🏥 ADJUSTING TO MY NEW FEEDING TUBE! (4.25.17)
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- Опубліковано 7 жов 2024
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Your such an inspiration Mary. My sister was in an accident and can no longer feel from her knees down. She and I were watching your blogs while she was still in the hospital and she said that if you can do this she could try walking during pt. She took her first step the next day. Thank you for your inspiration.
Kylee Brewer-Leatzow that's so cool hope works in mysterious ways doesn't it
That is so amazing! I will include all of the frey viewers in my prayers even though there is no way for my brain to keep all the names and stories separated in my memory properly. God bless her! and all of you.
Sydney Mcconnell God works in mysterious ways 😇
I hope your sister gets better soon
Kylee Brewer-Leatzow wow God bless!!!! He really does work in mysterious ways!!! 🙏
that training with ollie is so cool!!! what a sweet smart boy. service dogs are bomb
Can I just say that as a nursing major, I really like being able to watch these videos and hear what is happening to you so I can apply what I am learning to an actual person that is going through it. Not that that is the main reason I enjoy the videos at all, but it is nice to have a human connection to things that I am learning in school.
Peter I hope u get a long nap you been looking exhausted but your a great hubby thanks for showing people what a great hubby should do and be!
You are looking so much more like yourself now. I hope that you are feeling more like yourself at time... sending prayers and healing thoughts to y'all
Make sure you tell your Dr. everything or about all changes like the little lumps in your lips. They might be easily explained, but you don't need to find out later that you had something that could be treated or gets worse. Keeping you in my prayers.
Mary seeing your thumbnails with you smiling makes my heart so happy!!!! You and Peter make me so happy every day!!! I feel like you're a part of my family!!!
So happy to see Mary recovering on a steady pace. Hang in there Peter and Ollie!
Wow. Mary you are so incredibly strong. I'm going through some stuff with the hospitals and I'm really praying on it. Seeing you smile and pull through everything you do is such an inspiration. Thank you!
Elisabeth Hufflepuff
Elisabeth Hufflepuff
Yes Mary! Ur videos are so much more believable than Jaquie's!!
the two of you are an inspirational couple.
Oh my goodness the first minute of the vlog is literally me on a daily basis. Laying on my side, face exactly the same, and shaking my legs or rubbing them together (I call it cricket legs) or just rocking my entire body back and forth when the pain gets bad. I'm so happy your pain got a bit better through the day, I know those long nights are hard (I had one last night and pretty much every night this week 😣). Things will get better and I'm so thankful you've got the different pain management tools and your doctors are working with you on getting better 💖 sending you gentle hugs and spoons 🥄
Mandie Zangora I do the same thing! I thought I was the only one that did that, glad to know I'm not alone. Hope you have a better pain day today! I go in tomorrow for another spinal block to help with my Endometriosis and PCOS pain.
Oddly, I do the same thing when I have a migraine or feel nauseated... not sure what it is about that motion that's comforting, but it somehow helps.
Pain meds slow bowel motility, Iron can cause the stool to harden. Don't let it get out of control. Ask for stool softeners if you need them.
Wow, your JTube site healed so well and quickly!
Mary's so strong!! Love you guys!!💜
I just stumbled upon your channel several days ago and all I can say is that I'm completely hooked! I've been watching all of your older blogs and you guys are amazing and uplifting. Personally I have had 43 brain surgeries in the past 10 years due to Intracranial Hypertension. I have a shunt in my brain that likes to be difficult and fail. I've spent so much time in the hospital that I can totally relate to you; I've had meningitis at least 10 times and multiple brain bleeds. Ollie is adorable. I have 2 poodles and although they aren't service animals they are the closest thing I have to children. I'm praying that you continue to improve after your recent surgery and are able to get back home soon!
Glad to see you're doing better! One step at a time, one day at a time. It's great that Peter can stay there with you around the clock. You both are very fortunate that Peter's job as a minister allows him to spend everyday with you, Mary, except for running personal errands and doing the service on Sunday mornings! I recognize that Peter puts a lot into his ministry, but he seems to have a fairly liberal schedule. Most are not so lucky--in addition to providing exhausting care to their loved ones who are ill, spouses and care-givers have to also go out to a not-so-forgiving job everyday, many working shifts and weekends, or whatever it takes to provide. I'm happy that Peter is able to be available to you pretty well 24/7. Not many have that. And he does it well! Your chronic illness is a difficult challenge, but it's wonderful that you two are lucky enough to be able to tackle it together, and your teamwork is beautiful! God bless you both, and all those who's struggles are just as difficult, or even more so.
So thankful you are feeling better Mary!!
Ollie is a good boy! I have to train my dog more he's still new at this but, he knows what to do when I take him to the hospital. I'm having surgery tomorrow morning so, I hope he doesn't get to nervous 😊
Mary is an expert first class at re-framing negatives as positives. There is a helluva lesson there for anyone who cares to learn it.
Glad to see Mary doing well
Please pray for Jasmine Ruff- she is a CF patient and was called for transplant yesterday and they declined the lungs this am. She is in a struggle. She is in Chapel Hill hosp. I know you all care- thank you.
Glenda Ruff Praying her time will come soon and sending hugs. That level of disappointment is inconceivable. There must be method in that madness - somewhere there will be a slightly better set with her name on them. Thoughts also with the donor and family.
Glenda Ruff Prayers. I'm so sorry the lungs didn't workout. It's a set back but not the end of hope. Love and blessings to you.
I'm so glad you're feeling better! Ollie is such a smart dog! I'm always fascinated when I watch y'all train him 😊
Ollie is so amazingly smart!! He is a bright light & such a blessing!
keep smiling Mary, you are doing so well, hopefully you are over the worse now 🙂
Wow it's nice to see Mary smiling again
Who gives this a thumbs down??? Unbelievable. Anyway; thank you for sharing your lives with us, you are one of my everyday channels!!! God Bless
Gear Obsession they clearly just hit the wrong button. That's the only reason anyone could give it a thumb down
They might’ve also given a thumbs down since things are not going great.
So happy to see you progressing Mary. Amanda: 👍 Peter and Ollie are so loving and supportive! It amazes me how smart and intuitive Ollie is. Mary, have fun eating all those snacks. Hugs, 💗🐕🐾🙏
I've been sick this last week, and I have two kids under three to take care of. My husband has been amazing but it's been difficult, because they don't totally understand that mommy isn't well. So, to get to the point, I've been feeling really sorry for myself off and on but I stop and say "do what you think you can't do, cause you sure know Mary is giving it her all". I just want to say thank you! You are both such an inspiration to me and so many others. Im so grateful that people, such as yourselves, are spreading such a positive, strong message to the world through your vlogs and please know it's helping so many get through tough times. God bless
Mary, you so, so, so encourage me. The Lord is your strength and you NEVER EVER give up!! This week has been hard for me with a really scary situation and then ER visit earlier this week, and no answers yet. Thank you for sharing your journey with us. You encourage me
Ollie is such a smart pup. Love him to bits.
Thanks to you Mary cleaned my porch today. I just kept saying to myself, "Do what you think you can't do, do what you think you can't do!' Two weeks until my back surgery and I am determined to do some things i know I want be able to do while I heal. You are a hero to me Mary. You, Peter and Ollie. You guys brighten my day everyday. Even when you are feeling so bad you make others feel good. Much love to your little family.
I just had surgery for my feeding tube this morning and I'm in a lot of pain and this video made me so happy to see that you're feeling better!
Ollie is BEYOND intelligent! Such a wonderful service dog! Your videos are a highlight to my day. I'm so happy to see that Mary is feeling better. As a retired OR/GI RN, I had made a comment on an earlier vlog that you must expel the air that they put in you to do the surgery. I didn't want to say "fart" but I saw yesterday that you figured it out. When I had gastric bypass, I had to endure the same thing😂 God Bless you both and Stay Strong!😻🙏❤️
It is so great to see that Mary is able to get up & move around!! Love you
Mary, have Peter check to see if you all have Annie's Homegrown products in your area. I know Costco carries them but many organic stores also carry them. Everything is shaped like a bunny. They have Bunny Grahams in a bunch of flavors including cheese, chocolate, honey, and chocolate chip. They also have fruit snacks that don't get super tough to chew but rather stay fresh tasting like real fruit. I buy the big boxes at Costco so I can be stocked for the whole month. There are lots of other Annie's Homegrown products as well. All organic. Just thought I would give you the suggestion for future hospital stays or even at home.
I just wanted to say you both are truly inspirational. Continuing to pray for you guys. Love your videos truly a blessing. 💙
Mary, it was so unusual to see your legs move like that, because I do the same thing! When I am in pain and my stomach hurts, moving my legs like that gives me the only short relief that I can get! I don't know why it helps, or how I started to do that but it works. Keep going girl!! You're an inspiration! Plus your husband is the absolute sweetest, it's great and you're so (both) so lucky!
I became allergic to tegaderm after years and years, now if I use it I blister and itch so bad. I can only use IV3000 now. I'm so jealous of your button, so tiny and cute! Here they only use them on kids, adults get the long tube :( . Ollie is so sweet and so very smart, good idea on training him to avoid the tube! Hope your pain lessens more and more each day.
love your new addition to TheFreyLife! just chill and relax
I just recently came across your vlogs and I am impressed with how you are handling this life long condition. The grace and maturity you display is awe inspiring. Even though I am currently dealing with a severe withdrawal from a psychiatric drug chemical dependency, I feel your struggles are way worse. And having a husband who is clearly your friend is wonderful to see, what a blessing. Thank you for sharing your story....and your songs!
Stay strong Mary. Love you all. 💜💙🐶
Oh, Mary, thank you for everything. Your viewers are ready to take their medical board exams now. :) I think the iron IV is cool. I hope you feel well. love to all y'all!
Great to see you are doing better Mary ! Ollie is so so cute ! :) He's a good boy ! Love your puzzle ! Hope you are home soon and your bloods go to normal as possible Mary! :)
You're looking AMAZING Mary!! Keep fighting
Hi Mary. I was in the emergency room all night throwing up and severe diarrhea! I had a severe reaction to my antibiotic Amoxicillin. I felt queasy the first dose. The second had my in the bathroom both throwing up and pooping for 3 hours. I call 911 after severe cramping and feeling so weak and feint. I am in bad pain but feeling better. I am happy to see you feeling much better! I am being refered to a pain specialist and neurologist for my nerve damage and watching you is so inspiring!
Moriganna Brown Hey Morgianna, I'm sorry to hear what you are going through. Sending prayers for you!
meowsthree Thank you! I am still feeling awful!
Moriganna Brown so sorry to hear that, I hope you'll feel better soon! Also now I'm happy I didn't take mine when I had the prescription for the same antibiotics..
Oh no, that's so terrible. I'm so sorry you are having such a hard time. I hope you are under good medical care and that you improve soon.
Jay Tee I am under the best medical team care and I know she will find the best pain specialist and neurologist for me. At the hospital they took very good care of me giving me socks a gown and blanket to take home. I can eat this morning so am so happy. The rest we will see be step at a time. There is way to much on my plate however as Marysaw...Do what you think you can't do... LOL and we do the best with what we can
Mary, I know Ollie is a service dog but he is so stinking CUTE! I love his little expressive face and he seems to really enjoy training time as much as just his normal duties. Hope you feel better soon!💕
Your "out-ro" shows you are feeling better, Mary, and I'm so happy for that. Here's to a speedy recovery❣️
You and Peter are awesome, but sometimes Ollie just steals the show!
That's a risk when working with animals on camera. :-)
I really hope u feel better mary. U and peter and ollie r the best UA-cam family ever
Girl those snacks look goood!!
Thanks for explaining about the blood transfusion. I thought the same thing, but that's fascinating! I was someone who truly thought CF just affected the lungs, until I started watching y'all forever ago. Praying for more comfy days, and thank you for educating the public! ❤🤗
You are such an encouragement and inspiration Mary. So good to see you improving daily!
Peter you are such a gentle, loving and caring husband. 🙏💖
It's quite remarkable how well you take each daily obstacle with patience and care. Thank you for sharing this journey with us.
I'm about to head back to get a port. wish me luck!
+Jessica Soucy thank you!
My son has learned about his leg pain is his low iron. Also restless legs can happen if you are stressed. I am so glad you feel better.. Water helps with headaches however my headaches are different but it helped my son with headaches and that why I mention it. PrAying for you all Mary,Peter and Ollie. Do WHAT you think you can't do you have this Mary..
❤️Love you Mary and Peter! Thank you for all you do! Prayers for you!
Hope you manage good sleep tonight Mary, can't wait to hear about your progress tomorrow.
As hard as it is to watch (and I'm sure film) the lower points, I'm so glad you keep it real and don't sugarcoat anything. It's so easy watching vlogs to think how nice their life is, I love that you show us your real life not the ideal life
I know you're not feeling amazing right now, Mary, but you do sound so much better already. Hopefully your recovery continues to go smoothly and quickly, and the feeding tube helps you get your strength back up!!
Also what a lovely meal for the hospital! I'm sure mixing it up now and then is a nice treat.
My niece has a feeding tube. She had to have it because she's six and a wild child so calories just do not stick to her. Her parents call it her "button" and it's helped her a TON (she also has CF).
Commenting while watching! I'm glad so far to see that you're doing better Mary! I've been sending you all of my prayers! Peter, thank you for being so wonderful and supportive!
When Ollie backed up on command I actually said "Oh, good boy!" as though he could hear me! He is SO cute! Hope you all have a better night tonight. X
You're doing so well, Mary! So glad you got to eat the fruit. Great job to your physical therapists, and as always, massive kudos to Peter. He is ministering all the time - to the congregation, to others, to you - it is plain to see that the Lord sustains him.
Your feeding tube is perfect, it's so discreet! And Ollie is doing so going being careful of the line, he's sooo cute!
Ollie is so cute and well behaved!!❤🐕
pump that Iron Mary!!!
That is such a lovely puzzle! It would be so nice in a frame. I hate seeing you in pain, but it's inspiring to see you fighting through and it inspires me to push through when mine is bad. Xx
Mary, you are so strong, and you have a great Husband! It's good to see that you're getting/going to be getting the nutrition you need.
I thought it was so sweet how Peter called Marys tube beautiful
Hang in there, Mary. U r so brave and so strong. I live with pain everyday, so i sort of know what u're going thru. U manage to keep ur positive attitude and that is so awesome. HUGS from Canada. :)
Hi guys. Found your channel last week. You are inspirational. Mary you are in my prayers. Ollie is just the sweetest!
MegaGivenGrace ju
You are so strong! The training with Ollie was precious!! Many blessings to your family💖
Such an inspiration! My attitude towards my own life has changed watching you be so happy!
so many prayers to you Mary Peter and Ollie. and I love clover. :)
I bet you feel like a new person after your shower, mary! I know I do after I have been unable to shower. so glad you're doing better!!
One step at a time. I hope you start feeling better. Once you heal up you should have more energy.
i watch you guys all away from Finland😇💕 This video made my night.
Ollie's hair gets lighter in the Summer I think. He looks more colorful now at the end of Winter. He's so pretty! :)
what a lovely dog and so smart!
Glad to see your feeling better I will continue to pray for you and your recovery💜
Oliver is so cute and smart. Meanwhile, my dog is hiding under a blanket because it's raining. lol
sorry you had a bad night....I hope they get your blood counts back in check..the hosp food at your hosp is gourmet meals compared to most hospitals!....I've always thought that :).......I'm so thrilled that you got this new fuel line...It will be sooo much better than the NJ....love you guys..prayers...God bless.
Love your Ollie
If you can drink beet juice if you can it will help your iron I had to have 7 blood transfusions and my doctor told me to drink it and it help to help bring blood count back up please try it it might help you
I love that Peter thinks that the J tube is cute ❤️ coming from a nurse I also think they are kind of cute lol! Hey if you want me to cook for you some Puerto Rican food, just give me a call. Puerto Rican born and raised 😊 love you guys!
It's beautiful I mean the puzzle, I hope you get better soon.
Oliver is so smart!
Your guys are such an inspiration ❤️I have Crohn's disease and now my drs are Nanking me choose whether I want a tube through my nose or the one through my stomach. I've been having a hard time accepting it and watch your videos have helped me a lot and I can relate even though I am only 14. But thank you guys for being who you are. Keep making videos and I hope you get better❤️
You are an exceedingly delightful person, Mary!
I wish I could remember more but I had a dream last night that my husband and I came to your and Peter's house for dinner. There were other people there (including a girl I haven't seen since I was little) and they were all talking together and for some reason we had to leave and didn't get a chance to say goodbye. On the way home, I also realized we left before you had a chance to put out the food and I felt so bad we left when you had made us dinner. If we ever come for dinner in real life I will try to at least stay until we eat! LOL!!!
waitingforspring317 I weirdly had a dream that I went round to Mary and Peter's for dinner! It's a strange world :)
Phoebe Brunt That's so weird!! haha 😂 Maybe you were one of the guests there in my dream.
Well, nice to have maybe met you in a dream 😂
I have only been a subscriber for a week or so but I have learned so much about CF. Thank you!
I was just watching your Florida vlogs and getting to swim with the Dolphins. that's always been a dream of mine too! you guys are awesome, I suffer from depression so thank you for bringing a smile to my face everyday. you guys are in my thoughts and prayers!
Thank you. I've dealt with it my entire life. I'm 22 years old and just started asking for help. Its been a long hard road but I refuse to give up.
Alexa York Hi sweetie! I have depression as well and they always make me laugh and feel exceedingly inspired! lol I also have OCD, ADD, Broad Spectrum disorder which are all associated. I wish you a great day and I hope you feel great! xo
Moriganna Brown awe thank you so much! I hope you are having a great day too and i hope you have an amazing weekend coming up! stay positive and keep moving forward. its good to know that im not alone. there are people out there that are suffering much worse than I am and i hope they know that they are loved and cherished and they too are not alone.
Alexa York last night was hell as I was at the hospital from a bad bad reaction to amoxicillin. I was both puking and 💩 and was there comes 19p.m. until 5a.m. when they gave me breakfast to ensure I could keep food down. I was brought home at 5:30a.m. with a hospital gown and blanket because I had no shoes sock or pants on. BOL. They were so nice giving me socks and such.
oh no I am so sorry. :( hang in there. keep fighting.
Hope. Feeling better soon Mary
Bet it feels better than the tube down your nose. You are a real trooper Mary. Hope you get home soon.
I had 2 heart attacks 8 yrs ago when I was 45. Heart disease runs in my dad side of the family. When I had my 1st heart attack (which I was 100% blocked and the doctor couldn't understand why I didn't just drop dead.) My mom kept asking the ambulance people if I was having a heart attack and they kept saying she is having a cardio infarction. She was a nurse but I think she was in shock. I was very very fit. I eat healthy. I walked 3 miles every day, sometimes more. But I couldnt escape hereditary heart disease and cholesterol. I had a pump in my heart to let it rest for 3 days. I had to lay flat on my back because the line was still in me running to my heart working the pump. 5 days after my 1st heart attack I had another one and needed 2 more stints for a total of 4. I know how hard and life changing chronic illness is. All that damaged my heart a great deal and I can not do most things I used to do. I had a lot of depression at first but then I made myself get up and start living life again! Now I work fulltime and I've learned how to do what I need to do in different ways! My mom had muscular dystrophy and taught me how a positive attitude and the mind set to do what you have do no matter what gets you through the pain and exhaustion! Watching your videos and seeing how hard you fight and how positive you are is very inspiring! I love seeing how much you three are ment to be together. You guys always your like everyone else but your not. You guys are special people! My mom was a rare person to. She was the most loving caring selfless person I ever ment! And you guys seem the same! Keep on fighting the good fight and never give up! The world needs people like you!
I'm getting a PEG tube next week, your videos have been really helpful for me.
I love my emla cream! I have a super sensitive scar on my ankle and I have to wear boots to keep my ankle from rolling. Most times the boot rubs the scar causing pain. I was so happy to have found out about emla cream.
So lovely to see you up and about in a more "normal" way and sounding like the Mary we know (as opposed to groggy etc)! Glad things are moving forward in a positive direction!
so happy it's working! you are both in my prayers. God bless!
Keeping Both of You and of course Ollie🐕 in my Prayers🕆Love the puzzle, it's beautiful....Stay strong my friend, your doing great Mary....One day at a time....❤
Hi Mary and Peter I can totally relate to you I am 13 and I go to BCH like 3 times a week. I have a chronic disorder called NF2 and have been dealing with it my whole life. You inspire me to just keep trying to laugh everyday. I would love to meet you someday when you're immune system is strong.