My son is 25 on the Autism spectrum and recently diagnosed with Crohn’s disease and long segment Hirschsprung’s disease at birth. He, like Bella had multiple surgeries and is a trooper through it all. He has been suffering from obstructions from the multiple surgeries so we continue to search for relief. I am a medical mom with a full time job and I applaud you mom, and those alike, keep up the good work. Thanks for the reminder of hope.
Let’s go Bella. I am 24 and was diagnosed w hirschsprungs as a newborn. Have no large intestine and have 75% of my small intestine. Lots of bowel movements to this day and it is still a challenge for me to get through the night w no accidents. Another struggle for me is staying hydrated and watching my diet. Have to constantly drink water and eat healthy or I will end up feeling sick or lethargic. Started taking a B12 pill to help with energy levels and that has worked. Liquid iv water has also helped my stay hydrated. Tough life, but if you drink a ton of water water everyday and eat the right foods then you should feel fine.
My son is 25 on the Autism spectrum and recently diagnosed with Crohn’s disease and long segment Hirschsprung’s disease at birth. He, like Bella had multiple surgeries and is a trooper through it all. He has been suffering from obstructions from the multiple surgeries so we continue to search for relief. I am a medical mom with a full time job and I applaud you mom, and those alike, keep up the good work. Thanks for the reminder of hope.
Let’s go Bella. I am 24 and was diagnosed w hirschsprungs as a newborn. Have no large intestine and have 75% of my small intestine. Lots of bowel movements to this day and it is still a challenge for me to get through the night w no accidents. Another struggle for me is staying hydrated and watching my diet. Have to constantly drink water and eat healthy or I will end up feeling sick or lethargic. Started taking a B12 pill to help with energy levels and that has worked. Liquid iv water has also helped my stay hydrated. Tough life, but if you drink a ton of water water everyday and eat the right foods then you should feel fine.