60 Years in the Making: Families Leading in Newborn Screening

Поділитися
Вставка
  • Опубліковано 20 гру 2024
  • On September 5th, some of Expecting Health’s Navigate Newborn Screening Ambassadors shared their experiences navigating the newborn screening system. In watching this webinar, you will also learn more about the Navigate Newborn Screening Ambassador program and hear from three expert leaders about what it means for families to engage in the newborn screening system.
    Speakers:
    • Ryan Colburn
    Principal, odimm inc.
    Pompe Disease Advocate
    • Christina Andrews | Doula
    Mother, Project Coordinator, Student Midwife
    Newborn Screening Advocate
    • Dionne Stalling
    Founder, Rare And Black
    Rare Disease Advocate
    Moderator:
    Marianna Raia, MS, CGC
    Expecting Health
    Stay connected:
    Expecting Health | expectinghealt...
    Baby's First Test | www.babysfirst...
    National Genetics Education and Family Support Center | nationalfamily...

КОМЕНТАРІ •