on my right knee because it hurts and it helps me to calm down
hope feeling better soon
Your amazing parents to have your own bus to take her to school.
That's crazy. My daughter picks at scratches,bug bites,bumps,etc. She will obsess over them n pick them til they bleed. I keep telling her it's never going to heal n she's getting scars because she picks at everything. My daughter used to smack herself in the leg n say "I'll beat your butt" or "I'll beat your leg". We have no idea where she got it from. It wasn't from us. Luckily she doesn't do that anymore.
Love you and your beautiful family. Just some constructive criticism, cheer up a bit and smile while your talking it will make you happier even and attract more people. Congrats on your channel. Sending prayers and love🙏❤✌
Camille Jauregui I think it’s likely just their personalities. Not saying their not happy folks, but more like dry humor and such. I don’t know if I’d want them to smile more unless it’s natural. It may come off as disingenuous? Maybe lol just bc of their personalities it may look forced or fake if they did. Idk does that make sense?/ I think that was really sweet though that you said your offering constructive criticism in a kind heartfelt way. It always makes me happy when I see people offering advice in a nice way instead of an ugly way. Blessings!!
My husband buys those muffins for me. Lol he knows I will eat them when I don’t eat much of anything else.
She is so cute and so sweet
Have a wonderful weekend! 😍😍😍😍😘😘
The wrap is a common thing with autism and other sensory issues. swaddling and heavy weighted blankets are comforting too.
Yeah she loves her weighted compression vest and has a weighted blanket. Lately she’s more into seeking pressure than she used to be.
Your baby is beautiful
Lots of love!!!
When my daughter gets blood work done I have her on my lap, hold her head facing the other way so she can't see what they are doing and her grandma holds my smartphone in front of her face with her favorite show on. It gets easier everytime.
Glad she did so much better at getting blood drawn this time wtg B ❤️👏🦄🐴 🦙 oh no the bus is dying eeeep 🙃😢
I hope she is ok 👌
70’s look awsome B
Im an adult on the autism spectrum I live completely independent.
That’s so awesome 👍🏻
I have a story about it twin hat when I went to Minnesota when I think I was two or three I found a hat it didn't have a hat but it didn't have a price at Walmart so they said it was free and I couldn't say free back then so then I said flea hat so now we call my hat it my flea hat and I still have it
I just found this vlog .... now 1:54 in Europe ☺ you guys so amazing
Thank you! ❤️
❤ Sending love from Denmark
You are amazing 🙏❤🇩🇰
Denmark, how cool!
love you bunches wee family
The bandage is prob for security
nice video well done keep up the good work the wee famliy a+
😄 thanks!
She's too cute 😍
Lol normal kids have toy busses
Braylee has a real bus! Lol love it
😁
My little cousin also has autism and has the same obsession with bandages.
Praying that Braylee doesn't have any thyroid problems and something simple that can be fixed and she feels better. This Thursday is 6 years from have my thyroid removed from cancer. I thought advocating for autism was rough but finding good doctor for thyroid is so hard and being on medication rest my life.
Everything came back normal so we aren’t sure what’s going on. But at least we know her bloodwork doesn’t show anything. I (Stacey) have hypothyroidism and take medication for it.
One of my friends gets over heated so he gets an ice pack and it helps cool him down.