Autism and Aspergers in Older Autistic Adults (60+ Years Old) | Patrons Choice

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  • Опубліковано 28 тра 2024
  • Historically autism was thought to be a childhood condition. However we now know that autism is a lifelong neurodevelopmental condition, and more and more adults are being diagnosed everyday, some of whom are already in their 70s and 80s, having lived their whole lives up until now without this ‘answer’ to the question ‘why do I feel different?’
    This video explores the experiences of older autistic adults navigating life and relationships along with all the regular challenges of getting older.
    TIMESTAMPS:
    00:00 - Introduction
    01:01 - The Impact of Autism on Older Autistic People
    07:56 - Assumptions about Autism
    10:46 - Older Autistic Adults with this new realization later in life
    13:40 - Are things easier or harder for Older Autistic Adults?
    17:15 - How can the rest of the community support Autistic Adults?
    CHANNEL LINKS:
    Patreon: / aspergersfromtheinside
    Facebook: / aspergersfromtheinside
    Twitter: / aspiefrominside
    Written Blog: aspergersfromtheinside.com/
    More Videos: / aspergersfromtheinside
    Email: aspergersfromtheinside@gmail.com
    -----------------------------------------------
    // WELCOME TO ASPERGERS FROM THE INSIDE!!
    My name is Paul and I discovered I have Aspergers at age 30.
    If you're new you can check out a playlist of some of my most popular videos here: / aspergersfromtheinside
    Yes, I know, I don't look autistic. That's exactly why I started this blog, because if I didn't show you, you would never know.
    As the name suggests, this channel is devoted to giving you insight into the world of Aspergers.
    This blog started off being just my story, but I've learned SO MUCH about my own condition
    from meeting others on the Autism Spectrum that now I make sure to feature their stories as well.
    I've come a long way in my own personal journey.
    Now I'm sharing what I've found so you don't have to learn it the hard way too.
    -----------------------------------------------
    // WHAT TO EXPECT FROM THIS BLOG
    You can expect me to get to the point with concise useful information.
    I focus on what is most important and don't shy away from difficult topics.
    The best way to learn about Autism is to see it in real life ( i.e. via the stories of many, many people on the spectrum).
    In this channel I endeavour to show you what Autism and Aspergers look like in real people and to also give you some insight as to what's happening on the inside.
    I upload a new video every weekend with some bonus content thrown in mid-week too.
    There's always new stuff coming through so be sure to check back and see what you've missed. (Is this where I'm supposed to tell you to hit that subscribe button?)
    Topics Include:
    - What is Aspergers/Autism?
    - Aspie Tips, coping strategies, and advice on common issues
    - Learning Emotional Intelligence (this is my special interest!)
    - Autism in real life: stories from special guests
    Everything I do is and endeavour to go deeper and take you 'behind the scenes' to understand what may, at first glance, seem 'odd'.
    oh, and I love busting stereotypes and turning preconceptions upsidedown :)
    -----------------------------------------------
    // ABOUT ME
    I discovered I have aspergers at the age of thirty.
    It has been my life's mission to understand these funny creatures we call humans.
    My special interest is a combination of emotional intelligence, psychology, neuroscience, thinking styles, behaviour, and motivation. (I.e. what makes people tick)
    My background is in engineering and I see the world in systems to be analysed.
    My passion is for taking the incredibly complex, deciphering the pattern, and explaining it very simply.
    My philosophy is that blogging is an adventure best shared.
    -----------------------------------------------
    // EMOTIONAL INTELLIGENCE TRAINING
    I also run autism friendly online emotional intelligence training. So if you like my direct, systematic style, and would like to improve your own emotional intelligence skills, check it out here:
    emotionsexplained.com.au
    -----------------------------------------------
    // CONTACT
    Blogging is an adventure best shared which means I'd love to hear from you!
    Feel free to leave me a comment or send me and email at any time and I'll do my best to respond promptly.
    Email: aspergersfromtheinside@gmail.com
    Thanks for reading and I hope you enjoy this channel!
    I look forward to hearing from you!
    Peace,
    ~Paul

КОМЕНТАРІ • 1,5 тис.

  • @brittvaughn9447
    @brittvaughn9447 Рік тому +811

    The whole "no empathy" thing kept me from realizing for years, because my empathy is extremely high.

    • @unknowntosociety01
      @unknowntosociety01 Рік тому +102

      Were perceived as rude and having no empathy because our thoughts/heart cannot be expressed like neurotypicals We come off as cold despite our best efforts

    • @michelvondenhoff9673
      @michelvondenhoff9673 Рік тому +38

      @@unknowntosociety01 Or maybe need some "switching time", there is a sense of delay.

    • @Sparkle.Dammit
      @Sparkle.Dammit Рік тому +55

      Exactly the same! And I thought I was a social butterfly, but I knew I was always performing 🤣

    • @yvonne3903
      @yvonne3903 Рік тому +55

      My 10 year old grandson is high on austistic scale and he is so full of empathy like no-one else I know and he tells me that we are exactly the same.

    • @michelvondenhoff9673
      @michelvondenhoff9673 Рік тому +43

      @@yvonne3903 Imho often higher in terms of sensitivity, definately not lacking empathy..

  • @susanbeever5708
    @susanbeever5708 Рік тому +680

    I’m 69 and diagnosed last month. I agree and understand these people talking. What’s depressing is looking back on a lifetime of knowing something wasn’t right but didn’t know exactly what it was. It affected my life in very, very significant ways.

    • @vincentconnell1283
      @vincentconnell1283 Рік тому +50

      I'm age 70 and discovered at age 69 that i was on the autistic spectrum. I had answered a questionnaire online and I scored significantly high. I was 46 out of 68. My whole life changed at 6 months old when was ill with measles and encephalitis. It was definitely due to a brain injury from the illness and changed who i was forever. It had significant effects on my entire life and does to this day. I have always been different. I ended up becoming a registered nurse at 41 and have majored in special needs people. I understand the autistic world better than neuro typical persons.

    • @vincentconnell1283
      @vincentconnell1283 Рік тому +55

      I have experienced grief over lost opportunities due to my deficits neurologically.

    • @Allthepills
      @Allthepills Рік тому +41

      I understand how you feel as I found out I was autistic 1year ago, I'm 40 I never knew what was wrong with me but knew I wasn't like other people

    • @vanessavaughan
      @vanessavaughan Рік тому +45

      Yes, it can be very damaging, not knowing. I felt I was just useless for not being able to do things that other people do so easily. And that affected my self esteem in a horrendous way. Recently, my mum told me that her and dad 'just thought I had a personality disorder'. And you said and did nothing about it?? Maybe I would have been able to get diagnosed before I was 49!

    • @connectedliving55
      @connectedliving55 Рік тому +32

      Same Susan, I started diagnosis for Autism June last year, then finally heard in November, that I was (i was 53). Such a relief at first, then the grief at looking back. The loss of friends, a life, work that if only I'd known, would not have gone into particular situations. We are now here in June and only just starting to understand my view of myself, what I can and cannot do and how I need to navigate. Be gentle with yourself, it's a lot

  • @user-up6bm5qg5e
    @user-up6bm5qg5e Рік тому +725

    This was such a tough video to watch. Sometimes it feels like the world only cares about autism when you are a child. They deserve support as much as children, or maybe even more.
    I think you're doing an amazing job giving voice to them. I really hope they find some support eventually.

    • @andreabuntpercy
      @andreabuntpercy Рік тому +45

      That's so observant of you. It is a tough video to watch. And Paul's doing something really special here.

    • @Wizardess
      @Wizardess Рік тому +36

      As a child in the 50s the incentives to be as normal as possible were absolutely incredible. Slipping my masking always felt like my life was in danger. This was the era of ice picks in brains for social misfits. I had to be (seen as) normal. That was an imperative that drove my life. Yeah, support and understanding, as much as an NT can manage, is WONDERFUL for the young folks. It was not even close to there, even after the "embarrassing Kennedy daughter" went public.
      Support now can best be served as "go along with the person's gag until they ask you for money" is the way to handle everybody. I'm just a little harder in that regard than most. Mostly we know we are different. I'd like to be "different but OK and not dangerous" for a change without trying to hide it all the time.
      {O.O}

    • @joycebrewer4150
      @joycebrewer4150 Рік тому +20

      @@Wizardess I am too young to remember the embarrassing Kennedy daughter. I am sorry you had such horrors to worry about. Just school bullies were hard enough to cope with for me. In an era when being a bully got you sent to the principle's office.

    • @1337flite
      @1337flite Рік тому +5

      So true.,

    • @VermisTerrae
      @VermisTerrae Рік тому +22

      Absolutely. I'm only 26 and I'm having such a hard time finding anyone who can assess me and help get me resources (that also take my insurance). Everything I've found so far has been for children, it's like they assume we "grow out of it" as we got older.

  • @YourSpeakingJourney
    @YourSpeakingJourney Рік тому +88

    90 years old my mom was finally diagnosed. Thinking back on her life, challenges growing up as a highly intelligent girl during the Great Depression and a lifetime of being dismissed, it’s a new start for her. Love these videos. Thank you

    • @taktoktek
      @taktoktek 2 місяці тому

      How did your mom get diagnosed?

  • @Winked98
    @Winked98 Рік тому +64

    I’m 72 and was diagnosed around three years ago, after suspecting that I had been on the spectrum for several years.
    The isolation under Covid gave me the chance to sort out my thoughts and to isolate my autistic traits from those I share with neurotypical people.
    My most common one (and the hardest to control) is the tendency to go down the rabbit hole in conversations - my enthusiasm for a topic blinds me to the boredom/irritation of others. When I realise, I get anxious and it makes me talk even more - desperate to be understood.
    My worst regret is the loss of my youth, accepting my family’s continual abuse for being ‘weird’ and their assumption that I should stay single as I was too unlovable to marry.
    I hung around for 40 years trying to win the approval and affection of those who were incapable of ever giving it. Now I suffer CPTSD along with the agonizing emotional flashbacks inevitably triggered during everyday interactions.
    If I had the chance to live my life again, knowing what I know now, I would take it, even with the abuse, for I would know enough to disregard the gaslighting and escape as soon as I could.
    Then I might have had the chance to carve out a fulfilling life for myself. I’m doing that now, but there is so much I want to do and I am already too old for much of it.
    Basically I need another lifetime.
    Grief? Hell yes! I feel loss for the life I missed, the time I spent achieving what was expected and using all my energy masking to achieve it.
    The knowledge that you are autistic is enormously liberating, it explains so much, it identifies your strengths, it outlines your areas of interpersonal risk and it comforts when you are told you aren’t acceptable. I grieve that I wasn’t armed with that knowledge until I was old.
    Thank you for this post. It showed me that I wasn’t alone.

    • @StillGamingTM
      @StillGamingTM Рік тому +6

      Oh yes people who are supposed to support you usually prefer to just put you down since you’re “weird” and get the quick ego boost from feeling “better than”.
      Funniest is when they think they’re subtle enough to not have you notice it, but in reality, you’re either just too polite to point it out and/or you still depend on them for some reason (e.g. financially) so you just decide to let it slide and wait for better times

    • @1Listen2Learn
      @1Listen2Learn Рік тому +8

      Heavens! I could have written both of these posts. I am gobsmacked to find, all in one afternoon, so many of my alien family. This makes me so happy! (Well, you probably know what I mean...)

    • @janebrown7231
      @janebrown7231 11 місяців тому +4

      That is so beautifully expressed. If I'd written about my experiences, it would be such a close match. Thank you for expressing this for yourself and for many of us.

  • @fadista7063
    @fadista7063 Рік тому +409

    I am 58 and have been wanting to see more content like this. This is an almost completely underserved group of people. I don't know what will become of me if I become incapacitated, there are no resources. I am ok now, working, reasonably healthy but super loner also. I worry about my cats if something happens to me. I just don't want to be incapacitated. Please dedicate maybe one video every quarter to this population--so needed!!!!

    • @WilliamFontaineJr
      @WilliamFontaineJr Рік тому +33

      You are correct this topic is so much needed and so invisible to the world. More please Paul!!!

    • @michaelbailey3666
      @michaelbailey3666 Рік тому +27

      Totally agree - .the late-diagnosis crowd has important and distinct issues that would benefit from attention.

    • @AdeleiTeillana
      @AdeleiTeillana Рік тому +21

      Yeah, I worry about my cats too. I'm not old old yet, but I've often thought I could die at home and be dead for several days (or longer) before anyone noticed.

    • @fadista7063
      @fadista7063 Рік тому +22

      @@AdeleiTeillana yes I think this is common for many people living alone. Most asd friends I have are very isolated with little in the way of family or close friends. We always seem to do better with distant friendships.

    • @katella
      @katella Рік тому +20

      @@AdeleiTeillana I joke about it, saying that my animals have permission to eat me if i die. But it is not really funny when you don't have anyone who cares if you're living or dead.

  • @tomc8929
    @tomc8929 Рік тому +125

    I'm 66 years old and realized I had aspergers at 64. It's been a lonely journey. I'm so glad to hear of other seniors who are in a similar situation. I've had 4 psychiatric admissions over the years and finally realized they were major meltdowns. Ive been misdiagnosed since I was 5 years old and now I'm retired and completely exhausted. Years of wearing a mask, I'm now mentally spent and isolated. It gets more difficult as you get older

    • @MrWaterbugdesign
      @MrWaterbugdesign Рік тому +9

      I'm 66. I've been a hermit for 4 years. Zero meltdowns, not even close. I've enjoyed that.
      I'm been researching for 3 years and now planning to move to SE Asia. I've always felt like routine was a danger for me so every 5-10 years I change things. There will be lots for me to deal with but I'll learn. I see some pluses. I don't think masking will be as needed. Being a foreigner I will be an outsider but that will be normal. For me everything will be unexpected so maybe won't cause a meltdown.
      Live-in housekeeper is $100/mo USD. No reason to be alone. Filipinos are world famous caregivers.

    • @thesincitymama
      @thesincitymama Рік тому +11

      @@MrWaterbugdesign this is a great idea! I’m living in an isolated Belizean hut and I highly recommend the relocation strategy. When you’re already a foreigner, nobody expects you to act “normally.” They just accept you for who you are.

    • @mannymoo
      @mannymoo Рік тому +6

      Hey Tom! I’ve been a hermit for my whole life and have come to the realization that I have autism/aspergers too. I’m luckily only 24 but I’ve been hospitalized in psychiatric wards times for suicidal tendencies. I always attributed my episodes to major depression and anxiety. But within these last few days I’ve been educating myself on the possibility that it’s always just been autism/aspergers

    • @tomsale5142
      @tomsale5142 10 місяців тому

      @@mannymoo are you hypermobile.just diagnosed 43 after sins diagnosis my grandfather had autism obviously always lead a hermit country life told his mum at 3 wanted be hermit.mum.ibvously has it severe ms do you have fybromyalgia pain ?

    • @cloudygirl66
      @cloudygirl66 9 місяців тому +4

      57 and I understand. I am so tired of loneliness.

  • @curiouscanuck
    @curiouscanuck Рік тому +40

    I've been blubbering like a baby after watching Paul's video. Crying because the people sharing their stories are like me and crying because I've been alone my whole life with no support. I'm a 73 year old woman. I know now that Asperger's has impacted my entire life. After coming across one of these videos a few years ago I did endless research and now after watching this video there's no question I'm on the spectrum.
    These are the only people I've told. My GP, my psychiatrist, my Mom, sister, son, and two close friends. Most have brushed this off as me being dramatic and weird. None have asked me about it or even mentioned it again so I haven't mentioned it again. I'm sharing this video with a couple of people I actually care about.
    Thank you Paul for all that you do for us. I so relieved and grateful.

    • @curiouscanuck
      @curiouscanuck Рік тому +5

      Follow up to my comment: This still applies:
      "These are the only people I've told. My GP, my psychiatrist, my Mom, sister, son, and two close friends. Most have brushed this off as me being dramatic and weird. None have asked me about it or even mentioned it again so I haven't mentioned it again."
      I shared Paul's video with 3 of the 7 people, telling them how important it is to me that they watch it. None of those 3 watched it. 😥 It's so confusing because I would never dismiss them like this.

    • @curiouscanuck
      @curiouscanuck Рік тому +2

      @Running Red Fox You’ve made an interesting point. Have you had a similar experience where the people closest to you don’t really know you at all? It can feel very lonely.

    • @curiouscanuck
      @curiouscanuck Рік тому +3

      @Running Red Fox Your observation is simple yet powerful. You’ve helped me see clearly that I’ve spent my whole life struggling with the same. Because I’m so different from my close family and large extended family the pressure to conform to “their version of me” created in me a nervous and guilt riddled child and woman who has always monitored my own words and actions to avoid disappointing and angering the people who should have accepted me.
      I’ve never been able to hold down a job because I was steered into the type of work I absolutely hated. I never knew how to find friends because friends were chosen for me. Average little girls growing up in the 50s were taught how to make a bed, fold laundry, cook and clean instead of being encouraged to further their education, and find their own hobbies and friends. The only time I feel authentic is when I’m alone.
      Red Fox, you’ve helped me more than you know. My regret is I’m 73 with health issues and limited time left to enjoy being me. Have a great day. Cheers from Canada. 🖐😊🇨🇦

    • @curiouscanuck
      @curiouscanuck Рік тому

      @Running Red Fox I had to look up Discord. 😁 I could be interested. What do I do?

    • @iskrajackal9049
      @iskrajackal9049 Місяць тому

      @curiouscanuk Try not to blame family and friends who don't "get it". Firstly there is still a lot of stigma about mental health issues, and Secondly, they have known you a long time and accepted your 'differences' as part of you so they probably see you as 'normal' and wonder why you're 'making a fuss' That doesn't mean that it's not important for you to enjoy making the best of things by being aware how AS affects you and also being kind to yourself and making peace with past struggles. May you find peace and joy in every aspect of your new life ❤

  • @AuntyProton
    @AuntyProton Рік тому +73

    Almost 53, diagnosed 3 years ago. This is the first time I've seen people older than me with Autism. Please thank them all for this video, and you for making it. I feel less alone now.

    • @anjareefschlager8317
      @anjareefschlager8317 Рік тому +5

      54 from Germany, just letting fall the mask down. I love singing and dancing and hugging you other aspies.

  • @lohphat
    @lohphat Рік тому +236

    I just want to give Josė a big hug. She’s a good person deep down and just needs to know there are people in the world who “get it” and you’d be a welcome friend.

    • @taoist32
      @taoist32 Рік тому +8

      I feel exactly like her except I am male and a bit younger at 48.

    • @morrows10
      @morrows10 Рік тому +20

      José, I understand so much of what you are going through. I just turned 60 in May, and it is difficult to be on the spectrum and an aging woman. Finding out this late in life is hard, because NOW I get it. All of those times when I wished I knew what they talked about. Anyway-we are finding each other now!

    • @barbay7162
      @barbay7162 Рік тому +11

      I'm seventy and I know and can feel what you are going through. I like you.
      Many thanks for the video to Paul

    • @GrannyGooseOnYouTube
      @GrannyGooseOnYouTube Рік тому +15

      I thought immediately that I would happily be her friend.

    • @danab3591
      @danab3591 Рік тому +2

      @@GrannyGooseOnUA-cam I thought the same

  • @Sundayjean
    @Sundayjean Рік тому +10

    I’m a 66 year old women who has never been formally diagnosed, and I relate to so much of what I’m hearing. Thank you.

  • @EliCrousey
    @EliCrousey Рік тому +217

    I think we, or many of us, have too much empathy. To the point it makes us shut down because we feel too much. We also do not always have a way to filter or the vocabulary to put to expressing feelings that overwhelm us. I also prefer to be alone but would like to make some aspie friends. 💕❤️‍🩹🙏

    • @LionTheHeart
      @LionTheHeart Рік тому +5

      Absolutely Lyzzy!

    • @recoveringsoul755
      @recoveringsoul755 Рік тому +11

      Yes, too much. My ex husband dragged me to funerals of people that I had never met, where I put myself in the shoes of the surviving spouse or children or mother and I'd cry my eyes out, and be a hollow drained shell of a person for weeks afterwards. Once he even thanked me for crying because he said he couldn't cry, it was someone he knew! He worked with or went to school with! He felt nothing??

    • @CherrysJubileeJoyfully
      @CherrysJubileeJoyfully Рік тому +21

      I do very well online and when writing. But if I talk I lose all my words and say too much or the wrong way. No one even some of my drs now still don't think I am. I have too much empathy and a high iq. I think some people are more comfortable assuming we're weird than they are questioning what they think autism is

    • @LionTheHeart
      @LionTheHeart Рік тому +3

      @@CherrysJubileeJoyfully Absolutely!

    • @EliCrousey
      @EliCrousey Рік тому +1

      @@recoveringsoul755 Sorry you had to go through that with the ex not understanding the damage he was doing to your extremely caring and beautiful soul❤️‍🩹❤️‍🩹🙏

  • @tombregman2875
    @tombregman2875 Рік тому +212

    61 yeas old. Not officially diagnosed but I know. I sometimes feel like what is going on in my head makes so much sense to me but it is perceived as "weird" by others. It is nice to see that other adults can understand. I am high functioning and can STRUGGLE to behave "normally" in business settings; but it is a constant struggle.

    • @mares3841
      @mares3841 Рік тому +9

      Less is best. Dr Huberman recommends walking = moving "face forward" through post stress, naturally moving eyes left and right like ESMR, and you will be pleasantly surprised how you will reconcile some past painful interactions and practice how you will be able to make your "best self" responses next time.

    • @verabolton
      @verabolton Рік тому +1

      @@mares3841 ESMR ? ! 🤨👀

    • @alexadellastella5247
      @alexadellastella5247 Рік тому +2

      @@verabolton EMDR

    • @p.m.5141
      @p.m.5141 Рік тому +12

      Becoming older, the struggle to fit in (in business life) got much heavier. One day the doctor suggested me to stop working and retire, so that I wouldn't have to "mask" anymore and could be myself.
      I did retire at the age of 59. The best decision ever. I now am who I am. And I don't have to consider the opinions of other people anymore.

    • @justgivemethetruth
      @justgivemethetruth Рік тому +7

      @@p.m.5141
      I did something similar ... but I find I get very isolated, and feel like I am slipping towards becoming the weird old man on the block, assuming I am not already! ;-)

  • @jjbud3124
    @jjbud3124 Рік тому +110

    I don't think Asperger people lack empathy. What they lack is the ability to know how to show their empathy.

    • @deborahlee8135
      @deborahlee8135 Рік тому +8

      Succinctly put

    • @TheBPM
      @TheBPM Рік тому

      +1

    • @Gandalf_the_quantum_G
      @Gandalf_the_quantum_G Рік тому +2

      That is called context-blindness. Recently got a book about that from my university library.
      But I come along well. With alot of humor I can always ask people at work again what they meant exactly. It becomes really funny when it's about dating.

    • @recoveringsoul755
      @recoveringsoul755 Рік тому +3

      Since it's hard to put things in words especially in relationships, do any of you think, (and I'm embarrassed to even be asking this), do you think in romantic relationships that we might just express our feelings for the other person physically, like in the bedroom or with backrubs, with touch? I think my love language was acts of service and my ex didn't want to do those. If I can't tell someone how much I love them, maybe I can show them? That kind of thinking I guess.

    • @jayfredrickson8632
      @jayfredrickson8632 Рік тому +6

      I literally feel physical pain when I see someone get hurt. I can't even watch the funny home videos show for all the people getting hit or falling down. It's so overwhelming that I can't show my concern to a person, it's too painful. So they think I don't care.

  • @ned_frankly
    @ned_frankly 2 роки тому +69

    59 this year. I was diagnosed 5 years ago. Before that, rafts of depression drugs I didn't need. Much better now...

    • @toughestgirlintown3254
      @toughestgirlintown3254 Рік тому +12

      Very similar experience:decades of often dangerous (for me) meds for depression ,stopped them under doctor supervision 6 yrs ago and formerly diagnosed this year at almost 59 years old. Finally I’m working with my brain,instead of against it = much more peaceful day to day.

    • @meganmahoney1749
      @meganmahoney1749 Рік тому +7

      This is fascinating. I’m 58, diagnosed a couple years ago.

    • @dimpsthealien333
      @dimpsthealien333 Рік тому +6

      Yes! I was misdiagnosed so many times and I was on horrible and unhelpful drugs. How are you managing now? What makes you better? I am open to any input. Thank you.

    • @meganmahoney1749
      @meganmahoney1749 Рік тому +7

      @@dimpsthealien333 personally I’ve been on lots of psych meds for many years. Now that I know I’m Autistic I’ve been tapering off them. Trying to be myself.

    • @dimpsthealien333
      @dimpsthealien333 Рік тому +7

      @@meganmahoney1749 that's wonderful! I too went off them years ago. That was long before I knew the truth about myself. But I am still anxious and depressed. I am not sure how to get out of this darkness.

  • @gayecairns7904
    @gayecairns7904 Рік тому +138

    I am 64 and self-diagnosed late last year. About five years ago, I did some provisional testing online and scored quite highly on several different available tests. I didn't think too much about it at the time but have been following Autistic UA-camrs, Tweets and Instagrammers because I have two Autistic grandchildren. I just kept having AHA moments. I have been seeing my 4th psychologist for about a year now and mentioned it to her. She showed me her notes about me where she had written "Autistic ?" in the margin but hadn't mentioned it to me. It seems that I am most likely Autistic with ADHD (deficit type).
    I am happy to start to get to know who I am and why I've never really fitted into social groups and always been a loner. It's okay. Now I tell people up front that I'm Autistic and ask them to be understanding. If they can't accept that, they can shove it. It has been enlightening for my husband of 45 years, and he is learning new responses to my behaviours. We are much closer now.
    I do grieve for the little child and the teenage me who always had mammoth struggles and was so misunderstood. I cry for her, but I'm happy for me. I just wish that I'd known a long, long time ago, my life would have been very different.

    • @retyroni
      @retyroni Рік тому +13

      I understand grieving for the child and teenager. I expected eventually the 'acceptance' and 'moving on' part of grief but it didn't seem to happen. This year I'm trying instead to treat them as still alive in me and requiring my care and attention. E.g. the child was creative and imaginative so I make time in my life for creative and imaginative things.

    • @johnzimpelman9018
      @johnzimpelman9018 Рік тому +5

      I can personally relate to struggling in my childhood and teen years as a loner and having difficulty being able to article myself socially. I don't have many fond memories from thrse formative years and was diagnosed over 5 years ago as I was born with Asperger's. I wish, as you openly stated, that I knew this back then to be able to navigate my life better. I will say my diagnosis was rather cathartic and I am more at peace with myself than ever before!

    • @kathyharmon2093
      @kathyharmon2093 Рік тому +1

      You have what many never have, a spouse who accepts you, happy for you 😊

    • @gaylegreene
      @gaylegreene Рік тому

      Same

    • @verastanding
      @verastanding Рік тому +1

      I'm 60 and I've grieved for the child and adolescent me too. All the best.

  • @WilliamFontaineJr
    @WilliamFontaineJr Рік тому +68

    My wife and I are both 67. She’s autistic/ADHD I’m ADHD/dyslexic. We both found out (undiagnosed) after multiple grandkids were diagnosed as Autistic and or ADHD. The changes we have experienced because of this awareness and learning (fromPaul) and others has run the gambit of emotions and begun a process of personal reflection, change and relationship upheveal that will probably not end. We are both grateful for the knowledge yet find ourselves grieving over what could have been and how our lives would have been shaped if we had “known before”. Our future together is significantly brighter because we know and slowly we have been informing family and friends starting with the safest. It appears this process will take years particularly for my wife, because she has experienced orders of magnitude more trauma as a result of peoples reaction to autism. Thanks Paul for all you provide it changes and improves peoples lives. Thank you to each of the panel for being willing to share your personal experience I found it comforting to hear of your experience. Thanks to each of you!

  • @thankfullfortruth4964
    @thankfullfortruth4964 Рік тому +190

    Thank you, my dear family. Aspies are like treasures. When you share, my whole being lights up, because I recognize you and share your experiences and perceptions. What a huge gift for a person who at 83 has never fit in, never been allowed to be authentic, been alone in every circumstance. To discover my Aspie personhood is real and I am not just a stupid, crazy, to be avoided outsider! Thank you all for comforting my scarred and broken heart, before my life is over.

    • @lorinapetranova2607
      @lorinapetranova2607 Рік тому +16

      Sending along blessings of inner peace and loving kindness. It's tough trying to exist in this bizarre world without extra gifts from beyond. I like to think of myself as an endangered species. It works! Many blessings to you in your journey. 🌸🦋

    • @NorthernGreenEyes
      @NorthernGreenEyes Рік тому +3

      🙏

    • @cupofteawithpoetry
      @cupofteawithpoetry Рік тому +2

    • @AmySorrellMusic
      @AmySorrellMusic Рік тому +5

      I would hug you, if I could.

    • @edwigcarol4888
      @edwigcarol4888 Рік тому +5

      Thich Nhat Hanh had so wonderfully comforting words.. (having suffered from the vietnam war . That is his true life experience)
      It goes like that
      "Suffering is an information, kind of teaching you.." "If we practice good gardening of ourselves, suffering is the mud nourishing the new flowers that will grow out of it"
      I am so rich! Thank god for all the teaching.
      In my retirement i am gardening myself.
      God bless you all
      Peace
      (67. Europe)
      And it is never too late. Understanding and innerpeace only need the right moment, a minute or two to raise.

  • @smileyface702
    @smileyface702 Рік тому +35

    Yes, Bill! When people try to "fix" my problems, it makes me feel unseen, unheard, not accepted as I am, not capable of knowing and helping myself.

  • @tombregman2875
    @tombregman2875 Рік тому +98

    I am 61. Yep! "Learning to catch myself when I go down a rabbit hole in a conversation" This can be SO difficult to do. And the funny thing is that I know what I am doing when I am doing it but I just can not stop and correct the course of my speech while it is happening. I have learned that the best thing for me to do is to own my words and apologize if my words were offensive.

    • @latishiaeddarif2888
      @latishiaeddarif2888 Рік тому +16

      Yes it's hard to refrain from doing so. Though if Im quietly sitting and listening , that's hard for folks to accept.

    • @yvonne3903
      @yvonne3903 Рік тому +8

      Yes you see the whole story and it doesn't make sense without the details?

    • @steveneardley7541
      @steveneardley7541 Рік тому +11

      Yes, here I am talking to a customer, explaining absolutely everything about something they aren't really interested in. I know I need to shut up, but have such incredible difficulty actually doing it.

    • @Lonewolf__666
      @Lonewolf__666 19 днів тому +1

      Going down the rabbit hole can be exciting for us, but bores the pants off NTs. 🤣

  • @CosplayCore
    @CosplayCore Рік тому +152

    Can someone let Jim know that the “lack of empathy” is likely a misconception??? I’ve never met someone with AS who doesn’t have very strong empathy that shows itself in the most unexpected ways…
    Myself included. Especially toward animals for me in particular. I almost cried when I saw a guy traumatizing a baby bunny when he was attempting to rescue it today…

    • @schizotistic
      @schizotistic Рік тому

      there are many autistic people who have high empathy, but there are also many autistic people who have low empathy. many autistic people even have a mix of both high and low empathy, since there are different types of empathy

    • @Catlily5
      @Catlily5 Рік тому +20

      Empathy has a different meaning to psychologists than to most people. To psychologists empathy means you don't read people's emotions well. That doesn't mean that autistic people don't care. Most of us do care about others once we know what is happening with them.

    • @recoveringsoul755
      @recoveringsoul755 Рік тому +16

      That empathy thing throws me off too, I'm not diagnosed but I feel like I have too much empathy most of the time. With the way the world is now, I almost feel like it's better to just be numb

    • @marcusfromoz7066
      @marcusfromoz7066 Рік тому +32

      We don't lack empathy, we lack the ability to unconsciously display the signals that people read as empathy.

    • @gerghodges5317
      @gerghodges5317 Рік тому +25

      or, I have empathy but do not understand how saying ohhhh what a shame, or hugging a person can help, so do not respond in that way.

  • @nryane
    @nryane 11 місяців тому +5

    Just diagnosed at 80, after instituting an assessment last year. Another 2-plus months and I’ll be 81.
    I have always felt “different”, done things that are considered socially “rude” or “odd”.
    I have challenges with procrastination, completing projects, organizing my place, yet can make a presentation to a group of people that is comprehensive and organized, informative.
    I have also been diagnosed with “unspecified ADD”, which may contribute to my challenges.
    It’s relieving to have a diagnosis and I intend to search out recommended resources to help me with those challenges.
    Thank you for having this forum, which allows me to see and hear “my people”.

  • @idontuseahandle
    @idontuseahandle Рік тому +44

    A very affirming video for me, thank you. I’m only 48 - look and feel 60 - due to a lifetime of masking ASD, ADHD, OCD and CPTSD from childhood abuse. I always wanted letters after my name (after 4 failed attempts at Uni) just didn’t expect so many! For years I mistook ASD & ADHD for CPTSD, and finding out I’m neurodivergent has enabled me to forgive myself for being me, not the useless broken no-hoper loner that friends, family and me have been saying all my life. Yr channel has proved so helpful to me, this video especially ❤️

  • @lisaweinmeyer5782
    @lisaweinmeyer5782 Рік тому +129

    That was a great video!! I am 57 and was worried that I would not fit in, I am so grateful to hear all the comments made by the 60+ gang. It must have taken alot of courage!

    • @WilliamFontaineJr
      @WilliamFontaineJr Рік тому +10

      You are right, so much courage. One thing I now know autistic people are incredibly brave no matter what the world thinks.

  • @ArtsyMegz_On_Etsy
    @ArtsyMegz_On_Etsy Рік тому +51

    I can totally relate, especially to Jose . . . I don't feel enthusiastic about meeting new people. Training new people at work is stressful, because they often want to be my friend, but most of the time I would rather spend time with myself (and my cat).

    • @unknowntosociety01
      @unknowntosociety01 Рік тому +8

      Im creating extra work to be too busy to train our new guy at work, just got news that we have another person joining soon and im dreading having to mask even more now to appear like Im someone they can rely on to learn the ropes and actually knows what hes talking about. Misery

    • @ArtsyMegz_On_Etsy
      @ArtsyMegz_On_Etsy Рік тому +5

      @@unknowntosociety01 Yes, it sucks! I had to train 3 new people, but the first 2 didn't stay. In that case I was having to work with a new person per week for 3 weeks, and then anxiety and burnout really got me. I was afraid that I was just going to quit my job, and then become jobless. This third new person has been with us for about a month now and I am just beginning to figure her out. She is quite extroverted and we had some conflict a week ago, because I confronted her about things not being clean, and she got upset. I was afraid that I would have to carry the full workload myself, because I would have to clean what she didn't clean. I may start to have hope now. Good luck to you though. 🙏

    • @louanon
      @louanon Рік тому +5

      can relate to this but a cat would be too much persistent socialising for me and I prefer birds

    • @ArtsyMegz_On_Etsy
      @ArtsyMegz_On_Etsy Рік тому +3

      @@louanon Fair enough ☺.

  • @jonmars9559
    @jonmars9559 Рік тому +185

    Though I'm not quite 60 yet, this topic is for me. As many of us in this age group know, few Aspies get this far in life unscathed. Looking forward to this video.

    • @peterwynn2169
      @peterwynn2169 Рік тому +17

      I said to my cardiologist, "I had 35 years of not knowing why I was different, I've had 11 years (now 12) of knowing that I'm autistic and I want another 46 years minimum, of positive autistic living ahead of me." She said that she liked that attitude.

    • @KarenMSmith-ck3ul
      @KarenMSmith-ck3ul Рік тому +6

      Also if you were born in the 60s, we are of the generation where it wasn’t diagnosed especially in girls. Females weren’t even studied until 1992 I think (will check).

    • @NorthernGreenEyes
      @NorthernGreenEyes Рік тому +1

      @@peterwynn2169 I'm 38 and never understood why I was until a few years ago even then I didn't grasp it because I wasn't "handicapped"
      That's the stigma.

    • @christineblaney98
      @christineblaney98 Рік тому +3

      It's hard to find stuff that isn't aimed at children tbh

  • @niranjana6435
    @niranjana6435 Рік тому +125

    I love Jim’s comment “Try to look at what we’re good at instead of what we’re not good at. Because what we’re not good at is so obvious.” 💙🥲

    • @joycebrewer4150
      @joycebrewer4150 Рік тому +3

      ❤️❤️❤️‼️

    • @kiplarson4469
      @kiplarson4469 Рік тому +2

      This resonated with me so much.

    • @brigidtheirish
      @brigidtheirish Рік тому +3

      *Yes.* I spent a lot of my life struggling with something but breezing through others. My parents said that one of my problems with school is that so much comes easily that when I run into something that's hard, I don't want to do it *because* it's hard. We didn't know about Asperger's at the time, but there was truth to what they said. I just had trouble seeing that because it seemed like I struggled with far more than anyone else. I even told Mom that I was upset that my little sisters were better at many things than me because I was older and supposed to be better. She had to explain that everyone has things they're naturally good at and things they simply *aren't.* She also tried *so hard* to teach me to cook, sew, and other domestic things. I'm getting a bit better with the sewing (as I'm pushing 40) but I still *suck* at cooking. I get distracted too easily.

    • @NorthernGreenEyes
      @NorthernGreenEyes Рік тому +1

      🥰

  • @fullmontycarlo
    @fullmontycarlo Рік тому +13

    I’ve just learned at the age of 57 why I’ve seemed so different all these years. I am still processing this revelation and cannot discern if I am relieved or not. How different would life have been if I had known sooner?
    It’s strange. I so very much desire to be with people. However, when I am actually with others, it feels like an arduous task that evokes so much anxiety.

  • @RainbowLane
    @RainbowLane Рік тому +46

    Thank you Paul, for this excellent video. It brought a lump to my throat as I listened to each of the stories. I can identify with every single one and I send my thanks to you all for speaking up. At 66, I too am completely mentally exhausted from a lifetime of being a ‘square peg in a round hole’. And Paul, this is the first time I have seen ANYONE speaking up for over 60s with Autism - this has made me feel relieved that I am not alone in my mental exhaustion - it was abundantly clear from these stories that this is a common thread. I’m U.K. based and it is almost impossible to ‘come out’ as Autistic in later life here. I’ve known since 2005 that my lifelong ‘weirdness’ has a name. It was a huge relief but then what? I masked very well all my life and suffered deeply behind closed doors. The few people I tried to tell denied it on my behalf! You? Autistic! Ha ha ha - don’t be stupid - that kind of thing. There is one person on this planet who knows the real me and that’s my husband. The thought of ever having to live in this world again without this understanding fills me with dread. So I try to concentrate on being thankful for each day as it is now and not fret about the future. I’ve finally stopped trying to ‘fit in’ in group situations (like the choir I joined and really struggled with inside my head for a few years). As you all point out, as we get older we seem to lose the ability to mask and play the game of fitting in. Although I have never really been a part of a big group of friends, I have been very good at making long term solitary friends who like me for who I am and vice versa. There is a certain kind of person who ‘gets me’ and really appreciates all the things about me that seem to push others away. I value those friends so much - intelligent NTs (some maybe Autistic too) who don’t judge my ‘weirdness’ as being a negative thing, so I don’t feel compelled to hide it. Thanks again Paul and all those in this video - you are all shining lights for us over 60s Aspies out here not daring to speak up for ourselves in the NT world. You’ve made it that little bit easier to cope. 🙏

  • @tomholmes473
    @tomholmes473 Рік тому +59

    This is a heartfelt and honest look at autism and what it’s like for people. I want to thank the people in this video for their vulnerability to share their lives. Thank you all.

  • @WoodstockG54
    @WoodstockG54 7 місяців тому +4

    I’m 70 years young. I’ve suspected but as of now never been diagnosed. As a kid, I didn’t start talking until I was 4. I was the bullied kid that finally had enough and dropped out of school at 14. While at school I failed at everything until a math teacher figured me out and taught me the joys of math where I went from a 15% to a 98%.
    I’m married, but live in separate houses in the mountains of British Columbia. I for the most part find it extremely difficult to socialize. I find my peace of mind sitting beside a creek, under old growth cedars, meditating, with my dog looking out for me. My only advice, embrace your uniqueness . I look around and see how others live and I become grateful for being me.

  • @nynomi
    @nynomi Рік тому +15

    I'm almost 54, my mother realized it at 55, and I saw my grandfather age to 86 as an autistic undiagnosed person. I'm going through burnout right now and having a hard time masking and having frequent sensory overload. This has been helpful.

  • @RazmiWellness
    @RazmiWellness Рік тому +37

    I'm 50 and self diagnosed because I've gotten really good at pretending to be neurotypical.
    Hearing you all is hard to express. I have overwhelming empathy and I know that I'm like you because I find you all so endearing. I think the key is for us to be there for each other!
    Best wishes to you all.

  • @Jas-zzz
    @Jas-zzz Рік тому +147

    Thank you to everyone involved in this video. It means so much and I would love having any of you in my life. I can't believe that you and ones like you are out there and it makes me feel good knowing that💖.

  • @edwardsong7628
    @edwardsong7628 Рік тому +44

    I can really relate to your videos. Realizing that I'm autistic really made sense of my life. I always thought that I was funny, kind and empathic, but no one else thought I was. I've never been a good masker. In fact, when people told me I was weird, I'd reply that I was unique. This might have saved me a lot of energy. But I paid a high price. I spent most of my life without friends, no job and no partner, despite being both a Ph.D. economist and lawyer. After a long spell of unemployment, I'd find a job and after a couple of days get fired for vague reasons or be presented with a list of grievances I caused the employers. A few years ago, I did find a job as a substitute teacher. I didn't qualify for the position because I didn't have good references. When the human resource department requested that I get a new list of references, I told them that I wouldn't be able to work for them. Due to teaching shortages, they waived my reference requirement.
    I've discovered revealing myself as autistic can sometimes be helpful, but can also sometimes backfire against me. Now as a substitute teacher, I've discovered that if I reveal to students and staff that I"m autistic my employment tenure tends to go more smoothly than if I attempt to mask. On the other hand, I revealed to my doctor that I was autistic and the result was that they stopped taking me seriously. They told me that my nerve pain and numbness in my feet for the last five years was probably just a product of my imagination.
    I agree with an earlier video of yours that we are innovators, but not leaders. Years ago, my proposed doctorate dissertation on the economics of the greenhouse effect was shut down on grounds that climate change had little scientific basis so I changed to a then more mainstream topic. I was rewarded a Ph.D., but since I didn't get along with my professors, I couldn't find a job. Today, I am happy to know that my proposed dissertation topic is now mainstream in economics.

    • @BetheChange80
      @BetheChange80 Рік тому +1

      So when did you realise that you were Autistic, and how did your immediate circle of relations(parents, colleagues etc) react?

    • @edwardsong7628
      @edwardsong7628 Рік тому +1

      @@BetheChange80 In the early 2000s.
      I grew up in a narcissistic family structure. The assessment confirmed family members' belief that something was wrong with me and was further evidence that I was the problem.
      Since my original comment, a couple of my doctors and primary care doctor apparently have blacklisted me. Thus, I'm worried that I've set myself up for poor future medical care. As for my colleagues, the results are mixed. Since my original comment, I've discovered that it is a bad strategy to reveal my autistic identity right up front. Revelation requires some tact. It is best done early in an assignment but in an indirect way.

    • @Topg1
      @Topg1 Рік тому +1

      I’m glad you were able to overcome that.

    • @alray82
      @alray82 11 місяців тому +2

      I am sorry to hear of your challenges. I hold a BS and a MS in engineering. I also have gotten fired for every single job, except my last math teaching job this year. I usually get praised on my jobs at the beginning for my ability to figure out creative solutions but then a few months later they don't like my personality. I feel frustrated with people cause they are not very intelligent, do not pay attention to details and are not very efficient. After I got diagnosed I started studying my condition and realized that I did not have much emotional intelligence. Slowly, I am learning to be more patient, more compassionate as I realize that people mean well and are doing their best. I was lucky that I got a couple of houses a few years ago and some rental income from them. My marriage did not last long and my older son does not believe I am autistic even though I had a formal diagnosis a few years ago when I was 54. I wish I knew that my ways to express myself come across rude at times and that people are doing their best. It is getting better but I still have a lot to improve.

  • @planetag310
    @planetag310 Рік тому +10

    I'm a 65-year-old woman who has some autistic traits. I always thought I was just an introvert, but like that one lady in the video, I've always been a total loner. Friendships have been hard for me and I prefer cats to people. I only learned about masking a year ago and realized that I do it all the time. Unlike many people with autism, though, I have good executive function and have worked at a desk job most of my life. Now that I'm working from home, it's been a relief to not have to see or deal with co-workers I can't relate with and I always feeling like an outsider.

  • @peterwebb8732
    @peterwebb8732 Рік тому +36

    Ironic how many people criticise us for lacking empathy, while simultaneously showing no empathy towards us.
    They can’t do that because they don’t understand us... which demonstrates how poorly empathy brings understanding. You have to understand before you can properly empathise. IIRC, Tony Atwood wrote that NTs have a Master’s Degree in non-vocal communication, so empathy “works” between them because they tend to think and react alike .
    That is assuming that their cultural backgrounds and core values are similar. Attempting to empathise with violent criminals has only lead to observed failures in our judicial systems.

    • @gigiwills7851
      @gigiwills7851 Рік тому +2

      I *love* this comment! It reminds me of so many funny stories in my life about my Aspie son lovingly referred to as "my last ten children". He was a challenging child. Although I readily saw what a sweet nature he has, he was not considered so in school, where the remedy was seen as apply more discipline. They meant I should hit him! This has a happy ending in that I finally found a school that could figure out what he was missing in his education and fill in the gaps. He graduated high school with better academic skills than his sibling, and went on to get a BA in history. I didn't recommend this major, but he was anxious to prove he could succeed academically like his sibs.
      I never saw him with his masks, as people call it here in these comments, until he was in his late 20's when I attended a dinner party with him. He was animated and extremely witty. I was astonished.
      It is important to note the difference between sympathy and empathy. @Peter Webb is describing sympathy. The commenter above that describes crying at funerals of people she does not know--that is empathy. She empathasizes with the grief in the room; she feels it. Sympathy is the I-know-how-you-feel crowd; that is, if I were in your position, I would feel that way too.

  • @richardcunningham2329
    @richardcunningham2329 Рік тому +35

    I have searched the internet and UA-cam for information about late diagnosed seniors, and this is the only one I have found. Thank you. It seems that when the community talks about adult autism, they are talking about the 20, 30, and sometimes as old as 40. I was 72 when my therapist suggested I presented with autistic traits. This knowledge has changed my life for both good and bad. I have come to realize that I have been masking for so long that it's now an automatic reflex. Anytime I'm around even one other person, the mask goes on. I'm now wondering about the people in my life who consider themselves to be my friends. Are they really just friends of my mask? Will they remain my friends if the mask comes off? It takes a lot of effort to keep the mask on, and it takes a lot of effort to take the mask off.

    • @1Listen2Learn
      @1Listen2Learn Рік тому +2

      Brilliant and accurate. Thanks!

    • @edwigcarol4888
      @edwigcarol4888 Рік тому +4

      Now i am really really grateful towards my cognitive behavioral trauma therapist to have let me discover my abilities and major issues without any labelling at all! Over a decade . But in the way he has supported me, i know now with 67, that he knew that. This is SO tactful!
      Once i asked him "have I Asperger's?" He answered "Labels are not of great help. The point is to discover with trial and error what you are able to and what does not work"
      In fact saying me that would have been an absolute contraproductive No-Go, as my trauma consisted of my mother rejecting and insulting me as "crazy" as i was just this fragile struggling labile teen-ager

  • @bulldog6369
    @bulldog6369 Рік тому +6

    I am 63 with Autism . I like to be with my dogs and cats.

  • @Smartgran
    @Smartgran Рік тому +31

    I am 72 and was diagnosed last year. I could identify every single difficulty and anxiety I have tried to overcome since early childhood. The process here in Scotland was pathetically uninformed and didn’t even offer specific counselling especially given the revelations and outcome of the process on my psychology. I am now a very angry aspie and have dropped a lot of my coping mechanisms in favour of being myself. I actually now like being me but my vigilance level is low so I am like an unguided missile at times. I have a part time volunteer job and have made sure the management know more about ASD than the very limited understanding they had. There is a huge deficit in mental health services in Scotland which has to be addressed.

    • @edwigcarol4888
      @edwigcarol4888 Рік тому +2

      I saw one day a report on Autism in Great britain. This showed a mother having a severely disabled child, growing up, becoming stronger and behaving agressively against his mother. As he could not speak, he resorted to blows. This was so shocking, considering the gravity of his condition. No support of any kind AT ALL. Dreadful.
      But there is also this case in Germany of a schizophrenic paranoid young man.. the health services had ignored all calls for help and warnings, till this poor lost man hit a knife in his grandmother's belly killing her.
      So support for Aspies? Nothing to expect. We help one another.

  • @kathirisk1259
    @kathirisk1259 Рік тому +28

    It's so good to see that other people my age are experiencing the same things I have - it makes me feel less alone. Generations ago, the Aspies were called "eccentrics" and they lived in boarding houses where they didn't have to be responsible for all the little things that are annoying to us - someone cooked for them, cleaned for them and basically looked after them so that the Aspies could just do their jobs and still function. I have burnt out of so many jobs and felt like a total failure because of that. But now it makes sense - the energy I've had to expend to seem "normal" is completely draining. And I've always said that "I'm the Queen of Tact because I have none!" I haven't always been very successful with the "masking" - I'm too forthright. And it is definitely getting harder as I get older. I actually can't wait to move into a seniors home where all my meals are provided - what a weight that will take off of me - no having to plan ahead, purchase groceries and keep an eye on the stove as it cooks lol!

    • @JB-hj2vj
      @JB-hj2vj Рік тому +6

      I had a colleague 20 years ago who would have been an Aspie and he lived in a boarding house. I live a minimalist lifestyle in a small apartment. It definitely helps with energy management.

    • @katella
      @katella Рік тому +6

      I thought i was the only one who had that idea that it would be great to live in a home where someone cooks and cleans and you don't have to manage all the tasks of everyday life. As long as I could get out into nature I would like that setup.

    • @StillGamingTM
      @StillGamingTM Рік тому +3

      My grand plan was to get as rich as possible as young as possible so that I could outsource that stuff and somehow get by. I assumed it would get harder with age given that it’s an energy thing. And it is indeed getting harder

  • @t9j6c6j51
    @t9j6c6j51 Рік тому +10

    57 yesterday. Diagnosed 3 years ago. I understand myself better, but I still hate it.

  • @sandrallewellyn3570
    @sandrallewellyn3570 Рік тому +42

    Hi! Happy to see all of you. Thanks Paul! i’m 83 , found out 15 years ago. Total happy shock when I found out by accident. I worked in nursing for 50 years mostly in pediatrics l So I was angry that I didn’t know

    • @tombregman2875
      @tombregman2875 Рік тому +10

      I am 61 and have not been diagnosed but I have always known that something was different about me. Watching these videos has helped me to better understand. Not sure that a formal diagnosis would help more than the peace that I am starting to feel now with my "self diagnosis".

    • @thankfullfortruth4964
      @thankfullfortruth4964 Рік тому +2

      Share your astonishment. I am 83 wirh a degree in psychology - looked for answers very seriously. Have a high IQ but ...that is no measure of being able to see and accurately respond to social cues and expectations. The whole abstracting process is slanted away from social norms. Wrong planet says it all😊

  • @stephenbalga102
    @stephenbalga102 Рік тому +14

    Though not clinically diagnosed I know I have Aspbergers. I finally came to this conclusion around 2005 after extensively investigating autism online. When I read about Aspbergers I started to cry. I was reading about me! In grade school in the 1960's the school had me see shrinks cause they couldn't figure out how I could score so high on aptitude tests but have such mixed grades. While I have had friends, I am most comfortable on my own. I function well at my job but its emotionally exhausting. I frequently just veg at home to recharge my emotional batteries. Ironically I am very good at public speaking but one on one I have to police myself lest I drone on monopolizing the conversation. Those around me who know still don't understand what my condition is all about and think I should seek treatment rather than accept me for who I am!
    Now that I am older I don't try as hard to mask me. I am getting to the point of saying take me or leave me.
    Thank you so much for your videos. Its great to see I am not alone!

  • @madisheppard9190
    @madisheppard9190 Рік тому +6

    Autistic elders and older adults have always been the most loving, pleasant, and genuine people I have ever met. So many NT’s seem to live in a mindset of right and wrong, being right or not right, but those who are autistic have always been themselves (after those who I was close with dropped their masking slightly) it’s like I could see the radiant light of their genuine hearts shining through. That’s something that’s hard to come by nowadays

  • @rwithers3
    @rwithers3 Рік тому +9

    68 this year... self diagnosed last year...I loved working construction, difficult being around people...

  • @patrickdemets6018
    @patrickdemets6018 Рік тому +15

    This resonated so much with me! I'm 60, recently retired, been somewhat weird all my life, preferring to work with machines than with people, worked in technical and IT fields, struggling to fit in, happy to be by myself, special interests/obsessions, a bit OCD, etc. I exhibit many of the signs of ASD (high functioning), what used to be called Asperger's. The masking, pretending, and impostor syndrome is just draining and overwhelming, so I've given up most of it. Over the past ten years I've looked into assessments and diagnosis, but here in Alberta it's all at own cost, unless you're in dire need, so it would cost me upwards of a few thousand dollars for a full work-up. At this point in my life, I don't see any benefits to a positive diagnosis other than confirmation of what I've suspected for a very long time. It's sad and difficult when people just don't "get me" (especially my family, who probably all think I'm just being an asshat on purpose), but I'm fine being the weird old man who keeps to himself.

    • @weavervideo
      @weavervideo Рік тому +3

      Be yourself. No one else is 🤗!

  • @2dannyp
    @2dannyp Рік тому +20

    I am 69. Self diagnosed a few years ago by watching these expected videos.
    So excited and grateful for all of for all of you people who are just like me.
    Heading your stories has opened a new reality for me.
    I wish that you all were my close friends.

    • @1Listen2Learn
      @1Listen2Learn Рік тому

      Nah, we can't be close friends bcz that's so exhausting (🤣), but we'd probably like you well enough! Very best of luck to you! 💛

  • @kimposible3085
    @kimposible3085 Рік тому +10

    Thank you for this! I am 49 and newly diagnosed. I am so so so relieved! Yet, the more I research and hear, I am truly PISSED! There is no money in autism. No cure. We don't want a cure. The money to be made is with the kids and this is why I believe the focus is on the kids.

    • @debra1363
      @debra1363 Рік тому

      Sorry but I'm 64 and if a cure was found I would take it today!

    • @kimposible3085
      @kimposible3085 Рік тому

      @@debra1363 and then what?

  • @octoberdawn1087
    @octoberdawn1087 Рік тому +9

    Wow. This happened to me in my late 30s. I was done. Exhausted from religious rules, therapists (who were going by 1970s type standards) and I couldnt fit in ANYWHERE. I was kicked out of 3 churches and bullied out of the 4rth one. Ive always been the scape goat etc.
    I had no clue that Im autistic. My kid's doctor figured it out. But the diagnosis changed everything.(Im 43)

  • @linden5165
    @linden5165 Рік тому +72

    I always love to hear from older autistic people. I'm in my 40s and thinking carefully about the trajectory of my life from here on now that I know I'm autistic. It seems that fatigue is a big feature in later life and an even bigger need for living true to personal needs.

    • @ArtsyMegz_On_Etsy
      @ArtsyMegz_On_Etsy Рік тому +13

      Yes. I literally researched autism and aging because I am already finding it difficult to mask at 36 years old. I never considered autism until I realized that I could no longer tolerate long, hard grueling days at work, and unable to fully mask my irritation towards people who are just too much for me (making small talk with me and knit picking at things that don't matter (such as asking me why the soap bottle fell into the sink, and asking how I tipped it over and why) 😶. I have a hard time looking forward to all of that again.

    • @latishiaeddarif2888
      @latishiaeddarif2888 Рік тому +6

      For me , masking definitely takes a toll on my mental and physical energy.

    • @sylviaingram9910
      @sylviaingram9910 Рік тому +8

      @@ArtsyMegz_On_Etsy “Asking me why the soap bottle fell in the sink,etc” I can so relate!!! This made me lol.

    • @deborahlee8135
      @deborahlee8135 Рік тому +13

      @@ArtsyMegz_On_Etsy and then they're irritated/angry because you answer their questions about the soap bottle because you've taken the questions literally and not read the sarcasm. (That's my experience in similar situations).

    • @ArtsyMegz_On_Etsy
      @ArtsyMegz_On_Etsy Рік тому +7

      @@sylviaingram9910 Every freaking day I tell ya! Or I drop a piece of scrambled egg on the counter; and the next thing I hear is, "What's that?!" as they point at it; and then ask me why it's on the counter. You should see me fight with myself to try and come up with an answer (because how do you answer that question without making them feel stupid after?). I'm not looking forward to tomorrow Sylvia . . . I'm telling you right now. 😳

  • @deborahlee8135
    @deborahlee8135 Рік тому +21

    59 and diagnosed two and half months ago. I really relate to everything these beautiful autie elders had to say. I burnt-out, but still had to force myself to go to work almost mute, shaking, crying all day as I had no support and no manageable strategies. Eventually referred and waited months for testing and confirmed ASD. I'm coming out the other side of the grief now with regular therapy, lots of rest, trying to grapple my way back to managing to maintain the basics of wake, eat, exercise, sleep. I'm unsure whether I will be capable of returning to work full-time (biggest environmental impact on my hypersensitivity). Relief through understanding, hoping to learn healthy strategies to replace poor coping strategies, even finding community for the first time in my life. @aspergersfromthe inside .... thank you, your videos are helpful, eye opening and useful. I would love to see regular videos from autistic elders. Their insights are valuable.

  • @MimiYouyu
    @MimiYouyu Рік тому +110

    An important thing to remember is that as people age their levels of hormones and absorbtion of nutrients drop. This will have an impact on energy and can be addressed, because we are not neuro typical we may associate it only with that. For example the gentleman who felt he had less patience with people, that can be a lack of zinc which is common for men, and older men, supplimentation can help. It just may be harder for him to mask than it is for neuro typicals. All great people here. You are not odd. You are totally inspiring. Kudos to the organic farmer! Much admiration and respect to you all. Thanks for sharing

    • @JoseMeeusen
      @JoseMeeusen Рік тому +14

      Very good point! I wonder how much the physical condition of getting older affects autism.

    • @MimiYouyu
      @MimiYouyu Рік тому

      @@JoseMeeusen In every way, same as does neuro typical people. Most people do not get the information to help with these things. Doctors are not nutritionally trained professionals. They do not check levels of nutrients or offer many if you ask. Perhaps vit D, the B vits,Iron , perhaps Homocystine levels if you ask specifically. Most folk must find a private lab or clinic that measures these. Heavy metals in the system , and mercury from dental fillings, for example cause problems , ranging from confusion to other symtoms( research this) and yet this can be reversed. We are all the physical human system first and foremost. It is useful to check these things first. Older men/ people tend to stop absorbing B12 , this is not ideal (look up deficiency symtoms) . Easily remedied . Talk to a good nutitionist who understands and applies an holistic approach , in other words , looking at the whole person . Our eating habits, sleeping and movement rule our world more as we age.We are, generally speaking, more sensitive to stimulants( caffine, alcohol, also white sugar, white bread /glutens will subtract from our store of nutrients. Balance is key.

    • @CherrysJubileeJoyfully
      @CherrysJubileeJoyfully Рік тому +1

      Zinc and magnesium are VITAL

    • @joycebrewer4150
      @joycebrewer4150 Рік тому +2

      @@JoseMeeusen in my early 60's, wondering too!

    • @lauranilsen8988
      @lauranilsen8988 Рік тому +4

      People with ASD tend to have poor gut health so unless that’s fixed it makes sense that brain health would just get worse.

  • @susantaylor4079
    @susantaylor4079 Рік тому +5

    Such a relief to finally know (at 71) why I am not like the others. It's just who I am. And now I have something I can work with rather than just being blindsided. Like I said, relief! And I so appreciate the information you share. Very helpful.

  • @robertdewaele7050
    @robertdewaele7050 Рік тому +22

    As a 64 year old Aspergian, I can relate to how life changes for us as we get older. I find that I'm getting more outspoken and I'm less concerned about what other people think about me. These changes can make me feel more insecure all at the same time because I'm not sure what is coming next regarding my thoughts and outward behaviors.

    • @515aleon
      @515aleon Рік тому +1

      74 years here. And I think a similar experience in that I don't give an flying f what people think, I started out that way and might be getting more so in my old age.

  • @davidgreen424
    @davidgreen424 Рік тому +89

    I related to David and his experience so much . There's so attention placed on younger people with Autism and trying to " fix" them that older more recently dx people fly under the radar .
    Needs like nursing homes will have to provide spaces for us that feel comfortable. Going to live in a nursing home with all that forced close contact is my worst nightmare.
    Josè story was really sad .

    • @joycebrewer4150
      @joycebrewer4150 Рік тому +19

      YES! A place without electrical noises, fans, motors, plumbing noises, nurses' walkie-talkies, tv or radio muted if present. Voices of people low, not yelling in middle distance. Where a person could be alone and safe, not too far from where they sleep, choice of sitting in sun or shade, or walking.

    • @katella
      @katella Рік тому +4

      @@joycebrewer4150 sounds like my house. My Oasis of serenity. When my husband was still alive I created many different garden "rooms" that I could retreat to and just be alone.

    • @k.b.woodworker3250
      @k.b.woodworker3250 Рік тому +4

      Yes, this is my worst nightmare, too.

    • @davidgreen424
      @davidgreen424 Рік тому +4

      @@k.b.woodworker3250 I know , I see those advertisements for retirement homes and think of all that enforced socialising in common area .

    • @joycebrewer4150
      @joycebrewer4150 Рік тому +2

      @@katella For me, that was a wish list, not reality. My reality is exactly the things I was wishing I was away from.

  • @theaspiebridge
    @theaspiebridge Рік тому +18

    The hardest part of being female and 50+, employment due to interviews and my gender are the roadblocks to receiving a wage that allows me to be financially independent.

    • @theaspiebridge
      @theaspiebridge Рік тому +3

      Up until now I still
      Have not been hired for a full time job with an income that allows me to rent my own apartment

  • @lrwiersum
    @lrwiersum 8 місяців тому +3

    Feeling sad for the lonely, smart, loving woman that has tried so hard and struggled so mightily for shreds of happiness.

  • @PhilMante
    @PhilMante Рік тому +10

    About to hit my 32nd birthday.
    I was diagnosed in 2002 just before my 12th birthday so I've been diagnosed 20 years ago.

  • @PeteLewisWoodwork
    @PeteLewisWoodwork Рік тому +2

    I was born in 1962 (in South West England) and raised by my grandparents in a South Wales coal mining valley from age 10 months. Nobody at that time knew anything about autism, even when I left the valleys in late 1980's. Since finding out (two weeks ago) that I am autistic, I cannot count the number of times, even in my early childhood, that my autism was screaming out to be noticed - but it never was. Over the past ten years, I have been diagnosed and treated for severe depression, social anxiety, panic attacks and the list goes on and on. If only someone had known about autism and tested me for it, as a child, I am 100% certain that my life would have been a complete success, instead of a complete ruin. So, here I am now, aged 61 with two weeks knowledge that I am autistic and suddenly learning about a condition that I have for the first time in my life. I feel thankful that at last I can start getting things right but I am also grieving over all the multitude of things that went wrong out of ignorance and misunderstanding. If only I had known - and if only others had known...!

  • @dimpsthealien333
    @dimpsthealien333 Рік тому +57

    This is wonderful! I just found out at age 51. It makes so much sense but I'm having quite a time at processing it. And grieving the fact that I have fallen between the cracks since I was little and still today.

    • @DenkyManner
      @DenkyManner Рік тому +8

      I'm 40 and still wonder why my schools never picked up on it when it was so obvious. I feel failed by the system but then that's true for so many thousands of people who have been through far, far worse things. Hopefully it's better for younger people today.

    • @aquarius53866
      @aquarius53866 Рік тому +1

      @@DenkyManner I think it is just general awareness of how ASD presents, and it takes a long time to create social change (in this case acceptance, better treatments) amongst therapists, teachers, parents. In my line of work (Applied Behavior Analysis) I also know the stigma of having their child be “labeled” prevents parents from seeking diagnosis or therapy.

    • @NorthernGreenEyes
      @NorthernGreenEyes Рік тому +1

      @@aquarius53866 Yes! I remember asking my mom questions and she just scoffed.
      I masked by taking drugs (opioid pain meds) for a decade.
      I've taken great steps to have 7yrs of sobriety and recently speaking of my add and Asperger's.

  • @billyoungers4035
    @billyoungers4035 Рік тому +3

    Im 65 and even though I’ve not been formally diagnosed, the traits and behaviors I have witnessed , answer a lot of questions I’ve had about the real me. It is a relief to set a goal on which to focus to better adapt to the others I encounter. I recently started my “retirement “. I’ve had much more time to explore my inner workings.
    It’s all different for a reason now.

  • @I.m-Me
    @I.m-Me Рік тому +77

    Regarding "People say that autistic people lack empathy.":
    In my experience, most autistic people actually seem to have *more* empathy, but sometimes the social difficulties with either labeling what you're picking up on or with trying to figure out how to react/deal with it can lead to others misunderstanding you. Alternatively, being in the grip of hyperfocus or a special interest can mean you don't seem to be able to spare processing power for anything else in that moment.
    And sometimes you get the lovely combo of conversationally rabbit-holing into your special interest while picking up on subtle cues that someone is dissatisfied with the interaction, but since you're not sure and they don't generally say anything, you just get more and more uncomfortable, which might even make you talk /more/. WHEEEEE!

    • @tombregman2875
      @tombregman2875 Рік тому +10

      Wheeeeee! Hahaha. I SO understand what you are saying! The rabbit-hole speech feeds on itself. As though it takes on a mind of its own. I can sometimes feel like a casual observer able to watch what is happening but unable to just shhhhhhhhh and stop.

    • @I.m-Me
      @I.m-Me Рік тому +10

      @@tombregman2875 Right? I'm pretty sure I'd have this problem anyway, but I was raised by one parent who is like an inescapable conversational black hole and another who tells stories as convolutedly as the path of a sleep-deprived squirrel that just downed 10 times its bodyweight in espresso beans. If I don't work /very/ hard, I am both at once 😂

    • @recoveringsoul755
      @recoveringsoul755 Рік тому +4

      @@I.m-Me LOL at the Wheeee! Haha I love that made me laugh first time in ages

    • @I.m-Me
      @I.m-Me Рік тому +6

      @@recoveringsoul755 Then it was officially worth all of the word rearrangements it took 👍😉👍

    • @katella
      @katella Рік тому +9

      If I had a penny for each of the times that I've added to a conversation and recieved absolute silence in return... I'd buy a bunch of land where we could all live free and do as we like without judgement. 🧬🌻

  • @pamelamawbey814
    @pamelamawbey814 Рік тому +9

    I have learnt trying to be what I am not, neurotypical, is a waste of time. I never realised I was doing it consciously. It was about trying to fit in and for a long time not knowing I was autistic. The biggest problem I curently face, apart from no support, is being discriminated against and abused by other people. This happens to me regularly, a couple of times a week. I assume it is because I look autistic. It can happen in social groups like book clubs. I am interested in the psychology of this, why it happens.

  • @milomrebloc1770
    @milomrebloc1770 6 місяців тому +3

    Diagnosed less than a year ago at 54. I’ve done a lot of internal complaining about not finding out until so late, but this video put me in my place. My heart aches for these fellow aspies. There is so much work to do. Thank you Paul for helping us come together.

  • @ArtsyMegz_On_Etsy
    @ArtsyMegz_On_Etsy Рік тому +9

    I have been regretting moving into a condo-apartment complex, because there is ZERO privacy. So, there is no sitting on your front step unless you want to make small talk with 2 or 3 people (sometimes more), and then having them ask to get together (or inviting you over right then and there). I have sadly resorted to spending my days off indoors and only take my garbage out at night time (on a week day) 😶.

    • @mares3841
      @mares3841 Рік тому +1

      I let my neighbors know that I need a lot of rest.

    • @mares3841
      @mares3841 Рік тому +1

      You get to say, "no thank you."

    • @ArtsyMegz_On_Etsy
      @ArtsyMegz_On_Etsy Рік тому

      Yeah, I tell them "no" and then they seem to be offended by it. Because one of them doesn't want to say hi to me anymore, and that makes me feel uncomfortable.

  • @helenvandam1356
    @helenvandam1356 Рік тому +6

    My husband showed me a video on UA-cam about autism and said...that's you! Which led me to watch more. This video is great for me as I am 74 and I realize I am autistic...and I also have hyperacusis which makes me wear ear protection most of the day and have tinnitus 24/7. I am my husband's caregiver who is paraplegic. It's only because of Gods grace that I am still here. Realizing that I'm not crazy was such a relief. We live in a very noisy world, and I've told my hubby my desire is to live on a deserted island and have a McDonald's coffee and muffin every day 😀. Being around people is not a joy...noise is no fun. Shopping in Walmart is like a horror film. I now know that it's okay to take off my mask...a huge relief. And so, life goes on with more understanding of the issues that pertain to autism. Thanks for the folks who participated. I live in Kelowna B.C. Canada.

  • @mauralombardi9634
    @mauralombardi9634 Рік тому +17

    Paul, this is wonderful. I am 60, please do more for older people. Thanks to all who shared personal experiences.

  • @Reginagoff2024
    @Reginagoff2024 Рік тому +3

    When I discovered my autism I had the best feeling of relief, because I'm not broken just unique.

  • @Wizardess
    @Wizardess Рік тому +6

    78. Self diagnosed less than a year ago. Feelings are mixed, overwhelming, and still as inexpressible as ever. Alone has always been VERY easy for me. I could fit into the edges of some groups, such as science fiction readers. The more or less local club "takes accept people as they come" quite seriously. Nonetheless attending meetings is a strain, even more of a strain now with the hour drive to the meeting place. I have a partner who himself may be partially on the spectrum. We manage to support each other and literally keep each other alive.
    Yes, the feelings are there. They are overwhelming. And there's no appropriate way to express them which is understood by others. I had to stop the video a few times to wipe tears. I understand the frustrations expressed, the loneliness expressed, and the inability to cope with the stress of being with other people or even merely changes from routine expressed in words or clues I seem to be seeing now more than ever. How do I tell when somebody is merely venting and when they really want me to try to help? Get that wrong and kiss the friendship good bye.
    I made it to 50 as an engineer then went into a burnout that lasted about 5 years. Then I managed to earn my keep with some consulting jobs working from home. Since I made 70 that has sort of faded away. I still do some of the same things; but, it's for myself or Loren not for other people. I'm that addicted to the feeling of accomplishment involved. At least now I know WHY I am and always have been so bloody weird. I mourn the more normal life I missed. I celebrate my accomplishments that probably never could have been without my Aspie superpower. Now I'm wondering what this new, perhaps age shortened, chapter of my life is going to be like. Can I still leverage my superpower to enjoy it all? With this new knowledge can I reach out to other people more successfully? Maybe it's time to reinstall the antenna and poke a nose back into chatting with other people over amateur radio even though much if it for people my age seems to be "my lumbago is acting up again." Maybe it's just hearing and speaking and being heard that is the magic of ham radio that got me into it in the first place. It's surely going to be interesting with this new view on it all.
    {o.o} Joanne

    • @BillHart46
      @BillHart46 Рік тому +2

      Hello twin. I am Bill, 78, from the video. I am also an engineer. I was self employed most the time. I did not realize what was going on at the time, but now understand that I was in burn out and just stopped working.

    • @Wizardess
      @Wizardess Рік тому

      @@BillHart46 And I bet that was after a life time of killing yourself trying to be "normal" so they would not cart you away and disappear or attempt to "fix" you in some dark shadowy hospital somewhere with handy ice picks everywhere. Life's a bi**h and then you die. Um., I like Terry Pratchett stories. "Death" is going to have to earn his intrusion on my life. It's fascinating how bizarre it has gotten.
      {^_-}

  • @avery1349
    @avery1349 Рік тому +15

    Hi- Younger Autist here myself, 23, Avery- I wanted to make a comment on something David said at the end of the video. He noted that knowing the things that he is doing differently could allow for him "to do something about it". I think it's important to note that we shouldn't have to change the things that we do that are not neurotypical. I personally have found it interesting to note the things that I do that are "different", and in terms of communication, finding that forms of communication might be different has been important to me, and will usually allow for me to properly convey that there might otherwise be a misunderstanding, but I will not change by creating new masks that fit their expectations of communication. It is an opportunity for someone else to understand my communication style, as I am willing to try to understand theirs. I will also not disregard sensory needs, social batteries, and other such aspects that are part of my functionality to make them feel comfortable with my actions. They are aspects of myself, and if they do not like them, then they do not like me as a person. I would rather not pretend that these things do not bother me for their social benefit. I believe it is highly a topic of discussion in parts of the younger autism community; that we are battling societal viewpoints of the autistic population in order to normalize such things, as we are essentially a minoritized population in the eyes of said society and would be otherwise disregarded.
    One of the best things about realizing that I am autistic, even when I was 22, was that I could affirm that I am the way I am for a reason. A reason which has real validity and cannot be argued into vaguity; That the massive amounts of specific experiences I'd lived up until this point were not in my own head alone; And the thing that led that is pride: Pride in a community of other autistics who have felt and experienced the exact same thing; who have shared similar traumas from a society which did not care for them; pride as we stand back up and claim our own space. I would hope that older autistic community knows that they too have every right so to stand up with us in doing so. You all do belong, in the community of other autistic individuals.

    • @WilliamFontaineJr
      @WilliamFontaineJr Рік тому +3

      I stand with you at age 67. The time for change is NOW! The trauma experienced by older and other autistic adults is unimaginable by Nero-typical. Pride!

  • @shawnaford5540
    @shawnaford5540 Рік тому +12

    I can relate to Jose, I have had depression since 2008, and finally after persistence from my own effort to thrive and my new psychologist to notice some traits. She gently brought up neurodivegence and I have tested as autistic two weeks ago, age 61.
    This is an excellent video and thanks to you for bringing these amazing people together, this has been so helpful.

  • @tracirex
    @tracirex Рік тому +39

    it's very nice of us to learn neurotypical social customs to try and live side by side among them, but it would also be lovely if allistic people were more interested in our needs and preferences.
    I'm guessing that autistic people don't have as many difficulties communicating with other autistic folks. we understand each other very well.
    thanks to all who shared their stories.

    • @mares3841
      @mares3841 Рік тому +5

      I'm finding more success in knowing the landscape and being strategic with where I go, what I do, and I take care of myself with lots of rest and quiet time to recover.

    • @nancyneyedly4587
      @nancyneyedly4587 Рік тому +8

      I agree, it's the neurotypicals that have a very narrow range of understanding of behaviour and so the neurodivergent have to compensate to make them feel comfrtable. So now who are the one's that"lack empathy again?"

    • @RainbowLane
      @RainbowLane Рік тому +7

      Traci, that’s a very good point you have made. Whenever I encounter someone who I feel completely at ease with to the point that I can be my weird self, I always wonder if they are on the spectrum. The people I connect with on a deep level are usually quite quirky, kind and non-judgemental. So I think you have hit the nail on the head. Also, after having worked inside the U.K. education system with Aspergers children, as a second career, I truly believe no child should be at the mercy of NT teachers who don’t have a deep knowledge of autism. There are too many ignorant NTs out there trying to ‘sort out’ Autistic children. I know from my experience 60 years ago how horrible they can be to children who are different. Today however, there is no excuse for ignorance of Autism. Thanks for sharing your thoughts, very helpful. 🙏

    • @PerteTotale
      @PerteTotale Рік тому +1

      @@RainbowLane Correction: There are too many ignorant NT medics, psychologues, "experts", even psychiaters out there trying to ‘sort out’ Autistics.
      No wonder many concentrate on children.
      Pretending to be experts, while they are merely the blind in the land of ND's. THEY are the lay men.

    • @RainbowLane
      @RainbowLane Рік тому +2

      @@PerteTotale yes very true. I’ve only experienced it first hand in education but those other fields you mention must be rife with ‘experts’ wanting to ‘cure’ those who are ND. I’m guessing you must have experienced this from what you said here and I’m sorry if you have. It just shouldn’t still be happening in this day and age. Don’t know how old you are but I was let down by the ignorance of those around me in the 1950s - these days you’d think NTs would be better educated. Not so unfortunately. One of the biggest problems is that Neuro Diversity has been seen as a medical problem for so long and it’s very hard to get NTs out of that mindset. Warm wishes to you and thank you for the insights you gave. 🙏

  • @a440dc
    @a440dc Рік тому +22

    Hi Paul, I'm 69yrs old and was diagnosed last year, here in the UK. I have now watched all your videos and have learned a huge amount. I just wish that I could have known from being a child. I also have a heart condition that requires walking everyday and so have that additional problem in managing energy and find myself sleeping longer at night and sometimes in the early afternoon. Keep up the good work. David

  • @NinjaPiano18
    @NinjaPiano18 Рік тому +19

    I’m 18 and haven’t been able to get an official diagnosis yet but it is very heartwarming to see older autistic people talk about their experiences and remember that there is a whole community of us out here. (I am definitely very lucky that I realised at 17 I was autistic, and I thought even that was quite late already…) Thank you so much for this video Paul and to all the participants :)

  • @hatfieldmain
    @hatfieldmain Рік тому +15

    I was diagnosed as Autistic in my 60's and I have to say its made me feel very happy. Looking at my life how I behaved and was treated was always puzzling to me. You get a Chip on your Shoulder. I see now why it was and is. Yes it would have been life changing to have been assessed when I started School but they did not look for such things back in the 50's.

  • @mike-williams
    @mike-williams Рік тому +37

    I'm not sure if I'm grieving for myself having missed an early diagnosis, as much as for my parents who I think were both Aspie. My father has passed and I don't know if my mother is alive (long story). I spent most of my childhood trying to manage their emotions and then wrestling with coming out as gay, that dealing with this added personal dimension of difference was just too many struggles to deal with.

    • @mares3841
      @mares3841 Рік тому +4

      You are a lovely living legacy. Sorry for your loss.

    • @vivianstewart7523
      @vivianstewart7523 Рік тому +5

      Exactly. Same here, Mike. Both my parents are gone now. My mom died in 2016 and my dad died 6 months before I found out. Arghhhhh. I would love to have asked them so many questions. I had to be the perfect one because my younger brother has ADHD and I think Austin and they could barely handle getting him all the treatment he needed.

    • @nleem3361
      @nleem3361 Рік тому +3

      I wonder if my boyfriend's parents had asbies too. He said he grew up in a home without love, but he has a lot of love to give. He's asbies... I know this is likely hereditary.
      Sorry for you loss. I hope you have a very loving partner 💗

    • @edwigcarol4888
      @edwigcarol4888 Рік тому +1

      A lot of aspies have some gender fluidity. Very common.

  • @connectedliving55
    @connectedliving55 Рік тому +7

    Finally, a video on older autistics. I feel it is wonderful that the neurodivergent community has it's voice heard more, but when I approach a few younger autistics with big profiles, they can be invalidating of our experiences, unrelatable. The grief and trauma I have been through in my 54 years, loosing my family as not being understood and also early abuse they did not wish to address, along with not understanding my overwhelm, meltdowns and inability to "show up" for jobs, friends etc, it was a lot to go through at the time and then again after diagnosis. My work saved me a lot, I am a healer and Astrologer and with meditation, self healing and research over 30 years, I feel I have been able to manage myself better and not become overwhelmed. BUT as I get older I find it harder, life is waring and I struggle with relationships, like the lady said, easier not to have any, as finding compassionate people who get it, is a challenge. MY husband doesn't get my autism, he tries but his bad, like really bad memory, leaves me anxious a lot......what am I to do with that ? I cannot afford to be by myself for eg with what I do, it's a lot and I am sure that autistics etc diagnosed earlier will also go through what we have unless the larger systems change and we are considered more and given more support, some of us struggle to work........I do at times, it's just too much & there is no help here in UK

  • @hazelmckinley8456
    @hazelmckinley8456 Рік тому +5

    I'm 58 and just got diagnosed. Great to see some content that applies to the older generation. The lady talking about being misunderstood really touched me.

  • @Judymontel
    @Judymontel Рік тому +23

    This was SUCH an important video!! Thank you, Paul, thank you to all of the participants. Each of your voices was so significant. One moment that haunts me is Jose describing how others told her "you look normal" and then she says "but they don't know how it feels inside." This makes me kind of angry. Because you know what? She's been telling people for years - but they haven't been really listening. Step one in my book is for people to learn how to listen better, and when they hear what others are telling them, please, please, have some respect!

  • @sherryjanke5434
    @sherryjanke5434 2 роки тому +35

    Wow! This is me. I never understood so much about myself before my diagnosis at age 61 (2 years ago).

    • @koen8185
      @koen8185 Рік тому +4

      And at what age did you have the feeling of maybe having autism , or maybe even convinced . In 2004 , age 43 , I was pretty sure , of course everybody else was sceptical me being convinced , but finally , in 2010 age 49 I got the diagnosis , just the right age for me I have to say . And from then on the real discovery started , an adventurous journey till now....

    • @mariannehepple4907
      @mariannehepple4907 Рік тому +4

      @@koen8185 Diagnosed 5 years ago aged 54. Likewise always been weird - at least was perceived that way by others. Never 'fitted in', no social skills etc

    • @sherryjanke5434
      @sherryjanke5434 Рік тому +7

      @@koen8185 Always felt like a misfit. Most people didn't like me. Suspected I might have Aspergers after seeing a show in 2007 (age 48) highlighting someone with it and talking about the traits, but didn't get the courage to ask my doc to send me for a diagnosis until I had a severely debilitating panic attack in 2021. Then I was diagnosed (age 61).

    • @altitudeiseverything3163
      @altitudeiseverything3163 Рік тому

      @@Rollwithit699 Are you in the US?

    • @altitudeiseverything3163
      @altitudeiseverything3163 Рік тому

      @@Rollwithit699 I asked that because I’m in my 60s and was very worried about the cost, too. I asked my primary care physician for a list of local psychologists who accept Medicare, called each one and asked if they have experience with autistic female adults (and *how much* experience) and whether they can do assessments. After having had no previous luck with a simple Google search, I was surprised to find someone from this list in just a few phone calls. I have an appointment in a couple of weeks! I still worry that they won’t be able to see past a lifetime of masking, but I’m really reaching the end of my ability to cope. With the added stress of the pandemic, the facade is finally crumbling…. With Medicare, plus my supplemental plan, almost the entirety of the cost should be covered.

  • @kariannep1548
    @kariannep1548 Рік тому +3

    Thank to everyone! 72 and a newly self diagnosed. I am so relieved to see you all and realize we are many!

  • @lisawanderess
    @lisawanderess Рік тому +20

    I loved this! I'm Australian 53 and late diagnosed too. I have spent a lifetime wondering why words I say seem to get completely twisted by the time they reach other's ears sometimes. I find solitude safest as I'm so confused trying to understand what I've done to make people be so mean to me sometimes. Humaning is hard! I'm fine with being seen as weird or quirky but it's the meltdowns I (and those who trigger them) really struggle with. I would love to hear how others who suffer massive meltdowns cope with them.

    • @marlaadamson1633
      @marlaadamson1633 Рік тому +6

      I'd love to hear the advice too.
      In times of great stress/meltdown I have actually feared that I was not actually speaking English; the disconnect between question and response is so vast. It seems that the higher an NTs professional status, the less they seem able to understand. Don't get me started about doctors!
      Sadly, I am quite extroverted and my career as an intermediate teacher gave me all kinds of positive, "social" interactions. Pre-teens are fun, and I always had a large group of work friends. I burnt out badly when teaching online during covid. 17 months later, I'm diagnosed and ALMOST able to function, but I have no social group at all.
      I wonder if Jose (I don't know how to add the accent) found leaving teaching the same. I feel that I know how to be 12, but not 53.

    • @nirrieeva4239
      @nirrieeva4239 Рік тому +4

      It is essential to first not beat myself up over meltdowns. Second learn my triggers. Then I have accommodate my needs as soon as possible. It helps if immediate coworkers and friends are aware of this. Give yourself time and space to recoup.. everyone is different in what they need at the time of the melting point. At home I can do a time out in my special interest room for instance..breathe work has helped a great deal for me too.

    • @marlaadamson1633
      @marlaadamson1633 Рік тому +3

      @@msimons7440 I'm so sorry you are not understood. I have found EMDR and, the slightly weirder, brain spotting to be quite effective in reducing sensory overload. It's like being able to store information in a different part of my brain leaving more room for sensory stuff.

    • @edwigcarol4888
      @edwigcarol4888 Рік тому

      Meltdowns.. maya troudal says meltdowns and shutdowns can not be all suppressed..
      My therapeut said to me "you have to care for you before you reach that level of arousal.. when it comes this is too late..
      The care i have learned, preventing their frequency is
      Breathing technics daily
      Yoga practice
      Body scan enhancing interoception.
      (Learn catch the rise of stress before it is too late)
      Stress management
      Selfcare: ability to say No! And have enough withdrawals, enough stillness.
      But how much shame, to have experienced a meltdown and to remember about that. I really do not find a way then to accept my self, to keep my self esteem, to pardon me...
      So i am very very motivated for sustaining a good selfcare: no alcohol of any sort, enough sleep, diet and breathing movement practices.
      No compromise on that..

  • @nandaremkes9364
    @nandaremkes9364 Рік тому +11

    I'm almost 39 but I recognise a lot of what these lovely people are saying. I especially feel Jose, that hit home.
    I don't know if she is reading the comments, but there is a FB group for women in the Netherlands with ASS and/or AD(H)D. I found having a group of people who understand me helps me a lot to cope with life als someone on the spectrum.

    • @anonymouscandle1223
      @anonymouscandle1223 Рік тому +1

      I hope she sees this! Or at least the creator does and forwards this comment to her

  • @marcusfromoz7066
    @marcusfromoz7066 Рік тому +5

    I'm in my late 50's, its Friday night, and I would 1000x more love to be here reading peoples comments than actually be out meeting people.
    Not expecting to ever get an official diagnosis, but I don't need to.
    Just wish my wife would believe it.
    I was made redundant in my government job just before covid hit, and have spent the last few years studying how to make video games, and now I work 2 days a week for a company that makes them, and 3 days a week for myself trying to make the next great game. The younger people I have met in this industry are so much nicer than those I've dealt with in the past, I guess I'm very lucky.

  • @Sephiroth198365
    @Sephiroth198365 Рік тому +8

    You've helped me alot on my journey over this past year and couple months. What started my learning was severe burnout that kept me from holding a job. Heart rate and Bp were always high with no physical triggers aside from constant hyper migraines that also kept me home... had a hard time even leaving my room, a harder time even being in a room of 3 or more... my aunt died in my livingroom the same day I lost that job... sat down and watched a Kyle Hill video about his "Superpower" and it started me down my rabbit hole if you will. But I write with purpose. I had a full on panic/anxiety episode when I found myself swept into a crowd of hundreds at a graduation ceremony in Houston TX. It sent me into flashbacks of almost drowning and I bruised my ribs somehow from clenching myself as I struggled to get somewhere with air almost. My GF actually had to find me and guided me out. I was mortified when I finally came into focus because I was around her family who dont really know me that well (I'm not very open) Composure and masks were, and still are critical for my public, professional and family image. I'm learning how to take those off in order to continue function as a middle aged man. Watching your videos helped immensely in the aftermath and the questions that followed. Thank you kind sir :)

  • @olderandwiser333
    @olderandwiser333 Рік тому +8

    Thank you so much for this. I will be 69 in a couple of months and I've taken the AQ and the Aspie Quiz, both of which showed a strong leaning toward autism, but I don't have a diagnosis.
    It is just so validating to know that I am not alone in the struggles I've dealt with for so long without help or support.
    Upholding the masks becomes a very heavy burden and the older I get the less energy I have to do that. It would be so wonderful not to have to waste any more precious and waning energy on pretending to be something I'm not.

  • @monicaLynn7
    @monicaLynn7 Рік тому +6

    I love this video. I’m 57 and discovered Aspergers 6 months ago. I’ve never felt like I fit in no matter how hard I’ve tried. I relate to so much of this. I love being alone, my previous mask was social, it was exhausting. I have a difficult time feeling connected to people, and honestly I don’t want to connect to them. I’d like to find an Aspergers support group that does fun things too. I deeply appreciate everyone on this video. Even if just for a moment I don’t feel so lonely.

  • @stephtaur
    @stephtaur Рік тому +31

    What an amazing group of people! I really loved Bill and Jose. Thank you for calling attention to the experience of older autistic adults. I feel like older people are still routinely marginalized and discounted; even as the culture makes strides to be more inclusive overall they are still overlooked. I was diagnosed last year at 38 after a decades of not knowing what was "wrong" with me. I'm so grateful for my diagnosis. Connecting with the online autistic/adhd community has been hugely healing for me.

  • @SusannahPerri
    @SusannahPerri Рік тому +11

    My heart goes out to these people. My 40-year-old son just figured out in the last couple of years that he is on the autism spectrum. He is a brilliant, kind and talented person who struggled all of his life to fit in. They tried testing and counseling him when he was a child but could never figure it out and he struggled and went from school to school. As an adult He’s had a great career as an engineer with a wonderful company, but now he’s on disability for a bad back and it’s just sent him spiraling downward. He’s so alone. It’s just heartbreaking. I feel so helpless as a mother to help my son. And honestly, I think I’m pretty close to the spectrum myself. I always understood his struggles but I was like the ladies here who always got along and did well in school. But I’m different.

  • @Petertwohig1948
    @Petertwohig1948 Рік тому +9

    I''m 74 and discovered I was autistic in my 60s. It's a relief, and I'm having to review my life and reassess my memories in the light of that knowledge, which is weird. Also, I'm no longer trying hard to be neurotypical, which hasn't always worked for me. God love you all. PS: I have epilepsy. Thanks for the channel.

  • @EagleRue
    @EagleRue Рік тому +16

    Diagnosed at 40- ADHD after Menopause 10 years later. SO MANY layers for that. And I know I am not alone. I come to find out the hormones and dealing with these neurodiverse brains. so much feels about this vide0- thank you

  • @eyalguz6303
    @eyalguz6303 Рік тому +3

    At 45, I can already relate...especially the "less patience for people " part.

  • @Astronobob64
    @Astronobob64 Рік тому +7

    58y, diagnosed 1yr ago, level 2. Great video and good to hear others of age give there views and thoughts, thankyou, well done & valued comments which i feel reassures many key areas with a life on the spectrum, particularly being a loner... For me, being a loner (rejected from general population, inc family) has been ultimately very depressing throughout much of my life and has caused many total break-downs lasting weeks and months in some cases, bringing rather too close to suicide,,, !!
    Only since being diagnosed have I found a reason to carry on,,, understanding my condition now,, "better late then Never" ?
    I also found the input from the members quiite emotional as well because I could feel the deep struggles behind their stories.. It's very rewarding that so much is being discovered about Autism now, and am actually delighted there is support for 'all ages' now,,, so many many Aut people may not have to go through what some of us have ?
    My warmest regargs to all within and apart of the Autistic community - Awesome Stuff !

  • @user-fm6ul1uz9n
    @user-fm6ul1uz9n Місяць тому +1

    My daughter at 40 was diagnosed with autism 2 and ADHD. This lead me to take online tests which indicate that there is a big probability that I too am autistic and have ADHD. Which was a big shock but then looking back at my early years, I was excellent at school until I was 11. Top at maths and English in my class. Went to comprehensive and was streamed into the top class - highest achievers by the time I was 13 was told i had depression . By 14 I was not turning up at school and wandering around the town instead. By 15 I had a drug thing going on and left school. By 17 I had married and had a child.
    I have lived my live feeling a failure, I have lots of acquaintances and no real friends. And desperately trying to become something I am not. Nowadays , I am 70 in a few months, I don’t care too much and carry out my “eccentric “ life style/behaviour as I wish but think how sad to have lived like that with such low personal esteem. I haven’t the money for proper assessment and diagnosis and I won’t use the NHS because there is a huge waiting list and I think younger children and adults will benefit more than me.

  • @zackslabs
    @zackslabs Рік тому +5

    It's so frustrating to live a whole life with no diagnosis. Grief is a good term for it

  • @J0shuWa2491
    @J0shuWa2491 Рік тому +2

    “No Empathy” years ago at the beginning of my journey of trying to find myself, I almost thought I had ASPD because of how much I didn’t care about anyone but for some reason I also cared way too much and was overwhelmed at times.

  • @girlsrnotwimps
    @girlsrnotwimps Рік тому +3

    I’m so grateful for this. I only just recently discovered I’m autistic at 57. Recently, as in last week. Through this lens, life now makes so much sense- but I also feel incredible grief. I am shocked and overwhelmed. Josè could have been speaking about me, my words out of her mouth. It made me cry with a strange relief of being understood. All of you said at least one thing I identify with, but Josè especially. Thank you.

  • @zacharyantle7940
    @zacharyantle7940 Рік тому +14

    I’ve read some kind of upsetting things to the health issues autistic people in old age face and it definitely scares me to think what it’ll be like for me, so hopefully this’ll be comforting :)

    • @recoveringsoul755
      @recoveringsoul755 Рік тому +1

      Like what? Now I'm nervous

    • @koen8185
      @koen8185 Рік тому +1

      @@recoveringsoul755 Probably about Alzheimer's I guess

    • @recoveringsoul755
      @recoveringsoul755 Рік тому +4

      @@koen8185 hmmm, decades ago I read that the brains of people who had dementia had higher levels of aluminum in their brains, so I stopped drinking out of aluminum, stopped cooking in it as much as possible, and stopped using deodorant with that ingredient. Also I recently learned that the Horsetail plant can naturally detox aluminum from the body, so there is that. It is more common in women though for some reason.

    • @gerghodges5317
      @gerghodges5317 Рік тому +5

      Health issues? I am 70yo. Diagnosed 2 years ago. In summ one problem is
      your brainpower reduces. As an autistic/aspy you need all your brainpower to intellectually socialise. It is hard enuff when you have your brain functioning in youth but as you age it fails you. Like myself many choose the ease and tranquility of solitude (not isolation). Just me and my dog.

    • @mares3841
      @mares3841 Рік тому

      Thank you all.

  • @olgayaleo729
    @olgayaleo729 Рік тому +29

    self-diagnosed at 65 (and confirmed later) - and yes, getting tired and dropping the masks...thank you for sharing this! i/we am not alone...and yes, it was absolutely a combination of grief - but also of relief - i was not cold, bad-tempered, critical - i was confused, especially with people i considered friends who would drop me like that, instead of asking, is this what you meant, do you understand, can you explain to me, etc.? yes, jose, i totally get it. and jim, i now live in burbank near my mother and sister, and they don't get it or accept it - and wish we could talk. and yes, i am a loner and don't always get along with women. but i am considered "psychic" because of how i understand and empathize with animals.

    • @katella
      @katella Рік тому +5

      We don't have to put on an act with animals. Much easier than people.

    • @olgayaleo729
      @olgayaleo729 Рік тому

      @@katella SO agree, katella!

    • @k.b.woodworker3250
      @k.b.woodworker3250 Рік тому +3

      Ha, the animal thing is interesting. I've never had a pet because of allergies. But people's pets really like me (and I them). I once visited an acquaintance who lived on a big property and their dog always barked if someone approached, but not for me. They just looked at each other strangely when they told me this. Never thought about it till now.

    • @olgayaleo729
      @olgayaleo729 Рік тому +1

      @@k.b.woodworker3250 they know...❤

    • @edwigcarol4888
      @edwigcarol4888 Рік тому

      Bonding with animals.. my thing.. mammals share the same "instinctual social system"
      (Porges, "the polyvagal theory" the ventral branch of the vagal nerve together with all cranial nerves, giving facial expression, sound through the throat, breathing)
      No psychic at all. Truly a simple body thing. But your NTs are dissociated from their body, they chat in their head)
      So it lets me think that i am able of a good non-verbal communication. Cats decipher the prosody of your voice, the tension of your body, your smell.. your gestures)
      Thus my failure is limited to human social conventions and the speech acrobatic game. Non-verbal i am OK but - ooh how annoying - this is above any willpower. No pretending game possible.
      ... ?
      This kind of observations gives orientation for self-diagnosis. Animals as teachers.