MY FEEDING TUBE WOULDN'T STAY DOWN! 😢 (2.9.17)
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- Опубліковано 9 лют 2017
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My heart melted when Peter picked Mary up. Such a good hubby :)
i love them to. and I also love Oliver and when they were sliding I died from adorableness
right i was like awwww how adorable he loves her soooo much which makes me happy for mary she deserves to have someone that loves her as much as peter does .
Same! Peter is like the real life version of every man in romantic movies. They are too cute and perfect for each other.
drink me you mean too
The fact that her man stays with her and loves her so much and supports her is amazing bc ik that many men wouldn't do that.....amazing😊❤❤
Serenity Wright Dump any jerk that wouldn’t stay.
I would most definitely stay and take care of my love. The biggest problem I have is finding the right woman. Believe it or not, I'm on the other side of the spectrum as to not finding a good woman. To this day, my last ex gf still has my coat from two years ago from being cold. She lives in SC and wanted to mail back my coat but I told her to keep it. 😁😁
**Peter**
@@matthewpacharis5823 Are you still single?? Just a question. Are you God fearing? I'm having issues with finding the right spouse?
@@Catlady1210 Hello and yes im still single. I actually decided to spend the rest of my life single. : ) I am not god fearing at all. Im not big on going to church but believe. I hope one day youll find the right guy and hope he treats you with full respect and loyalty. hugs and kisses
when Mary was crying on the stairs Ollie had a real look of concern on his face it's amazing how human like he is sometimes!
I just cried for you Mary. We the viewers love you!!! And...... you have 110,000 of us that love you!!! Woop...
David Lupo yes we do!! Love the Frey's!!
Kat Piotrowski nn
Or more
David Lupo i
David Lupo she sure does and I sort of went wait where did that go
Watching this 4 years later when you are doing amazingly well on Trikafta and ready to adopt a baby boy is so great to see how far you have come and what a miracle trikafta is.
You kept it in for 9 whole days, though - and clearly, as time goes on, the tube itself joggles out of place. And you've absorbed a lot of important nourishment in that time. I give you lots of thumbs up on that one!! Not to mention good grace and patience dealing with leakage and explosions...
Judith Montel I like your positivity. :-) You're right - it was 9 good, solid days of nutrition. That's got to have helped some! And she really does do it all with such class and grace. She always has that beautiful smile of hers, and that "Well, it happened, and I'm moving on" spirit that's so uplifting. I really admire this couple. They're amazing.
Judith Montel yeah that easy happens with people I could hear it in her voice
Since watching and following your life with CF I have changed my mind about organ donation. I am now a registered organ donor and proud
Awesome!
When i grow up i want to donate my organs
So do I but with my health I won't be able to😂😂😂 but you have great intentions xxx
Jemma Boo you would be surprised! I have a heart condition and a lung condition, yet I registered as an organ donor. I messed up the registration and didn’t consent to donating my lungs and heart, because I assumed that they would be too badly damaged for doctors to use. I was wrong- even though my heart has some scar tissue, I found out that they could still use some of it. Same goes for my lungs, even though I might need some (more) of my left lung removed within a couple of years.
That's so wonderful!
It's amazing to see how much better Mary is today.
Your husband is such a true blessing , and of the best examples of kindsness, commitment, caring. Love you guys to the moon and back :)
When he was carrying her in the snow I was thinking "please don't fall again" because of the one blog when he carried her down the steps for the log cabin they stayed at they fell and I'm just like "oh jeez now they're gonna face plant on the snow this time" lol
Mary, I'm so sorry. Be an overcomer today. I'm cheering for you :*
Now I want to drink mint tea :P
lol, I thought the same thing! I wanted mint tea yesterday, too, and there it is, HAHA! Next time I get some I will drink it for you and Mary! ;)
Mary. I am so so sorry wish I could take the pain away.
You should make snow ice cream.
I love your cute icon Audrey! Ollie approves of it too! ;) It looks like a kitty, but he still approves I think!
Me too
I suffer from health issues and it does make my life complicated at times. I have started to say to myself "do what you think you can't do." and it has helped me so much. Thank you for sharing your lives and being so real
It was so sweet when Peter carried Mary across the yard! He is such and good husband! Thank the lord for that! I hope everything goes well your NJ tube and you can get a Permanent tube in place. Praying for you Mary! I love you ups so much! 💜
The fact that Peter is always so sweet and caring when it comes to Mary literally melted my heart while watching this
I really hope you can get a permanent feeding tube .... I had this issue so my doctor placed a peg Mic-key and I've had no issues I've had it almost a year now ! I pray for you everyday Mary ! I know having a chronic illness is so hard I hate it so much but we can't let it get the best of us :)
I said an extra prayer last night after I saw the video because I knew you were very concerned it was coming loose. It was already out by then I'm afraid 😰❤. Still praying they give you an easier option, this is not a good one if you wind up having to get a new one every couple weeks. I'm so sorry honey. Praying extra hard in Houston.
April Tatum the
Oh sweetie I wish I could make things better for you,I've got you in my thoughts. Xxx
April Tatum last night it was already out because of the (understandable) time delay. we are a day behind the Frey life!
margaret aaron Yes, I guess I worded it wrong. That is what I meant. I just feel so badly for her.
I do as well. I do hope she finds a solution that will fit for her.
Mary, Peter and Ollie: Thank you for sharing your lives. The courage, beauty and love that surround your story is a source of hope and inspiration to us. The three of you are perfect for each other! Love, hugs and prayers💕to your family.
Having had several NG and NJ tubes, for "fuel", i know how incredibly frustrating it is when they come up😞 Mary, your attitude is RIGHT ON..."do what you think you can't do!" as well as ,"fly when you think you can't walk!" have helped me sooo much and have become a part of my daily affirmations!!.. (both of these quotes SERIOUSLY need to be on merch!!)😁 Being able to quickly move on from upsetting situations or disappointing ones, (losing a tube!) into enjoying the rest of your day is soooo important.. You are such an amazing inspiration and have reminded me many times not to stay stuck when things don't go as expected, rather to feel it, acknowledge the feelings and move forward....
Thank You😁💕🌷
i love how support Peter is and how he kept up the positivity even after a rough morning.
Oliver ball footage made my day.
Amy Baumann Me too☺
I have recently just started watching the frey life. I am in awe of the courage that is displayed! The love that you two share is so beautiful. Such a testament to you being soulmates and that you are supposed to be together for this journey in life! You do it so beautifully! Your willingness to share that with us viewers is such a gift. To let us into such very personal and extremely challenging part of your life along with all the the wonderful experiences you have. All I can say is thank you for allowing me to view your journey! I pray for you Mary and Peter everyday I'm so thankful that you share this so people can have an understanding of CF and how it affects people's lives! Peter you're such a wonderful man!! This is equally as hard on you in so many other ways. I love watching you with Mary , your devotion ,care , gentleness with her is just beautiful to watch! You can see how much she loves you you guys are a great couple!
So sorry you fell and lost NJ. What a beautiful day of snow... loved watching Ollie and Peter play with you, Mary! 💞
So sorry Mary, I started to cry along with you.
Thanks for sharing Ollie playing in the snow with his ball.
I know how it is when evening or late evenings come and you start to feel a little better. Enjoy those moments!
Peter, you are a rock! We can see how much you love and care about Mary.
I hope you guys don't read these comments from the trolls and take them seriously. I know it is hard, I have a channel myself (no where near the size of yours but still)...you are awesome, keep doing what you are doing and never give up! We are praying for you!!!
Amber Canaan
a skdjsiidoejsoej
Amber Canaan thanks for the warning lol
Amber Canaan 😬😅
Amber Canaan i don’t see any hate comments to the contrary it’s all good vibes !!!
😞Feeling your disappointment, Mary. On the brighter side, watching Ollie play in the snow! Can anything be more adorably uplifting?🐶❄️❤
You are so strong, you are so loved, and you are created in his image. I hope you know we may not face the struggles you have lately, but we back and support you. I pray for healing, comfort, and strength. Much love from ND!
I can only imagine how frustrated you were Mary. Love & Prayers for you.
I hope watching Ollie play in the snow brought you as much joy as it did me! So sweet watching him bounce around.
I'm so sorry this happened. My heart is broken for you. I hope your team figures out something better.
Ollie boy in the snow, so cute! Trying to laugh everyday and that footage helped.
I love how even though something really hard and frustrating just happened they still try to look at the bright side of getting to play in the snow. They’re both such beautiful people inside and out, it’s so inspiring and humbling to watch them.
One thing's for sure, you two never have a dull moment.
Prayers and blessings to you.
You just brought tears to my eyes. But 6mins of fun in snow is better than no fun and no snow ☃️❄️
I saw the news on Instagram before the vlog. I'm so sorry Mary. I also saw your comment last night and it made me whole day. Thank you. Love you guys.
Keeping you in my prayers, Mary. I know you were feeling better, the nutrition was surely helping you. Praying for the next treatment plan. Enjoy the snow, and your headstands!
I just cried..... how frustrating when you are doing everything you can and it still came out? Enjoy the fun in the snow with your family
make homemade noodles. 1 cup of flour, 1 egg a teaspoon of salt and 1/2 cup of milk. Roll them on a floured surface, cut and drop into your pot. YUMMY!! You don't have dry them.
Louise Sproul This may be so fun with my son! Thanks for sharing.
another future episode of their cooking show, "Sizzle, Sizzle Frey fry! " I would love to watch it next, lolol!
Louise Sproul Does this work in the crockpot?
Cutest couple ever! When Peter picked her up to take her closer to the dog.
Having had several NG and NJ tubes i know how incredibly frustrating it is when they come up😞 Mary, your attitude is RIGHT ON..."do what you think you can't do!" has helped me sooo much and has become a bit of a daily affirmation!!!😁 Being able to quickly move from the upsetting moment into enjoying the rest of your day is soooo important.. You are such an amazing inspiration and have reminded me many times not to stay stuck when things don't go as expected, rather to feel it, acknowledge the feelings and move forward.
Thank You😁💕🌷
I'm sure sorry you're going through these struggles!! I can only imagine how emotionally draining it is. You are an encouragement on how to stay positive despite chronic health issues!!!
I'm really sorry marry I know how hard it is for you I wish it would have stayed in it made you feel so much better ❤❤ thank you for sharing these hard videos
So sorry this happened! Sending you love and light! 💕
Ollie playing outside brought a huge smile to my face! Praying for you Mary, Peter and Ollie. Hoping and praying you and your team can come up with another plan to help you starting to feel a bit better.
Awe Mary I just want to hug you!!! I'm sending you so much love and raising you up in prayers!
so sorry Mary it isnt fair. it has been great to see how much more energy youve had with the extra calories. your doctors will figure it out.
I'm so sorry. I know they have weighted tubes but not sure if they are long enough to go to the jejunum. the weight helps keep them down. so sorry!!!
Trista May She sees a doctor that is for adult patients with CF, but they meet in a children's hospital. It's explained in their past videos going back to the hospital for tests.
I had a weighted NJ
Trista May - since you seem to have so much medical knowledge what would you suggest? what is the "adult" approach to her nutrition needs?
Please ya'll no fighting. I know the Frey's share a lot of their life with the public, even with the every day challenges of Mary having c.f. But in my opinion they do not deserve to see any viewers fighting over where she is treated and why. They are fully covered with a specialized team aware of the c.f. challenges. And Trista was correct she meets at Children's Hospital. But she graduated a while ago from pediatric. You can go to their Q and A play list for more information. Let's be respectful to one another for the sake of Mary and Peter. And if you do not care, then there are plenty of other vlogs to watch 😉 💕🤗 Thanks and god bless.
Trista May it wouldn't have because she coughs all day long. There isn't a day she doesn't cough. And she has also stated that her lungs are in NO CONDITION to go under anesthesia for this kind of procedure. All they are doing is seeing if the NJ tube helps her, and if it gets to that point, that's when her and her CF team talk about the surgery. Surgery isn't always the go-to first option for people with CF.
So sorry for all of the challenges that you deal with everyday! You are a better fighter than I would be. Hang in there! Prayers for you!
So many prayers are sent your way.
Mary you are the most resilient person I know!! Sometimes it looks like your going to give up or feel sorry it lasts two seconds you bring the positive of the situation out and move on to do what you think you can't do!
Like head stands.! You truly amazing and helped me so much!
You have given me the emery to take the world on. zif Mary can do it I can do it. I've had a business opportunity come along and I'm going for it 100 % and going to start and build a new company!;Again thank you.
Randy Larson I bet doing these vlogs helps a lot. You won't let yourself give up for the rest of the day or week when you know you're going to show 100,000 strangers what you did that day and you want to have something interesting in there.
So sorry Mary. Prayers and hugs.
I was scrolling through my UA-cam and came accross your video titled about lung transplants which has set me off on watxhing a load of you guys videos when I should be sleeping. My dad had COPD and emphysema and had both lungs transplanted on November 11th 2017. I havnt yet watched your video about it yet ad tbh it still brings alot of crazy mixed emotions about my dad's transplant. He's fine now and doing wonderful and now gets to watch my daughter grow up. It's just amazing from 24/7 oxygen to walking and playing with her. I will watch it eventually when I cab but the rest of your videos have kept me occupied for a couple of hours now. You guys are awesome. I'm loving watxhing u guys and how ur so positive and fantastic. Tiff, All the way from Wales in the UK
Awh mary, *hugs* ♡ you are so strong!
I feel so sorry for you! I hope you're OK! I hope you get better! God Bless You!
Mary and Peter, you are without a doubt the most inspirational, loving, and all around amazingly awesome couple I have ever seen!!! I happened upon your channel just a week or so ago and I fell in love with you guys quickly!!! Mary, your attitude and ability to stay positive no matter what just WOW. And Peter your support is so loving, and unwavering. I love watching you and THANK YOU for sharing your lives with us!!! Oh, and that Ollie boy is super special too...Hugs and Love from Upstate New York! xoxo
You got this Mary. I totally agree with you on do what you think you can't do. I'm so sorry that things aren't going well with the NJ tube. Prayers that things start going better. Love and hugs always.
Oh hun I'm so sorry. Maybe try to get some relax time? So you can recover some.😢🤗 You tried hard. It's not your fault. I worried it was gonna happen the way the tube was bunching last time like you described. All you can do is concentrate on the positive and not think of the negative stuff right now. Head up. This too shall pass. This roads bumpy but you'll get through. Your so strong. Look what you've fought through and overcome. You can do anything you put your mind to. Enjoy the time with out that tube. Lots of love and positive energy from us.
Oh Mary. You poor dear sweet lady! I didn't cry this time when you cried. lmao. Prob because it was so quick. You are one mega super hero! Loved seeing Olie enjoying and playing in the snow and Peter doing a slip and slide hahaha!
The part where we see Olie playing in the snow and Peter carrying his wife just got to me....Life is beautiful! #letsbethankful🙏🏻
Mary, you are an inspiration to all of us viewers! I love you all, and wish you all the best! Headstands make everything feel better for sure!
Aw no, poor you. Maybe they should try one with weights at the bottom like I had. I feel so bad for you.
So sorry Mary that your nj came out yet again. Hopefully your team can come up with a better solution. Prayers and love from Canada.
Oh Peter. All the fun camera set ups for Ollie was awesome. He is adorable. Sending love to the three of you.
So sorry guys! Broke my heart. It's amazing how you always seem to find the silver lining in everything! ❤❤❤
I'm praying for relief for you and Peter
I am sending you a hug from Texas. overcomers unite.
Prayers Mary AND Peter AND Oliver....Mary it's so nice to see you able to eat some...glad you got out side in the snow for a little bit...Keeping you all in my Prayers xxx
Such a beautiful soul! You are so strong and wonderful. *hugs*
So sorry about your tube! I have been praying for you both and I know that God has a perfect plan for you, Mary. I also want to say that no matter what commenters might say, you and Peter know what's right for you and your healthcare. I hate that people are criticizing your healthcare choices but I know the way it feels. I choose to see my primary doctor instead of a rheumatologist for my lupus after the rheumatologist stopped listening to me. That was the right choice for me, but when people criticize me it still hurts. I just don't want you to ever question your healthcare choices. Honestly, I think we should all just feel lucky that you guys vlog everyday! Love you guys. Sending prayers from Oklahoma.
Make sure the plastic stuff you get from the dollar store is bps free. Don't want you getting sick more❤️
Aww so sorry Mary. I hope you feel better real soon. Love watching that sweet little Ollie and ya.
Bless your heart...you are so lucky to have an understanding loving hubby❤️ I hope they can place a permanent feeding supply. I fell in love with you 2 through your awesome journey!
My dad was very sick with ALS which also includes a lot of coughing and choking. He was very weak and they were still able to give him a g tube in the abdomen wall. It was like a 5 minute procedure and he healed very very fast!! Please think about it!!!!!!!!
Love when oily lifts his leg up for his tummy to be tickled such a softy
I love you Peter and Mary! You deserve more than life has thrown at you. Such a sweet couple!
OMG... loved it when Ollie dove face first into the camera. So cute. Glad you were able to get out and enjoy the snow!
Understandably mary has issues with going under anesthesia, but i was wondering if she needed to get the permanent nj tube why couldn't they do an epidural or something that way they don't have to put her under and put her lungs under to much stress?
Amanda Moore Placements for those are too high for spinals, I'm guessing. Spinals can't typically go higher than waist level, which is about where the permanent tube would go.
Amanda Moore the issue with that is anything involving her abdomen would be a really hard recovery due to how much she coughs
Amanda Moore It's a good thought but an epidural wouldn't help in this case. Epidurals & spinals only work for the lower half of the body. It unfortunately wouldn't help for getting the NJ placed 😕
Amanda Moore the tube would be called a g-tube I have one it's a hole in the stomach and its painful when you cough when you first get it.
Wouldn't the pain be the same either way after with her coughing? i mean they basicly do abdominal surgery when you have a C-section and they do epi/spinal for that in most cases. i know completely different situations.
Mary I"M SO SORRY. Ollie was too cute in the snow ♥
I was watching you guys in the car with my mom and she pulled over so she could watch too. She is slowly starting to understand my love for you guys. You make my day shine and you always make me laugh and smile! I feel like a part of your family. Thank you for being wonderful people that inspire and motivate all around. I'm so blessed to have found your channel!
You are a trooper and I am always amazed at how you and Peter "roll with it" and make the best of the times when you feel good. Prayers and weight maintaining thoughts to you.
I had dinner with you tonight it was great coming home and just sitting having dinner and listening to you guys watching you as I said earlier Mary you can do all things through Christ to strengthen you I know that you will overcome you guys have a good tomorrow today tomorrow I don't know be blessed
on behalf of the rude and hateful people commenting, I hope Peter and Mary have elected to not read the comments....if you are. we love you and admire your strength and unwavering love for each other and Christ, and for the haters....I prayed for you too. heaven help me and my family to never have to face this walk they are on. God Bless Them.
I'm so sorry this happened again Mary. It really pains me to see the hardships such a wonderful person like you has to go through. But it makes me happy that you had a blizzard too! It means we live close to each other! AND it's supposed to snow A LOT on Monday so I'm excited to see that vlog!
What a great video! Ollie & Peter were so cute in the snow. And Mary made it outside for a little bit. I love that you didn't make the hard stuff ruin the good parts of your day! 😄 I'm right now in a dark room resting from a migraine. My 16 year old son has friends over & they are playing a board game. My oldest son is going to make us macaroni and cheese for dinner. The rain is just starting here in Southern California. Thanks for helping me see the good stuff in spite of my pain. God bless you all!!
Aw Mary I'm so sorry... you guys are in my hopes and prayers! I love you guys! Stay strong! You guys are my inspiration to stay alive. Ive been very sick lately and feeling very suicidal and you guys are one of my many reasons to live! You are such a strong girl! Love you guys!
Kim Sunflower you stay strong too! You are stronger than you know
Tim Chilson thank you :) you are a wonderful human being!
Kim Sunflower thank you :)
I feel the same way. Being young and very ill can be difficult and feel pointless sometimes . Seeing how strong Mary is really helps me. So often when I end up crying for her, I realize how blessed she would feel to be as healthy as I am. And that makes me feel blessed.
Kim Sunflower I'm cheering for you. I've been where you are not too long ago and take it from someone who knows.... It can get better... sending lots of love to you... be an overcomer. I know you got this 😘you are awesome
Her voice is so sweet! I could listen to it all day.
aw Mary...God bless you! I hope things get better for you and you and your NJ tube can work things out
I've just started watching this one. But when the intro started, and Mary was obviously without her tube, I teared up. I know I'm not alone in that. It's just not fair. You're doing such a great job, Mary. You're doing everything you're supposed to do. And doing it with such grace and beauty. You have the most incredible outlook and optimism - far more than I'd have. You really do laugh every day. It's not fair that this thing doesn't stay put. I'm so sorry you're having these difficulties. We love you, Mary and Peter. And we're all here supporting and encouraging (AND PRAYING FOR) you.
My husband and I are very much night people, that's when we are both the most productive. But of course God has a sense of humor and blessed us with 3 little early birds. lol
Mary, do you like Parmasian cheese in chicken soup? It's even better with chicken and rice, but chicken noodle, too. My Dad loved that.
Oh Mary, I'm so sorry hun. I cried for you. You are a strong lady. 💟
I'm so sorry, Mary! Keep hangin' in there. Praying for you!
+TheFreyLife I think that it's very hard with an NJ. If you wanna deal with it go ahead but if it's not for you, it's not worth it.
Ugh, you just need a vacation from all of this! I really wish you could get a break just to re-group.
I'll definetly be praying for you, sweet, sweet Mary. Love y'all. Feel better.
Mary, You are SO STRONG! Great job for keeping your NJ down for 9 days! Im so proud of you!
My little sister had that problem when she was little and she also has a hard time when she has to be put under because she had Pulmonary hypoplasia.. which is small under developed lungs so her body can't take surgery.. but her team decided to do a G-J tube which is about the same as an nj but it doesn't go in your nose it goes in your stomach and the procedure does not take very long.. that might be an option eventually?
Joella Grace they discussed this issue on a previous video, and they were saying that Mary's lungs aren't really strong enough for her to go under at the moment,and the recovery would be quite difficult with her coughing
iamaplantiam yes I realize this.. my sister is 8 and at the time was not able to go under because of her lungs..they somehow over a long period of time found out a way to do it so she could get her nutrition because she does not eat by mouth at all
Good idea and they could do a local, instead of a general, or an epidural.
+LadyD x they typically use sedation in adults, using local as well, but just using local would be hell. A friend of mine had a GJ placed with just a local and she said it was painful and as they use endoscopy she felt like she was suffocating. I had mine under sedation with local by endoscopy as well and while it was unpleasant it wasn't horrible.
There is also the twilight sedation - I got my endoscopy and colonoscopy with it. No intubation and absolutely no putting your body to sleep. Just wake up and your set to go. So between an epidural and twilight sedation it could be a possibility.
sending all my love to you guys, you're so fuckin brave mary!!
I feel so happy when Mary feels better , just smiling looking at her by the stove. You amazing girl , stay strong and positive.
Aww, Mary. My heart broke when I read today's title. :-(
You deal with so much crud, and smile through most of it. I wish there was a way to capture your amazing spirit and transfuse it into people who focus too much on the negative.
I LOVED the snow footage (even though I hate snow LOL). It was so much fun to watch OllieBoy frolicking in the winter wonderland. I was literally laughing out loud, and I don't normally do that when watching UA-cam. That doggie brings so much joy.
So sorry you are dealing with this again :'(
is IV nutrition an option? unsure how it works with low pancreatic &liver function. I am praying they find something quickly that works. Darling Mary I wish I could hug you and fix this...
TPN is extremely last resort and dangerous as it causes liver failure and risks sepsis
Jenna Poole Thank you for info. I've only had family who needed it due to pregnancy complications. risks were never discussed.
Praying for her body to absorb food and maintain weight.