Living with chronic sinusitis - Impact on quality of life [Patient testimonials]
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- Опубліковано 31 тра 2018
- What is the impact of Chronic Rhinosinusitis on quality of life? Living with chronic rhinosinusitis can have a huge negative impact on people's quality of life. Many patients with chronic rhinosinusitis take daily a lot of medication and have undergone many surgeries. This video is part of the patient advocacy program of EUFOREA.
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I've been battling it for 2 years now...had little to no allergies or any previous issues...and it's an absolute nightmare to live with. Constant nasal drip, throat clearing, getting agitated by certain foods, and constantly just feeling tired all the time. I finally went to see a specialist and am getting a balloon sinuplasty within the next few weeks. It's been going on for so long I don't even remember what it feels like to have a decent quality of life. Overall, it's just an exhausting/depressing experience
100% feel you on this
Did the balloon help????
Did it help fucking dying here lol
Absolute hell. I have chronic rhinosinusitus and the nerve pain around the eyes and upper teeth follows me around every day of my life. Light sensitivity, poor concentration, difficulty reading. Bless you all!
Probably a tooth infection man, i read alot about this. many cases where upper teeth is the problem. see a dentist and pull it out
It's really annoying disease I've been dealing with sinus for years I'm so tired
Easily the worst side affect no one seems to mention - super fatigued alll the time.
@@moy_moy85 yes.... Thank you for mentioning.
@@moy_moy85 yes, exactly! and also the terrible bad breath!🤭
Kudos for the Video clip! Sorry for chiming in, I would love your initial thoughts. Have you heard about - Aiyenry Straightforward Authority (Sure I saw it on Google)? It is a great one of a kind guide for eliminating nasal polyps and infections minus the normal expense. Ive heard some extraordinary things about it and my old buddy Taylor at very last got amazing results with it.
Same
I've had 7 operations on my sinusis over 36 years to remove polyps and remove bone to enlarge the space in my nose, and I still suffer regular sinus infections and have no sense of smell at all, certain things can make it worse dust, pollens, and alcohol. Saline nasel washes a couple of times a week and steroid spray every day helps a little but it never goes away.
I got rid of my crs in 3 years using manuka honey (wedderspoon k16 raw mh) and xylitol sinus rinses. Other people said it took less time. I'm forever grateful and I feel for my fellow crs sufferers because it's horrible.
How is that even possible ? No research has proven to find s cure
@@BlackEswadeh Sorry man I never saw this message or I would've replied earlier. This is what worked for me. I learned this from a great website that has since been taken down by an ENT who called himself the booger doctor, Dr. Faust. He said after having crs for 25 years he looked outside of what he had learned in medical school and went to like a holistic or naturopath or something. Anyway that's where he learned about manuka honey and xylitol. After having crs for about 8 years at that point in time I was willing to try anything because I was desperate so I did it. He said it took him one year but it took me 3 years of using these rinses every day but it was worth it because I was the walking dead. I was so very tired all the time, my nose was constantly running and I had to take steroids to stop it from running which made me crazy. I don't even know how I managed to get out of bed and go to work everyday but I did.
Anyway it was 3 large tablespoons of Wedderspoon raw K16 manuka honey, 3 tablespoons of xylitol along with the the salt, 8 ounces of water previously boiled and warmed up and a naso pure squirt bottle to get it up into my sinuses. I will be forever grateful to the Booger doctor, Dr. Faust for this remedy. I think there has been a lot of research on the benefits of manuka honey. It's natures antibiotics. It's expensive but if you can afford it it's worth it as opposed to taking steroids for the rest of my life and feeling tired and like crap.
Now having said that Dr. Faust also said the sinuses are complex but he also said that most crs is caused by bacteria hiding behind a biofilm that antibiotics can't get too.
Good luck. I'm not sure you have this but for anybody that does I can relate to the misery.
PS I had 2 ENT's who told me I would have CRS for the rest of my life, they were wrong. The second ENT I went to told me I should stop using the honey as it might "pass the blood brain barrier" into my brain and cause problems. When I questioned him the next time I went he said "ah don't worry about it". If I had listened to that guy I would've had CRS for the rest of my life. When a year or so later I told him I thought I got rid of it he looked and said absolutely nothing to me or congratulations. Just a stone face of weirdness. I think he was disappointed he wasn't going to have me as a patient anymore or my money. The one good thing that did happen was I got FESS which helped my breathing a great deal. I actually sleep at night and wake up refreshed in the morning which I never did my whole life.
Anyway Chronic sinusitis is horrible and I feel for you guys that have it. I hope I helped someone out there because Dr. Faust shared his knowledge with me and I will be eternally grateful.
@@brianwalsh1401 this is super interesting is this something you continue to do indefinitely?
Please how can I get this oil, I am willing to try anything for my Sinus infection..
Chronic sinusitis is fucked. No one deserves to go through this hell... 👎👎👎👎👎👎👎👎👎👎👎👎👎👎
I agree. Probably the worst thing I ever had and I've had some serious stuff including cancer. I used manuka honey and xylitol as per the booger doctor website which he took down. I left directions on another post in this video. I wish you luck. Took him one year took me 3 years to get rid of it.
Yeah although often it is not a life-threatening disease, it sure feels like it is!
Where can I get the manuka oil and xynatol
look guys, ive suffered from this my whole life. what i can say, you never fully get rid of it, but you can significantly decrease it by proper lifestyle and diet. do anti inflammatory diet, lots of turmeric and ginger tea, no diary, no grains, no omega 6s in excess (vegetable oils other than olive and coconut, chicken etc).
I am on keto diet and no change
@@Daniel-tl2ln manuka honey and xylitol sinus rinse got rid of my crs in 3 years. I'm forever grateful.
I've had chronic sinusitis for three years. $12,000 in surgery + $1500 and a year of allergy shots and nothing's worked. Woo!!!
Have you looked up fungal infection? I just seen fungal removal in the sinus!
I had a chiropractor adjust mine, bam fixed after three years and no air on the right a post nasal drip that felt like I was constantly choking. Try it, ring chiros and find one that does sinus and nose adjustments. Do it.
Chronic sinusitis is mostly caused by allergic rhinitis that has not been controlled for a long time. I was thinking if I had to go for treatment earlier, I would have to find a professional doctor earlier, but unfortunately it was a little bit too late, I don’t know where are you, but 12,000 US dollars for a single operation is really not cheap. I did two operations and cost about 20,000 RMB, which is about 3,089.76 U.S. dollars including insurance coverage.
I use manuka honey and xylitol along with fess and was finally rid of it after 9 years. I feel so grateful. I wish you luck.
I’m with you too bro, 5 years snd 3 surgeries in still no fix. Don’t know where gunna do 😂
Oh no it's bloody painful
I've had it now since Christmas 🎄 pain , pressure in the head too blowing my nose loads off mucus from the head 😑 I've had antibiotics getting a little better but I can still feel pain in the head .
All my sympathy to those who have this .❤
I am also a rhino-sinusitis patient. I have been sick for several years. It is difficult to sleep every night and my nose is always stuffed. That causes my anxiety. Now I can only use oral hormones that have great side effects. I made the last fight, this kind of thing is unfortunate, but it did happen to me
manuka honey and xylitol along with fess surgery finally cured mine. I feel for you. I've been there and it sucks. I'm so grateful to feel better and not exhausted all the time.
It's a relentless! The swelling on my face the press behind my eye's is unbearable. My ENT has no idea how to deal with this, other than surgery every year to keep my eyesight. Meningitis is a very real possibility. Absolute hell.
Everyone battling sinusitis needs to watch the documentary called Root Cause on UA-cam. I had horrific sinusitis , found out about the documentary from a holistic doctor, was shocked and appalled, followed the instructions and now on the mend
Are you completely cured now?
can anybody help me? I have a post-nasal secretion I already used corticosteroids and antihistamics, washes, antibiotics, antifungals and nothing helps me, what could it be? 8 years in this hell
I feel for you because I've been there. I had success with Wedderspoon k16 raw manuka honey and xylitol rinses. I left my directions in another post on this video.
Perhaps you should go back to c ur GP
Can anyone help me? Im experiencing extreme ear pain, no post nasal drip, sinus and cheek pain, headaches and my head feels like it will explode with i bend over. It hurts to breathe in through my nose... does this resonate with anyones experience?
My experienced same before I had ballon sinus surgery,but I don’t cure my chronic sinusitis even now,preparing for next surgery!
You can go for sinus balloon dilation surgery. It may not be able to solve the problem directly, but at least you will feel a lot better after the operation, and it also provides a good foundation for your post-operative treatment. You may need to take medicine after the operation. , Nasal irrigation, regular visits to the doctor, etc. After the second operation, I can wash out some bad things every time I wash my nose. It is very sticky and cannot be discharged without nasal washing. I still have symptoms, especially when the air pressure drops, but I have been fighting this nasty disease. I hope that what I have written will help you.
I had crs for 9 years and it was horrible. The fatigue and steroids were brutal. I finally had fess surgery and used manuka hone and xylitol nasl rinses to get rid of it. It took 3 years but was worth it. Good luck to you.
Watch the documentary on UA-cam called Root Cause! Your symptoms matched mine and I watched this documentary and followed the steps and it changed my life
Any update ? Gotten better?
I do a Neti pot every morning and then sleep with a humidifier... waking up at night is the worst...
The Neti pot did worsen it for me
Are you feel good a little bit now?
@@hongyingke670 i got an operation. Radio frequency ablation..
i had alot of tissue removed from my nose. No cause why it was inflamed, so it had to be reduced
@@PeterMasalski93 It seems that the doctor did not find the exact source of your sinus infection. My doctor did not tell me what infected my sinuses. I don’t know if he didn’t know or didn’t say. In short, he prescribed renaultcourt and chloramphenicol for me, maybe is there a known source of infection in my sinuses?
@@PeterMasalski93 I insist on nasal rinsing, and I can often see dirty secretions being washed out my nose. Although my nose is still stuffed, it is much better than before. I still often wake up at night because my throat is extremely dry
Does anyone else get like a tightness in throat from this?
Me
My husband does, especially at night while sleeping. Very scary!
I should be in the prime of my life and there are girls who get angry because I won't date them... I can't and don't even want to anymore because I feel like shit because of years of struggling with this sinusitis... life is cruel.
Wow I can totally relate I’m on my early twenties and this crap started as soon as I left school it’s BS but we have got to keep going we can’t let it win.
@@krypton7807 Yes for sure keep going, and there are ways to relieve the symptoms, use a steamer to get rid of buildup in your sinuses, and find a GOOD ent doctor.
And by the way, the prime of a man is in his mid 30's (if you take good care of your health and finances) trust me on that.
..... and!....👌☕😐📖📚