Constant dizziness / lightheadedness | My story with PPPD and treatment!
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- Опубліковано 25 лис 2020
- Are you experiencing constant dizziness / lightheadedness? You may have PPPD aka Persistent postural-perceptual dizziness. It took me years to find a diagnosis for what I was feeling- as PPPD isn't detectable through any tests. Hopefully if you are in the position I was a few years ago, avidly searching for an answer to put your anxious mind to rest- you will come across this video!
PPPD relates to anxiety induced dizziness, feelings of lightheadedness, foggy head, being off balanced and spaced out. There are also other symptoms people may face, but those are the main ones! PPPD symptoms can be extremely scary and affect your quality of life, however it isn't actually a dangerous condition. There are amazing treatment options available to deal with the symptoms of PPPD, opting for vestibular therapy/ vestibular rehabilitation myself which has been so effective and now I am almost dizzy free!
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Also forgot to mention that I also felt nauseas quite often which was really hard to deal with as I have a fear of being sick! In lectures it was the worst I kept having visions I was going to throw up everywhere- I think this was more of an anxiety related symptom.
Vestibular therapy exercises:
My video on the exercises I did: • VESTIBULAR REHABILITAT...
www.brainandspine.org.uk/our-...
PPPD info:
www.dizziness-and-balance.com...
www.seekingbalance.com.au/pppd/
Socials:
Insta- styledbymegx
Depop- meganrebeccaxx
Music:
Music by Ryan Little - Lovesick. (Nomad's Heart) - thmatc.co/?l=34847BB7
Outro: its manique here
Keywords: Constant dizziness, unexplained dizziness, unexplained loss of balance, unsteadiness, eye strain, foggy head, dissociation, dizzy everyday for years, foggy vision, how to treat dizziness,
Thank you so much for watching my video! 💖As I write this completely healed, I wanted to share an additional resource that I've poured my heart and soul into for those of you looking for more support as you go through your recovery! This covers EVERYTHING I wish I knew when I was struggling myself and felt like I was going to be 'stuck' in dizziness hell forever - I don't want anyone to feel like that, because it's not true and we should never settle on a reduced quality of life! You can check out my Etsy page here: thehealthadvocate.etsy.com
My story is that following an unexplained attack of extreme vertigo, symptoms of unsteadiness , loss of balance and dizziness persited. I wanted an explanation so I consulted a neuroligist.who ultimately diagnosed PPPD. This was supported by ENT and eye specialists. I have tried the various recommended medications but found them all unhelpful. Having accepted this is a brain related condition , I set out to minimise the symptoms via exercise. Exercises to cope with inbalance and proprioception difficulties work.
I have found ballroom and latin dancing particularly effective- and it is fun to do.
I’ve had it for 2 month and nothing is making me better , any recommendations to what shall I do I will be very greatful?
Thank you for this explanation and what to say to the dr.s.
6 days ago i woke up with vertigo comfirmed at EU..however this vid on .imbalance which is on my right side and eyes which i am having g injections for maybe is the cause...
Thanks for this.
This video is a life saver. i cant thank you enough for making this as it gives me hope ive been a wreck. I "think" i have PPPD (it started about 1 1/2 months ago) after a i had some sort of viral/bacterial illness and i had a really bad 8-10 second vertigo attack during that time. after that attack ive had all the typical PPPD type symptoms ever day (but no vertigo only that one time). i went to the ENT (who seemed useless) and found nothing and now i have my VNG this weekend (not sure if that will even help with anything?). i went through this "same exact" "invisible illness" process 6 yrs ago when i got tinnitus (it was horrible now i have it 100% under control). conditions like this are extremely frustrating because no one understands and doctors arent rly sure what to even do and you feel so insanely isolated because of it. the depression and anxiety can be just debilitating. i totally understand that supermarket syndrome 1000% and its gotten worse over the years.
Do you think the VNG assessment will be useful at all? again thx for your video its really helps people who are in this dark place right now because of this. ive suffered from anxiety and panic attacks for years and recently for some reason they've gotten worse over the last year. im sure it all contributed and culminating into this possible PPPD last month.
I’ve cried soooo many times watching this because I thought I was the only one feeling like this for years now !!!’ Thank you for this
❤️❤️❤️❤️
Me too and no one understood me even i didnt know whats goin on pls what is the solution for it?
@@mikisafe2905 START VESTIBULAR EXERCISES!!!!
@@queensarah9622 ty
You are not alone! I feel alone all the time, but NOW I have SOMETHING that fits ALL OF MY SYMPTOMS! I THANK GO for this video! Making an appointment tomorrow!!!
Been dealing with PPPD for nearly 12 years now. It took 10 years to even get a diagnosis after seeing 2 neurologists, 2 ear nose and throat, 1 allergist, 2 primary doctors. I’ve had every test under the sun, 4 mris, etc. everyone just said I had anxiety and gave me SSRI. Finally a PT diagnosed me with PPPD and it all made sense.
I share all the same symptoms, stiff and sore neck and shoulders, dizziness, cloudy head, cloudy vision, patterns bother me, disassociating from body, never relaxed, always fear a greater vertigo episode is on the way, feel of going to pass out, still moving after I move my head quick, hard to focus, can’t read long paragraphs. It has really been such an Invisible disability, and has made me very anti social and sad inside. No one knows I live with this because I’m always so positive and happy. It’s getting harder and harder to be happy though. I really hope I can eventually find my way back to being normal. At this point I don’t even know what normal is anymore
So sorry to hear you've been dealing with it for such a long time that sucks :( the human body is so odd and like you said - its hard to actually define what 'normal' feels like when nobody objectively knows! I hope you find some relief/answers to help reduce your symptoms - stay strong!
I'm having the same problems this is horrible
@@Tomw1114 me toooo I don't know what to do 😢
@@JKdaliaI'm sorry hun I've tried goin to the ear nose and throat doc but they keep finding nothing
Dude my father is facing the same thing I am tired our whole family is facing all this. My father has this for 10 years now it's more frequent we are getting financially weak and doc can't diagonose anything
I cried watching your story.. I really was starting to believe I was the only person who ever had to deal with this.. I’ve felt and felt this same way everyday for the past year. My doctors keep saying there’s nothing wrong, it went away for awhile and now it came back.. I’m constantly getting panic attacks, constantly dizzy and lightheaded, it makes me not wanna do anything anymore but lay in bed. I’m so glad I came across your video because it gives me hope that I’ll be back to my old self soon! So thank you sooo much for reassuring others deal with this too.
It came back because it’s autumn, it usually worsens in spring and autumn...
Mine got so bad that I can’t work so I’m staying in bed and even this I can’t do! It gets sometimes so bad when I’m in bed that I feel like dying, and then the next minute I’m ok and then again over and over again omg hell!
@@recordsmanukrnet Me too...
@@wharfmouse what happened??
me too. has it come back?
Hope you feel better, light alcohol and cuddling seems to help.
SOLVED …. So I had all the symptoms of PPPD. I’m male, 50 years old. Spend long hours in from of computer screens. Symptoms started about 2 years ago. Feeling of confusion, brain fog, unable to concentrate, poor memory. Then mild dizziness when walking especially corridors and the supermarket. Symptoms got worse, depression and very emotional. Jaw pain at my TMJ and incredible neck pain. Had MRI, CT, ear pressure test, eye test, changed glasses, dental checks etc. All cost me a small fortune. Tried stretches, yoga, meditation etc. nothing worked. THEN… by chance I had reason to close my ears with my fingers… symptoms reduced. So I wore earplugs and …. Symptoms reduced. Kept them on 24/7 for a week to get through the day. I still didn’t know why symptoms reduced. Took the ear plugs out it was like letting the devil back in. With the earplugs in whilst driving and pressed down on the plugs and symptoms reduced even more. Was convinced it was ears. So I watched a video on doing ear massage and stretching. When I pulled and stretched my ears, away from my nose line, and held them there for a minute, it was quite sore, the symptoms had reduced massively!! The pain in jaw / cheek had gone but my inner ear was very sore as I kept doing this all day. The next day all symptoms had gone by 90 percent but has very sore inner ears. I am now on day 3 and no dizziness etc but still quite sore inner ears and haven’t stretched them since. Please try this and reply if this worked for you. Go easy on the ears tho. Very gently pull and stretch them away from the side of your head. Please do reply if this works or not.
Could u send a link on how u did these exercises?
Damn... thought I was the only one, thank you very much for your story!!!
And the feeling that your body won't be able to sustain you and the thoughts that you will never be able to do anything, the comperison to what others can do... I feel so relieved that I am not alone in this. At the same time I feel sorry others go through it too.
Thanks you so much for this video! I’ve experienced this 5/6 years ago for the first time, it stopped and came back from time to time. Now it’s been a month I’ve been having it and though I know it’s also linked to anxiety being able to finally put a name on it is already a relief in itself. Watching your video and seeing someone that went through the same difficulty and could more or less get rid of it is maybe even more efficient than a few sessions with a psychologist. Looking forward to starting the exercices you recommend. Thanks a lot again!
Thank you so much for this video! I’ve been having all of these feelings and I didn’t know what it all was.
hi EMJAY styles, Im so glad I came across your video. Ive been suffering this for almost 10 years and nothing has helped. Thank you for your video . It makes me feel like I am not alone in this struggle! I've gone for lots of consultations but doctors dont take me seriously which is frustrating.
I’ve had BAD PPPD since 2011… Brutal health condition but we’re still capable of achieving whatever we put our minds to, I promise!
Definitely!!! We are more in control than we think☺️
I have it since 2005
@@EMJAYstyles you’re amazing! You can’t imagine how glad I am to have found you!!!
It’s October now and this condition of mine has now got so bad that I can’t go out to the shop across the road, and gets so bad when I’m around people or when I see moving cars
@@naNO818ETF7 how r u fighting it?
@@EMJAYstyles only in the last 2 weeks I’ve been to the EMT for a few times already
this has described my past 3 months to a tee, thanks for this
Thank you for sharing your experiences. It’s likely to help many people that may be in a similar situation.
You described everything I’m feeling so perfectly when you mentioned supermarkets and train stations you literally described it perfectly
I’m so happy that you’re at 10%, I’m legit over the moon for you! I can’t imagine how much you went through, I’m just glad you’re doing sooooo much better now 💛💛💛
Awww thank you girlie 🥺yeah it wasn’t the best!! Me too i feel like I can do so much more now 🥰😍
We appreciate you SO MUCHHH for speaking up about your condition 💛
Ilyyyyy!!❤️❤️❤️
Such a great video!! You basically listed everything that I feel! Thank you so much!
Thank you! I thought you were describing me for a bit there. I've seen doctors and have gone to the ER quite a few times only to be told that nothing is wrong with me. Thank you for bringing this to light!
Honestly I want to say thank you for making this video I’ve been suffering from this for the past year and all the symptoms you described as what I have and it just shows me that there is a light at the end of the tunnel for us to get better thank you so much and my journey with the vestibular I can’t wait wait .
Aww you’re welcome I’m excited for you to start your recovery!!
Thank you. I wish I could relay more gratitude in those two words. You've described these symptoms so perfectly I finally don't feel alone in this nightmare. I found and watched this video then made a doctor appointment.
Really appreciated this! I love how bubbly you are. I’ve come across so many other vids of others talking about their experiences and they are soo doom and gloom that it makes you feel even worst after watching them. I’m going through the same thing so thanks for sharing. ❤
You girl are a true angel for making this video !....Thank you..
This is the video I needed. Thank you!! My symptoms started after my anxiety attack and it just comes and goes but it has been persistent for so long
I'm glad you found it helpful! Will be putting out a video talking more about the recovery/treatment process on monday:)
your video is amazing. I have been going through this for 4 years and I am so happy there are other people that know what I am going through. The part where you talk about limiting nights out or plans is exactly what I struggle with. The flare ups come and go and when they are at their worst, I cannot do anything even talk to my friends as my body is just drained. Thank you for making this, its so comforting!
Same here my dear .
I've been in this for almost 20 years
It's not fun honestly.
Thank you. I totally have this exact problem and it s been coming and going for the past 3 years. I’m 45 and now and never had this and have always been very confident but when the dizzy spells come I feel so vulnerable. Just knowing I’m not alone and seeing all the comment s of other folks having this experience is helping already. Thank you for doing this video and explaining so well. You are an angel!
Aww I’m so sorry to hear you’ve had to go through it too- and so happy my video has given you reassurance as there are definitely a LOT of us who have experienced it and none of us are alone ☺️
I'm so glad I (almost literally) stumbled upon this video. I'm convinced I have this, or something very similar. Thank you for sharing your story.
thank you for sharing it was so on point i almost cried
You explained what I’ve been going threw for months better than I’ve ever heard thank you sooo much for posting this video 🙏🏻🙏🏻 it’s sooo terrible feeling this way some times it’s put me into a depression lately but this helped sooo much thank you 🙏🏻
Comments like this make my day! I'm sorry you're having to go through it but you are not alone and there is most definitely a light at the end of the tunnel! Stay positive:)
Yes @Frame_and_hang_sacramento hang in there. Find my comment recently posted for more info and lots of other people's great comments too. There are treatments that help (for me SSRI and breathing retraining but vestibular training obviously successful for many too). Good luck!
Wow this is what I feel every day smh 🤦 when I got bell palsy I felt like this every day. To hear you say everything how I feel I'm so shock. I want to cry because you tackle everything I have been feeling for the past three years. I'm so glade I came to this video. And I will share it to my friend
I feel like crying, as i feel exactly like what you mention. I thought there is something wrong with my body or my brain. I feel so hopeless as the doctors say that im perfectly okay. Going through so many checkups and its tiring. Im so happy that you are healthy now and keep inspiring. Thank you for this video. Really. Thank you.
You are a life saver for me🙏 thanks sooo much for caring enough to put this out there. I've been dealing with this for the past 3 years and honestly I'd rather be told i was dying than " there's nothing physically wrong or it sounds like anxiety. I've had 6 jobs in the last year because i couldn't hold one down for long because of this. You've just described me to the tee and iam forever grateful😊.
Awww I’m so happy this was helpful for you! Yep it’s so annoying it’s like people don’t believe us!! ☹️
Omg thank you so so so much for this! For the longest time I've thought I was the only person that experienced this. I have had constant dizziness for years now and I have been to countless doctors who basically told me that I'm perfectly healthy and they don't know what's wrong. I am so glad I stumbled on this video and I just want to thank you so so so much for telling your story!
You're so welcome! I hope you'll start to recover soon :)
Omg this is EXACTLY what I've been having since I have had a few real panic attacks which is NEW. Awful! Thank you for the video!
Thank you so much! This tea explains why I’ve been feeling this way yet no diagnosis at the doctors office. Great video definitely needed, once again thank you very much!
This helped a ton. been having the exact symptoms thank you so much for this video it gave me hope
I’m so glad it’s been helpful for you!! Wishing you a good recovery ☺️
omg thank you for this video! everything you have explained is exactly what I am feeling right now! I’m in college right now and feel very dizzy/lightheaded and feel out of it a lot. I think it’s anxiety related but also it happens randomly! i’m glad I came across your video and i’m not alone in this!!
Hi there i hope you get well 🙏
thank u so much for this i've been so clueless and worried for months and the symptoms you talked about are spot on. . so thankful
I'm so glad it was reassuring for you! Wishing you a speedy recovery
This has just made my smile so so much, everything you said is something I have been experiencing this for a couple of years now. I also feel like I’m not in my own body too, like for example I could be at the pub with my friends and I’m looking around (so aware I am there with them) but just don’t feel like it’s actually me in my body. (Asthough I’m looking at my self) it’s sooo hard to explain ! So watching this really has made me smile. THANKYOU
Awww I’m so so glad my video has been relatable for you and hopefully puts you at ease!! You’re welcome lovely 🥰
Thank you so much for this. I am well aware that I have this PPPD as I have been dizzy for over 2 years, it just so great to have someone who can relate to every aspect of it! I have an intense fear of getting sick so the nausea that comes along with being dizzy is so horrific. The anxious cycle is awful too. All of it is so mentally taxing, especially being a nurse and in leadership! Meetings where I’m sitting with others are my biggest trigger! Thank you so much for posting and helping us not feel so alone! 🥹
My trigger
Thank you for the video, suffered with these symptoms for about, 5 years on and off. All tests from hospital come back negative. I have thought that anxiety has caused my problem, and I did come across PPPD about 3 years ago. As you say it is very debilitating, and causes massive anxiety, I am going to mention this to my GP as a possible cause.
Thank you sooo much for sharing your story!!! I've been living with this for 5 years now and you really gave me hope that I can get over this 🙏🙏🙏
Awww you’re so welcome!!
Wow, this is surprising because I go through this everyday, thank you so much I’m doing the exercises and I’m already feeling better. Thank you
I am crying watching this. I have felt so alone this past year. So many ER visits, so many tests and no answers. This has been a terrifying experience and its caused me so much anxiety. Thank you so much!
Awww bless you I’m so so happy that this has helped you and given you hope that you can get your life back ❤️
Same, good luck
@@EMJAYstyles hi would you recommend Sport like body weight work out and running ? I means it’s Extrems for body can I make more damage on my vestibular system or is it benifitial? I don’t really can do sports now but maybe I should even I fall down or collapse 😅😂❤️🩹
Yeah an ER visit are like just walking into your Local McDonalds & asking what is wrong. ( NO solution )
it happened in March & when i went they did Tests & ironically once i got to the Hospital & sitting upward in the bed i felt Fine & it went away, until last week.
It’s comforting to know that there is a community of us who have endured and experienced (continuing) this scary trauma
I can’t thank you enough for sharing this with all of us. I have been suffering from these same exact symptoms for the last 3 years with no support from doctors etc. Not one doctor out of the 5 I have seen have even mentioned this condition. I will take this info to my next appointment. Thank you so much. 🥺
Awww I'm glad it was helpful and provided some reassurance, best of luck with your recovery!
I am so sorry that you have suffered for so long. What wonderful news that you have found some healing living with PPPD. Thank you so much for this video as my son has been missing days of school because of similar symptoms for the last two months. Your story has given me hope that there is help for my son. God bless you for helping others who may be living with PPPD🙏🏾
We are all here for you and those who need help and support. ✌️
I started this video with lot of expectations and trust me, they were all met. I am sufferer for over 3 years now, and ofcourse undiagnosed. They just labeled it as vestibular migraine, which is quite vast subject. I am pretty confident that it is pppd. This one explains everything with so much clarity. Really helpful. God bless you 🙏
Thank you so much for this. I was just diagnosed and it's been really scary, especially being isolated during this awful pandemic. I so appreciate you sharing your story, and your message of hope!
A diagnosis is the first step in recovery, there's a light at the end of the tunnel stay positive :)
Hi. Really appreciate if answer. Did you have the feeling of floor shifting when walking? Like walking on the walkways at the airport. Or walking on the boat.?
@@EMJAYstylesGod has been so good to lead me to this video! Question: which type of dr was able to diagnose you? General dr, Ear, nose, throat specialist?
OMG just came across you vlog, THANK YOU so much for doing this. I have been suffering this way for about 4 years without any answers and at least now I can mention it to my doctor ❤️
Emjay, this is by far the best video I've found to explain this condition. Far better for me than any professionals description. You can only really understand PPPD if you have it.
I now use your video when trying to explain what we go through to friends and loved ones.
Thank you!!!
This is such a lovely comment I'm so glad you found it useful, and I hope those around you can gain an insight into your struggles and support you the best they can :)
Thankyou so much for this video. This legit explains my position now. I always thought something is wrong even after my diagnosis looked absolutely fine. I can totally relate to the symptoms and somewhat relieved. Will definitely work on the suggested exercises. Thanks a ton :)
I lost Hearing in My Right Ear from Measles as a child and Was Profoundly Deaf by 16. I have spent the better half of My 52 years In a nightmare web of Extreme Dizziness& Th Vertigo...Thank You Young Lady and all the others who Validated each other and were brave Enough to share !
6/22/22: Found this via a post in the Dizziness sub Reddit. THANK YOU SO MUCH FOR THIS VIDEO.
Like so many here I felt like I was the only person on earth experiencing this. I'm still battling the latest flare up of this mess, which began 2 months ago, and as I type this I'm at wits end. I'm finally going to see a neurotologist specialist (referral from my ENT) in a month or so, and I'll definitely bring this up in our conversation because the symptoms you went through sound EXACTLY like my life on/off again since 2017.
Thank you so much for this! Wow I feel so relieved that I’ve come across this video! I feel like no one understands what I’m going through. I’ve spent so much money on medical appointments. When you said the gym or large areas I knew this could be what I’ve been experiencing. I literally have to look directly at the machine I’m using or the floor at the gym or I feel so dizzy like I’m going to pass out. Same when I go outside or to the grocery store. Thank you so much for sharing
It really does suck but you aren’t alone girl!! this was me and now I’m recovered so there’s a light at the end of the tunnel
You have described my life to the T for the past 4 years. Started after some traumatic events and now this makes sense.
4 yrs me too.
3 months in after traumatic events too... the worst feeling ever..
i relate so much and honestly it means SO so much to not feel like i’m being dramatic and i can’t be helped. i genuinely can’t explain how much you’ve helped with me trying to get a diagnosis as well as not feeling alone. i’ve had symptoms for 5 years and am only finally getting somewhere
Awww girl this means the world this is exactly the reason I wanted to make this video!!! Feeling like you aren’t the only person in the world going through this is so reassuring, and I’m so excited for you to get better!!!❤️
I have struggled w/ this dizziness issue for 5 years as well. I finally got diagnosed w/ PPPD by a PT today.☺️
Thank you so very much, alot of times we dont talk about the things we struggle with. I have dealt with this and it started after taking anxiety medicine. I often tell people including the doctor that I am dizzy but I look normal and the tests say That nothing wrong s wrong so no one really believes that this is really a thing. So now i have a better understanding of what is going on with me and now i can cope with this and try to resolve this. Thank you so much for making this video you are helping so many❤️🙌🏾
I’ve had this for nearly 10 years now and I was only just diagnosed a few months ago. I can’t even tell you how many scans and tests I’ve had over the years trying to figure out what the hell is wrong with me. I had my worst flare ever 4 months ago which led me to diagnosis and the treatment my doctor gave me was meds but I’m going to try the vestibular therapy too. It was so comforting watching this video and feeling like you were just explain ME and everything I’ve been through. So happy I found your video ❤️
This is Heaven sent! I’ve been dealing with this for 4 months all day everyday is has literally stopped so much in my life! Doctors can’t figure it out ER is no help last for months I’ve been to the ER 11 times. They look at me likes it’s just anxiety over look me don’t wait on me people are in and out I’m still sitting in the waiting room just being talked about like this dude is crazy! People that have never experienced this Will absolutely never understand! Like sometimes I don’t even want to be left alone in my own house sometimes! And it’s like more anxious for me because I’ve been shot before so already been thru a life threatening event before then this. I’m like God what is going on……. I’m not crazy. Any way thanks so much! Be Blessed! 🙏🏾
Honestly it can feel so isolating when people just assume you're being dramatic, it's so scary the sensations happening, even if others can't physically see it! Invisible disabilities are so misunderstood - people need to have more empathy and understanding cos it's hard to go through things like this alone! I hope this has given you some answers and wishing you happy healing 😊
Hi there. Thank you for sharing this. I just got diagnosed, and I am currently doing vestibular therapy for my pppd. But I have a hard time sleeping on my side. Does anyone have a hard time sleeping on their side ?
I am sooo glad that I came across this video of yours!! I have also been going through this since September 2021 and it's been really difficult, especially with explaining how it feels to others and them not really understanding as it is indeed an 'invisible disorder'. I am so happy and grateful to you for putting this all into words!
Hi Sanjana . Me too. I feel exactly the same. It’s been few months now.
Hey I hope you see this.. how is it now? Has your condition improved?
@@nancollins7775 Heyy, yes, I feel it's gotten much better now, but it's never really completely gone. I think I'm just able to manage it better in a way that I don't feel like I'm off balance all the time
@@sanjanaasriram220 That's a relief that you're better . Hopefully it will go away one day. Were you clinically diagnosed with pppd? Are you on any medications?
Hello what did you do? Do you have medications? I am not clinically diagnosed but after my optic neuritis last January 2022 my balance is off and i feel dizzy and lightheaded everytime though I just lying in bed feels like it's spinning. I am so afraid plus my anxiety and panic attacks are worst
You are a saviour. You don't know how much I needed to see this. I felt like I was the only one who feels this and everytime my doctor would say there is nothing wrong with me. I am gonna try all the treatments you mentioned. You have all my blessings. THANKS A LOT!!! ♥️♥️♥️♥️
AMEN AMEN AMEN, Me 2, They all say #EVERYTHING is..#FINE🎉
I am crying watching your video, this is possibly the mot relatable video I have come across, every symptom you have said I have and have had for almost 10 years now, I am 22 and feel it has effected everything in my life so much with doctors only coming up with some ideas of causes such as anaemia and vestibular migraines. My anxiety, depression and stress have been awful because of it, been on medication for that for over 4 years with some help but not enough, and its just the best feeling in the world to know that someone actually understands exactly what's going on, I feel so much like no one does. Alcohol does the exact same for me, so weird. SO happy I have found this video, as it gives me some hope of getting rid of my nightmare aha and am going to try the exercises and CBD oil for relaxing!!X
Hey thanks for doing this video, I have this from vestibilar Neuritis year an infection in the inner ear nerves from a flu. It took ages for people to figure out, then a miracle came when I went to a physio therapist trained in vestibular issues. I suffered from extreme panic attacks, now I'm on SSRI medication third week in and do the vestibular rehabilitation. It's a lot better already like I feel barely any of the symptoms just more anxiety dizziness but it's great to feel not like I'm rocking.
Simmy Have you been experiencing dizziness 24/7?Are you already dizziness free? after how long was the improvement? what specific vestibular exercises did you do? did you take escitalopram/ lexapro?
How are you today? I'm having the same issues and most likely same treatment
i’m crying!! thank you so much!!! no one understands me and you have helped so much!! you are so amazing and i wish the best for you!! i’ve been struggling this for 4 ish years now!!! thank you so much i can’t thank you enough!!!😢❤ also, i went to the doctors and had blood work done and they said everything came back “normal” but i knew i wasn’t “normal” if that makes sense! thank you soooo much!!!❤
You’re so welcome lovely!! Hope you can recover soon ♥️♥️
@@EMJAYstyles update: it’s still there but it’s not as bad anymore. if i have something to focus on it’s not as bad! i’m been pushing myself and i’m so proud of myself!❤ thank you so much for everything!!💗 you have changed my life!!!!❤❤
Thank you for sharing your experience 🙌🏽💝. This is the first time I have heard a relatable experience. Glad and relieved to know there are exercises that work. Well done🙌🏽💝.
EMJAY, I can't thank you enough, I felt like I was moving when I was still, I thought my life was over until this video gave me hope. I have been hypochondriac tendencies as well, and just now took some cbd I had in the droor and never used. I feel like I'm not crazy now. :)
I thought it was the coffee, as I'd just feel dizzy and anxious. It seemed to go away during cuddling and while drinking so this tells me it might just be from the anxiety lessens with these. It's hard when a symptom can cause anxiety and fear, like the fear that I could collapse or have a heart attack. I'm too young and thank you.
I’ve been having this since last year in September. It’s gotten A LOT better. But still slightly slightly there. And it makes me so sad some days.🥺 Hoping that it fully goes away one day. It makes me panic in situations I never panicked in before. I started having panic attacks last year when I never did before!!! Luckily those stopped happening. Thank you so much for making this video to help people!
I’m glad it’s getting better for you!! Focus on how far you’ve come not how far you have to go, positivity and mindset makes a hugeee difference in recovery, you’ve bossed it so far so you’ll get back to normal soon 🤩
How are you feeling now?
I am constantly dizzy 24/7, have severe anxiety and have not been able to sleep normally for a month. Have you been doing vestibular exercises? Have you been taking Lexapro?
How are you now?
I've been searching for this video for over 2 years. Mine started in May 2020, I don't exactly remember how it started but I remember one night feeling really lightheaded, googling my symptoms, and thinking that I was experiencing a vertigo attack that would pass if I layed in bed with the lights off for half an hour. It didn't end up passing, so I attributed this feeling to my lack of sleep, so I went to sleep only to wake up the next morning feeling the same way. The symptoms are 24/7 ,and my episodes of intensity vary throughout the day, they can be extremely debilitating to the point where the only thing I can do is lay down, or they can feel a lot "less severe" at times throughout the day, but regardless the feeling is AlWAYS there every second of the day to some degree. It is a feeling of constant lightheadedness, and as if I am going to faint and pass out, as well as an intense feeling of feeling off balance and feeling very disoriented in general. It feels like it is a struggle to physically stay standing up, especially for prolonged periods of time, and as you described in the video, whenever I turn my head in a certain direction, my head feels very "laggy" and it feels like it isnt "processing" things normally, and it exacerbates the lightheadedness. For me personally , when I wake up in the middle of the night to use the restroom I feel extremely off balance the most, and even late at night. My symptoms also tend to worsen when I physically exert myself playing sports or something as simple as going for a walk around the block. The only thing that somewhat alleviates my symptoms to this day is laying down in bed. I've been to cardiologists, neurologists, so many different specialists and have done so many different tests and bloodwork with no answers. I myself also am a hypochondriac and have a ton of anxiety which doesnt help. I've heard about PPPD in the past but dismissed it as my anxiety insisted that it was "something more severe" and that "the doctors missed something when testing me." I am going to seriously give these exercises a try and take this rehabilitation seriously as it can seriously change my life. These past 2 years there were so many times where I felt downright depressed and hopeless and just gave up. It also doesn't make it any better when no one, not even your own family understands what your going through, as from the outside you seem fine to them. To anyone going through this , you are so brave and resilient and I admire you so much. There is hope and we will get through this together.
I am feeling everything you’re feeling!!!! ❤ it’s awful. Absolutely awful. I hope the excercises helped you
Hi. Really appreciate if answer. Did you have the feeling of floor shifting when walking? Like walking on the walkways at the airport. Or walking on the boat.?
I'm really starting to think this is a metaphysical phenomenon. It's been happening to me a lot the past month, and I can almost compare it to an out of body experience when I'm laying down in bed. If doctors don't know what it is, and it's suddenly happening on such a grand scale, it must be beyond our understanding. New Age philosophers and theologists believe the veil is lifting between this realm and the next. That we are shifting from 3D to 4 and 5D. It's all very interesting 🤔
@@Rose-gc8og I feel as if I was walking on a trampoline and my feet are sinking through the floor even though it’s solid flooring. Makes me look down even though I know that the floor below me is solid.
@@davidbenning10 I know. Hasn’t gotten better? I don’t know what should I do
I hope you know your an actual life saver, wishing you well as you’ve clearly helped a lot of people, myself included
Ah I’m so glad!!
It’s like listening to me got near to tears listening to you. Thank you x
You got this boo!♥️
OH MY GOSH. Thank you for this! This is exactly what I've been suffering with since November last year! I've been MISERABLE and it feels like nobody believes me this exists. I'm gonna use this as reference next time I see the doctor, I can't believe the doctors told me I have allergies really bad. I KNEW there had to be something else wrong. You explained this so well, God bless you. 🙏 Prayers everyone including me suffering this get well soon, or eventually.
I have gotten Better, watched a video about How Vitamin D 3 will help. I did Buy some & it has Helped BUT you should still do the exercises
@@MetalHeart8787 Hey, I have gotten mostly better as well. I think I may have been wrong about having PPPD. For many years, I've lived a very sedentary lifestyle and more recently I've been getting up and making myself DO things and that has shown me some improvement and I notice the dizzy, unwell feeling a lot less. I only feel faint and off when I get lots of exercise, do yoga, or really anything that requires me to move and stretch. I will say the more I do it, the more confident I get, and the more confident I get the less that should bother me. So yeah, I'm not sure what causes me to feel like that but it may be something to do with my blood pressure and allergies. I do have ETD (eustachian tube dysfunction) in my ear which causes me to feel off a lot so that definitely contributes. My best advice is to accept the feelings you may be experiencing (ONLY if you are SURE you're safe, this should be ruled out by the doctor BEFORE ignoring these symptoms) and you will be stronger once you get back on track. ✊
I have this!!! It’s been 3 years! I’m 16 years old. All my tests came back good. Finally a specialist told me I might have PPPD and I searched the symptoms and I have allll of it! Like I feel it like I don’t seee it! It sucks so much. I mentally and physically so tired of it. I have bad anxiety as well. I’m so ready to get treatment! It sucks so much. I literally cry all the time from this. I can’t do normal life stuff. I felt soooo alone until I watched your video! Everything u said HAPPENS TO ME! Every thought and every feeling
Thank you so much for sharing your story!! I’m glad that I can make you feel less alone and by looking at the comments there’s probably quite a lot of us who have been through the same thing which is encouraging! Wishing you a speedy recovery lovely 💙
Thank you. 🙏🙏🙏 Someone actually knows how I feel. People don’t understand the condition until they go through it.
I needed this so much because I was literally about to cry at how much nobody was understanding how I’m feeling 😭 thank you for this video!
Check B12 and Folic acid levels. Your symptoms are B12. Get vitamin and mineral defiency test. Also check all levels of iron. It's like over 5 of them not just hemoglobin.
For a year now I have been thinking I have dysautonomia, but now I actually think I may have PPPD. I am consistently in a foggy minded state and get light headed along with anxiey symptoms. also am very overstimulated in super markets and while driving. When you said you got panic on the train my mind was blown. I have been getting almost like panic attacks while sitting in traffic in my car. I panic feeling 'trapped' worrying I'll pass out while driving! I've seen many doctors and while they've been great, none can find any diagnosis or any explanation and all my tests come back fine. PPPD is my next thing to look into.
I was just told by an amazing vestibular therapist that PPPD is what I have. After explaining my symptoms and currently being in a long lockdown and experiencing some life stressors this diagnosis made the most sense. I also did all the tests with inner ear. I have ended up in the ER terrified with my symptoms as I also struggle with health anxiety and hypochondria. This past month has been hell. Although looking back I had a similar episode 5 years ago where I also remember struggling with other life stressors back then. Your mind plays so many tricks that you actually start distrusting your body. Thankyou for brining awareness to this condition ❤️
Check B12 and Folic acid levels. Your symptoms are B12. Get vitamin and mineral defiency test. Also check all levels of iron. It's like over 5 of them not just hemoglobin.
🙏@@jivory6131
Omg this is me!! 😮 Had no idea genuinely thought i was going insane, thank you so much you have no idea xx
Really interesting thank you. This is a new thing for me, though I was used to nausea anxiety for years and years.
Wow this is crazy ! I literally thought I was going mad, I didn't know there was a name for this.
This has been happening to me for about a year now, I literally feel like im going to drop to the floor and really out of touch with myself. Thankyou for raising awareness, im going to seek help.
Aww I'm so glad to hear you're now finding answers you need:)
I need help I’m going trough this and it’s just emotional draining I don’t know what to do I went to the doctors they said I had nothing wrong with me it’s just tiring
Thank you so much!!! I’m in tears! I’ve been dealing with this for almost 10 years! Countless doctors, test, scans MRI, physical therapy, hypnotherapy, etc. I’m hopeful now!! 😘😘
Awww girl I’m sooo happy to hear I’ve given you some hope!!! All the best with your recovery 🥰🥰
10 years????? Omgggggg that's a long time to feel such discomfort. I get anxiety and now I'm having this feeling for the past few weeks. The things we go through
Healing for us all🙏
Me too
@Fountain of Youth Medi Spa I don't know if you mean me or the original comment ahahah but mine has flared up a little (no where nearrr as bad as before its only really if I go outside) but I know it's because I've been slacking on staying active and going on walks etc, I'm planning to do a third video in a couple weeks with some more FAQ's and also talking about how to prevent/deal with relapses as I feel like I understand the condition so much more now:)
Best explanation of the condition yet , it’s so accurate well done -
Aww I’m glad!
So glad I found ur site. Great job.
You’re actually amazing, thank you for this. I’ve never met anyone in real life who has any clue what I’m talking about when I describe this feeling. It can be really lonely. I tell them I feel woozy and drunk 24/7 and they’re like….. rightttt. Cancelling plans is also the most frustrating thing because you can’t fully explain why you just simply cannot deal with an outing.
Firstly your username wins omg!! Absolutely it’s such an invisible disability people don’t understand it and can’t ‘see’ how ill you feel, it can be so isolating and yeah the plans thing is a nightmare but you’ll get there step by step!!
Check B12 and Folic acid levels. Your symptoms are B12. Get vitamin and mineral defiency test. Also check all levels of iron. It's like over 5 of them not just hemoglobin.
@@jivory6131 Had everything checked very recently and it’s all fine. Low potassium was the only problem.
@@LeonardoDiCapri-Sun Take supplements immediately that can definitely give the side affects I know someone who couldn't walk because of low potassium that is no joke. You have your answer. Any defiency will make you dizzy and vertigo that's just the beginning
Finally someone who feels likes me ! Omg i been feeling like this since I was 16 after a huge panic attack wow this is going to change my life if this is what I have wow thank you for this video 😭💕
Awww I’m so glad I could be of help lovely!! Wishing you a great recovery 🥰
Yours seems to be phobic postural vertigo.
How are you now? Sounds like derealisation
I am literally crying watching this I have been suffering with dizziness for the past year And this is just stop on I’m going to have to mention it to my doctor that you so much for making this video x
Awww I'm so glad it's been helpful for you!
I am so grateful to have found your channel. You described my symptoms to perfection. Now I can go back to my GP to have my ears checked as it is the only thing that has not been checked and I will also suggest PPPD to them and see what they think. But honestly I think this is it. Thank you so much for sharing your experience.
Amazing!! I wish you a great recovery and hope the doctors are helpful :)
Omg! I have been experiencing these SAME exact symptoms since January. I have been to the doctor more times in 2 months than I have any other time in my life and still nothing. Constant dizziness throughout the day everyday, very off and unstable as if I’m going to fall or faint, disassociated… very high anxiety. This video has helped me understand what has been going on with me so much better. Now I know what steps to take to getting better. Thank you so much for clarifying❤️
Hey you’re not alone, it started in January for me too! How are you doing?
@@Kayla-lj2nj I have been dizzy 24/7 since Feb 19. I am heartbroken.
So glad it was helpful for you! Hope you get the support you need 💜
I'm so glad I stumbled across your video! I've been having anxiety standing in lines or just standing in general for prolonged periods of time I start to feel dizzy or feel like I'm losing my balance and in turn, I would start to get anxious. I've also been getting weird feelings being stopped in my car at intersections/red lights or stuck in traffic - being stopped but feeling like a dizzy feeling coming on... so I'd start getting anxious and wanting to start driving again. This whole feeling is so weird! I was getting worried something was wrong with me, always needing to sit or lay down.
Omg I have the exact same symptoms as you!!!!
It's not fun! I think a lot of it stems from my eye sight but I could be wrong! Still trying to figure it out ahaha @@vonnynehe9363
I can relate to your description of your symptoms so much!
How are yall doing now with these symptoms have yall gotten any better, I've definitely experienced this as well
Thank you for making this video. Been suffering with this for over ten years and you put me at ease. No doctor I’ve been to could find anything wrong and I do feel like I’m going to die.
Everything. EVERYTHING you said describes my experience with dizziness over the last 27 months. Thank you so much. I’m going to show this to my husband. My starting event was being hit by a car while walking and a bad concussion/whiplash. I have been suffering for so long with no answers from so many doctors. I need to look more into PPPD.
You need to get concussion therapy because your symptoms are from a concussion I don't believe they're probably from the same situation as hers I would definitely get a cervical DMX done check for cervical instability from the Whiplash because that can cause dizziness and everything it's your experiencing
I sobbed watching this video. I mean really cried. I've been dealing with this since Oct 2020, and this is the first time I've heard anyone talk about my symptoms with such accuracy. I literally thought I was going crazy. I've described my symptoms to so many doctors and none of them could name my problem. It has completely devastated my life especially having two young kids. I've not been able to be the active mom I wanted to be and that has wrecked me. The thought of going to a store or walking in an open space makes me absolutely terrified, like I'm sitting here thinking that is absolutely something I cannot and will not be able do. The fact that you've able to get to that point is mind blowing to me. I'm so, so grateful to you. It's entirely possible you just gave me my life back.
Are u still dealing with this? I am dealing with this now very scary n hard to get use too
I just started having these symptoms the morning after a root canal last week. How do you navigate this with young children? I have a 3.5yo and a 16mo and I'm not able to carry them (unless I'm holding onto something) because of fall risk. I can't drive either. 😢
did u get better
I love you. THIS is what i've been feeling past 1.5 years. Friends, family don't know and have no idea. They try but they don't know. Sometimes I feel completely devastated and hopeless but some days its much better. I think being active makes it much better rather than staying sedentary. Also keeping a consistent sleep cycle is pretty important i think. I spent so much on doctors and tests but no one had any idea.
So glad this was reassuring for you! Yes I completely understand how you feel, I agree they are great tips! On Monday I'll be putting out a video showing the exercises I do and talking about timescales of my recovery process:)
Thank You for the amazing description. I had a syncope episode 6 months ago and I haven’t been the same since. I was very emotional when watching this video. I’m sorry you are experiencing this, but I am grateful that you shared. I will be finding a neurologist and hope to get a diagnosis soon. You are making a difference and giving people hope. To anyone dealing with this condition, my heart goes out to all. My wife and I wept when we watched as your words are verbatim to my explanation of how I have been feeling for 6 months.
Awww I’m so glad it was helpful! ♥️
Have you gotten better? Syncope triggered mine as well.
Omg thank you soo much for this. I’ve been feeling very dizzy for about a month now and now that left now but now I’m constantly lightheaded. I’ve been to every doctor I can think of and everyone said I am healthy. Omg thank you soo soo much for this information because I thought I was dying. I just hate this feeling sooo much.
I am in tears watching this. You just described every single symptom that I’ve explained to so many doctors. I’ve spent so much time and money on tests, doctor visits, ER visits…been dealing with this since about 2010. It’s so weird. It goes away for months and sometimes a year or two, then when it comes back, it is so intense and makes me not want to do ANYTHING. Very debilitating. But knowing that I’m not alone and watching your video and seeing everyone else comment, makes me feel a lot better. Thank you for sharing your story and helping so many 🥺❤️
Hey I’m curious the first time how long did u have it for & how long did it go away for ?
We are in the same boat
Hi. Really appreciate if answer. Did you have the feeling of floor shifting when walking? Like walking on the walkways at the airport. Or walking on the boat.?
@@Rose-gc8og exactly
@@deejayvenobeats I’m so sorry. I have the same problem. May I know When it started for you and how ?
Wow. Just, like WOW. I've had this for literally YEARS and have been looking online for years. I've learned to live with it. I've always known it's anxiety related and I've had therapy to help, but this is the first time it's been described back to me so accurately. This is so interesting and I totally agree with you that it's an invisible disability - it's dreadfully lonely, too because noone can understand it. And yes, the alcohol CAN make it better, it's so weird.
I must ask do you feel constantly lightheaded and constantly off-balance with brain fog?
@@user-nz6uq8kh2o
I do. It's absolutely horrible. Heavy head, off balance, constant dizziness, brain fog.... Started after one health scare which triggered a panic attack, since then for a few months I live in this horror. I pray for all of us that suffering from this silent horrific disorder 🙏🌷
luffy,
Please don't drink alcohol, it's not the answer. Alcohol is poison, ethanol is ALWAYS toxic no matter how much of it or in what form you consume it
@@amazingautumn12 i think I'm experiencing the exact same and its like every day😢
I am also experiencing same everyday heavy head , diziness , fatigue.
I usually never leave comments on videos but I’m so overjoyed that I have come across this. I’ve been struggling with this for about 4 months now and it has really been taking a toll on me. I just couldn’t quite put these sensations I was feeling into words. I am very hopeful now and I’m going to mention it to my GP to see what can be done. In the mean time I think I’ll start these exercises!! Thank you sooo much for sharing this. I don’t feel so alone now!
Aww this means so much I’m glad it was helpful for you!! I hope you get to start your recovery journey soon☺️
How are you now? Did the vestibular exercises help? Are you taking any medications?
You have changed my family’s life beyond measure. Word can’t express my gratitude. Thank you. ❤
Awww you’re welcome!!
I broke out into tears when you started describing your symptoms! It describes me 100%!! 😭😭 I got diagnosed with a vestibular disorder in 2011. But since them I would always come in go until 5 years ago. It hasn't gone away for 5 years. I had to quit my job, I haven't driven a car in years, I hate going out, I always feel like I'm going to past out. Finally this year 2021 I got diagnosed with PPPD they sent me to a physical therapist. I went for a few weeks but I have up and stopped going because I lost hope. But now your story has encouraged me to start going again! Thank you so so much for posting this! You have given me hope!! I really appreciate you! ❤️❤️❤️ God bless you!
How are you? Are you cured now?
No... I just keep giving up! Ugh! It's depressing! I can't do anything! I know I have to be consistent but I just always give up. 😔
@@Ackermann634 How do you get diagnosed of PPDD? Did you go to a neurologist? Does a physical therapist really help?
@@deysimayorga7584 Have you tried the Carnivore diet?
I’ve been experiencing these symptoms for over a month after a horrible experience with thc lemonade. Ive been so anxious and feeling out of body, lightheaded and disconnected. Thank you so much for this video! It’s reassuring to know I’m not the only one experiencing this.
I'm glad it was helpful! :)
OMG you just made me realize after a bad trip 5 years ago was the first time ive had these symptoms. WOW! please tell me these exercises have been helping.
Yess I think thc triggered it more
This the same that happened to me, I ate a edible and after that whooop but trust me you’re going to feel fine and just distract your mind off it and everything will be ok !
For me the vape triggerd me:(.
Thank you so much for this video, I have just found this.
Everything you say I have.
It is so distressing from the dizziness to the panic attacks, I am definitely a hypochondriac .
Thank you so much, I have subscribed to your channel.❤️
You are so welcome!