Kali: Premature Baby With Hirschsprung Disease

Hirschsprung’s disease is a rare condition - it affects about one in every 2,500 babies born in the U.S. - and rarer still in Black children like Kali. See how Connecticut Children's saved her life and helped her thrive. Read the full story here: www.connecticutchildrens.org/...

[@ninabinnacollections]

As a Hirschsprung mom this is one of the hardest things to find a community for to help care for. my son he’s already had 4 surgeries and has 3 to go . Currently he has a ileostomy and we plan to put it back one day till then he’s my ostomy babe 😊

[@klassytv8151]

Nice

[@germanautencia4092]

My new born child has a hirscprung now..can you help us