Thank you for always bringing us new information on different disorders. I have some sensory issues. Some touch and some noises I just can’t deal with. If I have pjs on they have to be shorts or dresses, can’t do anything tight around my neck. On the opposite end I never feel hungry. I’ve always thought it was my nerves but it’s probably something else.
@@MandasMusings it’s awful isn’t it? I would love it if I could just be touched without jumping out of my skin. A couple of years ago I went to a haunted house and one of the characters grabbed me and spun me really hard and I was still healing from my acdf surgery and it hurt but it also really startled me and I ended up having to leave early.
@@MandasMusings I wish I wasn’t like this. I am having an mri on my brain and both knees tomorrow night and I wonder if they find something this time that could help me get answers.
@@MandasMusings that’s good to know I’ve been in bed for the last 2 weeks with chronic pain am really fed up with it hubby doing a fantastic job of looking after me been crying a lot with it as well I am really fed up 🙏😊🤗
I’m so sorry that you are feeling so awful! One day at a time, that’s all you can do is take it one day at a time. I hope your tomorrow is better than your today.
It really does make life a jolly bowl of laughs doesn’t it🤣😂😅 Not!! I swear our house could burn down by the time anyone else could smell the smoke. A super sniffer is a blessing and a curse, Super hearing as well, ear plugs even for sleeping are a a heavenly gift. And I’m in the no shoes no socks camp as well as tight cloths including that torture device called a bra😂 and my tongue is a mold detector. Sunglasses are a must. I think I passed down some really horrible fun stuff to my off spring huh?🤔😳
I literally would prefer to only wear cotton(or cotton feeling cloth) t-shirts and jeans everyday. (And I do for the most part, yay for picking jobs that dont require dressing up) I have too many issues with textures. Satin, thin, and silky fabrics are disgusting. I cannot even look at microfiber anything, especially the microfiber fleece. I have so many issues I can't list them all but I also have a lot of hyposensory issues. I crave touch and hugs and cuddling except from strangers. I will literally jump out of my skin if brushed up against or touched by strangers. I was the kid that couldn't get enough of spinning and swinging, running, and rocking(turns out the last one is not really socially acceptable). Roller coasters were my drug. I also crave variety in food textures and flavors. I will try it all. Except hard candies with liquid centers, they can rot in hell. I also cannot tell the difference between hunger and thirst and whether what I'm feeling is an emotion or some internal goings on like indigestion. Is it guilt or a tummy ache? Who knows? Anyways I'm sure I'll have more to say in the future videos. I've got issues in all categories.
I wear a collar on days it’s really bad. The physical therapy helped for a while, but the pain recently came back. The dry needling helped a lot with pain.
Thank you for always bringing us new information on different disorders. I have some sensory issues. Some touch and some noises I just can’t deal with. If I have pjs on they have to be shorts or dresses, can’t do anything tight around my neck. On the opposite end I never feel hungry. I’ve always thought it was my nerves but it’s probably something else.
I startle very easily if someone touches me. It’s awful I’d like to be able to enjoy touch.
I also startle very easily. It feels like someone electrocuted my brain every time.
@@MandasMusings it’s awful isn’t it? I would love it if I could just be touched without jumping out of my skin. A couple of years ago I went to a haunted house and one of the characters grabbed me and spun me really hard and I was still healing from my acdf surgery and it hurt but it also really startled me and I ended up having to leave early.
Oh no!! That’s horrible!
@@MandasMusings I wish I wasn’t like this. I am having an mri on my brain and both knees tomorrow night and I wonder if they find something this time that could help me get answers.
I do hope your headaches are going and you feel better in yourself big hug Michelle 🤗🤗😊
Aww thank you! It ended up being a 5 day migraine, but so far I’m doing much better. 😊
@@MandasMusings that’s good to know I’ve been in bed for the last 2 weeks with chronic pain am really fed up with it hubby doing a fantastic job of looking after me been crying a lot with it as well I am really fed up 🙏😊🤗
I’m so sorry that you are feeling so awful! One day at a time, that’s all you can do is take it one day at a time. I hope your tomorrow is better than your today.
It really does make life a jolly bowl of laughs doesn’t it🤣😂😅 Not!! I swear our house could burn down by the time anyone else could smell the smoke. A super sniffer is a blessing and a curse, Super hearing as well, ear plugs even for sleeping are a a heavenly gift. And I’m in the no shoes no socks camp as well as tight cloths including that torture device called a bra😂 and my tongue is a mold detector. Sunglasses are a must. I think I passed down some really horrible fun stuff to my off spring huh?🤔😳
But remember you’re only 50% of those genes. 😊
@@MandasMusings that’s true❤️
@@MandasMusings ❤️
I literally would prefer to only wear cotton(or cotton feeling cloth) t-shirts and jeans everyday. (And I do for the most part, yay for picking jobs that dont require dressing up) I have too many issues with textures. Satin, thin, and silky fabrics are disgusting. I cannot even look at microfiber anything, especially the microfiber fleece. I have so many issues I can't list them all but I also have a lot of hyposensory issues. I crave touch and hugs and cuddling except from strangers. I will literally jump out of my skin if brushed up against or touched by strangers. I was the kid that couldn't get enough of spinning and swinging, running, and rocking(turns out the last one is not really socially acceptable). Roller coasters were my drug. I also crave variety in food textures and flavors. I will try it all. Except hard candies with liquid centers, they can rot in hell. I also cannot tell the difference between hunger and thirst and whether what I'm feeling is an emotion or some internal goings on like indigestion. Is it guilt or a tummy ache? Who knows? Anyways I'm sure I'll have more to say in the future videos. I've got issues in all categories.
I’m so sorry you have to go through all that, but I sure do think you’re awesome.
Hi have you had any treatment for your cci x
I’ve had physical therapy and dry needling but my doctor is looking for alternative treatments (other than surgery).
@@MandasMusings is your cci/aai quite bad.Have those things helped.
Do you ever wear a collar xxx
I wear a collar on days it’s really bad. The physical therapy helped for a while, but the pain recently came back. The dry needling helped a lot with pain.