I will not take steroids (prednisone) again unless absolutely necessary. 40mg per day orally for about 6 months. I was a mess. None of the other meds worked. The sulfa-like drugs made me sicker. This was in 1997, the year before Remicaid came out. My GI doc wanted me to try mercaptopurine (a cancer medication) for another 6 months. I told him no, to take the damn thing out. My surgery went well except for a blood clot in my leg a couple of weeks later. My temporary ileostomy leaked all the time. I had severe depression coming off the prednisone. But they were able to take down the ostomy about 6 weeks after the colectomy. 27 years later, and everything is still working for the most part. I think I still have residual effects from the prednisone. I didn't have much bleeding because the damage in my colon was higher up than yours, and it was in deeper layers of tissue than usual, too. I also have to sometimes lie on my side to pass gas. I usually am up at least three or four times a night to go number two. Eating simple carbs helps. I am also on a gluten free diet. I haven't had pouchitis in a long time. Yes, no watermelon late in the day if you don't want to be up all night! I have the same problem with most fresh vegetables. Sorry if this is TMI. Thank you so much for sharing.
thanks for sharing, I have a good friend that has a bag for the rest of his life, he will visit me in Ormoc once we finally get there.. Which barangy are you in? I have not been there since lock down started I bet a lot has changed.
Your new normal sounds like it was worth it!
I will not take steroids (prednisone) again unless absolutely necessary. 40mg per day orally for about 6 months. I was a mess. None of the other meds worked. The sulfa-like drugs made me sicker. This was in 1997, the year before Remicaid came out. My GI doc wanted me to try mercaptopurine (a cancer medication) for another 6 months. I told him no, to take the damn thing out. My surgery went well except for a blood clot in my leg a couple of weeks later. My temporary ileostomy leaked all the time. I had severe depression coming off the prednisone. But they were able to take down the ostomy about 6 weeks after the colectomy. 27 years later, and everything is still working for the most part. I think I still have residual effects from the prednisone.
I didn't have much bleeding because the damage in my colon was higher up than yours, and it was in deeper layers of tissue than usual, too.
I also have to sometimes lie on my side to pass gas. I usually am up at least three or four times a night to go number two. Eating simple carbs helps. I am also on a gluten free diet.
I haven't had pouchitis in a long time.
Yes, no watermelon late in the day if you don't want to be up all night! I have the same problem with most fresh vegetables.
Sorry if this is TMI. Thank you so much for sharing.
Thanks for all the comments. Best wishes.
thanks for sharing, I have a good friend that has a bag for the rest of his life, he will visit me in Ormoc once we finally get there..
Which barangy are you in? I have not been there since lock down started I bet a lot has changed.
Brgy Mejia