I've been walking alot lately. Alot of Amonia. Lost my job and the car, because of liver condition and digestive because of AK 47 bullet through the gut, it disembowed me to say the least. They had to hot knife my stage 4 cirrhosis liver back together, this was 10 yrs ago. I'm still alive and living it a day at a time clean and Sober, Appreciate Your Honesty and putting it out there for others. Don't give up Peeps, All the Love to Ya😁💛✌️🙌🏞💪
I just came across your channel about an hour ago when it popped up on my feed, then I looked for an update and found this video (thankfully). I was dx’d with PBC 5 yrs ago but because it was not caught early I had already developed cirrhosis. I have other autoimmune disorders that are sometimes troublesome, but learning that my bile ducts had decided to destroy themselves was hard for me. Before being dx’d I had plenty of symptoms common to cirrhosis, but I had no idea there was anything wrong with me health-wise. I just thought my tiredness and inability to stay mentally focused was a result of lack of sleep and taking on more than I could realistically handle. I have other issues as well from the cirrhosis, but those are the two that bother me the most on a daily basis. I have six-month followups with labs and MRI. The EGDs are less frequent, maybe due to insurance, but I’m doing what I can to keep the portal HT under control. I I take my prescriptions religiously except for one thing; can you guess what it is? Yep, lactulose! It was prescribed as 15 ml 3 times a day, but I’m doing good if I can just take it once a day just 3-4 days a week. I’m trying to do better. Your title for this video caught my eye, and I’m so glad you decided to talk about the subject of ammonia level. Lately my ability to stay focused and not feel loopyhas been really off, and it’s been rather sudden so it’s worrisome. Besides watching your video I read in the comment section from someone who had just lost their mother to liver disease and that lactulose was started but it was just too late for it to have any effect. You both made me sit up and pay attention. I got out of bed and poured myself a shot of lactulose. I’ve decided here and now that I’m going to drink that gross stuff everyday until it becomes habit. My hope and expectation is that I will see improvement in how I feel within a week or two. I hope you are doing well and, seriously, I’m so glad I came across your video tonight! I’ll be checking back to see how you are doing.
Thank you for your thoughts and I’m so glad this video helped. I do get bouts ammonia going up at times. And nobody likes lactolose lol. It’s gross. But it does help and it’s important. I wish you good luck in your journey and hope things get better for you
I have been scared as a young person with liver enlargement for no reason out of no where and I wanna say thank you for the videos it’s helping me not be afraid and helping me have a better outlook and wanted to say god bless you and hope you live a long healthy life brother and I pray that somehow you can get one or live super long with your original 💯👏🏻❤️
My husband passed away 7 weeks after diagnosis. I just knew he had cirrhosis for sure probably 6 months prior due to his belly and liver swelling which was visible but he refused to go to a doctor. He wound up in the ER because of a very serious fall and was diagnosed (June 30, 2023) and spent a few days in medical detox and treatment to get his ammonia under control. He declined very raoidly even with xifaxan and lactulose and would up back in the ER a month later with a wernicke karsakoff diagnosis due to the damage and died 3 weeks later at home. We don’t know exactly what he died from as he had a seizure and passed away quickly in my arms. He had most of the symptoms you describe. I hope you continue to do well and have a good quality of daily life.
Sounds like you are doing everything right. Are you on a transplant list ? I know how hard it is. You have a great attiitude. My son hated the lactulose. He also had the hand tremors but also had terrible leg cramps. It does affect everyone differently. Stay strong and have a Merry Christmas. I am keeping you in my prayers.
Hello Neil, great to see you again! I hope you will be able to find a solution, or at least an easement in your swallowing issue soon. Hope all your reptiles are well... Merry Xmas and Best Wishes for 2025 💗
Merry Christmas, i saw a video you posted 4 months ago, i see your still in the same place, completely understand the car situation, my wife and i recently had to buy a vehicle , was not looking forward to having a car payment. Brother you are in my Prayers.
BTW my wife had liver failure at 14 due to Wilson disease, she had a transplant 23 years ago and due to Iife and certain choices prior to us being married she now managing portal hypertension, with 7 bile ducts being blocked and Cirrhosis of the liver, she is currently at a meld of like 14 which I know is low, but her chronic illness definitely takes a toll on her. Hope your doing well today, and pray for good days for you.
I have been scared as a young person with liver enlargement for no reason out of no where and I wanna say thank you for the videos it’s helping me not be afraid and helping me have a better outlook and wanted to say god bless you and hope you live a long healthy life brother also any update on liver transplant? I know your one video said you weren’t able to and I pray that somehow you can get one or live super long with your original 💯
my daughters father had cirrhosis. his ammonia levels were super high. this caused him to be confused & incoherent. he went in the hospital January 2022 with pneumonia. ultimately the pneumonia killed him but his cirrhosis obviously didn't help any. it was just a matter of time his liver would have caused his death. he died 7 days after going in. My primary care dr. diagnosed me with fatty liver disease earlier this year but not sure what stage I am. I could'nt get an appt till January of 2025. rediculous it took almost a year to get an appt. my mother had alcoholic liver disease and her ammonia levels were high. she died April 2023 supposedly from covid pneumonia. i don't believe that. It was just plain pneumonia. she had 4 covid jabs but yet she got covid? b.s. These pos drs add covid to everything so they get paid by the corrupt government.
My uncle has been in the hospital since December 22, 2024. We already knew he had cirrhosis but he still drank unfortunately. Now it is end stage. He's had fluid drained out his abdomen twice. He is on a diuretic for that and swelling in his feet. He's on lactulose for HE also. It has been hell and they told us he has 3 months to live I'm guessing based on his MELD score. He is not liver transplant eligible cause they said he'd have to be sober 6 months first. My prayers are with anyone going through this.
My dad is currently suffering from He he is hospitalized currently January 7,2025 …. Im so scared for his health decline , chemo pills from his cancer ruined his liver condition … hopefully temporary ! He was admitted with ammonia level of 288 … down to 60 then 200 then 80 and 88 rn …. God bless you brother !!!
Good morning I have alcoholic cirrhosis for 4 years head gallbladder surgery 58 years old September 13th tried looking for videos about the gallbladder surgery I could not find any videos but I wanted to let people know that the surgery serious and you do have a high risk of bleeding out the surgery was done by a robot still recovering
My lung kept filling, not my stomach. I even had a chest tube in for 45 days at one point. It’s been over a year now. And ALT and AST change. Infact eventually when the liver is bad enough those numbers can start to look in the good area, but that’s because when they pull the reading it’s the proteins from the liver that they are counting, and as it gets worse there’s less to show up on the test. So as the liver becomes cirrhotic there’s less to read the worse it gets.
The food stuck in esophagus issue seems to affect a number of people. Dry meats, not chewing food enough, eating too fast and talking instead of swallowing each bite causes this awful sensation of food getting "airlocked", clogged, just before it enters stomach.... water only makes it worse as you feel like you're drowning. The only solution is hacking it up into the nearest toilet. Sometimes it takes a couple of times to get it out! Waiting and hoping for it to go down, might lead to throat damage. My mother gets this sometimes too. The thing is it comes and goes where it may be weeks, then it happens. Symptoms are a gurgling sound from deep in throat, and drooling. I wonder if alcohol has something to do with ithis 🤔🤔
With cirrhosis too, varices can form in the esophagus and that leaves less room for food to pass thru. That’s why you need EGD’s every few months to look for varices and the doctor will band them so they stop growing because you don’t want them to burst which would be a definite medical emergency..
@@Redneckkenobi Involuntary muscular movements. I didn't research if high ammonia levels cause TD. It's usually seen with people with mental disorders like schizophrenia.
Hi there! Firstly, I want to say carry on! You're doing great & never believe -as you already seem to know- when Dr.s try & give you an epiration date; it's not right! I'm not a Dr (I have a BS in Biochemistry & Nutrition). but I did want to give you a caveat about your protein comments! The byproduct of protein metabolism is ammonia! Yes, chicken & fish are more easily digested but 100g portiion of a skinless chicken breast, actually contains 43g of protein vs a a lean 100g portion of beef which contains roughly 26g of protein! Your fattier cuts, dramatically decrease protein amts; a 100g chicken leg contains roughly 16g of protein. I'm not saying to eliminate protein from your diet as your body needs the amino acids for so many functions -tissue repair being 1 important factor, but know that fats are more helpful to the liver. Good quality avocado oil, coconut, & olive oils are great for the liver & there was a study done on liver repair w butter (again I'd opt for quality -like Kelly's Irish butter) Dr. Eric Berg has some great videos on liver repair. Also, a supplement called L-glutamine helps convert ammonia into urea, which is then excreted by your kidneys. Paleo Valley has a supplement of organic, grass fed liver & organ meats, so if you were to cut way down on your meat consumption, that would be a great addition! I also take Liver Defend by Clean Nutraceuticals -an amazing formula w beet root, milk thistle, NAC, TUDCA, dandelion, artichoke, Chanca Piedra, & much more! I had a nasty liver fluke infection which raised my ammonia levels drastically & made me very unsteady & brain fogged with confused thinking. I hope this helps! I know it seems like a lot of supplements, but with the combo formulas, it's really not to bad. You've got the right attitude & just keep on chugging! Slow & steady wins this race & the liver is the most forgiving organ! Happy Holidays!
Milk thistle is known to have the opposite effects once the liver has turned cirrhotic. The liver has to work harder to process it and when the tissue has died it has trouble processing it. But before thale liver turn cirrhotic it can have some cleansing effects.
I’m just gonna say one thing. I came across your video from three months ago. You look exactly like my friend Phil Miller, who passed away from liver cirrhosis. Physically, you look just like him. And I don’t think you get it. I just have to be honest - you don’t get it. None of your videos talk about what dietary changes are you making every day all day to change your situation. It’s all dietary. All of it. What changes are you making? I went through a few of your videos and you don’t even talk about it. I want you to live. My friend Phil did the same thing - he had his head in the sand. He was your age. I don’t understand your channel. I want you to change, but you are headed the wrong direction. It’s all dietary - you can turn it around.
I just just saw another of your videos and came to check you were fine. I'm glad you're ok and send you a long distance hug ❤.
I watched your video 5 months ago, you look healthy for 45. Im pleased your still here man, 💪💪 Much Love From the UK 🇬🇧 X
Thanks!
Keep up the good fight man, you are in my prayers
I'm praying for you Neil! Hang in there buddy!
So glad to see you again. I was worried. I hope you have a good Christmas.
Thank you, I hope you have a good Christmas too! I’ll be hanging by myself maybe cook a corn beef brisket 😊
Lactalose isthe worst. I got home after liver transplant and threw away all the bottles I had left,so satisfying 😊good luck in your journey
I've been walking alot lately. Alot of Amonia. Lost my job and the car, because of liver condition and digestive because of AK 47 bullet through the gut, it disembowed me to say the least. They had to hot knife my stage 4 cirrhosis liver back together, this was 10 yrs ago. I'm still alive and living it a day at a time clean and Sober,
Appreciate Your Honesty and putting it out there for others.
Don't give up Peeps, All the Love to Ya😁💛✌️🙌🏞💪
Wow…. I’m sorry you have been through so much! Keep going the best you can. I wish you the best
@Redneckkenobi Same to You my friend, Forward On
😁✌️
I just came across your channel about an hour ago when it popped up on my feed, then I looked for an update and found this video (thankfully). I was dx’d with PBC 5 yrs ago but because it was not caught early I had already developed cirrhosis. I have other autoimmune disorders that are sometimes troublesome, but learning that my bile ducts had decided to destroy themselves was hard for me. Before being dx’d I had plenty of symptoms common to cirrhosis, but I had no idea there was anything wrong with me health-wise. I just thought my tiredness and inability to stay mentally focused was a result of lack of sleep and taking on more than I could realistically handle. I have other issues as well from the cirrhosis, but those are the two that bother me the most on a daily basis. I have six-month followups with labs and MRI. The EGDs are less frequent, maybe due to insurance, but I’m doing what I can to keep the portal HT under control. I I take my prescriptions religiously except for one thing; can you guess what it is? Yep, lactulose! It was prescribed as 15 ml 3 times a day, but I’m doing good if I can just take it once a day just 3-4 days a week. I’m trying to do better. Your title for this video caught my eye, and I’m so glad you decided to talk about the subject of ammonia level. Lately my ability to stay focused and not feel loopyhas been really off, and it’s been rather sudden so it’s worrisome. Besides watching your video I read in the comment section from someone who had just lost their mother to liver disease and that lactulose was started but it was just too late for it to have any effect. You both made me sit up and pay attention. I got out of bed and poured myself a shot of lactulose. I’ve decided here and now that I’m going to drink that gross stuff everyday until it becomes habit. My hope and expectation is that I will see improvement in how I feel within a week or two.
I hope you are doing well and, seriously, I’m so glad I came across your video tonight! I’ll be checking back to see how you are doing.
Thank you for your thoughts and I’m so glad this video helped. I do get bouts ammonia going up at times. And nobody likes lactolose lol. It’s gross. But it does help and it’s important. I wish you good luck in your journey and hope things get better for you
@@Redneckkenobi how much have you raised?
Neil, so good to hear from you! I am praying for you 🙏 Please encourage yourself in the Lord ❤️
Thank you. Husband and I needed to hear this.
Glad it was helpful!
Good to hear from you, Neil. Thanks for sharing. Praying for you.
I have been scared as a young person with liver enlargement for no reason out of no where and I wanna say thank you for the videos it’s helping me not be afraid and helping me have a better outlook and wanted to say god bless you and hope you live a long healthy life brother and I pray that somehow you can get one or live super long with your original 💯👏🏻❤️
Nice to see you again. I hope you have a wonderful Christmas.
You too
My husband passed away 7 weeks after diagnosis. I just knew he had cirrhosis for sure probably 6 months prior due to his belly and liver swelling which was visible but he refused to go to a doctor. He wound up in the ER because of a very serious fall and was diagnosed (June 30, 2023) and spent a few days in medical detox and treatment to get his ammonia under control. He declined very raoidly even with xifaxan and lactulose and would up back in the ER a month later with a wernicke karsakoff diagnosis due to the damage and died 3 weeks later at home. We don’t know exactly what he died from as he had a seizure and passed away quickly in my arms. He had most of the symptoms you describe. I hope you continue to do well and have a good quality of daily life.
Sorry for your loss, you did what you could for him, try to have a Merry Christmas
I’m sorry to hear about your husband. And thank you for the encouragement
I can donate to your gofundme after the holidays congrats your getting close to your goal 🙏🙏🙏❤
Sounds like you are doing everything right. Are you on a transplant list ? I know how hard it is. You have a great attiitude. My son hated the lactulose. He also had the hand tremors but also had terrible leg cramps. It does affect everyone differently. Stay strong and have a Merry Christmas. I am keeping you in my prayers.
Hello Neil, great to see you again! I hope you will be able to find a solution, or at least an easement in your swallowing issue soon. Hope all your reptiles are well...
Merry Xmas and Best Wishes for 2025 💗
Thank you for your kind words. The reptiles are all doing well 😊 Merry Christmas to you too
Your channel and story helped me through the war💪
Merry Christmas, i saw a video you posted 4 months ago, i see your still in the same place, completely understand the car situation, my wife and i recently had to buy a vehicle , was not looking forward to having a car payment. Brother you are in my Prayers.
BTW my wife had liver failure at 14 due to Wilson disease, she had a transplant 23 years ago and due to Iife and certain choices prior to us being married she now managing portal hypertension, with 7 bile ducts being blocked and Cirrhosis of the liver, she is currently at a meld of like 14 which I know is low, but her chronic illness definitely takes a toll on her. Hope your doing well today, and pray for good days for you.
👍👍👍🙏 thanks for what you do. You're spreading some good things and giving us knowledge. Thank you again. Happy holidays to you all in here.❤
Thank you. Same to you
I have been scared as a young person with liver enlargement for no reason out of no where and I wanna say thank you for the videos it’s helping me not be afraid and helping me have a better outlook and wanted to say god bless you and hope you live a long healthy life brother also any update on liver transplant? I know your one video said you weren’t able to and I pray that somehow you can get one or live super long with your original 💯
I like your Christmas 🎄 Merry Christmas, praying for you 🙏 ❤
Wishing you all the Peace in the world ❤
my daughters father had cirrhosis. his ammonia levels were super high. this caused him to be confused & incoherent. he went in the hospital January 2022 with pneumonia. ultimately the pneumonia killed him but his cirrhosis obviously didn't help any. it was just a matter of time his liver would have caused his death. he died 7 days after going in. My primary care dr. diagnosed me with fatty liver disease earlier this year but not sure what stage I am. I could'nt get an appt till January of 2025. rediculous it took almost a year to get an appt. my mother had alcoholic liver disease and her ammonia levels were high. she died April 2023 supposedly from covid pneumonia. i don't believe that. It was just plain pneumonia. she had 4 covid jabs but yet she got covid? b.s. These pos drs add covid to everything so they get paid by the corrupt government.
I’m sorry for your loss.
Keep fighting brother, wish you all the best. Went through all this. I 💯 percent understand.stay strong.
Merry Christmas Neil. 🎁
Merry Christmas Neil stay well.
I haven't seen you on here in a long time! I appreciate your positive attitude. Merry Christmas!!!
Glad you’re doing ok.
Hope you’re doing well! Thanks for this one! I had encephalopathy for a while until the put me on xifaxin! Miracle drug
❄️🎄☃️Merry Christmas Brother❄️🎄☃️
💪🏼
Keep on keeping on man
My uncle has been in the hospital since December 22, 2024. We already knew he had cirrhosis but he still drank unfortunately. Now it is end stage. He's had fluid drained out his abdomen twice. He is on a diuretic for that and swelling in his feet. He's on lactulose for HE also. It has been hell and they told us he has 3 months to live I'm guessing based on his MELD score. He is not liver transplant eligible cause they said he'd have to be sober 6 months first. My prayers are with anyone going through this.
God bless . Thanks for sharing
Merry Christmas bro
Praying for you. I hope you can have a transplant. I’ve read even having a piece of a transplanted liver can generate the liver.
Thank you 😊
Prayers an blessings to you.
Thank you for the info. Sending 🙏
My dad had this. I have a question? Did they tell you what % your liver is functioning at?
My dad is currently suffering from He he is hospitalized currently January 7,2025 …. Im so scared for his health decline , chemo pills from his cancer ruined his liver condition … hopefully temporary ! He was admitted with ammonia level of 288 … down to 60 then 200 then 80 and 88 rn …. God bless you brother !!!
We all gotta stick together in this life.
Godbless everyone
Good morning I have alcoholic cirrhosis for 4 years head gallbladder surgery 58 years old September 13th tried looking for videos about the gallbladder surgery I could not find any videos but I wanted to let people know that the surgery serious and you do have a high risk of bleeding out the surgery was done by a robot still recovering
Good luck, get better, Merry Christmas
How often did you have to have ascites drained? Did they speak to you about AST/ALT ratio?
My lung kept filling, not my stomach. I even had a chest tube in for 45 days at one point. It’s been over a year now. And ALT and AST change. Infact eventually when the liver is bad enough those numbers can start to look in the good area, but that’s because when they pull the reading it’s the proteins from the liver that they are counting, and as it gets worse there’s less to show up on the test. So as the liver becomes cirrhotic there’s less to read the worse it gets.
@@Redneckkenobi Hello, i have 0,29 bilirrubin ast 28 and alt 40
@ wow that’s so scary. So all these people with normal ASTALT think they’re OK, and they very well may not be.
Sending up prayers
Does food matter? E.g. carbs vs meat based?
Neil, I hope you doing good and surviving this terrible Flu season. A bad liver could have a hard time fighting off a Flu.
As a RN who has to give lactulose to obtunded patients, please take your lactulose.....
The food stuck in esophagus issue seems to affect a number of people. Dry meats, not chewing food enough, eating too fast and talking instead of swallowing each bite causes this awful sensation of food getting "airlocked", clogged, just before it enters stomach.... water only makes it worse as you feel like you're drowning. The only solution is hacking it up into the nearest toilet. Sometimes it takes a couple of times to get it out! Waiting and hoping for it to go down, might lead to throat damage.
My mother gets this sometimes too. The thing is it comes and goes where it may be weeks, then it happens. Symptoms are a gurgling sound from deep in throat, and drooling.
I wonder if alcohol has something to do with ithis 🤔🤔
Trouble swallowing is a common issue among elderly patients in aged care, pretty sure it’s to do with the brain.
With cirrhosis too, varices can form in the esophagus and that leaves less room for food to pass thru. That’s why you need EGD’s every few months to look for varices and the doctor will band them so they stop growing because you don’t want them to burst which would be a definite medical emergency..
Just yesterday, A warning label will be on alcohol as a cancer causing drink. One cancer mentioned is throat.. yikes.
Quit the booze people. If this warning isn’t enough then kiss your loved ones goodbye
Hope you have a Merry Christmas 🎄 Let's see the New Year 🎊
Same to you
@@Redneckkenobiis a liver transplant not a future option for you ?
Hello Neil, I hope you are well. Are the involuntary movements of your hands from the ammonia indicative of tardive dyskinesia?
I don’t know what that is. But it’s from ammonia level being high
@@Redneckkenobi Involuntary muscular movements. I didn't research if high ammonia levels cause TD. It's usually seen with people with mental disorders like schizophrenia.
Are you on a low carb or no carb diet?
My sister had cirrhosis from hepatitis C. Very very sad.
I’m sorry to hear that
I'm so scared of each day that comes
It’s a hard road. But keep pushing forward!
Start slamming B17 and do a long Intermittent Fasting. Prep your meals. =)
Hi there! Firstly, I want to say carry on! You're doing great & never believe -as you already seem to know- when Dr.s try & give you an epiration date; it's not right! I'm not a Dr (I have a BS in Biochemistry & Nutrition). but I did want to give you a caveat about your protein comments! The byproduct of protein metabolism is ammonia! Yes, chicken & fish are more easily digested but 100g portiion of a skinless chicken breast, actually contains 43g of protein vs a a lean 100g portion of beef which contains roughly 26g of protein! Your fattier cuts, dramatically decrease protein amts; a 100g chicken leg contains roughly 16g of protein. I'm not saying to eliminate protein from your diet as your body needs the amino acids for so many functions -tissue repair being 1 important factor, but know that fats are more helpful to the liver. Good quality avocado oil, coconut, & olive oils are great for the liver & there was a study done on liver repair w butter (again I'd opt for quality -like Kelly's Irish butter) Dr. Eric Berg has some great videos on liver repair. Also, a supplement called L-glutamine helps convert ammonia into urea, which is then excreted by your kidneys. Paleo Valley has a supplement of organic, grass fed liver & organ meats, so if you were to cut way down on your meat consumption, that would be a great addition! I also take Liver Defend by Clean Nutraceuticals -an amazing formula w beet root, milk thistle, NAC, TUDCA, dandelion, artichoke, Chanca Piedra, & much more! I had a nasty liver fluke infection which raised my ammonia levels drastically & made me very unsteady & brain fogged with confused thinking. I hope this helps! I know it seems like a lot of supplements, but with the combo formulas, it's really not to bad. You've got the right attitude & just keep on chugging! Slow & steady wins this race & the liver is the most forgiving organ! Happy Holidays!
Look up ivermectin and cancer. 😢
Milk Thistle Tea
Milk thistle is known to have the opposite effects once the liver has turned cirrhotic. The liver has to work harder to process it and when the tissue has died it has trouble processing it. But before thale liver turn cirrhotic it can have some cleansing effects.
@Redneckkenobi Dr Berg channel has a few videos about the liver.
@@Redneckkenobi nattokinase and serrapeptase to help break down scar tissue
I’m just gonna say one thing. I came across your video from three months ago. You look exactly like my friend Phil Miller, who passed away from liver cirrhosis. Physically, you look just like him. And I don’t think you get it. I just have to be honest - you don’t get it. None of your videos talk about what dietary changes are you making every day all day to change your situation.
It’s all dietary. All of it. What changes are you making?
I went through a few of your videos and you don’t even talk about it.
I want you to live. My friend Phil did the same thing - he had his head in the sand. He was your age.
I don’t understand your channel. I want you to change, but you are headed the wrong direction. It’s all dietary - you can turn it around.