I was just diagnosed today! I would have severe stomach pain and I was given IBS medication today I had an endoscopy and colonoscopy and was diagnosed with crohns
I almost cried finding this video. I am also someone with Crohn's and it is hard to find someone who looks like me that shares the same experiences. You definitely have a subscriber!
Please talk to your doctor about taking PRO-STAT for your Chrones. PRO-STAT is a liquid Amino acid consintrate to promote internal wound healing. Chrones are ulcers on your intestines. Good luck. I'm praying for you.
Girl the pain with Crohn’s is SO UNREAL!!!! I say it’s worse than childbirth. Because it is!! There is no let up at all…. I’ve had a few flare ups again after my first one and the last one I swear I almost went home to God girl!! I literally said I give up out loud. I feel you 💯 and prayers for you ❤
100% truth!! I’ve had a kid and have crohns - an active crohns flare feels at least twice as painful as labor, but even worse because there’s no real moments of relief and no cute baby at the end!!
I completely understand your pain! Pain with crohns and colitis is so unbelievably painful iv suffered with Ulcerative colitis is almost 15 years and I'm almost turning 28 yrs old. Outcome of live just feels uncontrollable. Iv tried so much over the years and been in so much pain with flares but currently on Ustekinumab. If this doesn't work now it's gonna be surgery. I have Pancolitis so its the whole of my colon that is inflamed. Very frustrating and effects so much of types of food I can and cannot eat or drink. 😒😔Very tiring condition. My heart goes out to everyone struggling with this disease. Least I know if I want a child, iv already been through worse pain 🤷♀️X
Just left a long comment about how this can take you to the ground like you’re giving birth! Where my flare up is usually located, I thought it was a kidney stone trying to pass the whole time! I had a stone but the urologist just had to tell me the stone was never the issue, but a symptom of nutrition malabsorption, due some kind of IBD. Got the stone out, now time to go to a GI. FINALLY GETTING HELP! :)
Also do take coconut water and goats milk -antinflamatory , avoid fatty food , carbonated drinks , alcohol , spicy food and eat on time. Try Homeopathy medication will help a lot.
You're not alone, I hope you get answers. Been flaring for 9 months straight and have lost 40lbs. I'm 20 and I've seen so many specialists without answers. It's ridiculous I hope you feel better and somebody listens!
My goodness I've had this yucky disease since 2012 it took 5 months in the hospital before they diagnosed me. It was so scary. NG tubes biopsy this that diarrhea horribly 5-7 times daily incontinence at night just an awful mess. Right now I'm going thru a flare, super nausea's. I'm praying for all of us with this disease. I'm having kidney infections out of nowhere, no energy very depressed super super sad just all kinds of stuff. My eyes are awful distance is insane waiting for the eye doctor to see me it's all just so much.
I have it too and it started when I noticed alot of blood coming out and diarrhoea and I had to go to the toilet really urgently. I sometimes feel embarrassed about it when I have the symptoms but I always feel relieved when I find people who also have it too ❤
Super relatable, I started having symptoms in 2013 but they were mild until 2014 where I started getting that "urgency" feeling where I had maximum 5 minutes to get to a bathroom or I'd need new pants. I had no control over my bowels and I would have to go multiple times a day and usually each visit to the bathroom would last an hour or so. Time and time again I skipped school cause of the pain and the amount of times I tried to make it to school but ended up "not making it" so that long bus ride would get really awkward and nasty if you catch my drift. Luckily I never got caught for it happening in school cause the bullying would have been relentless but skipping school all the time really didn't help my reputation either. It didn't help that the first doctor I went to visit about the problem told my mom straight up that I was lying. My whole family thought I was lying except for my mom cause it wasn't normal for a kid to keep going to the bathroom when they're at home especially when I had no kind of game I could take in there. It also helped that I had a family member who had crohn's as well but his is the worst case scenario where he has a bag attached to his side for the rest of his life, because of him my mom had an idea of what I had so she took me to another GI and after getting a colonoscopy and endoscopy she found my stomach painted with ulcers after seeing this she decided to give me..... lactose pills. Needless to say that didn't work and because of all the school I missed I was barely getting through my first time at summer school. Then I finally went the doctor my family member suggested and they diagnosed me with chron's disease. Everything you described being the pain, cramps, canker sores, diarrhea and constipation I dealt with for around 3 years until I finally got medicine but no one really ever takes the disease seriously. I never look for pity but having people completely disregard it as a serious issue was always an incredibly tough thing to go through even now.
I am going through terrible abdominal pain and urgency every 20 minutes or so. While sleeping I can go an hour or two. I’m also too nauseous to eat anything solid. I get chills and am too dehydrated for my doctor to get blood sample. This has been going on for almost a week and I am waiting for a colonoscopy appointment. I have been struggling with unexplained joint pain and shorter lived bouts of pain and diarrhea at random. I am so scared and feel like I am dying. I am so thankful to see someone who has been through someone who has been through these symptoms and is finding ways to manage and live with it.
I am so sorry you were going through that. I know how rough it is. I really hope you have found some relief since then. It can improve with proper treatment, stay hopeful :)
Thank you for sharing!!! My colonoscopy told my Doctor I had Crohn Disease!!! Then I found out that my body is allergic to "anti-inflammatory" drugs!!! What helped me the "most" is I had to "accept" my body could "only" digest two meals a day!!! This took most of my "discomfort" away!!!! Everyday I must decide on breakfast or lunch and then dinner!!! My breakfast or lunch can be a "heavy" meal with 4 or 5 items!!! My dinner is a "light" meal maybe three items before 8PM!!! My goal was to "not" feel "bloated" but have a "calm" digestive routine after eating!!! I had to "implement (4) areas to improve my overall health!!! (1) Go to the bathroom every four to five hours (2) Eat two meals a day (3) Drink 90 oz of water a day (4) Must sleep 8 hrs straight at night. Setup a monthly "food diary" to list the "yes & no" food I can eat each month. On my "no" list: wheat bread, dairy products, tomatoes, bananas, oranges & spicy foods. On my "yes" list: yogurt-dairy free, watermelon, blueberry, sherbet, chicken, seafood, oatmeal, broccoli & pasta & brown rice!!!
Wow! Thanks for sharing what worked for you. I’m sure it took so much trial and error. Fighting the bloating is one of the most annoying challenges so I definitely need to play around with eliminating foods.
I cannot express how seen it made me feel to hear your story. I took the same medication to combat a bout of strep about 6 years ago and also ended up catching c-diff. After I beat the infection I ended up still having symptoms and got diagnosed with crohn’s after a doctor found ulcers all along my GI tract. Thank you for sharing your diagnosis, I have never heard of someone with a similar experience to mine
Hi, Ira.Watching your video really gave me courage to come out with my crones and ulcertive colitis. I was first diagnosed with crohns and ulcerative colitis when I was seventeen years old , january of twenty twenty three 1 years ago and now i'm eighteen years old , so 2 years ago and my symptoms were loss of appetite tired all the time. Lesions that were purple reddish Looking, they were on my face, my legs, the bottom of my feet, on top of my feet my armpit and my mouth. Blood in my stool. The scars really hurt myself. Esteem, because I don't feel pretty with my scars on the outside of my body nor on the inside of my body, it really does discuss me that I have those scars on the inside of my body. I had a colonoscopy March 2024 on the 14th. And they said I look good during my endoscopy and my colonoscopy. But the doctors want me to take treatment which I don't mind, but it is really hard to have a terminal disease. Because you have to have to get your mind in a certain mindset to where you know. You can beat this thing even on your bad days and I'm being honest. I've had more bad days than I have good honestly and? I need to stay close to Christ cause I know that he's my rock and my redeemer. And my very best friend and my healer? And this disease really affected me more than what it was supposed to. And that's what's the worst part about it and my real name is Samantha. And people say Samantha's are smart, attractive, funny and kind and honestly , don't feel attractive at all. And it's really hard to live up to your name when you have scars on the outside of your skin, which don't make you very attractive in my opinion. And I don't like having to wear long skirts and hide my legs and stuff. Because they are scarred basically and I have a scar on my cheek and I don't like that and I do get out in the sunlight and try to get sun to my legs and my skin and put coc butter on them to bribg color back and everything. but your story really did help me. And cause I really thought I was the only one you know, when you go through something you think you think you're the only 1 and that tends to make you angry but? To know I'm not the only one that had a severe case of the disease.Really does make me feel good and it doesn't make me feel like it's entirely my fault that I have ait yk.❤❤
This video is very helpful. While I havent experienced some of what you have experienced, I can relate in parts. I have Acid Reflux. About 3 weeks ago I did a colonoscopy and endoscopy, I was recently diagnosed with mild Crohn’s disease. I have my official doctors appointment tomorrow to discuss treatment etc. But I too would have had random periods where I was in pain, nauseous, feeling like I was going to 🤮. There was one specific time (long story short) where I didn’t eat much before going to my schools Gala (lived my best life). As soon as me and my man left instantly felt like I needed to go, my face felt prickly, nauseous, and I experienced extreme pain in my side, ovaries, and lower back. Showering did not help and moving made it worse. Let me not go on a rant. Thank you so much for sharing your story. It’s rare to find WOC or POC in general, who are raw and honest about their journey. I hope you are doing well. Sending prayers your way.
Finally going to get my Crohn’s screening done after watching this. I’ve had severe IBS symptoms along with gluten intolerance since I was a child and I learned to just “tough it out”. It has now gotten to the point where I have very few normal days where I’m not in some kind of pain or discomfort. And there’s been days where the pain has taken me to the ground like I’m giving birth. I’ve started taking some medicine for intestinal spasms to help with the acute pain in my colon, but yes GI issues are unseen, but debilitating if they go on for years. I originally thought my current issues where caused by a punctuating kidney stone, but after the removal of the stone, my left flank pain came back and that’s when I was told to see a GI to get a colonoscopy. Crohn’s and IBD of any kind can cause nutrition malabsorption in young “healthy” adults, and can result in things like kidney stones and gallstones. Don’t minimize your pain people! Get some insurance and get checked. I went months not knowing what was really wrong, and ended up taking medicine and supplements that made it worse.
It's so relevant.. suffering from hell symptoms yet nothing significant in test reports kills us everytime..but finally when i had my Crohn's diagnosis, i was relieved i have a cause, atleast.
Pretty nervous to go through all this. But I had what I think was a flu, threw up and had horrible stomach aches. Fast forward a month, I’ll randomly get nauseous like once a day, have like a cramp feeling in my left lower area of the stomach or sometimes the right side. But this video kinda helped me relax and not worry as much. :)
Thank you so much for sharing, I'm currently in the process of being diagnosed but it is a long and grueling one. Even with immediate family diagnosed and the disease being hereditary I'm still being pushed away by hospitals and specialists because they wont take my "invisible" symptoms seriously. I think my stories very similar to yours in a sense that i was also working child care when my symptoms became so sever that i ended up in the hopsital and had to leave my job a few months ago.. since then ive been on a number of meds prescribed by my PCP and nothing has helped. My doc thinks i have an abdominal hernia from the constant flaring so i have a ultrasound coming up that im PRAYING will give answers/push me in the right direction. 9 months of flaring and ive lost 40lbs. Pray for healing soon, your story made me feel more hopeful and less alone. ❣️
Thank you! Currently suffering like no other..simlar situation. GI issues for years thought it was ibs. The last 2 years horrible joint pain , positive ana marker, doctor after doctor came up short because i look and act healthy all the while same on off GI stuff. Recently for the past 3 months work up nauseated every morning and had spells through the day, felt full easy, burning and swollen upper abdomin. Blood work showed high H pylori.... treated for that which only helped a little with the upper burning. Finishd antibodics (which have always hurt me) tested negative but now everything is worse... pockets of horrible pain the same spots through my stomach but the worst is lower right abdomen all day pulsating cramping and aching. No appetite like zero, I am wasting away. Found blister like sores on my elbow and a few fingers, my eyes feel swollen and now my ribs hurt. I can barely pass anything remotely soild now... Currently waiting for a scope from both ends on the 24th. At this point I just answers. Appreciate you. Thank you if you read this far.
Nausea, loss of appetite, joint pain, diarrhea, and right lower abdominal pain are classic signs of Crohn's disease! Glad you are getting scoped and treated. If this helps, right lower abdominal pain is associated with the ileum, which means the inflammation may be present there, but also could be in the colon as well.
Thank you for sharing. I’m so sorry you’re going through this! You will get answers soon! Don’t be afraid to ask for a second opinion if doctors aren’t sure or not being clear. You need to be treated somehow. I really hope you start feeling better soon. The scopes should bring answers
Thank you so much for making this video, i really appreciate it! ---Hey does anyone else get those throw up reactions but while going to the bathroom, not necessarily from nausea like...contractions?
Wow! I have almost all of these symptoms down to a T! Including the symptoms being exasperated by antibiotics I was prescribed for mysterious red bumps that kept appearing and opening on my legs (doctors thought it could be staph infection but the antibiotics didn't work and came back negative for bacteria). Just got a colonoscopy done a few weeks ago and they found severe inflammation and ulceration. Doctor said it could be crohns and im going to get a diagnosis soon
Going through this too. I get bouts of canker sores up to five in my mouth at a time. The nausea. Urgency, constipation it comes in waves though. Sometimes I'll feel perfectly fine for two three weeks at a time other than having constipation and whatnot and then I go straight back to everything happening all at once. I have a colonoscopy at the end of the month I hope they can tell me what's wrong with me finally. It's definitely not fun having to know where the bathroom is every single place that you go and dreading going on long car rides.
Very helpful just to listen to someone else talk about their journey. Thank you. Recently diagnosed and it's been a whirlwind! I really had very limited knowledge of this disease before recently and it's a whole new world now! Wouldn't wish this on anyone!
Thank you for watching! I know how it feels not knowing where to turn with a new diagnosis. I'm glad I can help in some small way along your journey. Hoping that a diagnosis at least means relief is on the way for you!
I’m glad I found your video. I was just about to ask if you had a colonoscopy. I’ve been dealing with similar symptoms for a while now. I’ll be calling the doctor’s office back Monday 🤦🏾♀️. It’s just the journey of dealing with the doctors and tests after tests.
I'd been telling these doctors for 2 YEARS that I have chrons! The PAIN...and I almost bled to death last year. They just diagnosed me last month with perianal chrons and HS. they said it's a rare form of chrons, I'm probably getting my rectum removed (got a colostomy bag unexpectedly in 2021, guess its permanent now). Gonna get my first infusion of remicade Thursday....lord help... AND I'm anemic with alpha thalassemia...
Hi wanted to get some information u started humira on 18th May had 4 injections loading doses at the hospital. I then had my next 2 on 1st June. Next Thursday will be on 1 injection. So been 3 weeks today or so since started the treatment. Today a flare up has started. Any idea how long humira can't take to work as read it can take up 12 weeks before u see changes. I appreciate it can take different times for different ppl. Many thanks. I guess I'm just over thinking and panicking
Had to have an emergency CT scan. It showed my ileum is collapsed. I’ve had several of your symptoms. Shooting pain in my stomach. Pressure in my bottom that feels like childbirth. I haven’t been diagnosed yet, but I’m praying I can get one soon so I at least know!! Any recommendations for me to ask GI dr?
Clindamycin sucks I’m allergic to it really bad. I’ve had E. coli many times. And I was diagnosed with lymphatic colitis now dealing with mostly likely Crohn’s
Wow I'm so sorry you've had to deal with that! I've never heard of lymphatic colitis, I'll be researching that more. I'm hoping you get an answer soon on if you have Crohn's.
@@irascrohniediaries one more week and I’ve started losing weight from well my second day not eating anything. I can drink stay hydrated but I can’t eat anything.
I feel like IBS is a wastebasket diagnosis. That’s my recent diagnosis, and I’m on Prilosec. But I suspect that my symptoms are an early onset of Crohn’s. My mom has it 😔
Dang this is me, worst feeling in the world and I had a kid naturally! Feeling like you’re gona vomit and diarrhea at the same time along with chills, intense stomach pain and dizziness is just too much. I’ve passed out several times bcuz of it. Fell right off the toilet and busted my head open. I can’t tell you how many times I’ve been carried out of my apartment by firefighters half dressed cuz I fell off the damn toilet again 😭😭😭😭😭
My dad has crohns. I get nauseous very frequently and acid reflux to where I feel like I’m in the verge of puking when I move. I’m scared of all the -oscopies 😢 not diagnosed with anything but “acid reflux” right now
I can relate to that. I always say get multiple doctor opinions if you are able until you find someone who is actually concerned with your health. Wishing you the best.
@Priyanka Singh I get Symptoms of Crohns Disease I get Easily Tired Exchusted Easily. Get ABDOMINAL PAIN Diarrhea,other Crohns Disease Symptoms. I go for ENDOSCOPYS and Colan. Oscopys. I had MRI IV CONTRAST in August 2021 and I Now have Strectsures meaning Narrowing of Intestines and Colan meaning it can Cause BLOCKAGE OBSTRUCTION meaning that would need EMERGENCY SURGERY. Pentasa/Maasimine Prescriptions Works.
I'm no doctor. But i am a problem solver. Taking probiotics while taking antibiotics should with a high success rate (but not always and some people have allrgies to probiotics) keep you from getting C-diff. I wonder if PRO-STAT will cure Chrones? Pro-stat is a consintrated liguid of Aminos acids to promote internal wound healing. Chrones desease are ulcers on your intestines.
I have been struggling with stomach problems from high school first i had diarrhea and now i have constant diarrhoea along with stomach pain and vomiting but i dont have blood along with my diarrhoea and i have a minimal inflammation in my intestine and doctors tell me i have bacterial infection and ibs but they end telling i dont have any problem physically its just stress because of my uni so someone please help me with this
Hi I'm on week 5 of humira Tommorow. I've had a flare up yesterday. Does that mean humira isn't working for me I appreciate ur not a doctor. What week did it work for u. I've read it can take between 2 and 12 weeks. Does that mean still a chance I can see results as on week 5. Many thanks look fwd to ur reply.
“… I would have to hold on for dear life … ” my god I know that feeling Also I never knew cake pops would change someone’s life so drastically and I shouldn’t have laughed but I understand completely. It was sweet potato that changed my life LOL
I appreciate you asking this! I am doing well, been in remission for a while and recent tests all look good. I hope to post an update soon. Thanks for commenting, I hope you are well too :)
C-DIFF is extremely hard to get rid of it's insane. The antibiotic killed all of the good flora in your gut. I am soo happy you are okay. God bless you!
Yes it was rough for sure. Thank you so much for the kind words! I recently posted a video on my c-diff story. You're right & my immune system was very weak during that time due to antibiotics.
I struggle with constipation & horrible nausea every single day they told me it was IBS & acid reflux I lost 20 lbs. a week ago my appendix was inflamed and when they went in with the camera (laparoscopic) they saw my cecum & my large bowel was also inflammed so they took that all out & I most likely have chrons , I have to do a colonoscopy but I’m so scared to do the prep since I’m always nauseous
Oh no I’m sorry you’re going through this! I understand how hard it can be. I really hope you are recovering well. I would suggest pacing yourself while drinking the prep, try not to chug to avoid feeling nauseous. I’ve been able to do a miralax prep with juice and Gatorade and that wasn’t horrible like the solution they give you. Don’t be scared, you got this and I’m rooting for you!
I have Acid Reflux and was recently diagnosed with mild Crohn’s disease. I had to do a colonoscopy and endoscopy about 3 weeks ago. I agree with taking your time with drinking the prep. For my prep, I did the Miralax and I drank mine with apple juice. I didn’t end up drinking the full 64 oz because I felt like I was cleaned out (which I was). There is no rush to finish. I took my time lol. They also told me I was allowed to take Zofran (anti-nausea pill) the day of the prep & the morning of. Just double check with your doctor. I have a video up on my entire experience if you you’re interested in watching. Wishing you healing and clarity 🤍
@@iamleahdre definitely taking my zofran & gunna do the prep because this is horrible a new symptom to is burning gnawing pain in my upper abdomen right between my ribs it’s horrible !
@@brieestar0307 I’m sorry you’re experiencing that. I know you may not want to hear this but think about the positives. They can finally look & see what’s going on. Without this procedure I wouldn’t have found out that I had Crohn’s disease and things could’ve gotten way out of hand.
I was just diagnosed today! I would have severe stomach pain and I was given IBS medication today I had an endoscopy and colonoscopy and was diagnosed with crohns
I almost cried finding this video. I am also someone with Crohn's and it is hard to find someone who looks like me that shares the same experiences. You definitely have a subscriber!
Please talk to your doctor about taking PRO-STAT for your Chrones. PRO-STAT is a liquid Amino acid consintrate to promote internal wound healing. Chrones are ulcers on your intestines. Good luck. I'm praying for you.
Girl the pain with Crohn’s is SO UNREAL!!!! I say it’s worse than childbirth. Because it is!! There is no let up at all…. I’ve had a few flare ups again after my first one and the last one I swear I almost went home to God girl!! I literally said I give up out loud. I feel you 💯 and prayers for you ❤
Are you not receiving treatments? My daughter has Crohn’s and she gets treatments every 6 weeks now.. Remicade
As a man with crohns, thank you for saying this, it makes me feel valid.
100% truth!! I’ve had a kid and have crohns - an active crohns flare feels at least twice as painful as labor, but even worse because there’s no real moments of relief and no cute baby at the end!!
I completely understand your pain! Pain with crohns and colitis is so unbelievably painful iv suffered with Ulcerative colitis is almost 15 years and I'm almost turning 28 yrs old. Outcome of live just feels uncontrollable. Iv tried so much over the years and been in so much pain with flares but currently on Ustekinumab. If this doesn't work now it's gonna be surgery.
I have Pancolitis so its the whole of my colon that is inflamed. Very frustrating and effects so much of types of food I can and cannot eat or drink. 😒😔Very tiring condition. My heart goes out to everyone struggling with this disease. Least I know if I want a child, iv already been through worse pain 🤷♀️X
Just left a long comment about how this can take you to the ground like you’re giving birth! Where my flare up is usually located, I thought it was a kidney stone trying to pass the whole time! I had a stone but the urologist just had to tell me the stone was never the issue, but a symptom of nutrition malabsorption, due some kind of IBD. Got the stone out, now time to go to a GI. FINALLY GETTING HELP! :)
Also do take coconut water and goats milk -antinflamatory , avoid fatty food , carbonated drinks , alcohol , spicy food and eat on time. Try Homeopathy medication will help a lot.
I think the worst part of all of this is bouncing around doctors and specialists, I've been to 14 now and still no actual diagnosis
When you've seen more specialists than your 80 year old neighbor
You're not alone, I hope you get answers. Been flaring for 9 months straight and have lost 40lbs. I'm 20 and I've seen so many specialists without answers. It's ridiculous I hope you feel better and somebody listens!
My goodness I've had this yucky disease since 2012 it took 5 months in the hospital before they diagnosed me. It was so scary. NG tubes biopsy this that diarrhea horribly 5-7 times daily incontinence at night just an awful mess. Right now I'm going thru a flare, super nausea's. I'm praying for all of us with this disease. I'm having kidney infections out of nowhere, no energy very depressed super super sad just all kinds of stuff. My eyes are awful distance is insane waiting for the eye doctor to see me it's all just so much.
I have it too and it started when I noticed alot of blood coming out and diarrhoea and I had to go to the toilet really urgently. I sometimes feel embarrassed about it when I have the symptoms but I always feel relieved when I find people who also have it too ❤
I totally understand feeling embarrassed, especially in public. But there's no shame over here! I hope you are doing much better 💜💜
Super relatable, I started having symptoms in 2013 but they were mild until 2014 where I started getting that "urgency" feeling where I had maximum 5 minutes to get to a bathroom or I'd need new pants. I had no control over my bowels and I would have to go multiple times a day and usually each visit to the bathroom would last an hour or so. Time and time again I skipped school cause of the pain and the amount of times I tried to make it to school but ended up "not making it" so that long bus ride would get really awkward and nasty if you catch my drift. Luckily I never got caught for it happening in school cause the bullying would have been relentless but skipping school all the time really didn't help my reputation either. It didn't help that the first doctor I went to visit about the problem told my mom straight up that I was lying. My whole family thought I was lying except for my mom cause it wasn't normal for a kid to keep going to the bathroom when they're at home especially when I had no kind of game I could take in there. It also helped that I had a family member who had crohn's as well but his is the worst case scenario where he has a bag attached to his side for the rest of his life, because of him my mom had an idea of what I had so she took me to another GI and after getting a colonoscopy and endoscopy she found my stomach painted with ulcers after seeing this she decided to give me..... lactose pills. Needless to say that didn't work and because of all the school I missed I was barely getting through my first time at summer school. Then I finally went the doctor my family member suggested and they diagnosed me with chron's disease. Everything you described being the pain, cramps, canker sores, diarrhea and constipation I dealt with for around 3 years until I finally got medicine but no one really ever takes the disease seriously. I never look for pity but having people completely disregard it as a serious issue was always an incredibly tough thing to go through even now.
I am going through terrible abdominal pain and urgency every 20 minutes or so. While sleeping I can go an hour or two. I’m also too nauseous to eat anything solid. I get chills and am too dehydrated for my doctor to get blood sample. This has been going on for almost a week and I am waiting for a colonoscopy appointment. I have been struggling with unexplained joint pain and shorter lived bouts of pain and diarrhea at random.
I am so scared and feel like I am dying. I am so thankful to see someone who has been through someone who has been through these symptoms and is finding ways to manage and live with it.
I am so sorry you were going through that. I know how rough it is. I really hope you have found some relief since then. It can improve with proper treatment, stay hopeful :)
hey. How's the situation now? Are you better?
how are you now ? :(
As I’m listening I’m just thinking how did they not diagnose you sooner????? You’ve had so many signsssss!!
Thank you for sharing!!! My colonoscopy told my Doctor I had Crohn Disease!!! Then I found out that my body is allergic to "anti-inflammatory" drugs!!! What helped me the "most" is I had to "accept" my body could "only" digest two meals a day!!! This took most of my "discomfort" away!!!! Everyday I must decide on breakfast or lunch and then dinner!!! My breakfast or lunch can be a "heavy" meal with 4 or 5 items!!! My dinner is a "light" meal maybe three items before 8PM!!! My goal was to "not" feel "bloated" but have a "calm" digestive routine after eating!!! I had to "implement (4) areas to improve my overall health!!! (1) Go to the bathroom every four to five hours (2) Eat two meals a day (3) Drink 90 oz of water a day (4) Must sleep 8 hrs straight at night. Setup a monthly "food diary" to list the "yes & no" food I can eat each month. On my "no" list: wheat bread, dairy products, tomatoes, bananas, oranges & spicy foods. On my "yes" list: yogurt-dairy free, watermelon, blueberry, sherbet, chicken, seafood, oatmeal, broccoli & pasta & brown rice!!!
Wow! Thanks for sharing what worked for you. I’m sure it took so much trial and error. Fighting the bloating is one of the most annoying challenges so I definitely need to play around with eliminating foods.
Lots of pharmaceuticals have soy fillers as the inactive ingredients. May benefit to see a allergist.
I cannot express how seen it made me feel to hear your story. I took the same medication to combat a bout of strep about 6 years ago and also ended up catching c-diff. After I beat the infection I ended up still having symptoms and got diagnosed with crohn’s after a doctor found ulcers all along my GI tract. Thank you for sharing your diagnosis, I have never heard of someone with a similar experience to mine
Hi, Ira.Watching your video really gave me courage to come out with my crones and ulcertive colitis.
I was first diagnosed with crohns and ulcerative colitis when I was seventeen years old , january of twenty twenty three 1 years ago and now i'm eighteen years old , so 2 years ago and my symptoms were loss of appetite tired all the time. Lesions that were purple reddish Looking, they were on my face, my legs, the bottom of my feet, on top of my feet my armpit and my mouth. Blood in my stool. The scars really hurt myself. Esteem, because I don't feel pretty with my scars on the outside of my body nor on the inside of my body, it really does discuss me that I have those scars on the inside of my body. I had a colonoscopy March 2024 on the 14th. And they said I look good during my endoscopy and my colonoscopy. But the doctors want me to take treatment which I don't mind, but it is really hard to have a terminal disease. Because you have to have to get your mind in a certain mindset to where you know. You can beat this thing even on your bad days and I'm being honest. I've had more bad days than I have good honestly and? I need to stay close to Christ cause I know that he's my rock and my redeemer. And my very best friend and my healer? And this disease really affected me more than what it was supposed to. And that's what's the worst part about it and my real name is Samantha. And people say Samantha's are smart, attractive, funny and kind and honestly , don't feel attractive at all. And it's really hard to live up to your name when you have scars on the outside of your skin, which don't make you very attractive in my opinion. And I don't like having to wear long skirts and hide my legs and stuff. Because they are scarred basically and I have a scar on my cheek and I don't like that and I do get out in the sunlight and try to get sun to my legs and my skin and put coc butter on them to bribg color back and everything. but your story really did help me. And cause I really thought I was the only one you know, when you go through something you think you think you're the only 1 and that tends to make you angry but? To know I'm not the only one that had a severe case of the disease.Really does make me feel good and it doesn't make me feel like it's entirely my fault that I have ait yk.❤❤
Yucky
I was diagnosed with Crohn’s disease in 2000. I too had a horrible time before my diagnosis
The Struggle Is So Real And Most People Not Even Doctors Understand It 😲
This video is very helpful. While I havent experienced some of what you have experienced, I can relate in parts. I have Acid Reflux. About 3 weeks ago I did a colonoscopy and endoscopy, I was recently diagnosed with mild Crohn’s disease. I have my official doctors appointment tomorrow to discuss treatment etc. But I too would have had random periods where I was in pain, nauseous, feeling like I was going to 🤮. There was one specific time (long story short) where I didn’t eat much before going to my schools Gala (lived my best life). As soon as me and my man left instantly felt like I needed to go, my face felt prickly, nauseous, and I experienced extreme pain in my side, ovaries, and lower back. Showering did not help and moving made it worse.
Let me not go on a rant. Thank you so much for sharing your story. It’s rare to find WOC or POC in general, who are raw and honest about their journey. I hope you are doing well. Sending prayers your way.
Finally going to get my Crohn’s screening done after watching this. I’ve had severe IBS symptoms along with gluten intolerance since I was a child and I learned to just “tough it out”. It has now gotten to the point where I have very few normal days where I’m not in some kind of pain or discomfort. And there’s been days where the pain has taken me to the ground like I’m giving birth. I’ve started taking some medicine for intestinal spasms to help with the acute pain in my colon, but yes GI issues are unseen, but debilitating if they go on for years.
I originally thought my current issues where caused by a punctuating kidney stone, but after the removal of the stone, my left flank pain came back and that’s when I was told to see a GI to get a colonoscopy. Crohn’s and IBD of any kind can cause nutrition malabsorption in young “healthy” adults, and can result in things like kidney stones and gallstones. Don’t minimize your pain people! Get some insurance and get checked. I went months not knowing what was really wrong, and ended up taking medicine and supplements that made it worse.
It's so relevant.. suffering from hell symptoms yet nothing significant in test reports kills us everytime..but finally when i had my Crohn's diagnosis, i was relieved i have a cause, atleast.
I am so happy I found u. U look like me. Bless u &;Thank u
Pretty nervous to go through all this. But I had what I think was a flu, threw up and had horrible stomach aches. Fast forward a month, I’ll randomly get nauseous like once a day, have like a cramp feeling in my left lower area of the stomach or sometimes the right side. But this video kinda helped me relax and not worry as much. :)
How are you feeling now? Did you found out the reason behind that?
Thank you so much for sharing, I'm currently in the process of being diagnosed but it is a long and grueling one. Even with immediate family diagnosed and the disease being hereditary I'm still being pushed away by hospitals and specialists because they wont take my "invisible" symptoms seriously. I think my stories very similar to yours in a sense that i was also working child care when my symptoms became so sever that i ended up in the hopsital and had to leave my job a few months ago.. since then ive been on a number of meds prescribed by my PCP and nothing has helped. My doc thinks i have an abdominal hernia from the constant flaring so i have a ultrasound coming up that im PRAYING will give answers/push me in the right direction. 9 months of flaring and ive lost 40lbs. Pray for healing soon, your story made me feel more hopeful and less alone. ❣️
Thanks for your sharing info for all new sufferers.
Thank you! Currently suffering like no other..simlar situation. GI issues for years thought it was ibs. The last 2 years horrible joint pain , positive ana marker, doctor after doctor came up short because i look and act healthy all the while same on off GI stuff. Recently for the past 3 months work up nauseated every morning and had spells through the day, felt full easy, burning and swollen upper abdomin. Blood work showed high H pylori.... treated for that which only helped a little with the upper burning. Finishd antibodics (which have always hurt me) tested negative but now everything is worse... pockets of horrible pain the same spots through my stomach but the worst is lower right abdomen all day pulsating cramping and aching. No appetite like zero, I am wasting away. Found blister like sores on my elbow and a few fingers, my eyes feel swollen and now my ribs hurt. I can barely pass anything remotely soild now...
Currently waiting for a scope from both ends on the 24th. At this point I just answers. Appreciate you. Thank you if you read this far.
Nausea, loss of appetite, joint pain, diarrhea, and right lower abdominal pain are classic signs of Crohn's disease! Glad you are getting scoped and treated. If this helps, right lower abdominal pain is associated with the ileum, which means the inflammation may be present there, but also could be in the colon as well.
Thank you for sharing. I’m so sorry you’re going through this! You will get answers soon! Don’t be afraid to ask for a second opinion if doctors aren’t sure or not being clear. You need to be treated somehow. I really hope you start feeling better soon. The scopes should bring answers
any update to your situation? :(
Very similar situation
Thank you so much for making this video, i really appreciate it!
---Hey does anyone else get those throw up reactions but while going to the bathroom, not necessarily from nausea like...contractions?
That would happen when I was in a bad flare or when I had c diff
@@irascrohniediaries Thank you, I really appreciate the reply
Yeah I get in such bad pain from my weird belly contractions/cramps I think I’m about to vomit
Excellent talk, presented really well, very easy to follow!
You are so relatable 💜 I was diagnosed w/ Crohn’s last week. Instant follow!
Wow! I have almost all of these symptoms down to a T! Including the symptoms being exasperated by antibiotics I was prescribed for mysterious red bumps that kept appearing and opening on my legs (doctors thought it could be staph infection but the antibiotics didn't work and came back negative for bacteria). Just got a colonoscopy done a few weeks ago and they found severe inflammation and ulceration. Doctor said it could be crohns and im going to get a diagnosis soon
Look up, erathyma nodusm. That comes with flare-ups occasionally
Going through this too. I get bouts of canker sores up to five in my mouth at a time. The nausea. Urgency, constipation it comes in waves though. Sometimes I'll feel perfectly fine for two three weeks at a time other than having constipation and whatnot and then I go straight back to everything happening all at once. I have a colonoscopy at the end of the month I hope they can tell me what's wrong with me finally. It's definitely not fun having to know where the bathroom is every single place that you go and dreading going on long car rides.
Very helpful just to listen to someone else talk about their journey. Thank you. Recently diagnosed and it's been a whirlwind! I really had very limited knowledge of this disease before recently and it's a whole new world now! Wouldn't wish this on anyone!
Thank you for watching! I know how it feels not knowing where to turn with a new diagnosis. I'm glad I can help in some small way along your journey. Hoping that a diagnosis at least means relief is on the way for you!
Thank you söö much highly appreciate new vidieos about your medication and present situation ❤
I’m glad I found your video. I was just about to ask if you had a colonoscopy. I’ve been dealing with similar symptoms for a while now. I’ll be calling the doctor’s office back Monday 🤦🏾♀️. It’s just the journey of dealing with the doctors and tests after tests.
I love you, you are so strong. thank you for sharing
How sweet! Thank you so much :)
I'd been telling these doctors for 2 YEARS that I have chrons! The PAIN...and I almost bled to death last year. They just diagnosed me last month with perianal chrons and HS. they said it's a rare form of chrons, I'm probably getting my rectum removed (got a colostomy bag unexpectedly in 2021, guess its permanent now). Gonna get my first infusion of remicade Thursday....lord help...
AND I'm anemic with alpha thalassemia...
I got c-diff after my gastric bypass. Well that's another long story....
stay strong
You have been through HELL. Bless you
So sorry that you have to go through this! Would love to see what you changed in your diet that may have helped with less inflammation.
Thank you love! I will definitely make a video about that 😄
@@irascrohniediaries have you created a video on your diet that helps to prevent flare ups?
My dear, thank you for sharing your journey ❤ I wish you all the best, stay strong!
Thank you so much!
Hi wanted to get some information u started humira on 18th May had 4 injections loading doses at the hospital. I then had my next 2 on 1st June. Next Thursday will be on 1 injection. So been 3 weeks today or so since started the treatment. Today a flare up has started. Any idea how long humira can't take to work as read it can take up 12 weeks before u see changes. I appreciate it can take different times for different ppl. Many thanks. I guess I'm just over thinking and panicking
ALOT of antibiotics do that to me BE CAREFUL! My Dr always gives me a z-pack because they don’t tear me up.
Love the glasses. Hope you’re better. 😊❤
Had to have an emergency CT scan. It showed my ileum is collapsed. I’ve had several of your symptoms. Shooting pain in my stomach. Pressure in my bottom that feels like childbirth. I haven’t been diagnosed yet, but I’m praying I can get one soon so I at least know!! Any recommendations for me to ask GI dr?
Deff looking forward to the c diff video!
Coming soon!
Clindamycin sucks I’m allergic to it really bad. I’ve had E. coli many times. And I was diagnosed with lymphatic colitis now dealing with mostly likely Crohn’s
Wow I'm so sorry you've had to deal with that! I've never heard of lymphatic colitis, I'll be researching that more. I'm hoping you get an answer soon on if you have Crohn's.
@@irascrohniediaries one more week and I’ve started losing weight from well my second day not eating anything. I can drink stay hydrated but I can’t eat anything.
Yes it’s a super strong antibiotic and can give you mega colon and colitis. Happened to my husband
Hi im new to your channel. I hope you are better today I have this to it's also bc of my period but now I take tepo shots it works.
I feel like IBS is a wastebasket diagnosis. That’s my recent diagnosis, and I’m on Prilosec. But I suspect that my symptoms are an early onset of Crohn’s. My mom has it 😔
I just got diagnosed with Crohn's. And it's draining me out like hell..
same i’m so suicidal 😢 hope you’re okay after 6 months
Allergies will create symptoms like you describe if you continue to eat the things.
Dang this is me, worst feeling in the world and I had a kid naturally! Feeling like you’re gona vomit and diarrhea at the same time along with chills, intense stomach pain and dizziness is just too much. I’ve passed out several times bcuz of it. Fell right off the toilet and busted my head open. I can’t tell you how many times I’ve been carried out of my apartment by firefighters half dressed cuz I fell off the damn toilet again 😭😭😭😭😭
So sorry about your awful experience.
My dad has crohns. I get nauseous very frequently and acid reflux to where I feel like I’m in the verge of puking when I move. I’m scared of all the -oscopies 😢 not diagnosed with anything but “acid reflux” right now
I got diagnosed in 2019
Do you guys have abdominal pain like all the time?
Clindamycin is a STRONG antibiotic. Was that antibiotic necessary? Goodness. Off topic, I guess. Thanks for sharing.
The acid medication they put you on was Omeprazole?
Yes that was it!
@@irascrohniediaries Wow lol
we literally have the same diagnosis story. I am still trying to figure this disease out and my doctors are not being any help.
I can relate to that. I always say get multiple doctor opinions if you are able until you find someone who is actually concerned with your health. Wishing you the best.
I have Crohns Disease Since 2010 I was Diognosed.
Now how is your health???
@Priyanka Singh I get Symptoms of Crohns Disease I get Easily Tired Exchusted Easily.
Get ABDOMINAL PAIN Diarrhea,other Crohns Disease Symptoms.
I go for ENDOSCOPYS and Colan.
Oscopys.
I had MRI IV CONTRAST in August 2021 and I Now have Strectsures meaning Narrowing of Intestines and Colan meaning it can Cause BLOCKAGE OBSTRUCTION meaning that would need EMERGENCY SURGERY.
Pentasa/Maasimine Prescriptions Works.
I'm no doctor. But i am a problem solver. Taking probiotics while taking antibiotics should with a high success rate (but not always and some people have allrgies to probiotics) keep you from getting C-diff. I wonder if PRO-STAT will cure Chrones? Pro-stat is a consintrated liguid of Aminos acids to promote internal wound healing. Chrones desease are ulcers on your intestines.
I have been struggling with stomach problems from high school first i had diarrhea and now i have constant diarrhoea along with stomach pain and vomiting but i dont have blood along with my diarrhoea and i have a minimal inflammation in my intestine and doctors tell me i have bacterial infection and ibs but they end telling i dont have any problem physically its just stress because of my uni so someone please help me with this
Did you also struggle with bloating a lot? I feel like every time I eat or drink anything I get painful bloating
Hi I'm on week 5 of humira Tommorow. I've had a flare up yesterday. Does that mean humira isn't working for me I appreciate ur not a doctor. What week did it work for u. I've read it can take between 2 and 12 weeks. Does that mean still a chance I can see results as on week 5. Many thanks look fwd to ur reply.
How can it dignoes
Do you exercise? If yes then what kind of exercise suits you?
“… I would have to hold on for dear life … ” my god I know that feeling
Also I never knew cake pops would change someone’s life so drastically and I shouldn’t have laughed but I understand completely. It was sweet potato that changed my life LOL
Exactly.. cake pops & sweet potatoes are to blame lol
Do you know how many ulcers you had? Please.
I am experiencing almost to a T what you had I just hope someone can find an answer 😭
Sister can you tell me that black stools are also a symptom of crohn disease?
Black stools mean you have bleeding high up in your digestive tract
so i have like all these symptoms but i’ve never had like a “flare up” is there a chance i still have this? i’m going to the gi in april
also i get the rashes all over my scalp but not my skin
did you get diagnosed?
So horrendous. What an awful disease.
Wheat, Wheat, Wheat
Wheat is terrible. At least the wheat grown on American soil.
How are you doing now?
I appreciate you asking this! I am doing well, been in remission for a while and recent tests all look good. I hope to post an update soon. Thanks for commenting, I hope you are well too :)
Oh my god you're so beautiful😍😍🤩🤩🤩🤩🤩😇😇😇
Aww how sweet! Thanks so much :)
Chrons disease never diagnose.
C-DIFF is extremely hard to get rid of it's insane. The antibiotic killed all of the good flora in your gut. I am soo happy you are okay. God bless you!
Yes it was rough for sure. Thank you so much for the kind words! I recently posted a video on my c-diff story. You're right & my immune system was very weak during that time due to antibiotics.
I struggle with constipation & horrible nausea every single day they told me it was IBS & acid reflux I lost 20 lbs. a week ago my appendix was inflamed and when they went in with the camera (laparoscopic) they saw my cecum & my large bowel was also inflammed so they took that all out & I most likely have chrons , I have to do a colonoscopy but I’m so scared to do the prep since I’m always nauseous
Oh no I’m sorry you’re going through this! I understand how hard it can be. I really hope you are recovering well. I would suggest pacing yourself while drinking the prep, try not to chug to avoid feeling nauseous. I’ve been able to do a miralax prep with juice and Gatorade and that wasn’t horrible like the solution they give you. Don’t be scared, you got this and I’m rooting for you!
I have Acid Reflux and was recently diagnosed with mild Crohn’s disease. I had to do a colonoscopy and endoscopy about 3 weeks ago. I agree with taking your time with drinking the prep. For my prep, I did the Miralax and I drank mine with apple juice. I didn’t end up drinking the full 64 oz because I felt like I was cleaned out (which I was). There is no rush to finish. I took my time lol. They also told me I was allowed to take Zofran (anti-nausea pill) the day of the prep & the morning of. Just double check with your doctor.
I have a video up on my entire experience if you you’re interested in watching. Wishing you healing and clarity 🤍
@@iamleahdre definitely taking my zofran & gunna do the prep because this is horrible a new symptom to is burning gnawing pain in my upper abdomen right between my ribs it’s horrible !
@@brieestar0307 I’m sorry you’re experiencing that. I know you may not want to hear this but think about the positives. They can finally look & see what’s going on. Without this procedure I wouldn’t have found out that I had Crohn’s disease and things could’ve gotten way out of hand.
what did your diagnosis show ? hope you heal 🫶