Raising an Autistic Child with Duchenne Muscular Dystrophy | Sibongile Mofokeng

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  • Опубліковано 28 лис 2024

КОМЕНТАРІ • 65

  • @keneuwemakepe9605
    @keneuwemakepe9605 7 місяців тому +42

    My son, who is now 14, has also been diagnosed with autism. I even forget about the diagnosis now, he is an A student, trophies left, right, and center. My hubby, who came into our lives when my son was only 3 and still struggling with communication, has been amazing. Big ups to those types of people who are able to give so much love beyond biological relations.

    • @thobilemdletshe5609
      @thobilemdletshe5609 7 місяців тому +5

      Well done mommy. My son is 3 recently diagnosed with autism.Such stories give me so much hope. Well done to your baby ❤

    • @keneuwemakepe9605
      @keneuwemakepe9605 7 місяців тому +2

      Hi Thobile, thank you. Your son will be ok too, just stay on track with whatever treatment the doctor suggests. For us it was occupational therapy and speech therapy. Getting him into a special school will also be very helpful. Keep well.

    • @mirjamhamunyela8026
      @mirjamhamunyela8026 5 місяців тому +2

      My son is diagnosed with ADHD, he is 11 years old. It has not been an easy journey but I thank God for choosing me to be his parent .
      Speech and occupational therapy really helps and definitely a school that will allow them to be who they are and cater for their needs 🙏🏽 😊

  • @MaineMofokeng
    @MaineMofokeng 7 місяців тому +20

    Sibongile is such a happy soul! God bless her ka nnete!

  • @SouthAh
    @SouthAh 7 місяців тому +18

    The host will become a great mother, you can see it in her eyes - I can feel it.
    Blessed is the soul that will get to call her mom.

  • @ziyandamkhonta6289
    @ziyandamkhonta6289 7 місяців тому +11

    This has just healed me. I have a 8 year old beautiful princess who doesn't talk nor walk. But God has carried me and her through. I'm finding strength in this and wana leave more for her.

  • @constancethatelo5809
    @constancethatelo5809 6 місяців тому +7

    Thank you for sharing. I have an 11yr old beautiful girl diagnosed with cerebral palsy, she doesn't talk and she still on nappies.but ka Mohau wa Modimo we manage.
    These children are a angels cherubim having a human experience ❤

  • @simizayza1234
    @simizayza1234 7 місяців тому +12

    Sibongile's faith is so beautiful to watch. I maintain, God will always give us joy and peace in the midst of our pain. Thank you Sibongile for this reminder...The fear of death before your child is a real one.., I can relate to this.

  • @ayandazwane6366
    @ayandazwane6366 7 місяців тому +6

    It's how Sibongile shares her motherhood journey bodly with a full smile on her face ❤❤❤ Brave and wonderful mother ❤❤❤ my son is 14 years now... diagnosed with Autism and ADHD as well as the Steven Johnson Syndrome...i can relate to everything Sibongile shared... She's such a very loving mother... I would like to be in contact with her ❤❤❤... I'm literally crying as I am listening through...

  • @robinson4061
    @robinson4061 4 місяці тому +2

    My son was diagnosed with severe Autism (non-verbal) and Duchenne Muscular Dystrophy. Your son's journey seems so similar to our son's. He also stopped walking at 9. Thank you for sharing your story. Having severe Autism and DMD is a difficult journey. I haven't come across anyone similar to our son's situation before watching this video so I appreciate you sharing.

  • @deltaforce-50
    @deltaforce-50 4 місяці тому +2

    ❤ No words, faith, strength and wisdom

  • @manahyeni4963
    @manahyeni4963 7 місяців тому +8

    We have two kids living with Autism. 9yr old girl and 16yr old boy. They have brought so much joy into our lives. They've challenged us to our core but we wouldn't have it any other way.

  • @Dark_shadow_Owl
    @Dark_shadow_Owl 6 місяців тому +3

    Thank you Sibongile just like your name😍. We love you mom,fellow autism & ADHD mom.

  • @poppyful4377
    @poppyful4377 7 місяців тому +7

    In my family we have 2 autism diagnosis. My cousin is in his late 40's and my other cousin's son is 15 years old. They are both functioning well with their challenges and we love and support them whichever ways we can.
    I wish Sibongile continued strength, wisdom and support. Prosper, you are loved♥️

  • @anastasimankesemokgobu1724
    @anastasimankesemokgobu1724 7 місяців тому +5

    Ohh dear I am in so much tears, so much love in your eyes, the joy in your face. I love how you love your child and raising awareness. Wooow ❤❤

  • @CathyforJesus
    @CathyforJesus 5 місяців тому

    For the longest of times I have been ashamed to share my story. the fact that i can relate to this lady so much liberates me. Thank You Sbongile for being bold enough to share, you have given me the courage to share mine too.

  • @YabanathiNtlali
    @YabanathiNtlali 7 місяців тому +10

    I'm so glad we are have these conversations in South Africa. I hope this will create awareness and combats ignorance in the black community❤. Well done guys, we need more of these. Thanks Mommy for sharing Prosper's story😊.

    • @sfisobuthelezi3054
      @sfisobuthelezi3054 6 місяців тому

      True my sister has an autistic 5 year old boy, most of us are knew to this kind of symptoms in children

  • @simizayza1234
    @simizayza1234 7 місяців тому +5

    I loved what Sibongile said earlier about communicating with Prosper... "I've learned to listen to his eyes!" So powerful!!

  • @Uayandaaa
    @Uayandaaa 7 місяців тому +5

    Ursulas pity face time to time justs makes story hit even harder. 😭😢

  • @tsakanemgwevu2347
    @tsakanemgwevu2347 7 місяців тому +3

    I love you Sibongile . Prince Prosper is a victor

  • @onkabetsetlhapi6407
    @onkabetsetlhapi6407 7 місяців тому +7

    What a vibrant and lovely lady. So eye opening ❤
    I love how diverse and informative the topics / conversations on this channel are. Keep the amazing quality content coming.

  • @sinegugumaphumulo4100
    @sinegugumaphumulo4100 6 місяців тому +2

    What an insightful conversation❤❤❤❤❤. Sis Sibongile ismile sakho🥰🥰❤❤❤

  • @PalesaMoalusi-rv9si
    @PalesaMoalusi-rv9si 7 місяців тому +2

    I salute you my sister..And thank you for teaching us with Duchess Muscular Dystrophy it was for the first time i hear about this .I like how you have accept your child the way he is and not forgetting your family❤

  • @jeansophia2092
    @jeansophia2092 6 місяців тому +1

    Prosper definitely won my heart ❤🥺

  • @Tebo5583
    @Tebo5583 5 місяців тому

    Oh man…thanks Ursula and the team. I learnt so much from this episode and may God bless aus Sibongile’s graceful heart ❤️ What a woman!

  • @vivm2794
    @vivm2794 7 місяців тому +5

    Oh woooow. This is exactly what I wanted to hear. First I’m a child of God mmmmm okay let’s listen. But Ursula I never say my son is autistic. That’s exactly what I say to my niece who I am staying with. I love her 😍

  • @asithandileloleka
    @asithandileloleka 7 місяців тому +3

    19:57 Ursula’s facial expressions!!❤ ingathi uzothi “Khuzekani Bonga no Give”😂😂😂

  • @malehlohonolomosia8119
    @malehlohonolomosia8119 6 місяців тому +2

    What an inspiratIon I got from you Sibongile as a mom with my 8year old son who’s delayed in speech and is hard of hearing. Your testimony has become a breakthrough for me.

    • @joeydlaminivlogs
      @joeydlaminivlogs 6 місяців тому

      My5 years old daughter was diagnosed with speech delay in 2022 weeks did a surgery for her in 2023 where they put in grommets and her tounge was tied . We did speech therapy and now we are starting occupational therapy honestly it’s a lot . I appreciate hearing other people’s stories

  • @AyandaIris
    @AyandaIris 7 місяців тому +5

    Thank You somuch guys for the Awareness
    This help a lot I don't have kids but My heart is very close to kids with special needs more in our black communities
    We just Baphapha or Baylanya
    That's painful let's Stop diagnosis ppl with our eyes pls Good ppl

  • @pulengtsotetsi3795
    @pulengtsotetsi3795 6 місяців тому +1

    Oh my Queen! You're so strong.. May the good Lord continue to carry you and King Prosper in Jesus name❤❤❤

  • @hlulanimabunda71
    @hlulanimabunda71 6 місяців тому +1

    So many emotions felt in this episode. Many thanks to the guest for opening up as she did. May God grant her the desires of her heart. Also, the love of a mother 🥰🥰o many emotions felt in this episode. Many thanks to the guest for opening up as she did. May God grant her the desires of her heart.

  • @africanawang2674
    @africanawang2674 6 місяців тому +2

    She is definitely not in victim mentality. Mama Prosper is has a very positive attitude. It is well.

  • @queenmabe7736
    @queenmabe7736 7 місяців тому +5

    Thank you so much for sharing. You're such a strong Lady, God bless you.

  • @mphomasifi5015
    @mphomasifi5015 6 місяців тому

    Thank you Sibongile. It’s so beautiful seeing your positive energy. All is well, God knows and he’s with you and Prosper❤. Being a mother of a daughter diagnosed with Autism, I understand your story. And yes, our black Family and communities don’t know and the judge sooooo much.

  • @ViweTellaMhlebi
    @ViweTellaMhlebi 6 місяців тому +2

    This episode reminds a lot of the series called; The Good Doctor ❤

  • @LeratoSegele
    @LeratoSegele 7 місяців тому +4

    This is very informative and thank you for the positive soul interviewed❤

  • @thembisilemadonsela1220
    @thembisilemadonsela1220 7 місяців тому +2

    Thank you for educating us, was emotional the entire episode.🙏🏽💕 God Bless you sisSbongile❤

  • @nomakhosazanandhlovu8213
    @nomakhosazanandhlovu8213 5 місяців тому

    Thank you for this conversation. Special thanks to your beautiful guest and the honesty of mothering a child with two disorders. So many yes moments in her conversations and so many points that resonated so much with me❤❤

  • @lindatafeni9402
    @lindatafeni9402 7 місяців тому +5

    ❤ beautiful instalment

  • @gaoretelelwematebesi5840
    @gaoretelelwematebesi5840 6 місяців тому

    My daughter has congenital muscular dystrophy. Love and light to you and Prosper❤

  • @sylviamodise3887
    @sylviamodise3887 7 місяців тому +2

    Oh wow what an eye opening and heartwarming story. It really reflects that we serve a living God. Love and strength to Prosper and the family.

  • @sekhitlamakole
    @sekhitlamakole 7 місяців тому +3

    Thank you Sibongile for the info,that was lovely I appreciate how you narrate the story ❤❤you are breathtaking and your Smile is Amazing ❤❤🥰

  • @SnqcozPurposelyLiving
    @SnqcozPurposelyLiving 6 місяців тому

    Wow 👏🏽😭♥️♥️♥️🥺A wonderful mom♥️

  • @patricknkosi5412
    @patricknkosi5412 7 місяців тому

    Ursula was dragging her heavy heart all the way. Kudos to Sibongile. Takes a lot of courage to be that mom.

  • @tendaimanyau8234
    @tendaimanyau8234 7 місяців тому +5

    Excellent episode. Thank you for sharing ❤

  • @mulaloratsiku6533
    @mulaloratsiku6533 6 місяців тому

    I pray for more strength, peace, joy. May God take care of Prosper more so her mom can sleep ❤❤❤❤

  • @luvemtshizana4592
    @luvemtshizana4592 5 місяців тому

    I saw the podcast on ticktok had to come here my brother was diagnosed with both autism and duschene muscular dystrophy what a challenging 14 years unfortunately he fought until he couldn’t anymore
    This was interesting to watch, I wish it reaches more audiences what an experience

  • @kheswatv
    @kheswatv 6 місяців тому

    Very insightful topic, and we need more of it, especially the awareness around the children with special needs.

  • @nomvulairene4177
    @nomvulairene4177 6 місяців тому +1

    Oooh my god I am enjoying this show hle ❤❤❤

  • @bojangmekgwe3205
    @bojangmekgwe3205 7 місяців тому +1

    You have amazing energy Mommy❤❤❤

  • @miss.n6582
    @miss.n6582 7 місяців тому +1

    Insightful! Thank you for sharing and teaching us.

  • @thandazosa5322
    @thandazosa5322 5 місяців тому

    Thank you sisi❤

  • @lebok1988
    @lebok1988 7 місяців тому +1

    Thank you for sharing your story sisi ❤

  • @AyandaIris
    @AyandaIris 7 місяців тому +3

    And as Ursula says it's difficult when you don't have a child to advise ppl

  • @mmatloumoloisi3677
    @mmatloumoloisi3677 7 місяців тому +1

    Sibongile😍😍

  • @Newcanvas_Juliet
    @Newcanvas_Juliet 7 місяців тому +3

    Hello sisters, God Bless you. Sorry am out of topic. If you guys are believers, I would encourage you to join Pastor Jerry Eze, every morning Monday-Friday,WAT, 7am. I have seen testimonies of children and adults healed of both conditions mentioned. Blessings.

    • @vivm2794
      @vivm2794 7 місяців тому

      Yessss very

  • @joeydlaminivlogs
    @joeydlaminivlogs 6 місяців тому

    I can relate to the Gp feedback that was the case with my daughter they said I am overreacting when I asked for a referral to a speech therapist 😢

  • @cletuskazimoto9319
    @cletuskazimoto9319 7 місяців тому +3

    ❤❤😊

  • @lehlohonolomogadime6161
    @lehlohonolomogadime6161 7 місяців тому +2

  • @PriscillaPeter-rp7jp
    @PriscillaPeter-rp7jp 7 місяців тому

    To